Please remember, we are not able to give medical or legal advice. If you have medical concerns, please consult your doctor. All posted comments are the views and opinions of the poster only.
Hey there. I’m just curious my child’s father just had a brain injury to his right side. And he woke up from the coma but he’s not talking do you by chance know ‘ what the outcome would be ?
Hey in 2006 I had a motorcycle accident and got a brain injury from most of my left temporal lobe and a little on my right. Was in a coma for 9 days. Had to be in physical therapy for 2 months, occupational for 4months, and speech for 1 year. All I can say is my parents and friends keep me going for showing their love and support. I am almost the same person I was, but still sometimes there'll be a word I'm trying to say and mostly am able to get it said. Hopefully he'll be able to get through it well!
I have has 2x brain surgeries to try to remove a tumor but I don't shout it from the roof tops. I find this really frustrating esp when I forget something and people respond with "try having my memory"! I'm sure I'll learn to ignore it in time, but i get spoken to like I'm thick, which I never have been.
I've had two as well going on 3.
For me I had to get smarter just to function and one important lesson I learned. Most people don't need to learn how to live with a TBI. Do you know sign language? How's your brail?
So I believe it's give and take.
Hi ~ I sustained a traumatic brain injury due being rear ended at a red light on 3/09/2019 by an 18yo because he was texting. The force was unbelievable - they think the car was going 50mph. My car was totalled. I am very thankful to be alive! I did not hit my head but I was jarred so hard that it felt like my brain shifted. I quickly had neck pain,back pain, and headaches. After lots of testing (MRI, CT, EMG) I have 2 herniated discs in my neck, 3 budged discs in my lumbar, nerve damage in my left arm. I have bruising and damage to my frontal lobes. The vision in my left eye is blurry, I have memory loss, lack of concentration, I am clumsy and extremely fatigued. I lost my job as a spine surgery coordinator because I was starting to make mistakes. I am 53 and this is not how I wanted to retire! I am in so much pain! I had 1 epidural and I experienced a severe reaction (red man syndrome). I'm being changed from cymbalta to lexapro due to weight gain and it makes me perspire profusely. I sleep till 12noon and I have no energy to shower or walk my dogs. I used to decorate for every holiday and enjoyed it so much. I barely have the energy to think about it. I am going to physical therapy for vestibular disorders (vestibular ocular hypofunction) if I remember. I hope by this time next year I regain some of me back. If anyone has suggestions I would love to hear them❤
Thank you,
Evie
Hello Evie I can't say I know all that you're feeling, but I can sympathize with some. I have problems with my lower back and my knees that cause me to be in pain day and night. But the only thing I can say to you just keep praying and trusting in God. When I'm by myself I pray and talk to Him and I can't feel no pain , nothing but peace. Try it , it will help you also.
I have had brain surgery twice. I too suffer from what most call memory loss, fatigue, what ever..
I call it my gift.
It made me look at everything in a positive way.
Try it, at first it's not so easy, in time it becomes habit, in fact I'm replying during covid 19 because I want to make my time count.
Very True sometimes have gotten so Frustrated about All that's happened a Drunk went thru a Red light an caused me to be put into Hospitals for 18 months The Best thing I have found is Marijuana helps Me Deal with All the problems as well as Helps control me having .. Aura's - what You have usually before a seizure
Thank you, Evie, for sharing your story. I don't have any suggestions at this time, though I've had 9 concussions. I have gained support from Facebook groups and from interactions with others in those groups. Recovery is gradual, so celebrating small victories has been great for me. Actually, meditation has helped me a lot too; in reduces my anxiety by the end of the session, which helps me sleep. I will be thinking about you...
I do not know how to start, I had many accidents that fit under fate. one of them gave me a traumatic brain injury but the good part the unconciousness was 9 hours. I was 11 years old when i made this accident that made me make two operations. one to remove the blood plot before reaching the brain and the other one to put a medical bone in my head, that was in 1987 while i was walking in the pavement in saudi arabia I found a car in my face then i woke up in hospital. in 1992 I got part of a bullet hitting my skull so my health started to be very bad with a need to many medications. now in 2020 I keep feeling that life is not worthy when you look normal and you have to achieve everything like normal people and no body will care about what you are suffering from.
Wally,
You have every right to be happy. I have suffered 2 brain surgeries and at first how I was treated bothered me. So I got a mohawk dyed my hair purple and made everyone interested comment on my scar or hair witch led to the scar.
Now everyone interested knows and can form their own opinion
Well now at least for me I know why certain things set me off now. I never understood why they did but it makes more sense now. For kindergarten to well now I have lived with brain damage due to a car accident. I have always had bad thoughts and known I shouldn't because I use to talk lots of my friends and some strangers out of suicide and well all of them have said what I have said helped. As for me i have tried telling myself the same things but I never believe them at least when I tell them to myself where I do when I tell them to others. Learning basic easy things is really hard I remember having to be told things multiple times. I'm slightly embarrassed to tell people about the damage. And well everyone in school knew and some pitted me other bugged me about it. To be honest I dont know what bothered me more. I do remember I started to surpass my some of my peers in math and some other subjects. Teachers were saying I was doing it with ease but I dont know if I was or not. I remember docters telling me I'd never walk but the nurses and parents never stopped pushing me to keep trying I use to run when I wanted to walk. I've never given up. But I almost always feel guilty I don't know why. I stand up for others I feel great but if I stand up for myself I repulse it. But hopefully with this I'll understand myself better.
Jason,
From where I stand your lucky.
I'm now 53 when I was 49 I was in the FL keys and got mugged by 2 to 6 people depending on which police report you read.
What I have learned to do.
Remember, understanding a disability is easy if you have it.
You can only educate them and be educated possibly?
