Traumatic Brain Injury Basics

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Please remember, we are not able to give medical or legal advice. If you have medical concerns, please consult your doctor. All posted comments are the views and opinions of the poster only.

Yes issac I have same problem the ones act they r just use your kindness as there own advantage

I was struck by a car when I was 19 while running across a highway on a trail in my local community. I had 24 broken bones, my main being my leg and shoulder. I have definitely dealt with the effects of a brain injury. My main problems now are short and long-term memory loss, I forget things easily, trouble with word finding, impulsive decision making, loss of friends due to the fact they've advanced so much more than I, I'd rather just be alone. It's been a hard road. If I can get through it, anyone facing the challenges of a brain injury can too. I just wanted to add this for anyone feeling like their life isn't good enough because of your brain injury, it is. There's a reason we are here.

Ashley, your words hit me hard... I was thrown from a car at 15 and my best friend died from head injuries. I have had so many physical issues I never attributed to it until now. As I get older and realize I would rather be by myself than try to communicate with anyone. I have had 3 other MAJOR head traumas since then and just feel hopeless. I don't know why the world won't let go of me. I try everything "they say" but always end up worse than before. I don't know what else to do, no one understands me, they think I'm impulsive, depressed, bipolar, this or that but mostly hard to get along with or understand. I have wanted to die for so long and should've with the efforts. I wish I could believe there was a good reason for me to be here but it only seems to be I destroy myself and the 3 people in my life, my parents and significant other that has chosen to love me regardless of the horrible things I put them through. I don't know if they would be better with me here or if I were dead. I am tired of hurting everyone. My children have chosen to keep me from their life from a young age after an incident that I now believe is part of my brain injury and not the things they said about me. My kids were never harmed physically but I know I hurt them mentally and now I am alone and feel there's nowhere for me to be or no good I could ever do. My physical pain limits so much. I really want to be happy and have a good life with my son, my dogs and my parents but nothing seems possible anymore. I think I have crossed over to the place of no return for those who I love with all my heart. I wish there was a way to look into my brain and figure out if it is the culprit and correct it but I've not found anything pointing to that. I am glad for you that you are choosing to be positive and pushing through. I am so tired of trying. If anyone can point me to an answer of at least how to heal and if it's even possible.

Dear Erin, your words have touched my heart. I also was in 3 serious car accidents but one of the most critical was a tree falling dead across the highway which I was driving on... perfectly synced with the front of my car and flipped my car 3 times forward and skid 1 & 1/2 football fields upside down. I also fractured my head from a seizure on cement after I had finished art I had done and was showing my mother outside. When she said my eyes rolled back and boom. I remember nothing. I also flatlined for over 6 minutes from the flu and was deprived oxygen to my brain. I was once an artist, a writer, hard worker, class clown senior superlative and much more. I am now a shell. I'm not living. I exsist.. no one relates to my battle every day. My memory is gone. I forget everything. No taste. No smell. Find me on fb. For you are not alone and I would hate to hear you think this world would be better without you... it's because of you that I stopped and took 2 hrs just to type this all out (it's hard to process sentences ). You were worth that... and so much more.

Thank you Ashley. I, too, suffered a major head injury some years ago in a car accident. I have no one left in my life. My life is filled with constant effort with no seeming reward. No one knows what happened to me, because no one has wanted to listen. I am given no support, but I am expected to support everyone else. Life is very hard every day, most times torture. I have the same problems as the ones that you listed and am exhausted from the effort that it takes every day just to get through the day. Even though I can't figure out why God kept me here, it is His decision when he takes me out. Thank you for your words. They are the first to me since I was injured 32 years ago. It feels like I am wandering around in a dream with no connections. Thank you for yours.

Hi, Ashley! I hope you are doing well today. I would LOVE to listen to you story and offer as much support as I can. I suffered a TBI years ago as the result of a car accident. God kept you here so you can teach and inform others about TBI. You are a blessing and I will pray for you! Have you considered attending a TBI Support Group? Is there anything like that where you live? I facilitated a Traumatic Brain Injury Support Group a while ago for about a year and a half. I started by attending the group and one thing lead to another and I was asked to facilitate. I was very scared, but everyone in the group was so understanding and supportive because they have been through similar experiences. I have an on-line Brain Injury Support Group of Duluth on Facebook if you use Facebook, and everyone is welcome! Let me know if you are interested and I will help you out any way I can. God bless you and please stay safe and strong and know that you are not alone!

