Please remember, we are not able to give medical or legal advice. If you have medical concerns, please consult your doctor. All posted comments are the views and opinions of the poster only.
I too was in a car wreck in 92', in a coma for two weeks at UCLA, many broken bones, I have been living with the moods, short-term memory but now I am shaking on left side of body, any help u can give would help, did a MRI, results a lot of brain scarring around the brain, could that be why, I can't go anywhere with this shaking, hard to even put make-up on. Thank you so much for any input. the Dr's think anxiety, I disagree.
Rocky supper normal. My boyfriend and I were in a motorcycle accident in August and he cut his coradid artery in his neck and got a tbi. He was in a coma for 18 days. When we woke up he didnt say much and couldn't remember his birthday or where he lived. And then as he started to be more aware of things he would start trying to rip ivs out
And when the nurses would go to try and stop them he would start punching them. He was in full restraints most of the time. Finally after a little over a month he started to come back into it and every day got better and better. 8 months later and almost like nothing happens. Hes juat upset he cant do MMA fighting do to his tbi!
Oh man me too accept I have a quarter missing of my skull on the right side also they told me I was attacking the nurses I am waiting for a titanium plate I was 18 now I'm 20 and question my life expansion and my left side coordination of my hand is weak
I was in a fatal car accident in 1996. I have a TBI from the wreck. I have been experiencing the feeling of being worthless and I have been lonely. No one understands and I am not sure how to cope with being alive. I have no friends and I am staying with my mother and her husband. I am depressed a lot and I think that I have lost all ambition to succeed or to do anything. I feel like I am lost. I don't know what to do. Thanks.
Hang tough. I have suffered from TBI since childhood. That started over 40 years ago. Best count I can give is a dozen major concussions. Hundreds of medium and minor ones. Sports, wrecks, falls, punches, artillery fire, hatch combings on a frigate at sea. I think I have all versions of a concussed mind possible. As long as you at least try, your family generally will not abandon you. I spent decades messed up and mine didn't abandon me. It took all the news recently about CTE for mine to finally accept my ways though.And for me to accept me. My symptoms aren't as bad as some but still ruined normal life for me. I accepted myself as abnormal and just live each day as best I can. Just knowing you have it and that there are now tools to help cope, has given you the means to overcome it. Its nothing to be ashamed of socially either. I'll tell people these days about it and that I'm a serious case of it so please talk a little slower. Once they understand I'm no pschyo they turn downright friendly after a dose of my southern charm
Hi Angela
I have a TBI and I understand how you feel. One of the hardest things I did afyer my accident was ro out one foot in front of the other to go to a brain injury meeting. There I found such wonderful people in the same situation and experience the same mood swings. May I suggest you try going to a brain injury group a few times and see if it helps. We love you Angela....don't give up!
hi, Angela I read your comment and I see that you are depressed.I AM 100% SURE that you are not worthless. I don't have a tbi but I sometimes feel the same way that my life is worthless and that times is passing bye without doing something i like in my life. you are not alone many people without tbi have the same feelings about themselves .but you know what life gets better even if didn't the past years so you can be happy if you know you will be happy in the future. Also don't be shy to ask help from people. I know you will get better
All these feelings are very familiar..as I to have lived with TBI for 12 years..a left temporal lobe injury... from a few different blows to the head.
It isn't easy...but life is only what we make it...I live with constant nerve type burning of hot and cold in my head, and the same in my entire body, Some days I can barely crawl out of bed, but after I get up and start moving I set my mind to plow forward through it all...the hardest part is feeling like a different person while others see you as the same as you always been...we feel our injury at every moment thinking people can see or recognize it...and the worst part... trying to get others to understand....knowing that they won't completely ever truly know..I sometimes just cry, or even just laugh for no apparent reasons, and I always feels as if I'm living things in life that I've already done...is a very scary feeling..its hard to make others understand when we don't quite understand it ourselves...no matter what, injury or not your special, every single day I wake up I thank God for another day no matter the struggles...because this injury has taught me Every day is not garuanteed...so make each one count...they are more special then just anyone can realize...God bless...just be you and find reasons to keep you happy...the simplest things are most value of all...I've had to learn simplicity in life is most valuable... you're never alone we are never alone.
Kelly, I am sorry for your pain. Can I ask you something? Maybe it will help me try to understand what my husband feels since his TBI 3 years ago? Sometimes it is really hard for me. When I look at him, he is the man I have known for over 30 years, but sometimes his actions show me he is not the man I know. You say the hardest part is feeling like a different person while others see you as the person you used to be. If you know you feel like a different person would it be possible to tell your friend that you are not the same person you used to be? If you do something that is so out of character from what you would have ever done before your injury, would you know that you just did something that you wouldn't have done before your injury? In other words, would you know that your actions aren’t the old you?
It is so complicated with brain issues. My husband does things that he denies knowing he did. I wish he would just admit it. I don’t know if he is lying or doesn’t remember. I am very stressed
I was hit as a pedestrian by a pickup in 1975 when treatment was poor. My wife of 11 years was understanding. fatigue kept me from working for 2 years I was good at production but poor at office work. I could not read,do math or tell time but my 6 yr. old helped me. I developed seizures, have face blindness,have difficulty with music. I have retired from 2 good jobs.With some difficulties life is good. it is a battle, don't give up.
