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Creating boundaries can feel awkward or wrong when you first start setting them. You might even get pushback if you haven’t done it before. But don’t stop.
I recently heard the holiday trifecta of Thanksgiving, Christmas, and New Year's called the Bermuda Triangle of exhaustion. No one knows this better than brain injury survivors!
The holiday season is upon us and that means family time and reflection. But this year just feels off. I’m not sure if it’s the change of seasons, the upcoming holidays, our added pressures at work, or just the stress of everything going on in the world, but my husband, Russ, and I have both been stressed.
Well, it finally happened. After successfully dodging COVID for over three-and-a-half years, the virus finally struck our household. Since the outbreak, my biggest fear about COVID was having a preexisting brain injury — what might the virus do to further compromise my already challenged brain?
At the end of the day, I don’t really care why playing a role at the Renaissance Festival alleviates some of my husband, Russ's symptoms of PTSD, I am just glad it does!
Many years ago, I was introduced to a phrase that, before my brain injury, had not been part of my vocabulary: “compensatory strategies.” Why? Because prior to my injury, there had been nothing to compensate for. I was a fully formed and completely functional adult. Strategies were for board games.
Triggers are weird. A seemingly innocuous thing happens or there is a tiny deviation from routine and you or your loved one loses it. From the outside, it seems like a total overreaction but for the person who has been triggered, it is a fight-or-flight response.
My life will forever be marked by that day in November of 2010 when I sustained a brain injury after being hit by a car while riding my bicycle. It was a true "before and after" scenario. However, an unexpected consequence followed: my decades-long depression disappeared. I was as stunned as anyone …
A perfect example would be the day — about a year after my injury — when I decided to go out for a bike ride … in a snowstorm. My plan made perfect sense to me...
I feel ready to move through whatever comes next. After all, I really only need to worry about making today a well-lived day. Tomorrow is none of my business.
I need to be more open about who I am. All of me. I cannot be afraid. I won’t hide anymore. Now, I will be my true self. And I’m ready to stand with anyone else who feels the same.
Over the last couple of years, I’ve discovered mindfulness and have learned the value of living life “in the moment.” It’s a learned skill that has enabled me to find peace in my life. In what amounts to almost an irony, I no longer have much of my past to recall. The future never really comes. By circumstance, rather than any virtue, I am now forced to live in the moment.
This month has been a whirlwind of pain, triggers, and generally not great behavior from both Russ and myself. Our eldest daughter, Elizabeth Shade-Ware, died unexpectedly in her sleep. Suffice it to say, I am a wreck...
Living with a brain injury is, by far, the most complicated thing I have ever done. There have been great joys, stunning victories, and, somehow against all odds, I’ve carved out this amazing life. Sometimes, I just need to remind myself that just because I think something, doesn’t mean that it’s true.
Sometimes it feels like I am a single parent. That breaks my heart to say because my husband really is a fantastic parent as long as he’s not triggered or having a chronic pain flare-up.
Last month, I found out that I qualified for a Cornell University research study about brain injury.... I ruefully admit that I was nervous going into the testing. What brokenness in me would they find? I do pretty well these days, well enough that most people might not notice my challenges. But I still have an ego and can be more sensitive that I care to admit.
Mind-full can be messy, sad, overwhelming, unproductive … and definitely not healthy. Mindful, on the other hand, is calming and satisfying; it can bring me back to my best self.
If there’s one thing that is all but guaranteed after a brain injury, it’s uncertainty. So much of what we face as survivors is unique to the brain injury community. Brain injury is often — but not always — invisible to others and no two brain injuries are alike. The challenges I face are often different from those other survivors face. Often invisible, and always unpredictable, brain injury is a unique confluence of challenges.
Early on after my 2010 brain injury, "old-timers" in the brain injury survivor community told me that “it” would get better, but they never really told me what “it” was.