What Impact Will Moderate or Severe TBI Have on a Person's Life?

Center of Excellence for Medical Multimedia
What Impact Will Moderate or Severe TBI Have on a Person's Life?

The effects of moderate to severe TBI can be long lasting or even permanent. While recovery and rehabilitation are possible, most people with moderate to severe TBI face life challenges that will require them to adapt and adjust to a new reality.

Moderate to severe TBI can cause permanent physical or mental disability. Because polytrauma is common with moderate to severe TBI, many patients face additional disabilities as a result of other injuries. Even patients who appear to recover fully may have some long-term symptoms that never go away.

Challenges with work and completing tasks that were once routine can be much more difficult than before the injury. Some patients find that the skills and abilities that they used before the injury to meet these challenges are not as sharp as they once were.

These ongoing challenges can also affect the patient’s personal life. People who have experienced brain injuries may take longer to do cognitive or “thinking” tasks associated with memory, such as coming up with the correct change in the checkout line at the grocery store or placing an order at a restaurant. Family relationships will almost certainly change, and in some cases the patient will be totally dependent on their caregivers.

Despite the advances in early diagnosis and treatment of moderate to severe TBI, the fact remains that traumatic brain injury will be a life-changing experience for many patients. Helping the patient, family members, and caregivers to cope with these long-term consequences is an important part of TBI rehabilitation.

Motor Deficits and Disabilities

For many patients, the damage to the brain resulting from a moderate to severe TBI may lead to life-long disabilities or motor deficits. The term disability in relationship to TBI means a loss of physical or mental function caused by damage to the brain. Motor deficits refer specifically to the effect of damage on motor skills or movement.

Examples of disabilities and motor deficits caused by moderate to severe TBI include:

  • Paralysis
  • Spasticity (muscle stiffness) or uncontrolled movements
  • Problems walking, talking, or swallowing
  • Difficulty carrying or moving objects
  • Vision problems
  • Loss of fine motor skills, such as buttoning a shirt
  • Inability to recognize something based on touch
  • Difficulty thinking and remembering
  • Difficulty with social relationships

Other challenges that a patient with moderate or severe TBI may experience include:

  • Difficulty making and keeping personal and professional relationships
  • Difficulty being part of social activities
  • Difficulty taking part in recreational or leisure activities
  • The decreased ability or inability to keep a job or go to school

During the rehabilitation and transition phases of TBI treatment, members of the healthcare team will provide information to the patient and their family members about dealing with these issues. Specific tools and coping strategies will be suggested. Examples of coping strategies and tools include:

  • Writing a detailed list of steps needed to complete a task
  • Using prompts or visual aids to help remember things
  • Using assistive devices to move around, such as a walker or a wheelchair

Learning new ways to do things is a very important part of recovery.

Other Potential Effects

The long-term symptoms of TBI can be divided into several categories, including physical changes, cognitive effects, sensory effects, perceptual effects, social-emotional changes, and others. You’ll find a partial list of these symptoms and possible effects below. Keep in mind that the severity and duration of symptoms and effects will vary greatly from one patient to another, depending on the severity of the TBI.

Physical effects

  • Sleep disorders
  • Loss of stamina (easily fatigued)
  • Appetite changes
  • Difficulty swallowing
  • Physical paralysis or spasticity
  • Chronic pain
  • Loss of control of bowel and bladder functions
  • Seizures
  • Difficulty regulating body temperature
  • Hormonal changes

Cognitive effects

  • Difficulty with attention, focus, or concentration
  • Distractibility
  • Memory problems
  • Slow speed of processing
  • Confusion
  • Perseveration, which is the abnormal persistent repetition of a word, gesture, or act
  • Impulsiveness
  • Difficulty with language processing
  • Problems with executive functions, which include planning, cognitive flexibility, abstract thinking, rule acquisition (determining right from wrong), initiating appropriate actions, and inhibiting inappropriate actions

