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Those who know me well know that I am a big fan of peer support for brain injury survivors. While there is a lot of information to be gained from the medical community, the subtle and at times not so subtle nuances that come with living the brain injury life can’t be taught from books. As a TBI survivor, my own lived experience is my greatest asset in my advocacy work. It’s the sharing of this lived experience that creates strong bonds and lifelong friendships within the survivor community.
Disorders of consciousness after severe brain injury exist on a continuum—from coma to unresponsive wakefulness syndrome (vegetative state) to minimally conscious state (MCS) and post‑traumatic confusional state.
In this video, Joseph Giacino, PhD, explains how clinicians approach decisions about withdrawing life‑sustaining treatment for people with disorders of consciousness after severe brain injury—and why these decisions are often made too early.
In this video, Brian Edlow, MD, explains how families and clinicians work together to make decisions about life‑sustaining treatment for people with disorders of consciousness.
In this video, Joseph Giacino, PhD, challenges common misconceptions about recovery after severe brain injury and prolonged disorders of consciousness.
In this video, Joseph Giacino, PhD, explains why integrated care across the ICU and rehabilitation settings is essential for improving outcomes for people with disorders of consciousness.
In this video, Beth Hansen, PT, DPT, explains how rehabilitation teams assess pain, stress, and tolerance during therapy for people with disorders of consciousness.
In this video, Beth Hansen, PT, DPT, explains how rehabilitation teams support communication as patients begin to emerge from a disorder of consciousness.
In this video, Beth Hansen, PT, DPT, explains the vital role families play in helping communication emerge for people recovering from a disorder of consciousness.
In this video, Caitlin Hebb, MT‑BC, explains how neurologic music therapy supports recovery for people with disorders of consciousness by stimulating arousal, awareness, speech, and movement.
In this video, Gail Strom, mother of Hannah, shares her personal experience navigating the emotional ups and downs of a loved one’s recovery from a disorder of consciousness.
In this video, Joseph Giacino, PhD, explains why many people with disorders of consciousness struggle to access specialized inpatient rehabilitation—despite having significant potential for recovery.
In this video, Beth Hansen, PT, DPT, explains what families should look for when choosing an inpatient rehabilitation program for someone with a disorder of consciousness.
Recovering from Disorders of Consciousness follows the powerful true story of Hannah Strom, a young woman who survived a severe traumatic brain injury (TBI) and spent weeks in a disorder of consciousness. Through her journey — and the experiences of patients, families, and clinicians — this video explores how consciousness can slowly return, why early prognoses are often uncertain, and how specialized inpatient rehabilitation can change outcomes after severe brain injury.
What is neurofatigue? How does it affect people with brain injury (TBI)? Find out what it is, what it feels like, and what you can do to help mitigate symptoms and start to feel better.
And if there’s one thing that I’ve learned from having a brain injury and PTSD, it’s this ... recovery is not linear. There will be gains and there will be setbacks. But equally important, I know that attitude is everything. And despite how tired I can feel, I remain full of hope. And that covers a lot of ground.
As it turns out that pivotal day — when I was hit by a car on my bicycle and sustained a brain injury — opened the door to the purpose-driven life that I now live.
For a long time after my brain injury, I was focused on the conventional definition of recovery. I wanted to get back to the place where I started. I wanted to be me again. But the passage of time, and lots of fighting my fate, have proven to me that there is no going back. I will never “get over” my brain injury. Like my shadow that follows me on a sunny day, I am forever bound to my brain injury. And today, I am okay with that.
"I’ve seen both sides of the suicide coin, both as a surviving family member as well as an actual survivor. I have a deep empathy for those who think life would be better off without them, but I know that they are wrong. When you feel that way, you have no perspective; you are unable to understand that there are people who love you unconditionally and who would be shattered had you succeeded."
The day after I was hit on my bike, a local neurologist literally high-fived me, telling me that I had no discernible neurological issues and sending me on my way. But it became painfully clear almost from the beginning that something was not right.