Starting or Nourishing Romantic Relationships After Brain Injury


Could a person with TBI start and have a healthy romantic relationship? My friend/boyfriend (who has a TBI) can go from bringing me flowers and telling me he loves me to other times thanking me for dinner like I’m just any friend of the family.


The answer to this question is — yes. Following brain injury, individuals can — and do — start and maintain healthy, loving, committed relationships. In fact, in studies investigating the stability of romantic relationships after brain injury, results have shown couples have less of a likelihood of separating than do couples in the general population¹,². However, this answer also comes with an asterisk.

In order for people with a TBI to maintain healthy, loving, romantic relationships, they will need support, encouragement, and understanding from their partner. While this sounds like a recipe for the success of any romantic relationship, there are specific ways in which people with brain injury will need to be supported. There are also commitments the people with brain injury will need to make to themselves, their partner, and the relationship, in order to sustain relational happiness and security over the long term.

The partners of people who has a TBI must first educate themselves about how brain injury impacts an individual. In addition to the frequently cited TBI challenges related to thinking such as memory, attention and concentration, and problem-solving, individuals with brain injury often experience changes in behavioral, social, and emotional functioning. In a relationship, partners often read the emotional and social cues of their partner in order to gauge the stability of the relationship. However, after TBI, some disruption in emotions and challenges with communication are to be expected. People who understand brain injury can learn to interpret changes in their partner’s mood and their partner’s willingness to interact socially in new, more accurate ways. Education can also help partners not to personalize behaviors that may be more related to brain injury than a reaction to or reflection of the relationship.

In addition to building a knowledge base about common symptoms of TBI, partners can learn strategies for new ways to de-escalate an argument, identify early signs of their partner’s stress or anger, and share their own needs for emotional response or connection with their partner. Again, while these may be important skills for any romantic relationship, the way in which a partner de-escalates an argument when their spouse has a TBI will be different from the approach used by couples where brain injury is not a concern. Reading information written for caregivers, attending family member support groups, and meeting with a therapist who has familiarity with brain injury are all solid ways to build an effective skill set.

Of course, maintenance of a healthy relationship always requires the dedication of both partners. People with brain injury can improve the likelihood that their relationship will succeed by attending therapy focused on emotional regulation and compensatory strategy development. Additionally, by focusing on building communication skills, asking for help, and focusing on the positive, survivors can enhance the emotional connection they have with their partner.

Finally, when a couple enters into a relationship after one person has had a brain injury, they may want to consider taking a proactive stance by attending counseling with a couples’ therapist who is familiar with TBI. Both emotional and physical intimacy can be impacted by brain injury. Couples counseling can assist both partners in developing strategies and coping skills that can enhance the intimate connection both individuals feel with one another.

Posted on BrainLine April 12, 2013. Reviewed July 26, 2018.

Comments (113)

Please remember, we are not able to give medical or legal advice. If you have medical concerns, please consult your doctor. All posted comments are the views and opinions of the poster only.

My boyfriend had a brain injury from a car accident. When we met he was happy living life couldn’t stand to be away from me. We broke up and got back together. He goes through these moods where he wants to be with me then he don’t. Is this normal and can we be together and last. I don’t want to move on. He means a lot and I’m hoping that he can work through this and be how we were.

Reading everyone’s comments here made me feel good that I’m not alone. I’ve been chatting with this guy I’ve know for 6 months. At the very beginning, things were going good. We flirted every single day through text. Till two weeks later, he got into a car accident. The early stages of his concussion, he talked about us having a future together. At the time, I did not know anything about tbi and it’s symptoms that comes along with it. Anyway, things were going good and it started to go down hill. He isolated himself, we wouldn’t speak for days, he would get drunk and behave differently and text me talking about his ex and posting pictures with her. It made me kind of sad and when I confront him about it, he would lash out at me and tells me that he would never text me again and a few days later, we would text. It was an off and on situation. Now that I’ve learned more about his concussion, I can not put the blame all on him. His concussion has no filter and he can’t control the things he says and does. I’ve learned to be patient with him and give him all the space he needs. We really like each other but it’s scary seeing him going from the most romantic and nice guy in the world to a different person I no longer know. Thank you all once again for listening to my story and make me feel like I’m not alone. God bless

I need some help, please advise me on what to do. I am a severely TBI'd 47 year old man, who got injured 16 years ago. My wife and I have been married for the past 9 years, and she just started withholding her affections from me, because I don't know how to be romantic. She has me all wrong, though. I originally got married in the year 2000, and I used to be extremely romantic. But that marriage ended after I gave her 4 years, got injured, and then I received 4 years from her, before she filed for divorce. Another relationship that ended after 9 years. So, please help.

