Why Am I Having Seizures Seven Years Post-Brain Injury?

Question: 

I had a subdural hematoma from a rock climbing fall back in 2003. I was rescued by helicopter and taken to a trauma center where I had a craniotomy to stop the bleeding. I was told by the surgeons that I had an excellent chance of a full recovery, which proved to be true after about five months.

In January 2010, I had a grand mal seizure. After MRIs and an EEG, the seizure was thought to be a one-time event due to drinking too much and then coming home and taking some prescription sleep medication, which lowered my seizure threshold.

But a month ago, I had a tonic-clonic seizure totally by surprise. I was at a meeting and was not drinking. I had been working extremely hard and not sleeping well as a result. I was told to take 1,000 of Keppra per day which had terrible side affects. I cut back the Keppra to 250mg before bedtime and that's all. My doctor is sending me another brand of medication to try.

Why would I have seizures seven years after the accident? And, what are the chances of staying off medication and just taking good care of myself? I have been sleeping regularly and better, quit drinking alcohol, exercising, doing meditation and yoga, and I feel great.

Answer: 

Approximately 5-10 percent of individuals with traumatic brain injury experience new- onset seizures. The risk of seizure increases with increasing injury severity, depressed skull fracture, intracranial hematoma, and penetrating trauma. The risk is greatest in the first two years after injury and gradually declines thereafter.

A well-written review of seizure is available on BrainLine, written by the Knowledge Translation Center of the Traumatic Brain Injury Model System: Seizures and Traumatic Brain Injury

From what you describe, the traumatic brain injury you sustained left an epileptogenic focus. This is the injured area where the seizures start from. Conditions that could increase the risk of having a seizure include:

  • High fever
  • Loss of sleep and extreme fatigue
  • Drug and alcohol use
  • Chemical changes in the body such as low sodium or magnesium, or high calcium

Some of these conditions you can control and some you can’t. Some seizure medications have more side effects than others. It is important to speak with your neurologist about your feelings and concerns. You could also seek the consultation of an epileptologist (seizure specialist).

 

Posted on BrainLine September 11, 2012.

Comments (13)

was in and out of a psychiatric hospital in Anchorage Alaska. When I was six, my mother told an IQ doctor that she did not know my father or said he was not in the picture. They just ignored me and worked their hardest to fix my older sister simply because had IEPs. I was put outside a lot, abused, neglected, and mistreated medically in horribly violent ways. I was beaten up and bullied my entire life. In 2016, I had my head broken in four spots and a tooth knocked inward. In 2018, I was diagnosed with a new TBI.

I have seizures really bad now -- day and night. I'm a wreck socially and legally, marital problems, no university degree or chance of getting one, can not drive and I'm suicidal as f***

My husband is 41 years post tbi and had a grand mal this past Sunday during the night. We have been together for 27 years and hasn’t had a seizure during this time. Scared me so I called the ambulance. He is on keepra now but I am afraid to leave him alone. He also has a bunch of doctors appointments coming up.

I was TBI'd in 1999; by a drunk in 1999; I have seizures so infrequently; I forget; what is happening. I had on; last night; I thought was dying!!! NO: I Can't die...I just found love!!!

I suffered a TBI in 1993 and was happy to recover from it.I then started having seizures in Oct.2014 and they have been reduced but still occur every month or two.

I had a severe tramatic brain injury 14 years ago. No seizures first 2 years. On anti seizure medication. Then seizures. I have quit a couple years after that but i need anitseizure meds now. Hard time going thru dr. She had no experience in matter i think and barley spoke English. How can i see a neurologist without insurance?

My daughter suffered aTBI three years ago in a motor vehicle accident. She had an AVM that we were not aware of that ruptured on impact. She has hemeplegia of the right side, speech and language impairment. She had occasionally Chill like spasm. Didn't think much of it but it has been happening more often. Is it a siezure? Should we be concerned?

I don't know if anyone can help me, my son suffered a brain injury 6 years ago, he had 2 seizures within a week and none after that. Tonight I went in to check on him, he was laying down staring blankly, I touched him and it was like I was waking him up. Was this an absence seizure or was he just sleeping with his eyes open?

My first ever grand mal seizure happened without incident 11 years after my tbi.

This says seizures should decrease over time?? Not for me, I'm almost ten years post skull fracture and this past year has been my worst seizure activity the since accident? Used to be maybe 1-2 a year. I've had at least 6 grand mals & at least 4 or 5 almost seizure episodes! Why?

My son has been put on Lyrica....Gabapentan...Keppra...Depakote....and now Vimpat which is made by the same company as Keppra...He is having results and not any severe side effects that he had with Keppra....Keppra was the worst.

He also wears a CBD patch which lessens the severity and amount of time between his seizures..He said it also calms him.  We live in Colorado...We did live in Florida but moved to Colorado for the CBD and medical marijuana.  

I had a SEVERE TBI at age 16 but was seizure n medication free for 15 years until stress and my quitting of marijuana, then the seizures came back frequently and I ended up getting staples in my head and stitches in my eyebrow from one of the seizure convulsions episode.The neurologist put me on so many medications all which i suffered horrible side effects from weight loss to hair loss to passing out and more n still had seizures, so I decided to take charge of my own body and started back with marijuana/cbd oil, exercise, and eating healthier somewhat like the ketogenic diet and I have been seizure free for over a year now. I believe out society is too drug happy for a profit instead of doing things as natural as possible with the least side effects.

After developing seizures three yrs post injury (moderate, no surgery needed but multiple blows and shaken) I was put on Kepra xl. My headaches increased and my system shut down. The extended release built up in my system and after not sleeping for several days, I nearly died. My pain was so great and I became so disoriented I ended up thinking hours hard passed and in reality only minutes had. I was delusional. I inadvertently overdosed on pain meds. I no longer take Keppra. Deep in tyh e literature it does state, that 'this medication can cause headaches'. Duh...

Many medications given to TBI patients can cause seizures, e.g., SSRI antidepressants. A better alternative would be to use an Alpha Stim 100 (Cranial Electrical Stimulation or CES unit - currently being used by DOD at Fort Bragg in the Wartime Reset Program) and take some 5-HTP (a precursor to serotonin). Check any medication prescribed on rxlist.com for side effects and adverse reactions and avoid those that increase your potential for seizures. Acupuncture has also proven to be extremely effective. After TBI, cellular respiration is adversely affected so doing anything that improves cellular function is beneficial -- detox, detox, detox. Avoid chemicals in your food (especially artificial sweeteners which are known neurotoxins). Check you personal care products too. Sodium laurel sulfate in your shampoo can also adversely affect brain function. Hope this helps - it worked for me.