My husband suffered a TBI in November of 2015. This injury has affected our whole family. Those of us who do no physically have the injury do no fully understand how the person feels but we see and difference in them and know we have lost our loved one but we still love the person that remains and always will. The person with the injury does not know how we feel because we keep that to ourselves. Once we see our loved one gone we hurt so deep and with so much pain that sometimes we would be better off with the injury. Remember, you are not worthless, you are still valued by your loved ones. We may not understand how you really feel but we still love and value the injured as a human being and love them with all our heart and soul. Wish you all the best and you are not lost or alone in this. Someone who knows.
I had a fatal car accident in 2015 and still experience anxiety, depression, mood swings and more. I know how you feel and it sucks because alot of people don't understand us. They think we can just get better or that the accident didn't cause us to be how we are now. I hope things look up for the better for you!
Hey join my club my friend. Had blunt force high speed facial treatment mpact resulting in severe metabolic issues, dental jaw surgeries and noticeable bulging double vision eyes. I’m not the same person and all friends gone. My cat is my buddy. I found trying too much to hide my changes and trying to “man up” are bad for me. Avoiding crowds , noise or any conflict goes long way towards keeping the bad symptoms at bay
Don’t feel nobody understands your plight. Many of us do. No need to explain yourself. I enjoy animals better than people now just because they don’t ask me anything but give unconditional love no strings just love
I hope can find a peaceful place that has what you need.
Isaac, I understand your sadness....despair. I thought I had so many friends, until I needed a friend, and learned I had not even one. It has been impossible to accept but there is no option. I spoke openly and honestly with someone pretending to understand and promising privacy with my thoughts and pain but upon the end of the conversation my front door was forced open and I was physically assaulted by police who took me against my will to an ice cold psych ward and left alone for hours until. My legal husband and "caregiver" who that morning had handed me my refilled pain meds turned and walked away. I knew what he was saying but due to that "private" conversation I was locked away temporarily until given back to the "caregiver". That "understanding" conversationalist has secured my "care" to someone else and turned her back on any responsibility. We do not have friends Isaac, I do know where you are, locked inside your broken head that was once such a comfortable place. Just hell now with no hope or help from it, no escape even allowed. Friends pass the responsibility to anyone and I cannot blame them. We would not wish this on anyone would we Isaac?
Hi Sadie and to Everyone Else reading this post. My heart goes out to each and every One of You. I do not personally suffer from a TBI but I have been a Caregiver for an amazing guy who suffered one about sixteen years ago. He was in a very bad wreck. Coma for four months and rehabilitation for another eight months in the hospital. I want to tell you that I am So Sorry for the overwhelming Pain and heartache you are dealing with. My husband has Muscular Dystrophy and it's not easy. I know loss and the feeling of hopelessness myself. I lost my 26 yr old daughter a few yrs back in a car accident. Please Don't Give Up. There are online support groups. I realize it's not that easy to pull yourself out of a dark place. Just remember there are People Who Care. Bless You All.
I was struck by a car when I was 19 while running across a highway on a trail in my local community. I had 24 broken bones, my main being my leg and shoulder. I have definitely dealt with the effects of a brain injury. My main problems now are short and long-term memory loss, I forget things easily, trouble with word finding, impulsive decision making, loss of friends due to the fact they've advanced so much more than I, I'd rather just be alone. It's been a hard road. If I can get through it, anyone facing the challenges of a brain injury can too. I just wanted to add this for anyone feeling like their life isn't good enough because of your brain injury, it is. There's a reason we are here.
Ashley, your words hit me hard... I was thrown from a car at 15 and my best friend died from head injuries. I have had so many physical issues I never attributed to it until now. As I get older and realize I would rather be by myself than try to communicate with anyone. I have had 3 other MAJOR head traumas since then and just feel hopeless. I don't know why the world won't let go of me. I try everything "they say" but always end up worse than before. I don't know what else to do, no one understands me, they think I'm impulsive, depressed, bipolar, this or that but mostly hard to get along with or understand. I have wanted to die for so long and should've with the efforts. I wish I could believe there was a good reason for me to be here but it only seems to be I destroy myself and the 3 people in my life, my parents and significant other that has chosen to love me regardless of the horrible things I put them through. I don't know if they would be better with me here or if I were dead. I am tired of hurting everyone. My children have chosen to keep me from their life from a young age after an incident that I now believe is part of my brain injury and not the things they said about me. My kids were never harmed physically but I know I hurt them mentally and now I am alone and feel there's nowhere for me to be or no good I could ever do. My physical pain limits so much. I really want to be happy and have a good life with my son, my dogs and my parents but nothing seems possible anymore. I think I have crossed over to the place of no return for those who I love with all my heart. I wish there was a way to look into my brain and figure out if it is the culprit and correct it but I've not found anything pointing to that. I am glad for you that you are choosing to be positive and pushing through. I am so tired of trying. If anyone can point me to an answer of at least how to heal and if it's even possible.
Dear Erin, your words have touched my heart. I also was in 3 serious car accidents but one of the most critical was a tree falling dead across the highway which I was driving on... perfectly synced with the front of my car and flipped my car 3 times forward and skid 1 & 1/2 football fields upside down. I also fractured my head from a seizure on cement after I had finished art I had done and was showing my mother outside. When she said my eyes rolled back and boom. I remember nothing. I also flatlined for over 6 minutes from the flu and was deprived oxygen to my brain. I was once an artist, a writer, hard worker, class clown senior superlative and much more. I am now a shell. I'm not living. I exsist.. no one relates to my battle every day. My memory is gone. I forget everything. No taste. No smell. Find me on fb. For you are not alone and I would hate to hear you think this world would be better without you... it's because of you that I stopped and took 2 hrs just to type this all out (it's hard to process sentences ). You were worth that... and so much more.
