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TBI Ten Years Later: A Mother's Story Continues

Comments [123]

Dixie Fremont-Smith Coskie, for BrainLine

TBI Ten Years Later: A Mother's Story Continues
Paul Coskie
Multimedia

It has been almost ten years since traumatic brain injury (TBI) crashed into our lives, changing our family forever. People always ask, “How is your son Paul doing now? How are you, your husband, the other kids? How has your family survived?” I usually give my polite, standard answer: “Oh…thanks for asking, we’re all doing fine. And you?” But the reality is — unless you have experienced the loss, the heartache, and the ripple effects that brain injury can inflict — you cannot possibly understand the magnitude and the seriousness of the life-altering implications. The long-term impact that TBI imposes on the injured person, family members, and friends is unthinkable. The nightmare of TBI relives itself day after day, month after month, and year after year. Grief and sadness persist even ten years later, despite all the miraculous gains my son has made since his initial injury.

After the shock of Paul’s accident and TBI diagnosis ― when I understood the reality and severity of his injuries, knowing that they were likely to include lingering deficits and handicaps ― I wanted to bury my head under a pillow and slip under a thick blanket of denial. But to survive, I realized the necessity of being strong-willed and maintaining an attitude of never giving up. Everyone — myself and my family as well as the doctors, nurses, therapists, and even Paul himself —would have to draw on inner resources we had not known existed.

In the early stages of Paul’s injury, he was immobile and essentially in a vegetative state. We suddenly had to become his eyes, his ears, his voice. We needed to advocate for his every need. My husband and I fought to find the best medical, financial, educational, legal, vocational, and rehabilitation services available. We never stopped advocating for our son’s needs or for those of our family. As days turned into months, and months turned into years, I do not know where our energy or drive came from to venture into areas we knew nothing about. But there was no way we would stand idle without trying to help our son possibly regain even some of what he had lost after being struck by a car while riding his bike at age 13.

We came to realize that the outcome of each TBI, like each person, is unique. A person’s outcome depends on the specific circumstances and severity of the injury, immediate and long-term medical care, rehabilitation services, and the individual patient and family. We also learned that many people with TBI plateau relatively soon after their injury, without making huge gains. Sometimes these injured people and their families are left to cope with so much beyond their control: cognitive, memory, behavioral, physical, emotional, and social changes … the medical bills and never-ending insurance claims … the everyday demands of cooking, laundry, cleaning, yard work, going to the office, maintaining a marriage, and keeping other children’s studies and activities moving forward.

Rehabilitation: After many months in ICU, our son was stabilized, but the urgency continued. Getting him into a rehabilitation hospital was key to learning how to speak, to walk, and to perform basic tasks again. We knew Paul’s recovery was questionable and that he could possibly remain bedridden, wheelchair-bound, or cognitively impaired. But the months of grueling shifts of speech, occupational, and physical therapies began to pay off. Paul fought back like a champion! We began to see small gains — he blinked his eyelids, lifted a finger, uttered a word. Seeing the healing begin was powerful and moving. Yet Paul still had a long way to go.

Reintegrating Home: Anticipating Paul’s release from the rehabilitation hospital, we were faced with a new set of questions. What would we do next? Paul was still using a wheelchair and a walker. He was still struggling with memory and speech loss. He still needed assistance with everyday activities and self-care. I worried about how we were going to cope. When my husband or I were home, we’d tried to focus on the needs and cares of our other children, while managing the daily chores that made the household run smoothly. When we’d been at the rehab hospital, our only focus had been to take care of Paul. I was not sure how, or if, it would even be possible, to mesh these two demanding worlds into one.

I knew our family would be under more stress and would have to surpass the extraordinary level of support and help we were already extending to each another. We had to think about all aspects of home nursing and medical care, to obtain and install all assistive and adaptive equipment, and to prepare Paul’s siblings for the homecoming of their “new” brother. We suggested ways for the other kids to help, and we gave them permission to back off if need be. The caregiving was both never ending and exhausting. We had to recognize our own limitations, shed any guilt, and ask for help from our community, friends, and family.

Outpatient Therapy: Continuingoutpatient therapies was important to help Paul regain more movement and thinking capabilities. We logged many miles driving to and from his new outpatient facility, 20 minutes from home. I was shocked at how many injured or maimed people came and went every half hour. Missing legs and arms could have been one of the criteria for entry. And the therapies went on and on and on….

