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When I was struck by a teenage driver back in 2010, I sustained a traumatic brain injury. In addition to my TBI, four new letters became forever intertwined with my brain injury: PTSD. Over the years, PTSD has proven to be harder to live with than a brain injury.
My brain injury journey has come with many unexpected twists and turns, making it an experience that is truly stranger than fiction. Many of the changes that came to pass after my brain injury were incredibly painful and life-changing. But not all the changes were difficult. Some were – dare I say – simply wonderful.
Creating a feeling of community, inclusion, and understanding is part of the power of support groups. The holiday season illustrates just how impactful that support can be.
Something that I talk less about these days is how brain injury still affects me. And there are times, times like I am about to share, that brain injury still rears its ugly head, and leaves me completely bewildered and baffled.
Finding acceptance after a brain injury isn't easy. "For a long while, I bucked against our reality. I found myself caught between what I had once known and an uncertain future. The in-between caused marked turmoil. As much as I didn’t want to accept Taylor’s brain injury as part of our lives, it is. As much as I wish it didn’t affect Taylor and our family … it does."
How do you love the man who can’t express emotions the way he did when you first fell in love with him? How long do you continue to gaze into eyes that don’t see your heart? How many times do you say, “I love you” to someone who doesn’t respond?
My relationship with clinical depression goes back almost three decades. For reasons that even those intimately familiar with brain injury would be at a loss to explain, my depression virtually disappeared after my injury.
Of all the things I was warned about following TC’s brain injury diagnosis, no one suggested the idea of mistrust or suspicion. I didn’t anticipate waking up one day, twelve exhausting and painstaking months into his recovery, to find myself on trial, accused of harboring ulterior motives and secret plans...
"The truth is I was so lonely I was worried I was going crazy. At night, I would close my eyes and silently speak to the husband who no longer existed," writes caregiver Abby Maslin.
Being defined by your brain injury is different from sharing with a loved one what needs to be shared about the symptoms, says Brainline blogger David Grant.