Thank you Ashley. I, too, suffered a major head injury some years ago in a car accident. I have no one left in my life. My life is filled with constant effort with no seeming reward. No one knows what happened to me, because no one has wanted to listen. I am given no support, but I am expected to support everyone else. Life is very hard every day, most times torture. I have the same problems as the ones that you listed and am exhausted from the effort that it takes every day just to get through the day. Even though I can't figure out why God kept me here, it is His decision when he takes me out. Thank you for your words. They are the first to me since I was injured 32 years ago. It feels like I am wandering around in a dream with no connections. Thank you for yours.
Hi, Ashley! I hope you are doing well today. I would LOVE to listen to you story and offer as much support as I can. I suffered a TBI years ago as the result of a car accident. God kept you here so you can teach and inform others about TBI. You are a blessing and I will pray for you! Have you considered attending a TBI Support Group? Is there anything like that where you live? I facilitated a Traumatic Brain Injury Support Group a while ago for about a year and a half. I started by attending the group and one thing lead to another and I was asked to facilitate. I was very scared, but everyone in the group was so understanding and supportive because they have been through similar experiences. I have an on-line Brain Injury Support Group of Duluth on Facebook if you use Facebook, and everyone is welcome! Let me know if you are interested and I will help you out any way I can. God bless you and please stay safe and strong and know that you are not alone!
My son who was 15 1/2 at the time was hit by a van while on the rode is head hitting the windshield causing TBI and broken up hip and leg, we spent 2 months at savannah, Ga. he then was sent home, he had to learn to talk and eat again, although we had to feed him through a stomach tube for awhile, he has been in and out of rehab for the past years but still can not walk, there also was no big settlement so we could not get him the best of care, medicaid does not allow for much therapy, now he is 26 its a shame that he can not still walk because we do not have money or good insurance, my son has missed alot of things in his life and my heart breaks for him! it is just not fair!
I was in a car wreck in 2000 and had a TBI. I have had many problems on a daily basis due to this injury. Headaches, vision, confusion, and memory loss are a few of the areas I deal with every single day.
I hit my head about 8-9 months playing football and couldn’t even remember what year it was or what I did two minutes before. This was at school. I sat at the nurses for hours and it was intense. They gave me bad advice by saying I would be alright and that I just needed some rest and to be inactive for a while. A little after a month later, I was playing basketball in school and someone ran into me by accident. They must’ve knocked me out because I fell over. I’ve asked people, they all say “it was the loudest thing in the gym" when I hit the back of my head off the gym floor and ever since that I’ve been feeling the same way. I’m 14 now and I was just wondering if anyone else was going through what I am. And I was right, at least I know it's not only me. What I always feel is like I’m trapped inside my head, blurred vision and terrible headaches are a small part of what I’m feeling right now and will probably always feel.
When I was three years old I got hit in the head with a golf club by my brother. It was a complete accdient. I wasn't paying attention and ran out in front of him while he was in mid swing. I don't remember anything! I had to learn how to walk and talk all over again. The doctors said I was make progress & then I'd fall back down again. Which has already happened. I'm perfectly fine now, other than suffering from short term memory loss.
I think I may have had a TBI. For years I have had the headaches, from mild, moderate, to prostrating and meds have not helped. I have had occasional blurred vision from them, dizziness, numbness, tingling in extremities, ringing in my ears, emotional swings of irritability, anger, out bursts, depression, a general sense of malaise, short term memory loss, fatigue, and brain fog. I have been tested for almost everything except TBI. I recently found medical record that shows I had a fall from a stand while working on a jet and taken by ambulance while in the military. The record only shows injury to the soft tissue of my lower right lumbar area of my back. I had a follow up with bed rest. Since finding this record and researching TBI I am wondering if I have it even though this fall occured 34 years ago. All the above systems have been there with me for a long time but cannot remember when they started. I have learned to push through but am finding it more difficult as I age .
I was injured in a hockey game; I played (non contact) men's hockey for many years (I'm a civil engineer and just always played on school/work teams). A big guy decked me and I fell back and onto my skull. That was 13 years ago. I have seen 4 neurologists and tried every single alternative medicine there is. I still work as an engineer, but part time, and still get headaches, vertigo and fatigue. I'm sensitive to light, noise and confusion
My short term memory is quite poor. I find my friends and family still don't understand: if I have to cancel a visit with them, they say I should just make an effort (though they are constantly telling me I should cancel visits with others). It is a very, very frustrating condition. I find this site really helpful in helping me understand that I am not alone.
I suffered a traumatic brain injury when I was a young lad of 5 years old. I was at my uncle´s house and went down the stairs. As soon as I got to the last step and put my feet on the concrete cement. I looked around and to my astonishment I saw a stool and above the stool was a paper plane hanging. I looked at them and decided to climb on the stool to get the plane. The fact of the matter is that I do not know who put the stool and paper plane in the position where they were exactly? I am trying to put all the pieces together to find closure in the criminal case. Once I know who the perpetrators were they will be charged with attempted murder!!! The crime scene happened at my uncle´s home in 1975. He lives at 300 Evelyn Avenue in Toronto. I have discussed what happened with numerous people and they stated that the person who put the stool and paper airplane were trying to kill you.