Reintegrating Back to School: We tried relentlessly to set up home tutoring through our town’s special education department to get Paul the mental stimulation he needed to continue recovery. But after investigating special needs schools and other facilities, we made the hard choice to try to reintegrate Paul into the public school system. We recognized the challenge because specific educational processes and styles used in teaching TBI students are very different from those used in teaching individuals who have permanent birth defects. Paul needed an Individual Educational Plan (IEP) geared toward his specific needs. He underwent a neurophysiology examination, which is concerned with the relationships between brain function and behavior and considers how injury may affect learning, communication, planning, organization, and relationships with others. The neurophysiologist evaluated Paul’s cognitive abilities and deficits and provided teachers with suggestions and methods to stimulate and improve new learning. In other words, the evaluation was used to help develop Paul’s IEP. When Paul returned to school, the break from constant rehabilitation allowed our days to regain some degree of normalcy.

Friends and Family Relationships: All of our lives had changed dramatically since Paul’s accident. I know Paul felt the absence of the phone not ringing, and of his friends no longer coming by to hang out. With the time that had passed, most of his friends had distanced themselves. Some were just typical self-centered teenagers, but others could not relate to the slowness with which Paul now talked and walked, and could not comprehend the differences, though slight, in Paul’s personality. To his peers, Paul appeared childlike, odd, and different. To adults, Paul was an inspiration of hope. His subtle humor made everyone smile.

Over time, my husband and I and our other seven children began to realize two things: the person we once knew might never be returned to us, and recovery would be lifelong. Because all of our lives had been put on hold for so long while we coped with such staggering changes, we started to nurture all of our family relationships. We gave permission to each other to start moving forward, to begin to go back to our daily routines, including even recreational activities.

Getting a Job: As time went on, Paul’s mobility and his physical, mental, and cognitive abilities improved. He no longer needed the special school accommodations that we had fought for so desperately: the personal aide, the small classroom atmosphere, a personal computer, scheduled rest periods, books on tape, and so forth. At Paul’s high school graduation, he walked to the podium to receive his diploma — no wheelchair, no walker but a clear understanding of all that he had accomplished. But leaving school also meant leaving the only support system we knew. The fight would continue, and we would have to again advocate for Paul to help him find employment and become more independent. Working with our state’s rehabilitation office, Paul gained employment at a local retail store where he started as a greeter, quickly moving up to sales clerk and then cashier.

Higher Education: Paul is not the same person he was before the crash. He walks off-balance, though to his family, it is a blessing he walks at all. His voice is slow and monotone. Yet, we are extremely grateful that he can speak. Cognitively, he may be slightly slower to process information, to form a thought, or to respond to a question. But the reality of his ability to react with maturity, humor, and intelligence is beyond our belief. The tremors and shakes that affect the left side of his body make it hard for him to do almost everything. But his persistence and perseverance are mind-boggling. Ten years after Paul sustained a TBI, he volunteered at the hospital where his life was saved. He speaks at rehab hospitals, medical facilities, and preventive organizations talking about TBI and the importance of wearing a bike helmet. Remarkably, he is in a higher education program, attending Lesley University (The Threshold Program) in Boston, where he is living independently, surrounded by other young adults.

Ten Years Later: Despite all the miraculous gains my son has made over the years, my heart often remains heavy. When I look into my husband’s or my children’s eyes, I can still see the lingering fear, the permanent scars.

To deal with the “new” person who emerges after brain injury, families must mourn the loss of the “old” one who is gone … and then move on to embrace life’s challenges and changes and to love unconditionally. The fragility and meaning of life have indeed become more real as my family has found new qualities, insights, and purpose to our days that would not have surfaced if the injury had not happened. And even ten years later, the sound of an ambulance or the sight of a hospital can evoke tears as we relive and experience flashbacks to that unthinkable day of the accident.

Ten years later, my heart also remains heavy as I think of other families who will receive the unthinkable news that one of their loved ones has sustained a life-altering injury. I understand all too well the grief and uphill battles they are sure to encounter. I also pray that these families will reach out to get help and resources, to have the strength and will to advocate, to never give up … and to keep hope alive.

Written exclusively for BrainLine by Dixie Fremont-Smith Coskie. © Dixie Fremont-Smith Coskie, 2010. www.dixiecoskie.com.

Comments [123]

I have a daughter, now 32 years old. She was hit by a car while walking in nov. of 2011. She was in a coma for four months. Hospital sent us out after a month. At that time I had to put her in skilled nursing home as they call it these days. She was still in a coma at that time. They said she has severe Brian damage. She had a feeding tube at the time, but kept pulling it out. No rehab place would give her chance due to not being able to follow commands.. Finally Baylor Hospital TBI unit was willing to give her a chance. She was their six weeks, then she went to Pâté Rehab for six months. She made some progress. When our time was up there it was the skilled nursing home again. We were only there two weeks and we were told we had a week  and had to leave due to my daughters behaviors. She had scratched a resident that they sat her to close to, and bit a aide. We were left in the cold with no resources or way to get meds. I have her at home now for a year and a half. She progressed some at home, was able to communicate a little more. Now since April of this year things have declined. She want chew or swallow at times, want eat. So that creates more issues with urinating and bowel movements. We give her plenty of liquids, but that's not enough. I have taken her to three different er regarding this issue and each one said there is nothing wrong. I don't understand how not eating and drinking very little at times is no a health problem. She requires 24/7 care. We have tried to get respite but no one will take her. Things are just worse. I don't care for the Medicaid community at all. I am scared, and it hurts to see her facial expression at times. The CBA programs have so much red tape, and limitations. I just want to cry half the time.   I understand the sadness of coping with tbi. I am also raising her two kids. Any suggestions or help email at marylynosborne11@gmail.com. 