I really don't know how to start but will like to know how to go about it, my wife currently undergoing brain tumor but hasn't had any surgery yet, the brain tumor was discovered when she was first pregnant and we were able to pull through with the LORD 's help, also buy applying a medication (Dostinex) advised by her doctor, reading few of your comments, on my opinion and which I stand to be corrected please, it seems to me that surgery isn't the best or first option here, because with the medication which she has been taking for over 4 years now, we had two loving kids and I can tell you that they are very healthy and blessed to the glory of the LORD, I am with your guys in prayers, I would like to know if there is any medications expert of Dostinex that could be of help or if anyone has ever tried it as well. Thanks
I have a 6 inch scar across my face after a car accident and I have to get plastic surgery and a boy I know is bullying me because of it and I choke and can’t defend myself
You don't have to defend yourself. I know the feeling very very well. Your scar is on the outside but his scar much bigger on his inside. You are so much more than a scar. Remember that people like that are weak inside and luagh it off when he tries to bully you. You are stronger inside than he will ever be. But with great strength comes great responsibility so don't be mean back and play his game. You are better than that. The joy in that secret is huge
Going through the same stuff. It helps knowing that we are stronger inside than them. They act like that because they are the weak ones. Not us. We fight bigger battles inside every day than they will ever know. Keep the strength we have inside and we will always be stronger than them. And remember great power comes with great responsibility. We don't need anyone to feel as bad as we know people can feel. Stay strong buddy.
I recently was in a car accident and now I have a brain injury and my mom has said all of these to me and it makes me fell worthless and I do struggle with depression and I’ve thought about killing myself and I hate it that they baby me I have a 6 inch scar on my face and that’s why they stare at me.
Please Dont off yourself, that's not going to fix the problem. I have a mom who treated me the same way and after sitting her down looking her in the eye I told her I felt everything she ever told me and it hurts. Maybe you should try to do the same. Let her know that having a TBI is difficult already and her treating you the way she does is not helping. I will pray it works out for the better and good luck.
Please don't lose Hope, almost 30 years ago I felt that very same way. I am so glad I was too much of a chicken to end it all because I wouldn't have felt the joys of being Grandma, Best thing ever. when faced with a life changing misfortune that I am working on writing up a post with my story. MY ADVICE.... "Believe you can and you`re halfway there. " One of my favorite quotes by Theodore Roosevelt. Hang in there my friend, Embrace it The quicker you accept it the better. It`s not the end of the world.
Over 14 years since my accident. The more I learn to set up systems to cope, the more I hear comments and get anger from others. They don't think there is anything wrong and just call me b**chy. Everyday is a struggle and I have learned to just stay away from people that don't get it. Sometimes that is difficult and the anxiety and depression explodes.
I had a brain injury and lost my ability to feel a kiss or a hug, my husband felt like a log beside me in the P, People were crowds. Knew who I loved but no feeling scary. I got all this back 3 weeks ago, Thank the good lord. I didn't know these feelings were gone til they came back. Very confusing but makes a lot of sense how I acted for the past two years. Prayers for you.
Thank you for this site and all the comments and replies. I am a concerned mother who is hanging on emotionally by a thread. My son started MMA a few years ago. He only had one fight in the cage and won quickly but it was all the practices that concern me. I know (mothers intuition) he has a TBI from all the hits to his head. He has the cauliflower ear which is a big indication of a hard hit. Anyway, he has changed dramatically. He seems to have no self control, outbursts that are quickly followed up with peace and harmony as if it never happened. He is forgetful, I cannot tell you how many times his keys and wallet go missing. Will open the fridge door and walk away forgetting to close. Simple things a child can do he seems to now just forget. He was not this way prior to MMA. He has been arrested 2x and both cases are still pending. He either quits every job he has due to lack of focus, and drive to hold it down, or gets fired for not showing up. I want him tested and do not even know where to begin. I am waiting on his insurance information from his father to determine if he has counseling services as I feel he needs a therapist STAT. This possibly could be a venting email but any help or advice is greatly appreciated!
I understand what you are going through. I am very sorry about it all. I am TBI "survivor." And willing to help however I can. If you would like to talk please reply. We can schedule date/time that is mutually convenient.
Hi, thank you for sharing and offering to help a fellow TBI person. I have a great sense of humor; I will process my TBI and find a way to radically accept this. I so need to connect with someone who just knows!!! Someone who wont judge me, correct me, bark at me or blame me for “not caring enough” that if it was important to me, I’d remember! My TBI seems to be very noticeable with others around me. Yet no one wants to learn about all of my conditions. Frequently blamed for basically everything. I’m already terminally ill, although that’s not ok, I have processed it and accepted them. Nothing will prevent me from growing/evolving. I’d be interested in learning about you and how your TBI has impacted your life.
I had an accident 11 years ago and was paralysed down one side and my memory had gone. My memory has came back to me but I still have short term memory. I can't stand and have a debate about something, I need to take my time and think what I am going to say. I have just been reading that 80 percent of suffer a brain injury results I divorce and guess what I am getting divorced, but since seperating I feel a new man and my ex isn't doing everything for me and running my life. Reading what u shouldn't say to somebody with a brain injury she said them to me all the time.