I am only months into a relationship with a beautiful, amazing lady with tbi. We had an amazing immediate connection when we met, we’ve fallen in love and I’m dedicated to her and us.
Before this relationship I knew nothing of tbi and her down periods which included her emotions and anger which were confusing and hurtful to me until she began to open up to me about the effects of tbi. I’ve been learning a lot. Including some interesting reading here with stories I relate to. I understand more now that when she’s angry that things aren’t as personal as they sound. I try to be as supportive and understanding as I can as I know I don’t know exactly how tough it is for her. Generally when she is down and frustrated I’m patient, try to say not too much but still helpful, try not to let myself get angry and ride it out. Am I handling things about right? Do people have particular suggestions?..

My boyfriend just recently woke up from his brain injury; he knows his name and can move his extremities but forgot who his mom is at one point, so his memory goes in and out but hopefully that will go away when the pressure on his brain goes down. But anyway he hasn't seen me yet due to Covid and I was wondering if dying my hair was a good idea. I'm a bright blonde and always have been with him but I recently made an appointment for in about a month to go a little dark like a grey. Is that a good idea to do right now or I should get my answer once I see how is reacts with me.

I am in a 3-year relationship with my boyfriend that has a TBI. He introduced himself to me as someone that sustained these injuries when he was 18 years old (he is now 43). I immediately began to search for information about TBI so that I could understand it and how it affects a person. As we moved further into the relationship the things, I noticed in him made me also search on how to be in a relationship with a person with a TBI. I am as my wit's end now with doing my part to be a supportive girlfriend, but I am not going to keep letting him belittle me. He discredits my research and even my education (I have a BA in Psychology and I am in school for my Masters in Mental Health Counseling). I do not know what to do to make this relationship work. I fear it will be over soon.

I'm 16 and I've been texting this guy for 4 months now. He is really sweet and loves to make jokes all the time. He told me he was in a car accident last year and that he has a TBI. At first, I didn't think much of it, but after meeting him I did realize he was a bit different than what I expected. We had a great time together and I can tell he just wants to have the same experiences as everyone else, like having a girlfriend. I fully understand where he is coming from and I want to be the one to give it to him, but I sense there may be some struggles. I'm honestly just wondering what I should expect.

I’m in a relationship with a man who has TBI. We have a child together and he’s the sweetest person. He was hit by a car when he was 15 and in a coma for a week. He is impaired however and it seems sometimes like his maturity level is stuck at that age of when he got hit. Is it possible for him to grow as a person or will he always remain a 15 year old stuck in adults body?

I think he will readjust with time

I met a girl who was affectionate, giving, and loving about 15 months ago. She had a severe case of TBI 8 years ago from a boating accident. The first 9 months everything was perfect between us. We gradually fell in love with each other. She then slowly began to exclude me from family get togethers and vacations. She also texted, called and dated me less. Her father knew this before, but she “fills in the blanks” and believes her own negative versions of our conversations with each other. At first I thought that she was just pulling away from me because that she was just growing tired of the relationship, but after talking with her father I knew that she had a problem. She has had 2 relationships with men that each lasted 9 to 12 months prior to meeting me. She also has several chronic severe physical problems since her accident. She is also going through a divorce now from her husband of 16 years. Whenever I tried to talk to her about why she was pulling away, she would either ignore the question, refuse to answer, or tell me that she was stressed out and couldn’t give me more in the relationship at that time. After 15 months we broke up. I’ve sent her materials about TBI relationship problems since the breakup. I don’t think that she believes that she has a problem.
What can her father and/or I do, if anything, to help her realize that she has a problem?
What can be done to help her with her memory and perception problems?
Any help would be greatly appreciated.

