TBI 101: Behavioral & Emotional Symptoms

BrainLine
TBI 101: Behavioral & Emotional Symptoms

Why behaviors and emotions can change after TBI

Depending on what part or parts of a person’s brain are injured, the individual may experience significant behavioral and emotional changes. The frontal lobe, for example, helps govern personality and impulsivity. If damaged, there might be no “braking mechanism” for self-control. A person may find he cannot control his anger or aggression. He may also make inappropriate comments to friends or strangers not realizing they are off color.

Or the opposite might happen … someone’s personality may become muted or seemingly emotionless. This is called “flat affect.”

Some of the most common behavioral and emotional problems people with TBI can experience include:

“Mood swings”

Some people call them mood swings because for people after TBI, emotions can often be hard to control. Because of the damage to the brain, a TBI can change the way people feel or express emotions. A person may feel she is constantly on an emotional roller-coaster — full of glee and excitement one moment, devastated the next. Another person may experience unpredictable bouts of laughing or crying, which have nothing to do with how the person is actually feeling or what is going on around her.

It’s crucial for people with TBI and their families to understand that these behavioral and emotional changes are a result of the brain injury; they are not the injured person’s fault. That said, dealing with these issues can be even more difficult, especially for family and friends, if the person with the brain injury is unaware of the fact that he is different from how he was before his injury.

What to do

Consulting a neuropsychologist or behavioral therapist is a good place to start. They can help with strategies like learning to breathe deeply when you feel you are getting angry or intolerant or like redirecting your thoughts and actions to more positive choices.

With support and patience, people with TBI can learn to take action to regain a sense of control over their moods and behaviors. Here are some practical suggestions for people with TBI who experience emotional highs and lows:

  • Let friends, family, and coworkers know about your difficulties with behavior control. Enlist their help and support. For example, they may be able to help you better understand what triggers inappropriate behavior or emotional responses and help you learn how to avoid those triggers.
  • Confide in friends or family members. Sharing your worries helps lift the burden.
  • Clean up your messes. If you have acted inappropriately, apologize.
  • Tell people to walk away from you if you have an emotional outburst. They can talk to you once you have calmed down.
  • Avoid people, places, or situations that trigger inappropriate responses.
  • Join a support group or find a peer mentor. Talking to others who have “been there” can help.
  • Get regular exercise. It’s good for the body and calms the mind.
  • Try learning to meditate to keep your mind clear.
Posted on BrainLine June 13, 2017.

Comments (56)

Please remember, we are not able to give medical or legal advice. If you have medical concerns, please consult your doctor. All posted comments are the views and opinions of the poster only.

I am an 84 year old Air Force veteran who sustained back, neck and head injuries due to an Oct 1956 auto accident, requiring a few days of hospitalization. I was rendered a head concussion. I presented claim to the VA primarily for the back condition as well as hearing loss. I have now received notice from a contracted VA examiner to have an exam for TBI It will be held at a round trip distance of 100 plus miles. at at nationally known hotel (Fairfield Inn). Sadly the DO specialty is in gynecology in which operates an office when is not on a VA assignment She works, and resides in Morehead City, NC. My questions is how can an exam for TBI be properly performed 60 years post trauma, and in a hotel room, lacking any medical diagnostic equipment? Please hel someone.

Hi, my four year s boy was got cardiac arrest as they were doing sergical operation on him. Its one month and he doesn't know what is going on.he over cry at night yet that what he used do when he was very young (from 2 to 6 months. Am confused with this experience.Is again doing what he used to do when he was still or is it also progressing from brain damage

I was in a auto/semi accident 3 years ago. I have been dealing with the physical issues and surgeries for most of this time. Now that I’m through the major stuff the cognitive and behavioral issues are still here and I feel like they may have gotten worse if that’s possible?

My husband has his own anxiety and issues making this all the more difficult. He has told me he’s done with me and all my excuses. He doesn’t believe I am doing anything to make things better. He believes at this point I’m using my TBI as an excuse for just being a selfish b****. I’m sad and overwhelmed, I just feel defeated. I have a horrible time with most everything around executive function and emotional control.

I have quite a bit of deficit with executive function and processing information correctly. When my anxiety is up is very difficult. I don’t seem like I can get a control of my emotions and everything seems overwhelming when this happens. I go from good, to sad, to upset to just crying. I don’t seem to be able to make the right decisions and then everything spirals. I don’t want to be like this and I just want my husband to be on my team. He’s extremely smart but seems to not want to help the situation. I wish he would take the time to educate himself on what’s actually happening before he packs up and leaves.

