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As I began my second life as a brain injury survivor, I found myself having to play defense against stunningly hurtful and relationship-ending accusations.
I know everyone’s story, while different, can be similar in a lot of ways. I have found there are many ‘walls’ that I have come up against. Some hit me right out of the blue with no warning and others crept up slowly. But, once I realized what the ‘wall’ was, I always manage to find a way to climb over it.
Doctors and therapists are stuck between a rock and a hard place. I get it. Offer too much positivity and create false hope. Steer too negatively and crush people’s spirits. I don’t envy their position.
"Forged between the hammer and anvil of pain, I slowly learned that pacing myself and really being in tune with my new-found limitations could be a game-changer." David Grant reflects on his life after his TBI.
"The great thing about transformation and change...is that it’s possible." BrainLine blogger, Abby Maslin sees continual transformation in her life and in her husband's.
BrainLine blogger Janna Leyde reminds herself that expectations can be tricky traps. "They will rule everything if you let them, but their rules can be unfair."
Every now and again, someone will ask me how I’m sleeping these days. My reply has remained unchanged for several years. “I’ve not slept a full night since 2010.” — David Grant
"The truth is I was so lonely I was worried I was going crazy. At night, I would close my eyes and silently speak to the husband who no longer existed," writes caregiver Abby Maslin.
"Christmas makes me anxious," writes BrainLine blogger, Janna Leyde. For her family, the holidays have changed since her father's TBI. Yet, they've still found a way to focus on what's most important.
"When a loved one is radically changed after a brain injury, seldom do we focus on the positives that might have sprung from the aftermath of a traumatic injury," writes BrainLine blogger, Rosemary Rawlins.
Brainline blogger David Grant understands the "rogue waves" of emotion that come with a TBI. "Like their aquatic counterparts, they originate out of nowhere, offer a bit of emotional catastrophic damage, then recede, sometimes as quickly as they came."
"TC’s brain injury was avoidable, but so are the years and years we could potentially spend dwelling on its source," writes BrainLine blogger, Abby Maslin.
"I usually know when I’m supposed to be somewhere, but the ‘now’ is ever changing." Blogger Mike Strand discusses his struggles with his TBI and memory.
BrainLine blogger Janna Leyde writes about how, with some help from Jimmy Buffett, she learned to accept the fact that life doesn't always work out as planned.
Being defined by your brain injury is different from sharing with a loved one what needs to be shared about the symptoms, says Brainline blogger David Grant.