Having a Brain Injury Was Never the Plan!

Barbara J. Webster & the Amazing Brain Injury Survivor Support Group
Having a Brain Injury Was Never the Plan! Insights from the the Amazing Brain Injury Survivor Support Group

I never thought ...

  • It would be so hard to find the right medical care.
  • Life could change so easily and so drastically from an “invisible” injury.
  • A brain injury could result from cancer treatments.
  • It would take so long and be so difficult.
  • People would treat me differently.
  • One can “look great” but be a total disaster inside.
  • Everything, even doing the simplest things, would be so hard.
  • My professional career would end.
  • I would be so miserable without my career.
  • I’d lose control of my income at such an early age.
  • The losses would penetrate every area of my life.
  • I’d change unintentionally.
  • I wouldn’t be able to think.
  • I would face a different me.
  • I’d be unable to depend on myself consistently.
  • I’d have a hard time expressing myself or understanding what was said.
  • I’d lose control of my emotions, laugh or cry spontaneously.
  • I could lose control and become a “Tasmanian Devil,” without warning.
  • I’d lose the ability to do the things I’m passionate about.
  • I’d cling to some basic abilities, like driving.
  • I’d lose the ability to enjoy social events.
  • It would affect my marriage.
  • My family wouldn’t understand.
  • I’d lose “friends.”
  • Life would never be like it was.
  • I could feel like I was going crazy, hopeless, and want to die.
  • I would have to create a new “self.”
  • I’d find such great joy in accomplishing the simplest things

I wish I’d known ...

  • There was help for people like me much earlier.
  • There would be so many others like me.
  • How much progress I could make.
  • That I would feel better, eventually.
  • I’d find many alternate ways to get through the days.
  • How strong I could be.
  • I’d be able to laugh again.
  • I’d be accepted once again.
  • I could forgive myself.
  • A brain injury could ultimately change the course of my life for the better in many ways.

We invite you to add your thoughts in the comment section below!

By Barbara J. Webster in collaboration with the Amazing Brain Injury Survivor Support Group in Framingham, MA

Posted on BrainLine May 28, 2019.

Comments (4)

Thank you Barbara. How often you say the words and express the feelings I cannot.

I never, ever thought our then 27 yr old son would be completely forgotten by his numerous friends to the point he doesn't exist any longer. 3 years later they have no idea the hurt and negativity it adds to our son's daily struggles. Nor do I believe they care.

My eyes swelled with tears as I read your list. I know each TBI is different ,yet we share in turning our traumatic setbacks into dynamic comebacks! Thank you for sharing your feelings, that is why suppport groups are beneficial for me. I belong to The Denbigh House, of Community Brain Injury Services. Yes we can, I know we can can!

"Turning our traumatic setbacks into dynamic comebacks!"

I love that so much Cpt. D. Jones!! Thank you!