Wow, I just read your post and was floored. I know exactly how you feel. It's been 3 years since my 1st car accident. It's not fair but how or where do you get the strength. I have good days and then there is bad days... ugh. I had not realized the effect it has taken on me or my family until recently.
My other half is having his own issues from the accident which, like you mentioned adds a whole other layer to coping. Have you found anything that helps you?

Turn to God. He will never leave you and understands all things. I am so sorry that you’re coping with this.

I never knew that TBI was a thing until I mentioned a childhood incident to my psychiatrist at the VA about a year ago.
At 6 yrs of age I fell from a tree and struck the back of my head on a large pine root. I was told that I was out for about 9 min. My Doc was very intrigued by this and wanted to know more. When I asked why, he said it was a TBI. An education followed.
I informed him that it was not the first time that I bumped my head. At age 9 I fell from a tall structure and struck my forehead on the concrete. The old lady who saw it had to clean a lot of blood from my face and eyes, and told my mom I was out for about 5-6 min. A doctors visit and stitches followed.
A very short time afterwards,also at age 9, I was stricken with bacterial meningitis and was comatose for 1and a half weeks I was told. As a result I suffered ‘acquired brain damage’. That one the doc and I were aware of.
Finally at age 24, while deployed overseas in the Army, I was struck in the back of my head again by a grapefruit sized piece of metal shrapnel. Blood and stitches again. My pals told me I was out for at least 40 min.
My psychiatrist sort of scolded me and said I should have told him these things at the start of my treatment here at the VA. I simply regarded them as childhood growing pains so to speak. My brother and my friends and I were very rough boys growing up and had many bad injuries. A few resulted in trips to the hospital. We simply thought nothing of them, and couldn’t wait to get out and play again.
I have been re diagnosed since last year with severe cognitive, and motor dis functions due to multiple TBIs and also acquired brain damage From bac. Meningitis. I have some embarrassing issues such as bad speech, learning disability, clumsy walking and falling, severe confusion, facial grimacing and debilitating headaches. There is also a white spot in the center of my vision that never goes away. I can’t hold a job and I tend to isolate because I make folks uncomfortable. They can’t figure me out. Nor could the wife. She’s gone, which I think was in her best interest. I was hard to live with. My oldest son and my younger twin sons are my anchor and my life. They refuse to give up on me and help me a ton.
I am still learning about this and receive medical treatment at the VA. I value the accounts of others like you all. It helps me to understand and function better.
I am so sorry to hear all of your stories and your suffering. I wish I could make it all disappear for all of us. But such is life. Be strong and embrace those who love you most. Almighty God will make us whole again soon.
Any advice is more than welcome.
Blessings to y’all. Thx. Vic.

I had a TBI in 2002 and I have been dealing with mood swings and depression and being socially awkward and distanced when I need to present. I have been married 2x and I can’t seem to hold any form of relationships down bc of lack of sleep I get. I do yoga and meditation pretty much on a regular but I still find it extremely difficult to make it through the day. My current mood is I’m in the dumps...I wish sometimes to just fit in. I look physically healthy but the issues my brain gives me is a challenge...

So I’m 22, I was in a bad car accident 4 years ago. I have a TBI Was in a (Coma). And I’m trying to figure out life with it. It’s been the hardest thing I’ve ever had to deal with, because people don’t understand. I have long term/ short term memory loss. I have no feelings. I have anxiety, depression, PTSD, mood swings, and seizures. I don’t know how to control my good choices from my bad choices or to recognize the consequences in different actions. And for me people just don’t understand, they don’t understand my train of thought. Because each day is a new day to me. And I just want to be happy. But I don’t know how to overcome all of this and move on. People just expect it from me, while I’m just trying to make it to the next day.

You’re doing amazing. Some people, maybe even most wont get it, stick close to the ones that do and they can help support you finding your new normal. For now. Once you have embraced that, I bet things may improve over time with your brain or you may find that the unconditional love and support of others, whether they get it or not, is more valuable. Brain injuries are tough, just like brain trauma is from being abused or neglected, then people do not tend to understand their choices or behaviors too. You got this.