My son who was 15 1/2 at the time was hit by a van while on the rode is head hitting the windshield causing TBI and broken up hip and leg, we spent 2 months at savannah, Ga. he then was sent home, he had to learn to talk and eat again, although we had to feed him through a stomach tube for awhile, he has been in and out of rehab for the past years but still can not walk, there also was no big settlement so we could not get him the best of care, medicaid does not allow for much therapy, now he is 26 its a shame that he can not still walk because we do not have money or good insurance, my son has missed alot of things in his life and my heart breaks for him! it is just not fair!

I was in a car wreck in 2000 and had a TBI. I have had many problems on a daily basis due to this injury. Headaches, vision, confusion, and memory loss are a few of the areas I deal with every single day.

I hit my head about 8-9 months playing football and couldn’t even remember what year it was or what I did two minutes before. This was at school. I sat at the nurses for hours and it was intense. They gave me bad advice by saying I would be alright and that I just needed some rest and to be inactive for a while. A little after a month later, I was playing basketball in school and someone ran into me by accident. They must’ve knocked me out because I fell over. I’ve asked people, they all say “it was the loudest thing in the gym" when I hit the back of my head off the gym floor and ever since that I’ve been feeling the same way. I’m 14 now and I was just wondering if anyone else was going through what I am. And I was right, at least I know it's not only me. What I always feel is like I’m trapped inside my head, blurred vision and terrible headaches are a small part of what I’m feeling right now and will probably always feel.

My injury occurred in August 2015. How long after an injury am I still considered to represent someone with a TBI?

For the rest of your life.

When I was three years old I got hit in the head with a golf club by my brother. It was a complete accdient. I wasn't paying attention and ran out in front of him while he was in mid swing. I don't remember anything! I had to learn how to walk and talk all over again. The doctors said I was make progress & then I'd fall back down again. Which has already happened. I'm perfectly fine now, other than suffering from short term memory loss.

I think I may have had a TBI. For years I have had the headaches, from mild, moderate, to prostrating and meds have not helped. I have had occasional blurred vision from them, dizziness, numbness, tingling in extremities, ringing in my ears, emotional swings of irritability, anger, out bursts, depression, a general sense of malaise, short term memory loss, fatigue, and brain fog. I have been tested for almost everything except TBI. I recently found medical record that shows I had a fall from a stand while working on a jet and taken by ambulance while in the military. The record only shows injury to the soft tissue of my lower right lumbar area of my back. I had a follow up with bed rest.  Since finding this record and researching TBI I am wondering if I have it even though this fall occured 34 years ago. All the above systems have been there with me for a long time but cannot remember when they started. I have learned to push through but am finding it more difficult as I age . 

With my TBI I have trouble locating things and they can be right in front of me.

I was injured in a hockey game;  I played (non contact) men's hockey for many years (I'm a civil engineer and just always played on school/work teams).  A big guy decked me and I fell back and onto my skull.  That was 13 years ago.  I have seen 4 neurologists and tried every single alternative medicine there is.  I still work as an engineer, but part time, and still get headaches, vertigo and fatigue.  I'm sensitive to light, noise and confusion

 My short term memory is quite poor.  I find my friends and family still don't understand:  if I have to cancel a visit with them, they say I should just make an effort (though they are constantly telling me I should cancel visits with others). It is a very, very frustrating condition.  I find this site really helpful in helping me understand that I am not alone.

I suffered a traumatic brain injury when I was a young lad of 5 years old. I was at my uncle´s house and went down the stairs. As soon as I got to the last step and put my feet on the concrete cement. I looked around and to my astonishment I saw a stool and above the stool was a paper plane hanging. I looked at them and decided to climb on the stool to get the plane. The fact of the matter is that I do not know who put the stool and paper plane in the position where they were exactly? I am trying to put all the pieces together to find closure in the criminal case. Once I know who the perpetrators were they will be charged with attempted murder!!! The crime scene happened at my uncle´s home in 1975. He lives at 300 Evelyn Avenue in Toronto. I have discussed what happened with numerous people and they stated that the person who put the stool and paper airplane were trying to kill you. 

