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Brain injury Blogs: Voices from People Living with Traumatic Brain Injury

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Katherine Wise, BrainLine

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Brain Injury Blogs: Voices of People Living with Traumatic Brain Injury

Groucho Marx got a lot of laughs for saying that he’d never want to be a member of a club that would accept him as a member. For people with brain injury, there isn’t anything funny about their new “membership” into the club of the “invisible injury.” However, many people surprise themselves with their strength, insight, and sense of humor — even in the face of adversity.

The best person to understand what living with a brain injury is like is somebody who has been there him or herself.

Meet these five bloggers who are on their own journeys after brain injury and want to share what they have learned along the way. So, if you are searching for encouragement, advice, or information from an authentic source, take a look at the following blogs and the amazing spirits behind them.

Kara Swanson: Rocking Her Life After Brain Injury

Kara Swanson started her brain injury blog when she realized how much she had learned through writing her book, I’ll Carry the Fork, about her 1996 brain injury.

“I have met thousands of people with brain injury during speeches and online, and I have enjoyed a wonderful new life after my brain injury,” Kara says. “I’ve come a long way from the experience I shared in my book and it has been almost entirely positive. I wanted to shout back to the people coming up behind me and let them know that “up the road the skies are clearing.”

Kara was in a car crash when a driver ran a red light. She still experiences headaches and cognitive fatigue, but has discovered many coping strategies despite her long-term symptoms from brain injury.

“My blog is the written expression of my hopeful attitude toward brain injury recovery and life in general,” Kara says. “While it covers topics that are painful, challenging, and frustrating, it has a bottom line and a consistent message that reflects my very firm belief that we are capable of absolutely rocking our lives after brain injury.”

Her blog targets long-term survivors in the brain injury community. “Because my blog is very positive and conveys a hopeful, grateful message, it usually does not resonate with people most recently injured,” Kara says. “There is a lot of anger and grief that needs to have its time and its voice. That’s important and I get that.”

“I try to target the people who are left, after a year or so, with stubborn symptoms and forever changed lives. The group that’s stuck between what can never be again and what is impossible to conceive,” she says.

While her advice is primarily for people with brain injury, much of it can be applied to the general public. “Brain injury or not, everyone is crippled by something. No one goes through life without change, challenge, and heartbreak,” Kara says. “Everyone will experience something that absolutely rocks his or her world sideways, and those of us with brain injury are fortunate that we have survived to recover from ours.”

Kimberly Carnevale: Butterflies After Brain Injury

Kimberly Carnevale started her blog “Hitting the Road with Brain Injury Riding Shotgun,” when she embarked on an RV trip from New Jersey to Tennessee with her daughter and her service dogs.

Originally, the blog started out as a way for her close friends and family to keep track of where she was and how she was doing as a safety precaution. That way, someone would know if she experienced a “cognitive slip” along the way, one of the lasting symptoms of her brain injury. But as she started to write, more and more people followed her along her journey.

“I had an audience I hadn’t anticipated,” Kimberly says.

Kimberly and her daughter, Sarah, turned their road trip into a campaign to raise awareness about brain injury. She started referring to her blog followers — who were mostly people with brain injury and their families — as her “butterflies,” associating their journey as one similar to emerging from a cocoon.

Their vehicle became known as the Butterfly Express. Kimberly wrote her blog address on the vehicle with window markers. At every truck stop and rest area, she and her daughter put up green paper butterflies, one to represent each of her “butterflies” and distributed pamphlets about brain injury.

“People don’t want to hear about brain injury until it’s happened to them or to someone they love,” Kimberly says.

Kimberly’s brain injury occurred in 1998 when a tractor-trailer rear-ended her car. In that moment, her dream of riding for the US Equestrian team was smashed. With the help of her faith and her first service dog, Dewey, she says she began a new episode of her life.

Kimberly launched an educational program called Canine and Abled to teach the public about service dogs. She now trains problem dogs, and hopes to start an Equine Ability Program to provide therapy using horses.

When Kimberly, Sarah, and the dogs arrived in Tennessee, she considered ending her blog. “I thought it was the end of the road, but people were very upset about it not continuing,” she says. “I felt so supported and loved by them.”

Kimberly’s blog covers many topics, and reflects the thoughts of someone with a brain injury. “It goes all over the place… like us, people with brain injury, we’re all over the place.”

With her strong faith, she says, “I don’t write, I just push the pen. God writes the words.”