Ashley,
Please reach out to a support groups. I know with coronavirus, it is not easy but look up online support groups and services in your area.Something else that might help you to feel empowered is to advocate for others and yourself, that have TBI's.Just that you can reach out tells me your strong.You never know what you could accomplish or who you could help. For an example starting a group in your area,hooking up with libraries, hospitals, schools and your community in your area to bring awareness of
TBIS which could help with schooling, vocational training, and speaking about your experience with others. Believe in yourself, and know your not alone.Best Wishes,Donna

I'm right there with your issues. I'm 38 years old. I was in my accident in January 2012. Coma, family said doctor gave me 5% to live. TBI, broken back, ribs, partial finger amputation. Memory issues seem to have just started more for me. I think it maybe based that my wife, whom I married June 2012, is getting a divorce with me. We have 2 children, my oldest with ASD (Autism) and my 3 year old daughter. I just missed a month and a half of work to go to therapy because I don't understand what I've done wrong. Never abused physically or mentally. I have provided everything for family. I'm working through therapy and it's helping. I did just have a breakdown tonight but I got out of it. I pray that you can find what can help you. I had a coworker tell me that we are a team. I agreed but said that I'm working on ME to make the team better. Wishes for you.

It’s extremely difficult to be dealing with a chronic issue like this at your age. Know that you are a beautiful, valuable person, and that yes, it will take a lot of adaptation and finding alternative ways of doing things. (For example, writing everything down and reviewing it could be helpful, if not implemented already. Cell phones or tablets are very helpful.). You can still have a full life, learn new and fun hobbies, and you can meet some truly amazing people along the way - especially care providers and other people who’ve gone through similar things. Part of grieving acceptance of the injury is fully acknowledging this is your life, but it does not define your value. It is totally not a fair expectation that you can “just move on.” Someone who has not gone through this will not comprehend this. It’s ok to let that be ok, and advocate for yourself, but cannot “fix” someone else’s perceptions. Remember with the teeniest, tiniest baby steps, change can be achieved. Do it for you, yourself, and you, at your pace. Not for someone else. There may be many things that people tell you that you can’t do. It’s ok to challenge the norm that little by little and see what’s possible. Best wishes to you - know that you’re already a fighter!

Ashley,

All I can do is share my story and hope you can find something in it that could help you.
I was in my first car accident in 2005. I was never in a coma or even spent any time in the hospital. But reading your story, I could feel your frustration, because I been there.
My head injury was a closed one, which means your brain hits your skull. I was hit straight on the driver's side, then the vehicles slid sideways.
I found out later because my Bronco wasn't that broken, that is was acceleration, deceleration of the impact. Which simply means instead of the force going into the vehicle, it is absorbed in the body.
I pulled a lot of nerves and muscles, I was in chronic pain, along with a brain injury which I had to figure out on my own because even though I was functioning, I really wasn't, no one told me I had one. Trial and error and research was the key.
I was the scariest thing I had ever gone through at 45. I had short term memory problems and on and on.
One thing for sure, some people might understand, but most, unless they have gone through or have a loved one who has, then they can't possibly know.
I decided that I was going to figure out what was good for me and stay true to it. I started paying attention to what was working and what wasn't. Even if it was a professional telling me if it felt wrong or hurt I wouldn't do it. Ya people get mad, but hey so what!
I would pace myself, sleep when I needed to. Close myself off if I needed that.
I was my own best friend.
I think we all have unseen protection from God or a higher power. I times when I couldn't forsee a situation, I would just ask for help out in the universe or say a prayer. It really works.
The brain is an amazing organ. Doctors would say, " don't know if you'll get back where you were".
Well maybe I didn't get back, but I got a new normal, that I was comfortable with. The brain will on its own time.
It's important to stay healthy, with eating habits and sleep.
So what makes me an expert, lol! Well, I"m not but, I 2017 I got hit from behind at a stop light. The people behind me were going about 30 mph, without breaking. I was 59.
I did not lose consciousness, didn't go to the hospital. kinda the same stuff.
With the first accident, all that happen was like a bee sting in the brain.
This time I got out to look and ask questions and instantly had nausea. Also blurry vision.
What I discovered was another head injury, with a different part of my brain.
I was just as scared as the first time, but I had more knowledge and boundaries dealing with people.
It didn't alleviate what I had to go through.
For seven days or say I slept. Every time I get up I had nausea. This kept up for 6 to 7 months. Blurry vision I still have. And boy that is scary because I was thinking I was going to go blind, even though I have 20/20 vision.
It's been 3 years and I am still struggling, but I am also getting better as my brain does its own healing.
I say, " Why me Lord", well I haven't got an answer, lol! Maybe it's a test or testimony.
I live in Missoula Montana, and they have 0 help for brain injury, except for the association support group.
Like in Durham Nc, they have a lot of knowledge about head injury and clinics and stuff. Who has the money to do that???
I research a lot. I started art therapy a few years ago and collaborated with art with my cool counselor.
It is healing. you can do your own journaling, with collage paint or whatever. It helps you get out of your head and I think it helps heal the brain, at least it did for me.
The second head injury I was in a three year relationship, it ended after the car accident. He was not understanding and wouldn't allow me to heal, so I had to make a healthy choice.
I play my guitar and do my music, even though I have a problem with memory, I never give up. I go at my own pace. Try to stay a steady course, but if I can't I start again, try not to beat myself up. I just get up and show up, and go from there.
This is the most I've shared with anyone online. I hope this is helpful to you, or whoever reads.
Never give up! God has a plan!

