Seizures and Epilepsy: Frequently Asked Questions

BrainLine
Seizures and Epilepsy:  Frequently Asked Questions

What is a seizure? If someone has a seizure, does that mean they suffer from epilepsy?

A seizure is a a sudden surge of electrical activity in the brain that usually affects how a person appears or acts for a short time. Many different things can occur during a seizure. Whatever the brain and body can do normally can also occur during a seizure. The occurrence of a seizure in the presence of some acute precipitating physiological disturbance does not mean that it will ever happen after the precipitating cause has resolved. When seizures recur without any obvious precipitant or cause, then a person may be considered to have epilepsy.


What happens during a seizure?

Seizures have a beginning, middle, and end. Not all parts of a seizure may be visible or easy to separate from each other. Every person with seizures will not have every stage or symptom described below. The symptoms during a seizure usually are stereotypic (occur the same way or similar each time), episodic (come and go), and may be unpredictable.

Beginning

Some people are aware of the beginning of a seizure, possibly as much as hours or days before it happens. On the other hand, some people may not be aware of the beginning and therefore have no warning.

Prodrome

Some people may experience feelings, sensations, or changes in behavior hours or days before a seizure. These feelings are generally not part of the seizure, but may warn a person that a seizure may come. Not everyone has these signs, but if they do, the signs can help a person change their activity, make sure to take their medication, use a rescue treatment, and take steps to prevent injury.

Aura

An aura or warning is the first symptom of a seizure and is considered part of the seizure. Often the aura is an indescribable feeling. Other times it’s easy to recognize and may be a change in feeling, sensation, thought, or behavior that is similar each time a seizure occurs.

  • The aura can also occur alone and may be called a focal onset aware seizure, simple partial seizure or partial seizure without change in awareness.
  • An aura can occur before a change in awareness or consciousness.
  • Yet, many people have no aura or warning; the seizure starts with a loss of consciousness or awareness.

Common symptoms before a seizure

Awareness, Sensory, Emotional or Thought Changes

  • Déjà vu (a feeling of being there before but never have)
  • Jamais vu (a feeling that something is very familiar but it isn’t)
  • Smells
  • Sounds
  • Tastes
  • Visual loss or blurring
  • “Strange” feelings
  • Fear/panic (often negative or scary feelings)
  • Pleasant feelings
  • Racing thoughts

Physical Changes

  • Dizzy or lightheaded
  • Headache
  • Nausea or other stomach feelings (often a rising feeling from the stomach to the throat)
  • Numbness or tingling in part of the body

Middle

The middle of a seizure is often called the ictal phase. It’s the period of time from the first symptoms (including an aura) to the end of the seizure activity, This correlates with the electrical seizure activity in the brain. Sometimes the visible symptoms last longer than the seizure activity on an EEG. This is because some of the visible symptoms may be aftereffects of a seizure or not related to seizure activity at all.

Common symptoms during a seizure

Awareness, Sensory, Emotional or Thought Changes

  • Loss of awareness (often called “black out”)
  • Confused, feeling spacey
  • Periods of forgetfulness or memory lapses
  • Distracted, daydreaming
  • Loss of consciousness, unconscious, or “pass out”
  • Unable to hear
  • Sounds may be strange or different
  • Unusual smells (often bad smells like burning rubber)
  • Unusual tastes
  • Loss of vision or unable to see
  • Blurry vision
  • Flashing lights
  • Formed visual hallucinations (objects or things are seen that aren’t really there)
  • Numbness, tingling, or electric shock like feeling in body, arm or leg
  • Out of body sensations
  • Feeling detached
  • Déjà vu (feeling of being there before but never have)
  • Jamais vu (feeling that something is very familiar but it isn’t)
  • Body parts feels or looks different
  • Feeling of panic, fear, impending doom (intense feeling that something bad is going to happen)
  • Pleasant feelings