Shireen Jeejeebhoy: Deconstructing Misconceptions about Brain Injury

Author Shireen Jeejeebhoy blogs about many different topics. While much of it is based on her books, Lifeliner and She, Shireen has started writing about brain injury, too. She brings her perspective as someone with a mild TBI.

“There is nothing out there for those of us with “mild” injuries who have internal body function problems,” Shireen says.

Written exclusively for BrainLine by Katherine Wise.

Comments [66]

My uncle suffered a tbi in July 2016. He fell while walking down his stairs at home. He lived alone and was left laying on his stairs for several hours until neighbors found him. He is 58 years old and over these past months has been bounced back and forth from hospitals to nursing homes and nothing seems to be the right fit. In August he wasn't even able to walk or hold a normal conversation. Today, (April 2017) he resides in a nursing/assisted living and hates it. He can walk, talk, eat alone, carry great conversations but does still confabulate and needs more occupational therapy. He is too advanced for nursing homes and assisted living but also cannot live alone at all.....what is the best in between living situation for someone as young as him?

Apr 18th, 2017 9:14pm

Stay positive the best is yet to come.I had a t.b.i. about five years ago. Every year my life grows. I started with all my possessions​ thrown away by my landlord. My truck in a scrap yard. Woo! Get life!

Mar 14th, 2017 9:13pm

Amazing! I have just started blogging about Life After A TBI, and today is the first attempt at finding a community of like minded citizens!  The first address my search engine came up with was this one!  Please visit me at https://www.andyetheregoi.com and help me feel like part of a community!!


Feb 18th, 2017 2:45pm

Savage😵... I woke up in a coma 18 years of age now in my twenty's. Had some crazy times in the hospitals I stayed at. Met some great people, came out of it a better person.

Jan 25th, 2017 7:16pm

I fell off a roof in 2001, spent 6 weeks in a coma. Doctors said I wouldn't make it due to my injuries but a week later they made a full apology and said that I was making a full recovery and called me the miracle patient. That was 15 years ago last November and it's been very very hand. Life sucks, people are the hardest, and worst thing on this planet. I hate pretty much everyone. People have always judged me in the wrong way but since the tbi that has been everyday. People suck and the worst part of my accident is I woke up and didn't die. I don't believe in killing myself or others, but I do smoke and pray someday cancer will take me from this beautiful planet with all the back stabbing horrible humans. I'll probably live over a 100 now:(

Dec 18th, 2016 10:24am

I've had my brain injury September 6 1991. Since then I've had no support whatever with life. Des Moines Iowa Neurology just called me and asked me what he can do for me. I've been going back and forth with these guys. What upsets me the most is when the veterans get more help. I'm saying they do because I know they don't because I've never had any help. So where do you go with all this? It's sad. For myself, my family does not understand anything about me. By the way I am there is no help here and Des Moines Iowa puts you on a lot of drugs but some head injury people can handle those kind of things. What you need a good positive group, a family, and friends around you to help you out. I'm both sides

Dec 7th, 2016 4:40pm

My cousin suffered through several close range explosions while deployed in Iraq. The result was traumatic brain injury that went left undiagnosed and untreated. He started having increasingly worse symptoms that the doctors thought were seizures. Even when he wasn't having one of his "episodes", he had constant headaches, insomnia, shortness of breath, the shakes and dangerously high blood pressure. After trying multiple medications and seeing several doctors, we heard about a health center in Dallas, Texas called Cerebrum Health Centers that specializes in treating TBI, but not in the traditional way. When he went, the doctors spent close to 20 hours one-on-one during the first week with him asking questions that no other doctor had ever taken the time to ask! They also looked at everything - his balance, eye reactions, muscle pain, memory, blood work, even his metabolic system. They identified exactly what brain and body systems were being interrupted and causing the symptoms (which revealed that the seizure diagnosis was incorrect, by the way), and designed a treatment plan with specific physical and mental exercises along with a supplement and nutrition plan created just for his body chemistry. The recovery was nothing short of miraculous! He recently had a follow up and even though over 70% of his symptoms had been gone for over 6 months, he was still having high blood pressure and a slight tremor. They did an exercise with him and his wife said within 2 minutes his blood pressure went from 158/99 to 126/80 and the tremor was gone! I know they both feel like this place saved his life, so if you or a loved one is suffering from TBI, you might want to check this place out. I forget what their website is but if you Google "Cerebrum Dallas" or "Cerebrum Health Center" I'm sure it will pop up. Sending each and every one of you my love and support -Angela

Sep 16th, 2016 11:43am

My head went from 25mph to 0 on the side window of an SUV 13 months ago.  I am now allowed to work 32 hours/week as a Manager of a large Wastewater Treatment Facility, but I have not had any measurable healing in many months.  If anything I feel like my cognitive deficits are worsening and symptoms that had stopped are now returning.  My doctors are now pointing to anxiety as the cause, but I feel like living inside of a brain that doesn't work as well as it used to is actually causing the anxiety.  Any advice?  I feel like my brain is trying to unfocus, avoid thinking and get away from stimulii, which was common in the early months, but why is this feeling returning?  Any help would be appreciated.