Speech and language effects

  • Aphasia (difficulty with talking or expressing ideas, understanding everyday language, and problems with reading and writing). Types of aphasia can include:
    • Receptive aphasia, which involves difficulty understanding the spoken word, or
    • Expressive aphasia, which means the patient knows what they wish to say but is unable to get the words out. In some cases, the patient is able to perceive and comprehend both spoken and written language, but is unable to repeat what they see or hear.
  • Slurred speech
  • Speaking very fast or very slow
  • Problems with reading comprehension

Sensory and perceptual effects

  • Difficulty recognizing and distinguishing between touch and pressure sensations
  • Difficulty perceiving temperature
  • Difficulty perceiving movement and positions of the arms and legs
  • Difficulty with fine discrimination (for example, distinguishing between small everyday objects, like coins)
  • Difficulty integrating and understanding information gained through the five senses (sight, smell, touch, hearing, and taste)

Effects on vision

  • Partial or total loss of vision
  • Diplopia, which is weakness of eye muscles that causes double vision
  • Blurred vision
  • Problems judging distance
  • Involuntary eye movements, called nystagmus
  • Photophobia, which is intolerance of light

Effects on hearing

  • Decrease or loss of hearing
  • Tinnitus, which is ringing in the ears
  • Increased sensitivity or intolerance to sounds

Effects on smell and taste

  • Anosmia, which is loss of or diminished sense of smell
  • Loss of or diminished sense of taste
  • Bad taste in the mouth

Social-emotional or behavioral effects

  • Dependent behaviors
  • Fluctuating emotions
  • Lack of motivation
  • Irritability
  • Aggression
  • Depression
  • Lack of inhibition
  • Denial or lack of awareness
Posted on BrainLine August 9, 2018. Reviewed March 28, 2019.

About the Author

The Center of Excellence for Medical Multimedia (CEMM) is a dynamic initiative from the Office of the Surgeon General, supplying award-winning interactive multimedia for patient education throughout the Military Health System.

Center of Excellence for Medical Multimedia. (n.d.). Moderate to Severe TBI: Long-Term Effects. Retrieved March 28, 2019, from https://tbi.cemmlibrary.org/Moderate-to-Severe-TBI/Long-Term-Effects

Comments (587)

Please remember, we are not able to give medical or legal advice. If you have medical concerns, please consult your doctor. All posted comments are the views and opinions of the poster only.

I feel like my life is falling apart. Almost 15 years ago I have a severe TBI (frontal lobes), was in a coma, wasn’t expected to make it, my family had said their final goodbyes. Had several sudbural hematomas, my GCS was 7( almost positive about that number). Anyways I was 15 at the time and made a miraculous recovery. I can no longer taste/smell and am blind in one eye but overall most could never tell. I was a year ahead in all my classes so even school was 100x harder I worked to graduate high school on time after missing my entire sophomore year.I graduated with a 4.0. I was admitted to my number one university and studied (to the point of tears most nights), was involved in a sorority, a research lab, and multiple campus clubs. I graduated in 4 years with my bachelors in science in child psychology. I immediately started graduate school, starting a program to earn my masters and doctorate in clinical psychology with a specialization in neuropsychology. And I did just that. There were more tears than undergrad. And my thesis and dissertation was the most overwhelming thing I have ever done, but I graduated with my masters with my entering class, graduated with my doctorate with my entering class (with my dissertation completed before), received my first pick at internship and completed my residency. I passed my licensing exam and state boards and I was LOVING my job. I was thriving. I was working 10-11 hours a day (my choice), working out daily, making time for friends, family, I was constantly on the go. For the last 2 years I’ve been dealing with osteomyelitis in my skull (unfortunately dealt with this after my initial TBI as well). I have been unable to work for almost 2 years due to pain, lack of stamina, severe brain fog/ word finding difficulty. I spend 99% of my life laying in bed or my couch with an ice pack (the pain never goes away, never moves location). My team of specialists that recently treated me for osteomyelitis and replaced 97% of all hardware in face/skull do not believe it is infection. My body is super special and no labs/PET/NM anything ever come up abnormal (active osteomyelitis or not) so I am have bone biopsies done in the beginning of March. My concern is my team believes my current state of health my be CTE / consequences of my TBI since it was so severe. I’m only 30 years old. This is not living. I have NO quality of life. I worked hard to achieve one goal in my life, and I can no longer do that. Has anyone else been told this? I feel so lost and afraid.