Physical Changes

  • Difficulty talking (may stop talking, make nonsense or garbled sounds, keep talking or speech may not make sense)
  • Unable to swallow, drooling
  • Repeated blinking of eyes, eyes may move to one side or look upward, or staring
  • Lack of movement or muscle tone (unable to move, loss of tone in neck and head may drop forward, loss of muscle tone in body and person may slump or fall forward)
  • Tremors, twitching or jerking movements (may occur on one or both sides of face, arms, legs or whole body; may start in one area then spread to other areas or stay in one place)
  • Rigid or tense muscles (part of the body or whole body may feel very tight or tense and if standing, may fall “like a tree trunk”)
  • Repeated non-purposeful movements, called automatisms, involve the face, arms or legs, such as
    • lipsmacking or chewing movements
    • repeated movements of hands, like wringing, playing with buttons or objects in hands, waving
    • dressing or undressing
    • walking or running
  • Repeated purposeful movements (person may continue activity that was going on before the seizure)
  • Convulsion (person loses consciousness, body becomes rigid or tense, then fast jerking movements occur)
  • Losing control of urine or stool unexpectedly
  • Sweating
  • Change in skin color (looks pale or flushed)
  • Pupils may dilate or appear larger than normal
  • Biting of tongue (from teeth clenching when muscles tighten)
  • Difficulty breathing
  • Heart racing

Ending

As the seizure ends, the postictal phase occurs - this is the recovery period after the seizure. Some people recover immediately while others may take minutes to hours to feel like their usual self. The type of seizure, as well as what part of the brain the seizure impacts, affects the recovery period – how long it may last and what may occur during it.

Common symptoms after a seizure

Awareness, Sensory, Emotional, or Thought Changes

  • Slow to respond or not able to respond right away
  • Sleepy
  • Confused
  • Memory loss
  • Difficulty talking or writing
  • Feeling fuzzy, lightlheaded, or dizzy
  • Feeling depressed, sad, upset
  • Scared
  • Anxious
  • Frustrated, embarrassed, ashamed

Physical Changes

  • May have injuries, such as bruising, cuts, broken bones, or head injury if fell during seizure
  • May feel tired, exhausted, or sleep for minutes or hours
  • Headache or other pain
  • Nausea or upset stomach
  • Thirsty
  • General weakness or weak in one part or side of the body
  • Urge to go to the bathroom or lose control of bowel or bladder

Types of Seizures

There are three major groups of seizures:

  1. Generalized onset seizures: These seizures affect both sides of the brain or groups of cells on both sides of the brain at the same time. This term was used before and still includes seizures types like tonic-clonic, absence, or atonic to name a few.
  2. Focal onset seizures: The term focal is used instead of partial to be more accurate when talking about where seizures begin. Focal seizures can start in one area or group of cells in one side of the brain.
    • Focal Onset Aware Seizures: When a person is awake and aware during a seizure, it’s called a focal aware seizure. This used to be called a simple partial seizure.
    • Focal Onset Impaired Awareness: When a person is confused or their awareness is affected in some way during a focal seizure, it’s called a focal impaired awareness seizure. This used to be called a complex partial seizure.
  3. Unknown onset seizures: When the beginning of a seizure is not known, it’s now called an unknown onset seizure. A seizure could also be called an unknown onset if it’s not witnessed or seen by anyone, for example when seizures happen at night or in a person who lives alone.
    As more information is learned, an unknown onset seizure may later be diagnosed as a focal or generalized seizure.

How are different symptoms during a seizure described?

Many different symptoms happen during a seizure. This new classification separates them simply into groups that involve movement.

For generalized onset seizures:

  • Motor symptoms may include sustained rhythmical jerking movements (clonic), muscles becoming weak or limp (atonic), muscles becoming tense or rigid (tonic), brief muscle twitching (myoclonus), or epileptic spasms (body flexes and extends repeatedly).
  • Non-motor symptoms are usually called absence seizures. These can be typical or atypical absence seizures (staring spells). Absence seizures can also have brief twitches (myoclonus) that can affect a specific part of the body or just the eyelids.

For focal onset seizures

  • Motor symptoms may also include jerking (clonic), muscles becoming limp or weak (atonic), tense or rigid muscles (tonic), brief muscle twitching (myoclonus), or epileptic spasms. There may also be automatisms or repeated automatic movements, like clapping or rubbing of hands, lipsmacking or chewing, or running.
  • Non-motor symptoms: Examples of symptoms that don’t affect movement could be changes in sensation, emotions, thinking or cognition, autonomic functions (such as gastrointestinal sensations, waves of heat or cold, goosebumps, heart racing, etc.), or lack of movement (called behavior arrest).

