What Impact Will Moderate or Severe TBI Have on a Person's Life?

Center of Excellence for Medical Multimedia
What Impact Will Moderate or Severe TBI Have on a Person's Life?

The effects of moderate to severe TBI can be long lasting or even permanent. While recovery and rehabilitation are possible, most people with moderate to severe TBI face life challenges that will require them to adapt and adjust to a new reality.

Moderate to severe TBI can cause permanent physical or mental disability. Because polytrauma is common with moderate to severe TBI, many patients face additional disabilities as a result of other injuries. Even patients who appear to recover fully may have some long-term symptoms that never go away.

Challenges with work and completing tasks that were once routine can be much more difficult than before the injury. Some patients find that the skills and abilities that they used before the injury to meet these challenges are not as sharp as they once were.

These ongoing challenges can also affect the patient’s personal life. People who have experienced brain injuries may take longer to do cognitive or “thinking” tasks associated with memory, such as coming up with the correct change in the checkout line at the grocery store or placing an order at a restaurant. Family relationships will almost certainly change, and in some cases the patient will be totally dependent on their caregivers.

Despite the advances in early diagnosis and treatment of moderate to severe TBI, the fact remains that traumatic brain injury will be a life-changing experience for many patients. Helping the patient, family members, and caregivers to cope with these long-term consequences is an important part of TBI rehabilitation.

Motor Deficits and Disabilities

For many patients, the damage to the brain resulting from a moderate to severe TBI may lead to life-long disabilities or motor deficits. The term disability in relationship to TBI means a loss of physical or mental function caused by damage to the brain. Motor deficits refer specifically to the effect of damage on motor skills or movement.

Examples of disabilities and motor deficits caused by moderate to severe TBI include:

  • Paralysis
  • Spasticity (muscle stiffness) or uncontrolled movements
  • Problems walking, talking, or swallowing
  • Difficulty carrying or moving objects
  • Vision problems
  • Loss of fine motor skills, such as buttoning a shirt
  • Inability to recognize something based on touch
  • Difficulty thinking and remembering
  • Difficulty with social relationships

Other challenges that a patient with moderate or severe TBI may experience include:

  • Difficulty making and keeping personal and professional relationships
  • Difficulty being part of social activities
  • Difficulty taking part in recreational or leisure activities
  • The decreased ability or inability to keep a job or go to school

During the rehabilitation and transition phases of TBI treatment, members of the healthcare team will provide information to the patient and their family members about dealing with these issues. Specific tools and coping strategies will be suggested. Examples of coping strategies and tools include:

  • Writing a detailed list of steps needed to complete a task
  • Using prompts or visual aids to help remember things
  • Using assistive devices to move around, such as a walker or a wheelchair

Learning new ways to do things is a very important part of recovery.

Other Potential Effects

The long-term symptoms of TBI can be divided into several categories, including physical changes, cognitive effects, sensory effects, perceptual effects, social-emotional changes, and others. You’ll find a partial list of these symptoms and possible effects below. Keep in mind that the severity and duration of symptoms and effects will vary greatly from one patient to another, depending on the severity of the TBI.

Physical effects

  • Sleep disorders
  • Loss of stamina (easily fatigued)
  • Appetite changes
  • Difficulty swallowing
  • Physical paralysis or spasticity
  • Chronic pain
  • Loss of control of bowel and bladder functions
  • Seizures
  • Difficulty regulating body temperature
  • Hormonal changes

Cognitive effects

  • Difficulty with attention, focus, or concentration
  • Distractibility
  • Memory problems
  • Slow speed of processing
  • Confusion
  • Perseveration, which is the abnormal persistent repetition of a word, gesture, or act
  • Impulsiveness
  • Difficulty with language processing
  • Problems with executive functions, which include planning, cognitive flexibility, abstract thinking, rule acquisition (determining right from wrong), initiating appropriate actions, and inhibiting inappropriate actions

Speech and language effects

  • Aphasia (difficulty with talking or expressing ideas, understanding everyday language, and problems with reading and writing). Types of aphasia can include:
    • Receptive aphasia, which involves difficulty understanding the spoken word, or
    • Expressive aphasia, which means the patient knows what they wish to say but is unable to get the words out. In some cases, the patient is able to perceive and comprehend both spoken and written language, but is unable to repeat what they see or hear.
  • Slurred speech
  • Speaking very fast or very slow
  • Problems with reading comprehension

