What Impact Will Moderate or Severe TBI Have on a Person's Life?

Center of Excellence for Medical Multimedia
What Impact Will Moderate or Severe TBI Have on a Person's Life?

The effects of moderate to severe TBI can be long lasting or even permanent. While recovery and rehabilitation are possible, most people with moderate to severe TBI face life challenges that will require them to adapt and adjust to a new reality.

Moderate to severe TBI can cause permanent physical or mental disability. Because polytrauma is common with moderate to severe TBI, many patients face additional disabilities as a result of other injuries. Even patients who appear to recover fully may have some long-term symptoms that never go away.

Challenges with work and completing tasks that were once routine can be much more difficult than before the injury. Some patients find that the skills and abilities that they used before the injury to meet these challenges are not as sharp as they once were.

These ongoing challenges can also affect the patient’s personal life. People who have experienced brain injuries may take longer to do cognitive or “thinking” tasks associated with memory, such as coming up with the correct change in the checkout line at the grocery store or placing an order at a restaurant. Family relationships will almost certainly change, and in some cases the patient will be totally dependent on their caregivers.

Despite the advances in early diagnosis and treatment of moderate to severe TBI, the fact remains that traumatic brain injury will be a life-changing experience for many patients. Helping the patient, family members, and caregivers to cope with these long-term consequences is an important part of TBI rehabilitation.

Motor Deficits and Disabilities

For many patients, the damage to the brain resulting from a moderate to severe TBI may lead to life-long disabilities or motor deficits. The term disability in relationship to TBI means a loss of physical or mental function caused by damage to the brain. Motor deficits refer specifically to the effect of damage on motor skills or movement.

Examples of disabilities and motor deficits caused by moderate to severe TBI include:

  • Paralysis
  • Spasticity (muscle stiffness) or uncontrolled movements
  • Problems walking, talking, or swallowing
  • Difficulty carrying or moving objects
  • Vision problems
  • Loss of fine motor skills, such as buttoning a shirt
  • Inability to recognize something based on touch
  • Difficulty thinking and remembering
  • Difficulty with social relationships

Other challenges that a patient with moderate or severe TBI may experience include:

  • Difficulty making and keeping personal and professional relationships
  • Difficulty being part of social activities
  • Difficulty taking part in recreational or leisure activities
  • The decreased ability or inability to keep a job or go to school

During the rehabilitation and transition phases of TBI treatment, members of the healthcare team will provide information to the patient and their family members about dealing with these issues. Specific tools and coping strategies will be suggested. Examples of coping strategies and tools include:

  • Writing a detailed list of steps needed to complete a task
  • Using prompts or visual aids to help remember things
  • Using assistive devices to move around, such as a walker or a wheelchair

Learning new ways to do things is a very important part of recovery.

Other Potential Effects

The long-term symptoms of TBI can be divided into several categories, including physical changes, cognitive effects, sensory effects, perceptual effects, social-emotional changes, and others. You’ll find a partial list of these symptoms and possible effects below. Keep in mind that the severity and duration of symptoms and effects will vary greatly from one patient to another, depending on the severity of the TBI.

Physical effects

  • Sleep disorders
  • Loss of stamina (easily fatigued)
  • Appetite changes
  • Difficulty swallowing
  • Physical paralysis or spasticity
  • Chronic pain
  • Loss of control of bowel and bladder functions
  • Seizures
  • Difficulty regulating body temperature
  • Hormonal changes

Cognitive effects

  • Difficulty with attention, focus, or concentration
  • Distractibility
  • Memory problems
  • Slow speed of processing
  • Confusion
  • Perseveration, which is the abnormal persistent repetition of a word, gesture, or act
  • Impulsiveness
  • Difficulty with language processing
  • Problems with executive functions, which include planning, cognitive flexibility, abstract thinking, rule acquisition (determining right from wrong), initiating appropriate actions, and inhibiting inappropriate actions

Speech and language effects

  • Aphasia (difficulty with talking or expressing ideas, understanding everyday language, and problems with reading and writing). Types of aphasia can include:
    • Receptive aphasia, which involves difficulty understanding the spoken word, or
    • Expressive aphasia, which means the patient knows what they wish to say but is unable to get the words out. In some cases, the patient is able to perceive and comprehend both spoken and written language, but is unable to repeat what they see or hear.
  • Slurred speech
  • Speaking very fast or very slow
  • Problems with reading comprehension