I put one foot on the stool and pushed up and then I put my other foot on the stool and I was on the foot stool and from there I raised my hand to grab the airplane and the stool started shaking because it was tampered with the legs were shaky and moving back and forth. So, that I last my balance and fell of hitting my left frontal lobe onto the concrete cement. I sustained left frontal lobe damage. My left frontal lobe was bleeding which is an open cut damage. I was crying and screaming loud and my mother ran down the stairs to assist me with medical attention. But, no one brought me to the hospital nor was my family doctor told about my traumatic brain injury which I sustained (TBI) I am working hard to find out if criminal charges can be laid against the person who devised the scheme to having me injured.

In 2006 I was 20 years old. I had a BAD car wreck. I was in the hospital for 3 1/2 months. My brain split apart, I have a sist in the middle of my brain at a 1.3, I gractured the c2 & c3 in my neck, broke my left hip and pelvis. I was told I was paralyzed from my neck down. September will be 11 years. I can walk, talk, feed myself, & dress myself. I was a new born baby at 20 years old. Im doing better than any doctor said I would be. Istill struggle with everyday challenges. I never can drive again or live on my own but im alive. I give lots of thank to LSU Hospital in Shreveport, Louisiana and Torro in New orleans, now wondering if I could have a baby or not.

In 2001 I was hit repeatedly on the head with text books. When I got off the bus my shirt was covered in blood and blood as coming out of my nose and mouth. I don't remember anything after that but my parents told me I went to the hospital for tests. I remember stuff that happened a long time ago but anything recent I have problems remembering. New information is hard for me to remember. I have a hard time standing especially on moving trains and buses. I get headaches and shakes in my head. I have a TBI and I hate it. I can't multi task which makes it hard when I have a young son to take care of. I can't drive so I rely on transit or others to drive me around.

Thank you all for sharing your experience, thoughts, encouragement, and your hearts. I've suffered two major accidents that should have claimed my life and two massive blows to my brain and skull. For the past 5 years I have been researching for answers to what happened to me and life itself. Thanks for providing me with your testimonial experience. I'm am blessed because of all of you today..

I had been beaten yrs ago & had the base of my skull mashed into the base of a sofa sleeper. Yrs HD passed & I had been abused having my head smashed into the hard floor while my abuser was sitting on top of me. He knocked the wind out of me but I did not loose consciousness. Then that same year I smashed my head the top very hard into the frame of a metal door casing. Did not loose consciousness but wow the pain & headache that followed. Then 7 months later I fell on the ice in my driveway. This time I did loose consciousness. Woke only to peal myself out of a frozen puddle & get myself into my home. This is where I found that I lost bladder and rectal control. I live alone and had no help. Today I suffer from migraine and pressure in my head every 2 months. The doctors around here think I'm nuts when they can't find anything. I have a hard time sleeping, I'm tired all the time. I'm depressed because I feel that I have nerve damage that effects the nerves in my neck, shoulders, arms and legs. I'm very slow to get started & feel brain dead at times. Could this be TBI? What type of Doctor can I see that will LISTEN TO ME? I find myself confused quite often. Please help.

My niece had a horrific vehicle accident on 2-11-17. She has just been moved to a room out of ICU. She is trying to get out of her bed often. They have her strapped down now, and heavily sedated. Any help or words of encouragement are welcomed!

I had an accident an ended up having (TBI). Does this affect being hired by an employer?

Just be honest

I was T-boned in Sept 2015. I had a hematoma (brain bleed) TBI as well  as my hips were dislocated.  and had double vision, headaches. After much physiotherapy , massage therapy, speech and language pathology, psychology treatments I am now back to my old self. No headaches,occasional neckache but working 40hrs per week and feeling normal again. My faith in God is what healed me. Stay positive because it will get better if you believe.

I have a brother who had a TBI 7 yrs ago and recently I've been feeling really resentful towards him and my mother for expecting too much of me. I get no thanks for helping them. Not sure where to turn I want to run away from it and never come back. Any advice would be helpful

I'm sure your brother would like to run away too. I'm sure he wishes it never happened at all.

if it was you with the injury im sure your family would help you with the emotional and physical roller coaster the injury causes suport to your brother is what you should focus on instead of resentment for the injury he wishes he never got

I was involved in car accident at age 3, this accident claimed life of my mother. I am left with disability where functions of left side are not as stable or strong as of the right side. When speaking my mouth only moves on the right side;this is so humiliating when around strangers and people feeling sorry for me I wish to change this condition. I'm 35 years old now; having to explain to my children and them being ridiculed by their friends because of me is sad.