Sensory and perceptual effects

  • Difficulty recognizing and distinguishing between touch and pressure sensations
  • Difficulty perceiving temperature
  • Difficulty perceiving movement and positions of the arms and legs
  • Difficulty with fine discrimination (for example, distinguishing between small everyday objects, like coins)
  • Difficulty integrating and understanding information gained through the five senses (sight, smell, touch, hearing, and taste)

Effects on vision

  • Partial or total loss of vision
  • Diplopia, which is weakness of eye muscles that causes double vision
  • Blurred vision
  • Problems judging distance
  • Involuntary eye movements, called nystagmus
  • Photophobia, which is intolerance of light

Effects on hearing

  • Decrease or loss of hearing
  • Tinnitus, which is ringing in the ears
  • Increased sensitivity or intolerance to sounds

Effects on smell and taste

  • Anosmia, which is loss of or diminished sense of smell
  • Loss of or diminished sense of taste
  • Bad taste in the mouth

Social-emotional or behavioral effects

  • Dependent behaviors
  • Fluctuating emotions
  • Lack of motivation
  • Irritability
  • Aggression
  • Depression
  • Lack of inhibition
  • Denial or lack of awareness
Posted on BrainLine August 9, 2018.

From Center of Excellence for Medical Multimedia (CEMM),. www.cemmlibrary.org

Comments (324)

I played football from when I was 9 until this past fall when I was 18. I’ve had many hard hits over the years as other people and myself got bigger, faster and stronger. Starting in 8th grade I remember taking hits that just rung my bell but didn’t have any concussions, yet. Then in the spring before my sophomore season I had my first diagnosed concussion. I layed a guy out with the crown on my helmet and I vividly remember everything immediately going white and almost felt like I was moving in slow motion and everyone around me was talking in slow motion. While I’m still in this shocked state I also vividly remember it felt like fluid or water was coming out of my ear and I remember unbuttoning my helmet reaching up and checking but I was covered in so much sweat I couldn’t tell. The next day I went to the trainer and told her everything and a doctor diagnosed me with a concussion. Skip ahead to my senior season last fall and I had my second one that I was officially diagnosed with. It was the first play of the 4th quarter, I made a tackle and my head hit the ground so hard it concussed me. I was dazed, confused and was told I was doing things I knew not to do, like call a timeout when I was injured instead of faling down so we get a free injury timeout. Not calling a timeout in this situation was something I’ve always known was a big no no. After being taken to the trainer and evaluated I was told I did not know my own name or address and from the descriptions I’ve heard of my state of mind, my short term memory was worse than someone with demensia. By the time my parents got down to the sidelines I remembered my name but I was still asking the same questions multiple times per minute about the game. It lasted that way all night, I was taken to the er and after what I’m assuming was a ct scan or an mri, my parents were told to take me home, let me go to sleep, and I would be ok when I woke up. Well still to this day the memory of the night from the time of the hit to the next morning when I woke up is still gone. I do not remember being on the sidelines injured or even being at the hospital at all. In my memory, one minute I was playing and thhe next I was waking up very confused about what had happened. I say all of that to say this, since then I have had problems with short term memory (forgetting little things I’m told to do at work) and my attention span when doing everyday tasks (I can’t even keep my attention long enough to read a book most of the time anymore. I’ll read a paragraph and my mind wonders, I’ll still be moving me eyes accross the page but nothing is being absorbed. This makes it impossible to get any work done now that I am in college). I will admit, I’ve never had the greatest memory or the most impressive attention span, but I certainly notice a difference. I was always able to maintain good grades all the way through high school and aquire a good act score but I’m not sure how much of that I can keep up through college and how this will affect my future career still having symptoms like this.

I was involved in a crash with an 18 wheeler last year that nearly took my head off, but instead have suffered a TBI that has severely effected my cognitive thinking. Now its putting a black cloud over my family causing tension between my fiance and I. What can I do to help ease this pain??????

After suffering a TBI I eventually came right. However one problem that still affects me is that where before I could really get into a book and lose myself in it now I have trouble retaining the story thread. Does anyone else relate to this?

I used to read all the time. I can no longer focus long enough to read a book. I end up just re-reading the same 5 pages. It is so frustrating.