Sensory and perceptual effects

  • Difficulty recognizing and distinguishing between touch and pressure sensations
  • Difficulty perceiving temperature
  • Difficulty perceiving movement and positions of the arms and legs
  • Difficulty with fine discrimination (for example, distinguishing between small everyday objects, like coins)
  • Difficulty integrating and understanding information gained through the five senses (sight, smell, touch, hearing, and taste)

Effects on vision

  • Partial or total loss of vision
  • Diplopia, which is weakness of eye muscles that causes double vision
  • Blurred vision
  • Problems judging distance
  • Involuntary eye movements, called nystagmus
  • Photophobia, which is intolerance of light

Effects on hearing

  • Decrease or loss of hearing
  • Tinnitus, which is ringing in the ears
  • Increased sensitivity or intolerance to sounds

Effects on smell and taste

  • Anosmia, which is loss of or diminished sense of smell
  • Loss of or diminished sense of taste
  • Bad taste in the mouth

Social-emotional or behavioral effects

  • Dependent behaviors
  • Fluctuating emotions
  • Lack of motivation
  • Irritability
  • Aggression
  • Depression
  • Lack of inhibition
  • Denial or lack of awareness
Posted on BrainLine August 9, 2018. Reviewed March 28, 2019.

About the Author

The Center of Excellence for Medical Multimedia (CEMM) is a dynamic initiative from the Office of the Surgeon General, supplying award-winning interactive multimedia for patient education throughout the Military Health System.

Center of Excellence for Medical Multimedia. (n.d.). Moderate to Severe TBI: Long-Term Effects. Retrieved March 28, 2019, from https://tbi.cemmlibrary.org/Moderate-to-Severe-TBI/Long-Term-Effects

Comments (477)

Please remember, we are not able to give medical or legal advice. If you have medical concerns, please consult your doctor. All posted comments are the views and opinions of the poster only.

I had a TBI from a motor vehicle accident as a young teen. I was comatose for two months in 1967. When I woke up, they thought I was healed. Other than my left ankle which was crushed in the MVA. I couldn't walk on it for a year. I couldn't get help for my cognitive deficits, because there wasn't any help like that back then. I was from Nebraska then. I live in Arizona now and love it. I couldn't get anyone to understand that my cognitive deficits were neurological, not mental. I finally met a Neurologist in Flagstaff in 1979 & he diagnosed me correctly and put me on the right medication and I met a Psychologist here in Az. in 1991, who helped me get connected to Vocational Rehab in Phoenix. And they helped me get thru my classes to be a Social Worker. I still have the short term memory deficit, and i have been working Temporary Social Work jobs until i find a place where i fit in with my disability. I hope this info. helps. The Neuroligist was so important so i could get diagnosed properly. Debbie Hunt

Chris
I know what your going through.
In January 2008 I was injured at work, I shattered the right side of my skull, broke my neck and had to have my nose reattached. I was left with a severe TBI. Not only was it server but it was left undiagnosed but untreated as well. For the last 11 years I’ve been doing battle on my own. It’s been only after changing doctors that I’ve been getting the proper treatment.

The days of constant pain the migraines as well as times of feeling hopeless. But there is hope. Your wife is standing by your side in all of this. For me to get past all the issues (I haven’t yet) has been a great deal of work. And a lot of faith and trust in God. There are new parts of my personality that I battle daily. Behaviors that were just not me. While I have the desire to do things and get them done. The mind say nope not today. If your wanting to know how to get motivated? There is a line in an old movie. One person is dealing with a monumental task and ask how am I going to do this? The other person ask him how do you eat a elephant? One bite at a time!
So what ever you do for the rest of your life just remember one bite at a time! Then you can accomplish anything.
What ever isn’t finished today can be finished tomorrow

Thank you Chris for your candid post. A TBI is something I would not wish upon my worst enemy. I’ve been fighting to be “ME” again since my TBI in January 2019. My husband, kids, friends, coworkers extended family can’t seem to understand what I’m going through. To look at me one would never guess my daily struggles. Everyone sees me as the person I use to be and expects me to act as such. However, as you and anyone who has incurred a TBI knows we are NOT the person we were before the accident, even though we look as if nothing has happened. Don’t you wish that you could wear a cast?? People always want to help people in a leg cast. No body seems to be capable to understand this type of injury. It’s the most frustrating, lonely, depressing , anxiety ridden part for me. Reading your post and many others for the first time makes me feel normal. At least as normal as a person with a TBI can feel. Thank you for that!