I had brain bleed March of last year. I've been recovering well until today. I'm shaking uncontrollably on the right side. I don't feel any different except the shaking. Can anyone tell me is this normal to develop new symptoms?

Hi! I have a moderate TBI I'm recovering from. It's been 8 months and some days since everything changed. Last night I accidentally hit my head. It had a bump for a while but ice helped. I'm wondering if I should do anything about it as my 'executive thinking' might be out of order. Btw, does anyone ever fully recover? And how? Hospital I went to, other than physical therapy to walk and glasses to correct some things (so grateful for!), they did not help. I've had more help with brain building apps. Anyone else in similar place and what can be done?

I was just shot 5 month's ago by a 9mm. Was in a coma a month and I lost my right eye also, It's still in my speech but I'm ok. I should be dead but I'm still kicking. I'm a 26 year old male.

I'm sorry to hear about your TBI. I also fell down the stairs in Sept 2016 and suffered a concussion. After 2 months I felt minimal improvement and then I visited an Osteopathic practitioner. The improvement after only two visits is remarkable and I now see light at the end of the tunnel. I hope you give this a try too. And I hope it works as well for you.

I am going through these problems. I've had to relearn everything including talking and walking. Some days I feel great and like myself. I was in a coma for about a month. I feel great physically but get turned around easily in new places. My memory is good. I remember old memories pretty easily. I would like to try to drive again soon. I do understand that I'm not the same but will continue trying to make life meaningful. My spiritual life has grown tremendously. I never take life for granite anymore. I used to see something once and have it but now it make take a couple of times. I thank my mother who has been with me since day 1 and my physical therapist who pushed me to greatness and to never settle

Wow!  I can completely relate to so many of ur stories. Most particularly from the person that split her head open on concrete at a concert. It is so similar to my own story! I woke up on my garage floor bleeding everywhere. i was unconscious for 45 to 1 hour! Thank God i woke up. spent 5 days in ICU, 10 staples, seizures, on and on... I have also lost too much weight, been at my job for 21 years and fear losing it too! I also broke my back and am currently in a brace, but remind myself how lucky i am to be alive!  Also now i am experiencing ALOT of the same issues all of u have. Emotions, anger, irritable, memory and just NOT being ME... Thank you all for sharing your stories. it has helped me immensely! It helps to know i am not alone.

I completely relate to your situation.I fell down my basement steps 18 months ago landed on concrete and was knocked out.I spent a few days in the ICU and had to stop nursing school, I am 40 years old and decided to go to college and then I got the TBI.I was at the Drs a few days ago and he corrected me when I said I had a TBI with a cerebral hematoma the Dr then informed me I had 2 cerebral hematomas, I felt foolish cause I don't remember, I have lost memories of my children can not work outside my home at times I will be driving and not know where I am and I grew up in the area we live in. My children remind me of dates, what time they get out school and the list goes on.At times I mean to say one thing and something completely opposite comes out, my kids understand and I try to play it off but it really bothers me.I have good days and bad and when there are multiple things going on in a room I can not focus and get headaches.It took me 5 times to pay 1 automated bill today....I take medicine daily and see neurologist. I don't know if I will ever get better. One doctor said after 1 year, the recovery phase is over, and that's just it???