Hi everyone I have fractured my skull in 2 places and have had a brain hemorrage this happened about 2 months ago. I start rehabilitation on Thursday I lost my sense of smell and taste which was horrible but I have something back that is worse everything i smell and taste is the same and it's not nice makes me sick nearly every time I eat or smell it. I started back at work after 5 weeks but I struggled to much so I am back on sick as my angers bad and my headaches just wont go away and just feel really poorly. I have always struggled with depression and anxiety but now it's even worse. I find my self looking at these sites everyday which sometimes I don't think is helpful because everyones is different and will heal different. I don't really no if my injury is mild or moderate but when I was at the hospital I dident really take it serious as I felt better when I first woke up then what I do now. I struggle sleeping and I get tired doing anything. The worse thing that keeps me awake is thinking about the bouncer that booted me in the head after I was already on conscious. Sorry about my English never been the best at it. The list gos on but I can't write at the moment as I'm to tired and feel bit dizzy from looking at the screen.

I experienced TBI in 2015. Was hospitalised for a month. Convalesced at home for several more before returning to work. However cognitively I still struggle with reading books. I often lose the thread of what I’m reading. Anyone else have the same problem?

Played 11 years of contact sports from 7-18, which is numerous subconcussive hits and many undiagnosed concussions. I also had two severe diagnosed concussions in the later years of playing sports. Now, as a college student, I feel as if I am already paying the price. Beginning to develop emotional instability, feel as if my cognitive abilities are slowing down, and even some physical pain in the head and neck area.

It's scary. I am looking for answers and seeing a doctor soon. It makes me pessimistic about my future. I tend to put blame on myself and hold myself to a high standard, but more than ever I am realizing that many of my shortcomings might be out of my control. Please reply if you have ways that helped you cope with long lasting effects of head trauma. I feel alone sometimes, not everybody deals with this.

I am a collage student as well, and suffered a TBI two years ago from a motor vehicle accident. You're not alone in feeling this way, though I won't say I've found the "cure", but what's helped ME, is I record my lectures (even though half the time I don't listen to them, more of just a "safety net"), write or type any information that's important to remember-whether it's notes from class or outside of school on my phone as "things to do" or any important dates of birthdays or appointments, due dates for homework, ect-otherwise I'll forget! I've also suffered from insomnia, anxiety, and concentration/memory problems (hence the writing stuff down) from this injury, and I'm taking medications for those issues. Although they don't always work, hence why I'm awake now. But, best of luck to you. I hope you accomplish whatever you're in school for!

The effects of a TBI (Concussion) on my personal life were quite significant.
As a teenager I was involved in a bike accident ,in collision with a car, in
Which I was Knocked Unconscious for 40 minutes, only waking up again in
Hospital. A lot of the common symptoms associated with such a concussion
Were apparent definitely and ive mentioned these in other articles on this
Website.
With leg injuries which have left me partially Disabled in my right leg for the
rest of my life from the accident and Sometimes in pain, and sometimes
needing a walking stick, and having been Knocked off my bike and being
Knocked Out and left lying Unconscious in a very busy main road in the
middle of “Rush Hour” an apology from the driver of the car would have
been nice when I was better at home. I have never received an apology
by any means which seemed rather insensitive. Just financial compensation.
This created psychological stress in my life after the accident.
The strain on my supportive family began to show as they needed to take
Time off work to tend to my needs and take me to hospital appointments etc.
The stress of the aftermath of the accident is often transferred to your close
Ones.
At work, once back after a long rehabilitation, I was in an apprenticeship which
I needed to complete to be able to qualify for future employment. I started
Working a night shift to make up for some of the time lost by the accident , this
in itself Pressured me somewhat. The accident made me feel guilty of messing
my worklife up and I was trying too hard to make up for it
My relationship with my then workmates suffered I think but we were innocent
teenagers before the accident. They could see I had changed and we all grew
up a little I think.
My social life suffered as well. I became moody, tired and disinterested for
Some months after the accident. I was nervous about travelling in a car unless
At low speed and feared another accident. For up to 6 weeks after the
Accident my mobility was badly restricted by my injuries and I just didn’t want
To go out much. I had a busy physiotherapy programme to keep up.
I became a bit withdrawn.
As time went by I moved jobs within my workplace and made new friends and
Started going out more again and started new interests.
Psychologically the accident affected me deeply more than the physical
Symptoms but having family support was crucial in the 3 to 4 months after the
Accident.
I have balance problems from my head injury and coupled with my Partially
disabled right leg I have to be careful ,downstairs for instance, as my Leg
can give way, and if I fell I might bang my head and sustain another concussion.
Yes I will always be partially disabled in my right leg but you’ve got to believe
That life’s worth living and not be completely overwhelmed by the accident
And its aftermath.
This was absolutely paramount to my recovery. I wish you all luck.

