What Impact Will Moderate or Severe TBI Have on a Person's Life?

Center of Excellence for Medical Multimedia
What Impact Will Moderate or Severe TBI Have on a Person's Life?

The effects of moderate to severe TBI can be long lasting or even permanent. While recovery and rehabilitation are possible, most people with moderate to severe TBI face life challenges that will require them to adapt and adjust to a new reality.

Moderate to severe TBI can cause permanent physical or mental disability. Because polytrauma is common with moderate to severe TBI, many patients face additional disabilities as a result of other injuries. Even patients who appear to recover fully may have some long-term symptoms that never go away.

Challenges with work and completing tasks that were once routine can be much more difficult than before the injury. Some patients find that the skills and abilities that they used before the injury to meet these challenges are not as sharp as they once were.

These ongoing challenges can also affect the patient’s personal life. People who have experienced brain injuries may take longer to do cognitive or “thinking” tasks associated with memory, such as coming up with the correct change in the checkout line at the grocery store or placing an order at a restaurant. Family relationships will almost certainly change, and in some cases the patient will be totally dependent on their caregivers.

Despite the advances in early diagnosis and treatment of moderate to severe TBI, the fact remains that traumatic brain injury will be a life-changing experience for many patients. Helping the patient, family members, and caregivers to cope with these long-term consequences is an important part of TBI rehabilitation.

Motor Deficits and Disabilities

For many patients, the damage to the brain resulting from a moderate to severe TBI may lead to life-long disabilities or motor deficits. The term disability in relationship to TBI means a loss of physical or mental function caused by damage to the brain. Motor deficits refer specifically to the effect of damage on motor skills or movement.

Examples of disabilities and motor deficits caused by moderate to severe TBI include:

  • Paralysis
  • Spasticity (muscle stiffness) or uncontrolled movements
  • Problems walking, talking, or swallowing
  • Difficulty carrying or moving objects
  • Vision problems
  • Loss of fine motor skills, such as buttoning a shirt
  • Inability to recognize something based on touch
  • Difficulty thinking and remembering
  • Difficulty with social relationships

Other challenges that a patient with moderate or severe TBI may experience include:

  • Difficulty making and keeping personal and professional relationships
  • Difficulty being part of social activities
  • Difficulty taking part in recreational or leisure activities
  • The decreased ability or inability to keep a job or go to school

During the rehabilitation and transition phases of TBI treatment, members of the healthcare team will provide information to the patient and their family members about dealing with these issues. Specific tools and coping strategies will be suggested. Examples of coping strategies and tools include:

  • Writing a detailed list of steps needed to complete a task
  • Using prompts or visual aids to help remember things
  • Using assistive devices to move around, such as a walker or a wheelchair

Learning new ways to do things is a very important part of recovery.

Other Potential Effects

The long-term symptoms of TBI can be divided into several categories, including physical changes, cognitive effects, sensory effects, perceptual effects, social-emotional changes, and others. You’ll find a partial list of these symptoms and possible effects below. Keep in mind that the severity and duration of symptoms and effects will vary greatly from one patient to another, depending on the severity of the TBI.

Physical effects

  • Sleep disorders
  • Loss of stamina (easily fatigued)
  • Appetite changes
  • Difficulty swallowing
  • Physical paralysis or spasticity
  • Chronic pain
  • Loss of control of bowel and bladder functions
  • Seizures
  • Difficulty regulating body temperature
  • Hormonal changes

Cognitive effects

  • Difficulty with attention, focus, or concentration
  • Distractibility
  • Memory problems
  • Slow speed of processing
  • Confusion
  • Perseveration, which is the abnormal persistent repetition of a word, gesture, or act
  • Impulsiveness
  • Difficulty with language processing
  • Problems with executive functions, which include planning, cognitive flexibility, abstract thinking, rule acquisition (determining right from wrong), initiating appropriate actions, and inhibiting inappropriate actions

Speech and language effects

  • Aphasia (difficulty with talking or expressing ideas, understanding everyday language, and problems with reading and writing). Types of aphasia can include:
    • Receptive aphasia, which involves difficulty understanding the spoken word, or
    • Expressive aphasia, which means the patient knows what they wish to say but is unable to get the words out. In some cases, the patient is able to perceive and comprehend both spoken and written language, but is unable to repeat what they see or hear.
  • Slurred speech
  • Speaking very fast or very slow
  • Problems with reading comprehension