When I had my stroke in 2003, they told me that the recovery period was 6 months. I'm glad that it has increased since then. Luckily I never put much stock into what the doctors told me about what is possible. The brain has a characteristic called plasticity meaning it will adapt and change to meet the insual's needs, basically it can rewire itself making new neural pathways. Combine that with our desire to heal and we can make great improvements.
Here's a brief synopsis of my shear will and determination vs what doctor's tell us is possible. After brain surgery I was in a coma for a month or so. While I was in the coma I was fully aware of what was going on around me and what others were saying. I heard the doctor tell my father that there was a good possibility that I may never regain consciousness, and that even if I did I might be a vegetable. Okay, I did wake from that coma and wasn't a complete vegetable. After finding out that I was paralyzed on the left side of my body, I was told that I may not ever regain the use of that side -Wrong again ( I'm pleased to report). When goal setting I told myPT that I wanted to get back to lifting weights and especially to once again bench pressing over 300 lbs ( I used to compete in powerlifting). She never believed that could happen until I called her over to spot me while I attempted 300. Hearing her change her point of view was as rewarding as actually achieving the goal. My next goal to to drive again. Of course I should forget about that and that can't be fixed. My OT told me to look online since there was no therapy for my homonymous hemianopsia (where one side of my vision is affected in both eyes). I researched and didn't find much, in fact I created my own therapy. I studied the DMV requirements and worked at it until my field of vision met those requirements. After I met those I took some driver training and then road test. You know what happened? Right I got my license in 2007. The rehab facility I was accepted and lived at for 3 years also offered vocational training.
I told them that I wanted to enroll in computer training. After being tested for placement suitability I was told that I didn't have the capacity to study that and that I should consider something in either the foo service or sanitation industries. One day I went to the computer lab to ask the teacher a question about an issue I was having with my laptop. We then got to talking and I told him I wanted to be in his program. He told me that he had openings and that he'd talk to them to see if I can take the classes on a 3 month trial basis. this course was a 2 year program. Which I completed in 6 months. I became A+ certified as a computer repair technician. Not only that I was the first person from the Brain Injury Services department to ever complete the course, and in record time! Enough of the boring details of my struggles.
The takeaway here is that we are limited by our own imagination and beliefs in our abilities. Don't blindly accept what others tell you as being dogma. Each stroke is different, so there's no one size that fits all of us.
I have wondered why the doctors couldn't tell me I would never be a millionaire , I would have enjoyed proving that one wrong!
One last general message to everyone reading this; is not to expect changes to happen quickly. They may take a very long time. So it follows that looking for improvements since yesterday or last week may not be as effective as looking back 1-3 months or where you were last year this time to see how much better you actually are. You may have to learn to self-advocate as I did, but set achievable goals for yourself starting small and then getting more aggressive. Use the lonely times to work on yourself. As a child it took a year or so to learn to walk why expect it to happen in a week? Remember your not a stroke ( or Tbi) victim, you're a (insert word here) survivor!
I wish everyone the best.

Here's an example of why just one time out drinking can have some big effects. I went to the bar with some friends to decompress after a long week. We all had some beers and a few shots. Later that night, we ended up at the beach down the street. Somehow at the beach I came away with a bruise and some blood on my forehead; I don't remember exactly how it happened and no one around was watching me. None of us were blackout drunk but I have no memory of the injury or the preceeding hour or two. The next evening I was extremely nauseous, had a constant headache, and had some mild confusion. I thought I was just hungover from the previous night (even though I felt different than any previous hangover I've ever had). The symptoms continued into the next week and in some ways got worse, such as having "off" vision and balance. In addition, since then I have felt mentally slow. I have a harder time keeping up with movies and TV shows, and I feel like I have to read many things twice in order to comprehend what's written. I have a pretty constant and mild headache with pressure on both of my temples too. It's been almost two weeks but it scares me to think that any of this could be permanent.

I was in a terrible accident. Nobody will really hire me, I can hardly do any schooling it really stinks the way this has happened at the age of 18... I would love to write a story about my life because I'm pretty pathetic now...

You were given Life by GOD...See yourself as he would see you....The people that JUDGE you.....Are REALLY worse off than you, for they are sick in their soles. Take the HIGH Road....NEVER.....NEVER GIVE UP! Mental Attitude and LAUGHTER are GREAT healers, as well as, READING ! Did you know, that every time you learn something it stimulated the cells in your brain....they can GROW and you WILL GET THERE. Must be patient with yourself. a daily organizer HELPS! You are young and God made your body to repair itself in time.....try STEM CELL THERAPY OR BIOMEDS....REPAIRING your genosomes. THEY can even use just yours in many cases....God Bless You....your parents NEED to see you being strong because it rips out heart out when our children get hurt.....You are loved...Count your blessings when negative thoughts come over you. Smile...IT makes your body and you feel; better .