Almost 2 years ago (3.29.19) I was hit by car going 55 (driver was FaceTiming) my car was stopped to make turn. The hit killed my three babies 12,15 and 17 plus my friends 19 year old child in front. I am only survivor I hate it. On top of that I had severe TBI brain bleed. My speech is messy now, people think I am from another country, and my head not aches but actually sharp pains. I am here today reading because I have vertigo? Super dizzy spells still. Not all the time, but seeing correlation with maybe raised blood pressure, and pressures inside the head then comes dizzy spells and nausea. Depression is real. For the grief I am sure and with reading maybe even due to TBI. So I guess really the big question is what do people do in this situation. I have no insurance and now a half million dollar of medical bills due to accident and no insurance did not cover! Received less then 30k per child’s death and it cost 71k to bury them. So what do we do. I totally get why people commit suicide in these situations. We have no systems in place to help those that truly need it. Hugs to all of you who have lost children and please don’t drive distracted

I am so sorry for your loss! I too have suffered a TBI from a car accident. I lost my husband, son, and father. Yes, depression is very real! So is anxiety! People do not understand how we feel. We look normal...but we have lost our lives to injuries that no one can see! I hope you can find the help that you need. God Bless!

I came to this site due to the issues I've been having - my backstory for brain injury is I was beaten to 'death' and revived and am now very slowly gaining back my abilities.
I came across your story and felt a strong need to leave a reply here for you. I am at a loss for words because what you've experienced, no person should ever have to experience. I wish there was something I could say to alleviate your pain because I know it still hurts.
My son died on 3.27.19 and the grief is still debilitating. I do not function. He was my only child and my reason for healing. Almost two years have gone by and I still barely leave the house.
I can only fathom the unimaginable and extreme pain that you must be feeling losing your 3 children. I am truly so, so sorry for your loss. And I am sorry that you have to deal with such extreme financial circumstances in the wake of the worst thing a parent can ever experience. I agree with you that we have no systems in place for those who need it most. That needs to change. I wish I had an answer for you right now that could help solve your financial burdens.
You are in my thoughts and I hope that life starts to go easier on you. Sending love in your direction.

I was struck by a car when I was 7. I had seizures and sleep walking issues. I got shuffled around in the foster care system, during a time if you had any behavior issues, no family would want you, so I hid it. I've never been in trouble with the law and I'm a Vet as well. Any time I become suspicious or people start to ask me why I don't have any real long term personal relationships, I move. A lot of it is not wanting pity or not being believed. Now I'm just tired. I have alienated everybody I know, and now I just exist. I have adapted a walk away method when encountered with situations out of my emotional grasp. I avoid relationships it seems dishonest to lead someone on like I'm a normal functional adult. I'm just reaching out for help, hopefully someone who has conquered this thing is willing to share a bit maybe?