Heather,

You are welcome and thank you for sharing as well. A TBI in the family is a huge learning process for all involved. I suggest that your husband and other relevant family members study up and even go to therapy or classes or whatever. My wife is in surgical residency so she had a decent idea of what was in store but even then this thing has been a beast to deal with. In terms of my other family, no concept whatsoever. That is why I suggest the classes or something because without specific TBI/medical knowledge it could be hard for some to even get close to understanding. But where there is a will there is a way. The funny thing is, I used to tell my wife that I was gonna wrap a bandage around my head just so others knew what was going on so I can absolutely understand why you wish you had a cast. I am not sure of the nature of your TBI but I know at the one year mark is where I made a lot of progress so I think you should have faith and hold out hope!! Just the fact that you are on here is a good sign that you won't take this TBI lying down. You need to have a dogged determination to not let it win! Above anything else, that will help most. Well maybe not above anything ( God, and family) :) I am so sorry to hear about your struggles and I agree, I wouldn't wish it upon my worst enemy either! It is NOT a death sentence though. I wish you all the best.

Chris

Chris,
As far as your "Stress" goes, your Not alone. My post is a few spots below yours.
I cannot handle Stress or Conflict, especially at work since I am stuck there 9 hours
a day, 5 days a week. I know You are Not Lazy, Don't let it affect your confidence.
Even tho sometimes we don't feel tired, our Brains get Tired. Our injured Brains have
to work harder than normal, then we get "Neuro-fatigue"
God Bless
Joe

I suffered a 3-6 hour withdrawal seizure known as status epilepticus on Oct 1st of 2018 after I tried weaning off my “medication” (vimpat) and now have severe brain damage. It was a decision that I now regret for the rest of my life. So many critical memories that made me who I am are gone. It’s like trying to fill in the gaps or put the peices of the puzzle back together but you just can’t. However, if I smoke cannabis, it makes me think deep and remember my past clearly but only bits are retained. Adapting to a whole new world along with overcoming PTSD, amnesia, aphasia, mood swings, paranoia, severe depression... have been the biggest/scariest battle I’ve ever endured. In a way it’s as if I’d been dumbed down to the 4th grade or less and have been slowly relearning how to fit in again. I’m 22 years old btw. To anyone whose experienced a TBI or who may be diagnosed with FTD/AD or CTE my heart and prayers go out to you.

My boyfriend of 6 years was jumped and hit in the head with a bat. He refused to go in or call the police.. couple months later he started spiraling out of control. Not his usual self at all. The loving calm funny guy I knew is gone it seems. He is mean agitated and scared ALL the time. His paranoia is constant. He tried to commit suicide yesterday. He has not been diagnosed with anything yet except psychosis. But I am pushing for more brain scans thinking it had to do with him getting hit over the head. I feel your pain as I watch the person I love going through something similar. Has there been anything that has helped you?

I suffered a TBI 25 years ago during a motorcycle accident, my Helmet flew off and my head hit the pavement. Then 6 months after the accident I had a Nervous Breakdown,
which is when the Anxiety, Depression, and Panic started. I have been to various therapist and been on every SSRI there is, and they have only helped a little bit.
Now after 25 years of struggling with these horrible mental health issues I am TIRED,
Physically, Mentally, and Spiritually Worn Out. My Brain cannot handle Stress or
Conflicts anymore, and workplace Drama is unbearable. I am only 45 yrs old now, but I am trying to figure out how to retire early. I MUST Reduce my Stress level somehow !
I'm glad I found this website. Thank You in advance for any comments.