Sensory and perceptual effects

  • Difficulty recognizing and distinguishing between touch and pressure sensations
  • Difficulty perceiving temperature
  • Difficulty perceiving movement and positions of the arms and legs
  • Difficulty with fine discrimination (for example, distinguishing between small everyday objects, like coins)
  • Difficulty integrating and understanding information gained through the five senses (sight, smell, touch, hearing, and taste)

Effects on vision

  • Partial or total loss of vision
  • Diplopia, which is weakness of eye muscles that causes double vision
  • Blurred vision
  • Problems judging distance
  • Involuntary eye movements, called nystagmus
  • Photophobia, which is intolerance of light

Effects on hearing

  • Decrease or loss of hearing
  • Tinnitus, which is ringing in the ears
  • Increased sensitivity or intolerance to sounds

Effects on smell and taste

  • Anosmia, which is loss of or diminished sense of smell
  • Loss of or diminished sense of taste
  • Bad taste in the mouth

Social-emotional or behavioral effects

  • Dependent behaviors
  • Fluctuating emotions
  • Lack of motivation
  • Irritability
  • Aggression
  • Depression
  • Lack of inhibition
  • Denial or lack of awareness
Posted on BrainLine August 9, 2018. Reviewed March 28, 2019.

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The Center of Excellence for Medical Multimedia (CEMM) is a dynamic initiative from the Office of the Surgeon General, supplying award-winning interactive multimedia for patient education throughout the Military Health System.

Center of Excellence for Medical Multimedia. (n.d.). Moderate to Severe TBI: Long-Term Effects. Retrieved March 28, 2019, from https://tbi.cemmlibrary.org/Moderate-to-Severe-TBI/Long-Term-Effects

Comments (561)

Please remember, we are not able to give medical or legal advice. If you have medical concerns, please consult your doctor. All posted comments are the views and opinions of the poster only.

I was injured at work. An overhead lamp connected to the machine I was working on came loose, swung down and hit me on the left side of my head and neck knockin me to the ground. I was taken to the ER where I only got xrays for broken bones, No concussion check til about five months later. The doctors here in Sweden do not seem to know much about tbi's and have done not much for me, it is here take this pil or that pil. I also am dealing with whiplash pain and not getting much help there either. my work insurance refuses to compensate me because with no information I went back to work for five months even though I was in pain and not realizing what damage had been done to my brain, ( yet) after the five months I went back and asked for another doctor. this all happened to me in december 20015. no one seems to understand what I am going through or just don't care

I see you, and I can relate to a lot of what you're going through. I was injured in a car wreck, but the rest of your comment is pretty much exactly how I feel. I understand what you're going through, because I am too. I care. I hope you find support. I hope you find ways to adapt. Keep pushing, you can do it! (trying to tell myself that as much as you! ;) )

I was hit in head with a crowbar at work on 2002. Saw several drs, had severe cognitive and behavioral changes stemming from a combo of the injury and the never ending or changing diet of antidepressants I was given to treat the condition. Went from a hard working loving family man to a federally indicted criminal in a year. Served 9.5 years in prison and returned to work still carrying the problems. It's now been over 17 years since the injury and I'm still getting the run-around from drs. Noone will even address my issues, only keep giving me pills of all sorts. I've been unable to work the past three years due to the pills but of I don't take them I fear what may happen in light of what's happened already. Just returned from er as I write this, once again given a pill for dizziness and one to sleep. They refuse to tackle the problem

I had a severe TBI in the military, 50years ago, many doctors has told me nothing wrong, fighting with the veterans the last 8 years and they are just waiting for all of us to die.

I am very scared I found my boyfriend a few weeks ago, he shot himself in the head and I saved his life. He has been recovering well. They say he has no brain damage because of my quick response when I found him However there are so many things that are unknown and they don’t seem to say anything about what to expect when he comes home but about the therapist and his jaw still being wired the medical parts. It’s happened so quickly and they don’t seem take in consideration that I am fearful of what how to handle this. He is doing well yes but when I show up there he wants help with everything and I don’t know how handle it. His sight has already started to change in the one eye. He is constantly hot wants the temperature at 65 or colder, it’s always got to be dim in the room. I don’t want to push him not sure what to think at this point they just continue to say he is doing great and he will be ready to go back home soon. I don’t know where to get answers but I’m ready to pull my hair out I see my therapist 2 times a week now and it’s just me and him here!