Thank you everyone for sharing your experiences. I have just met an amazing and quality man about two weeks ago. We did text eachother for about 3 weeks before meeting. When we first met he was honest about been in a car accident 6 months ago and sharing that he is in rehabilitation but just started a month ago. He shared that he has migranes a lot and severe pain in his back which goes into his leg. He and i really connect well, commumicate well and laugh a lot. We both really like each other a lot and he is wanting to see where we might get to. I feel confused because he is in early stage of getting physio, massage and not sure if now is the time for him to be thinking of getting into a relationship. We are only friends at this time. I feel torn right now and this feels a bit overwhelming for me. I am a support worker, support individuals with special needs and challenges and that is a mentally draining job already. Just wanting to share as i already care for this wonderful man but realize at this time he has nothing to give if we were to be in a of anykind would be appreciated.

Laura, I am finding that this whole subject around relationships after a TBI or stroke is quite a difficult one. Its perfectly acceptable if you were with this person prior to the incident but the views are different post injury. They become classed as a vulnerable person and open to exploitation and then anyone entering into their lives after the injury will be faced with this scrutiny from others. Human rights act says that they have the same rights as everyone else and should experience love and sex like everyone else. your needs will never be fully met and you seem aware of this and as two adults I am sure you can both work it out. We can't help who we connect with and
prior to brain injury would you both have had the same connection? you and
i can see beyond the impairment and love with our hearts and souls but for others they will never understand why anyone would choose to be with a person that is not able to protect or provide and will always raise the question ''what are you getting out of this''?

I'm seeing a guy who has TBI. It's been almost 4 years. He is in a home to help with learning I guess but his mother is somehow still his guardian. She doesn't want me involved as I want to be. Is it illegal if he sees me? She is his guardian but he's 22.
I'm confused... He seems normal to me. He's a very funny guy that makes me feel amazing

This is an eye-opening realization for me. I've had a TBI since 1990, when I was 15. Many of my gfs have told me that I wasn't happy with them, but I was happy with them. In 28 years my zero affect has set in more, I guess. I was smiling, but looked in the mirror and saw that I looked annoyed. What can I do?

My boyfriend and I have been together for six months. He recently was in a car accident and diagnosed with severe TBI. I guess my question is will he remember me when he wakes up? Will we be able to have the relationship we once did? Will he know that we loved each other and were in a relationship. We lived together and I love him very much. I just feel so lost and have never been in theis situation before.

I know how u feel my boyfriend got n car accident too I know he still cares bout me & loves me but I’m scared he will forget me & it’s frustrating having to deal with him forgetting everything like the wonderful times that was spend together or how he said he feels & it’s like he’s totally different person but I know he’s still n there somewhere but it’s hard to deal with & I’m scared I’m going to push him away or he will push me away without knowing it & it will be over & I don’t want it to be over

Hey, to help his brain return as much as possible to the "known self"... get him to listen to music that he uses to listen to right from as early to latest you and him can remember. Same with smells. Watch movies he used to watch as a kid etc... the brain is composed of billions of neurons. You want to stimulate as many of those as you can. I myself suffered a traumatic brain injury. Sometimes I taste something I haven't had since I was a kid and shed tears because it triggered long lost memories. Same with smells, movies etc...

A lot of those neurons got damaged. But neuroplasticity is always there. We have 5 senses that record information into memories.... just have to reconnect those pathways. Look at old pictures, music, movies, smells, go to places he grew up in and around so he can regain his sense of self. Hope this helps :)

April 26, 2009 my TBI occurred I was with the same girl since February 08 my relationship with that individual did not work out not saying that yours won’t but I changed as a person apparently she says I’m not the same she doesn’t know who I am anymore and I’m the reason relationship Didn’t work out I hope that’s not the case in your situation if you haven’t left him and you truly love him stand by him when I open my eyes after a 3 1/2 week coma and saw her standing there I remembered who she was I never forgot her I couldn’t speak but I knew who she was I hope he remembers you but it’s gonna take a lot of work for you and him to continue your relationship but if you love him you will make it through it

I have met a guy who has had a TBI he’s sweet but he gets so angry when he doesn’t get his way I feel that he LOVES me but when he’s angry, he scares me! Once he calms down he’s sweet again.

I am a TBI survivor so this is where I’m speaking from.
He may or may not remember you. Depending on the injury. He may remember things different as they were.. he may not remember anything.. or just pockets in his life (this is me). Due to injury of the brain he will probably be different in many ways. For example I was always very organized etc.. when I had my injury I couldn’t cook, talk properly, I relearned my daily routines, relearned to shower etc. Everything takes such a long time and understanding! If u can get counseling it would be best. For you and for your bf as well as for together when he can handle it. (But u should get it soon!). Hope that helps

Hi Jenna. Good insight. I too am in the first year of my tbi and just met someone I like. The thing is he didn’t know me before tbi so we are both getting to know this new person... me. I just started reading the book Feel Better Fast by Daniel G. Amen, MD. Chapter 7: love your secret weapon. Get it... read it, as I shall.
Faith, hope, love, patience and laughter. Make it be a journey you both travel.