i sufferered a head injury when i was 4 yrs old, it destroyed my life due to seperating right from wrong. along with other trauma, became a social pariah. back in the seventies no cat scans. moral of the story pay attention to any change in your childs behavoir!

Hello everyone,
I'm a 31-year-old male that was in an awful rollover where I luckily survived with just temporal and occipital bruising. I had no open wounds, luckily. I walked away with loss of consciousness for minutes. I woke up upside down unbuckled and climbed out through the broken glass.

My CT and MRI show no bleeding or hemorrhage. But did show a congenital effect cerebellar tonsillar ectopic. My symptoms according to how they happened:

Starting on July 3rd for the first week I had insomnia. Didn't sleep well the first week. It got worse every day of every week. I was told only time will heal this. Into my first month, I started having headache, nausea, fatigue, problems with speech, dizziness probably due to Zoloft. Mood swings, smell and taste jacked up. Anxiety, some depression, broken thought processes such as weird words and intrinsic thought processes like afraid to hurt myself from the wreck or anything that could possibly harm me. I'm very guarded due to the mindset after a TBI. Left side weakness, confusion, agitation, perseveration sometimes. Slurred speech and sometimes talk slowly. I've suffered from a decrease and increase of sexual arousal which was weird. As a licensed nurse it has definitely changed my way of life. But through different trials with my doctor counseling, being big in the church and keeping a whole circle of communication.

I'm at 90 DAYS still struggling daily with mental confusion and thought processes. I deleted Facebook to keep my mind free of garbage.

If your asking for advice find a good neurologist to follow your symptoms. Take one day at a time and know that each day will get worse before it gets better. I will see my neurologist for the first time in 90 days. I'm hoping for a quicker recovery because 90 days of this is rough.

Anybody's advice would help but I now know where TBI injuries stand. My doctor tried me on trazedone but doesn't seem to help but with sleep. I wish the best for anyone that deals with this.

I have difficulty sleeping, I keep waking after about 4 hours..if you have a similar problem try going biphasic sleep pattern instated. ive been trying 2 four hour sleep cycles about 12 hours apart..it seams to help. just a thought, its worth a crack.

Hi I'm writing a book and a character suffers a concussion, leading to tbi (right side of brain). I'd like to know if everyone suffers from at least 1 thing in each "category" above shown

Hi, my name is Caroline and I am a TBI survivor from 1982. I was involved in an automobile accident. I am probably a "high-functioning" TBI survivor. I have two college degrees, but I think when you talk to me for a while you realize that something is wrong. My memory is poor, and I have numbness on my left side. (resulting from a right hemisphere brain injury) I work part-time. I recovered some, but not completely. My taste in food changed. I am less serious. It is like when we wake from your coma you are a different person. Good luck.

I suffer from probably 80 % to 90% of everything listed. I was in a terrible car accident when I was 5 years old, which my mom was killed in the crash. I am 37 and was only made aware I actually had a brain I injury last week. I been asking doctors for several years to figure out while I'm always fatigued ,nausea and severe memory loss. I had no answer until recently. I'm glad the puzzle was finally solved for me. Thank God!! Hopefully I will be able to start some rehabilitation in the near future. Keep me in your prayers

In Dec 4th 2005 I suffered a severe traumatic brain injury, with right frontal lobe damage.
I’m working 30-35 hrs per week in administration but do still suffer from the following-

Insomnia- why I’m writing this at 4am
Fatigue
Mood swings
OCD
Slower than peers at Processing information
Irrational behaviour
Palsy on my left side
Slurred speech when tired
Difficulty keeping relationships
Anxiety
Depression
Social anxiety
Short term memory loss

Having said all of this with therapy I have learned and found strategies to manage this. Once I came to terms with having a disability 6 years post.