Sep 13th, 2016 3:54pm

My boyfriend of 1.5 years has tbi...i knew about it before we started dating but the anger issues and the lack of empathy are starting to take there toll on me..i don't know if it is all the tbi that makes him act this way or if it is some personality characteristics also...

Aug 18th, 2016 2:56pm

I suffered a TBI over two years ago. Progress feels slow and I feel like I've lost a lot. Can you recommend a support group for TBI survivors and their families? I'm kind of lost and I used to be a successful executive. Now I don't what I am or what I'll do with my future. It's hard to come to terms with it

Jun 30th, 2016 10:17pm

Hello my name is Mario Torres and I am a survivor of a Traumatic Brian Injury. The experiences shared on Brainline.org inspire me to share my story. I suffered from a severe TBI with a hematoma in 1997; I flat-lined twice and was brought back by the Grace of our lord, and defibrillator.  I had a tracheotomy and G-tube along with the other IV’s living for me. I was in a coma for three months, and when I woke I had to relive life again. Learning how to walk, talk, eat, and personally care for myself was all something new with assistance. After being released in 1998 from the hospital, I confronted the numerous stages of rehabilitation from extreme happiness to sadness.  Two years later, following intense behaviors, I decided to go back to school.  Since then, I have learned so much about myself and only encourage others to do the same. I want to work with other individuals who are rehabilitating or their family members who just need some positive words of support. I am very familiar with the process of rehabilitation of a TBI and know that success is an alternate route. Please check out my webpage, it is under construction but hopefully it may answer some questions.

Thank You,
Mario A.C. Torres


Jun 20th, 2016 9:02pm

Interesting recent TBI article:  http://psychcentral.com/blog/archives/2016/03/28/traumatic-brain-injury-the-hidden-epidemic-nobody-wants-to-talk-about/

Mar 28th, 2016 1:48pm

thank you for sharing this--wonderful to know others with PCS or TBI related issues are represented in the blog sphere. My own experience has been a lucky one; my ENT referred me to an optometrist specialist who is an expert in vertical heterophoria, the condition I apparently had (but been undiagnosed for years with other "specialists"). I have thought about creating my own blog, but feel like it would have been more worthwhile if i'd begun during exploration for treatment instead of starting with my success story....

Mar 23rd, 2016 2:50pm

I think the more hurt you are in the beginning the more medical attention you get the whole way through. If you bump your head and it takes a year or two to figure out you have a brain injury you are met with a lot of naysayers and opposition and getting help seems like the biggest part of the battle as everyone in your life friends and family some quick some slow basically falls away until you are alone and wondering why bother. Medical people don't seem to care and no one else does that's for sure... Why bother worrying about the bills...

Feb 25th, 2016 7:40am

Hi, im so lost with all of this. I dont no where to began or how to deal with this.sometimes i just wish i would die

Feb 10th, 2016 11:50pm

Pretty good post. I just stumbled upon your blog and wanted to say that I have really enjoyed reading your blog posts. Any way I'll be subscribing to your feed and I hope you post again soon.

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Feb 4th, 2016 4:55am

You guys are missing the biggest guns. Craig Phillips on second chance to live. Read his about me and other articles about his past experiences. He is a legend. 


Jan 23rd, 2016 4:34am

My son had a TBI fifteen years ago. Our latest adventure has been to produce a cookbook especially designed for people with brain injury. We worked on it together bringing different insights to the project. We get more traction working together when we recognize the talents each of us has and build on that. We fill in the gaps for each other. You can go to our website to see our work. shorttakes.org


Jan 15th, 2016 2:47pm

I suffered a TBI three years ago and I have been looking for a way to share the ways this invisible injury affected my life. The father of my two kids tried to kill me and thanks to Neuros and God I am still here. 

Jan 4th, 2016 11:36am

 Whatever you have provided for us in these posts really appreciative.

Dec 11th, 2015 2:39am

Interesting blog. By the way if you looking for another accident blog - welcome!