For unknown onset seizures

  • Motor seizures are described as either tonic-clonic or epileptic spasms.
  • Non-motor seizures usually include a behavior arrest. This means that movement stops – the person may just stare and not make any other movements.

What should I do if I have a seizure? What should I do if I see someone else have a seizure?

What happens during a seizure may vary from one person to the next. The type of first aid needed can be tailored to what happens during the seizure and the person's safety. It helps to think about whether the person's alertness or awareness is affected, and if any physical movements occur that can place them at risk of injury.

  • Always Stay With the Person Until the Seizure Is Over 
    • Seizures can be unpredictable and it’s hard to tell how long they may last or what will occur during them. Some may start with minor symptoms, but lead to a loss of consciousness or fall. Other seizures may be brief and end in seconds.
    • Injury can occur during or after a seizure, requiring help from other people.
  • Pay Attention to the Length of the Seizure
    • Look at your watch and time the seizure – from beginning to the end of the active seizure.
    • Time how long it takes for the person to recover and return to their usual activity.
    • If the active seizure lasts longer than the person’s typical events, call for help.
    • Know when to give 'as needed' or rescue treatments, if prescribed, and when to call for emergency help.
  • Stay Calm; Most Seizures Only Last a Few Minutes
    • A person’s response to seizures can affect how other people act. If the first person remains calm, it will help others stay calm too.
    • Talk calmly and reassuringly to the person during and after the seizure – it will help as they recover from the seizure.
  • Prevent Injury by Moving Nearby Objects Out of the Way 
    • Remove sharp objects.
    • If you can’t move surrounding objects or a person is wandering or confused, help steer them clear of dangerous situations, for example away from traffic, train or subway platforms, heights, or sharp objects.
  • Make the Person as Comfortable as Possible
    • Help them sit down in a safe place.
    • If they are at risk of falling, call for help and lay them down on the floor.
    • Support the person’s head to prevent it from hitting the floor.
  • Keep Onlookers Away
    • Once the situation is under control, encourage people to step back and give the person some room. Waking up to a crowd can be embarrassing and confusing for a person after a seizure.
    • Ask someone to stay nearby in case further help is needed.
  • Do Not Forcibly Hold the Person Down
    • Trying to stop movements or forcibly holding a person down doesn’t stop a seizure. Restraining a person can lead to injuries and make the person more confused, agitated or aggressive. People don’t fight on purpose during a seizure. Yet if they are restrained when they are confused, they may respond aggressively.
    • If a person tries to walk around, let them walk in a safe, enclosed area if possible.
  • Do Not Put Anything in the Person's Mouth!
    • Jaw and face muscles may tighten during a seizure, causing the person to bite down. If this happens when something is in the mouth, the person may break and swallow the object or break their teeth!
    • Don’t worry - a person can’t swallow their tongue during a seizure.
  • Make Sure Their Breathing is Okay
    • If the person is lying down, turn them on their side, with their mouth pointing to the ground. This prevents saliva from blocking their airway and helps the person breathe more easily.
    • During a convulsive or tonic-clonic seizure, it may look like the person has stopped breathing. This happens when the chest muscles tighten during the tonic phase of a seizure. As this part of a seizure ends, the muscles will relax and breathing will resume normally.
    • Rescue breathing or CPR is generally not needed during these seizure-induced changes in a person’s breathing.
  • Do Not Give Water, Pills, or Food by Mouth Unless the Person is Fully Alert
    • If a person is not fully awake or aware of what is going on, they might not swallow correctly.  Food, liquid or pills could go into the lungs instead of the stomach if they try to drink or eat at this time.
    • If a person appears to be choking, turn them on their side and call for help. If they are not able to cough and clear their air passages on their own or are having breathing difficulties, call 911 immediately.
  • Call for Emergency Medical Help When
    • A seizure lasts 5 minutes or longer.
    • One seizure occurs right after another without the person regaining consciousness or coming to between seizures.
    • Seizures occur closer together than usual for that person.
    • Breathing becomes difficult or the person appears to be choking.
    • The seizure occurs in water.
    • Injury may have occurred.
    • The person asks for medical help.
  • Be Sensitive and Supportive, and Ask Others to Do the Same
    • Seizures can be frightening for the person having one, as well as for others. People may feel embarrassed or confused about what happened. Keep this in mind as the person wakes up.
    • Reassure the person that they are safe.
    • Once they are alert and able to communicate, tell them what happened in very simple terms.
    • Offer to stay with the person until they are ready to go back to normal activity or call someone to stay with them.