I understand what everyone is saying but like always if I want to know I will have to read it all again. I had my wreck February 2012 going on eight years in recovery now. My family keep telling me I'm doing better but I don't see it because of the battle each and every day. I have to have my phone next to me so I can ask it how to spell words. I'm 59 years old and I thought that I had everything by the tail. My own company, Climbing and working high off the ground is out of the question, going under ground no way now, welding, running a torch, running equipment, driving trucks. No more sports no more hiking and free hand cliff scaling. I just found out last weekend that I can't swim any more and I was always like a fish in water but no longer I'm more like a rock now. I know I have said a lot of thing that I lost from that day but the good Lord has been carrying me for a long time and my family has been awesome taking care of me and my wife has been a real life saver. Today was a very bad day and that is why i looked this up so I could understand that I'm not the only one that feels lost all of the time. I will be praying for all of you and know in your heart that we can truly beat this thing or learn how we can deal with it on a daily basis. Thank you for your help, Robin
since tbi 2005 i can’t do anything like before. my job was seven days a wk for at least 28 out of 31 yrs when i exercised thoroughbreds. the only vacations were when i broke a major bone so it was also w/o pay But i couldn’t wait to heal and get back on a horse again.Got to work by 3:30am to muck 12-23 stalls before track opened for training at 6am-it made/kept me strong enough so no trainer ever had to find a guy to get on the tuff ones. i’ve lost my muscle,strength,coordination and memory comes and goes. can’t fight my way out of a paper bag now. it’s like 2steps forward and 20 steps backwards. i’m so disgusted and 80% of the time i really wish they left me on the hill where the pony girl grabbed my rein and flipped the horse on top of me. i was Always first at work not just at the first barn i went to but first one in the whole barn area. what drs don’t get is adrenal fatigue goes hand in hand with traumatic brain injury And the first clue is you can’t get going But you don’t feel sick and it took years to find that out but so what it still happens so i miss most the day and feel worthless because of it. i really hate living..no purpose no matter how hard i try. really don’t know why i’m even writing this
Hi,
I had a serious accident Feb 2017. I had 4 bleads to my brain, and so many other problems and with each I need an operation. I had 9 operations and two failures which I needed to have redone as they were on my face,
I smashed my eye socket and l needed a titanium plate to give my left eye something to be attached to. If I refused I would have ended up with deformed.
If had got a bleed on the brain don't no much about could never understand what the docs and perents told me. wich makes it harder I guess but reading this help so much it's been a year now and feels like it get harder I really want to start working agine but can't do my job no more was a honor to read thes comments sorry about my little rang btw
This is a fantastic article. Although I have ptsd rather than a traumatic brain injury, this article captures three very destructive messages I’ve been unlucky to receive. I’ve lost count of how many times I’ve been admonished to be positive and be grateful for what I have. Look at what I do for you is another destructive comment, especially when people assume they know what I need better than I do.
I RECEIVED MY TBI WHILE IN THE US ARMY, I HATE BEING PLASED IN THE SAME GROUP WITH VETERANS WHO WERE IN COMBAT, MY INJURY HAPPEN WHILE ON A TRAINING EXERCISE. I WAS IN A JEEP ACCIDENT WHEN I WAS FOUND I WAS UNCONCUSSION FOR AT LEASE 12-15 HOURS EXCEPT FOR 3 SHORT MINUTE OR TWO AND NOT CONCUSSIONS ENOUGH TO HELP WITH MY TREATMENTS FOR MORE THAN A DAY. I WENT THROUGH 3 OR 4 DARK PERIODS THE LONGEST ONE WAS FOR ABOUT 30 HOURS BUT I WAS STILL NOT REAL CLEAR HEADED.
I HAD A PUNCH OVER THE LEFT EYE; BECAUSE IT WAS BLEEDING. EVEN TODAY I REMEMBER NOTHING ABOUT THAT INJURY THE ONLY THING I DO REMEMBER THAT EVERY ONE OF THE BLIND SPELLS BEGUN FROM THE LEFT EYE, THE LONGEST SPELL WAS FOR ABOUT 15 HOURS.
I WAS IN LANDSTHUL HOSPITAL IN GERMANY FOR 113 DAYS AND DURING THAT PERIOD ALL MY LETTERS TO AND FROM HOME WAS READ TO ME, I COULD NOT SEE WELL ENOUGH TO WATCH TV. I WAS NOT ALLOND TO WALK OUT OF THE WARD WITHOUT AN ESCORT. WHENEVER I STARTED GETTING BETTER AND WALK AROUND ON MY ON. MY DOCTORS SAID THEY HAVE DISCHARGE AND SEND ME BACK TO MY COMPANY ON LIGHT DUTY OR THEY WOULD SEND ME TO WALTRE REED AND BE GIVEN A MEDICAL DISCHARGE AND COMPENSATION. THEY ALSO SAID THAT MY BRAIN WILL HEAL ITSELFI FOUND YEARS LATTER THAT WAS NOT POSSIBLE. I WENT BACK TO MY MILITARY COMPANY FOR THE NEXT 16 MONTHS; BECAUSE MY FAMILY DID NOT ME TO BE NOT WORKING FOR MY MONEY.
AFTER GETTING DISCHARGE ABOUT A YEAR LATTER MY VISION STARTED GETTING REAL BAD, I WENT TO HOUSTON, TEXAS VA HOSPITAL ONLY FOR HELP WERE I WOULD NOT LOSE MY JOB; HOWEVER ALL MY MILITARY AND MEDICAL RECORDS WERE LOST AND I WAS TREATED SO BAD, LIKE I WAS EITHER CRAZY OR WANTING TO GET WHAT THE PSYCATRISTS CALLED EASY MONEY. NEEDLESS TO SAY I GOT NO MEDICAL HELP AND I LOST MY JOB.
FOR MANY YEARS AFTERWARDS MY MEDICAL DOCTORS, FAMILY AND OTHERS SAID TO ME ALL THE STATEMENTS ON YOUR LIST AND MORE I BEEN TREATED AS THOUGH IT WAS ONLY A MENTAL PROBLEM.
I HAVE NOTHING TO GAIN BY LYING, I LOST JOBS THAT WOULD PAY ME MUCH MORE THAT I COULD RECEIVE FROM VA COMPENSATION
I AM NOT CRAZY MY PROBLEMS ARE REAL AND I DO NEED HELP
Good luck with all you do I’m taking care of my friend Paul who suffered a tbi dry dick fell off an air craft carrier they do not help him I’ve tried many areas I’m the one person who understands and sees what he’s going through what he deals with.. I can only say through my experience with Paul is stay as strong as possible God.Speed
I am so sorry that you were treated that way. I also was in the military. I and went too was told that my problems were in my head. So I fired my primary doctor. You have many more options that you were told. I had to keep after it. Don't let the doctors and administrators dictate to you what they want. When you went in to the military you have rights. Keep talking to people and don't get pushed into what they want. They are only trying to weed out the people who are claiming injuries that were not serious. Just keep fighting. It took me 9 years to be classified as having an injury that was military related.