My husband was shot in the head at point/blank range. It sounds very similar to what you are describing with injuries to your boyfriends jaw & other head injuries. My husband went through many surgeries, including plastic surgery & jaw reconstruction. That was in 2015, I was his caretaker. They all celebrated his recovery without telling us anything about TBI or mental health aftercare.
Now, we are divorcing. He says that he doesn’t need a mother or a nurse to take care of him. He has “needs that aren’t being met”, I’m to blame. And, I feel that I’ve been lashed out on through the experience, my counselor says that it’s probably because people lash out on those they are closest too & are most comfortable with. I’m so sad that after all the trauma that I went through, that our relationship & marriage of 17 years is over.
I don’t want to scare you away from taking care of your boyfriend, if that’s what you want to do. His injuries may result in different outcomes than my husband. But, educate yourself on TBI & the long-term effects.
I was listening to an amazing woman on NPR today that is a neuroscientist, did her work on military TBI’s (which I think are probably similar to people experiencing GSW’s), and her husband was in the military & suffered an injury that resulted in TBI. They divorced in 2015 & he committed suicide in 2019. He knew that he had TBI & of all of his wife’s research & this happened. There’s apparently scaring that happens in the brain that the brain cannot repair. This was a very sad story for me to hear, as I feel that my husband is pushing me away. He’s had a 2nd chance at life & I hope that he does live it out to its fullest! I truly hope that the TBI does not prevent him from doing so. It’s sad that it’s preventing him from wanting to keep his marriage.
Suicide is a common “side-effect” from TBI’s, the woman on NPR was saying. I hope that this is not the case for my husband! I hope that your boyfriend’s suicide attempt & recovery will remind him to live.
One other than I wanted to mention is that we did not know if my husband would recover to the point of being able to work. He’s been working harder than he ever has in his life. He does admit he has short term memory loss & difficulty remembering things he used to know without even trying. So, it’s a process & the changes in sensitivity to light & temperature may not persist, nor may the need for constant assistance. Just be ready for things to change, and the changes & future are unpredictable for all of us. This is especially true for those with TBI & their loved ones. Be sure you’re willing to take that on going forward. Try to find some individual counseling or mental health help for yourself so that you don’t forget to take care of yourself!! I put myself 2nd, and didn’t realize it. It’s so good to help others & especially our loved ones-but remember that YOU are #1. No one will care for you like you will!!

My husband suffered frontal lobe damage in an accident in 1999. Has been on disability ever since. I can tell you that you can notice deficits and improvements for years after the initial injury. It will depend on what part of the brain was injured/affected. I will also tell you not to ignore your own needs. Caretaker burnout is a real phenomenon and you will become very resentful of your significant other if you do not take care of yourself, as well.

I am 43 married with 2 children. Since 2005 my husband has been learning to deal with me with a severe tbi from a near death car accident coming home from work one day. I feel like all of the help is given to you right after you get out of hospital with doctors and now I feel like my husband and I donot know where to turn for help now. I am able to walk and look normal but as I am aging I want to see how my brain is doing. If you have any suggestions for me I would greatly appreciate it.

Look into Carrick Institute trained doctors called Functional Neurologists for your area. There may be help and hope. I am looking into help for my husband who had a bad car accident in Jan 2019 and now regressing...Carrick Institute has centers in Colorado and Florida besides.

Your health will depend how long your comma was, I have TBI too with skull fracture and organic plastic placement instead. my accident was 33 years ago but i am still suffering from suicidal tendencies because of a life long depression

It's wonderful that you were able to rescue your boyfriend! Also, it's wonderful that you are in therapy. I would stay in therapy until you are feeling confident that you can handle whatever life seems to throw at you.

I was in a serious car accident in 1981 in my early 20s and was in a semi coma on a ventilator for 6 weeks. I won't go into detail, but I nearly died and stated in intensive care for 5 weeks and had to have emergency brain surgery.

Amazingly, I survived. In 1 year my body looked healed, but it took me much longer, more than 20 years, to recover mentally, and I'm still recovering 39 years later.

I have had to deal with neurological deficits, including short term memory loss, difficulty managing emotions, anger, etc. But with patience and support, we can heal.

I eventually completed college and found my way into a career that works for me. Fortunately, I am a self-employed professional and can spend a good part of the day quietly working on my own.

Be patient with your significant other, but be prepared that at some point you might want to move on with your life and end the relationship. It's great that you care for him and are there for him now, but you might eventually want to do something different. Don't feel guilty if you decide to make a significant change in the future. I'm not saying that you shouldn't be together. But you have choices and you should do what is best for you.

I hope it all works out for you both.

I had a moderate TBI due to a scooter accident. I don't remember the accident or the next 4 days. While I was told I never lost Consciousness I still don't remember the first five days and over the course of the next month I had 3-4 day periods of time which I don't recall. I had vision problems for six months and my sleep pattern is all screwed up. This happened in April of 2016. I still have sleeping issues and anger outbursts which scare me. I'm a 60 yo man who was never a people person but know that is even much worse. I try not to interact with people at all. It is a sad situation for sure. Best of luck to all involved.