Seizures Without Any Change in Awareness

Some people may remain fully awake and alert during a seizure and remember everything that occurs. For example, awareness is not affected during simple partial or myoclonic seizures. During these types of seizures, pay particular attention to the following:

  • Usually you don’t need to do anything.
  • Stay calm and reassure the person they are safe.
  • If the person is frightened or anxious, encourage them to take slow deep breaths or do something that is calming or relaxing.
  • Stay with the person until the seizure is over. Make sure that they are fully aware of what is going on before they are left alone.

Seizures with Altered Awareness

Sometimes people may look awake during a seizure, but they really are not aware of part or all of what is going on around them. They may not remember what happens during the seizure or have difficulty talking about it during or after it. The person may walk around during the seizure, but not be in control of where they are going, and they may not be able to protect themselves. These seizure behaviors may be seen with complex partial seizures or clusters of absence seizures. During these episodes, in addition to basic first aid, pay particular attention to the following:

  • If the person has a warning before they lose awareness, help them to a safe place.
  • Stay with the person and don’t let them wander away. Let them walk in an enclosed area if possible.
  • Keep the person away from sharp objects or dangerous places.
  • If the person tries to run or is in a dangerous situation, call for help and hold them back if needed to keep them out of danger.
  • Do not assume that they can talk or that they can hear you and follow instructions. Assure them they are safe and repeat instructions on what they should do next.
  • Make sure that they are alert, oriented and safe after the event before they are left alone.
  • Time the seizure – these types of seizures are usually longer than convulsions or tonic clonic seizures. It may be hard to tell when the seizure ended and when the recovery period begins and ends.
  • If the seizure turns into a convulsive seizure, follow first aid steps for tonic-clonic seizures.

Seizures with Loss of Consciousness

Some types of seizures can affect a person’s awareness completely – they may be considered ‘unconscious’. They are not able to talk, are not aware of what is going on around them, and may not realize what occurred afterwards. If they have a warning at the start of the seizure, they may be able to get to a safe place – otherwise they are at risk for injury during and after the seizure. Follow the steps for care and comfort first aid with attention to the following:

  • Watch how long the seizure lasts – call for emergency medical help if a generalized seizure lasts 5 minutes or longer.
  • Protect the person from injury but don’t restrain their movements.
  • Watch their breathing – turn them on the side to help keep the airway open. If breathing problems occur, call 911.
  • Don’t put anything in their mouth.
  • Know when to call for emergency help.
  • Stay with the person after the seizure until they are aware and safe.
Posted on BrainLine August 10, 2018.

About the Author

BrainLine offers authoritative information and support to anyone whose life has been affected by brain injury or PTSD: people with brain injuries, their family and friends, and the professionals who work with them.

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References

"What Is Epilepsy?” Epilepsy Foundation, 21 Jan. 2014, www.epilepsy.com/learn/about-epilepsy-basics/what-epilepsy.

Comments (158)

Please remember, we are not able to give medical or legal advice. If you have medical concerns, please consult your doctor. All posted comments are the views and opinions of the poster only.

hi my name is kath and i found i was having seizures back in january and that was because i was in a induce coma because i had three seizures and when i fall asleep i have three within 2 hours is this normal i am 37 years old i am scared

My son has Lennox Gaston. He just started with the seizures that walks around. My question is why is it that he goes around or jumps over things so he won't get hurt. The doctor said this is seizures and he increased med.

Thank you for your information. My brother was just 13 years old and he had a seizure in the early morning when he was walking down on the steps. He fell down and cut his chin. There was a blood flow all over his body. After 2 hrs he was woke-up. He don't remember anything. He was fully confused. After 4 hrs 2nd time the seizure came and he cut his tongue with teeth and mostly in sleep the seizure comes and then he vomited 4 times. He was so weak later he got 3rd seizure and after 30 mins 4 time seizure mostly in sleep. Is it okay to have more seizures in a day? He mostly uses his phone is it okay to use the phone continuously?? His chest bones are moved to forward after a week is it normal or it was also a part of symptoms in seizure??? In a week he seizure occurs 4 to 5 times is it okay or more serious?? Please reply to this....

