Craniectomy: Life on Hold

Craniectomy: Life on Hold

After my husband, Hugh, was struck by a car while riding his bike home from a workout, doctors rushed him to the nearest trauma center and operated on his brain. The next day, because he responded to family voices, my daughters and I believed he was on the road to recovery.

Less than 48 hours later, Hugh was rushed back into emergency surgery when he developed a right subdural hematoma. This time, doctors performed a craniectomy; they removed a portion of Hugh’s skull to relieve brain swelling. This operation reduces damage to healthy areas of the brain by allowing the brain to swell without being squeezed; it can prevent death and improve outcomes. That piece of bone — about the size of half a grapefruit — was put in the hospital freezer. I was told it would not be replaced for at least three months, the time it would take for Hugh’s brain swelling to recede.

These three months were the longest three months of my life. In the acute brain rehab center, I was told that Hugh should wear a helmet on his head every time he stood up so he would not reinjure his brain. To compound my worries, Hugh felt dizzy, he was wobbly and often tripped when he walked, and he was cognitively impaired. As I waited for him to be “put back together,” I felt as if our life was on hold.

After three months, Hugh’s bone was replaced without incident; and within two weeks, he regained the use of his left side, his dizziness abated, and his balance stabilized. Somehow, having that piece of bone back in his head restored his equilibrium.

I recently talked to a man who went through a similar experience, but he had complications. Bob Gray was a Chief with the Arlington County Fire Department when the 9-11 attacks occurred. He’s known for leading his department’s Technical Rescue Team in its search for survivors at the Pentagon. After 30 years in the department, Bob retired in January 2011. Two months later, he had a freak accident. He sustained a TBI at home when he fell from a ladder.

During surgery, Bob also had a craniectomy, only his surgical site became infected several times. He had to have repeated operations to clean the area. Over the next two and a half years, he spent a lot of time on antibiotics. During his final bone flap surgery, Bob was in the hospital for more than a week. Doctors discovered that the infection had affected both his scalp and part of his skull. When they tested the bone, they found MRSA, a drug-resistant infection, in the bone piece, which could have been deadly. Now Bob lives with a prosthetic bone completing his skull.

Now that the surgery is over and he has finished his last dose of antibiotics, Bob is hoping he will continue to heal with no further setbacks. “This whole process has felt like one step forward and ten steps back,” he says.

Bob’s wife Lesli tells the same version of Bob’s story, but she includes many references to her own personal stress. Like me, she was told Bob should wear a helmet, and, like Hugh, Bob did not like wearing the helmet. The more mobile Bob became, the more worried Lesli grew. With each new surgery, Lesli felt like this would never end. She said, “We were all okay with the idea of a new normal, but it started to feel like even that was not a realistic goal.” Hopefully, Bob’s prosthetic bone has resolved the problems related to his infections.

Today, Bob is back to dedicating his time to Project Rebirth, an organization dedicated to facilitating healing, fostering hope, and building resilience among first responders, veterans, and other community leaders. He’s glad to be back to his active lifestyle. Lesli says that she’s okay with how he’s doing, but she feels anxious when he is doing anything (like cycling) where he might fall. “I am hoping that more time will reduce the Nervous Nellie in me!” she says.

There are two similarities worth noting in our stories: both Hugh and Bob felt more incapacitated when part of their skull was taken out (dizzy, out of balance); and both Lesli and I experienced a lasting sense of anxiousness. My anxiousness has lessened with the passage of time, and I hope hers will, too.

I’m also hoping that through our stories others may feel more prepared if a loved one should have to undergo this procedure and may not be alarmed if they experience similar setbacks until the bone is replaced. I’m grateful that Hugh had a craniectomy. It’s a life-saving procedure for sure. 

Comments (92)

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My Father had his first severe brain stroke( left brain haemorrhage) on 11th August 2019 , We immediately rushed to the hospital , and he was put in ventilator . Then after 10 hours or so the doctors performed craniectomy . We were informed that it will be very difficult for him to survive after the surgery . After 14 days of surgery my father opened his eyes from coma. It was a new ray of hope for us .
after 25 days of stay in hospital he was discharged with his bone flap preserved in hospital .
His right body and limbs were completely paralysed , his speech was lost and the head did not had any balance . The tracheostomy tube was still inserted and the feeding was done through Ryles tube . It was hard to believe that this man was my father . He was almost like a lifeless body . All he knew was to cry and cry loud .