Hope things work out for you. Just keep fighting until they do something. You have legal help through the VA. Just keep going.
Hi, thankful to have this site, very informative. Can I ask, is it ok to correct a loved one with a fairly new tbi, when they’re being rude or insensitive? I understand the lack of sensitivity and la k of a filter are part of the injury but wondering what’s best way to handle inappropriate reactions. Sometimes my fiancé will be very short/rude or insensitive to myself or to others, gets very irritated and frustrated easily, again I know it’s due to the Tbi. I’d like to know if I should nicely ask/mention that the way he responded or behaved wasn’t kind or polite. I certainly don’t want him to feel worse, just wanted to know if I should address it at all. TY in advance. Prayers and hugs to all.
hello, I had an acquired brain injury and I was extremely fortunate that it has healed pretty much completely but it took 6 years and for the first few I was extremely hard on everyone around me including my family. I think you should definently express your feelings to your loved one because it is so frustrating to be in that state but also no excuse to be mean! I mean that in a kind way
I sustained a brain injury in 2000 after a roof weighing 1 1/2 Tons collapsed on me. My former husband 'accidently' ran into the structure twice with a heavy road grader after sending me underneath to rake. He became my caregiver, even though we had been separated. My family fought I was fine, except for nerve and structural injuries. He moved me back to our home on10 acres and abandoned me, turning off water to house, removing the roof for a year, and much more. He had me convinced I was crazy. My mother became disabled 4 years later and since I 'wasn't working' I went to stay with her. My mother, meaning well, but always saying the wrong things by putting me down. I became so self conscious about talking and saying something wrong that I isolated myself from family and friends. I went to a wedding shower for my niece and I said something that my niece's friend misunderstood, yet I still do not know what I said. I was interpreted as saying something negative about my niece's upcoming wedding. I was thrilled about her marriage and husband, yet I was not invited to her wedding and had to find someone to drive my mother and sister, I was not invited to her baby shower. I have been shunned by the family ever since. Having time to think since then, I wondered if my mother might have helped the situation if she had explained to my niece that the injury to my brain, words for what I mean come out wrongt. I can say something, totally unaware of the words I use, which I did often, and remind her how thrilled I was about her martiage. My sister lectured me about using my filter to manage my words. Other's may disagree, but I personally feel you could mention to a hostess, a friend, or even the person offended that because words can be difficult to use correctly after a brain injury do to the part of the brain that suffered the insult, to please not be offended or take my words spoken literally, instead, ask me what I meant before judging and condemning, especially words that may be contrary to what I mean. While in a BI group, a couple members would constantly speak out in argumentative rude tones. Being aware of their particular injuries, no one was offended or uncomforable. Unfortunately, I cannot live only with brain injured people who understand, I have the rest of the world to live in, too. Explaining a brain injury to others is fruitles, how can they possibly understand? Although, to inform them that a person with a brain injury is likely already aware they can offend people without being meaning to, some may understand. My sister tried the nudging and giving me signals when I said things wrong. Instead, she confused me since I could not remember what the nudge was for of her signals. I was only aware that I messed up but where? I have a couple friends who are aware of my injury. They do not understand everything that I go through, but they do have compassion and do not judge me if I say something the wrong way. One friend actually spoke up and said, "On yes, I know what you mean, . . . ." Then she would repeat what my message was intended to be, and smoothed everything out. It has been 19 years since my injury, yet I was traumatized by being shunned by family, which I felt could have been avoided if someone in my family could have explained my injury to them. I tried, unsuccessfully. It was too emotional an issue for me, and I felt as though I was in a defensive mode trying to make excuses for screwing up. Now, I basically am alone. I shop at night when stores are not crowded, and I turn down invitations for gatherings. I am learning that being alone is not good for people. I need a place that is simple, where someone could direct me if I get overwhelmed, yet have some feeling of independence. Hopefully, not having to live in a relatives home, which would be hard. I also want to mention the mother who's son was a boxer. Neuropsychologists are doctor's that have diagnosed my issues that are most difficult for me. Your son needs to be officially diagnosed in order to get the right treatment, which could be medication, rehabilitation, which does help tremendously.
Sorry my post is so long but it takes me a lot of words to say what I am trying to address.
Thanks,
Marcia
Try to remember the situation and see if it is a recurring situation, if so it might jab their emotion in some way, either try to talk about it to them, or I find it best to talk about it as if you are talking about someone else having this problem, if they agree that they also find it difficult then they understand, if they agree and don’t seem to recognize it about themselves, they most likely don’t realise. Be careful not to offend them when talking to them because they can anger quickly, talk sistematicaly and carefully and just let them know, if they seem to get upset, lead the conversation elsewhere.
Comments (600)
Please remember, we are not able to give medical or legal advice. If you have medical concerns, please consult your doctor. All posted comments are the views and opinions of the poster only.
Katrina hugerlette replied on Permalink
Hey there. I’m just curious my child’s father just had a brain injury to his right side. And he woke up from the coma but he’s not talking do you by chance know ‘ what the outcome would be ?
Anonymous replied on Permalink
Hey in 2006 I had a motorcycle accident and got a brain injury from most of my left temporal lobe and a little on my right. Was in a coma for 9 days. Had to be in physical therapy for 2 months, occupational for 4months, and speech for 1 year. All I can say is my parents and friends keep me going for showing their love and support. I am almost the same person I was, but still sometimes there'll be a word I'm trying to say and mostly am able to get it said. Hopefully he'll be able to get through it well!
Renee replied on Permalink
Regarding talking again after a right brain injury, sometimes there is a need for speech therapy to be able to communicate again.
Anonymous replied on Permalink
I have has 2x brain surgeries to try to remove a tumor but I don't shout it from the roof tops. I find this really frustrating esp when I forget something and people respond with "try having my memory"! I'm sure I'll learn to ignore it in time, but i get spoken to like I'm thick, which I never have been.
Bill replied on Permalink
I've had two as well going on 3.