Thank you for this article. Trying to get as much information as I possibly can. Im 44 yrs old and just started to have seizures out of nowhere 2 months ago. Ive been reading up on what kinds there are, symptoms, aftereffects and so forth. I get the aura just before it happens which gives me anywhere from a few seconds to a few minutes to get prepared. It's very scary. So far I've had 7 seizures in the past 2 months. Most are single but a couple of times I had back to back of them that lasted about 15 minutes. I tense up and convulse but I can still hear everything going on around me. It just sounds muffled. I close my eyes, but see flashes. The EEG and MRI came back normal. Now im on a medication but doesn't seem to be working. Dr prescribed an antidepressant for me. He says he treats seizures this way. Does this sound familiar to anyone?
Im just trying to figure out why this began and if this will just be how life is from now on?
This is all so new to me and I want to be proactive.

I was born with grand mall epilepsy due to abuse i have complex ptsd i am 62 and have been aware off the ptsd the diagnoses is that i have had cptsd from the age of ten i have had flash backs for years and i have also been through a lot traumatic events i have been aggress and emotional states now i am trying to deal with the cptsd the epilepsis controlled by medication

thank you for sharing the meaning of seizure.
I have your article

I’m very grateful for this article. I just got out of the hospital on Wednesday. I am 45 yrs old. I was in the shower when this past experience happened and I hurt my head in the fall. The hospital did a litany of testing on my brain and heart. Nothing remarkable they say. In retrospect, I can remember that I had these seizure experiences as far back as 14 years old. I grew up in a crazy home and it got overlooked. There was definitely several days before the seizure that I know to be stage 1 auras. Some of the auras are spectacular and profoundly spiritual in nature. The actual seizure period was marked by tremendous pain and trauma that felt like my brain was pushed to an edge chaos—I finally was able to surrender to this, and when I did, the seizure stopped. I was on my back, the shower on, shower curtain torn down, some blood. I was dazed and confused for sure. It was like I was piecing my life slowly for several hours after the seizure in the shower. Fortunately I reached out to people and everyone gently suggested I go to the hospital. I finally did that evening and they took great care of me, even in this pandemic. My brain is recovering, but I also have so many questions. Each incident of a seizure in my life was precipitated by traumatic events or memories. Does this ring true for anyone? Thank you.

Thank you for this!
I once had a serious seizure.
Now I am epileptic and still having some seizure. 27 years old man. Can you tell me what are the best medicine to take? I take Fycompa,Lamictal,Vimpat. What are the best foods?

My son and I are both epileptics and started late in life. He takes lamictal and I take Topiramate. It is very important to sleep good, drop alcohol to a minimum and watch stress levels (yeah right), I don't know about food but healthy eating always is good. Good luck and chin up!

My boyfriend just turned 30 on July 3rd and he had his first seizure on his birthday he was dropped to the ground and convulsed and then woke up and he doesn’t remember anything until getting to the hospital. He had a 2nd seizure on august 10th. Same type of seizure. These came out of no where and he can’t feel them coming on. What might this be?

My husband had 2 seizures 4 hours apart. He was fine the day after but then the next day he is talking about things i dont know about,and seeing things thats not there. This has been going on for 3 days now is it normal. Can anyone relate to him?

The brain's nerve cells (neurons) communicate with one another by firing tiny electric signals, but with a seizure, these signals become abnormal.Absence seizures rarely cause a true convulsion in which the person falls down or collapses, and despite briefly losing consciousness, the person recovers fully with no lingering confusion or other ill effects. These "spells" may occur infrequently or several times per hour. In children, absence seizures may interfere with learning and are often misinterpreted as impertinence or inattention.Please visit and know more https://www.pediatriconcall.com/articles/pediatric-neurology/absence-sei...

I’m not sure what to do. My son was in an accident 5 years ago When he was 18 that put him in a coma. When he miraculously recovered, it turned out the damage caused him to have seizures. He had been seizure free for at least two years on his meds. Now he’s had three in one day, and ever since, he’s had what seems to be a focal every time he sleeps. The doc seems perfectly calm about this and upped his meds, but still, he sleeps, he seizes. Can meds just stop working? Why would he all of a sudden start having them daily? There are no changes in his life. I am frustrated and don’t know what to do.

