It can be very helpful to hear from other families who have experienced caring for a loved one in disorders of consciousness. Personal stories from other caregivers can be both instructional and, even more importantly, help you feel less alone.
Where Can I Find Stories About Other Families’ Experiences with Severe Brain Injury?
Family Experiences with Vegetative State (Unresponsive Wakefulness Syndrome) and Minimally Conscious States
From Healthtalk
Personal stories of caregivers caring for a loved one with severe brain injury.
Caregiver Confessions: Taking Care of Myself Is a Group Effort
From BrainLine
This video focuses on a caregiver describing how she took care of herself. She relied on others for help during her spouse’s recovery.