I cannot control my emotions
Some friends and family feel
that since this happened to me
20 years I am completely cured
How can I get them to understand?

Same, over 20 years and it totally depends on my reserve, or mental energy. If I do nothing and sleep a lot for several days I can function much better. But still I have just considered myself emotionally bankrupt. Any and all intense conflict, stress, accusation, or even negative energy caused by a family member or someone close enough to get inside my head can drain my mental and physical energy almost instantly. Or trigger rage, uncontrolled shouting, or make me tremble and shake with uncontrolled nervous energy. I simply must avoid all negative energy and toxic people. So I have basically devorced my entire family, some entirely, others less so. I am supported and encouraged by medical practitioners to protect my peace.

In terms of outside stimulus of severe and threatening nature from total strangers I am just the opposite. I have been threatened, assulted, even an attempted armed robbery at knife point and I simply ignored, even laughed and walked away totally unphased. Cool as a cucumber but strangely detached. This I seem to have little control over, or never know how or why sometimes I do, other times I don't get ruffled.

Hi Permalink, I've had TBI all my life since I was a child (for about 45 years) and people still do not understand... though some friends and family member learnt to love me no matter what!

The Charity Headway has been amazing in supporting me through rough patches. They have lots of information and leaflets you can give to your friends and family to help them understand, and for you to learn how to manage your specific symptoms. They also have support groups and specialist therapeutic support (although at present, with the Covid pandemia, they had to temporarily reduce they're services). Check them out at https://www.headway.org.uk/

Good luck and don't give up!

When you abbreviate or use acronyms , define it so readers understand what the acronym stands for.

TBI stands for Traumatic Brain Injury

Thank you. I am still recovering from a TBi that happened from a horse accident less than 2 months ago. Since the beginning I’ve had such issues with feeling overwhelmed with loss of physical and emotional control. It’s improving but I still have bad days. Occasionally, usually mornings, I feel nearly debilitated with frustration and crying for no apparent reason or way to help it. This post has reassured me that it’s not my fault and I’m not alone in this. Things will get better as healing continues and I’m so grateful to have a wonderful helpful husband.

I had a TBI (Coma) when I was 8 years old and have had multiple side effects from it. I currently have seizures and lack the ability of impulse control and various other side effects It has been struggle. I lost my job due to a seizure. I am positive I have CTE. Coping through life with a TBI is hard but not impossible. I many individuals that have provides support for me (Wife, family and Doctors)

I am so grateful for this information. My husband suffered a TBI before we met. This helps me understand as he is not willing to talk about how the brain damage effects him.

I am in the same situation. My 'now husband has a TBI before I met him. We have been together 10 years and Married 3. Every day is a challenge in one way or another.

This information is extremely helpful!! I had a stroke a few years ago (at age 41) and I haven't been able to figure out what was wrong with me me, until now!!!

I recently had a craniotomy and I can’t control my emotions and actions. No one believes me. I’m all over the place and I don’t know what to do

I'm not a doctor or care giver but I do have TBI and can relate to the feelings, frustrations, and experience you seem to be describing. I believed I was having a "breakdown" rather than suffering from a head injury. My loved ones told me to either "toughen up" or expressed their disappointment (those that stayed in touch). You are NOT weak or "nuts". I'm sure you have heard it but go to a doctor. Just having someone confirm what you already know inside will be a huge relief (it was for me). I'm inclined to ignore advice suggesting "professional help" as much as anyone but this is not the kind of thing that lends itself to that. If the person(s) in front of you can't help or don't understand move on to someone who does. Things get better.