I put one foot on the stool and pushed up and then I put my other foot on the stool and I was on the foot stool and from there I raised my hand to grab the airplane and the stool started shaking because it was tampered with the legs were shaky and moving back and forth. So, that I last my balance and fell of hitting my left frontal lobe onto the concrete cement. I sustained left frontal lobe damage. My left frontal lobe was bleeding which is an open cut damage. I was crying and screaming loud and my mother ran down the stairs to assist me with medical attention. But, no one brought me to the hospital nor was my family doctor told about my traumatic brain injury which I sustained (TBI) I am working hard to find out if criminal charges can be laid against the person who devised the scheme to having me injured.
In 2006 I was 20 years old. I had a BAD car wreck. I was in the hospital for 3 1/2 months. My brain split apart, I have a sist in the middle of my brain at a 1.3, I gractured the c2 & c3 in my neck, broke my left hip and pelvis. I was told I was paralyzed from my neck down. September will be 11 years. I can walk, talk, feed myself, & dress myself. I was a new born baby at 20 years old. Im doing better than any doctor said I would be. Istill struggle with everyday challenges. I never can drive again or live on my own but im alive. I give lots of thank to LSU Hospital in Shreveport, Louisiana and Torro in New orleans, Louisiana.im now wondering if I could have a baby or not.
In 2001 I was hit repeatedly on the head with text books. When I got off the bus my shirt was covered in blood and blood as coming out of my nose and mouth. I don't remember anything after that but my parents told me I went to the hospital for tests. I remember stuff that happened a long time ago but anything recent I have problems remembering. New information is hard for me to remember. I have a hard time standing especially on moving trains and buses. I get headaches and shakes in my head. I have a TBI and I hate it. I can't multi task which makes it hard when I have a young son to take care of. I can't drive so I rely on transit or others to drive me around.
Thank you all for sharing your experience, thoughts, encouragement, and your hearts. I've suffered two major accidents that should have claimed my life and two massive blows to my brain and skull. For the past 5 years I have been researching for answers to what happened to me and life itself. Thanks for providing me with your testimonial experience. I'm am blessed because of all of you today..
I had been beaten yrs ago & had the base of my skull mashed into the base of a sofa sleeper. Yrs HD passed & I had been abused having my head smashed into the hard floor while my abuser was sitting on top of me. He knocked the wind out of me but I did not loose consciousness. Then that same year I smashed my head the top very hard into the frame of a metal door casing. Did not loose consciousness but wow the pain & headache that followed. Then 7 months later I fell on the ice in my driveway. This time I did loose consciousness. Woke only to peal myself out of a frozen puddle & get myself into my home. This is where I found that I lost bladder and rectal control. I live alone and had no help. Today I suffer from migraine and pressure in my head every 2 months. The doctors around here think I'm nuts when they can't find anything. I have a hard time sleeping, I'm tired all the time. I'm depressed because I feel that I have nerve damage that effects the nerves in my neck, shoulders, arms and legs. I'm very slow to get started & feel brain dead at times. Could this be TBI? What type of Doctor can I see that will LISTEN TO ME? I find myself confused quite often. Please help.
My niece had a horrific vehicle accident on 2-11-17. She has just been moved to a room out of ICU. She is trying to get out of her bed often. They have her strapped down now, and heavily sedated. Any help or words of encouragement are welcomed!
I was T-boned in Sept 2015. I had a hematoma (brain bleed) TBI as well as my hips were dislocated. and had double vision, headaches. After much physiotherapy , massage therapy, speech and language pathology, psychology treatments I am now back to my old self. No headaches,occasional neckache but working 40hrs per week and feeling normal again. My faith in God is what healed me. Stay positive because it will get better if you believe.
I have a brother who had a TBI 7 yrs ago and recently I've been feeling really resentful towards him and my mother for expecting too much of me. I get no thanks for helping them. Not sure where to turn I want to run away from it and never come back. Any advice would be helpful
if it was you with the injury im sure your family would help you with the emotional and physical roller coaster the injury causes suport to your brother is what you should focus on instead of resentment for the injury he wishes he never got
I was involved in car accident at age 3, this accident claimed life of my mother. I am left with disability where functions of left side are not as stable or strong as of the right side. When speaking my mouth only moves on the right side;this is so humiliating when around strangers and people feeling sorry for me I wish to change this condition. I'm 35 years old now; having to explain to my children and them being ridiculed by their friends because of me is sad.
I had brain bleed March of last year. I've been recovering well until today. I'm shaking uncontrollably on the right side. I don't feel any different except the shaking. Can anyone tell me is this normal to develop new symptoms?
Hi! I have a moderate TBI I'm recovering from. It's been 8 months and some days since everything changed. Last night I accidentally hit my head. It had a bump for a while but ice helped. I'm wondering if I should do anything about it as my 'executive thinking' might be out of order. Btw, does anyone ever fully recover? And how? Hospital I went to, other than physical therapy to walk and glasses to correct some things (so grateful for!), they did not help. I've had more help with brain building apps. Anyone else in similar place and what can be done?
I was just shot 5 month's ago by a 9mm. Was in a coma a month and I lost my right eye also, It's still in my speech but I'm ok. I should be dead but I'm still kicking. I'm a 26 year old male.
Comments (349)
Please remember, we are not able to give medical or legal advice. If you have medical concerns, please consult your doctor. All posted comments are the views and opinions of the poster only.
Janis replied on Permalink
I too was in a car wreck in 92', in a coma for two weeks at UCLA, many broken bones, I have been living with the moods, short-term memory but now I am shaking on left side of body, any help u can give would help, did a MRI, results a lot of brain scarring around the brain, could that be why, I can't go anywhere with this shaking, hard to even put make-up on. Thank you so much for any input. the Dr's think anxiety, I disagree.