On November 23, 2019 my father again had the Cranioplasty (joining back the bone flap) . Then gradually he started gaining some balance on his head . He could swallow his own saliva , some liquid food . We thought that one day he will be back in his old form .

Then on the night of 9th January 2020 , he again had brain haemorrhage now on the right side of the brain . This caused his left body to get paralysed . We again rushed to the hospital . The doctors suggested another round of craniectomy . But this time his survival chances were even more less . He stopped responding and sometime and the doctors said that he has attained brain death . But his heart was still working as he was on ventilator . On 11th January ,2020 at 11.30 am his heart stopped due to cardiac arrest .

My father is no more . He is gone . Gone too far , with all his pain left behind .

Craniectomy can not always save the life . It can just delay the death .

My mother went with craniectomy on 16th Dec 2019. Now she is unable to talk (speech is unclear), Right hand not at all responding, right leg partial response, walking in supporting mode. Could u say that, when do she get clear speech, right hand and leg? Pls answer anyone.

Same thing happened to me I was in a coma for three months they did a craniotomy and I woke up thinking the right side of my body was paralyzed three years of therapy physical therapy speech therapy I can walk but not too far so I’m in a wheelchair but I can walk with a walker don’t give up on her it’s worth it I am 3% that survived the accident I was in and it can happen

I’ve just had a craniectomy (due to a mass growing inside the bone) and it was replaced with titanium mesh.

I’m doing remarkably well- No infection and no bad things happening like i was warned. There is obvious pain and it was very strong for the first 2-3 days but it is easing now some. Only complications I had was with my breathing but that was due to issues with my asthma and the anasthesia, not the actual surgery causing issues itself.

I feel very tired and although I’m not having any major issues with stoke like symptoms from swelling and all, doctor has still put me in a walker for my recovery as I already have some balance issues and I can’t afford to fall and injure myself while I’m healing. They’ve also given me a raised toilet and are doing in home therapy- something I didn’t expect since it’s not a surgery for Mobility. My fingers are a little bit fumbly but nothing serious. I couldn’t use the left side of my face for app 3 days but that’s improving now as swelling is going down. Doctor said that’s common and normal for many people.

I’ve been very encouraged with how things are progressing! I think it’s super important to 1) get a great doctor (mine is famous in the field and was thankfully within my insurance program. Not only is he an active surgeon but he’s also the department head of neurosciences and the lead researcher for the Brain rumors and treatment lab at Emory university in Atlanta). 2) be so careful about infection! My doctor gave me extremely strict orders about how to prepare for the surgery and how to love afterwards. It seemed excessive but I don’t even have irritation at my wound site and now signs of infection at all, despite the fact that I have 3 immune diseases that severely compromise my ability to fight things off. I’m thankful he went the extra mile with prevention of infection.

I was wondering how long it takes most people to recover their sense of feeling around the incision. With a past surgery I had with a lot of cutting, it took a while but started to come back a little at least pretty quickly. But so far I haven’t recovered any sensation yet around where they cut. So was wondering go about that tbh.

Hope everyone progresses well with their surgeries and recoveries!

I had part of my brain flap removed because it was infected. The doctor said he didn't know if he would put it back. He said it could cause a lot memory loss. The spot close to the temple and down close to my ear. What do u think I should do?

Hello. My daughter had a major stroke 10 years ago. She was doing fine with her flap replacement. But 10 years later the body has a sorted the brain flap. She goes in to.orrkw to remove any fragments and the plates that are poking through her skin. They say 3 months and she will get her new brain flap fabricated by them. My question is how long is the hospital stay after this? And the side they are operating is completely dead anyways due to the stroke. I am wondering about complications? .

My father is home now after having his right skull removed due to a subdural hematoma cause by passing out in the bathroom. Does anyone have advice on how to get him to wear his helmet at all times when out of the bed? He has great long term memory but his short term is affected as well as reasoning and overall cognitive ability... I just get really nervous when he goes to the bathroom cause he tends to take it off if he thinks no one is watching. He has refused to shower but that makes me even more nervous because I don’t know how to ensure he keeps the helmet on until he washes his head. Any advice would be awesome

This explains exactly how 2018 was for me. I had a craniotomy apriil 26, and emergency Craniectomy due to staph May 30 & Cranioplasty Sept 17th. From May til September, I was missing part of my skull... afraid of falling, etc. Now I live with constant headaches when lying down due to pressure I suppose on the prosthetic bone in my head. I woke up early and was angry at the pain so I started googling and found this. Thank you! I know I am not alone.