I believe I am dealing with someone who has TBI and stand on the other side of this horrible life stealing / mind altering medical illness. My boyfriend has never told me that he had Head trauma years ago and that he might have TBI, but after 2 years of being with him in a relationship ...signs /symptoms got worse and it was very clear that something was not right...I thought I was having a nervous breakdown myself. The roller coaster of emotions/behavior/personality is taking it's toll on me. I see so many behaviors, language difficulties, mood swings, flat affects, the outbursts, poor judgments, impulsiveness, egocentric, risky behavior, and not too mention at times poor hygiene, etc. etc. It is not easy when you are in a relationship with someone like this especially if you are not aware of what is going on. Professional help is required because symptoms can get worse especially if the person with TBI turns to alcohol or substances abuse in order to mask the symptoms. Suicide becomes a enormous risk factor and if they experience more head trauma then than can lead to CTE.....Chronic traumatic encephalopathy, which is VERY VERY dangerous and can be fatal.
(See the story on Aaron Hernandez professional football player ) I believe he did murder someone but it was due to the CTE disorder and not pre-meditated. It/He might have been triggered and impulsive which led to bad decisions. See help. I am dealing with a person who has yet to tell me if he does indeed have TBI , and I am no doctor or professional in any medicine field but I know what I see and observed enough over a two year span to know that TBI can be extreme and lead someone to turn to drugs or alcohol abuse ----even sexual behavior that can be life threatening to the person with TBI or even their partner. I thought I was dealing with someone who had multiple personality at times, bi polar, or perhaps even a demonic spirit but after reading many articles and stories and observing first hand day in and day out with behaviors of my boyfriend I have come to the conclusion he has sever TBI and because he drinks alot and had more head trauma due to alcoholism and then im scared he has developed CTE and is in his first stages. Unless it is a Brain Tumor which is the only other thing i can think of. However It is tragically sad, but needs 24 hour monitoring and keen observation. Regardless seek help

26 years ago I survived a very violent attack from a stranger/intruder that left me in a coma for three and a half days. He kicked me repeatedly in the head, and I had over 400 bruises on my body. I wasn’t recognizable until 2 weeks after. He’s been out of prison for 12 years now, but I feel like I’m still in mine. So grateful to find this website and a community of people who can relate. Literally no one else in my family or social circles can relate. This site makes me feel far less alone/ashamed/helpless. Thank you all for sharing your stories and suggestions here. It really is a big help. All the best to all of you.

The invisible illness that no one can see so they are to shallow to see. I find that people with special needs get it. They understand what you're experiencing because they have been in our shoes for a lifetime.

18 years I also survived a very violent crime like yours. I still have nightmares, and of course that is part of PTSd. Last year I got a TBI at work. It is so difficult because with both things people can't see your injury. I've actually never met anyone else who has survived something as horrific. It never leaves you.
Much love, I know how lonely it is.

Praying for you! My husband was assaulted 6 months ago and was in a coma for about two weeks. He still can’t speak or use gestures but communicates in other ways...hugging, laughing. Its hard to accept that the person who did this is still out there, living their life as my husband and I struggle in out current situation. I quit my job to become his caretaker and I am up at all hours of the night checking on my husband. When I reach low points, I remind myself that God is in control and He will fix things. Sometimes we can’t understand His ways, but one day things will make sense again. Dont give up hope!

I was in a car accident when I was 16 yrs old. Collapsed lung, compound fracture to my femur, and a traumatic brain injury that left me in a coma for six days. Spent four months in hospital and another six months in at home rehab.

Life has been good to me as far as blessings are concerned. I am 100% fully functioning adult, a beautiful wife and kid, wonderful job (thankfully don't have to think too much at it) that enables me to live a have a pretty comfortable lifestyle. Here it is 26 years later and I'm still chugging along but have been thinking and looking into my future and what I can expect.

EVERY Seen websites showing life expectancy of TBI patients to be around 20 years, so I expect the lights to go out any day now, but also seen websites of people living a full life.

I have had and still have issues with every common behavioral and emotional problem listed above. I can 100% say without a doubt that every common emotional and behavioral problems listed above is something I have dealt with, and continue to deal with daily.

I am usually ashamed of my behavior after I get through my "funk" and look back at my actions, or see the stress that I have caused on my family due to my behavior. I am fortunate to have a wonderful wife, who teaches psychology and physiology, that has the patience and endurance to deal with me. I am forever grateful to her!

Sometimes it really hurts me to see her reactions to my f%^@ed up ways, and unfortunately, due to my lack on apathy and empathy, I am left standing there watching her hurt, yet all I do is just stand there watching. That destroys me inside. I wish I could turn the a**hole off, but I can't seem to flip that switch off.

Gotta get back to work. just wanted to reach out, vent. Be back later.