My friend i have been there, i was beat up for 3 yrs, fist foot w/e he could grab when i got knocked out or to the ground i would come to with him beating me until i stood back up I was 9,10,11 my 12th bday i went in his room with a knife and held it to his throat and told him i was big enough to kill him now and would do so gladly if it promised my sisters and mom’s safety My mom still hasnt take any accountability for allowing tht to happen but shes trying i think I used anger from those past events to fuel my self destructive path Fighting as often as i could, only who i thought to be real assholes or abusive to innocents and tht was my “therapy” after several failed relationships and years of inner turmoil and chaos i reluctantly started seeing a therapist and psychiatrist I met the love of my life as soon as i dropped the wall for her she’s supportive, understanding and most importantly still loves me due only to the fact tht my behaviors were trauma and head injury induced, not a reflection of who i truly am She suggested i see a therapist so i did and it helped for a time I still use the tools I learned from my therapist to this day and my beautiful wife has stood by me through thick an thin good days and bad for 12 yrs now Letting down the wall, even if briefly, shows the person u care about tht you can and are willing to get rid of them as well as a clear testament to your spiritual fortitude and willingness to live and be loved Be on gaurd for sure, but trust your gut If your gut says this person will probly understand go with it I got pity when i started opening up about everything but quickly straightened everyone out by saying “I appreciate the fact tht u care and im equally grateful for the interest and help with my issues but plz dont give me pity, i been through more than most and just want to be treated like it never happened To this day only my wife knows everything aside from my sisters of course Its just not something i bring up or try talk about with others Alot of hard work, dedication and even more prayer, as well as my amazing wife are the only reasons im not dead or in prison I wasn’t suicidal but i was definitely not worried about my well being Even if you dont find the live of your life for Gods sake man dont go at it alone, theres no reason or need to when so many big hearted ppl are willing to be in your life I have 4 reallly close friends, thts all i need I stay focused on wht i love most now and when i do get to feeling overwhelmed with memories or flashbacks from ptsd due to my own choices in my early adult yrs i place myself somewhere i love spending time, outside in the woods taking a walk w/e ur interests are MAKE yourself do them Youre a combat vet if i read your post right so u know all too well wht needs to be done when the enemy is closing in Thank you for your sacrifice and service for this great country if nothing else someone out there deserves your company and will be thankful for it I have a chunk of land in the woods when im getting overwhelmed i go out in the forest, sit by a fire and meditate breathing exercises etc If i can ask you one favor it would plz plz dont waste the gift you have been given a true living testament of wht the spirit and body can endure and not break, even though weve come close or had set backs Again i had no one to talk to but the man above and he was there in my darkest hour and greatest time of need, always, God bless you brother Love and respect

I have a question, I’m sure it’s different for everyone but in general, if you got a TBI, would you experience a cycle of good days/bad days?

I passed out (fainted) hit my head hard on concrete 4 weeks ago.
had a minor bleed and was sent home.
battling depression for sure and feel so stupid but biggest concern is my right eye is blurry.- drives me crazy.
any advice how to handle this?
optometrist says my eye is normal but vision is down?
cant explain blurry vision.
Any advie or experience with eyesight

You need to get into a general doctor. Then he can refer you to a specialist if needed. Did they do any imaging of your brain? There are cognitive brain specialists that can really help too. Do not wait, it’s important to catch early on as things can get worse. Keep in mind the depression is not you it’s just a side effect of your injury. Do not get to the point that you feel suicidal to get help. The emergency room won’t diagnose beyond the day there and there could be later developments. I know all this from my own story and I hope this helps you. I hope and pray for you to get a good doctor who helps you through all this.

I feel off a horse 7 weeks ago and the depression is really bad. I know you asked about eyesight but wonder how you are doing with depression.

I am lost I have all of the above work injury they shut me down said nothing was wrong I have a job for 30 years can’t hold a job now if I e try Things are difficult what do I do oh not looking for advice yes lost

I was in a motorcycle accident at age 16, a deer ran in front of me, the car behind me ran over me from not seeing me lying in the fast lane.
I suffered trauma to my frontal lobe.
For the last year and a half of High School, I had a home tooter to help me pass and get a High School Diploma.
But I had trouble concentrating and staying awake,
But Baltimore County School system gave me a High School diploma because the Tooters I had, passed me, even though I could NOT do the home tooter school work, they made it appear as if I was able to cope on my own simply by giving me passing grades on my home school work, even though I did not do the work!
The tooters would complete my tests, then give grades, making it appear I did it on my own. The BIGGEST crime committed against me.
Why? Because everytime I tried for Social Security assistance, the first thing that came out of their mouths, was..."WELL, YOU HAVE A HIGH SCHOOL DIPLOMA!"
Can you see how that subtle deception had a negative impact on my life all of these years, even until the age of 50? The Baltimore County Public School Home Tooters made it appear as if I was able to cope ALL on my own after my accident!
Thats what the Baltimore County Public School system did to me.

Omg life ruff had tbi in 2017 now I'm depressed bad. Drug addiction issues an cancer of liver as well changes I face daily just coping .no help out there have cluster headaches back pain an throw up day after day my life falling apart

I have a sTBI and I'm able to accomplish a lot

I had a server tbi and it is tuff to live most the time !!

last year people attack on me and try to kill me .i have serious brain injury and stay comma in 3 weeks loose my memory as well.i know that attackers but bcz i am illegal in this country police don't do my help still that attacker threat me but police dont want arrest that criminals i dont know what i do .bcz my life not safe here dont know why police dont bother about my life.

