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Whether you choose to share your brain injury story publicly or document it privately for yourself, it can be surprisingly therapeutic to seize the narrative of your life. If I had kept my struggle inside, hidden from the world, I don’t know how I ever would have healed and moved on.
After a severe TBI at age 4, Michael Wight is now in fourth grade at Switlik Elementary, where they call him "the mayor." He attends class with other fourth graders and also gets help from a special education teacher, speech therapist, and physical therapist.
As caregivers, the people we care for depend on us to be consistent and reasonable, stable and strong. Setting our intentions may be one way of realigning ourselves with our values and goals, so we can continue to give care in a positive way. With that in mind, I’ll share with you what my intentions are for 2017.
Four years into the world of brain injury, caregiving, educating, processing my own grief and the extensive list that goes with a situation like ours, I have learned a lot about love and it's often quiet, unseen force.
We often hear how differently survivors emerge from their experience, but one of the most unexpected outcomes in our post-TBI life is how vastly I have changed too. Why is it that caregivers, like survivors, also feel like new people?
As a survivor, I distinctly define the before and after. Everything was profoundly different in the before, and now we exist in the after. I can almost see the marker in my mind. This is what the after looked like a few nights ago...
Rachel Derrington is not the same person she was before her brain swelled up and changed her attitude, priorities and sense of self. She is better. Rachel shares the four things that turned her from an survivor to a thriver.
Caregivers play a vital role in helping veterans recover from TBI and post-traumatic stress. In this article, four military caregivers describe the first major challenge they faced as they began taking on the role of caregiver.
This is a loaded topic for me and many others, but today I want to talk about something that came up recently regarding family who doesn’t ‘get it’ in understanding the complexities and challenges of our lives after combat.
When my husband became the one who responded emotionally to everything around him after his brain injury, I had two choices: keep reacting the way I always did and join into the downward spiral, or break the cycle and hold on tight for the ride.
Have you heard the term “new normal” lately? It’s been bouncing around for a few years and is used to describe the adjustments veterans and families go through when they return home from war. Have you ever wondered what it looks like?
When I resigned my teaching position in 2010 to stay home and care for Sean, it was devastating. ER trips were becoming part of our routine, as was calling at the last minute and requesting a sub so I could handle an emergency with Sean. As I sat listening to the ticking of the clock on the wall I was hit with my new reality: I could not continue down both these paths, something had to give.
Four years later, as some of the dismal fog lifts, I can see that out of fear of letting anyone down, there have been many times that I’d proudly adorned the “I’m fine” mask. The truth is, there is no way to be the same Mom, wife, daughter, sister, aunt, friend or anything after every fiber of your being has suffered radical rewiring.
I know this is a hard truth, one that many doctors and insurance companies will scoff at, one that many people might think is unrealistic, but caring for the caregiver in tandem with the person who has a brain injury is vitally important. TBI caregivers need to be educated about brain injury and what it entails.
Make time for yourself, so you can make time for other people and other things. Put yourself last, and you will begin to fail miserably at the roles and responsibilities you aim to fulfill.