So I’m 22, I was in a bad car accident 4 years ago. I have a TBI Was in a (Coma). And I’m trying to figure out life with it. It’s been the hardest thing I’ve ever had to deal with, because people don’t understand. I have long term/ short term memory loss. I have no feelings. I have anxiety, depression, PTSD, mood swings, and seizures. I don’t know how to control my good choices from my bad choices or to recognize the consequences in different actions. And for me people just don’t understand, they don’t understand my train of thought. Because each day is a new day to me. And I just want to be happy. But I don’t know how to overcome all of this and move on. People just expect it from me, while I’m just trying to make it to the next day.

I have an adult son now 30 and his TBI was 12 years ago. I took care of him the first 5 years and then he went to a rehabilitation facility, to help him become more self sufficient and independent. Unfortunately he was unable to finish the 9 month program, (due to his grandma dying, who he was very close to). He now lives in a CILA, he too has had all of these symptoms and issues. I am his guardian and his biggest supporter. It is so difficult for me, I have exhausted all ideas of staying one step ahead of him. He's tried working at workshops but they fire him because of his inappropriateness and following rules. All that is on his mind is drinking and smoking pot. Part of me feels bad for him because he will never have that hanging out with your buddies after a hard days work and having a cold one. I have drank beer with him on special occasions. But he is aware enough to know that's what men his age and his old friends would be/are doing before his accident and now he has his mom telling him at 30 he can't. He recently got him self a job hosting, he was there 4 weeks and got fired because he told a sexual joke. Not the first time this has happened. These are the things I find difficult for me and him to understand? He also hates the house he lives in and actually I'm not real impressed either. I live in Illinois and he has no outside help from the state like he should, how is he going to be able to ever live on his own if he has no goals and programs that he should be involved in?? Just wanted to vent!

Thank you for your post.. my son was in a car accident and has a TBI. As a result he suffers from epileptic seizures and is in the hospital for the 3rd time. He is impulsive and his emotional outbursts and lack of effect I didn’t realize was a real and true thing. This helps me to realize I need to practice so much more patience and love. Thanks again❤️

Thanks buddy....i hear u

WOW. That’s all I can say right now. I had almost the identical situation, at the exact same age (with the exception of the physical injuries.)I “absorbed ALL the impact thru my head, 90 some odd stitches, slept, unconscious? IDK for 3 days. LONG story short, here it is 28 years later with a wake of what I would call “destruction” in my life (behavioral issues, severe impulse control, substance abuse, almost EVERYTHING I have read that relates to TBI, frontal cortex, and I am astonished to see, finally, that possibly this hasn’t been just me “acting out”, “misbehaving”, or turning off the ass#*&! You describe in your post. No pun intended but it is “mind blowing” to learn of these symptoms in others. I guess without getting too involved in this, what would your advice be to someone you cared about, keeping in mind this was almost 30 years ago, what should my FIRST STEP be? I live in the northeast (Boston pretty much) if that helps, but as of this moment I’m so overwhelmed by what I’ve read in the past 16 hours or so, I don’t know what I should do first. I can relate to, have experienced, continue to experience, almost EVERY sign and symptom described by yourself and other research/ medical based symptoms of TBI , primarily frontal cortex. Like yourself I am pretty much a fully functioning, working, adult with probably 500 experiences I could list that indicate this as a cause. I can so relate to one moment being “fine and dandy” to an overwhelmed, confused, irresponsible person who sees it, but can’t “shut it off” as u described. I’ve been treated for everything from depression, anxiety, PTSD, ADHD, substance abuse, primarily OxyContin in its day, and a host of others. Too much to list but who and what would your first actions be to begin to possibly have this treated (if possible) , aleviate some of the symptoms I’m sure u know well firsthand, to living a better life. Thank you

My 19 yr old son was in a horrific accident in May of this year. He was thrown from a rolling truck going at least 75-80 mph. Upon paramedics arrival he was unresponsive. He was flew to thee most worst hospital ever known to man. Besides the malpractice, and the disrespectful care that I had to watch my youngest son go through, he had 3 fractures in his skull, a broken collarbone and pelvic. His brain was shifted to the left, so there was bleeding in the brain. So for 5 weeks, we were stuck in this hospital that wasn't certified or qualified for his injuries, I don't know how I made it through that but I did. After the 5 weeks there, by the grace of God I somehow found a way to get him transferred to Where we live. A place where he should have been from day one of his accident. Since then he's been in 3 different facilities and now he's home with me, my patience are running short and thin. I know better to argue or yell back, its just so hard to deal with or cope with this different child of mine. I guess I'm asking for any advice on how to help both of us, to learn how to take steps on our actions towards each other. Or maybe just some technics or exercises to relax one another. He feels I'm being to protective of him, I feel like I'm just making sure it doesn't happen again. Dr.states that hes not ready to be on his own, but he thinks he is. I'm not recieving any help from any services or facilities with this matter. So, please any information is better than none..Thanx

