Brain Injury Recovery: The 2 Vital Ways to Help Your Love One

The more quickly a family can get help and information from a case manager about a loved one's injury and the processes for recovery, the less frustration and confusion there will be.

So when a brain injury happens, all bets are off. So the person might come in through ER and then either go straight to the acute unit or maybe they go to ICU first and then sub-acute, post-acute--you know--all these different levels of services and various places can sometimes be very frustrating and overwhelming to the family who has no idea what to expect and no idea how the person gets from one place to the other. Well, it's the case manager's role to make sense of that for the family and help facilitate the process so that it's more streamlined and they're well-educated as to what needs to happen next. A lot of times the case manager is going to be involved--you know--many, many months and possibly years into the injury. And they'll always be there to help coordinate. A case manager's primary role is to basically facilitate the person's movement from one stage of treatment to the next. It's my opinion that immediately after the injury, a family should start looking online and calling every organization they know and requesting information, because education of this injury is going to save them months and months of frustration and heartache-- getting the facts up front and becoming very clear about the expectations. It's okay to hope for the best, but also be prepared for some really big challenges ahead. And education is the one thing that is going to best equip that family to deal with the injury.
Posted on BrainLine October 28, 2010.

Produced by Victoria Tilney McDonough and Brian King, BrainLine.

Comments (1)

Please remember, we are not able to give medical or legal advice. If you have medical concerns, please consult your doctor. All posted comments are the views and opinions of the poster only.

My son ,43 years old,suffered a cardiac arrest and subsequently had an anoxic brain injury.
We were well informed on the day-to-day care during his stay in ICU (26 days)
After ICU he moved to a step down unit. Several days later we received a call in Pennsylvania (he was in Florida) and they said “come and get him”
Our question was: and go we here?)
The case manager gave us a list of personal care homes and told us we had 48 hours to take him out.
We received no discharge plan from the hospital. No one talked to us about follow up care.
They gave us some printed material.
We have gotten him doctors who don’t really work together & COVID has made everything telehealth. He is extremely angry and does not want to leave the house on one hand & hates where he is. I am a 72 year old retiree and my ex-husband is 74 and we both have health issues.
I call my son everyday on FaceTime and I will be traveling to Florida again soon. I don’t know what to do or suggestions for help.
This is what happens when there is no case manager/discharge plan!