Hello there I am a TBI survivor, I was hit by a car crossing the street when I was 12 years old. I am 29 now.

I hit my head from a high distance, my parents never took me to a specialist or anything to get my brain checked. I am 29 now, and feel as if I am still affected by the incident, but I dont know what I can do to find out how it affects me.

I am writing to ask if there is any correlation between TBI and violent behavior that the aggressor did not realize was from the TBI. At 9, the child was a victim of a violent attack by his dad. They never did any follow-up and the focus became about me and not the abuse the child suffered. I have taken an interest in this as I too believe I am the victim of an undiagnosed TBI that affected my life. The child and I have some of the same rage, mood swings, emotional outbursts etc.. Can it lead to violence and other tendencies that go undiagnosed?

My husband had a TBI over 20yrs ago. We have been married for 18yrs and I am ashamed to say that I have until recently just gone off info related by his family. Never have I read about what "frontal lobe injury " really meant in terms of his behavior and personality. Over the years he has had several impulse control issues, gambling related, drug use, even sexually related issues that have nearly ended our marriage many times over. I've always asked him "why" he did what he did and his answer has always been the same, "he didn't know?" I always deemed that as a "cop out". Most recently he left our home on foot for a trip to the store and was gone for 48 hours! No call or text to me letting me know where he was or that he was ok! I called police reporting him missing and mildly put, I was a nervous wreck thinking the worst had happened! When he came home I was relieved and angry that he could make such a poor decision. He had run into an acquaintance and was asked to help him relocate, he was offered drugs and his cell battery died. Never did it occur to him how worried I would be or what an impact his lack of impulse control would cause. After this incident I decided to read more about all the personality changes and defects his injury has caused and I felt terrible! In all our years together I had never been aware of the numerous effects his frontal lobe injury has had on him. Consequently the overall effects it has had on our relationship, as I had not known him prior to this injury. His moodiness, inability to control his impulses, his temper, etc. Now I feel much more educated but as a result I am even more worried as to how to deal with these personality defects. How to help him control his impulses, his moods and how all this has and will continue to effect me and our relationship???

My husband received a severe TBI in the military 24 years ago. In the last few years we went from good days and bad to few and far between to living moment to moment. The VA has just begun to approve his claims but there are still several that cover the more severe symptoms that are still in appeal. He is to the point of struggling with normal activities, like buckling our grandson in his car seat.

You’re not alone, my boyfriend suffers from tbi from over ten years ago. He’s always mentioned it but it’s more apparent and Ofcourse affecting our relationship. I too started reading through this in hopes to find some therapy or counseling that can educate us and help us cope through this. The “ i don’t know” excuse is hard to accept

After reading a lot of these other comments, I am blessed, and feel almost silly now posting. I fell down my stairs and got 13 staples in November 2019. Still having many symptoms, I have gone through physical therapy and am now starting a cognitive therapy but get frustrated that what I can do has become so limited and keep wondering when it’s going to get better. Any advice on the line between pushing yourself and rest? Additionally, does the actual impact spot hurt for a while for others?

Yes, the impact spot for me still hurts. It is numb feeling but it very much hurts. The numbness is mostly felt when I touch it or put any pressure on it. I can’t comfortably sleep on my left side so I don’t sleep well. Everything is different since my injury. I forget the most simple things. Or as I talk I spontaneously forget what I was trying to communicate. Loose words I know the definition for etc. I wonder if it will EVER get better. Sometimes it is better then, hours later, I’m falling back in to the rabbit hole. It’s frustrating bc I live alone, no one checks on me, and I live in remote country where there isn’t even a neighbor to check on me. I guess this is my new life. Ugh.

I am 10 months post fall and I still have pain and edema where I fell on my left cheek and shoulder.. I was running at the time so had quite a forceful fall on concrete. I also have periods of sleepiness and moodiness. I feel so alone because I am no fun to be around and people have noticed.