Did anyone suffer from personality changes ,short term memory loss or slight abnormal behavior after craniectomy ? If yes, then how did it take to fully recovered from that? Plz give me answer of this.. A very close friend of mine has gone through surgery 3 months back.. Now he can walk , eat and talk..but behaviour is very weird. I m very tense

My husband had a craniotomy a little over a year ago. He had a miraculous recovery and is doing well. However, I am curious and ask if either of you have experienced indentations in your skulls? My husband has different areas in his skull where indentations seem to come and go around the surgery site. Your response would be welcomed.

I also have quite a deformity (sunken) where the titanium mesh plate has been inserted. Fortunately, my hair covers the area. I saw a show on tv about someone having fat inserted to "round) it out. I don't want any more procedures and
I'm ok with the way it looks.

I am so happy to find this !
Wish this surgery on nobody.
Had mine on July , 25 2019 and have had PCM twice now .
Post craniotomy meningitis.
I have yet to be able to get off of the steroids and not have another flareup I am praying that after next week this does not return. I need to get back to work my life and my family. My life has definitely been on hold which is so foreign to me and many others who know me. Thank you all for sharing your stories and your experience and this article. Because I am so desperate right now to feel better it’s ridiculous. I had a lime sized brain tumor removed on July 25.

Hi! I have had 5 surgeries 1. craniectomy to treat a subdural Hem. following a fall on the sidewalk. The bone was removed then replaced. This happened out of my country, so we had to fly home. It became infected. Had to have it removed as I had developed meningitis, the bone was very bad and was discarded. All the stitches were blown open and liquid was oozing from the site. There was even necrosis of the dura, so a plastic surg. procedure was done to cover my brain. I was on a pic line to receive Vancomycin for 6 weeks. After 4 mos. I had an acrylic plate put in and all seemed great. Another infection appeared about 14 mos. later. I felt very discouraged at needing to go through it all again: remove plate, pic line, wait 5 mos to have the titainium plate inserted. It has been 9 months, but I don't feel secure. I have headaches, anxiety attacks, sometimes pressure in my head. I am due to have a ct scan and see the Dr. Feb. 26, so, I am hoping all is well. I am constantly thinking about the various sensations( pain-pressure, etc) Very discouraging.

Hello!
We had our surgery on the same day ! I had PCM TWICE and there will be better times ahead . It SUCKED ASS and I wanted to scream in frustration but was in so much misery could not . I am so sorry you are dealing with this . I am now back to work week 3 and doing many things I did before, but not all . I do not look or feel the same. The steroids changed my weight and I look pregnant :/ BUT I am alive and so are you ! I hope when you read this you are feeling better !!!! Hugs enclosed your tumor buddy :)

I also had craniotomy last july, the 30th to repair a brain leak. So frustrating, feeling physically great, but still having issues on my head so i decided to look on the internet for support regarding my scalp. Now 6 1/2 weeks, i am walking two miles every other night after dark with hubby, in cali right now its way too hot out to walk during the day. When i sweat i need to get in the shower and gently wash my hair for fear of infection. My incision area vibrates, itches, feels stiff like if it had glue on it and my husband checked it for me, he said its really thick and lifting, and when i touch it i can feel the stitches that were supposed to disolve. I guess some of them are lifting out with the scab or something. I was given very little information on surgery site care, i dont know if I should put something on it. Its super thick and hard. Again, it feels like its vibrating sometimes. How is yours?

Hi everyone, I'm after a bit of advice please. Following a few weeks of 'unusual' behaviour my mum had a fall. To date we are unsure whether the fall caused the haemorrhagic stroke or whether she was suffering a minor bleed which culminated into her falling over. She had burr hole surgery and things looked to improve over 24-36 hours but then her brain swelled so much she suffered another stroke for which she underwent emergency craniectomy. It's coming up to 2 years now that the bone flap has been removed and we are still awaiting a date for the procedure. She desperately wants to have it done but I'm so concerned hearing all the risks and my mum is rather a complex patient (atrial fibrillation -and on warfarin, has a metal heart valve, suffers with heart failure, has scleroderma - plus a whole other list of health complications). I just sometimes think that its too risky to have the operation as she manages to get by as she is - although I have noticed some deterioration in her overall mental health during her recovery and it appears that could be improved by having a titanium plate put in. What I really want help with is my mum is desperate to go abroad (12 hour flight) to visit her relatives, but I'm not sure how comfortable the journey would be for her (given cabin pressure etc) does anyone have any experiences they can please share with me regarding how air travel has been for them. Is it even advisable to travel with just the bone flap? I'd really appreciate any insight.