Hello. sorry to hear of your situation. My bf suffered a TBI in August due to a motorcylce accident. It has been a rollercoaster for sure. I just wanted to reach out and see if you have hear of any state rehabilitative and assistive services? We live in Texas and here it was DARS program now just rehabiltative services provided through the workforce commission. Hopefully they can assist you with some resources. They may even help with family counseling. For methods of relaxation you might can look into and research on sensory integration or sensory processing disorders and treatment techniques or suggestions on calming . Pinterest and youtube are both great resources as well on those topics. I have also seen some similarities between Autism and TBI that both can provide good tips or strategies for you. Hope this helps out. Occupational and Speech therapy resources also on pinterest.

You can apply for him to get social security disability insurance under you or your husband’s social security number. Then he can get medical and educational help and you can get paid to be his caregiver.

If you are in a state that In Home Supportive Care and he is income qualified you should check with Social Services in your County. If the Dr states he cannot live on his own, then getting him/her to fill out forms should be easy. Just follow the steps. If you are not getting In Home care your insurance can help. Ask for everything!

hey please consult a doctor i had a TBI mild one which changed my personality but now i recovered do help him with a doctors advice. like mostly it will affect education

My fiance` had a TBI 20 years ago. When he gets into his "rages" the only way he makes himself feel better is by apologizing for being an "a**hole".
I understand how he lacks empathy (he also lost the ability to cry). It is very hard to deal with, at times I'm afraid to stay in the relationship (for my children). He has never been physically abusive but his "bits of rage" can be very frightening. He can get very vulgar in his language and slam doors - which my children are NOT used to. I am sorry for you all that your injuries have happened but I am glad to know that we are not alone in this.

My situation is similar. My boyfriend/fiancé/husband suffered a brain injury when he was younger. the accident makes him the person I love today. It pains me to see him suffer. He's a very smart man. There's no arguing with him but on occasion he breaks out in violent outbursts almost as though he wants everyone to suffer because he is suffering. We have split up several times and every time we get back together, however, the angry outbursts get worse, just like his mother warned me. I love him so much, that I keep him in my prayers. Currently we are separated because of his spontaneous angry outbursts that happen every 6 weeks to 3 months. That seems to be routine. Drinking, drugs, and some prescribed medication actually makes it worse. His mother is always right. He's punched me in the head to the point I lost conscience, he's strangled me, put his knee in my back, threatened me on more than one occasion spontaneously. Since I have met him, I feel obligated to care for him because I know he has a previous head injury. Now I have one too and I still need to see a Dr. about my neck injury from when he strangled me and tried to break my neck, The court system has given him a lot of chances because of his head injury.

I completely understand ..I have dated someone for two years now and I have experienced the same. It is very hard and draining. I love him but Im scared as well.

To Danae, you are not bipolar. I survived a very violent and abusive childhood. My sister told me a psychiatrist helped her. Because I moved a lot, I was seen by different psychiatrists, here are the different diagnoses I’ve received: depression, bipolar, PTSD, PTSD with recurrent depressive episodes,generalized anxiety disorder...now I’m back to bipolar “because your sister had it”. I’ve also been placed on medication with life-long side effects. NONE of this prepared me for the severe, unanticipated emotional roller coaster I have now after my TBI. CT and MRI negative for bleeding, must be no injury. In fact, I had a grade 3 concussion (does not show up on CT or MRI). I was told I needed to see the psychiatrist about my “bipolar disorder. NOPE, increasing drugs made it worse. Bipolar is episodes off depression, and episodes of mania. NOPE, since my TBI, I’m not bipolar, I’m mega polar; depression, anxiety, paranoia, hope, no motivation, insomnia, disturbance in smell and taste, anger, those are just the emotional part of TBI. It can change at any moment. What is hardest to deal with is people telling me I look just fine, i’m Crying inside and being shamed on the outside.