For me I had to get smarter just to function and one important lesson I learned. Most people don't need to learn how to live with a TBI. Do you know sign language? How's your brail?
So I believe it's give and take.
Anonymous replied on Permalink
Hi ~ I sustained a traumatic brain injury due being rear ended at a red light on 3/09/2019 by an 18yo because he was texting. The force was unbelievable - they think the car was going 50mph. My car was totalled. I am very thankful to be alive! I did not hit my head but I was jarred so hard that it felt like my brain shifted. I quickly had neck pain,back pain, and headaches. After lots of testing (MRI, CT, EMG) I have 2 herniated discs in my neck, 3 budged discs in my lumbar, nerve damage in my left arm. I have bruising and damage to my frontal lobes. The vision in my left eye is blurry, I have memory loss, lack of concentration, I am clumsy and extremely fatigued. I lost my job as a spine surgery coordinator because I was starting to make mistakes. I am 53 and this is not how I wanted to retire! I am in so much pain! I had 1 epidural and I experienced a severe reaction (red man syndrome). I'm being changed from cymbalta to lexapro due to weight gain and it makes me perspire profusely. I sleep till 12noon and I have no energy to shower or walk my dogs. I used to decorate for every holiday and enjoyed it so much. I barely have the energy to think about it. I am going to physical therapy for vestibular disorders (vestibular ocular hypofunction) if I remember. I hope by this time next year I regain some of me back. If anyone has suggestions I would love to hear them❤
Thank you,
Evie
Heidi replied on Permalink
Hi Evie,
Are you still looking at this site? If so, I would like to reply to your post. Heidi (I may come up as my alta-ego, "Ida" :-)
anon replied on Permalink
were accomodations or fmla options from your employer?
Annie Mae replied on Permalink
Hello Evie I can't say I know all that you're feeling, but I can sympathize with some. I have problems with my lower back and my knees that cause me to be in pain day and night. But the only thing I can say to you just keep praying and trusting in God. When I'm by myself I pray and talk to Him and I can't feel no pain , nothing but peace. Try it , it will help you also.
Susan Day replied on Permalink
Two plants i am researching for tbi are vinca and huperzine . Sounds amazing from what ive learned so far .
Bill replied on Permalink
I have had brain surgery twice. I too suffer from what most call memory loss, fatigue, what ever..
I call it my gift.
It made me look at everything in a positive way.
Try it, at first it's not so easy, in time it becomes habit, in fact I'm replying during covid 19 because I want to make my time count.
Joanne replied on Permalink
After consulting a doctor honestly try cannabis
Richard Rust replied on Permalink
Very True sometimes have gotten so Frustrated about All that's happened a Drunk went thru a Red light an caused me to be put into Hospitals for 18 months The Best thing I have found is Marijuana helps Me Deal with All the problems as well as Helps control me having .. Aura's - what You have usually before a seizure
Darsnip replied on Permalink
Thank you, Evie, for sharing your story. I don't have any suggestions at this time, though I've had 9 concussions. I have gained support from Facebook groups and from interactions with others in those groups. Recovery is gradual, so celebrating small victories has been great for me. Actually, meditation has helped me a lot too; in reduces my anxiety by the end of the session, which helps me sleep. I will be thinking about you...
wally replied on Permalink
I do not know how to start, I had many accidents that fit under fate. one of them gave me a traumatic brain injury but the good part the unconciousness was 9 hours. I was 11 years old when i made this accident that made me make two operations. one to remove the blood plot before reaching the brain and the other one to put a medical bone in my head, that was in 1987 while i was walking in the pavement in saudi arabia I found a car in my face then i woke up in hospital. in 1992 I got part of a bullet hitting my skull so my health started to be very bad with a need to many medications. now in 2020 I keep feeling that life is not worthy when you look normal and you have to achieve everything like normal people and no body will care about what you are suffering from.
Bill replied on Permalink
Wally,
You have every right to be happy. I have suffered 2 brain surgeries and at first how I was treated bothered me. So I got a mohawk dyed my hair purple and made everyone interested comment on my scar or hair witch led to the scar.
Now everyone interested knows and can form their own opinion
Jason replied on Permalink
Well now at least for me I know why certain things set me off now. I never understood why they did but it makes more sense now. For kindergarten to well now I have lived with brain damage due to a car accident. I have always had bad thoughts and known I shouldn't because I use to talk lots of my friends and some strangers out of suicide and well all of them have said what I have said helped. As for me i have tried telling myself the same things but I never believe them at least when I tell them to myself where I do when I tell them to others. Learning basic easy things is really hard I remember having to be told things multiple times. I'm slightly embarrassed to tell people about the damage. And well everyone in school knew and some pitted me other bugged me about it. To be honest I dont know what bothered me more. I do remember I started to surpass my some of my peers in math and some other subjects. Teachers were saying I was doing it with ease but I dont know if I was or not. I remember docters telling me I'd never walk but the nurses and parents never stopped pushing me to keep trying I use to run when I wanted to walk. I've never given up. But I almost always feel guilty I don't know why. I stand up for others I feel great but if I stand up for myself I repulse it. But hopefully with this I'll understand myself better.
Bill replied on Permalink
Jason,
From where I stand your lucky.
I'm now 53 when I was 49 I was in the FL keys and got mugged by 2 to 6 people depending on which police report you read.
What I have learned to do.
Remember, understanding a disability is easy if you have it.
You can only educate them and be educated possibly?
