Advice for Families with a Loved One with Severe Brain Injury

I often say to families when someone is very severely injured to keep a journal, to take videos, to begin to chart steps and progress. It's a very slow journey, and families get discouraged as well as the individual. But keep looking back and see where you've come. The most important thing is try not to think you can do this alone. You have to seek help. You have to seek peer support help, you have to seek help from professionals, and you just have to be patient.

Keeping a journal, taking videos, and looking back to mark progress can help families with a loved one with a severe TBI. But most importantly, families need to seek help.

Marilyn Spivack

Marilyn Price Spivack is the neurotrauma outreach coordinator at Spaulding Rehabilitation Hospital in Boston. She is the co-founder and past president of the National Head Injury Foundation, now known as the Brain Injury Association of America. Her daughter sustained a severe TBI in 1975.

Posted on BrainLine August 28, 2012

Produced by Krystal Klingenberg, Justin Rhodes, and Jared Schaubert, BrainLine.

Add new comment

Plain text

  • No HTML tags allowed.
  • Web page addresses and e-mail addresses turn into links automatically.
  • Lines and paragraphs break automatically.
This question is for testing whether or not you are a human visitor and to prevent automated spam submissions.