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Caregiving is hard. The lack of support for adults with brain injury (in our area) is ridiculous. I find myself wanting to scream when people ask, "Don't they have services for that?”
Some may question the morality of lying. As I moved deeper into my new role as a caregiver, I reached out to learn as much as I could about caring for someone with mom’s type of brain injury. My mistruths are categorized as Therapeutic Lying.
It’s been six and a half years since I began this brain injury journey. Or, to compute, 2,372 days, 56,928 hours, 3,415,680 minutes. As I think back, I take pride in each of those days (the bad ones included), remembering too vividly a time in which I was convinced we couldn’t make it at all.
Zac Easter knew what was happening to him. So he decided to write it all down—to let the world know what football had done to him, what he’d done to his body and his brain for the game he loved. And then he shot himself.
This book packs a lot of wisdom. You’ll learn about aphasia; you’ll understand ambiguous loss; you’ll follow Abby down dark hallways and into sunlit rooms and learn what it means to own a life built on raw truth.
The emotional equivalent of being caught in the undertow came earlier this week. I was scrolling through old photos, reconnecting to moments captured in time. I found my mind trapped in the tumultuous waters of ambiguous grief, fighting my way to the surface.
CTE in the military is complex but service member donations represent a very small percentage of those given to the brain banks. Dr. Ann McKee believes that more donations for study means more knowledge that can help others with military experience.
Dr. Ann McKee says that even though chronic traumatic encephalopathy (CTE) is triggered by trauma, at some point it becomes trauma-independent. While it takes time for CTE to become full-blown, even less severe cases can have significant emotional and behavioral impacts.
“I was blown away.” Dr. Ann McKee recounts the first time she saw signs of chronic traumatic encephalopathy (CTE) in boxer Paul Pender, who was thought to have had Alzheimer’s disease.
You don’t see it. There’s no blood, no pain. Even though players may not be immediately affected, we’re learning that those thousands of hits provoke neurogenerative disease. Dr. Ann McKee explains.
Dr. Ann McKee grew up a football fan and never considered the repetitive hits sustained by football players would lead to brain abnormalities identical to what she found in the brain of boxers.
Punch drunk, dementia pugilistica, post-traumatic encephalopathy, or chronic traumatic encephalopathy — same criteria of diagnosis, the same patterns of change seen in the brain. Dr. Ann McKee explains.
It’s time to put a label on one of my biggest fears as a brain injury survivor: Backsliding. Over the last couple of months, I began to fear that this was happening to me until another survivor shared with me that lack of sleep exacerbated brain injury symptoms. And in two ticks of a clock, the lightbulb went on over my head.
Genes, sleep, an active mind, and when a person starts playing football may all play a factor in the development of CTE. Dr. Ann McKee explains what researchers have learned, and what's on the horizon.
Dr. Ann McKee wants to raise awareness about brain donation. The more brains that researchers have to study, the more information they can gather to help people in the future.
I heard a whooshing sound in my ears and realized it was coming from inside my head rather than externally. The wheels of the cars around me were turning in sync with the sound in my head.
I don’t often write about my teen kids. But in this case, I want to share something. I need to, because coming full circle means that I get to let go a little of this job of informing our kids what happened to their wonderful father.