Hi i am a craniotomy aurvivor for 3 years.. my feeling was ok.. i did not undergone for titanum mesh i was scared then maybe i cannot survive.. but just now i accidentally hit the glass door and i feel dizzy.. i am qorriwd of my self since i am working her in abroad as a domeatic helper and currently on vacation her in lebanon.. do i have ro worey then aftee hit in the door??please anyone expwrience please share..
Thank you
Shiela

My best friend Suzette has been going through hell over the last 2 years. At 37 she had a brain aneurysm and is just had her 3rd titanium plate removed because her body once again had rejected it. She has been diagnosed with MRSA also so her options for antibiotics are limited which makes it seem next to impossible to stop any infection she may acquire. Today she is recovering from her last plate removal surgery with what seems like no hope in site for her. Its so very hard to watch someone be treated like a guinea pig. From the beginning to now she has had 19 surgeries which include multiple shunt surgeries....things seem so hopeless. After the first plate replacement surgery she literally got out of bed 3 days later and walked down the hospital corridor, not she needs help to sit up and basically move. Suzette is absolutely exhausted and has become trapped in her body....its heartbreaking to watch. Is there anything else that can be done other that trying the same thing over and over?

Also, I have been hearing that CBD oil can increase brain function and help with aneurysm and stroke victims? Any truth?

I should mention that Suzette had suffered a stroke during her coil surgery to stop the bleeding causing her to have limited function on her left arm and leg. Therapy had helped her in the past gain back her leg and arm functions but now it seems that because of all her complications she is slipping backwards and losing those abilities quickly with every failed surgery.

Any suggestions or comments would be greatly appreciated...

CBD oil works but medical marijuana oil works even better. I have been using a small amount...about a quarter of a teaspoon two or three times a day. I am very pleased with the results. Mild mood elevation, pain relief are almost immediately felt. This has improved my life considerably. I no longer use Fentanyl patches..which I had used for twelve years. Good luck to your friend. She is very fortunate to have your help.

Hi

I am going through a similar thing with my Dad :( he had almost half his skull (right side) removed last May (2018) after being assaulted and hitting the ground. He has had 2 cranioplastys to replace the skull with a titanium plate but both got infected and had to be removed. We have now been told we have to wait a full 12 months for them to even consider operating again. He pretty much regains full movement in his left arm and leg when the plate is in but when he is without one his mobility declines rapidly. I'm so worried he is going to decline so much in the next year that it will be impossible for him to regain his mobility again. This is so hard and I feel for everyone experiencing what we, our family and friends are.

My heart goes out to you and Suzette. I don't have any answers... but I can share that you're not alone. We've watched our daughter suffer for the last 4 years with multiple brain surgeries, etc from being thrown from a turning golf cart. Some of her situation is similar to Suzette's - somewhere around 19 surgeries ( we lost count, most were brain surgeries), shunts, right side paralysis and now contracted legs, both paralyzed, speech and comprehension difficulties, inability to get up, ... I've heard that progress is best in the first year or two, but after that it's more difficult. In our situation, we continue on a slow, downward spiral. Be sure to find something in life to help you smile... You need respite for the long term haul. Hugs.

Hi everyone,
My partner had undergone a craniectomy almost 4 years ago, and ever since then he hasn't had his bone flap replaced. The doctors say he might have a titanium mesh instead. I'm really nervous about all of this & would love to hear your experiences both positive and negative, any tips or just relevant information you think I should know about.
Thanks in advance !!

Hi Sakura,
We've opened the topic of craniectomy and bone flap vs. titanium mesh to the BrainLine Facebook community: www.facebook.com/brainline/posts/10157573915362240

"My husband had a TBI in July 2018. The bone flap was removed and was placed inside the tummy for safe and sterile environment. However, flap got infected and titanium mesh was used after three months after TBI. He improved so much after the titanium mesh was done. We are six months now post titanium mesh. All good. Rehab and healing now. Go for it"
-- Prithee

"My sons bone was replaced with titanium. He also had his bone frozen, but surgeons decided to go with titanium after an infection. It was also a nerve-wracking time having to enforce him to wear his helmet, and of course, with a brain injury he kept forgetting"
-- Colleen