Aly replied on Permalink
Rocky supper normal. My boyfriend and I were in a motorcycle accident in August and he cut his coradid artery in his neck and got a tbi. He was in a coma for 18 days. When we woke up he didnt say much and couldn't remember his birthday or where he lived. And then as he started to be more aware of things he would start trying to rip ivs out
And when the nurses would go to try and stop them he would start punching them. He was in full restraints most of the time. Finally after a little over a month he started to come back into it and every day got better and better. 8 months later and almost like nothing happens. Hes juat upset he cant do MMA fighting do to his tbi!
Anonymous replied on Permalink
Oh man me too accept I have a quarter missing of my skull on the right side also they told me I was attacking the nurses I am waiting for a titanium plate I was 18 now I'm 20 and question my life expansion and my left side coordination of my hand is weak
Angela Strader replied on Permalink
I was in a fatal car accident in 1996. I have a TBI from the wreck. I have been experiencing the feeling of being worthless and I have been lonely. No one understands and I am not sure how to cope with being alive. I have no friends and I am staying with my mother and her husband. I am depressed a lot and I think that I have lost all ambition to succeed or to do anything. I feel like I am lost. I don't know what to do. Thanks.
David tutt replied on Permalink
Hang tough. I have suffered from TBI since childhood. That started over 40 years ago. Best count I can give is a dozen major concussions. Hundreds of medium and minor ones. Sports, wrecks, falls, punches, artillery fire, hatch combings on a frigate at sea. I think I have all versions of a concussed mind possible. As long as you at least try, your family generally will not abandon you. I spent decades messed up and mine didn't abandon me. It took all the news recently about CTE for mine to finally accept my ways though.And for me to accept me. My symptoms aren't as bad as some but still ruined normal life for me. I accepted myself as abnormal and just live each day as best I can. Just knowing you have it and that there are now tools to help cope, has given you the means to overcome it. Its nothing to be ashamed of socially either. I'll tell people these days about it and that I'm a serious case of it so please talk a little slower. Once they understand I'm no pschyo they turn downright friendly after a dose of my southern charm
Eunice replied on Permalink
Hi Angela
I have a TBI and I understand how you feel. One of the hardest things I did afyer my accident was ro out one foot in front of the other to go to a brain injury meeting. There I found such wonderful people in the same situation and experience the same mood swings. May I suggest you try going to a brain injury group a few times and see if it helps. We love you Angela....don't give up!
john chorafas replied on Permalink
hi, Angela I read your comment and I see that you are depressed.I AM 100% SURE that you are not worthless. I don't have a tbi but I sometimes feel the same way that my life is worthless and that times is passing bye without doing something i like in my life. you are not alone many people without tbi have the same feelings about themselves .but you know what life gets better even if didn't the past years so you can be happy if you know you will be happy in the future. Also don't be shy to ask help from people. I know you will get better
Kelly replied on Permalink
All these feelings are very familiar..as I to have lived with TBI for 12 years..a left temporal lobe injury... from a few different blows to the head.
It isn't easy...but life is only what we make it...I live with constant nerve type burning of hot and cold in my head, and the same in my entire body, Some days I can barely crawl out of bed, but after I get up and start moving I set my mind to plow forward through it all...the hardest part is feeling like a different person while others see you as the same as you always been...we feel our injury at every moment thinking people can see or recognize it...and the worst part... trying to get others to understand....knowing that they won't completely ever truly know..I sometimes just cry, or even just laugh for no apparent reasons, and I always feels as if I'm living things in life that I've already done...is a very scary feeling..its hard to make others understand when we don't quite understand it ourselves...no matter what, injury or not your special, every single day I wake up I thank God for another day no matter the struggles...because this injury has taught me Every day is not garuanteed...so make each one count...they are more special then just anyone can realize...God bless...just be you and find reasons to keep you happy...the simplest things are most value of all...I've had to learn simplicity in life is most valuable... you're never alone we are never alone.
Deedee replied on Permalink
Kelly,
I am sorry for your pain. Can I ask you something? Maybe it will help me try to understand what my husband feels since his TBI 3 years ago? Sometimes it is really hard for me. When I look at him, he is the man I have known for over 30 years, but sometimes his actions show me he is not the man I know. You say the hardest part is feeling like a different person while others see you as the person you used to be. If you know you feel like a different person would it be possible to tell your friend that you are not the same person you used to be? If you do something that is so out of character from what you would have ever done before your injury, would you know that you just did something that you wouldn't have done before your injury? In other words, would you know that your actions aren’t the old you?
It is so complicated with brain issues. My husband does things that he denies knowing he did. I wish he would just admit it. I don’t know if he is lying or doesn’t remember. I am very stressed
Brent replied on Permalink
I was hit as a pedestrian by a pickup in 1975 when treatment was poor. My wife of 11 years was understanding. fatigue kept me from working for 2 years I was good at production but poor at office work. I could not read,do math or tell time but my 6 yr. old helped me. I developed seizures, have face blindness,have difficulty with music. I have retired from 2 good jobs.With some difficulties life is good. it is a battle, don't give up.
Gail replied on Permalink
My husband suffered a TBI in November of 2015. This injury has affected our whole family. Those of us who do no physically have the injury do no fully understand how the person feels but we see and difference in them and know we have lost our loved one but we still love the person that remains and always will. The person with the injury does not know how we feel because we keep that to ourselves. Once we see our loved one gone we hurt so deep and with so much pain that sometimes we would be better off with the injury. Remember, you are not worthless, you are still valued by your loved ones. We may not understand how you really feel but we still love and value the injured as a human being and love them with all our heart and soul. Wish you all the best and you are not lost or alone in this. Someone who knows.