Dec 7th, 2015 2:32am

My mother suffered brain injury before 3 months and was in coma for first week. After that she had problems with her speech, communication, memory etc. Now she is recovering form the injury and coming back to her normal life. Thanks to all family members and Doctors at the hospital. I asked for second opinion from a Neurologist through www.bookmyconsult.com and I got good advise from him too. Thanks to almighty that we see improvements in her health.

Dec 1st, 2015 1:33am

There was a bump in the road. I was told I hit it and flew. The landing went wrong. I heard my name loudly. Through opened eyes I saw my blood on the pavement. I could not speak or move. A week later I thought a day had passed by. In another  week I thought second day had gone by. What were the people's names I recognized. Who was I? Three years later their stories all I have.

Nov 11th, 2015 11:30pm


Aug 20th, 2015 3:45pm

I got my TBI on May 29 2014. And I should have died but I cheated death! And all my doctors said I was never gonna walk and be mentally challenged for the rest of my life! But I'm now walking and just fine mentally besides little miscues here and there! But the real reason why I got on here is cause I wanted to ask a question. Did anyone feel like there hearing improved after there TBI?

Aug 15th, 2015 7:43pm

Brianplatts.blogspot.com. Recovery from a severe TBI

Jun 2nd, 2015 3:27pm

I read all of these comments but please don't think that traumatic brain injury is limited to an accident. I had a brain tumor and I have the same symptoms as you do. It is very hard for my family to see that therefore I am put in a category as needing help lot from an institute. I do not need an institute I just need you to understand I am NOT the old me and never will be. I'll have to find a new me and have been searching for it for 11 years. I do not expect you to understand just be patient.

May 4th, 2015 4:39pm

my brother has brain injury since 2002 dr say 32percent short term memory.. he a little better but needs help

May 4th, 2015 3:00pm

I do not personally live with TBI but I lived through two years of helping my son deal with life after TBI. (He suffered two concussions in less than 24 hours). I applaud all those who speak out about their life experiences to help others cope. My son would rather shove it all under a rug and not deal. I understand to a point but I'd rather speak out. I have a goal of changing policy in high school sport concussion policy. Never again would I like to hear that teammates watched his symptoms of concussion and gave no clue what they are witnessing.

May 2nd, 2015 12:31am

I had a crush injury at work resulting in near death 3mini strokes and epilepsy ... I now struggle to remember things im tired all the time also down :( my fiance proposed to me after it but it hurts that I can't even remember it writing has been affected thank god for auto correct! I now hate the person who I am I was a determined young lady but that's all gone and I now hide away from people and situations ...

May 1st, 2015 11:10am

TBI ... you only know it if you live it

May 1st, 2015 10:46am

I was in a car accident with tbi a,few years ago n my,life is falling apart...

Nov 4th, 2014 11:59am

Wow, I was in a motorcycle accident July 1st of 2014 while on vacation due to a manufacture malfunction (defect).  I was unconscious for 4 days and released from the hospital at the end of July after being taught to speak and walk again.  I have been seeing DR after DR.  I now live in a different world alien to me.  I constantly live in a fog.  I feel tired all of the time.  I lost my job due to the DR's not releasing me back to work.   I do not date anymore, because I have nothing to offer, so my search for the love of my life has ended.  I live with some embarrassment due to my loving daughters taking care of their 48 year old father as I was acting like a toddler.  Thank you for giving me a spot to vent.  Friend

Oct 16th, 2014 9:15pm

I had same condition too. I had a very severe accident for 1mnth i was in coma .one thing can save everyone sultan alam sb. Xmannanx@hotmail.com from this Id i am on fb

Aug 30th, 2014 12:39pm

My uncle was at work when a bucket fell off of the roof of a building and struck him on the head. This horrible accident left him with slight brain damage. Though at times he seems just like the same guy as before the accident, there are other times when his struggles are evident. His attorney uncovered that the bucket had been left on the edge of the roof for almost a week with the owners of the building knowingly leaving it up there since it required effort to take it down. With just a little bit of social responsibility my uncle would not have to suffer. 

Aug 12th, 2014 2:55pm

Thank you for sharing your valuable information.this information very useful for online learners

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Jun 4th, 2014 10:26am

i am a student at mosinee i would love to know more about your storys and what it is like living with tbi i am doing a project currently in one of my classes please email me at jpjason@stuudent.mosineeschools.org

May 14th, 2014 3:46pm

My dad suffered a significant tbi 19 months ago; he\'s 76 now. Has anybody come across any information on elderly tbi survivors? Thanks

Oct 14th, 2013 9:54pm

Well, I deal with a similar issue. I have MS, and it offen affects my cognition - memory, reasoning, etc. Although I don't directly have TBI, I have my own version.