I am a Tbi survivor the accident occurred when I was 22 from a single car accident & yes I was drunk. I have had bouts with alcohol & has been through the rehab program at Rediscover. Successfully completed the program I find myself looking for a way to get back to the old me.

I was dating my boyfriend for six months and we fell madly in love and moved in together. He recently had a car accident and was diagnosed with severe TBI. I guess my question is what happens if he doesn't remember me? Will he eventually remember me? Can we get back something of what we had? I'm just so lost and dont know how to support him through this.

The man I have been dating suffered a TBI over 5 years ago. We have been together 3 years. So much of what has been written is true, except the missing piece is lack of emotion. My boyfriend can function, has a job, drives, and suffers the common short term memory loss, brain fatigue, and the lost feeling. But it is the lack of emotion that has torn us apart. He no longer can feel. Whether happy or sad, the actual feeling can not be felt inside of him. He has told me he loves me, but that is from knowing what love felt like prior to his injury. His feelings are dead. He no longer has the zeal for life, and basically goes through the motions. I have tried, but this past Sunday I asked him to move out because I felt more like a roommate then someone wanted and loved. It is very sad, because, he will move on and exist, but never really live, and we had a wonderful first year together, but year after year he continues to spiral into a world where being alone is his real comfort.

Hi that sounds like me I have an injured head injury and short term memory loss
It’s sad one day I’m happy next I’m sad
Im hot then cold we still think we’re are the normal person we were before it’s very hard on us and u guys to

Wendy would you please contact me this is way too deep for me to even comprehend my girlfriend of 4.5 yrs is affected by a moderate to severe TBI injury dating back 5 yrs now and she recently has let go of our relationship. She says she loves me and forever will but something in her body won't let her come back. This happened only 2 days ago. I'm so upset but for the first time reading, learning, and understanding what it is to live with an injury of this nature. Clay.

My boyfriend of 5 years was injured in a blast force in Iraq in 2007. We have gone through it ALL and come out of it until we had a baby.  My son is now eight months old and because my boyfriend doesn’t know how to express any emotions, doesn’t talk to me, acknowledge him, and sleeps a lot or studies, we recently stopped our living arrangements.

It’s very hard. I understand and feel for you! I get through it by not taking his actions (mostly lack of actions) personally. I’ve learned that even though they may shut down, they're still capable of getting help. People treat us the way we allow them to. Not to sound crude, but his TBI is not a blanket excuse to allow ourselves to put up with someone who doesn’t put in the work. They will get help when they’re ready. Until then, I’ll love him from afar while doing what’s best for our child and me. He also rarely leaves our home, personal hygiene has decreased and he feels better when he’s alone and we’re not living together.

It’s heartbreaking and you’re not alone! My unsolicited advice: Lead by example and move forward with your life. Being productive and content with our lives will encourage them to do the same if they want to continue the relationship. Best of wishes!

My wife and I have been married for 10 years, we have 4 children. Just over 2 years ago we were in a car accident. She suffered a concussion that was missed by everyone in the medical system. This turned into PCS and mTBI. She has a lot of symptoms when she doesn't get her brain rest. I didn't understand it at first but i have done a lot of reading and research. I relied heavily on the medical system, which was a mistake. She has brain fog, hemidystonia (hands), tinnitus, eye problems, walking problems, balance problems, memory problems, neural fatigue, neuropathic pain in arms and legs, neck problems, muscle problems and so much more. It is heartbreaking watching her go through this. We have recently found a NUCCA trained functional neurologist who has been helping in so many ways. In the last few months she has been talking about the new person that she is. I understand that the injury has changed her, i am very supportive. She has told me a few times recently......"i don't want to be here with her family (referring to the wife/mom before the accident), these are her kids not mine. She started this family life, i don't want it".....
She goes on about leaving sometimes. I know and understand that this is injury talking but it doesn't hurt me any less to hear these words come from my wife.

Has anyone had to deal with this? Does it get better? I don't know what i would do if she left us.