I relate. my sister had a granitic brain injury when she was a baby. she is not normal. she is 17 and has the mental capacity of a three year old. the kids at my school say they have it rough because they have siblings. how about you having a sister that is basically a baby in and adult body? I just wish she could have a normal life.

FYI:  Not all TBI diagnosis is from accidents. I am diagnosed with TBI and it is caused from  Neurosyphilis. It was in my system for over 10 yrs. as I never I knew I had it so did not seek treatment until it reared up yrs. later and caused TBI. Thank God a very alert neurologist did a spinal tap which it showed up on.  

Yes I can totally relate. My head went into the windshield at 45 mph. All of the safety equipment failed because the car dealer never inspected the car before he sold it. My life as I new it has for ever changed. It will never be the same. Then almost a year later I was hit by a drunk driver who had now taken any hopes of a full recovery away. Now I'm angry all the time. I hate being alone. I say things I can't control. Usually very rude. Its like I'm trapped in my head. I can't find a way out! I won't remember writing this and won't care. I had a nice life and a beautiful plan for my future. But that's all gone. I've lost everything. I live in my van now. I spent last winter I. It and no one even cares. Good luck to you.

I suffered a massive cerebral brain hemorrhage at 23 my whole life has become frustrating nightmare. I've been housebound for 21 years

I had a skull crushing blow after a drunk driver hit my mom i flew headfirst through a window my body was ran over by an old station wagon and a ford f250 ran over my head.. I have the attention span of a goldfish ... I have had migraines almost 30 years I can't sleep and when I do its not relaxing.. I'm so fatigue id give everything to feel rested.. I can get lost at times even in areas I've known my whole life!! I feel crazy at times.. I have so much pain and I try to think positive that thankfully im not the quadriplegic vegetable they said I'd be. I can be very defensive and snappy at times so I mostly keep to myself.. I avoid looking in mirrors because of my facial scars and dislopia of my eyes.. And I avoid drs. So I'll never qualify for a ssi check... Every TBI is different I hope u can overcome yours

My husband was hit in the head and few times in high school and college. In his mid 20s he was struck so hard in the head with a baseball bat. He was treated and released. Now he is in his mid 40s and I'm starting to notice changes in his behavior. He has been moody, depressed, he says he feels stuck, he is just not the same. Can somebody give me some advice. Thanks

I was shot point blank in the forehead in 1993 survived with the bullet still in my head went through 6 months of physical therapy learned to walk talk again etc... But still suffer seizures somewhat regained the use of my left arm and leg have worked on and off does anyone know of the best way to re enter the work force? I am 42 still living with my mother and tired of being a burden on her I would appreciate any advice anyone has. Matt thank you in advance.

My 18 yr old son was shot point blank in the forehead... He laid in the woods, scared for 6 days and nights... I reported him missing 3 days after shooting... Another 3 days later the sheriff heard him moaning across the gravel road in woods after bringing a k9 out to search... He was conscious, severely dehydrated, paralyzed on his left side... Airlifted underwent surgery, icu for 7 days... Couldn't remove bullet from frontal lobe... Up to recovery 3 days.. Back in icu for 7 days draining excess fluids from head through spine.. I'm here by his bed at hospital as I write this.. He has some sensation and limited movement on left arm/ leg... Unable still to sit up alone for more than a few minutes, can't walk , dramatic weight loss, loss of muscle and strength... But he's a survivor, a miracle but a long road ahead.

Our prayers for your son and your family.

I'm getting emotional just talking about this. I have mild TBI . I tripped at a concert venue and fell backward on concrete and split my head open. I was out for awhile until I was brought back by the paramedics that eventually wrapped my head up to stop the bleeding. I ended up at the er where they dug bits of concrete out of my head and put 11 staples there I was kept all night for concussion observation and released the next morning. That was 5 months ago. My life is a complete hell! I still suffer from headaches,nausea,and balance problems. I was recently let go of my job that I have worked for 24 yrs. I broke my tailbone so it's hard to sit and I know I damaged my back as it hurts all of the time. I have had 2 cat scans and a chest X-ray to clarify no broken ribs. I am 56 and I have lost 30lbs from nausea and my life is not the same. Can anyone relate?

Multiple TBI survivor here. I need a more solid, pertinent support system .