Hi, I suffered a TBI and broken bones in 2003.
I was a Kent Firefighter and before that, a Royal Marine.
I was in a coma 2 weeks where my life-support was terminated. When all hope had gone.
I then had a Brain Abscess in 2014!
I have seen double now for 16 years despite 3 eye operations at Moorfields Hospital.
My only advice I can possibly give you is to never ever stop. I'm lucky that I like the gym anyway. I love the effort required and I rise to it. Dealing with personal loss and frustration is a constant battle.
I have poor balance and right-sided issues too. I've learned to walk now 3 times!
I've thrown myself into my recovery and I simply won't stop!
Keep battling, we will win ☺

wow, thumbs up to you, motorcycle accident here, coma 10 days, and ive got pharesthesia on my right leg, sold my motorcycles since i cant take it anymore, lost my balance, mild vertigo 24/7, but i go to the gym sometimes and i bought a few gym equips here at home. i said that to myself too, i wont stop, keep pushing forward.

My wife suffered a TBI in December 2018. She is now in rehab after 2 weeks in a coma, and a few weeks recovery. Some days seem bleak, others I'm really upbeat, and reading some of the stories here make me feel much better.
My wife has a lot of difficulties as the moment, including eating by herself, talking, obeying commands, etc. She's not yet walking or anything and the physio team are just getting her to stand. I pray for better days and hope she makes a really good recovery so she can come home and be with me again.

How are you both doing now? My brother is in a similar state at the moment after 3 weeks in a coma. I know every person is different and recovers differently, but reading about your story feels very similar. I wish you both the best.

My wife has an acquired brain injury from 2008; she is highly functioning but suffers from feelings of loss and low self esteem. She has always been a very social person and needs to interact daily with friends, she has many friends but they have the commitments of their lives to attend.

I am going to show this blog to Debbie in the later hours of this morning hopefully it can spark some interest or new ways for her to connect with some new friends by phone or blog.

Thank you

Social situations are tricky. I crave and need them, and also want and need to ignore them. Two things that worked for me and are totally opposite. Things with one or two friends, and a medium to large group where you feel part of a group but there isn't the stress of conversing the whole time or mingling.

Hi, I also had an ATBI back in 2008. I can relate to the struggles your wife experiences daily. The dynamics in friendships changed 180 degrees all the way to nonexistent because of my sensitivities and changes to my financial situation. She is very lucky to have you and your support. I’m not as I’m unmarried. If your wife would like a new friend and also a survivor that would’ve awesome! Let me know and we can exchange contact info.

Take care, T (my nickname)

I was in a mva when I was 16 years old. Now I'm 50 and I have long lasting issues. I have to take medications for my anxiety and my brain issues I have because of the mva.

I was 18 years old just graduating high school when I was in a MVA. My best friend was driving and we were going to the movies one summer afternoon. I had temporary amnesia and other injuries. At that time I was diagnosed with Short Term Memory Syndrome. I would meet someone and the next day I would not remember them. Worse yet how about going to eat lunch with a friend and then running into them about 4 hours later. Not remembering you had lunch with them earlier that day. How do you try to explain this to others? Craaazy! I learned to write notes in my calendar throughout my day so my daytime became my memory and my saving grace. I almost did not graduate college because of this. Fast forward to 24 years later, I went into peri menopause and my hormones began messing with my memory and my daily cognitive routines. I found a neuropsychologist who did some testing on me. This is where I learned more about TBI. This whole time I had been struggling with daily cognitive scenarios and I thought that I was losing it. How can you explain to someone what you are fighting through in words? I am now 51 years old, post menopausal and my brain has decided to go on strike when it come to functioning with time.... timelines, appointments, deadlines, breakfast time, lunch time, dinner time, etc. What is “10 minutes” or “I will see you at 3:00 pm”.... my brain, “concept of time”, numbers and action are all on different planets. I am divorced for the past 15 years. I have been dating the Love of My Life for the past 5 years, we just broke up last week because of this. He has had enough of me being late or saying that I will be there at 1:00 pm and I show up an hour late. I am struggling professionally at work, personally with my family and now emotionally with my Love. I am struggling all the way around. Is there a good article or book about TBI that is an easy read that I can share and help explain to others close to me the daily frustration, anxiety and stress that I go through daily just to function. I feel like I am loosing everyone around me. How do you explain something in words when it is confusing to you and you are trying with all of your being and heart to begin a plan, continue a plan, much less complete a plan or put into words what you know, but cannot It is not about being lazy, or inconsiderate or uncaring or a snob.