Oct 1st, 2013 10:46am

I have been very moved reading your blogs, you are all such courageous people. I want to share something we found out about brain injury after our son committed suicide five years ago. We found that in around a third of brain injuries the pituitary gland is damaged, and this may be responsible for such after-effects as fatigue, depression, infertility, loss of sex drive and obesity. It's treatable with hormone replacement and often leads to dramatic improvement in mood and cognitive function, as well as restored sex drive and fertility, and loss of weight. Please go to www.headinjuryhypo.org.uk for more information because some of you may be helped. http://www.headinjuryhypo.org.uk/html/dr_mark_porter.html gives a good overview. The best of luck!

Sep 30th, 2013 10:50am

Hello my friends. I can see that a lot of people had worse situation then mine. I fell on cement porch, concussion and headache that last. 27 years later still what they called absence. Petit mal. Don't get discourage, keep going and look for expert. You have more strength than you think. Carolyne

Sep 27th, 2013 7:06pm

I have a brain injury and I can relate to the individuals who have posted their story. There was something that stood- out, one individual described a brain injury as: ‘the invisible disability’. This caught my attention because it is true. Lots of people in society still believe to this day that if you cannot see the disability, they do not have one. Although I consider my disability something private and something no one has to know about- sometimes I wish everyone knew for one second so that people can perhaps have another perspective on individuals who have disabilities. We are all different but we are all human. I’ve had to experience this lots in my daily life, some people either talk negative in regards to disabilities or they crack jokes- the minute I tell them ‘I have a brain injury’, they go silent. I can see it in their face- the confusion, due to my high functioning ability to move on with my life and do the things that I wanted before I sustained a brain injury. Lots of the comments in regards to coping skills and rehabilitation seemed quite similar to my life. Everyone deserves a chance and society needs to help with the assistance and guidance if need be.

Sep 17th, 2013 4:08pm

I also have a MTBI, the best thing I found was a Neurologist who works with Brain INjured people. Look for a medical facility in your area that has Neuroresearch,neurosurgery (even though you don't need surgery-they are specialists). Also, not every PT area is the same, some of these people have no idea abut PT and brain injury-we are not the same as other people. Search for a PT who has had education and experience in treating people with a brain injury-this changed my life for the better!

Aug 14th, 2013 4:54pm

I am hoping to find out if there are any drugs on the markrt to help me with my unbalance. my name is Anthony and I had a pontine bleed may 25thg 2010 I have since regained most of my motor functions except for the fact that wwhen I walk it is like walking in a boat I am constantly bumping into things and I cannot even walk a straight line to get my pants on standing on one leg is impossible I need to sit or lean on a wall to get dressed if anyone has any information that will help me please email me at amgelectrician@yahoo.com thank you so very much

Aug 9th, 2013 10:53am

My name is Elise and I sustained a coma due to a heart arrhythmia that caused me to pass out while visiting my grandson at his elementary school. I apparently fell on the asphalt and my daughter took me to the hospital because I kept asking the same series of questions over and over. In my mind I went back to what was going on in my life 2 years previously to that day when I fell. I don't remember the 8 hours of that day and still don't remember that day very well. They sent me home when I finally came back to myself later on that day. However,I am not the same person since then. I still have a hard time remembering things I use to know and I still repeat myself. At first it was really hard for my family and friends not to get upset with me, after awhile it is hard not to get frustrated with the different person who emerges after the concussion. I have always had a strong belief in God, and he has made me physically better and emotionally stronger since the concussion, which happened ten years ago now. I appreciate this blog, because there are still days that are difficult. All I can say is, that I agree with someone who said in their blog, don\\\\\\\'t look back at who you were, be grateful for the strength and courage it took you to survive and even flourish today. There will always be people who don\\\\\\\'t understand and be critical of something you said or didn't say, or something you didn't remember. We, as survivors can't let anyone for even one minute deny us the gift of life and the joy of life. Thank-you for reading this, I hope it will encourage someone else like me.