Boy do I get what you said here. I am 8 years in, and I am still a mess. No support whatsoever. Nobody wants to be a part of my life because of my emotional incontinence I have been labeled the drama queen. No more family or friends for me. :(

thank you for sharing your experience i learned alot about what i've undergone, i havent really had an overall formal medical consultation, just some, my resources are limited, right now i had a hard time working, only had 1CT Scan (the day of the event), 1 MRI only 10 years after, a consultation after 3 years from neuro, conclusion i still dont have the exact therapy or medication that i needed, all this made possible by friends and family, but everything else would be costly, its my fault though, because i havent researched enough on who to go to, life was very very difficult, mostly critizied at work, tardiness and all, had resigned from jobs i love, and now i am very helpless in making a living, but im trying and giving my best, i want to recover, i have dreams, i have plans, i
still cry it out, because we need to be sad sometimes, im very emotional right now because im not alone with this case, and i am thankful because im lucky to just have this case, others have had worse cases ,i had head trauma way back my elementary days, I was the smallest of the class, people always made fun of me, the tallest girl in our class carried me like a baby while she was spinning, i cried for her to stop, until she went out of balance and hit my head on the metal foot of the school's water tank, from that very moment i saw white light like crack on my vision, i kept vomiting, CT scan was difficult but i had to hold my vomit in, none was seen, no bleeding, no fracture, not even a bump, after the CT scan i signal for something to throw up, to their panic they handed me a trash can, only to find out it has holes and no plastic on it, it was hilarious, my humor for a 12 year old child, now i am 26, eversince that event my life changed, but i kept being strong and smiling all the time, i have been mostly laughing, i mostly wanted to be happy, but inside i feel so psychotic, yeah it would drive you nuts, sometimes im so down and crying, i have no idea why crazy was happening to me, at times i was so angry, at times i feel so lonely, i havent had the right professional help, i only had me to help myself for my crazy, still improving on everything, but giving it my best, well im sick as of the moment, got gastro and ENT Amoeba, side effect of the medicine is vertigo, 10 days, 3x a day, have 2 more tablet to go!!! gave my best not to puke, but imagine the hell i have to go through after 3-4 hours of taking it, well i must survive, i want to earn so badly even though i dont have a living right now, very lucky to have people close to me fund my needs, just kept praying and praying, i know the future is bright, and it ok to complain, it is ok to show im hurt and having a hard time, but i try my best to calm down and not have panic attacks, succeded yesterday drank hot water, focused my breathing, applied ointments, i sweat it out while on lotus position, no fan and all, after sweating i wiped it had a clean shirt, and rested, still no fan, would strive harder for me to get a massage and acunpunture, also yoga, and go to doctor for professional help, well thats when i can afford it, fighting for me! thank you for sharing and thank you for reading :)

I was violently attacked with a gun 5 years ago, and though m y attacker didn't pull the trigger, he hit me in the back of my head at least 5 times, leaving a clear mark of a gun busted open near my crown, and several smaller gashed behind my left ear. I had a ct scan that night that came back negative for a concussion, was stapled shut and sent home. After the event I went through visual black outs when moving from seated to standing positions, as well as some slurred speech according to some of the people who were around me in the following weeks. Over the years I have noticed almost all of the symptoms above, and I am starting to question if they are related to my injury. I can remember every detail as if it were happening though, and thinking about it gets me so emotional that I get headaches and physically worked up. Could these symptoms be a part of undiagnosed TBI?

Yes and from what you have described, it sounds like you have Post Traumatic Stress Disorder (PTSD). Please look into a therapist as well as your Primary.

First of all thank you for addressing many unspoken we TBI patients experience on a daily basis at times they lead to actual true physical neuro melt downs. I am now 46 and at 28 (holistic, vegan, health nut to the core plus a daily five-mile runner) I suffered a misdiagnosed double aneurysm and a massive SAH. The one right temporal ruptured the second gargantuan left CVA/avm was clipped via craniotomy. My personality etc changed drastically my emotions intellect interests palet etc etc my headaches are intense on a daily basis. I try to lean on my family except their response is “your surgery was a long time ago and the more you focus telling us why you are tired or why you can’t remember or act erratic or tell anyone you had brain surgery you are just reliving it. You suffered physically but we suffered emotionally” Um I want to scream. I seek to move near the beach their reply? 20 minute drive is too far. I try my best at everything yet I hear I’m too slow I’m too moody and that’s not the surgery. Again screaming anyone? I’ve emailed them articles they don’t read it they do not attend my support groups etc. Stress kills me and this year I’m experiencing the loss of a 24 year relationship/18 year marriage with an extremely evil emotionally abusive man. It’s caused me to suffer a stress-induced seizure due to low sodium. My mother feels I need to look at others suffering and stop being so selfish. Um again I want to scream. How can I help them understand? How can I taper down my frustration?

Pages