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Life after brain injury remains a bit surreal. One might think that after fifteen years, I would have mastered the subtle nuances of this second life, but not even close. Occasionally, I am reminded that I live on a different plane than the neuro normals of the world but I've found ways to adapt and celebrate.
U.S. Navy Ensign Timothy Bleigh clearly recalls when the bomb went off. The Mine-Resistant Ambush Protected (MRAP) tactical vehicle flipped several times through the air before it landed partly on its roof. Bleigh shares his story and reflects on how his difficult recovery, which included a Traumatic Brain Injury (TBI), influenced how he approaches patient care.
Many years ago, I was introduced to a phrase that, before my brain injury, had not been part of my vocabulary: “compensatory strategies.” Why? Because prior to my injury, there had been nothing to compensate for. I was a fully formed and completely functional adult. Strategies were for board games.
Over the last couple of years, I’ve discovered mindfulness and have learned the value of living life “in the moment.” It’s a learned skill that has enabled me to find peace in my life. In what amounts to almost an irony, I no longer have much of my past to recall. The future never really comes. By circumstance, rather than any virtue, I am now forced to live in the moment.
Last month, I found out that I qualified for a Cornell University research study about brain injury.... I ruefully admit that I was nervous going into the testing. What brokenness in me would they find? I do pretty well these days, well enough that most people might not notice my challenges. But I still have an ego and can be more sensitive that I care to admit.
Like so many other brain injury survivors, I appear to be okay. And while many know of my past history, many others think I am well beyond my brain injury challenges and struggles. Why wouldn’t they?
Sir, I do not request an apology, explanation, or acknowledgment of my letter. As a lecturer at Texas A&M who advises future leaders, I wrote this to say that I mattered then, and I matter now. I did not deserve to be relegated to a second-class soldier.
Here’s a TBI mind-twist: Looking forward to a holiday that just passed. All but forgetting that it’s already in the rearview mirror. “How does that work?” You might be asking.
Every year since my 2010 traumatic brain injury, I’ve taken the time to reflect back on changes that have come to pass during the prior year. This past year was no different, although what my reflection showed was not what some may call progress. Progress is not always measured with tangible facts.
For close to nine years, I’ve been working on navigating life as a brain injury survivor. Thankfully, as time passes, my life as a brain injury survivor has gotten easier. Like any human being with a heartbeat, though, I have other health issues. These are health issues that need my attention and constant care. It is at the intersection of brain injury and some of my other health concerns where things can get very dicey.
Over the past decade, as smartphones, tablets, and all their millions of apps have emerged, opportunities to use these tools have mushroomed. Here are a few examples of the way mobile technologies have helped my clients with brain injury.
There are times when it feels like things cannot get any more surreal, and then they do. Such is the unexpected life that unfolds for so many of us after brain injury.
None of these challenges is blatant to the naked eye, but spend a bit of time with me, and you’ll learn soon enough that I’m not as normal as I look. Such is the nature of being invisibly disabled.
I am a very average “TBI Guy.” I have ongoing memory challenges. Word-finding challenges and aphasia are my constant companions. Add a splash of vertigo and half a cup of tinnitus and you have the perfect recipe for a pretty average post-concussive life. And amazingly, today I am okay with that...
"I usually know when I’m supposed to be somewhere, but the ‘now’ is ever changing." Blogger Mike Strand discusses his struggles with his TBI and memory.