Did your vision get better? My husband has had a TBI from a mc accident he was intebated for 9 days. It’s 2 months later and he’s not the same and can’t see out of left eye I need advice~ scares&desperate

He might need to see an ophtalmologist. They're doctors that specialize in vision retoration after injuries. I had my vision completely restored after 6 months.

I went through months of what is called ocular therapy. Many different tasks to strengthen the eye muscles

God bless you. I am reading this because I've had a TBI from a violent attack with an ax, survived a subdural hematoma and have a small plate in my forehead. My recovery has been amazing I guess, but five years later I have noticed it takes longer to sort my mind out after a deep sleep. My sister, a nurse, confirmed I could have bacteria/germs dormant in my brain that could become problems later on and I'm just wondering how that would present. So I feel your pain and admire you for sharing your personality changes. Again, God bless you and keep you.

I just remembered something that happened to me in the early part of 2011 I was beaten by two guys for hours they beat me only in the face and head I was bleeding from my mouth nose and ears I never lost consciousness but it went on for hours I did lose a lot of blood. They beat me with their fists and the butt of a shotgun. And now I have lost the sense of smell and I am having a lot of problems with memory walking and just falling apart I now use a wheelchair to move around because I fall all the time I cannot feel anything except my face in places I feel no pain whatsoever nothing. My doctors can’t figure out what is going on with me. I lose time and the only reason I am able to make this post is I just remembered this a few minutes ago and like most things these days I will forget about this by morning so I am posting this now.

My heart bleeds for u dude i know what your going through i watch my husband suffer the same way every day. Day by day he gets a little better so there is hope. May god bless u man

Your story is heart wrenching. I pray you can get all the help you need.

I appreciated reading about so many similar to me on this blog. I suffered a TBI as the result of a car accident in 1991. I went through comatose and years of therapy as many on here can relate. I have seizures, but they are controlled by medication. I have seen a neurologist consistently ever since 1991. Again as many on here can relate my ST memory is extremely bad. I have been able to hold a job, but will be going on disability soon (I have a good lawyer and I am prepared to endure two years of Obamacare until Medicare "kicks in"). My question is... yes I was hurt very badly, as mentioned I have memory problems, I have balance issues, seizures controlled with meds, I talk funny, but other than that I am pretty healthy. I exercise on a treadmill (I walk). I can support myself, and I can drive (I have a license, but it does require doctor approval annually). It has been almost 29 years since the car accident. Could I potentially live a long, good life through retirement? I feel healthy enough. I am nearing 50yo now, and I would appreciate hearing from anyone whom, with undoubted challenges, has still been able to live a long time.

Insurance through the Affordable Healthcare Act (Obamacare as you call it) has been a godsend for me. The cost has been extra affordable and the coverage is very good. Do be aware, though, that you have to have some income in order to qualify. I think it is $14,000 though I am not sure -- I'm also thinking that you can't work at all for two years while trying to get on disability. You might be in a rough spot -- ask your lawyer, for sure.

Hey Brandon my dad had a brain injury when he was 41 dr said in his 4o years of operating he had never seen an injury that bad. With a glasco score of 3 we were advised to take him off life support and not proceed with the crainotomy. That he had 3% chance of survival 97% he would either die or be in a vegetated state. We went against medical advise and though my dad has short term memory loss and never has been able to drive again. Im happy to tell u he just celebrated his 81st birthday and is in great health so healthy that he takes absolutely no medications except a sleeping pill and walks 3 miles a day. So absolutely u can have a long life. Life is only over when god calls u home. Take care Brandon