Brooke replied on Permalink
For 9 a lot feel the wish that luck was not on their side
Anonymous replied on Permalink
I really don't know how to start but will like to know how to go about it, my wife currently undergoing brain tumor but hasn't had any surgery yet, the brain tumor was discovered when she was first pregnant and we were able to pull through with the LORD 's help, also buy applying a medication (Dostinex) advised by her doctor, reading few of your comments, on my opinion and which I stand to be corrected please, it seems to me that surgery isn't the best or first option here, because with the medication which she has been taking for over 4 years now, we had two loving kids and I can tell you that they are very healthy and blessed to the glory of the LORD, I am with your guys in prayers, I would like to know if there is any medications expert of Dostinex that could be of help or if anyone has ever tried it as well. Thanks
Anonymous replied on Permalink
I have a 6 inch scar across my face after a car accident and I have to get plastic surgery and a boy I know is bullying me because of it and I choke and can’t defend myself
Billy replied on Permalink
You don't have to defend yourself. I know the feeling very very well. Your scar is on the outside but his scar much bigger on his inside. You are so much more than a scar. Remember that people like that are weak inside and luagh it off when he tries to bully you. You are stronger inside than he will ever be. But with great strength comes great responsibility so don't be mean back and play his game. You are better than that. The joy in that secret is huge
Kathy replied on Permalink
How profoundly RIGHT ON!!! I assume you have a PHD.
Billy replied on Permalink
Going through the same stuff. It helps knowing that we are stronger inside than them. They act like that because they are the weak ones. Not us. We fight bigger battles inside every day than they will ever know. Keep the strength we have inside and we will always be stronger than them. And remember great power comes with great responsibility. We don't need anyone to feel as bad as we know people can feel. Stay strong buddy.
Anonymous replied on Permalink
I recently was in a car accident and now I have a brain injury and my mom has said all of these to me and it makes me fell worthless and I do struggle with depression and I’ve thought about killing myself and I hate it that they baby me I have a 6 inch scar on my face and that’s why they stare at me.
Autumn replied on Permalink
Please Dont off yourself, that's not going to fix the problem. I have a mom who treated me the same way and after sitting her down looking her in the eye I told her I felt everything she ever told me and it hurts. Maybe you should try to do the same. Let her know that having a TBI is difficult already and her treating you the way she does is not helping. I will pray it works out for the better and good luck.
Julie replied on Permalink
Please don't lose Hope, almost 30 years ago I felt that very same way. I am so glad I was too much of a chicken to end it all because I wouldn't have felt the joys of being Grandma, Best thing ever. when faced with a life changing misfortune that I am working on writing up a post with my story. MY ADVICE.... "Believe you can and you`re halfway there. " One of my favorite quotes by Theodore Roosevelt. Hang in there my friend, Embrace it The quicker you accept it the better. It`s not the end of the world.
Anonymous replied on Permalink
Over 14 years since my accident. The more I learn to set up systems to cope, the more I hear comments and get anger from others. They don't think there is anything wrong and just call me b**chy. Everyday is a struggle and I have learned to just stay away from people that don't get it. Sometimes that is difficult and the anxiety and depression explodes.
Anonymous replied on Permalink
I had a brain injury and lost my ability to feel a kiss or a hug, my husband felt like a log beside me in the P, People were crowds. Knew who I loved but no feeling scary. I got all this back 3 weeks ago, Thank the good lord. I didn't know these feelings were gone til they came back. Very confusing but makes a lot of sense how I acted for the past two years. Prayers for you.
Anonymous replied on Permalink
Thank you for this site and all the comments and replies. I am a concerned mother who is hanging on emotionally by a thread. My son started MMA a few years ago. He only had one fight in the cage and won quickly but it was all the practices that concern me. I know (mothers intuition) he has a TBI from all the hits to his head. He has the cauliflower ear which is a big indication of a hard hit. Anyway, he has changed dramatically. He seems to have no self control, outbursts that are quickly followed up with peace and harmony as if it never happened. He is forgetful, I cannot tell you how many times his keys and wallet go missing. Will open the fridge door and walk away forgetting to close. Simple things a child can do he seems to now just forget. He was not this way prior to MMA. He has been arrested 2x and both cases are still pending. He either quits every job he has due to lack of focus, and drive to hold it down, or gets fired for not showing up. I want him tested and do not even know where to begin. I am waiting on his insurance information from his father to determine if he has counseling services as I feel he needs a therapist STAT. This possibly could be a venting email but any help or advice is greatly appreciated!
Anonymous replied on Permalink
I understand what you are going through. I am very sorry about it all. I am TBI "survivor." And willing to help however I can. If you would like to talk please reply. We can schedule date/time that is mutually convenient.
Sarah replied on Permalink
Hi, thank you for sharing and offering to help a fellow TBI person. I have a great sense of humor; I will process my TBI and find a way to radically accept this. I so need to connect with someone who just knows!!! Someone who wont judge me, correct me, bark at me or blame me for “not caring enough” that if it was important to me, I’d remember! My TBI seems to be very noticeable with others around me. Yet no one wants to learn about all of my conditions. Frequently blamed for basically everything. I’m already terminally ill, although that’s not ok, I have processed it and accepted them. Nothing will prevent me from growing/evolving. I’d be interested in learning about you and how your TBI has impacted your life.
Ryan watt replied on Permalink
I would suggest a spect brain scan. This will show what mri does not.
Anonymous replied on Permalink
I had an accident 11 years ago and was paralysed down one side and my memory had gone. My memory has came back to me but I still have short term memory. I can't stand and have a debate about something, I need to take my time and think what I am going to say. I have just been reading that 80 percent of suffer a brain injury results I divorce and guess what I am getting divorced, but since seperating I feel a new man and my ex isn't doing everything for me and running my life. Reading what u shouldn't say to somebody with a brain injury she said them to me all the time.