Jun 27th, 2014 7:28pm

I want to post something that gives hope. Eight years ago my brother sustained a head injury from an assault . The hospital he was taken to had three others that night and his injury was by far the worst. Of those admitted he was the only survivor . Eight years later , having gone through extensive rehabilitation , he is still my brother, he still has the same traits he had growing up, he still has the same humour and yet when I think of all that he has lost I wonder how. His marriage broke up within the first two years, he lost his career and many of his friends and is now on a disability pension. The rest of our family has fractured, some beyond repair because they refused to see the mighty struggle he had to deal with. I have never been so proud nor inspired by anyone as much as I have been by my brother . Through everything he has not given up, he has rebuilt his life even though it's not the same life, it's still his. He rides his bike, he runs, he plays guitar and listens to music, but most of all he has made new friends, people who like him for who he is, the old and the new. I have been with my brother every step of the way and when he has needed someone to fight his battles I gladly did it. For anyone currently going through such a traumatic time just remember that perseverance and a whole lot of love can in time bring about things that right now seem impossible . Of everyone in my brothers brain injury group he has the most severe injury yet as his group leader says, he is the most inspirational to all the others. My heart goes out to everyone . Liz

Jun 26th, 2014 8:28am

I will keep this short-  I myself was in a  quad accident on 6/5/04 and experienced a TBI.  I'm sending this out to anyone out there that is/or has a friend/family member dealing with TBI.   I've been dealing with TBI for ten years.  I will be more than happy to answer any questions you may have in regards to dealing with TBI.   My email is Schmidty241980@yahoo.com

Jun 24th, 2014 11:59am

My baby was born 3 months early and spent 2 months in the N.I.C.U. she had been home for just under a month with no problems other than being early. On her due date my baby stopped breathing for no reason and her whole body turned blue. my wife ( Madison ) was right there and performed CPR and brought color back to her while getting 911 on the phone and to the house. It was said she went about a total of 28 mins without oxygen to the brain. The Dr's are now telling us that has severe brain damage or H.I.E. and isn't expected to get any better. She is on a ventilator and has no gag reflex. Her brain is letting everything in her body work but has no real purposefully movement and she hasn't opened her eyes. If there is anyone that went through something like this or someone who has had to make a choice of letting their loved one go can you contact me my # is 661-431-9141 my email is thatsmetm3@hotmail.com

Jun 19th, 2014 8:54pm

Hello, don't know what to say. on June 8 2014 my son got into an accident. The god was my sons side. The same day he had brain surgery, hematoma, on his right back side of ear thru the neck. today is 10 day, he doesn't know what he is talking. there are seconds that he can say and recognize us, but all they along he is aggressive, talking nonsense. Please, if anyone knows and had an experience write to me please. I am getting crazy.

msarib2004@yahoo.com

Jun 18th, 2014 7:38pm

I can relate to all of the stories here...  My sister was hit by a drunk driver and dragged 150 down the road suffering TBI and many other injuries.  It kills me to see her struggle and her in the condition she is in...  She has three children.  It has been so sad for all of us in the family.  In our pain we have even lashed out at each other as my father and I have been in countless arguments over the past few months.  I am physically & mentally drained.  My life has been on hold since the accident.  I have pushed my own family to the side.  I have trouble dealing with the loss of my sister even though she is still here.  I pray she can come back to us.  I know she is doing her best to do so.  I have never felt such extreme emotions from complete despair to elation.  It has been a LONG two and a half months for us all since the accident.  I am just going to say it...  Brain injury SUCKS!!!  All I wanted in the beginning was for my sister to live...  and then be able to breath on her own...  and then show some purposeful movement...  and then to talk...  and it goes on and on.  I remember when I asked her to move her foot if she could hear me and how incredibly happy I was when she did.  Now she has begun to talk...  small sentences.  She is still confused, acts inappropriately, acts somewhat childlike BUT I have hope for her future.  This is so difficult to express the emotions and feelings that come along with head injury.  I know our road has just begun.  I fear the future but embrace the future.  I want a crystal ball so I know what to expect.  It just really hurts.  I can so relate to all of you and I guess my main purpose of writing is just to say...  YOU ARE NOT ALONE.  Others are going through the same feelings.  No one would sign up to be part of this group but it is good to know you are not alone.  It is not easy,  Don't give up on yourself or your loved one,  When the load get too heavy put it in Gods hands.  Keep on being strong.  Breathe...