Anonymous replied on Permalink
I had a fatal car accident in 2015 and still experience anxiety, depression, mood swings and more. I know how you feel and it sucks because alot of people don't understand us. They think we can just get better or that the accident didn't cause us to be how we are now. I hope things look up for the better for you!
isaac replied on Permalink
i have tbi and no friends
Diffuse Axon Guy replied on Permalink
Hey join my club my friend. Had blunt force high speed facial treatment mpact resulting in severe metabolic issues, dental jaw surgeries and noticeable bulging double vision eyes. I’m not the same person and all friends gone. My cat is my buddy. I found trying too much to hide my changes and trying to “man up” are bad for me. Avoiding crowds , noise or any conflict goes long way towards keeping the bad symptoms at bay
Don’t feel nobody understands your plight. Many of us do. No need to explain yourself. I enjoy animals better than people now just because they don’t ask me anything but give unconditional love no strings just love
I hope can find a peaceful place that has what you need.
john chorafas replied on Permalink
I dont have a TBI and I have 1 friend that is my dog. So you can have a friend too — get a pet. :)
cas replied on Permalink
same
Sadie replied on Permalink
Isaac, I understand your sadness....despair. I thought I had so many friends, until I needed a friend, and learned I had not even one. It has been impossible to accept but there is no option. I spoke openly and honestly with someone pretending to understand and promising privacy with my thoughts and pain but upon the end of the conversation my front door was forced open and I was physically assaulted by police who took me against my will to an ice cold psych ward and left alone for hours until. My legal husband and "caregiver" who that morning had handed me my refilled pain meds turned and walked away. I knew what he was saying but due to that "private" conversation I was locked away temporarily until given back to the "caregiver". That "understanding" conversationalist has secured my "care" to someone else and turned her back on any responsibility. We do not have friends Isaac, I do know where you are, locked inside your broken head that was once such a comfortable place. Just hell now with no hope or help from it, no escape even allowed. Friends pass the responsibility to anyone and I cannot blame them. We would not wish this on anyone would we Isaac?
Lorna replied on Permalink
No, we would not wish it on anyone, even our worst enemies. Hugs xx
Vickie replied on Permalink
Hi Sadie and to Everyone Else reading this post. My heart goes out to each and every One of You. I do not personally suffer from a TBI but I have been a Caregiver for an amazing guy who suffered one about sixteen years ago. He was in a very bad wreck. Coma for four months and rehabilitation for another eight months in the hospital. I want to tell you that I am So Sorry for the overwhelming Pain and heartache you are dealing with. My husband has Muscular Dystrophy and it's not easy. I know loss and the feeling of hopelessness myself. I lost my 26 yr old daughter a few yrs back in a car accident. Please Don't Give Up. There are online support groups. I realize it's not that easy to pull yourself out of a dark place. Just remember there are People Who Care. Bless You All.
Ray replied on Permalink
Yes issac I have same problem the ones act they r just use your kindness as there own advantage
Ashley replied on Permalink
I was struck by a car when I was 19 while running across a highway on a trail in my local community. I had 24 broken bones, my main being my leg and shoulder. I have definitely dealt with the effects of a brain injury. My main problems now are short and long-term memory loss, I forget things easily, trouble with word finding, impulsive decision making, loss of friends due to the fact they've advanced so much more than I, I'd rather just be alone. It's been a hard road. If I can get through it, anyone facing the challenges of a brain injury can too. I just wanted to add this for anyone feeling like their life isn't good enough because of your brain injury, it is. There's a reason we are here.
erin replied on Permalink
Ashley, your words hit me hard... I was thrown from a car at 15 and my best friend died from head injuries. I have had so many physical issues I never attributed to it until now. As I get older and realize I would rather be by myself than try to communicate with anyone. I have had 3 other MAJOR head traumas since then and just feel hopeless. I don't know why the world won't let go of me. I try everything "they say" but always end up worse than before. I don't know what else to do, no one understands me, they think I'm impulsive, depressed, bipolar, this or that but mostly hard to get along with or understand. I have wanted to die for so long and should've with the efforts. I wish I could believe there was a good reason for me to be here but it only seems to be I destroy myself and the 3 people in my life, my parents and significant other that has chosen to love me regardless of the horrible things I put them through. I don't know if they would be better with me here or if I were dead. I am tired of hurting everyone. My children have chosen to keep me from their life from a young age after an incident that I now believe is part of my brain injury and not the things they said about me. My kids were never harmed physically but I know I hurt them mentally and now I am alone and feel there's nowhere for me to be or no good I could ever do. My physical pain limits so much. I really want to be happy and have a good life with my son, my dogs and my parents but nothing seems possible anymore. I think I have crossed over to the place of no return for those who I love with all my heart. I wish there was a way to look into my brain and figure out if it is the culprit and correct it but I've not found anything pointing to that. I am glad for you that you are choosing to be positive and pushing through. I am so tired of trying. If anyone can point me to an answer of at least how to heal and if it's even possible.
ceejayy murphy replied on Permalink
Dear Erin, your words have touched my heart. I also was in 3 serious car accidents but one of the most critical was a tree falling dead across the highway which I was driving on... perfectly synced with the front of my car and flipped my car 3 times forward and skid 1 & 1/2 football fields upside down. I also fractured my head from a seizure on cement after I had finished art I had done and was showing my mother outside. When she said my eyes rolled back and boom. I remember nothing. I also flatlined for over 6 minutes from the flu and was deprived oxygen to my brain. I was once an artist, a writer, hard worker, class clown senior superlative and much more. I am now a shell. I'm not living. I exsist.. no one relates to my battle every day. My memory is gone. I forget everything. No taste. No smell. Find me on fb. For you are not alone and I would hate to hear you think this world would be better without you... it's because of you that I stopped and took 2 hrs just to type this all out (it's hard to process sentences ). You were worth that... and so much more.