May 25th, 2013 2:44pm

People " Refuse to See" what is really going on with me!!! I have been trying to Open their eyes and hint to them to make them see that their is something wrong with my brain! I don't know how many time I have hinted to people that the signs are in front of their nose!!! I know that they see 1. neurological damage!! 2. Aggressive Behaviors when angry!! example: kicking doors, my breaking personal and throwing things 3. difficulty seeing things through someone eyes!!! 4. Frustration!!! 5. Cognitive abilities reasonably provoking anger !!!! 6. Intense mood swings or extreme reactions to everyday situations, overreaction, angry outbursts !!!!!! but people don't get the hint! things people should not do to me and cause is: 1. Do not criticize me! 2. Do not play and Make fun, judge of my impaired situation or life! 3. people should not attack me with words, physical harm or mental harm, they can cause someone like myself to commit suicide of severe mental stress!!!!

Apr 15th, 2013 12:45pm

My name is Greg. I have a brain injury. My injury came from teenage stupidity. I did nothing more than party for a few weeks, with out much sleep. Then decided to go swimming, not a good idea. Rehab was long and hard but if you stick with it will feel as if there is nothing wrong. Unfortunately, there is no cure, but if you work your ass off you will be surprised. The more one uses the brain the better it will work. This is only the condensed version of this story. I don't have a lot of room to expand.

Mar 10th, 2013 9:44pm

Traumatic Head Injury – Coma for two week’s yet questioned in the dock by a High Court Judge...In Ireland, disabled people do not hold legal rights! Seeking help and advice, I wrote a letter to Oprah Winfrey.

Jan 12th, 2013 12:56pm

keep the faith GOD will work it out.Been there in the hospital for 5 month,but GOD did it with help with wife,family,freinds,dont gave up i known its seem hard but with faith you will win

Dec 27th, 2012 3:12pm

My name is Robert , I have TBI,I am so frustrated I feel as if something was knocked out of me. God help me recover!

Dec 6th, 2012 11:26pm

I dont really understand as to why more hasn't been done. this issue is affecting millions of people all over the world and it seems unfair to keep these people from being healthy. as a professional athlete i feel that this issue neds resolved, and soon

Dec 6th, 2012 3:12pm

Hello everyone, I just wanted to say I hope while reading this that yourself or a loved one is staying strong through such a difficult and traumatic experience. You hear of so many inspiring stories and many that are heart breaking. Stay strong!! I am writing to let everyone know that there are people out there who care about you and your circumstances and are doing everything in their power to help raise awareness and money to help those with traumatic brain injuries. I myself, as well as 3 other Temple University students, am involved in raising both money and awareness to The BIAPA (Brain Injury Association of Pennsylvania) We have done small things such as volunteer our time to helping BIAPA sponsored events, raise money for a program called “Helping with Helmets”, which is a program aimed towards preventing brain injuries, and raise money for the BIAPA itself. Not only has this been a rewarding experience but my goal is to let you know that wherever you are reading this there is a Brain injury association near/around you that wants to help and is willing to help. I encourage you to reach out and join in discussions and share experiences with others. Be willing to help and volunteer time, money or just be proactive in preventing brain injuries and helping those who need support. We as a group started http://www.firstgiving.com/fundraiser/helpingwithhelmets/biapa this link is a link that is meant for anyone and everyone to donate whatever they can to the BIAPA. You could also donate to the brain injury association near you as well. If you cannot donate please be proactive in preventing brain injuries. The littlest things like putting a helmet on a child while riding a bike are small steps that reduce big problems. I thank you for your time and generosity. Before I leave this discussion please know that our prayers and thoughts are always with you. Stay strong and believe we can make a difference.

Nov 15th, 2012 11:12pm

Great Information. i look forward to reading more. thanks, http://lawyerschwartz.com/practice-areas/personal-injury

Nov 7th, 2012 12:18am

I don't know if this is a place to post this, but when I was between the ages of 6 and 9 I suffered a concussion. Now being 31, I am wondering if there may be lasting brain injuries that I sustained. I suffer occasional head and neck stiffness, frequent light to moderate headaches and random mood changes that aren't "me". I'm wondering where I could read up on this possibility or find other information that may help in this. Thank you.

Aug 19th, 2012 10:13pm

My name is Kate and on Jan. 9 of 2012 when I was 61 and a half years old I was innocently and correctly crossing the street when I was hit by a car. The result was a pretty severe head injury which resulted in brain swelling and a near-death experience of which I remember nothing. Three weeks later I came to myself when I arrived at one of Pittsburgh's premier rehab hospitals. Six months later I feel I am about 97% back and very thankful that I am here and that I didn't suffer any other kinds of physical injuries. However I have found that surviving a brain injury has left me a different person. There are small things that just aren't the same as they were. Fortunately for me it has not caused an undue change in my day-to-day functioning, ability to work, drive a car, shop, etc. It is very hard to put into words but something is different about me and I am trying to make it a positive change.