I had a severe horse accident in 2004 - I landed on my head.  It resulted in traumatic brain injury (TBI). Not severe like coma, brain swelling and obviously death, but to the extent I still have some long term effects. Some symptoms are much better, some I may have forever.  I also had a broken neck (C-2), broke 2 vertebrae, a crushed clavicle, broken ribs, punctured lung and my shoulder blade was broke in half. Surgeon compared it to someone going through a windshield crash at 70 MPH.
My bones healed.   But, it left me with 8 years of chronic debilitating vertigo(attacks/seizures) vomiting, couldn't walk, and balance issues.  I had constant ringing in my ears, insomnia, anxiety, depression, Migraines, abnormally sensitive emotions, uncomfortable in crowds, etc. So, I have had lots of rehab for my body, for balance, every test and experimental procedure done and of course, meds.   
I was able to work from home, but I I couldn't  drive for several years due to the constant attacks/seizures. My damage was more Nuero. I just make lots of notes for things I have to remember. I still have all the above symptoms, most are just not chronic like before and I have learned to manage them.
The thing I can't control is sobbing when there is a conflict. My issue is dealing with crowds, conflict, rejection, so its mainly emotions. If someone yells at me, I fall apart. Before, I was vivacious, outgoing, tough and confident. Now, I'm weak. Friends that do not know about the TBI, think I have a crazy thread. If there is a small conflict, I'm so emotionally distraught that it takes me several days to process it, what caused it, what I did wrong, etc. Then, I always accept the blame and apologize....Over and over. This is what makes them think I'm nuts. I can compare the emotions I feel to the devastation you feel when going through a bad divorce or death of a loved one.....but it just lasts several days and not months. Prayer helps. I do have Christian friends that are very supportive, but the ones that think you are nuts....really hurts. Hence, depression. Do you tell them about your TBI or just let them think you are nuts? Anyone else have problems with being overly emotional. Thank God my overly emotional is kindness and empathy. If it was aggression and anger, that would be so much worse. So I'm thankful, it is what it is.

I had a moderate TBI (and mutlipe facial fractures) in 2007 when I was kicked in the face by a horse and have similar emotional symptoms to you. Immediately after the accident I had classic frontal lobe injury symptoms including anger and having no ability to regulate the things I said, but this slowed down pretty quickly. For the years afterward like you I could not control the crying - in any heightened situation I sobbed and panicked including if I was challenged at work. People didn't take me seriously and thought I was irrational and overdramatic - even if they knew about the accident it was hard for them to understand that a brain injury can have lasting emotional issues and to be honest I didn't know that myself. I was quite an emotional person before the accident and so it wasn't easy to distinguish what was me and what was the injury. Like you, I was consumed by guilt about my reactions and I was very hard on myself and felt that I was a weak. For me it has improved over the years and I can now look back and see that the accident caused that behaviour and as such be a bit kinder to myself. I still have moments like you where what seems like a very small issue feels devastating to me especially if I am challenged by a person but they are less common now. I'm not sure if you have noticed any improvements in your symptoms and unfortunately I don't have any advice but it is sometimes comforting to know that others have a similar experience - I guess that's why we are all here in this comments thread!

My injury was not just one event as yours was. I’ve had 4 knockouts spread out over my lifetime, and I acquired some new complications to manage after each one. The most recent and most damaging was five years ago and it was just a fall while walking down a lighted pathway that resulted in an ambulance ride and 6 stitches. Then about a year ago I had an illness that made everything much much worse; although I’m not sure if it was from encephalitis or a neurotoxin. It is very hard to find a good neurologist in my part of the world. I had to relearn most things, even putting on eyeliner, counting, reading comprehension, how to cook and how to find my way around my home town. My short term memory is no longer converting to long term memory properly and I can no longer recall things I know whenever I want. I also have random blanks where all thought stops which is very inconvenient during a conversation. Ive been working hard (my doctor calls it creating new pathways) and now I’m even able to sort paperwork in my sons class room; although to be honest it is a challenge and I’m exhausted the next day. I keep doing things that are difficult for me because I find that if I keep doing a difficult thing for long enough, it eventually becomes not so difficult; then after a while longer it becomes easy. There are lots of tears during this process, but slowly I’m finding my new “normal”. I’m right there with you on the emotions and social interaction. Any complication, obstacle or decision making in my day causes an emotional break down that’s hard to pull back from and refocus. Some days are good and I seem ”normal”, some days are bad and I seem brain damaged. I’m finally learning to accept this fact and I have really learned who my true friends are that’s for sure! I surround myself with positive people who just love and support me even when I’m a crying mess for weeks. Ignore the ones who think you are nuts, that’s their problem, not yours. You have bigger problems to deal with, and no time for people who are negative. I choose to tell people I have a brain injury and everyone has been very very nice and understanding. I just tell people if I get confused and ask them to repeat or rephrase. If I go blank while talking I just tell them what happened and most people just restart the conversation without missing a beat. I find many people can relate because brain injury is actually a common problem, but few talk about it openly. Once I mention it, people tell me their story or the story of a loved one. Prayer helps, it’s the only way I’m able to get through some days. I try to let God guide me and to not stress over what I cannot control. I have become a fan of the bullet journal, it’s my memory and I never go anywhere with out it. Ill be praying for you and good luck on your brain journey!