Thank you.

Hi I’m Tiffany Mckee I was involved with a very Violent man I had poast natel I ran away from my hubby and son for a person who hurts people long story short he threw me off a balcony in surfers paradise on the 29.10.08 was only the first floor balcony but high enough 18 mtrs I landed on the front of my head were so I start I died 3 times on the way to hospital I lost 1 Litre and 400 mls blood so I needed a Transfusion I broke my back Fractured my ribs L1and L5 were broken I was given 24 hrs to live I was in an induced Coma for a very long time then rehab omg leaving how to walk talk ect I suffered an injury head injury and short term memory and I have post-traumatic stress as well lucky me my hubby took me back and our son was so young I went home thinking I’d be the same person no I wasn’t I was different I’m very hard to get along with some times and I didn’t wanna be with my hubby and son so I left I broke there hearts again that was 11 years this October my accident I live with guilt my son is so beautiful my ex hubby re married it’s like I’m happy by myself some days I’m happy some days I cry but I miss my son every day now I get him every second weekends and half school holidays but I wonder if I didn’t have a accident would I have had more kids been a normal person
Please understand what ur beautiful wife has she needs ur help xxoo

Speaking from having a spouse with TBI whom l live with 24/7 and also have became the main and only caretaker ❤ we are 2 & 1/2 years in and its been rocky and it feels like its gotten worse but in reality my spouse has healed and recovered drastically in that and can in my opinion make a full recovery to a Level 10 based of the TBI Levels 0 - 10 the only problem is the hardship of dealing with the emotional side of what goes on towards me because of my spouses TBI limitations and be patient and not personalize thei actions towards me to re-teach my spouse almost like I have to love and re-parent my spouse from infant to adulthood to re-connect my spouse dots so my spouse can re-learn EVERY thing again and have that knowledge again in my spouses own head. Its hard, tiring and draining mentally, emotionally and spiritually when I have no support. I educated myself a lot about TBI to understand it and get strategies. It does get better if you put the work in to help your spouse get better and progress because this injury takes away their ability to help themselves and their ability to know any better since they literally don't know anything.

My spouse is a survivor of TBI and has been healing for 8 years now and now WE recovering and overcoming the limitation and effects of TBI together their: the most powerful first love to show and re-teach emotions, honesty to re-teach morals, kindness to re-teach compassion, patience to re-teach listening, compassion to re-teach empathy, understanding to re-teach thinking of others, respect for one another to re-teach standards and the most influential knowledge to help and guide us on the right path AND faith to re-learn core beliefs of right and wrong we together begun reading the bible to re-teach FAITH AND BELIEF again! It's a burden to carry this load especially alone but it does have the great gift once a TBI SURVIVOR recovers and they do recover in time up to 10 years depending on the encouragement around, support and willingness!!

Help it gives you some light to an almost hopeless situation because their is hope and love around you guy's!!

Hi, not sure if you'll see this, but it's worth a shot. I'm someone who is currently recovering from a TBI and it sounds like I've gone through a lot of what your wife is experiencing. I'm at the point where things are looking up, but it's a long bumpy road to getting there. Is your wife seeing a neuropsychologist as well as the neurologist? I don't know how much they overlap.What about using anti-depressants? I was on Prozac for a while and it really helped me, though I initially was wary of it. Diet can be important as well. Working with a traditional chiropractor in addition to NUCCA can help too. Something also that could really, really help is vision therapy, if you can find someone near you. As I said, it's a long road and I still go through mood swings, but they get fewer and farther between as I have started to adjust, heal, and accept what has happened. Wish you all the best.

Has any had success in finding an online Post Concussion Syndrome spouse support group?

Is it healthy for relationships to allow your significant other to freely use their cell phone for hours? With TBI, the format is easier to communicate

If anybody else does this beside my wife who was ODed on topomax- I give her room/ she needs it, it's different. It feels insulting to be unwanted

Cell phones?