Aug 4th, 2012 11:45am

My name is Katie, I slipped and fell on the ice 2 years ago and have been to every doctor it seems and know one knows why I'm having the problems Im having. I have terrible head aches, slowness in processing, anger issues, I'm tired all the time, My head feels heavy, I have vertigo, I've broken my ankle, little finger because of falling allot, I still throw up alot, I have terrible back pain and I'm at my witts end because the MRI's, CAT, & EEG's are all normal. I don't know what to do anymore. They don't even have councilors that understand brain injury's,,, I just feel like jumping off a bridge,,, Is there any Doctor out there that can help?

Apr 11th, 2012 1:23am

Message From Debbie What I do Know about MTBI Now that I am a moderate to severe brain injured person I want to tell you the things I would have done different the 7 years I had a mild traumatic brain injury. 1. I would NOT have tried so hard to be the "old me" 2. I would NOT have been so hard on myself. I was my own worst enemy 3. I would NOT have put more pressure on myself than I deserved 4. I would NOT have spent any time crying over the things I had a hard time doing 5. I would NOT have stayed so frustrated or intimidated by the things that were more difficult for me to do 6. I would NOT have thought there was anything MILD about it, it was very, very difficult!

Jan 24th, 2012 1:40pm

My Dearest Soldier My dearest soldier, I remember when you would have died for me, Why then oh why, is suicide the only option you can now see? I sit here alone and wish I knew how to call you up on the phone. I wish I knew who or where you were so I could make sure you aren't alone. I wish you would send me your email so I could just drop you a line, The real truth is, I want some guarantee that you will eventually be just fine. But wars hurt and mame and the warriors never come home quite the same. You all have paid such an ultimate price and life in this world can get insane. If I could scream at you I would say just wait a little longer until you want to again live. But I know that with PTSD, brain trauma, wheelchair’s, and all the rest, your feeling you must have nothing else to give. But if you will take just a moment to listen to a friend, I promise with time the heart can again mend. If you listen close I’ll tell you the truth, even with a battered body or mind, you still have something special you can give a friend. Make sure someone gets you some access to a phone and a computer, Because I am excited to see what you can all do if You choose to live until the future. There will be hope again in your life, I Promise! With Loving Regards, Debbie Wilson 12-26-2011

Dec 27th, 2011 6:03pm

i got into a bad car accident sept. 24, 1996, midnight i was 18, i have no memorie of who i was, and am not sure of who i am, but i know of the daily struggles, and also know that at times we need to just stop and look at all the beauty around us, what we almost missed,d alot of lifes situations confusing, but it makes me want to fight and move forward

Dec 18th, 2011 7:26pm

In August of 1967 my Dad, Mom, brother and myself were injured in an automobile accident. My Mom and I sustained life threatening injuries and neither of us were expected to live through the night. I sustained an open skull fracture and a fractured left femur. I remained in a coma for 3 weeks. When I awoke from my coma, I remember thinking that I had just woke up from a bad dream. On February 6, 2007 I created Second Chance to Live http://secondchancetolive.wordpress.com/ at the encouragement of a friend. Since February 6, 2007, I have written and published a total of 820 articles for Second Chance to Live. On July 29, 2011 I created a You Tube Channel to share my articles in a different format. To date I have created 25 video presentations for the Second Chance to Live — 2dog bull channel. To see a list of my You Tube video presentations, please click on the following link: http://wp.me/P3atD-3B3 As you read my articles and watch my You Tube video presentations, and you have questions, please do not hesitate to ask those questions. All questions are good questions. To contact me, click on the following link: http://wp.me/P3atD-2M. I look forward to hearing from you. Craig

Nov 27th, 2011 3:05pm

Hi, my name is Greg,in 1986 i was shot in the head with a .45.I lived.Temporal lobe is mosly gone ,{left}.It mellowed me.somewhat.I have had seizures since about a month or so after the surgery.Dr.Mark Melgard saved my life.I did my part too. Bigger problem is blood clots,dvt,or whatever so I take blood thinner too. Anyway the seizures seem to be triggered from stress,so I stay away from people a lot.Lucky to live at a nice spot off a back country biway in oregon.

