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In the midst of crisis, between panic and hysteria, thoughts creep in. How did this happen? What could I have done? These questions form the beginning of a long line of self-recriminating thoughts that haunt many caregivers...
There are a variety of immediate effects on the brain, including various types of bleeding and tearing forces that injure nerve fibers and cause inflammation, metabolic changes, and brain swelling.
I found out the hard way that when faced with trauma of this magnitude, your body has many protective layers; and as the layers are slowly peeled back, you find out exactly what resiliency is.
Brain injury has been a great teacher in my life. This much I know to be true, but as my family prepares for our third Alive Day, I’ve begun to embark on my annual reflection of the specific lessons I’ve gathered throughout our experience with brain injury.
It’s hard to feel safe and trust happiness after your father is nearly killed and radically changed. After your mother nearly perishes from grief. But Bianca changed the air in the room.
Right before my weekly TBI yoga class, a man was telling me how he wanted to do yoga, to give it a try, but for such-and-such reasons he was afraid he couldn’t do it...
In the three years since TC’s attack, I have learned a great deal, and chiefly, I have learned what any good writer knows to be true: in life, and in writing, it is essential to revise.
I've spent chunks of my life living in the past. Being really sad and angry about my dad's brain injury and all the changes it brought to my family and our lives, as we knew them. My mind was stuck in the way it was. Yoga brings you to the present.
As a caregiver, wife, and mother, I have found great solace in sharing my story. I have also learned a great deal from reading first-hand experiences of people who have survived a TBI. I recently read two new books about brain injury that I'd like to share. Both stories add new insight into the way we experience traumatic brain injury in our own lives.
Caregiving is a strange, beautiful, complex thing, but it's even more complicated when you're in the position of providing care for your partner or spouse.
What does the word recovery mean after a TBI? Does it indicate the full return of your abilities, talents, and skills? Or is it much more? Could recovery mean a return to life—a life that feels whole and full of possibility again?
Children have a unique experience of PTSD and TBI -- they're young, they may not fully understand what is going on, and they are usually are not provided the information they need. Dr. Stephen Cozza discusses the different ways a parent's brain injury and/or PTSD may affect children.
Gretchen Rubin, once wrote, “The days are long, but the years are short.” She was writing about parenting and not traumatic brain injury, but as I reflect on this poignant quote, I realize that as a caregiver, even those seemingly endless days have passed with such speed that I can hardly account for the last three years of my life.
The more we try to look backward and wish for what was, the harder it becomes to move forward and away from the incident or accident that caused all the grief in the first place. Yoga is not a cure, but it’s a catalyst.
It’s well documented that stress affects our ability to concentrate, remember, and sleep, and I don’t think there are many stresses equal to the days and weeks immediately following a severe traumatic brain injury...
It’s easy for us to think people could do better after they look better, to want to say, “Please try harder!” But when we see all the needs that must be fulfilled before a person moves from one level to the next, the picture becomes clearer.
Sometimes I wonder if I’m underestimating Jack’s awareness of the situation. Perhaps it’s not so much that he doesn’t notice, as he doesn’t let it bother him.
I know there will always be days when I cry my face off because of what happened to my dad, but I have learned that the best remedy for the unfairness is meeting the daughters and sons and wives and brothers and friends of others who have been where I have been.