Robin replied on Permalink
I understand what everyone is saying but like always if I want to know I will have to read it all again. I had my wreck February 2012 going on eight years in recovery now. My family keep telling me I'm doing better but I don't see it because of the battle each and every day. I have to have my phone next to me so I can ask it how to spell words. I'm 59 years old and I thought that I had everything by the tail. My own company, Climbing and working high off the ground is out of the question, going under ground no way now, welding, running a torch, running equipment, driving trucks. No more sports no more hiking and free hand cliff scaling. I just found out last weekend that I can't swim any more and I was always like a fish in water but no longer I'm more like a rock now. I know I have said a lot of thing that I lost from that day but the good Lord has been carrying me for a long time and my family has been awesome taking care of me and my wife has been a real life saver. Today was a very bad day and that is why i looked this up so I could understand that I'm not the only one that feels lost all of the time. I will be praying for all of you and know in your heart that we can truly beat this thing or learn how we can deal with it on a daily basis. Thank you for your help, Robin
marty replied on Permalink
since tbi 2005 i can’t do anything like before. my job was seven days a wk for at least 28 out of 31 yrs when i exercised thoroughbreds. the only vacations were when i broke a major bone so it was also w/o pay But i couldn’t wait to heal and get back on a horse again.Got to work by 3:30am to muck 12-23 stalls before track opened for training at 6am-it made/kept me strong enough so no trainer ever had to find a guy to get on the tuff ones. i’ve lost my muscle,strength,coordination and memory comes and goes. can’t fight my way out of a paper bag now. it’s like 2steps forward and 20 steps backwards. i’m so disgusted and 80% of the time i really wish they left me on the hill where the pony girl grabbed my rein and flipped the horse on top of me. i was Always first at work not just at the first barn i went to but first one in the whole barn area. what drs don’t get is adrenal fatigue goes hand in hand with traumatic brain injury And the first clue is you can’t get going But you don’t feel sick and it took years to find that out but so what it still happens so i miss most the day and feel worthless because of it. i really hate living..no purpose no matter how hard i try. really don’t know why i’m even writing this
Anonymous replied on Permalink
I love horses too. Please don't give up. Life can still be beautiful.
joni replied on Permalink
please dont give up, keep fighting marty. you are very loved im sure and everyday you are here is a blessing so just try to keep going.
Julie Rockliff replied on Permalink
Hi,
I had a serious accident Feb 2017. I had 4 bleads to my brain, and so many other problems and with each I need an operation. I had 9 operations and two failures which I needed to have redone as they were on my face,
I smashed my eye socket and l needed a titanium plate to give my left eye something to be attached to. If I refused I would have ended up with deformed.
Anonymous replied on Permalink
If had got a bleed on the brain don't no much about could never understand what the docs and perents told me. wich makes it harder I guess but reading this help so much it's been a year now and feels like it get harder I really want to start working agine but can't do my job no more was a honor to read thes comments sorry about my little rang btw
Theresa Foley replied on Permalink
This is a fantastic article. Although I have ptsd rather than a traumatic brain injury, this article captures three very destructive messages I’ve been unlucky to receive. I’ve lost count of how many times I’ve been admonished to be positive and be grateful for what I have. Look at what I do for you is another destructive comment, especially when people assume they know what I need better than I do.
CHARLES VELDEKENS replied on Permalink
I RECEIVED MY TBI WHILE IN THE US ARMY, I HATE BEING PLASED IN THE SAME GROUP WITH VETERANS WHO WERE IN COMBAT, MY INJURY HAPPEN WHILE ON A TRAINING EXERCISE. I WAS IN A JEEP ACCIDENT WHEN I WAS FOUND I WAS UNCONCUSSION FOR AT LEASE 12-15 HOURS EXCEPT FOR 3 SHORT MINUTE OR TWO AND NOT CONCUSSIONS ENOUGH TO HELP WITH MY TREATMENTS FOR MORE THAN A DAY. I WENT THROUGH 3 OR 4 DARK PERIODS THE LONGEST ONE WAS FOR ABOUT 30 HOURS BUT I WAS STILL NOT REAL CLEAR HEADED.
I HAD A PUNCH OVER THE LEFT EYE; BECAUSE IT WAS BLEEDING. EVEN TODAY I REMEMBER NOTHING ABOUT THAT INJURY THE ONLY THING I DO REMEMBER THAT EVERY ONE OF THE BLIND SPELLS BEGUN FROM THE LEFT EYE, THE LONGEST SPELL WAS FOR ABOUT 15 HOURS.
I WAS IN LANDSTHUL HOSPITAL IN GERMANY FOR 113 DAYS AND DURING THAT PERIOD ALL MY LETTERS TO AND FROM HOME WAS READ TO ME, I COULD NOT SEE WELL ENOUGH TO WATCH TV. I WAS NOT ALLOND TO WALK OUT OF THE WARD WITHOUT AN ESCORT. WHENEVER I STARTED GETTING BETTER AND WALK AROUND ON MY ON. MY DOCTORS SAID THEY HAVE DISCHARGE AND SEND ME BACK TO MY COMPANY ON LIGHT DUTY OR THEY WOULD SEND ME TO WALTRE REED AND BE GIVEN A MEDICAL DISCHARGE AND COMPENSATION. THEY ALSO SAID THAT MY BRAIN WILL HEAL ITSELFI FOUND YEARS LATTER THAT WAS NOT POSSIBLE. I WENT BACK TO MY MILITARY COMPANY FOR THE NEXT 16 MONTHS; BECAUSE MY FAMILY DID NOT ME TO BE NOT WORKING FOR MY MONEY.
AFTER GETTING DISCHARGE ABOUT A YEAR LATTER MY VISION STARTED GETTING REAL BAD, I WENT TO HOUSTON, TEXAS VA HOSPITAL ONLY FOR HELP WERE I WOULD NOT LOSE MY JOB; HOWEVER ALL MY MILITARY AND MEDICAL RECORDS WERE LOST AND I WAS TREATED SO BAD, LIKE I WAS EITHER CRAZY OR WANTING TO GET WHAT THE PSYCATRISTS CALLED EASY MONEY. NEEDLESS TO SAY I GOT NO MEDICAL HELP AND I LOST MY JOB.
FOR MANY YEARS AFTERWARDS MY MEDICAL DOCTORS, FAMILY AND OTHERS SAID TO ME ALL THE STATEMENTS ON YOUR LIST AND MORE I BEEN TREATED AS THOUGH IT WAS ONLY A MENTAL PROBLEM.
