"Brain Injury Is ..." Brain Injury Defined By People Who Are Living With It

Like taking one of those tests... If you could live anywhere where would it be a) country b) city c) by water ect... Or what, where first date it's now like taking it for two people not all answers are the same. The new me answers differently from the old me

Memory taker, life changer & makes you a "new you" that don't like.

All these comments have literally brought tears to my eyes! I was involved in a multiple roll-over (x6) MVA 6 years ago. The ER I was sent to is a level one trauma center. They CT'd my head and told me I had a concussion, and within an hour after the diagnosis, had chosen to release me as long as I had someone to "watch" me. My mother (also in healthcare) threw a fit, stating that we lived more than 2 hours from this facility, and more than 45 minutes from the closest acute care center. They chose to keep me as an 24 hr observation patient, so I stayed the night. The next day, as I was literally being wheeled out the door to go home, I was administered a neuro exam by the nurse, and failed miserably, yet was still discharged. For SIX MONTHS I had difficulty speaking, as if the word was on the tip of my tongue, then it was gone. I couldn't focus on anything, and my memory was a mess. Not to mention, debilitating headaches that would last for days. Not one time was I ever re-checked post discharge, or scanned again for the presence of a bleed, or active swelling. It was over a month before I could go back to work, and that was pushing it. I tried to explain to my Dr. I did not feel "ready", I felt "off". Like I was in a fog, just as you all describe. However, I was pushed to get back to work....IN HEALTH CARE. It has been 6 years, and some things have improved, but I still "word search", find it difficult to focus, or multitask. I am overwhelmed easily, and have mood swings, anger issues, and severe cluster and migraine headaches, some of which causes temporary hearing loss in the affected side, and facial numbness. Sometimes I have difficulty focusing when I read, I see words that either aren't there, or words entirely differently than what is printed on the page.  I get angry because I feel my injury was not taken seriously, then cry because I feel like no one understands. Reading these comments have made me feel like I am not alone, and my heart breaks for all you who have taken the time to share your experiences. Thank you for sharing.....

Regressing in age. She may be 19 but it feels like im taking care of a 10 year old. That has breakdowns and mood swings.

We are one of a kind, meaning, there is no one with the same brain and in turn no two brain injuries are the same.

Check out my website: www.chadfrancour.com to see my inspirational story after a TBI.

After reading all these comments of others experiences I realize i am so not alone.... after my injury it was like i was in a life that wasn't mine anymore.. I was there but i didn't feel like i belonged .. I moved away from this area and started over again... 20 yrs later i returned and that same feeling is starting all over again.. it's like i'm living in a parallel world that i don't belong in.

My brother was a lawyer. After the brain injury he can't talk. In the beginning he tried I convince the doctor to take the trak out. I began to give him water. Everything was slowly progressing then his facility close and he's in a place where the people don't care he regressed. .. I wish I was rich I'd be able to give him better treatment. It hurts....

Not all there, trapped , confused, brain won't answer blank,

Scaling a wall without suction.  You can see it, touch it, know what needs to be done but you just can't get it all together.  It's almost as if you're an unexplainable magician.  You start the trick with multiple objects and you concoct this awesome looking piece but neither you nor anyone else knows how you got to the finished product.

A LARGE PUZZLE where a number of those pieces are Broken, a few of the pieces are Disfigured and some of the pieces are Missing. I found the key (if possible) was to 'locate' all of the pieces, fix the damaged ones, adhere them together and then paint over all of them - to get some consistency. Everything has changed - but nothing has to remain where it is at .... God Willing.  The Environments in which we find ourselves is KEY.  Levels of recovery will vary, but pursue the best options available – if they can be figured out!.  Life has taken a drastic nosedive, but a Knowledgeable, Understanding and Supportive Environment will make life so much easier.  Survivors need to hang in there and move forward.

like losing yourself yet feeling like you can still be him/her if just ___. like trying to claw your way out of a deep ditch and always failing. Nothing's good enough anymore and my best doesn't meet other's standards and expectations so it leaves me feeling ashamed, frustrated, inadequate, and angry. The list goes on and on...

having thisTBI is like trying to see through frosted glass you can't tell what you see

I have tbi too and dealing with this problem is very devastating. I'm 27yrs old and I can't enjoy life, or understand why it happened to me, antisocial, can't be still or relax, my hair keeps falling out, my eyes are bad, I think about other stuff that I have no control over, and I put all of my trust in GOD. because when I was down, He picked me up

Stripped to the core. No identity ...Cut the cord. Restart

 It is what it is and there is no going back. Forward is the way to move and slow it will be and cumbersome it will be and repetitious it will be and realize, this isn't going to be easy...but think, life before TBI wasn't perfection, far from it...remember, perfection is imperfection...begin anew!!! Life has slowed down immeasurably...enjoy the new you...throw out the past memories...and realize you've been given a new life...from big to small...is the calibration that has descended to fulfill your destiny...you can change and be in tune with the semantics of life and love thyself or feel pity for thyself and what rotten luck has fallen upon thee...the former is the choice of a warrior, the latter is the choice of the disgruntled...who are YOU???

Art C.

My memory is less and it is very frustrating. Family and friends who want to understand and help which is great, do not really understand. Its confusing, huge amount of sadness and depression and anxiety. Headaches. The one thing I wish for is more information when you leave hospital on recovery and what to expect. I floundered around finding my own information which is very sad.

Like a prison w/ invisible walls, You lose everything. Family, friends, and yourself. because the past is taken and you are left to stand alone in the now, with no hope of a future. ATV accident August 16, 2009 lost all my memory from them back. Lost all my family due to disbelief . 