My fiance has TBI. Sometimes out of nowhere he cusses me and hurts me (mentally) How do I handle this

Late reply but if you are still looking at this dont run you might just be running from the best tihing that would happen to you my fiance and i have been together off and on over the last three or so years they've been rocky trust me we now have a nine month old beautiful baby boy he just the sweetest thing ever when he dose not cry for his mama but i first met her when she and her freind had broken down on the side of the road i had over shot them but got off then back on twice to circle around and help them out for me as soon as she approached me there was this instantaneous connection i could not explain it her vibe was off the charts for me she was just stunningly beautiful an i thought to myself i was gonna marry this girl that was before I knew that she had a tbi from a car accident and the day we met was the day she had been released from her second surgery she had explained this 2 me afer a couple weeks of talking along some troubling situations in her past relationships she too has those types of mood swings there isnt much we can do to help this because 9 out of 10 its just a flash of something that had happened i her past relationships during those times all you have to do is try to remember that its not there fault and they dont mean the thing they say during these episodes and so many people have already left them hanging their sanity barely intact and ask your self how much you love this person for me its 150% with all my soul and i would never leave her alone untill god deems it so ive been studying her situation for a while now and ive made progress in some areas and regressed in others but i will never give up on her as long as i breathe she means the world to me so i refuse to let the world leave her behind i will continue to try until i can unlock the love passion and understanding that lies within her and i will be proposing to her i will dedicate my life to an for her she is my center of gravity that holds me to the earth without her i would probably be in a worse spot in my own live and would forever hemave my loyalty and commitment for as long as i live because i truly love her.

Run for the hills. Not worth it.

I know this sounds crazy but he doesn't mean it. He is frustrated because either things did not go the way he wanted. or he knows he was able to do that task before and can't now. I suffer from a TBI from 1989 I was 19 years old. I get mad at a drop of the hat. I am 48 years old and things have changed for me but it took a long time. Be patient just know you are a good person and it's not your fault and it's not his. The TBI changed him and there is no going back.

I am rn for a pt, tbi. He tells me to go home...frustrated. He used to really smile and be happy when i was there. Stress? Cant deal w it!
Just sad... what to do...

Talk it through with him almost child like since its is a hard pill to swallow for a TBI person to realize they have to be somewhat raised again in an adult form its humiliating, embarrassing, and scary because of the vulnerabilities they realize people can take advantage of.

I have had a severe tbi, and with it I was diagnosed with something called PBA (pseudo bulbar syndrome). We can have damage done to the centers of the brain that control emotions and reactions. Talk to him about the issue. If this isn't the man he was before or isn't a part of him, talk to a doctor. It is most likely part of the brain injury. They have medicines to help, as they helped me very much.

This could be a sensitive subject to approach with some partners. They may get upset or angry at the suggestion something else is wrong with them, say you’re just using it as an excuse for other things. Any suggestions?

I have been dating someone for 3 months who had a accident 13 years ago.
The first month was loving and spontaneous and he would show lots of affection.
But for the last two months he rarely shows any affection or instigates physical contact.
Jbhbe spoken to him about this and he said that he did not even realise.
I honestly thought that something was wrong with me and it's made me feel very self conscious.

I have been in a 6 month relationship with a man that had a Subarachnoid hemorrhage 3 years ago. He told me how it effected his memory and gave him bouts of E.D. I honestly thought the E.D. might be the biggest issue (and I really wasn't that concerned if it was) but to me that isn't even a problem (to him it is a reminder of what he lost) because it rarely happens. His emotional swings and memory issues are the biggest issues. He was cheated on by his ex wife (prior to the stoke) and has major trust issues. I have always been an independent person and he takes my independence (or what appears as of lack of need to him) as me having someone else in my life. No matter what I say or do it turns into an argument that ends up becoming escalated and confusing. Things I said are either not remembered at all and I am "cold" because I ignored his feelings or if they are remembered then the whole conversation is twisted and not at all received correctly. I get frustrated trying to explain because it seems no matter how I try to carefully phrase things to be honest yet as positive as possible it is rarely received as either. If I tell him that he doesn't remember something I said he gets angry and accuses me of picking on him for his memory issues. I feel like I am spinning my wheels. Finding this blog has definitely helped me "feel" better but I still don't know how I should handle things differently. I was seriously considering never telling him the truth about how I am really feeling and putting on a happy face all the time....even if I don't feel that way. I am not sure I can do that, but is that what is required to keep the peace? I've been searching online for a support group. How do I find one?

I am looking for support too I am having the same issues with my bf

Hi Julie,
If you want to talk I'm going through the same thing. I looked a little bit for an online support group but didn't find the right one.