I gave up drinking, smoking and even Facebook completely and read more which improves my vocabulary. All of those 3 things have definitely improved my anxiety and depression.

It’s taken my family a long time to accept the changes yet some will never believe or understand that they are actually true. You see on the outside I come across more than capable and confident but that’s been my aim since day one.

I have a great therapist, I’ve been through a few but the one I have now has changed my life.

There is so many changes but once you accept and learn about your disability it is only then you can grow.

Your pursuit for proper health care sounds daunting. Adding to the frustration of such an injury.
How can one tell a good neurologist from a fool?
I've recently come to the realization that the symptoms, that have been there for years, just might be a result of my 1980 accident.
Reading your post has convinced me to seek some, long past due, help.
It does get better... right?

My wife a slip and fall and suffered concussion. She is having lots of these symptoms, I came across your comment while trying to see how long she will have to go though this.
Headache, fatigue, vision problems, disorientation, confusion, Vertigo, unable to read and comprehend. It sad because she was high functioning executive and now she like another person.

I fell down stairs onto cement ... 4 months ago .... same symptoms.... has your wife found relief in any way ? Thanks

My husband was hit by a car when he was 14, he was in a coma for a week, and I am told that he had to relearn how to do everything. He has always had anger and depression issues along with suicidal tendencies. He is very emotional and gets headaches and feels dizzy often. He is 55 now and has recently been exhibiting some inappropriate behavior, such as saying inappropriate sexual things to people. He also has a terrible short term memory. Could this be related to the old injury and how do I get him hel?

I was 12, got a TBI after a car accident. I was in a coma for a week, also had to relearn walking, speaking, eating, etc. My brain seemed to heal within months after the injury. They threw me back into life. And I failed at high school but I figured out how to navigate through college and seemed to be fully healed. 20 years after the accident. A colleague and friend gave me a great paper describing the long term effects of a TBI. I had so many of these symptoms. I had no idea. I suggest you find some way to present visual copy of this material to him and allow him to realize he needs some help.

Yes. I was involved in a severe traffic accident and diagnosed with a severe concussion, back and neck problems forty-five years ago (1973) on the autobahn in Germany. I am, and have been, experiencing headaches, memory problems, tinnitus, sleep apnea and other sleep problems, disinhibition, depression, dizziness, balance problems, and numbness and tingling in the arms ever since. I am also easy to anger, etc. I believe that all of these are linked to the traumatic brain injury I received.

After my concussion from a slip and fall, I too am experiencing the symptoms you mentioned.

I want to thank everyone for sharing, reading has calmed my anxiety. I had an accident that was my first TBI last year and never went to the doctors. I’m not sure if I should go because I have been multiple times in the past few months and went for migraines in March. My doctor asked if I had any head trauma and tested me. I forgot about my incident and told him I hadn’t been injured. Still not sure my head was injured.

I was at the gym squatting an incredibly dumb amount of weight. It was 405Ibs and when I reached the floor luckily their were safety stoppers. Unfortunately they were too low and I managed to lift the weight up my neck and wasn’t too sure if I hit my head or not. My head wasn’t opened and I felt fine afterwards. An employee even came over and had me squat a couple more sets to show me a more effective way of squatting.

I was 18 and fairly dumb so I ignored the fact that I could have died. I get headaches a year later and have mood swings. It appears all my damage is mental and that my motor physical functions are fine. I assume it’s because my althetism the thing that caused my TBI in the first place.

Since it’s been more than a year I assume I’ve healed up well but reading comments here have me concerned. I worry that in the future my conditions could advance and get worse. I’m able to concentrate still fairly well but things are less sharp. I really wonder if I even hurt myself, I never passed out or had the worst symptoms longer than the month after.

I just want to say too the brain is truest remarkeble that it can take such trauma. People here talk about car accidents where their skull opened. They seem to have a decreased quality of life but are able to function and be happy occasionally. It gives me hope in my journey through this. I hope the best to whoever is reading this too in their journey.

Go to the Dr! Treatment in the first 3 years can make a difference in your life 10 years down the road. I had no idea how much it would affect my entire life. It's a struggle to survive without a team of people in your life helping. My team is gone and building a new one isn't automatic. All the things that make you you can change. Get help ASAP.