I suffered a TBI at the end of August 2019 after falling from a height resulting in two subdural haematoma's and a subarachnoid haemorrhage in the temporal region. I was treated in hospital and now back to getting on with life. I turn 22 next month and forever worrying about the impacts this may have on me in the future or the chances of re-bleeding. Anyone experienced similar?

You are wise to be concerned for your future. Carefully keep documentation of your health records. This will help future providers follow your progress or future issues. There are cumulative effects as you age.. Depending upon location of injury and just about every other aspect of your individual circumstances. It’s ok to ask trusted love ones to pay attention to any alarming changes they may note. Bless you.

had same injuries from a fall with skull fracture. when I was 70(now77).plus you can grow whole new pathways in your brain called axons at your young age. this is not a recurring condition but don't take a bunch of blood thinners

Sorry to hear about your accident.

My son had an accident January 21 2020 em had sever brain damage the had to remove half of his skull had a lot of bleeding I the brain he last in the ICU a month an half..the doctors to me my son would need 24/7 care that he would never walk or be normal again. So they gave us some time to about his condition, if we wanted him to keep breathing with ventilator he wouldn’t be able to eat he had a trak and feeding tube on side of his stomach..so the family came to the conclusion to pull the plug, my son was a free spirit person loved to work on bikes, and help people, so we knew he wouldn’t want To live that way, not been able to be himself again, but in my mind i wonder if we did the right thing to transfer him to comfort care...he passed on February 27th 2020 I miss him so much that I still think his alive and just doing his thing in LA where he lived...I have a huge void in my heart,

Dear Josie,
I’m struggling with the same problem right now.

It breaks my heart to hear that you question whether you did the right thing. My mother suffered a traumatic brain injury on June 25. 2020 and I am often told by others not to lose my faith. Life has been hard for me since, but I always remind myself of what everybody has been telling me, “never lose faith.” So please, have faith in your decision. Because if your selfless heart, your son is no longer suffering. Open your heart and look for signs from him. I promise he is all around you, telling you to thank you for loving him enough to set him free. Keep your faith, and always keep searching for him; because he is right there by your side.

i wish you well.

I am so sorry for your loss... A devastating time for you all as a family.
My 27 years old son also had a very severe brain injury November 2018.
He also had his scull removed and his brain swelled... He was In a coma for 2 months maybe longer.
We was told exactly the same.. I often wonder if he forgives me as I fought for him to stay..
I let his body make the decision and it kept going... He does have a tube in his tummy and the trachy was removed some weeks later..
But he can not speak, eat, drink walk.
However he knows who we are, has a sence of humour and astonishingly he can work a motorized wheelchair..
He seems happy and is still in care rehabilitation as they think he has potential... But was it right.. I hope so...
You did what you thought was right but as a parents we always judge ourselves... In any decision.
Bless you and may happy memories feel your aching heart.

God bless you and family. Such a difficult decision. My only grandchild severely abused at 41/2 months. Worse case of shaken baby Drs had seen. Medical induced coma, life support, Drs told my son there was no chance. Son was 26 at time. I couldn’t help him with such a tough decision. Son decided to give his only child a fighting chance. Mother was in jail. Only grandchild still lives on feeding tube, he’s quad, only involuntary movement, infant like state for all his life. In 2012 son committed suicide. I found him with 1/2 his face from shooting self. My husband and I now raise my grandson while trying to hold down our jobs. You made the best decision you could. No one can ever fault you for doing what you felt was best for your son. My grandson is now 11. I have measures in place for no vent, no DNR, so many difficult things to face. God will decide his fate. I will love him and hold him till then. He survives on partial brain stem. Pituitary Gland barely functions. When God wants his angel back, I will hold him tight until they take him. Plans all made to have his brain researched just incase we can learn even one thing about his brain that might help in saving another child. The could have, should haves, questioning your difficult decisions will only make you hurt more. There is no wrong or right. I will pray for you. Losing our children is not the cycle of life. It’s just wrong.