I had an accident when I was in high school that effected my brain. After that I started having seizures once or twice a year. In 2015 they became way more frequent occurring at times 2 or 3 times daily. I still have 2 to three weekly on average. Nothing traumatic happened to induce this increase in seizure activity but sadly I've come to live with them. It's definitely difficult to cope sometimes and can be frustrating. I never get used to the fear and confusion of waking up on the floor exhausted and sore with the worst muscle spasms and Charlie horses you can imagine. Let him know that he's not alone though. There are millions of people just like him and me and if he ever needs to ask a question or just talk ......

Jamais vu is defined incorrectly in this article. Understandable, as it is the much-less-known cousin of "deja vu". It's almost the opposite of what has been written here. It is when something is identified as familiar in some way, but feels unfamiliar. It was one of the most pronounced symptoms of a partial seizure that I suffered, so I ended up looking into it in some detail. I wrote an email to my physician in the postictal stage and when I reread the email the next day, it was intelligently written, but seemed totally unfamiliar to me. Also some acquaintances' names seemed totally unfamiliar, even though I remembered knowing their names once they were retold to me. Very unsettling feeling.

Wow. Thank you for writing this. I had this experience prior to my seizure. It was strange, mysterious, and beautiful in some ways. For about 4 days prior to this recent episode I had these symptoms. Some of it felt spiritual in nature. I wrote it off because I’ve had these experiences about 5 or 6 times before at random intervals and just rode them out. It never was looked into. The reason I got help this time was because the seizure happened in the shower and I hit my head and broke my nose. They said my brain looks fine from EEG, MRI, and CT. In that pre-seizure phase, my brain opened up to a whole new access to myself and the people I spoke to. I was intelligent and focused, but the brain that I was working with felt other. Some deep traumatic memories of abuse marked the beginning of each seizure experience over my life. The said it could be PTSD triggered. I do not have a classic epileptic brain.

Reading this information is very helpful, i come back to it and read up on it even though i was diagnosed years ago with absence seizures(petit mal). It was hard, everyone around me thought i was going crazy and i never knew these types of seizures existed. I remember spacing out and losing my memory constantly and i was not taken seriously by my doctors. It was a tough road i hope anyone out there trying to get diagnosed finds something! I remember i was around 11. Scrolling through articles doing research when i found the word Epilepsy.

My kid's friend says he has seizures. A couple of days ago I was arguing with my childs and the friend collapsed on the ground but then he heard my kid scream at me and was instantly back on his feet. All this happened within a minute. Is this typical of seizures or is this an attention thing.

It could - he might of had a ‘drop attack/seizure’ :)

That is completely normal because I have seizures in matter of fact I had a seizure last night, so what I'm trying to say is no it's not a attention seeking thing epilepsy (seizures) are real.

My husband's sister has seizures, is there any probability of my offsprings inheriting it, since it can be hereditary???

I have episodes of just going weak. Then I cannot move at all. Not even open my eyes. These last for about 9 hours. I do come out of them, but exhausted.

My friends husband as seizure only in his sleep and it happen every 5 to six months they have to to the hospital and they did a lot of test but couldn't find a cause,is there any advice

I've had these for years- it was diagnosed as frontal lobe nocturnal epilepsy several years ago and I am medicated for several years

My son has had 2 seizures in his sleep.. All kinds of tests and it's all normal. Doctor says good sleep and water are very important. So scared he will have another.. I've read that stress can do this but son has a good life, seems happy.. I'm worried for his future..

Does he take any medication? My daughter had 3 episodes about four months ago and we ran a lot tests. She’s on medication but she had another one a couple days ago. She’s going back to have another eeg exam. It scares me cause they only happen in her sleep and last for 30 seconds

Question did the dr put him on medication due to the 2 he had?

I rolled over a logging truck in 017 and in 1/1/019 had my first full on seizure ever since I'm on sdi in cal. And have a weird od seizure at my parents house for xmas was talking to myself about the eyes on the bushes while I was staring at the xmas card in my hand. What the hell..?

Recently I've been "spacing out" more than often, my words have become more slurred, great muscle "limpness," very frequent memory lapses, and very agitated.

I fractured my skull when I was a couple of weeks old, but I got cleared.

Surely, there has to be an explanation behind it all right? Or am I just going insane (Which would not be surprising...)