I thank God that my life was spared on the evening on 10/6. I was awake for days before they sedated me. I was not fully awake. I didn't really wake up fully until pockets of 3 weeks later. I was then moved to another Rehab hospital. I made dramatic improvements. I was a worn out professional when the accident took place. I was wearing thankfully a helmet. I broken my jaw and face. Slowly recovering. Moved to Extra Strength Tylenol 5 weeks. I am healing. Thank God for his intervention, healings, and regaining of ground. They said I would forget everything, but they were wrong. I am though slowly becoming myself. I am going through mood changes and low sugar bouts. Bones healed but still working on Scapula and range of motion. I am organizing myself. Cleaning up the pile up of paper, and getting back. Stress, rushing, and my ability to scratch my head and pat my stomach not back yet. I can see again and my eyes are stronger. So very grateful for this and for sweating. Sweat glands took a rest. So I am on the road to full recovery. I am smarter. I am a spiritual person, pray, read the Word, and know that we are never alone. I struggle with prejudice, ill-remarks, and lack of understanding of others. I need to get past this. They aren't perfect. Nor am I. Staying on the road to recovery. Testing for my brain power taking place next month. Totally intimidated, but know that I have to do this. I have multiple college degrees so you would think it would be easy for me, but it isn't. I will continue to pray, trust in my redeemer, and provision of healing. Stay strong. 

All of these wonderfully helpful and relieving  comments from people who live with TBI are comforting to me in that I now know why I have these "all over the place" feelings.  Forty eight years ago I was assaulted with a shovel handle that was broken over my head.  Back in 1966 when you went to the emergency room, they took an x-ray and if you didn't have a fractured skull, they sent you home.  Still in High School, I found I couldn't read anymore. Oh, I could read the words alright....but by the time I got to the fourth or fifth word it the sentence....I had already forgotten what the first  word was.  Sound familiar anyone?  My life has been tough.  My wife and children's life even tougher.  It eats at me.  Not until the NFL players started telling their stories of forgetfulness, rage, poor decision making, emotional  rollercoastering, continual depression, alcohol or drug use for relief, etc., did I finally make the connection.  I just knew there was something more going on than just being reckless in my behavior.  Although that's a great sign that you are in the loop.  Crying easily is another good one.  I could always cry at the tip of a hat!  I could cry from a tragic scenario to a 16 year old prodigy singing on American Idol.  I've always been kind of a mess upstairs.  More than a few broken toys in the attic! I could never figure out what it was. The bad feelings about myself from all of these years of this stuff is what really brings me to the bottom and ultimately to the brink. That's where the rage comes from.  Gives a whole new meaning to the word frustrated, am I right?  Suicide was always just a thought I would blow off because I probably leaned toward hope.  Hope that things would get better somehow change and everything would work out and be ok.  Besides, suicide was a thing that other people did, not me. Not until I was so painted in a corner that it made absolutely perfect sense to go that route and free the one's in my family the burden having me to deal with on a daily basis.  Thankfully the pills didn't work the way I planned but look what I did and how far it got.  How did it get like this...how did all of this happen.  I now know how and why it's the way it is.  It's the traumatic and or chronic brain injury that makes it what it is. Now the big question...Can anything be done to fix it?  It's always good to talk about it, I guess.  That seems to work, sometimes.  I really don't know the answer.  One thing I do know.  At least I do know now what it is.  I think we must all blaze our own trail to finding ways that works the best for us because we are all so unique with our symptoms from this.  It's very early in the game with recognition of all the effects from brain injury. I'm glad about the breakthrough with the NFL bringing to light the after effects from injury.  I'm hopeful the future generations of people to come with this infliction will benefit from the studies and science to make better the silent side effects from the trauma that we now, today, try to endure on a daily basis. You folks who are on this site because you are looking for answers, don't give up on yourself like I almost did.  Keep trying, keep hoping, do the leg work and try to continually find some help somewhere, anywhere.  If it doesn't work, try something else.  Just keep trying.  Who knows, we might get lucky and finally find some peace. We are all in this together as a small group of warriors. It gives me some kind of good feeling from not being alone in this, that gives me some kind of a power that I can finally be heard on how and why I feel the way I do. Good luck to you my comrades. My thoughts are with you. Share your valuable thoughts and feelings with the rest of us.  We can learn so much from each other about things we thought were only our misgivings. Jump in the boat and grab an oar.  We are all most certainly in this together.  Hang tough, smile when you sometimes don't even feel like it. Stick with the things that make you happy or give you peace. May the force be with you.  Rick, Jersey Shore.  P.S. It made me feel good to write this!  See, some things do work.

I ws in a car accident last year.  ONE of the things that hapened is that my head swelled up, giving me SEVERE headaches.  My forehead hurts, as well as the back of my head.  It feels like a band around my head.  A MRI was done, and an angio of my head and neck with and without dye.  I am told that I did not bleed; however, I still experience the same pressure. The headaches are relentless.This is an emotional rollercoster. My family does not understand. I have done some strange social things.  I'm not social. And I cry easily.

There is no need in writing things down to remember..because I forget to remember I wrote them down..it totally leaves my mind once its done :'(

I can only share with both victims and family members to be optimistic.  As TBI victims we are incredibly fragile but strong and resilient as well.  I suffered a severe TBI in August of 2012.  I tell others part of me died that day, but other parts of me flourished.  Family and survivors stay strong and stay determined.  Time helps victims like I but patience and understanding does as well!

A gift in disguise...I got a new fulfilling life, one that I embrace with love and acceptance.  It took me many years to see it this way.  

It,s harder than it looks, I,M on a Mountain right now, it,s a challenge, i,m going well, but its just the base of the Mountain, I climb higher,it gets more difficult, BUT I cannot get off this MOUNTAIN. ever...