My 7 year old son was assaulted by a teenager in our neighborhood a little over a week ago. We took him straight to the emergency room at our local childrens hospital, where they did a CT scan and told us he sustained a depressed skull fracture. They did an emergency decompressive craniectomy and removed the hematoma that had formed. So far he has made a miraculous recovery. We are already home from the hospital, he spent two days in the icu and three in a regular unit before being released. He was fitted for a helmet; he doesn’t have any issues moving his limbs, his personality and speech are unchanged, he has slight balance issues and some dizziness and headaches but overall I think he’s doing well. I am freaking out a little because everything I am reading on this procedure and the following cranioplasty on the internet basically says he will not be okay. This forum has made me feel a little better hearing from people who have had this surgery before and survived. I am having a hard time getting him to slow down and I am just scared we will have to live like this for months. Initially the neurosurgeon said the flap would be out for two weeks, and then right before he was discharged they said two weeks to four months. Can anyone tell me the average time the bone flap usually remains out for? Thank you so much.

Hi my son had a tbi after falling down the stairs backwards and landing on his head - he had to have a part of skull removed twice to stop the brain from swelling - we have been through a tough time but six months on things are progressing - from my experience and with people that we have met along the way it seems to be six months before the skull replacement takes place - we live in Ireland and they use peek as opposed to titanium! While waiting for the cranioplasty my son was lucky enough to get four months in a rehabilitation hospital where he really benefitted - we have a long way to go and have been told that it will take at least 18 months to be what he will be (hopefully his full self) He had his skull replacement on Friday (using peek as opposed to titanium) and came home from hospital today - his stitches will be removed in two weeks and then intense physio and speech and language therapy to help with his speech and reading and writing. We are staying positive - he is 23 by the way

Usually 3 months

My boyfriend had a car accident last week and they said his brain was swelling and he had slight bleeding. They rushed him into o.r. And took out his right skull (bone flap). So the brain could have room and they said that if all goes well 3 months they'll have it back in. Each day he's improving by walking, talking, and eating from not knowing if he'll be ok cause the doctor said it's going to be about 5 to 7 days to see if he'll make it. But he's veering to the left when he's walking and his short term memory is affected. Long term memory he has but he's disoriented and confused. I'm so anxious but patience is key cause I understand this is a long recovery.

My husband had a massive stroke last year and is still waiting for cranioplasty, but with a titanium plate. He is paralysed down left side. I am hoping after the procedure, when ever this happens, it will help to walk again. A year on the waiting list is so disappointing and husband is depressed. If we had the money, we would pay.

I get "my skull put back together" Feb.6, 2019. Thank you for this blog. Springfield, IL

I had my skull put back together last year Sept 17 following post craniotomy staph infection... 2018 was a brutal year. i know exactly how you feel.

Hello, on the 28 July 2018 my husband was assaulted whilst trying to separate an altercation with some other friends. He endured severe brain injuries and on day 1 of his injury had an ICP monitor put into the skull to monitor the pressure and swelling. The swelling increased after day 4 and he had to go for an emergency operation to remove a part of his skull to release the pressure. The bone flap was placed in his abdomen area. After 4 weeks, he went to theater to replace the bone flap however the bone flap was infected and the operation did not proceed. After 2 months he developed hydrocephalus and had a shunt put in. However after 4 days this had to be removed due to over draining. A programmable shunt was then put in. This worked fine and was switch off remotely after 2 weeks when the fluid levels were ok. After a 3 month period, a cranioplasty was done using a titanium mesh to replace the bone flap. Within days of this procedure, he started to talk a little, memory gain, use of his right arm and legs, eating etc... The next step is rehab so that he can learn to walk again and use his hands. He had a seizure a couple days ago but the doctors say nothing serious as they just need to increase the dosage of the anti-seizure medication. He has been in hospital for the last 115 days and soon to be discharged to the rehab facility . He has lost a lot of weight but all good now. It's been a long, tough road but we can finally see the light. Any recovering patients had seizures post-cranioplasty with a titanium mesh?

I had titanium put in after infected skull flap removed, before the mesh I was seizure free, about a month after I had my first one. its been almost 2 years and I'm still stuck on keppra. I was hoping it's a matter of my brain adapting to the presence of the plate but I fear that's not the case. anyone else having this issue?

Following a TBI due to an assault, I had to wait 2 years, for my crainioplasty. During this time, approximately a third of the top of my skull was missing. I forund this story whilst trying to see if it was normal to wait this long.