Sounds like absence seizures, i have them myself. Does it feel like you black out or fall asleep out of nowhere? Which causes you to forget things or lose your memory. If it happens frequently maybe you should ask your doctor.

Has anyone ever had a seizure while they were alone and no one to help?
I find that thought very scary.

Yes. I am living alone and and it happened to me several times. I sometimes call my kids few seconds before it happens so they know and come over to check and make sure I am OK. Very, very scary!

It happened to me several times when in bed. I am by myself in the house. It lasted about 3 minutes and I was calling my son and yelling but I was in only one in the house. I came back to my normal self after half hour or so.
I am heading to Mayo Clinic next week for some testing then proceed with a surgery.

I live by myself and have them by myself quite often it’s probably not smart but that’s the way it is I had three of them this morning as a matter fact

I smashed half my skull about 7 years ago and other day I went to the docs but lost my keys on way, think that was the start of my tonic-clinic seizure. I was by the entrance to grace yard but can’t really remember much from that day or day before

I had a seizure while home alone, my meditation was on the dresser with my tv, I was scared that if I got up to get medication the TV would fall on me so I just laid still on the bed and said a pray. The next morning I woke up on the floor because I had a seizure now I keep a glass of water on my nightstand and the medication in the bed with me& everywhere I go. The other thing I can think think of is keep objects that can do harm to you away. There really isn't much I know we can do because it can come on suddenly,when I feel the symptoms of it I take the medicine what's until the electricity hits,then I blackout. I wish there was more to help us!

I had my first seizure in November 2016, so I would have been in 7th grade. I was diagnosed with Juvenile Myoclonic Epilepsy. Such a fun title right. I used to always think of myself as an epileptic but to me that title made it seem like that was all I am. I am a person with Epilepsy. Person is the key word. Getting diagnosed help with so many things in my life. It helped me get rid of toxic friends, build better relationships with others, and love life a bit more. I can remember waking up, morning after morning, being just thankful that I did wake up. After November 11, 2016 I had another seizure then March 29th 2017. Then I made two whole years seizure free and was so ecstatic. Then it came for the two year seizure free EEG. I stayed overnight at the hospitals hotel thing and took the test the next morning after having been up all night. I remember doing the test and feeling so confident because I didn’t shake, convulse, or feel any symptoms. I thought I was finally free of this burden, but then saw my neurologist who told my I did have seizure activity and that the only reason I didn’t have a full blown seizure was because my meds were working, Third med’s the charm, eh? I was so devastated but now realize I am Epileptic. But that doesn’t define me in the slightest. I am an A honors student, I want to be a cardiovascular surgeon or a medical malpractice lawyer, I try my hardest, I have a job at 14, and I am a kind person. So no I am not an Epileptic.

The same with me I don’t believe them epileptic but I do have seizures

I love you comment I am 17 and I recently was driving with my twin sister and friends and had a seizure under the wheel and hit a tree.. I hadn't had a seizure since I was 8 years... and been seizure free for over 6 years if not longer.. so my doctor took me off the meds.. I question that and wonder should I have been taken off of them.. I was so happy to be off of them because I just knew my body was healed from them.. UNTIL.. they did the EEG and was able to capture the seizures.. I am back on my meds and it will take some time for it to work .. my speech is a little delayed which makes me frustrated at times.. my hand gets tighten.. but it comes right back.. I will get through this and I will not let it become me..

My friend had a seizure yesterday morning on the 13th of October she been unconscious for more than 24hrs now yet she's able to breathe on her own, what's the cause of that and is it normal for someone to be out for so long after having seizures

I started to get grand mal seizures when I was 16 so back in 2006 first it started out as one every 6 months than I got on dilantin and it became 2 to 3 a week and some I had 2 seizures in a row one after the other just kept getting worse I thought that they would never stop I was afraid to leave my house in fear of having one out in public I would have an aura before hand that I started uncontrollably looking up at the ceiling and falling backwards felt like that feeling when you go down a roller coaster only it wasn't a good feeling to me. While I was unconscious having the seizures every time I would see myself on an ambulance and I was dying from the seizure which made me panic every time I woke up on an actual ambulance after a seizure I would flip out on the paramedics and demand they let me out I was still out of it but I was panicking because I thought I was going to die. Eventually in 2013 I told my doctor that dilantin did nothing for my seizures but make them worse so he put me on Keppra 500 mg two times a day and I got off the dilantin since doing so I have not had a seizure in almost 6 years though recently this past year I've been having the aura feeling's but I haven't went into a full blown seizure yet I still don't like that feeling though because i am just waiting for the seizure to happen.