Jun 10th, 2014 5:33pm

10 years later, much recovery and life has gone on.  Now with a beautiful 3 year old son, our daughter is still so very important to us.....but there are still struggles.  After a car accident and thrown from the vehicle, she was found having agonal aspirations (?).  Transported to a trauma unit and stabilized although things got very bad before they got better.  Temp up to 106.1....brain pressure rose to 60 several times....right side wouldn't work and 3 brain bleeds.  I took it all very well, stayed strong and ready to do whatever I needed to.  Her Dad lived it too but seemed to be more hurt than I was.  Her brother was sick, literally sick with fear and more over a period of time.  She eventually came home, recuperated well (with some "small" issues).  Eventually went back with a HS boyfriend, moved and had a beautiful little boy.  When she left his Dad and moved back with us when he was an infant, that was well too.  He's now 4 and we're seeing more and more things that tell us something is happening.  Speech is more slurred, sleeps so soundly that it's scary and requires more and more sleep....voice very monotone and has become almost anti-social.  Focus is on all the wrong things and seems to be spiraling.  I'm not a whiner, I'm not a quitter and I'll go any distance to help my children, but I'm scared and I'm confused and I'm overwhelmed.  And I feel completely inept to take care of things. 

Jun 9th, 2014 9:27am

I have cried while reading every ones post on here partly because I know your pain and frustration and partly because it helps me know I am not alone in some of the feelings and fears that I have.  I too have found myself in the position of caring for my son who is now 34 and was injured in an accident at work almost 7 years ago his injury was to his frontal lobes, they had to remove most of his right and part of his left frontal lobe they also had to perform a craniotomy he spent 7 months with no forehead bone.  To make a long story short after a year in hospitals and rehab we came home to a very different life than either of us lived before his accident.  My son is a very different man than he was before, he is fiscally very much the same but in every other way he is very different, his wife left him his friends have no interest in the new man he has become lucky for him we have a very strong and close family that have been a great help to both of us they do everything in their power to help me help him live as full a life as he can.  I often feel like I have had 2 sons I love this one very much but have grieved for the one I lost.   There seems to be a general consensus that there is a lack of resources out there for TBI patients and their families.  I don't know if this will be of any help to anyone but I have posted the information NAPAS.

National Disability Rights Network Protection and Advocacy for Individuals with Disabilities
Protection and Advocacy (P&A) System and Client Assistance Program (CAP)
This nationwide network of congressionally mandated disability rights agencies provides various services to people with disabilities, including TBI. P&A agencies provide information and referral services and help people with disabilities find solutions to problems involving discrimination and employment, education, health care and transportation, personal decision-making, and Social Security disability benefits. These agencies also provide individual and family advocacy. CAP agencies help clients seeking vocational rehabilitation. For more information on P&A and CAP programs, contact the National Disability Rights Network at: www.napas.org or (202) 408-9514.

May 27th, 2014 3:08am

I humbly thank you for writing this article.  This INVISIBLE disability and INVISILE secret is getting old. I ask myself at times, "are we not given education sooner... for us, our family and our friends".  No education on how the car and head works, etc..., but on LIFE.  We still have to live, but education for our family and others would be useful, because they can calm us, and get consolation in education for themselves.  I received a nice 3 ring binder from home health afterwards, and it was full of info.  It was a few years into TBI,but I found validation. BUT.... I could  not get anyone else to read it.  Funny thing, is 13 years later, my husband looked through it and found some helpful hint on doing medications, that he uses i know for his dad and myself.  Wasted time, and the medications were the least of what could have helped us all.  (we have a good marriage and he has been wonderful, just making a point).  We find it hard to read and search for info that can give us hope or how to help ourselves.  We must have our family/friends, and that is when they disappear.  Clearing up a tad, I understand why it is difficult for everyone.  The side effects of living with us can drive anyone up a wall for a length of time.  So.... why isn't there more education for caregivers, and why isn't there more support for caregivers, and why isn't there more helping with teens since Mom is laying in bed or can't think correctly?  Of all times, this is NOT the time to leave us alone.  It's like being in the middle of New York with millions of people, yet no one will stop and give directions.  You are lost and alone, yet surrounded by many.  My tears are many, but they are typically coming from the shock of being dropped off at the bus stop and not being picked up ever again.   Damaged goods.  That's what my therapist's got out of me one time.  I keep busy as possible, and make a million mistakes, and get in trouble, but I've had 4 friends during most of this time who have been willing to help.  They live far away, and it's not easy.  I put on my happy face, and pretend things are fine.  That is what is expected and if I don't, down the road, something will be said.  I love seeing the beautiful families that are there for each other.  I morn, because we all were once there.  We all have our own language, and only we can understand what another TBI'er is going through.   BRAINLINE.ORG is the best site I've seen, and just found it recently.