I HAVE NOTHING TO GAIN BY LYING, I LOST JOBS THAT WOULD PAY ME MUCH MORE THAT I COULD RECEIVE FROM VA COMPENSATION
I AM NOT CRAZY MY PROBLEMS ARE REAL AND I DO NEED HELP
Jess replied on Permalink
Yeah I know you lose so much and your job was a great income source, but hopefully you can find a better job
Anonymous replied on Permalink
Good luck with all you do I’m taking care of my friend Paul who suffered a tbi dry dick fell off an air craft carrier they do not help him I’ve tried many areas I’m the one person who understands and sees what he’s going through what he deals with.. I can only say through my experience with Paul is stay as strong as possible God.Speed
T.J.Anderson replied on Permalink
I am so sorry that you were treated that way. I also was in the military. I and went too was told that my problems were in my head. So I fired my primary doctor. You have many more options that you were told. I had to keep after it. Don't let the doctors and administrators dictate to you what they want. When you went in to the military you have rights. Keep talking to people and don't get pushed into what they want. They are only trying to weed out the people who are claiming injuries that were not serious. Just keep fighting. It took me 9 years to be classified as having an injury that was military related.
Hope things work out for you. Just keep fighting until they do something. You have legal help through the VA. Just keep going.
AT Anderson
Carole replied on Permalink
Hi, thankful to have this site, very informative. Can I ask, is it ok to correct a loved one with a fairly new tbi, when they’re being rude or insensitive? I understand the lack of sensitivity and la k of a filter are part of the injury but wondering what’s best way to handle inappropriate reactions. Sometimes my fiancé will be very short/rude or insensitive to myself or to others, gets very irritated and frustrated easily, again I know it’s due to the Tbi. I’d like to know if I should nicely ask/mention that the way he responded or behaved wasn’t kind or polite. I certainly don’t want him to feel worse, just wanted to know if I should address it at all. TY in advance. Prayers and hugs to all.
francine replied on Permalink
hello, I had an acquired brain injury and I was extremely fortunate that it has healed pretty much completely but it took 6 years and for the first few I was extremely hard on everyone around me including my family. I think you should definently express your feelings to your loved one because it is so frustrating to be in that state but also no excuse to be mean! I mean that in a kind way
Marcia replied on Permalink
I sustained a brain injury in 2000 after a roof weighing 1 1/2 Tons collapsed on me. My former husband 'accidently' ran into the structure twice with a heavy road grader after sending me underneath to rake. He became my caregiver, even though we had been separated. My family fought I was fine, except for nerve and structural injuries. He moved me back to our home on10 acres and abandoned me, turning off water to house, removing the roof for a year, and much more. He had me convinced I was crazy. My mother became disabled 4 years later and since I 'wasn't working' I went to stay with her. My mother, meaning well, but always saying the wrong things by putting me down. I became so self conscious about talking and saying something wrong that I isolated myself from family and friends. I went to a wedding shower for my niece and I said something that my niece's friend misunderstood, yet I still do not know what I said. I was interpreted as saying something negative about my niece's upcoming wedding. I was thrilled about her marriage and husband, yet I was not invited to her wedding and had to find someone to drive my mother and sister, I was not invited to her baby shower. I have been shunned by the family ever since. Having time to think since then, I wondered if my mother might have helped the situation if she had explained to my niece that the injury to my brain, words for what I mean come out wrongt. I can say something, totally unaware of the words I use, which I did often, and remind her how thrilled I was about her martiage. My sister lectured me about using my filter to manage my words. Other's may disagree, but I personally feel you could mention to a hostess, a friend, or even the person offended that because words can be difficult to use correctly after a brain injury do to the part of the brain that suffered the insult, to please not be offended or take my words spoken literally, instead, ask me what I meant before judging and condemning, especially words that may be contrary to what I mean. While in a BI group, a couple members would constantly speak out in argumentative rude tones. Being aware of their particular injuries, no one was offended or uncomforable. Unfortunately, I cannot live only with brain injured people who understand, I have the rest of the world to live in, too. Explaining a brain injury to others is fruitles, how can they possibly understand? Although, to inform them that a person with a brain injury is likely already aware they can offend people without being meaning to, some may understand. My sister tried the nudging and giving me signals when I said things wrong. Instead, she confused me since I could not remember what the nudge was for of her signals. I was only aware that I messed up but where? I have a couple friends who are aware of my injury. They do not understand everything that I go through, but they do have compassion and do not judge me if I say something the wrong way. One friend actually spoke up and said, "On yes, I know what you mean, . . . ." Then she would repeat what my message was intended to be, and smoothed everything out. It has been 19 years since my injury, yet I was traumatized by being shunned by family, which I felt could have been avoided if someone in my family could have explained my injury to them. I tried, unsuccessfully. It was too emotional an issue for me, and I felt as though I was in a defensive mode trying to make excuses for screwing up. Now, I basically am alone. I shop at night when stores are not crowded, and I turn down invitations for gatherings. I am learning that being alone is not good for people. I need a place that is simple, where someone could direct me if I get overwhelmed, yet have some feeling of independence. Hopefully, not having to live in a relatives home, which would be hard. I also want to mention the mother who's son was a boxer. Neuropsychologists are doctor's that have diagnosed my issues that are most difficult for me. Your son needs to be officially diagnosed in order to get the right treatment, which could be medication, rehabilitation, which does help tremendously.
Sorry my post is so long but it takes me a lot of words to say what I am trying to address.
Thanks,
Marcia
Anonymous replied on Permalink
I can relate to how you feel. Not saying what I actually meant to say hurts others and myself a lot.
Roxy replied on Permalink
Try to remember the situation and see if it is a recurring situation, if so it might jab their emotion in some way, either try to talk about it to them, or I find it best to talk about it as if you are talking about someone else having this problem, if they agree that they also find it difficult then they understand, if they agree and don’t seem to recognize it about themselves, they most likely don’t realise. Be careful not to offend them when talking to them because they can anger quickly, talk sistematicaly and carefully and just let them know, if they seem to get upset, lead the conversation elsewhere.
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