So sorry to hear about your son. My heart goes out to you. My husband was in a horrible motorcycle accident in August 2019. He was also in a coma for 6 weeks, suffered a traumatic brain injury and multiple broken bones. He was beginning to open his eyes when the hospital asked if we wanted to take him off the ventilator. Family members pleaded with me to give him more time to recover. I relented. It is now 9 months later. He is in a nursing home. He is conscious but severely mentally compromised. He is unable to walk and has difficulty speaking and swallowing. He is still on a feeding tube and is incontinent. He needs care 24/7. His free spirit that was is gone. While I still love this man dearly our lives since the accident have been an absolute nightmare. I now feel like have done him a great disservice by be condemning him to the "life" he is living. Please find comfort in knowing that your son is at peace and his free spirit still lives on.

I am so sorry for the loss of your son. I think you know you did the right thing. You just want him back. You want him back whole and healthy. Warm hugs to you and your family.

My son had a car accident on May 22, 2017. He was thrown from his vehicle and sustained a diffused axonal brain injury. He woke from the coma on day 3, and on day 8 he was able to respond to the commands if thumbs-up, and squeeze hand. The days that followed he was unable to respond to any command. He was paralyzed on one side, had no vision in the eye on the same side, had lung issues due to ribs puncturing his lungs. The neurologists all concurred that he was in a permanent vegetative state. He was 33 yrs old and my only child. He was the love of my life. 46 days after his accident i had to make the hardest decision of my life. My son would never want to live that way. Would any of us? So, i decided that i would take the life sentence of the oain of living without him, rather than give him the life sentence of “ living” that way. You may wonder why i’m writing this almost 3 years since he passed. The answer is simple... i, like you, still wonder if there would have been any hope for him. I googled tbi’s, and found this post. I’m glad i did, because it helps to know i’m not alone. My life is changed forever, but i know deep in my heart i did what he would have wanted. My deeeoest sympathy in the loss of your son.
Danny’s mom- forever 33. If you would like to talk more, i am on fb

wow, that's so sad. I'm so sorry for your loss.

Dear Josie I am so sorry about the loss of your son. Your decision had to be heart breaking. I suffered a brain injury 8 years ago....the sixth in a long line of auto accidents. The last time we were rear ended by a semi truck. I can tell you there are still days I wish I had been unplugged. It is a long climb back filled with uncertainty and long hours of hard work. My husband has to care for me...I can’t drive...my eyesight was affected and I don’t process the same as everyone else. My perception is off I may think a shadow or a crack in the cement is really a step. I look pretty funny trying to step up where there is no step. I said all this to tell you that your sons injuries were more serious than mine... I have some quality of life but I never would have wanted to live confined to a wheel chair or never walk again. I use a walker and I’m so slow ...the world looks different I’m different. God only knows the suffering you face but I think you made the right choice. God knows when it’s our time to go home. I will be praying for you and your broken heart. Thank you for sharing your story.

its been almost 9 years now since that day, that motorcycleaccident brought me to coma for 10 days, and i don't remember it at all, for 4 months, i dont even remeber what happened they just told me everything, my problem now is this tension headache/everyday/all day rated 5/10 and this dizziness that i get when standing up plus this paresthesia on my right leg. any idea how to slow this down or better, make it disappear.

I too had a motorcycle accident 12 years ago and was in intensive care for a month and then rehab for the next 5 months. High-side from ~70 mph with no helmet but fortunately was thrown 50 feet over the curb and into the dirt. I was diagnosed with a moderate to severe TBL with brain bleeding. I have no memory of the event and too lost several months of memory. For a couple of weeks, I did not know my age, my wife’s name, etc. Amazingly, after six months I was able to return to my job managing a technology department. It is interesting to hear of your mention of paresthesia as I still have the same issue with my left leg with the worse symptoms in my foot with a slight decrease in symptoms moving up. For me, it mostly perceived as having a leg in ice water all the time. I wear shoes and a compression sock on my left side except when sleeping. I am now certain it is permanent… My marriage has certainly had its ups and downs, but we are still together…so far.

I also had dizziness when standing up and lying down after my TBI. I was told that your inner ear is effected and seen a chiropractor who made adjustments to correct the vertigo I was experiencing. It helped me alot.