Paulina. I have same symptoms and ONE WAY I deal with MY TIME challenges - is with my cell phone. For example, In the morning, I have a reminder ONE HOUR before I am supposed to take my meds. I have another reminder at 15 MINS before I take my meds. Then I have a reminder WHEN I MUST TAKE my meds. That is not all. 15 minutes later I have a reminder saying "did you take your meds?" Then an hour later another message saying "Did you take your meds?" You can choose to set this reminder DAILY - FOREVER. I use it constantly. Make notes and TRAIN yourself to do the SAME THING with dates, appts or VIP meetings. Remind, remind, remind. Trust me - I have had MANY WOMEN think I am being dishonest or "cheating" because I was late or forgot something. Another way of "making notes", for example, is when you meet someone and his name is "Larry". THE VERY MINUTE you are done talking with Larry and he walks away - SEND yourself a text describing him and the substance of your talk. It will "time stamp" when you and he spoke and you will LEARN to reply on your cell phone for reminders ..... trust me .... has worked for me for over 15 years

I was beaten nearly to death by my (at the time) husband. He beat me in the head with wine and vodka bottles for over a week and I tried to escape every day and often. The final blow was me running out the door, him slamming my head in it, backhanding me so hard my pupil is paralyzed, then smashing my head into the floor over 20 times. I have no idea how long I was out but he was so drunk I managed to escape. I found someone on the street and used their phone to call 911 (he broke my phone so I couldn't call). Reading all the stories here has given me hope. Did any of you develop a stutter after this and write backward? That is kinda freaking me out.

Hi Kristin,

My heart breaks after reading what you wrote. I don't have any words. Tragedy is an understatement. Yes I developed a stutter, and still grapple with it sometimes when I am really anxious. Yes at times I wrote and spoke backwards while healing.

How terrible. I will pray for you.

Yes it sucks. I was beaten in right side of head with brass knuckles and it was such a blow that I bled in my brain everywhere. And stayed in a coma for 2 weeks. My brain was swelling bc of so much blood that the hospital flew me in to a place where the surgery team specialized in that area and when we landed they were ready for me and was able.to stop the bleeding and release. Then the doctors didn't know the outcome in beginning is what I was told.. when I woke up I was told by a family member that I had no.insurance and that if I could get up and go urinate well i.could go home.. I couldn't understand what they were spouting off but they gave family member a list of specialists I needed to.see and said if we could afford it that it would be imperative that I had Re Hab amongst a lot of.other things and meds. Well the family member never did try to see about the help but you see ... I actually taught myself everything again and with a little help from an old school friend. Yes it is hard and I'm lucky and if.your typing anything and can spell ans.u make sense... STOP and think about how.lucky we all are!

Hmm, I can totally relate. Same exact scenario. Brass knuckles to the temple and it was lights out. When it happened there was no comprehension about how to treat TBIs. They told me I'd be fine. The only thing is, I wasn't. 10 years later they wondered what was wrong with me. I told them that had been messed up since I took the brass knuckles to the side of the head. They looked at me with bulging eyes and immediately sent me for help. By then I had learned techniques to keep me stable in the world. The thing that messes me up the most is the way my brain functions now. Memory loss, concentration, and panic attacks. I'm messed up, but don't know how to express it or have people understand.

I fell off a two story house and landed on a concrete patio at work and was in a coma for a month just over two years ago. I used to be a very outgoing, extroverted person before my accident, but now...I’m the opposite in almost every way. I stay by myself and push friends and family away to the point where I don’t want to see almost anyone. Social relationships/activities, vision, motivation, memory, and depression are a few of the things I’m going through. Depression and mental health (men’s in particular) are very overlooked. Physically I look fine so no one thinks there’s anything wrong. Just because you don’t see a problem doesn’t mean it’s not there...

I also suffered a fall injury it was in July of 2009. I'm very blessed to be alive still. I fell 128 feet onto a flat roof below. I have to add that I was not trying to commit suicide. I was dead set on getting back to the gym and back in shape. I did just that.
Anyway, lack of emotion was the only noticeable effect on my brain. It wasn't to severe and I coached myself out of it. But here I am almost 10 years later. I've had minimal vision issues. My biggest fear right now is my lack of memory. I've had a lot of stress in my life recently. It's taking its toll on me. Concentration seems tough at first but I manage to get my focus quickly enough. Mainly scared about the lack of memory. I've had some things happen recently that worry me. Telling the same stories over and not able to remember that I told it once already. Tonight I showed my girlfriend a Facebook pic with the added story.... Guess it was the third time now. Really can't recall it happening before at all. I'm currently going to appointments with additional follow ups scheduled. After the accident I was warned of possible down the road side effects. And well.... there here.