Sara replied on Permalink
Thank you Ashley. I, too, suffered a major head injury some years ago in a car accident. I have no one left in my life. My life is filled with constant effort with no seeming reward. No one knows what happened to me, because no one has wanted to listen. I am given no support, but I am expected to support everyone else. Life is very hard every day, most times torture. I have the same problems as the ones that you listed and am exhausted from the effort that it takes every day just to get through the day. Even though I can't figure out why God kept me here, it is His decision when he takes me out. Thank you for your words. They are the first to me since I was injured 32 years ago. It feels like I am wandering around in a dream with no connections. Thank you for yours.
Marina replied on Permalink
Hi, Ashley! I hope you are doing well today. I would LOVE to listen to you story and offer as much support as I can. I suffered a TBI years ago as the result of a car accident. God kept you here so you can teach and inform others about TBI. You are a blessing and I will pray for you! Have you considered attending a TBI Support Group? Is there anything like that where you live? I facilitated a Traumatic Brain Injury Support Group a while ago for about a year and a half. I started by attending the group and one thing lead to another and I was asked to facilitate. I was very scared, but everyone in the group was so understanding and supportive because they have been through similar experiences. I have an on-line Brain Injury Support Group of Duluth on Facebook if you use Facebook, and everyone is welcome! Let me know if you are interested and I will help you out any way I can. God bless you and please stay safe and strong and know that you are not alone!
Tammy replied on Permalink
My son who was 15 1/2 at the time was hit by a van while on the rode is head hitting the windshield causing TBI and broken up hip and leg, we spent 2 months at savannah, Ga. he then was sent home, he had to learn to talk and eat again, although we had to feed him through a stomach tube for awhile, he has been in and out of rehab for the past years but still can not walk, there also was no big settlement so we could not get him the best of care, medicaid does not allow for much therapy, now he is 26 its a shame that he can not still walk because we do not have money or good insurance, my son has missed alot of things in his life and my heart breaks for him! it is just not fair!
AMILLER replied on Permalink
I was in a car wreck in 2000 and had a TBI. I have had many problems on a daily basis due to this injury. Headaches, vision, confusion, and memory loss are a few of the areas I deal with every single day.
Christian replied on Permalink
I hit my head about 8-9 months playing football and couldn’t even remember what year it was or what I did two minutes before. This was at school. I sat at the nurses for hours and it was intense. They gave me bad advice by saying I would be alright and that I just needed some rest and to be inactive for a while. A little after a month later, I was playing basketball in school and someone ran into me by accident. They must’ve knocked me out because I fell over. I’ve asked people, they all say “it was the loudest thing in the gym" when I hit the back of my head off the gym floor and ever since that I’ve been feeling the same way. I’m 14 now and I was just wondering if anyone else was going through what I am. And I was right, at least I know it's not only me. What I always feel is like I’m trapped inside my head, blurred vision and terrible headaches are a small part of what I’m feeling right now and will probably always feel.
Sable replied on Permalink
My injury occurred in August 2015. How long after an injury am I still considered to represent someone with a TBI?
Kevin replied on Permalink
For the rest of your life.
Anonymous replied on Permalink
Anonymous replied on Permalink
I think I may have had a TBI. For years I have had the headaches, from mild, moderate, to prostrating and meds have not helped. I have had occasional blurred vision from them, dizziness, numbness, tingling in extremities, ringing in my ears, emotional swings of irritability, anger, out bursts, depression, a general sense of malaise, short term memory loss, fatigue, and brain fog. I have been tested for almost everything except TBI. I recently found medical record that shows I had a fall from a stand while working on a jet and taken by ambulance while in the military. The record only shows injury to the soft tissue of my lower right lumbar area of my back. I had a follow up with bed rest. Since finding this record and researching TBI I am wondering if I have it even though this fall occured 34 years ago. All the above systems have been there with me for a long time but cannot remember when they started. I have learned to push through but am finding it more difficult as I age .
Anonymous replied on Permalink
Anonymous replied on Permalink
I was injured in a hockey game; I played (non contact) men's hockey for many years (I'm a civil engineer and just always played on school/work teams). A big guy decked me and I fell back and onto my skull. That was 13 years ago. I have seen 4 neurologists and tried every single alternative medicine there is. I still work as an engineer, but part time, and still get headaches, vertigo and fatigue. I'm sensitive to light, noise and confusion
My short term memory is quite poor. I find my friends and family still don't understand: if I have to cancel a visit with them, they say I should just make an effort (though they are constantly telling me I should cancel visits with others). It is a very, very frustrating condition. I find this site really helpful in helping me understand that I am not alone.
Anonymous replied on Permalink
I suffered a traumatic brain injury when I was a young lad of 5 years old. I was at my uncle´s house and went down the stairs. As soon as I got to the last step and put my feet on the concrete cement. I looked around and to my astonishment I saw a stool and above the stool was a paper plane hanging. I looked at them and decided to climb on the stool to get the plane. The fact of the matter is that I do not know who put the stool and paper plane in the position where they were exactly? I am trying to put all the pieces together to find closure in the criminal case. Once I know who the perpetrators were they will be charged with attempted murder!!! The crime scene happened at my uncle´s home in 1975. He lives at 300 Evelyn Avenue in Toronto. I have discussed what happened with numerous people and they stated that the person who put the stool and paper airplane were trying to kill you.