Does anyone have an history with severe DAI traumatic brain injury. My husband got into an car accident and that was the result also with a lot of broken bones. He has endured a lot of surgeries but his body is healing fine. He was answering commands but had coded and now he doesn’t. He just moves around but is aware when someone is there. He has only been in the hospital 20 days. Do anybody knows what to expect?

I know how it is to have your head shattered. 7 years ago I had a motorcycle come through the driver door at my truck. When he came through the window his head hit mine. I was in a coma for a month I kept dying for 2 weeks and they didn't think I was going to make it. Luckily I'm stubborn and I proved them wrong. When I came out of a coma I've been told I was like a little kid again. They put me in a bad caregiving hospital but luckily my mom put me in for a waiting list to get into Craig hospital and thankfully I did get that 3 months after my accident. They helped me learn how to live again. I still have a lot of issues with my memory, like people's names or places I'm on my way to. If people are talking to me and uses the company's given name for a product I won't know what they're talking about. But if they come to me and tell me they're looking for fertilizer for their lawn I can take him right there. But throughout time you get used to it.it's like a joke my mom and I have cuz one day we were talking and I wanted a banana and I couldn't think of the word so I told her it was yellow and showed her how it was shaped and that's when she told me banana so as long as you guys keep a good sense of humor and don't let it kill you inside things will get better.

My son had an car accident November 2018 and suffered a severe DAI TBI with multiple other injuries. He was in ICU for weeks, had ETV surgery which failed and then had a permanent shunt implanted to relieve the excess cerebral spinal fluid. It was tragic. He was in inpatient rehab for 5 weeks and then sent home. I felt completely incapable of caring for him but as a mom, you do what you can do, research everything possible and accept any help that is offered. It was hard, very hard but 20 months later...my son is working part time, taking a class at a community college and is able to care for his personal needs. There is hope. It may not seem like it but the brain is an amazing organ that is capable of healing, however very, very slowly. My son does not remember the accident or being in the hospital for 2 months. His memory has slowly returned but for about 6 months he did not remember even what he ate for breakfast. You can do this. It will challenge you like nothing ever has but you find the strength out of your love for him. Ask God for strength and for people to support you. You arenot in this alone.

I’m not a doctor. My husband had a brain injury about 8 years ago. They’ve given up on helping him & the only thing I can do for you is to offer my heartfelt condolences. It’s a miracle if they remember you in any capacity. After a long time of hope you finally realize that the husband you knew & loved is not there anymore. That’s when the grief sets in. You try to stay positive for everyone, but you’ve lost the man you’ve had so many joys with. But he’s still there & you still love him. I will say this, this has got to be one of the most tragic things I’ve ever been through. I’ve lost my brother & mother, but it was different. I could grieve then heal. Not so with this. Some days you feel ok even cheerful just to have him. Then others it feels like you’ve had your heart & soul ripped from you. It’s especially hard if they’ve lost the will to survive. I pray your pain will not be so hard. Get someone you can talk to & be honest with.


I'm one of the husband's
I remember but everything's differant
I now grieve my loss of self
I don't know wut I lost but feel the voids
Heartbreaking the other way
Like u said a death is
This lingers
I'm congestive enough t see feel the pain it causes others
I sometimes wish I was blank
But keeping at wut Eva recovery I have
Be strong but cry it's sad it's ok t be sad
Just remember the happy too

I am so sorry to hear of your husband's accident. My TBI came back in 1981, following a car accident as well, but no broken bones. While I was in a coma(5 weeks), I was also aware when others were in the room. I did start responding to questions by squeezing their hand - one for yes, two for no. It was only my right arm, however. My left side was basically paralyzed, and I had limited to no use of that for about the next year. Every brain injury is unique. I do not know the severity or specifics of your husband's injury, but know that it will not be the same for you or him from now on. Be adaptable, and patience is of utmost concern. Although it has been some 40 years since my injury, there are still times when old deficiencies crop up from the injury, but, with time, I have learned to cope with a good many of them. My thoughts are with you as you embark on this journey. That is how you must think of it - as a long journey, not an overnight stay.

Andy, Thanks for sharing - My son was injured in 1995 and I am really trying to follow others - he was 14 and now 39 and still struggles with learning, memory - not so much physical - but very easily stressed out - prayers for everyone to heal