Did you wear your helmet while you waited? Husband is waiting for surgery and they say maybe August.

Where are your family member's living while they await cranioplasty? Have you all found a helmet that they can wear in bed while they sleep?

My brother was on a scooter and hit by a truck on May 31st this year. His plate should be finished and surgery to replace the left side is scheduled November 6th. He has been in the hospital the whole time. He is no longer able to to make words and this gives me hope that once the piece is on he will improve. He won’t be able to come home but I hope for some quality of life for him. The stress and anxiety has been unreal for both my mother and me and there is still such a long road to go. Thank you for this post. I needed someone to relate too and how they handle this situation. We all have not gotten to move forward yet to what is the new life. Wow it is so tough. This gives me hope.

My sister was hit by a car has bleeding on her brain doing surgery as I type this she has no ins ,will they send her to rehab or any help for her if she comes through all this ? I am her only family and she is at least 10 hrs away from me we have not been around each other in a while due to her drinking problems,it’s 6 days to Christmas my kids and husband are here should I go to her or wait to see what happens? Her boyfriend is with her I don’t know what to do ? Please help what would u do ?

Thank You! My nephew undergoes Cranioplasty tomorrow just over 12 weeks post severe head injury. Your positive story has helped me. I understand feeling anxious!

Hows everything??

Thank you for posting it definitely gives me some much need insight on the road ahead for my family.

Wow, all of these incredible stories. I was in a car accident 3 years ago (at 21) and rushed to the hospital for this surgery; doctors were predicting many different outcomes during my coma (none of which were very pleasing) to my family. There was a point in the hospital when I was literally on the verge of death, then the lord literally sprinkled me with another chance like the guy that got famous for sprinkling salt on the meat. Up and and out of the hospital in 3 weeks, helmet and all. 3 month later after the swelling went down got my surgery and prosthetic skull plate, no symptoms of anything at all. Made a vow to do spectacular things with my life as it is my duty to help others.

Hi there, Thanks so much for your story and for all the wonderful comments above. My father is going through his third surgery in 3 months and he did have to have part of skull removed due to infection and wears the helmet currently. We are told he needs antibiotics to kill the infection before he can go in and get the bone replacement surgery. We want to take him to the best place for this surgery. Where did you go? Please advise. Thanks, Jennifer Gilman

BALTIMORE SHOCK TRAUMA ON GREEN STREET, BALTIMORE MD. #1 in all the world

I am Jennifer's dad. Since she wrote this post I had 3 more surgeries. Peek replacement flap placed, infection cleanup, and Peek replacement removed. Now awaiting to be infection free for next surgery, titanium mesh. This is getting old. Wife and kids keep me going

My brother went under the knife last Sunday, April 29th, for ruptured aneurysm. There was massive bleeding and it all happened so quickly. What happens after craniectomy? He still hasn't woken up. It's been days. What can we expect? We feel so helpless and afraid.

This is a nice post explaining a lot about life on hold. I really appreciate your efforts to do so. Keep Posting.

This is really inspiring. My husband was in a car accident September 11th. We are actually in the hospital now. He had his bone flaps put back in. But has been asleep since the surgery 2 days ago. So I do not know the improvements yet. I hope his success story goes as well as a lot of yours. I worry because some of his brain was damaged due to lack of oxygen to the brain before paramedics arrived. So we will see. Thanks for the inspirational story

I had a cranioplasty using an artificial bone flap. This was preceded by infection meaning that my original bone flap could not be used. The four months that I had to wait until the Doctor was happy that the infection was under control were difficult. Loss of balance, difficulty with speech, impaired mobility, the list was long.
I returned home today, the difference is remarkable. I can walk, talk, and I am looking forward to gradually regaining most if not all of my function.

My husband had a motorcycle accident in May of this year, he had a cranial removed on his left side 1.5 weeks after his accident, he was improving, needless to say, I was kept from him for almost 2 mos by his mother and she signed to ha e him moved with a broken shunt in his brain to another hospital, he had issues, they had to do surgery in hospital room and he developed staff, he has had 6 shunts since one being a permanent one. He had his bone flap replaced 2 weeks ago and he has gone lethargic because he has anair bubble and blood behind bone flap. Dr.is just waiting, I m very concerned. I don't kniw what to do, he still has trach in and I want them to try a talking trach but getting push back from his mother. Is this normal?

A wife has legal standing over a mother regarding medical decisions for her spouse. Don’t let her do this or at least speak with an attorney.

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