Best wishes to all.

New site: www.chatcat57@wordpress.comand gmail

May 26th, 2014 7:37pm

Glad to hear about your son's recovery.  Our daughter had a TBI from a car accident when she was 18 years old. She had always been a gifted and talented kid and had just finished her first year in college. She was on a full scholarship in engineering.

It has now been 7 years.  We spent lots of money and went through lots of saddness in the various rehabs and treatments.  We have done everything we could find.  She still is unstable when she walks and has falls.  All of her long term memories are gone.  Her short term memory is about 2 minutes long and she has to ask over and over each day what she is going to do today. Each recovery really is different.

May 14th, 2014 8:24am

My son was hit by a car while crossing the street at age 15. He as well suffered from TBI. He was in a coma for months then moved to a skilled nursing facility. We were told he may never walk, talk, or eat again. It's been 8 years. He did graduate from high school at age 19 with a diploma. He uses a scooter to get around but at home uses a walker. His speech still slow but understands what you say. Short term memory is getting better but still affected. It's been a long journey but we continue to do all we can to keep him progressing. I have since the beginning kept track about all we have done and gone thru. Wish I could share it with people that may be going thru similar experience. May be helpful.

Apr 24th, 2014 1:22am

Beautifully written.. my daughter suffered a noxic brain injury near 9 years ago due to loss of oxygen. While sick with the flu, she had thrown up and it aspirated her lungs. She has never been the same either. She has been on life support since, and I have recently placed her into a very good facility for young adults with multiple disabilities. Hardest thing I've ever done.. was just getting so hard. She is 19 now, and was bed bound here at home. She is getting so much more stimulation there, and is even getting schooling. Lots of pro's... just miss her greatly! Prayers for your son and family

Apr 18th, 2014 1:21am

Thank u!

Apr 16th, 2014 11:32am

My son suffered a TBI on Nov 23, 2013 and he has come so far but I understand your happiness and sadness......Thank you so much for sharing your story. I feel like I wrote the words myself.

Apr 16th, 2014 11:31am

Thank you so much for sharing your story. I can't begin to share how encouraging it is to hear a story like this. You should be very proud of your son and he is extremely lucky to have such a loving family as yours! 

I would like to share a little about me: I am a 24 year old male who suffered a severe traumatic brain injury at age 6 in a car accident. I was in a coma for 5 days following and suffered a seizure after. While I can't remember the accident or even the days following, I know I was championed as a success story. Since that time, I have been able to graduate from high school, obtain a bachelor's degree and even a masters degree. However, as I've entered the world of "work" I am having all kinds of problems: mainly with judgment, inappropriate sharing, and short-term memory issues. I recently had a grand mal seizure and my family is finally putting the pieces together. I share all of this to ask:

do you know of any articles or resources out there for individuals who had a tbi as as a child but are now, as adults, trying to address the affects?

Again- thank you for sharing your story!!!!

Apr 12th, 2014 12:42am

Thank you for sharing your story.  I too am a mom with a son that was assaulted and beaten, left for dead on a sidewalk 3 years ago may 1. He was 24, he was perfect and the love of my life. He was in ICUs for many weeks and then  speech and pt and ot. I have never been so terrified in all my life. He is a miracle walking talking and trying to live his life. I am so thankful to God for saving him. But I miss the one I had and I search deep into his beautiful blue eyes always hoping I can find him. He isn't in there. The pain never leaves me. The fear of walking that line so close to never leaves me. I am a broken soul with a broken heart. 

Apr 4th, 2014 1:09am

My son was just turn 13 year old when he got hit. I almost lost him several tome no one was there to help me, no one came and sat with us I was all allow without a shoulder to cry on and still to this day I still don't cry. He was in a coma for 21/2 months They told me I need think about pulling the plug because he is not going to make it, but he did after he learn how to eat, going to the bathroom, walk, talk, learn basic things again, and learning the basic K-3 grade things again. I am at a lost I need help he his now 17 and he his out of control and I get no help. Please call me at 720-269-4731 if there is something or some way to get him the help e need.

Mar 28th, 2014 12:36am

My son is 24 -at 19 yrs old he suffered a depressed skull fracture TBI that resulted in seizure disorder and short term memory problems along with some behavioral issues and im very overwhelmed as caregiver I worry about wat Will happen if im not here for him -

Feb 8th, 2014 8:49pm

A boy from my school has recently had an accident and now has tbi and is having some problems while over coming his troubles he now has to live with.