i was hit by 4wd in 1981 7 yrs old unconscious for around 2 months head trauma left side above ear 27 stitches skull fracture intravenous drip incerted in gutter buy old school doc due to loss of blood he saved my life other injuries to body as well. multiple concussions since. now 45 i tick most of symptons on lists . aggression concerns me most im not violent but i get angry really fast (lose my s***) for no reason i know im doing wrong but i cant stop it its not fair on my loved ones I don't understand so how can they all they see is angry pat. but really im scared s***less. thank you

I suffered with anger issues for so long, I hated being so aggresive and having violent rage attacks for the simplist nonsense. What has helped me or rather saved me is the doctor diagnosed me with PTSD and ordered me SERDEP 100mg anti depressant tablet. Im a changed person now. I can have my wife call me insulting names and things, it slides off like water off a ducks back. Never before no ,no a time bomb would go off. I would first implode and then explode. The paw-paw would hit the fan and I would spend hours in regret and remorse trying to clean it all up. A bomb can land next to me now and Im as cool as a cucumber. It is so nice not having to go through all that drama over and over and now live calm and free from anger, rage and the aftermath.

Greetings. I have a boyfriend suffering from tbi and doctors estimated him to live till November. Will it be true? Can he survive? What can I do for him?

I have tbi. The thing I need the most is patience from people closest to me. I found an excellent doctor. I am Christian and that's the key to my life. I know you & your boyfriend will need time to adjust. I pray the best for you. Take time for yourself ,

I'm not a doctor so I can't answer your question from the perspective of any medical professional. However, 5 years ago I fell 40 feet down onto a rocky beach and the first responders assumed I was undoubtedly going to be dead within a few hours; I wasn't. Then the doctors stated i'd never come out of the coma I was in; I did. Then they stated I would never be able to speak; the next day my mom handed me the phone used to call down to the cafeteria so I could convice one of the people down there to bring me 4 pieces of bacon instead of 3. They stated i'd never be able to walk let alone compete in the endurance events I had previously, in 2 years time I ran my first 50 mile ultra. The staff at RIC(located in Ilinois, it's where I was transferred after the more intensive and stabilizing rehabilition I attended in California was over) told me that I shouldn't jump back into schooling because "I was incapable of recognizing the difference betwen an A and an F" that summer I attended the local college and got an A in both the classes I was in(one of those classes only had 2 people receive A's in the course, myself and another individual).

I'm not trying to offer any false hope but I can state this: The resiliency of the human body and mind when paired with the relentless will to live is something that both shocks, inspires, and disproves members of the medical community every day all across the world.

We have a grandson that had a tbi (age 12) from getting hit and drug under a car. they did not expect him to survive. But he did and we have Madonna rehab to thank for this and a lot of prayer. I am concerned now that our grandson is playing soccer and has no helmet. As someone who has worked in a hospital for 20 plus years this literally makes me sick to my stomach. I am a firm believer in prayer-it is one of the best forms of medicine.

I suffered from a TBI in the beginning of 2006 due to a car crash that killed my friend and put me in a coma for 2 months. i'm blessed to even talk about it today,(13 years later) because the doctors at North-Western Hospital thought I would die overnight or be a vegetable. I'm here to say the devil is a lie. I'm working a great job at Costco as of now(7 years) and was working at Schwab Rehabilitation Hospital(5 years) after I completed rehab. I have a wonderful woman who accepts me for me and tries to smooth out the few flaws i may have. I have plans to make her my wife and live happy ever after a T.B.I. I'm sharing my story because maybe it will give someone else with or without a T.B.I. motivation to keep pushing in life.
Learn From Yesterday
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Wow, it's great that you are doing well but made you survive this ordeal it's one of the hardest things I had to see me & my family go through my mother had an accident in 2018 has tbi but was confusing is one day she's strong and happy but other days depressed or angry. Are this symptoms for life.

Thank you ! My father had a accident where he fell 20 ft and thanks to god he is still alive. They also said to us he would'nt live . He seems mentally good , but I'm worried about whether he'll fully recover or have problems living on us own . The unknown is scary ..
You gave me hope .