Find my self in the same spot.

I wish I had visible injuries. Society has no concept of how to deal with brain disabilities.

We have a 22-year-old autistic son that presents well. He is viewed as someone in charge of all their faculties, etc. No matter where we go when he does his best to be social with those who talk with him, the minute he can't respond it's usually "What's the matter with him, can't he talk ?" to his face.

Now I know how he feels.
Everyday I try to focus on one action I'm having issues with. I make it the goal of the day even if it is difficult. I make myself do it.

I truly believe no one understands unless they have experienced it themselves.

I agree Sandra. Society and a the scientific articles and medical writings focus on symptoms immediately after brain injury. What is less understand are the long-term symptoms that are hidden; the hidden injury aspect.

I feel you. Same thing here. Sad part is I want to engage but don't know how to anymore.

It's like trying to play a game that should be so easy - but I never get the rules or the queues anymore.

So to help, I pick small things limited social stuff like 2 hours for a game once a month but consistent. Same people, they know what my issue is, have the game at my house and limit the exposure.

Wish you all the best.

I was in a auto accident. I know how you feel. I feel the same way. A real disconnect from who I used to be, how to adjust to who I am now and other people perception of who I should be. I don’t know if that’s how you feel but that was my perception of it

I have to add two quick things:

For my migraine headaches, I am now getting BOTOX shots and it has been such a blessing after 3 yrs I can now go all day and not have one. I get shots every 3 months and MEDICARE pays for it.

Also I have had to learn the old me will never be back, it is gone. Now I have to try and like and make the new one the best I can. It is hard to give up so much of the past that I enjoyed, but it can't be any more, so Every day is a new day of experiences and changes. I don't mind this part, but I do miss all the things I can't do anymore, my art, my reading, my gardening, my trips and hikes. But I still have people to love me and to help others.

Thanks again

Cliff, in addition to Botox the new monthly injection to prevent migraines called Aimovig and others are proving to be highly successful in reducing the number of migraines per month. I started Aimovig six months ago and went from 9-15 migraine days per month to three. Not everyone is this successful but a lot of people are. I still take Botox until I am sure I can switch to the other. I hope you ask your doctor about it. Aimovig provides the first year for free until insurance companies get on board with covering it.

I relate to the changes in “you” you described. There’s definitely a grief and loss process. Sounds like you’re staying positive and that’s not easy I know.

I suffered a TBI 20 years ago. It was moderate. I have been blessed in my recovery. My challenge is I put all my efforts in to my career and work. So much so I have no friends, hobbies and cant function well at home alone. I have to be constantly scheduled or structured. If not i just spend hours doing well....nothing. I could use some input from anyone. Thanks.

Hi Lisa,

I hope that you saw my post from earlier. I can identify with you so much, and not just by name! I think what we are all learning is that we may never be the same people that we were before. We have to take it day by day, like you are doing, to get re-acclimated with the new people that we are and pull from those strengths to develop into brighter beings. I hope that Yah blesses you with much joy and accomplishment despite all that you had to give up. I bet if you look really closely you will notice that you see things differently than most people, which is most likely a gift. So learn how to use it! Take care Lisa.

Me too. I started painting miniatures for that dungeon and dragon game. Forces me to engage all my senses. Then as I relax, focus creatively (left frontal lobe injury), I am able to get more focused in my daily life.

Also, my dogs are a Godsend. I have to walk them or else. This helps me get up and have a schedule.

Not easy, and interrupted by life at times which I struggle with constantly- but at least I'm outside

Hey I have read your comment. I had a severe tbi. My brain sheared against my skull. It's been almost 24 years. My accident was August 24, 1995. I used to be very outgoing. It's hard to remember my life. I was 12 years old when it happened. I also broke my neck. I also had a foot drop. That's where the nerve in my back broke and grew back a totally different way. I find it hard to keep friends hold conversation with people. Have lots of mood swings. There are other things that I find challenging. I have 2 kids as well. But it's hard for me to get along with my son. My daughter is ok though. I find myself being alone much better than being with other people. I like doing puzzles and word searches and working with numbers. I like working my brain alot. But not all the time.