Jan 27th, 2014 8:28pm

Great Story...

My daughter was 28 years old when she had a car accident in another state. I brought her home (almost 2 yrs ago). Your story could be my story. The hardest problem for me is trying to explain why her friends never stop over anymore. I tell her everyday, because she forgets. She remembers her past, but not the accident. Getting the proper care now that she is home is my other problem. We are trying to get her to walk and therapy is a problem. I am glad that my daughter is home, but it is a hardship with my job and my relationship with my friends. You are correct about most people not really understanding. Thanks again for writing your story, it helped.

Jan 11th, 2014 9:42pm

nice website

Dec 29th, 2013 3:38pm

To the person who wrote this....

Thank you for sharing your story, it has given me hope that I felt was gone. I would like some advice from actual family & friends from their own experiences. My boyfriend of 11yrs was in an auto accident & diagnosed with a DAI, two days before his accident we had an argument...

I'd love to be able to contact you. I'm in a scarily similar situation. My long term partner is still in neuro recovery but his family have taken complete control and are constantly driving me away. He knows who I am and I'm desperate to be able to help with his recovery and be with him but his family have bullied me to the extent that I've had to walk away and see if he comes back to me which is devastating. It's a relief to know someone is in the same situation but I'd like your advice on how you've been able to handle his family and what your experiences have been. Thanks.

Dec 9th, 2013 5:44pm

Thank you for sharing your story, it has given me hope that I felt was gone. I would like some advice from actual family & friends from their own experiences. My boyfriend of 11yrs was in an auto accident & diagnosed with a DAI, two days before his accident we had an argument and to "make me mad" he contacted a female which he dated for 3 weeks during a "break" we had months before, she had given him her car to use & the accident occurred in her automobile, to identify him state police ran the license plate of her vehical & contacted her to identify him. She then went to the hospital where he was medflighted and informed the hospital she was his "girlfriend", she then contacted his family and claimed the same. He was in ICU for 7 weeks, in a medically induced coma, at which time she took the liberty of telling the hospital I wasn't welcome, he has sence been moved to a rehab, where he is still recieving dialysis twice a week. When I contacted his family about seeing him they replied that "they wernt sure who he was with, so they went with the fact he was driving her car". Finally I stopped asking and went to see him, it was the most emotional moment of my entire life, I had anticipated this moment every minute of every day for 79 days, prior to my arrival his family had been giving me updates on his progress & informed me he didn't know who anyone was & his brain was still to sensitive to see any new visitors. It took him a minute to focus on me & I gave him a minute to adjust,I asked if he knew who I was & said ofcourse "Babe" a nickname he, as well as all his friends have called me for years, I showed him a photo album & he named every person in it, so clearly his family had been lying to me. I told him "I've missed you so much & I am so sorry I havnt been here" "His eyes got teary & he said "Why, I love you", I wasn't sure what to tell him as I didn't want to cause any negative emotions or overwhelm him in any way, so I replied "your family didn't think it was a good idea, but I've talked to your sister everyday & your mom once a week to check on u" & he said "I only want u here, I love u". From the moment he saw me his eyes lit up, he was non stop kissing me, hugging me, holding my hand, playing with my hair, sqeezing my face&touching his nose to mine & saying I love you, which we had always done. His mother had came back into the room, & do to the overwhelming emotion I was feeling I needed to leave & just cry & let it out, I looked at him & said again "do you know who I am" & he whispered my name & then loudly said "My love", I smiled & said "yes I am & you are my love too, when you want me to come back all you have to do is tell you mom to call me & I will be right here ok" he replied by tapping the bed next to him & said don't leave me, as fought with everything I had not to lose it, I said, u need a little rest, so you relax & rest & when u wake up if you want me here just tell her to call me & he started to cry a little & said ok. I've worked in health care my entire life & from my point of view that's someone who knows exactly who I am, how he feels about me and what he wants. However his short term memory is a big issue right now so I fear he won't remember me being there & his family will not allow me to return, a family that hasn't spoken to him in months besides his mother who has stuffed from alcoholism for many years & was diagnosed with a brain disorder as a result so she's not at all coherent enough to rationalize with. Although he is a 30yr old adult his father claimed guardianship so I believe he technically has the legal right not to allow me to see him. Is it at all possible that his reaction to me could be false? He may be there at least a year or more under the devistating impression that I just left him there and didn't want to be there. I'm debating whether or not to fight his family's decision or to just wait until he contacts me which could be years. So I need to know from families that have loved ones suffering from this devistating diagnosis if its possible that he doesn't really know who I am or that those intense emotions could possibly be false & caused by the brain injury. Can anyone give me their opinion or insight as to whether his reaction was a true reaction?