I put one foot on the stool and pushed up and then I put my other foot on the stool and I was on the foot stool and from there I raised my hand to grab the airplane and the stool started shaking because it was tampered with the legs were shaky and moving back and forth. So, that I last my balance and fell of hitting my left frontal lobe onto the concrete cement. I sustained left frontal lobe damage. My left frontal lobe was bleeding which is an open cut damage. I was crying and screaming loud and my mother ran down the stairs to assist me with medical attention. But, no one brought me to the hospital nor was my family doctor told about my traumatic brain injury which I sustained (TBI) I am working hard to find out if criminal charges can be laid against the person who devised the scheme to having me injured.
Anonymous replied on Permalink
Anonymous replied on Permalink
In 2001 I was hit repeatedly on the head with text books. When I got off the bus my shirt was covered in blood and blood as coming out of my nose and mouth. I don't remember anything after that but my parents told me I went to the hospital for tests. I remember stuff that happened a long time ago but anything recent I have problems remembering. New information is hard for me to remember. I have a hard time standing especially on moving trains and buses. I get headaches and shakes in my head. I have a TBI and I hate it. I can't multi task which makes it hard when I have a young son to take care of. I can't drive so I rely on transit or others to drive me around.
Anonymous replied on Permalink
Thank you all for sharing your experience, thoughts, encouragement, and your hearts. I've suffered two major accidents that should have claimed my life and two massive blows to my brain and skull. For the past 5 years I have been researching for answers to what happened to me and life itself. Thanks for providing me with your testimonial experience. I'm am blessed because of all of you today..
Anonymous replied on Permalink
I had been beaten yrs ago & had the base of my skull mashed into the base of a sofa sleeper. Yrs HD passed & I had been abused having my head smashed into the hard floor while my abuser was sitting on top of me. He knocked the wind out of me but I did not loose consciousness. Then that same year I smashed my head the top very hard into the frame of a metal door casing. Did not loose consciousness but wow the pain & headache that followed. Then 7 months later I fell on the ice in my driveway. This time I did loose consciousness. Woke only to peal myself out of a frozen puddle & get myself into my home. This is where I found that I lost bladder and rectal control. I live alone and had no help. Today I suffer from migraine and pressure in my head every 2 months. The doctors around here think I'm nuts when they can't find anything. I have a hard time sleeping, I'm tired all the time. I'm depressed because I feel that I have nerve damage that effects the nerves in my neck, shoulders, arms and legs. I'm very slow to get started & feel brain dead at times. Could this be TBI? What type of Doctor can I see that will LISTEN TO ME? I find myself confused quite often. Please help.
Anonymous replied on Permalink
My niece had a horrific vehicle accident on 2-11-17. She has just been moved to a room out of ICU. She is trying to get out of her bed often. They have her strapped down now, and heavily sedated. Any help or words of encouragement are welcomed!
Anonymous replied on Permalink
I had an accident an ended up having (TBI). Does this affect being hired by an employer?
Aaron griffey replied on Permalink
Just be honest
Anonymous replied on Permalink
I was T-boned in Sept 2015. I had a hematoma (brain bleed) TBI as well as my hips were dislocated. and had double vision, headaches. After much physiotherapy , massage therapy, speech and language pathology, psychology treatments I am now back to my old self. No headaches,occasional neckache but working 40hrs per week and feeling normal again. My faith in God is what healed me. Stay positive because it will get better if you believe.
Anonymous replied on Permalink
I have a brother who had a TBI 7 yrs ago and recently I've been feeling really resentful towards him and my mother for expecting too much of me. I get no thanks for helping them. Not sure where to turn I want to run away from it and never come back. Any advice would be helpful
Tami replied on Permalink
I'm sure your brother would like to run away too. I'm sure he wishes it never happened at all.
Anonymous replied on Permalink
if it was you with the injury im sure your family would help you with the emotional and physical roller coaster the injury causes suport to your brother is what you should focus on instead of resentment for the injury he wishes he never got
Anonymous replied on Permalink
I was involved in car accident at age 3, this accident claimed life of my mother. I am left with disability where functions of left side are not as stable or strong as of the right side. When speaking my mouth only moves on the right side;this is so humiliating when around strangers and people feeling sorry for me I wish to change this condition. I'm 35 years old now; having to explain to my children and them being ridiculed by their friends because of me is sad.
Anonymous replied on Permalink
I had brain bleed March of last year. I've been recovering well until today. I'm shaking uncontrollably on the right side. I don't feel any different except the shaking. Can anyone tell me is this normal to develop new symptoms?
Anonymous replied on Permalink
Hi! I have a moderate TBI I'm recovering from. It's been 8 months and some days since everything changed. Last night I accidentally hit my head. It had a bump for a while but ice helped. I'm wondering if I should do anything about it as my 'executive thinking' might be out of order. Btw, does anyone ever fully recover? And how? Hospital I went to, other than physical therapy to walk and glasses to correct some things (so grateful for!), they did not help. I've had more help with brain building apps. Anyone else in similar place and what can be done?
Anonymous replied on Permalink
I was just shot 5 month's ago by a 9mm. Was in a coma a month and I lost my right eye also, It's still in my speech but I'm ok. I should be dead but I'm still kicking. I'm a 26 year old male.
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