Hullo, My daughter who is now 34yrs old had a horrific car accident when she was 16yrs old. Skull laceration and her whole face was squashed, could not see her eyes. It was a terrifiying time as the ambulance people did not think that she would survive, her whole scalp was torn off. She also broke a vertebrae in her back. Since this accident she suffers from schyzophrenia, headaches, hallucinations etc. I did not realise that this could of been brought on by her accident. I need some advice and help as she cannot keep a job for long, cannot sustain or have any relationships and is generally struggling with everyday living. I need some help and guidance please

If I could get any ideas on where to get my loved one help it would be greatly appreciated. He is 47 and in a tailspin on his way to hurting himself or someone else or both. He was in the many and intoxicated and jumped or fell from a 3rd story balcony and broke his face and his femur. He was in a coma for at least over a month. Once he was released from the hospital he was given an honorable discharge from the navy with no help or benefits from that point on. He was not mentally stable enough to realize this for at least a couple of years down the road. This all happened in 1995. He has such behavioral problems stemming from the TBI no one wants to give him the time of day let alone help him. I see it up close later as he realizes how bad his behavior becomes it makes him so depressed and antisocial. Through my own struggles, I have had a therapist and u have repeatedly asked about special counselors who may be trained to deal with this problem. So far no help. So his TBI long teem effect is whats keeping him from getting helo with his long term TBI effect. Ita getting worse by the minute. He has a warped perception of everyone and everything. Are there any places that could maybe help him out????? He has a huge heart but a lot of times he doesn't know that. Thanks to everyone for sharing their stories and struggles.

I am wondering if anti deppressants might help. I mean with th help of the doctor checking on his progress untill they get the dose just right. I do wood craft from home and make things for people who take orders . It gives me a little income and keeps me occupied. I am happier doing things to help others and being rewarded in more ways than one.

He needs to seek help from a Neuropsychologist. There are also Brain Injury Associations in each state.

Last week I was assaulted by a perfect stranger at a busy intersection. He first struck me on the temple with what I percieved to be a heavy handled walking stick. It peened me directly on the top of my left temple hard. A small indentation smaller then a quarter. Aside from the kneeing to the upper abdominal are, kicking at my knees , hit to the chin and assorted other defensive wounds I survived. I was stunned at the first hit to the head, have amnesia of the actual incident. Did not loose pass out but was still standing in the same place for 10 min without moving or being communicative. When I came to reality I was in the still in the intersection, moved off to the side feeling no pain till 8 hrs later. I did not go to ER. I did see my family Dr 3 days later as my judgement became increasingly unstable, with nausea and dizziness. He wants me to have a CT scan in two days as I am in a rural area. I am not sure about doing that as this is after the fact by a week. I am not thrilled about being radiated 500 times more then the usual xRay to my head and eye area as those scans do not detect concussion. I am 63 years old , own my own small business and this incident is financially burdening me as I cannot focus to do my job. 3 hrs is the most I can tolerate. From what I read here I need to learn to adjust to the side affects of the assault.

At age 8, I absorbed a traumatic brain injury when a football-size rock hit the top of my head. The whole incident was swept under the rug by my family. Needless to say, I have been creating my own rehab and winging it for about 48 years. Twenty-plus years of military life did wonders and was very instrumental in the direction I am now on. I am currently working on a book that details my experiences and findings. A number of TBI aspects are controversial and grossly misunderstood by societies all over. This book, projected to be a fifty-year chronicle, will be therapeutically beneficial to myself and others, God willing.

My cousin was hit by a rock in the head when she was five and subsequently needed to be operated on to remove rock fragments from her brain. Her mother was a mental patient her entire life, her step-father verbally and sometimes physically abusive. She swears she thinks her brain was injured. She has had a terrible life, the details of which I will not go into here (not in the mood to write a book). But the recurring theme I've noticed throughout her life is a total lack of common sense. Can a brain injury do this but have no other obvious effects? What do you think? She's quite intelligence otherwise. Thank you for whatever help you can give.

Grossly misunderstood! The more I learn, the more I'm realizing how interconnected all of these difficulties are that my loved one with a tbi has been having. We have been pushed in several different directions, and no providers we've worked with seems to understand the intricacies of tbi and how it impacts a person's mind/body. I'm sorry you had to experience that alone. Even after just a year of being with my partner and seeing people minimize and misunderstand his experience has been so frustrating. You must be a highly resilient individual to overcome all of this on your own. Thank God for the military and how it has helped you. I wish you all the best. I'm sure your book help many others. xx

In 2002 I suffered a TBI due to an car accident (Frontal Lobe Damage). I had to be helicopter flown to the ER. I don't even remeber the accident I just go by the accounts of the other passengers (my family members). Anyways after the accident all I remember is waking up in the hospital a few days later smh. I thought i was in a dream/nightmare so I tried to escape the hospital but my pelvis was broken so i just fell to the floor lol. Fast foward I went through rehab and all of that and recovered fine supposedly. I hadn't been to a doctor since like 2003 and it is now 2019 and i feel like shit!! I can't even work due to the headaches, social anxiety, I even fear coming outside sometimes. You're probably wondering, "well why haven't he been to a doctor?..". Its because I truly fear hospital scenarios, doctors offices and the likes. Also I have no health insurance so what am I to do? I applied for disability but due to lack of evidence they denied me of course. I havent worked since Oct 2018 and I'm feeling like I am about to give up on life. I love working I'm only 30 yrs old, but it seems impossible with the anxiety, depression, memory loss blah blah blah. May The Most High bless us all!! We are troopers SURVIVORS!!