I was in a car accident 3 years ago. I was stopped in traffic and a woman who was texting hit me from behind at 65 miles an hour. The car exploded into flames and I was rescued by a good Samaritan. I had seven skull fractures and 5 brain bleeds. I feel the same as many of these comments here. At first, I thought that everyone else was the one that was wrong. Then I began to realize that I was misplacing things when I would find them later. I feel horrible after having accused others of moving them. I get little sleep and I am in pain every day. People still ask me how I'm doing and I always say "ok" but it is a lie. There isn't a day that I don't wake up a headache or pain-free. Because of the new anti-opiate push, no one will give you medication, I am a federal employee so I can't try oils and I struggle with memory, aphasia and minor muscle spasms like many of you. I also live in rural Vermont where there are no treatment facilities available. I have tried to get into one of the larger facilities to get some help, but I haven't been successful yet.

Move to a state that you can access Marijuana derivatives.

I too have many of the symptoms you expressed, CBD tinctures help set my day up for success. Anxiety does not disappear, though I control it does not control me.

Tried to survive the conventional way all it did was make alcohol the first choice.

Which all of you know is the worst thing someone with a TBI should do!

Oil, creams and hemp products contain no THC and can be purchased by mail. Look into it. Lifesavers. Consult your physician and mental health advisor too. PTSD, anxiety and Depression go hand in hand. Blessings to you on your journey.

To Whom it may Concern I had a TBI at age 7 from not wearing a Motorcycle helmet and was hit by a much heavier bike and person and therefore Had My left side of my skull ripped out and was unconscious for weeks And Had blood transfusions And Here I am at 51 never married and a full time father of a 7 year old son It's Been no fun all these years with many challenges and relationships and heartache. I Wish people who experience what we went and are going through Have a better understanding of Who and what we are and No we just can't get over it But deal with it!

Amen! At 5 or 6 (don't recall) was pushed off a jungle gym, fell 12 feet, hit my head. Seizures, unconscious etc.

Oh and PTSD.

And now, no friends cause apparently I have issues - um yeah! And no I can't get over it. No I can't control it.

People act like I do this stuff on purpose

I also suffer a server TBI for almost 4 years. I take turmeric and ginga vitamins, omega 3 vitamins. I feel it helps. Also I do deep Breathing through pain and meditation. Their are many meditation's for TBI, nerve damage ECT. It really helps me.

I had a TBI 1 1/2 yrs ago. Please go see a neurologist. There are several drugs that are classified as antidepressants that have shown to be effective for chronic pain. You may have to try more than one that works for you. I am not 100% pain free but the pain is manageable. The one I take makes me sleepy so I take it at night.

What is it that you take ?

I had mine 21 years ago. I still have issues with my memory, feeling overwhelmed under certain situation, the appearance of lack of caring, and certain smells bother me (some of that didn't develop until later) but lately, I've been feeling motion sickness well-taking transit (I've been taking transit for years and never felt motion sick). If anyone could give suggestions on reasons it would be much appreciated.

Danielle, I hope you can find the help you need. My youngest daughter of four daughters sustained a TBI from hanging herself while in a drug induced psychosis. She had a stroke before she was revived and then her brain was seizing. She is a mother of 4 children and she has relearned how to dress, toilet (sometimes) and feed herself. The docs have her on Keppra for seizures, Seroquel for anti psychosis and Olanzapine for sedation. I feel she is over medicated. Like a zombie and confused all of the time. Two of her sisters became guardians but without telling me moved her into an adult family home 4 hours away from me. I wasn't told and had a hip replacement surgery and after that is when I found out she was gone. Sorry for the long winded story. I'm so sad she is so far away. I really wanted to work with her so she could possibly regain her life. I really feel if people with TBI are in the right environment that they can reengage with family, friends and society. Please keep working on your journey to recovery. Sending you hugs and love. From a broken hearted mama. Also, stop saying you're fine when you feel bad. I know you might not want sympathy. But you can say when asked how you're doing that you're having some challenges. All of us in pain (or having other issues) never admit to how we really feel and we may unintentionally turn away people who can help us deal emotionally, physically and perhaps psychologically with some of our issues. Leave pride out of it because that is the ego talking and it's stupid generally speaking. Lol JS Accept help because some people want to help in this world we live in. :) God bless you Danielle! <3

