Why People with TBI Need a "Resource Facilitator"

People with TBI who may need life-long care need someone to network and advocate for them. This is not always an easy job, and sometimes family members are not cut out for it.

See more videos with Dr. Malec.

I think the best strategy for helping people get back to the community is helping them develop a network of support. I think people are calling it resource facilitation these days, but it's really developing that network of supported resources that they can use to sustain themselves. If you've had a serious TBI, you're probably going to have some difficulties throughout your life. It's a chronic disease. I think the medical profession is starting to recognize that more explicitly-- that this is a chronic condition-- and that people are going to need some things throughout their lives. And not just medically--also in terms of their social adjustment. Developing that network is very important. Developing that network is also something that is not that easy. It really takes somebody besides the person with brain injury to be doing that. I think a lot of times that falls on the family which is a little unfair. Not everybody is equipped to be a great--I mean, despite the desire, not everybody is equipped to be a great advocate or a great networker. I, frankly, would hate to be in this position myself because I'm kind of introverted. I think I'd do a horrible job even though I might want to-- if one of my family members were hurt, I think I'd have a great deal of difficulty doing the necessary networking and advocacy. So, sometimes it takes somebody else, and unfortunately in our system-- at least at this point--that's not a designated position for anyone.
Posted on BrainLine November 1, 2012.

Produced by Victoria Tilney McDonough and Erica Queen, BrainLine, and Dan Edblom.