My 18 yr. old granddaughter was just run over by a car Friday night. This is new to all of us. 2 skull fractures, subural hematoma, subarachnoid hemorrhage, traumatic temporal bone fracture. We are very scared for her. We believe she does not realize the severity of this. So what I’m reading that symptoms as well as now can as well resurface yrs. later. If someone can fill us in real terms that we can understand. Her TBI is a CHI. closed head injury. We could really us some words of wisdom, as the true facts on what to expect now. Thanks

Hello, I was in a roll-over MVA in 2001. I had a severe TBI, closed head injury, temporal and occipital injuries including subdural and subarachnoid hemorrhage. I had multiple skull fractures including Basal plate, as well as facial fractures, partial spinal cord severing at C5, with C5-C7 having to be replaced. What I will say 17 years later is that I didn't realize how severely I was injured. I also didn't realize how much my functioning was effected. That being said, I went on to earn my MSW, am a respected clinical social worker, and have learned to compensate for all my strange idiosyncrasies left from my TBI and spinal cord injury. Mostly I had to learn patience with myself, that functioning differently doesn't mean broken or bad, and that recognizing my limitations is a strength. I hope your granddaughter is well on her road to recovery 2 months later.

I was in a motorcycle accident one year ago. I had multiple brain bleeds, broken right temple, broke all three bones in my right ear, I had a midline shift. I was in intensive care for a month-and-a-half.

For the most part, I am normal, but I don't feel like myself. My memory isn't always the best, sometimes I have emotional issues, ringing in my ears, a light sensitivity which causes blurred vision. I have permanent brain damage on my frontal parietal and temporal lobe.

For the most part, if you look at me, you won't be able to tell, but my friends say speaking to me and watching me they can tell.

I was hit by a truck at 11 years old and had CHI in 3 spots of my skull with severe TBI.
It was a long recovery process. But I am alive today, with a husband and 3 boys.
It does effect your life tremendously. I don't have much memory of anything before I was 11. I spent years after feeling as if I was in a dream... A bad dream. Even now sometimes I feel the same way. I have chronic migraines and my body is often sore for no reason. I'm 28 now, and still have emotional breakdowns and feel like my depression becomes debilitating.
Your granddaughter will not understand the severity of this, until she is living with it everyday, and that is ok.
My advice to you, make sure family and loved ones close to her know the long term symptoms of a TBI. Chances are, you will catch the symptoms before she does. Support her emotionally, even if she makes it very difficult to do so. There are things out there to help. I take a low dose medication everyday for chronic pain and migraines that allow those things to not take over my life. THIS IS SO IMPORTANT...Find her a doctor that she can really communicate with and make sure they know all the details of her TBI. I went though years of suffering through depression because I didn't have the support I needed. That is however, nobody's fault. My family did the very best and worked with what they knew!
While it will be a long journey, she can still have the life she wants. I still graduated college and started a family. It may have took more trial and errors to do so then it would have before a TBI, but it still happened.
I will be praying for your family and am hoping for the best. ❤

Love, patience and games. My son almost died at 15 from a dirt bike accident. I played games with him, to trigger his recall abilities. Name 3 things that are red, tell me about 2 people you know, and more. Be open, listen, reassure...all the things you already know so well. Sending you good thoughts and prayers.

im now in my 50 it started with my hand shaking on movement then went on to my other hand then my legs then on to tonic seizures i take aolt of meds . but this is from an injury as child from skull fructure i got was in coma for two weeks , when i woke up i didnt know anything and ahd to re learn it all over again . even with meds i shake all the time not asking for anything just to let you know .

I hit the back of my head falling off a step in 2010. Eighteen months later I had put on a lot of weight even though I wasn't eating any more than previously. I was debilitatingly tired, especially in the afternoons, and was experiencing muscle weakness especially in my legs. I went to an endocrinologist who did a complete work up of my blood. The results showed that over the 18-month period my pituitary gland and hypothalamus had stopped functioning normally and I wasn't absorbing minerals and vitamins. The doctor put me on daily injections of insulin-like growth factor 1 (IGF-1), thyroid medication, DHEA, and vitamin and mineral supplements. I stopped taking the DHEA fairly early on because of the side effects but the other medications have stabilised me. However, after a very long day, such as travelling, I am wiped out the whole of the following day. Every day at about 16:00, I have to rest for an hour or so. It's come part of my life now as has the weak muscle tone in my legs. But I'm convinced the medication is keeping me stable.

