"Brain Injury Is ..." Brain Injury Defined By People Who Are Living With It

Brain Injury Is...

Brain Injury defined by the people who are living with it ...

BrainLine asked our online community to share their personal definitions of traumatic brain injury, and the list below captures some of the many responses so generously provided by people with TBI.

Every individual’s experience with traumatic brain injury is unique, but there are many common symptoms and emotions. Anger, fear, sadness, and anxiety may be accompanied by difficulties with memory, pain, and the challenges of maintaining relationships.

We encourage you to add your own definitions in the comments section below, and to join the BrainLine community on Facebook, Twitter, YouTube, and Pinterest.

A puzzle … all the pieces are there but in the wrong order.

When the cursor disappears from your mental computer screen.

Brain fog, confusion, difficulty learning new things, being able to be “high-functioning” but being very slow at it.

An invisible thief.

Devastating. Exhausting. Widely misunderstood.

Scary. I look the same but I feel like someone else.

MIA or AWOL … Missing in Action or Away Without Leaving!

An invisible memory-taker, mood-changer, life-changer!

Like being under a constant waterfall and I’m just trying to catch my breath and not drown!

Thinking with speed bumps.

Like an earthquake in my brain that knocked down bridges and damaged highways and knocked out some —but not all —lines of communication. Some of these things get rebuilt more quickly than others, and some are easily re-damaged.

Like having everything in your life suspended in Jell-O, and just when you reach out for something, the Jell-O gets blended.

A family affair … when a family member has one, it affects everyone.

A constant struggle for the rest of your life … you know how you used to be and you want your life back … but it won't happen … it's like living in thick fog.

Scrambled egg between my ears.

The absolute hardest thing that you can imagine going through!! Unbelievably frustrating and isolating.

Learning to live in a brain that sometimes feels like it belongs to a stranger.

Forgetfulness and a total personality change.

Scary. Frustrating. Annoying. Funny at times … sometimes I feel rather than get frustrated about one of my deficits. It’s better just to laugh about it.

Limiting, difficult, having to “relearn” things you thought you already knew.

Unpredictable and extremely misunderstood.

Like having the flu all day, every day … for the rest of your life.

Trying to catch clouds in a windstorm.

Posted on BrainLine August 19, 2013.

Comments (439)

Please remember, we are not able to give medical or legal advice. If you have medical concerns, please consult your doctor. All posted comments are the views and opinions of the poster only.

They say you're lucky, but it never disappears.
I took a picture of the ending of a day lily. There are no color, no life. I wrote on it - "Memory of myself". molly
Walking up the down escalator of life
My son seems to be on a path winding through a dense woods and every few steps he veers off the path and wanders about until finding the path again.
more understanding ,after seeing my MRI 10 years after TBI-how the brain rework around dead frontal lobes spots ,still so wonderous
I'm getting better! It took me a year to be able to read a book. But I can do it now.
It seems like I've been asleep and woke up and everything was different. Not because I remember the way things were pre-TBI, but because I don't remember.
It is a feeling like you brain is stuck in quick sand. All I can say is don't give up. It's going to be hard but don't give up. Get into a TBI support group or if there isn't one start your own. Exercise, read, meditate, do yoga, hike, eat healthy, all of these are wonderful for your brain.
TBI, esp. Mtbi is a lifetime of explanations to strangers, begging for mercy (lower the music, talk slower, etc.) and being treated like a partial person if can't manage allergy reactions to diabetes medications, amputation, heart attack, kidney failure. It is the syrup on the plate that rolls off the pancakes of life onto clean tablecloths and your best clothing. It gets old after a while to keep on explaining that I am a tbi survivor, therefore this and therefore that. I'm tired. And I sure didn't deserve it.
I liked the analogy of a TBI being like a cage. When I was in my coma I had a very long dream of being tied to the mast of a ship. No one could see or hear me so they kept moving. I feel like this is a wonderful representation of what had happened in the years following my accident... ~a lonely soul
My head hurts and brain is collapsing from reading all these comments. So I stop for awhile and start again. Every day is like this.
Living with a brain that makes you become a NEW you unwanted
All that used to be familiar. Now become strange and broken in pieces, that just will not fit togeather. Phil
Depressed, angry,and I do not recall the doctor mentioning this huge sunken part of my head/face. Droopy eye.......an emotional roller coaster. I want off!
What was the question?
part time intelligence, part time chaos and confusion. Hard for others to see a condition that has no apparent visual tells.
a constant challenge of physical pain, stamina, emotions and faith.
the continual struggle with everything.
an Assassin. It claimed the life of my wife, but it was a long slow and often painful sentence. 18 years of slow deterioration, although the last 3 months was rapid.
Being alone in a crowded room. -Brian
I feel like a freshly shaken Etch A Sketch
Like thick cataracts and super loud noise all the time. Been living with it most of my life. Sometimes death looks appealing
Extremely frustrating at times especially trying to process to much at one time. You eventually go dim yet u think u be able to do it all. Then the numbness sets in and the processing ceases and it's not that u don't care u just burnout and fade. Kevin
I've always described my injury like I was reading a novel. I was enjoying the story, then one day I couldn't remember anything I read, so I had to start over. When I opened the book to the beginning to start over all the E's T's R's O's and N's were missing from the words. I could still read the story but it didn't flow as easily anymore. I got tired, and frustrated quickly trying to read it. It wasn't as enjoyable anymore. Nancy Garland - Ontario, Canada
at times severely depressing when you tell people you have a TBI and they don't believe you ...when trying to make decisions the brain becomes overloaded to the point of avoidance ...when support is needed the most there is no one there ...
when your sporty car comes to an end, just like most of your social aspects in life, you were proud of, come to an end too...
...being alone!!!
the lights are on,but nobody\'s home. Getting overwhelmed looking at a menu and not being able to make a choice. never having a drink, but drunk all the time.
Being very easily overwhelmed by too much of anything around you.too much noise, conversation, images, wind, rain or sunlight. Constantly wanting to retreat to a dark cave with a blanket and pillow.
http://p1.bikepics.com/2013/05/13/bikepics-2554992-full.jpg Living and trying to get out every day from the thinest glass cage,all dressed up in the heaviest steel ever...
I think I remember who I am, but yet I am different now.
being locked in a padded cell against your will, knowing what once was on the outside and trying to get back there, yet no amount of screaming or punching the walls is going to get you back, understood and accepted
Like having Alzheimer's in reverse.

I know right.

the dots never connecting
Inexplicable to the world....Kerry
I have said this many times:Having a brain injury is like dropping a box of unmarked pieces of a puzzle ..then picking it up & having NO Idea on How, What, When and Why ..to even start placing them together to make any kind of sense out of it.Often it is not the trauma that creates the most pain..it is the lack of support & understanding after.~WRH
frustrating, invisibly misunderstood, daily struggle for basic survival, easily flooded brain leading to "can't think"
Like having the starter line come off the lawnmower, and you keep trying to re-wind it to start it up again. Only the lawnmower is your brain.