Hi Julie,

I am in a very similar situation. I have been with my boyfriend nearly a year. He is wonderful and can be very loving in a way I have never experienced before, but he is very inconsistent and can be rather cold and distant at times with mood swings and burts of anger that are usually - in my opinion - due to some sort of misunderstanding. His short term memory is terrible and even with me constantly reminding him of things he drops the ball on a lot of different promises. I have been very frustrated that he cannot remember basic things like my work schedule which is the same every week. He still doesn't know the date of my birthday. He knows the month but can't seem to remember the day which is the 1st. He is chronically late usually by 3 or more hours and sometimes - though rarely - doesn't even show up whether its something he planned with me, a friend, or a family member - nobody gets any special treatment. We all see his tardiness as a lack of consideration for our time, but its very confusing because to know him one realizes that he truly has a heart of gold and he seems to mean what he says and intends to do as he says - he just can't keep track of the time and genuinely does not realize how much time has passed. If he promised to do something 3 weeks ago but still hasn't followed through when i bring it up he swears its only been a few days until i show him a calendar and then he becomes angry at himself. I have had such a hard time understanding this until I finally began putting together the pieces. He is an incredibly intelligent man and very creative, but he cannot hold a job and I'm beginning to realize - at least for the time being - he cannot take care of himself independently. He is also very impulsive and makes poor choices when it comes to money. He cannot plan ahead or manage the mundane tasks of life effectively. What's been bothering me a lot lately is the complete lack of sex. The entire relationship we have had very little sex, but it was somewhat regular for the first month or two perhaps but suddenly he "lost his sex drive" entirely and at this point its been about 7 months...I have had such a hard time not taking this personally and its such a delicate subject to being up because he feels poorly about it as the issue is physiological - ED and of this I am sure. I think that was an issue in the beginning as well but because it had been a while and it was all new and exciting that gave him some extra steam for a bit. What concerns me in his case is that his TBI happened when he was a baby...he was dropped on his head on cement and it actually happened two times. That was over 30 years ago. I didn't think much of it when he first told me, but lately I began to wonder if there could be something going on in his brain to account for his frustrating behaviors and talking with my own therapist he believes his symptoms sound like brain malfunction. Talking with my boyfriend's family I have also learned that he struggled in school due to severe difficulty reading and he needed a school plan to accommodate this. He has always had difficulty with organization when though his parents tried so hard to get him to keep his room straight - they eventually gave up. He is on the verge of what one would consider hoarding behavior. Reading remains a challenge for him yet interestingly he is very good with words and has an excellent vocabulary bank, however, often times - almost always - he does not speak clearly - I have to have him respeat himself very often (at this point I'm much better at understanding his speech than anyone else though). His family gets frustrated with him and assumes he is just lazy and mumbling, but now I'm beginning to think this is a much deeper issue. Occasionally, usually if he is very tired, he will slur and that is VERY difficult - nearly impossible - to understand. Because he does have a history of drug abuse on top of it all (but he has been clean a while now) his family accuses him of using again if they catch him slurring. At first I was concerned of the same, but because we now spend so much time together I know that is not the case. I have been crying all morning with the realization that my love most likely has brain damage and has been living misunderstood his entire life and it breaks my heart that nobody in his family thought about this over all these years. He is 34 and essentially hasn't left home because he can't take care of himself and would end up living on the streets. Everyone blames him of being lazy and unmotivated, but I'm seeing it very differently now. Reading about TBI and hearing other people's experiences with it has been immensely helpful and reassuring. It is much harder for me to be upset knowing this. Did you ever find a support group?