Nov 28th, 2013 12:17am

My daughter is 8 years out from her injury.  She fought hard to return to school, and live a typical teen life.  She has done well physically but is now experiencing the loneliness, depression and other psych symptoms others refer to in their comments.  She has also recently started some self-harm behaviors and is alluding to experiencing hallucinations. Has anyone found a good solution or treatment center or resource for the psych issues?  She has seen several counselors, with the last one stating my daughter's issues were too complex.  I am at a loss.  Any help is appreciated.

Nov 20th, 2013 12:42pm

Thank you for sharing this story. I am 5 years post TBI with my daughter and the pain is still there. I to feel as though I lost a child and in order to help cultivate the you "new" you have to come to that realization. The pain is deep and I feel so guilty for being emotional when my tower is this tower of strength and rarely ever has a bad emotional day!.

She is the life of wherever she is and just wants to love and be loved. It angers me that she was so popular and that none if her friends come around with the exception of one.

I would love to help others  who go through this as there is no guide book. If you have or are a part of a support group for TBI would you please contact me

stevettedukes@gmail.com

Nov 20th, 2013 9:58am

This comment is to the lady who's son is Wes, if your son is determined to be disabled .you should be able to get help with independent living skills, thru vocational rehab, which.is funded by the state or by Federal funds try calling them on the phone in your local area Dh past TBI survivor.

Nov 17th, 2013 1:37am

Thank you for sharing your story.

Nov 14th, 2013 12:00am

I am pleased your son Paul is doing so well,the determination and patience to get well and recover is simply incredible. I was hit over the head in an Armed Robbery (I was a cashier in one of those yellow kiosks)NCP Ltd; Blackman Street, Brighton on the 4th April 2003. A lady witness called the police, they smartly arrived to find it was their own colleagus who had removed all the security from the car park, thereby making a Robbery foolsplay, to any Robber who wished to do the job.Needless to say the local police and doctors in the Hanover Ward Brighton just covered it all up, then the DWP covered it all up and finally the C.I.C.A; covered it all up. It is estimated that I have beeb very close to my grave on at least ten occasions as the Brain was so badly damaged I kept loosing the neural drive to the heart. However it has taken ten and ahalf years to learn to walk, talk, read and write, entiely on my own. No one offered any help except for my neighbour across the road. NCP Ltd never got fined a penny. Alaw for the Rich and another for the poor. Yours sincerely Christian Morgan, one has to be resilient, you are on your own in this country.