Hi~ and I’m sorry that you are going through this ~ I have a son who had longboard accident almost 3 years ago with frontal right lobe damage.... due to complications over all he had 4 open brain surgery and with VP shunt in his brain permanently
You need number one to go to social worker in your area and explain about your condition and apply for Medicaid which will allow you to go seek medical care for free and seek help for food if you need
They are help out there you would just need to do research and most definitely reach out to Brain Injury association in your area .... people with all different head injuries are there and they have all the resources for you
I am his mom and caregiver he is doing great trying to work into DVR ...
A program that helps people to place a job or train for free
God is good he has plan for you keep seeking you will find help

Don't give up, keep pushing forward, I am actually dealing with my fiance that is in rehab currently and has been for the last 4 weeks, spent 3 weeks in icu due to a motorcycle accident, he is refusing therapy but the hardest part is not being able to be there with him. He has frontal lobe damage and CM thinks he may not possibly ever be able to make his own decisions, I'd like some feed back and to know what is possible.

Don't give up. My son was in a motorcycle accident july 12, 2019. He also has frontal lobe damage. You gotta get him to understand that he needs the rehabilitation. My son will need intense therapy and we are currently working to get guardianship of him. It is so sad. But I'll take him any day like this rather than 6ft under. Prayers to you

My husband had a TBI several years ago. Now he is experiencing many problems that he has not be having. One thing I have noticed is that pain meds, certain supplements such as weight loss and bodybuilding, and energy drink really affect him adversely. It's so bad that I can stand living with him. I have tried in vain to find any studies done of this. I have had to fight with him over and over to get him to not take these things. He will be turning 70 soon. Any comments appreciated.

Debbie, I totally understand where you are coming from. We had this problem as well. Started with a 2 yr Vicodin prescription, convinced him that it was NOT helping, he's been experimenting with "natural" treatments ever since. Everything seems to make things worse, when I call for a total detox because it is unbearable, I am told that I"don't understand". I have nothing but sympathy for all those living with TBI, and I try to be supportive, but it is so hard on those of us who are living with someone who is living with TBI.

Hi im currently 27 y/o male sustained a TBI at the age of 18 june of 2010 and now years after im having memory problems severe dificulty with trying to get my life in order manage money bank account ect. I do admit im also a late bloomer in life i realize that its not to late at my age to start my life and work a job but the problem is i feel mentally limited i sound and act normal disability is saying they dont see a problem( calling me a liar pretty much) but my neuropsych said im not and i know it my memory has gone to crap my emotions are all out of whack and my ability to manage things like a normal person has gone to crap. i woke up in august of 2016 cant remember the exact day but thats when everything went all downhill for me short term memory is there its not what it use to be my long term memory seems like its messed up latley im so down about not being able to be on my own i feel as if maybe i need to be dependant on someone to help me manage my life i cant take this please someone tell me what do i do. i left out what happened sorry i had jumped off the back of a car at like 35 mph and fractured my skull my brain hit the side of my skull i ruptured a main arterie on my brain and had a subdural hematomo shifted my brain lining of my brain was swollen had little to no side effects at all after the accident thank God but now i have these issues years later? i just want an accurate diagnosis i strongly believe there is something more to this than just memory loss. my neuropsych said its complications from the brain injury i got i dont know what to do my parents aren't in good health i dont have long untill maybe they perish i have to get it together the thing is i feel so limited in my abiltys now to the point where its interfearing with my everyday life what do i do. Sorry if this is to long.

Hi! When I was 5 years old I was accidentally struck in the head with a garden hoe. I was bleeding really bad and was admitted for 3 days. I received multiple stitches and now (23) I don't feel I have had any noticeable problems maybe because I have lived with them my whole life? I do have light sensitivity and have to put all of my electronics on night shift mode as well as wearing sunglasses on a cloudy day. I think I got roughly 30 stitches but I don't know if this would be considered a moderate TBI or severe? I also ran face first into a corner of a wall and passed out resulting in 7 stitches. Thank you!!

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