Hi .I so am in same position. However some people with acute brain injury. Play .on certain things.I have found this .with my partner.he is also alcoholic.and abuses his meds. He uses his brain injury .to push me away and be verbally abusive. He holds his do called mates in higher esteem to me. I have put my life on hold for him.I do everything. Washing cleaning. Driving. Cooking.and hold a job down( nursing).yesterday he proposed to me.and was lovely. Today.he's drinking. And its all gone out the window..of course I know the triggers.But.I feel I have the abyss of his elf consumed brain injury. He won't help himself..His bad influence so called mates. He taxes.and phones them..Then.I'm forgotten..I work hard to keep body and soul together. I am not going .to come second. To called. Bad influence mates.He says I'm first. But I don't feel it.when yesterday I was going to get engaged .ThenToday.I'm bottom of the shit heap..Its beyond all exasperation. And frustration. But he knows.what's right and wrong..And quite frankly.I'm over it.I can't.take much more.I told him to leave I'm so .hurt.and.tired out being pushed aside like an old sock..I am mental health nurse.and know.about.acute brain injury. Yet.this is. Beyond all my comprehension.As I will just flare again. In another couple of weeks.I have to throw the towel .in for my. Own sanity. And live my life .with someone who this .is not. Going to be easy. For I love him dearly.yet.May be this is necessary. For him to realise.what he's lost.But.having had a break. six months ago for same thing..I warned him.if he.screws up again. I can't take it. It will be over.As I honestly.have had enough..I guess I have had the Realization. That. If someone is permantly broken..And refuses the help. That's been given.And keeps repeating same.old patterns. In the relationship. And puts his friends above me.Then.He needs to. Be alone.I'm angry and hurt.but.want Respect..He threatens suicide.if I leave him.or ask him to leave. living .on a hamsters.wheel.mental health.and his phycologist.have told Respect me.And his family But. He takes no notice. Its all been a waste of my time and energy.I'm not wasting any more.I hope people read this.And Realise.that The partners.families. etc.Are going through there own hell.Its a shame.but you never hear of support for us. Who are on the receiving.side.of it all.Respect.and what every body deserves.But.they say to get Respect you have to demand it.Well I've.certainly had to demand it.Yo the point of not knowing..which way to turn.he wraps mental health proffesionals round. His finger.I can see right through his strategies.And I have turned myself inside the point. Where I have no more. Tears now..I just. Carryon with life. I'm done all..Good everyone.supporting a partner.etc with brain injury.because your. Sure as hell going to need lots of patience and Luck ran out.

These posts break my heart. I fell down the steps when I was 20 (12 years ago) and was in the hospital for a month with a severe TBI. I show no physical evidence and am treated as such in society and by family/friends.

Internally I am sometimes on top of the world, cocky, arrogant, just crushing life and feel great. And within minutes can be hiding under the covers for months, scared of my next thought. I relate to a lot of the comments above and feel disgusted at the way I have treated people. I've done my best attempting to get help, and fall off track often. The struggle to find help again gives me so much anxiety that I usually don't get very far.

Regarding Steve's comment from Feb 2018:
Your post broke my heart. I don't have a TBI myself, but have fallen in love with someone who was in a wreck 17 yrs ago (age 20). I have two things to share:
1) I have bipolar disorder and your mood swings and anxiety sound very much like your own. Perhaps you could get a psychiatric consultation about these emotions and inability to get out in the world-class is Soo similar to the way people with bipolar experience life. Just because you have had
A TBI does not mean counseling andl/or medication couldn't help you heal your heart. That's my own personal opinion, of course. I did just end a 25yr career working with disabled people. Two years ago I suffered cns damage due to a medication/kidney problem. Now I realize the changes in my brain and lifestyle aren't very different from the people like you who I have met.
2) have you found another source of support? I understand what it feels like to be So Lonely and sad about your life. You're not alone! Me, my boyfriend, and others have suffered, too.
(Sorry this is so long..I just wanted to help a little).

This site is helping me so much. I am reading things that sound just like my situation, when I thought it was just me.

Dating a man with a TBI he suffered 20 years ago. We are just at 5 months now. He was charming, a dream come true. This all lasted for about 3 months. He told me about the injury at the beginningbut said other than some short term memory issues, there was nothing to really know. He wanted to plan a future with me. He joined me at several Christmas invites. It was so wonderful. All of a sudden, he changed. I didn't understand. Looking at it now, I think I overwhelmed him and I had no idea I was doing it. He even has accused me of controlling him at Christmas ... but I invited him and he said yes to all of it ... but now he will say things like I was trying to control him.

He has wanted to break up a couple of times, but then was texing the next day that he loved me. The last two months have been a rollercoaster. We will spend some time together and it's wonderful... two days later, he gets frustrated out of the blue and says he wants to break up. Says he is'nt fit to have a relationship - Will even block me from his phone. Then a few days later, be back telling me he loves me. He is in really dark place. I'm trying to get him to concentrate on our friendship. we love each other but I am learning a lot from this.

Thank you so much to all of you who are posting, those with TBIs, you are making this easier to understand. I want to understand. I am starting to think that he maybe is afraid that I will see a side that I won't love so he is in this mood. I know most of it has nothing to do with me but it's so confusing sometimes.
Will I ever get that wonderful man I loved so much at the beginning back, even for a while?