I’m almost 6 years into my recovery from a Severe TBI.
Some of my issues, 24/7 headaches, I get Botox now but it does help much, extreme fatigue, having no patience, say what I think..no filter at all, i’m not motivated, high anxiety and depression, I speak to none of my previous friends and family. I also cannot smell or taste.
The severity and locations of the injured areas, is the most determining factor of injury. The tips can help, but if you have a lot of symptoms / damage try to learn to accept them.

All of the problems you mention I still have after 15 years since my brain tumor op and is increasingly getting worse hardest part is that nobody understands because I look normal I haven't worked for 6 years life is very frustrating

i suffered an extremly severe tramatic brain injury with severe nerve damage on my whole right side and severe damage to my whole body. ive made alot of mistakes after my accident but worked my ass off re learned everything over again. nutrition reading self developement books. working out 6 days a week now sleeping disorders for almost 5 yearsi got on medicinal marijuana works amazing. i got t boned on the highway on my side if the vehichle with both vehichle speeds i took an impact of 190km on my door

I would agree with you to a point. Recovery will be different for each individual depending on how bad the survivor wants to get well and what he is willing to try. I suffered severe TBI at 15. Now at 57 I can finally realize some relief of the nagging spasticity by working out correctly.The solution was grit , an inversion table and forcing my limbs into certain yoga poses.

All my recovery is something you guys should take note of and repeat. It is SO SIMPLE

Glad your recovery is going well !

Recovery is not simple for everybody. Wish it was.

I too had a Severe TBI at 15 years old and I'm now getting close to 57.

I believe that to imply recovery from a tbi is “SO SIMPLE” is not very compassionate. I applaud your attitude as it has a great impact. However I too have a severe tbi and have tried many therapies with limited success.
I do believe we are all trying to improve and with great effort.
I am glad you recovery has gone so well. But along with sharing your successes you may consider recovery is not as simple for all of us.

I was recently diagnosed with TBI from accident where I was run over by a truck forty years ago. I really wasn't aware of any TBI symptoms until about three years ago. I now feel dizzy all the time and have difficulty with being motivated. I also experience difficulty with sleeping and have night terrors. Has any one else experienced TBI symptoms years later?

It can last a lifetime. I have insomnia, PTSD, ADHD, rapid mood swings, and have been suffering from depression and anxiety problems for years and I would have night terrors every night. It sucks tbh.. but it can get better with the proper medication and therapy.

I had a car accident in Sept 94. Traumatic closed head injury. Got to come home from rehab and live a normal life. never had trouble I couldn't work around. Maybe a little forgetful if I don't eat or off balance if I don't sleep well. then in Jan of this year, I started having really bad episodes that I found out are focal partial seizures. Now I have to under go all these tests and they are going to take my license away. I am also having night terrors but seizure meds. make me NEED sleep. It's crazy, I thought all this stuff was behind me. You should look up different types of seizures and talk to your Dr. I had always had these episodes but was told by doctors before that I was dehydrated or had a bit of anxiety.I know when I have one now, it kicks my butt for the rest of the day. I can't hardly stand or think after. Good luck to you:)

I am wondering the same thing. I had a head injury as a child and then another about 16 years ago....recently I think I slammed it again when I fell of a ladder.....since that time my emotions are so completely out of whack ….as I have been wrongly put on anti depression meds (it was menopause at a early age) and used them twice after the death of my father (2002) and my son (2005) local Drs just think I need them again. No dammit this was triggered by the last fall!!

I suffered a TBI when I was 15. I was thrown from a car. I was flown to a trauma center. Spent 5 days in a coma. I had a massive concussion and two skull fractures.

I am now 48. A few months ago I was at a nail salon. I started feeling dizzy. I asked for some water. The next thing I know there is a couple of people looking down at me. They said I passed out but my eyes remained open the entire time. They said I was like that for about 5 minutes. I left feeling very confused and upset. When I got up, I realized I had peed all over myself. This same thing happened to me a couple of years ago. I ended up going to a neurologist, had an MRI and an EEG. Everything came back normal.