Nov 4th, 2011 11:30pm

In 1998 my life took a huge change of direction in the form of a severe traumatic brain injury. Like everyone else with a chronic permanent condition, I was told I would never recover. Everyone has a story and that's where most stop. Very few make a full recovery so it's deemed impossible by the world. The great news is that any challenge in life can be overcome. There are multiple steps, the first three are most important. Step 1 is to consider recovery and good health as a possibility. One must develop the ability to maintain that belief no matter what happens. Step 2 is to retire every dramatic detail surrounding the challenge. Step 3 is to neutralize emotional triggers in your life. Your friends and family will tend to side with the doctors acknowledging every little thing as a sign that you are ill rather than evidence that you are on your way. I speak from experience, as one who has fully recovered from a permanently chronic disability, without support it can be very lonely. The most difficult part is maintaining focus that the disability is merely a challenge you can surmount. It does no good to claim it as your own (saying "My injury" for example), to do so only hinders one's ability to recover immensely. If you do not allow the challenge to define you the effects can subside and leave completely. Only one person in my life empowered my recovery but he didn't know how else to help. I was basically on my own and it took me roughly a decade to recover completely. No support system which empowered recovery seemed like a problem that had to be overcome if I was to see any change in the world. My first step in helping others recover was to start a conversation which empowered health rather than supported defeat. To reach my goal I created http://www.ConsideringHealth.org as a support system for anyone wanting to recover. I believe you can do it and I will empower you all the way. Please check out the blog, refer others and ask me questions. I want to build it big and teach the world, "Although debilitating challenges can be terrible, full recovery isn't."

Sep 14th, 2011 7:54pm

My son suffered a TBI in 2007 he also was 3 on the glasgow scale,2 months after the accident he got MRSA in his brain so now his left brain is mostly gone. This has changed both our lifes he is a grown man of 30 yet emoitionally he's only 10-12 yrs old for me I've chosen to dedicate my life to caring for him while working full time. My biggest frusttration is there are no coginative services available for him no daycare he can go to. When he was released from hospital after 3 months he got 3 weeks of inpatient rehab and 30 visits with out patient. This is so hard to know he has so much potiential if only he could get access to services or if he had insurance or I made much much more money. I read all the time about people who've suffered a TBI and gone on to do good things with their lifes I just wish I could give my son a better shot at it. Oh, he wasn't suppose to survive the accident or walk or talk but he did, he can walk and he has a limited vocabulary. Thanks for letting me vent.

Sep 9th, 2011 12:14pm

BrainSong, The Micah Jones Foundation was founded by Micah Jones as a result of a traumatic brain injury (TBI) she suffered in 2004 in Nashville. Micah was ready to graduate from MTSU and had just started an internship with a Music Row company the evening of the accident. Micah was crossing the street to get a taxi and was hit by a car. The driver and passenger of the car were off-duty police officers who were intoxicated twice the legal limit. Micah survived and while the road to recovery has been long and difficult she recognized the need for an organization for women with traumatic brain injuries; thus the founding of BrainSong. She is living a life with new lyrics. BrainSong will CONNECT women with traumatic brain injuries to share support, experience, knowledge and hope. BrainSong will also SERVE as an inspirational, informational resource center for women with TBIs through the BrainSong online community and annual conference. As a show of support, please click "Like" on the BrainSong Facebook page. You can also visit the web site at www.BrainSong.org for more information.

Sep 6th, 2011 2:33pm

Hi! My name is Melanie Leatherman> On October 30,2010 I was in a vehicle accident that totally changed my life. I use to be a very successful hair dresser and loved what I did but life changed in a blink of an eye. Well I must tell you that I have 2 children from a previous marriage, Hunter who is now 17 and Holly who is 10 and I am married to a wonderful man who was by my side during the entire recovery.. I don't remember what happened but what I was told was I was in the truck with a friend and he swerved and ran off the road, flipped and I flew out. I died at the scene and was brought back to life. I was air lifted from the local hospital to ETMC in Tyler Texas where I was in a coma for 54 days. One the night of the accident I was rated a 3 on the Glasgow scale which is lowest on the coma scale and spent 34 days listed as 3 three only responding to localized pain. I then was moved to TIRR in Houston where I rehabilitated a little over 40 days. I am super lucky to be where I am today! I am getting better by the month and will soon drive again. The Dr said I would probably be a vegetable. What I am on here for is to see if anyone else has been thru this and how they are now? This is my first trip to this site and am really interested too know about others . Thanks!! Melanie

Aug 18th, 2011 2:44pm

I had a motor cycle accident in 1975 causing a TBI with a pocket of blood on my brain resulting. Today I still have a pretty nasty Central Sleep Apena. My AHI was 92 i am told. I sleep with a pretty nice breathing machine that I have had to get used to. (thank god for insurance) Could have been a lot worse.

Aug 15th, 2011 2:27am

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