I have rare seizures, sadly, and I'm only 21. They came out of nowhere. Dilatin wasn't good for you. My mom told me that because her older friend has seizures. I am glad that you are off of it.

I started having seizures December 2010 that I know of, at least gran mal. I was serving at the the time and having a smoke. I went to stand up, and another server came out and saw something was wrong. I immediately fell over peed my pants and just thought I was in 2007 back in Sarasota in my senior year, when really was living in 9am beach at FAU with a full sholeralship. I hate hospitals but went bv this had never happened. I was born in February 15, 2089. I had a very very abusive more so mentally however, who told me if I left he would feed me to to the gators and no one would find me. I was locked up and my seizures continued when when I finally got away to Sarasota I fractured skull while working. My eegs still have never never done back normal. They even did a 72hr regs which I thought was going to be ok when I returned it, they immediately made me come in stating I was always having petite seizures and 2 gran mals. Some days I can feel something is wrong and I need to be careful. Stress is my main trigger and I'm always stressing out for any reason I don't know why and I have to remind myself to breathe plus my neck down to my back is always stiff. I could do on an on about what I have gone through especially 10days of not be able to walk. It's just so frustrating. I get yelled at by my mom mom mostly bc it "hurts and scares them"" I just want to cry yes I know I have repeated myself but don't really realize it. Just needed to vent I guess to others that understand.... the gran mals are somewhat getting better however I was extremely stressed the week before July 4th and had 5 within 7days. Other than that I have doing better than before just told however I'm always having petite seizures even when I don't know it. I'm happy that things are better I just got a MRI and it came back good. :)

ive had seizures frequently and now they got them under control ive been in hospital two weeks not able to walk yet

Hi in 2008 was involved in a car accident had a head injury was diagnosed epileptic 2009 but i had mild seizures nothing scary or life changing happened i did not take any epilepsy medication,excercised daily and never had any epileptic problem,i had my first born 2012 i was still ok even years later and sudden change was 2018 around July i fell pregnant,it started 1st time around November 2018 i had what is called tonic clonic seizure and it also happened few months after giving birth.i dont have any trigger signs that i know of,what could be the problem and how do i treat it.thank you

I had a grand mal seizure a month or 2 ago even though my eeg proved i am not epileptic and my CT scan came back normal.
Is it possible to have a seizure without any underlying issues and just bad luck?

i don't mean to be offensive, but have u taken any drugs prior (illegal or prescription) or had you made in lifestyle changes, like cutting alcohol? I had seizures when I quit drinking and still have them almost daily since I quit. I also had them back when I was 20 after a small bender of cocaine use. Apparently these things can cause seizures too (though ive been diagnosed epileptic because of the frequency and unexplained reason)

I have fainting spells frequently and one of the times I fainted I had a seizure too (I was conscious although I couldn't see or hear anything but I could feel my body jerking around uncontrollably, I couldn't talk or make any sounds or control my body).

After that I had one episode where I fainted, them came to but my vision and hearing was still impaired, I was able to walk with help from a friend but I lost my vision completely for about 10 mins and hearing was at about 25%. For about 30 mins after this I was shaking and it felt like all my muscles were vibrating, briefly lost all sensation in my arms and legs too. I waited it out and it went away on its own. Later I talked to doctors and they just seemed unconcerned and said it may have been a vasovagal episode.

I do have unusually low blood pressure so I always thought it was that, but now I'm wondering if its a very bizzare form of epilepsy?

When I was 2 I had four seizures in a year. Would that cause me brain damage as I grew up??

Hi, my boyfriend has been diagnosed with epilepsy back in 2013, he had his last seizure last year on Christmas. The weird thing is, he hasn't had a seizure for 3 years before the last time. Is it possible that someone can through an absence of seizure? I really am helping him for looking for the best medication. It's been a year since his last seizure but I'm anticipating for his next but yet I hope he's seizure free cause his last eeg said it's normal unlike his first eeg that showing abnormality in his brain. Can someone explain to me what's going on?

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