Hello, I had a TBI back in 2001. Recovery is never over, one must always challenge there brain. Push yourself to do better by working on your difficulties. Repetition is important in our lives. Physical and mental exercises are very important in out lives, as they should be in everyone's. Some things in life will never be complete. Our accomplishment is never giving up!!! Breathing exercises and deep meditation help me with my sleep and nerve issues. Lol I play memory games and strategic games that challenge my brain. Doesn't matter how well I do, as long as i keep doing. Wish the best for everyone out there, keep on keeping on. God bless everyone. Will keep everyone in my prayers.

I walked in front of a bat at six and hit on upside down on my head from a bully at six also. My mom told me about this I have no memory of this. I have short term memory loss. I'm 35 and want to know more about what in my life I do because of my TBI. I'm trying to research as much as I can, but I won't remember everything. I have always been annoyed that I can't drive because of my seizures. I am doing all I can to keep them in control.

Hey. It’s been 6 years now since my accident. Was in a plane crash with 5 others and two of us survived. Out of everything that resulted from that I have found u can get by almost everything else by trying different ways. Except for the TBI. I thought I had Gotten to a point with the wife and kids to where it was tolerable. Then I learned it wasn’t. It’s funny how u can now perceive something while in fact it not right. It’s a constant battle trying different things that will work when ultimately u have no control. Other than to just keep to itself. I was getting mad at friends and family a lot because I didn’t feel they were acting right. Now I am questioning whether it was really my fault now. My wife is a hell of a woman to stand by me through all of this. One of the worst things is when I argue or explain things. If I get frustrated, excited or angry then the words don’t exactly come out as what I’m trying to get across. Usually this results in making things a lot worse. I think my brain is now slower than my mouth. Not joking. I’ve done two years of verbal and physical therapy and cognitive. Lots of different doctors and medicines. But all in all it doesn’t really improve. Does anyone else feel that it’s now easier to just cut people loose rather that having to deal with them and not wanting to upset them anymore. I was never like this before and enjoyed friends. Now not so much. Have any of y’all found some things that may help with this. I appreciate ur help. Good luck to everyone going through this and just remember to hang in there.

Yes! It is very very exhausting to say sorry, my bad, second guess others motives, your own etc. And my GF don't even get me started on how amazing she is for putting up with me!

But to answer this: TBI left frontal lobe since age six. Just discovered the scare tissue in my brain, just starting to get help as I had no idea.

So I force myself to socialize. It sucks, I hate it, the people in this game group while nice and sometimes understanding of me, piss me off cause I can't keep up or get frustrated etc.

But once a month we meet, play a game and I am learning to socialize. But honestly half the time I just can't wait for it to be over.

Then I feel so lonely...

How messed up is that?

Randall, what gives me hope for my TBI daughter is that the brain actually will build new neural pathways when stimulated with new and repetitive material(s). It reroutes itself around the part of the brain that is injured and basically tries to heal itself. From my research the more the brain is stimulated the more the neural pathways form for more brain function. Please never give up. Your family wants and needs you. They would be crushed if you gave up! Look online for info to help stimulate your brain. But ask your docs first before you do anything. I wish my daughter wasn't 4 hours and a ferry away from me. Because I would be with her all of the time trying to help her brain to heal. Her sisters are guardians and they put her in a adult family home and all she does is watch TV all day and is so drugged up that she is always tired and confused. It breaks my heart because she literally was so vibrantly alive and had this heart of gold and such a passion for life, family and friends and for her artistry in tattooing. Before the TBI she hated TV. I'm horrified that she was put there to just dwindle away everyday. So from this broken hearted mom I plead that you please keep trying everyday even when it seems impossible. Either do it for you or your family. Ask people for understanding and for them to be gentle with you in your brain recovery. I wish you the best and I know if you search really deep you'll know your family would never want you to give up. Best wishes and hugs and love to you and your family! <3

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