I've always felt like I'm kind of odd since having my accident. I use to get horrible migranes, which actually stopped after being pregnant. I have a terrible memory and am easily frustrated. Very emotional and can easily become depressed. I forget words all of the time. I don't think that anyone truly understands. I'm so glad that I found this site. It's nice to know that I'm not alone. I'm so afraid of one day losing my mind and not remembering my children.

yes i experience symptoms years later and here i am on this site discovering pcs for the first time. i have seen doctor after doctor in the last five years especially this last year and not one doctor has brought pcs up. i literally start out the conversation stating that in 2007 i was hit in the head and now have three titanium plates in my skull. i have always suffered with balance after the accident but i was fine until about 2012. or at least thats when the symptoms really started to show them selves. it has been a struggle like never before since then losing everything in my life. best of luck to you

I feel your pain David. Back in 2014 I had a really bad head injury of a brain concussion and right head contusion. It's not until now that I'm recovering my life experiencing low motivation and pain that arises on the right side of my head. I hope your headaches go away and life goes great for you. My experience with post injury has been so hard.

What about nutrition to help the TBI patient?

I was in a car accident at the of 12 and had one seizure right after my TBI. I was seizure meds. A few but never had any I’ve been seizure free for almost a decade and then at the of of 22 I start having terrible migraines and pressure around my metal plate and that lasted a whole week with vomiting as welll. Then a as it hit a full week with my headaches and vomiting I was starting to have seizures and was admitted to the hospital. Why would this happen if I have been fine and normal for the past 9-10 years since my accident?

I would love to see a brain scan on myself.

* When I was about 2 a kid threw a rock and hit me in the forehead -- I had to have stitches.
* When I was 4 I feel out of a tree from about 8-10 feet up and landed on my head. I thought I was going to die. My parents never took me to the doctor.
* When I was about 5-6- or 7 playing back yard base ball I was at least once hit in the face with the ball - hit in the head at least once with the bat ( no helmet ).
* When I was in 2nd grade I was walking home and got into a fight with kids and was hit smack in the face with a base ball sized rock got a bloody nose.
* When I was in 4th grade I feel out of a hay loft ( approx 12-15 feet ) landed hands and head first on concrete - broke both arms and had a concussion -- I was unconscious for at least 30 seconds to maybe 2 minutes.

I am a terrible student and do terrible on tests yet when ever I talk to people they always think I am so smart in conversation.

WOULD A BRAIN SCAN AT MY AGE NOW OF 53 SHOW ANYTHING FROM MY PAST ?

Yes it would. I had a bad car accident in 1997 and recently had an MRI where it showed I had damage. It answered a lot of questions about the last 21 years and the decisions I've made. It also explains my memory loss and behavioral changes. If you have damage, there will be evidence.

45 yo Severe TBI ca. 1987 from MVA. Early childhood concussions. Social isolation, depression, irritability, memory problems, difficulty with nutrition and self care, keeping up with personal and professional life, trouble keeping jobs BUT my parents always say that since I made it through college (BS Chemistry and Doctorate in Pharmacy) that I am fine. They never understand the isolation, difficulty managing tasks or situations where I’m acutely aware that people poke fun at me for being “spaced out” or easily ridiculed at work because I have to make lists and I get really OCD about proper procedures.

I had to work with tutors and cut out a lot of bonding with friends to keep up in school. My family was always very hard on me and I didn’t get any help with relearning daily tasks. I came from a middle class emotionally abusive home. It is still hard there is so much criticism, so I hung out with other families growing up who seemed to understand. Had a really sweet neighbor who tutored me in math for years after that accident. She was there for me and I am so thankful. I would help any of you if I could or any young person needing a friend. Tried to get involved with a local TBI non profit, but never heard back. Wanting to connect with others locally - maybe just start another one!

Your life stories and tips are comforting to hear. Feel so alone and it’s painful sometimes, so thank you all for your perspective.

When I had the accident they only had CAT scans. Think I deserve an MRI so I can validate the frustration and tumultuous life I’ve led so far. My family ignores that this has had a effect on me. They seem to think my depression, frustration and isolation is simply a character flaw. My brother is the worst at putting me down but it may be because he did not go through college.

Thank you all again. I have wanted to get involved in caring for those like us for years. Now that the NFL has shed more light on the long term effects, out suffering is recognized. Not that it lessens the pain, but maybe we have more of a voice.

Best wishes to All on this forum.

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