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To be a caregiver at home for someone who is severely injured is to surrender. You surrender your time, put your ambitions on hold, and surrender many of the simple pleasures. You also surrender your peace of mind, your good night’s sleep, and routine. But there are ways to make life a little easier and more enjoyable...
My son’s brain injury has taught me over and over again that I often have little control over life’s circumstances. But that does not mean I throw caution to the wind. Here are a few things we've learned regarding legalities and Taylor's ongoing care and future.
The path of brain injury is a lonely one, not only for the survivor but also for the caregiver. Often family and friends, who gratefully were available during the initial event, return to their lives. It’s expected. return to their lives. It’s expected. But, their absence and support often leave the survivor and the caregiver with feelings of loneliness and abandonment.
In 2010, I found myself in the sandwich generation between two people I adored, my 70-year-old father and my 12-year-old daughter, both of whom suffered serious insults to the brain.
If I am busy with every little thing, then I don’t have time to be sad, angry, feel hopeless or miss our lives and the son I knew before. I can diminish the magnitude of Taylor’s injury. It just won’t hurt as much, until it hurts like hell and can’t be ignored. So here is what I learned in my own version of spin class.
What do readers in the brain injury world want? I can only guess that like me; they want it all: practical solutions, resources & references, a place to vent, a place to grieve, a place to interact with people who "get it."
What do you need? You, meaning you reading this blog. Because I promise that there is a way that a yoga practice can give you part of what you need—if not all of it. And I rarely make promises. Ask me. Test me. Try me.
During Steven’s many years of rehabilitation, when tanks ran empty, when exhaustion hit so hard that not even a double shot of espresso coupled with dark chocolate could revive me, silver linings showed up in the form of everyday people...
An accident happens. A brain injury rocks your world, and not in a good way. Fear rises like a tide, and soon enough, a tidal wave of anxiety. Janna offers a simple yoga practice to calm the "what ifs."
Here comes another caregiver confession: sometimes I feel guilty. No matter how hard my day has been, no matter how much my body hurts, or how overwhelmed my head feels, I know it will never compare to the challenges my husband faces in navigating this complicated world as a TBI survivor.
How do you love the man who can’t express emotions the way he did when you first fell in love with him? How long do you continue to gaze into eyes that don’t see your heart? How many times do you say, “I love you” to someone who doesn’t respond?
Without yoga, I would have let go of hope or a future. Without yoga, I would have stayed sad and angry forever. Of all the tools in your box of living with brain injury, I want yoga to be one of them. I want to ask what it is you need?
When her husband was first home from the hospital, Abby Maslin realized she would have to teach him who he was before he was hurt -- from someone who liked to shower daily to reading the paper on Sunday mornings.
I cannot remember the first time I recognized grief for what it was following our son’s traumatic brain injury, but it has come to feel like a familiar acquaintance. These are some coping strategies that have helped me get through to the other side of my own grief.
First word, first step…you remember! Our plan included helping our sons through their “normal” firsts: high school, college, career, marriage, and children. Nowhere on our “normal” firsts list was finding ourselves sitting by our son’s hospital bed praying that he would live.
I can’t believe that I’m coming up on seven years out. As time continues to pass, my perspectives change, and my insight deepens. Sometimes I forget that those close to me still hurt. In the reflection of their inner pain, I see my injury for what it really is.
Elise Rosenhaupt discovers that her life before her son Martin’s devastating traumatic brain injury has prepared her for helping him through his rehabilitation and recovery.
When to stay? When to go? When to get professional help? These are some of the hardest questions we will face in our post-TBI lives. These are gut-wrenching decisions to make. I know that not only from my own experience, but from the network of caregivers I communicate with everyday.
Like those of us who have been at this business of life after brain injury for a long time, I am aware of the stages that we go through. I know that I am experiencing "recurring grief." During these times it can be very hard to “find the good and praise it..."
I’ve been fortunate to have a few personal encounters with people who are rocking the boat of brain injury awareness, and from them, I’ve gathered some valuable pearls of wisdom. Here they are...