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Those who know me well know that I am a big fan of peer support for brain injury survivors. While there is a lot of information to be gained from the medical community, the subtle and at times not so subtle nuances that come with living the brain injury life can’t be taught from books. As a TBI survivor, my own lived experience is my greatest asset in my advocacy work. It’s the sharing of this lived experience that creates strong bonds and lifelong friendships within the survivor community.
Patients who have right parietal damage and suffer from left hemineglect will often copy only the right half of a drawing, eat the food off only the right side of their plate and disown their left limbs.
"Life and living is the very definition of surviving. It is what the living do. Definitions are meant to change. Able to change. For the brain injured, begging to change. What does it mean to you to have survived?"
Though solutions come in unexpected places, I never expected my local Target store to hold to key to freedom from one of my biggest challenges since my brain injury – living with Post Traumatic Stress Disorder.
Learn what can help from computer hardware and software that can speak for non-verbal people to programs to assist those with learning disabilities to more easily perform cognitive activities.
It’s time to put a label on one of my biggest fears as a brain injury survivor: Backsliding. Over the last couple of months, I began to fear that this was happening to me until another survivor shared with me that lack of sleep exacerbated brain injury symptoms. And in two ticks of a clock, the lightbulb went on over my head.
As a caregiver, wife, and mother, I have found great solace in sharing my story. I have also learned a great deal from reading first-hand experiences of people who have survived a TBI. I recently read two new books about brain injury that I'd like to share. Both stories add new insight into the way we experience traumatic brain injury in our own lives.
Three of my four sons abruptly walked out of my life with no explanation and no communication. I was being ghosted long before that term even existed. It was, by far, the most painful part of my journey.
Elise Rosenhaupt discovers that her life before her son Martin’s devastating traumatic brain injury has prepared her for helping him through his rehabilitation and recovery.