Nov 11th, 2013 7:57am

I just read the story about your son - and its me. I was almost 12 when I was hit by a drunk driver. That day has changed my life forever. I sometimes wish that I could find him and say 'SEE WHAT YOU'VE DONE!" But he's probably dead now as I am now 48 and what would be the point. My sister witnessed my body being thrown up in the air bounced of the top of 2 cars and then landing on sidewalk between curb and wheel of a car. The accident caused a 3 in crack to my skull on left side, cracked left pelvic bone and me in a coma for 2 weeks. At first I didn't know what had happened and when I came to I remember seeing my mother and other family members while still in ICU and I cried and said,"Momma I wanna go home." But that was a temp moment for I seeped back into a comatose state. I had to relearn how to walk, and after a six week stay in hosp I was sent home, not at all understanding that my life had changed forever. The fractures healed and I can walk, but NO ONE told me I had TBI to the left frontal lobe withe Encephalomalacia (softening of brain tissueand because my parents didn't care to seek additional treatment or surgery to remove the contusion I now have a WHITE MASS and LESIONS spreading across my forehead. I'M EMPTY NOW. NOTHING CAN BE DONE TO FIX IT - OR ME. I DID notice a change in me afterwards but because my parents didn't bother to take me to see a Neurologist or to counseling, my grades dropped from being an A+ student and happy child to a suicidal disassociative emotionally distraught teen, seeking to find some way to get my mind out of my body. I had to take pay 500 to a Correspondence school for the 2 credits I was away from graduating high school. I had dropped out twice. My mother abandoned me at 16 because of my "behaviors" and then I was imprisioned to Foster Care, where. Child Protection Services -never protected me from being raped and suffering from starvation. AND NOT ONCE DID EITHER OF MY PARENTS OR 4 OLDER SISTERS EVER CAME TO SEE IF I WAS OKAY - NOR DID ANYONE CALL. I sought to become invisible because what can't be seen - can't be hurt - or so I thought. I was a reckless 18 year old on my own. Drinking and smoking weed and had sex - just because. THIS IS REALLY IMPORTANT FOR YOU TO KNOW - I WAS THE ONE WHO CONVINCED MY PRIMARY CARE PROVIDER TO SCHEDULE ME FOR AN MRI BECAUSE I WAS ALWAYS TIRED, PASSING OUT, OR FELT LIKE I WAS SLEEP WALKING. I WAS 35 YEARS OLD.After the scan my PCP called me and said she made emergent appt for me with a Neurologist. I was hopeful as I thought he would have some answers and could just tell me what was wrong so we could fix it - NOT -that was not the outcome. He was telling me medical terms that I didn't understand, so I asked him "DOES THIS MEAN THAT ONE DAY I'll GET BRAIN DAMAGE?" He looked at me and said, "MS. BOYKIN YOU'VE HAD BRAIN DAMAGE SINCE THE ACCIDENT". My mind spun in circles. I questioned everything I had done every decision I had made - wondering was it me or these foreign people that now fill up that space in my brain where the contussion lives. My marraige, having children and then him explaining that's why my GPA dropped down to a 2.0 by high school, why I was so overly emotional, why I had blackouts and passing out, why I had suicidal tendencies, and why I would never be the same again. I was stupid because I expected love and suppot from my family members and friends - instead I was looked at like I was growing a gigantic gross pimple on my face, or that at any moment I might jump up on somebody's coffee table and stark acting like a deranged monkey. But apparently they didn't hear me because I said I've HAD THIS BRAIN DAMAGE SINCE I WAS ALMOST 12! I was able to continue to work until 8 years ago. The stress of working and now beiing a devorced mother with 2 kids-MY BRAIN JUST SHUT DOWN. AND BECAUSE MY parents never sought treatment I did't realize until years later the actual impact the accident also did to my internal organs. My mother had always said that the doctor told her I probably would not be able to have children, so surprise the "F" out of me when I popped up pregnant at 19! Recently one of my "knowledgable" doctors told me that what she said didn't make since, but my Mommy Dearest Shirley Jones didn't care. She handled my case out of court. Got the check ching-ching - none of which I ever saw a penny of it. So now at 48 I spend most of my time alone-don't dare want to offend someone. Here in my room. God DID BLESS MME WITH THE GIFT TO WRITE - I REALIZED THIS GIFT ABOUTi 6 MONTHS BEFORE THE DRUNK DRIVER "THE ENEMY" TRIED TO TAKE MY LIFE. Ooooh if it wasn't for my 2 children and grandbaby that I love more than life itself, or the fear of going to hell by dishonoring god because I was able to complete writing ans self-publishing 2 novels. I am working on it becoming a screenplay and trying to complete my 3rd book. BUT- you know thereKs always a but - as I get older my SHORT-TERM MEMORY LOSS IS EXTREME, lack. Of concentraction and focus, severe headaches and the other physical problems this has caused. Cause if Mommy Dearest would have taken the time to find out the truth my doctor said I still had my female organs and menstral cycle - BUT I SHOULD HAVE HAD MY CHILDREN BY C-SECTION. I'VE HAD 3 EMERGENCY SMALL BOWEL OBSTRUCTIONS - THE LAST ONE THEY REMOVED 18 INCHES AND A MULTIDUE OF OTHER PHYSICAL PROPLEMS INCLUDING SEISURES PTSD So I will try and end this on positive note. KNOW THAT IF YOUR LIKE ME YOU GOTTA HOLD NTO YOUR FAITH IN GOD BECAUSE YOU'LL FIND THAT YOUR SUPPPOSED BESTFRIENDS OR FAMILY CAN'T "HANDLE" what you're going through! Isn't that funny. But KNOW THAT YOUR NOT ALONE AND THAT WHATEVER GIFTS TALENTS THAT GOD PLACED INSIDE YOU WHEN YOU WEREstill inside your mother's wound. So no matter what the enmy tries to take from you - HOLD ON AND KNOW THAT HE CAN'T TAKE AWAY GOD' GIFTS - cause technically satan will ALWAYS be 9 months too late. Signed, S.D.B. aka HOPEFUL :-)

Nov 1st, 2013 11:18am

My son Wes was a teacher south Korea he was 26 yrs old was hit by taxi cab and was in coma for 3 months I flew there imed we stayed there 7 months getting prepared to fly home.he suffered from damage to brain stem which could not walk talk and eat.he is 29 now he is slowly moving more he just now started voicing words stil cannot eat his mind is good he trapped in a body that will not response .he can move now and can follow commands and can walk with help.he has spasicity bad in upper extremes but here lately can unscrew a jar lid.i have fight the system for physical therapy everyday.i take him to OT st pt hour 10 minutes from my home 3 times a week.he keeps making progress but slow no one know how long a tbi pt takes to heal and all drs won't keep you any hope.wes is in state where no friends come around cause he diff he gets depressed a lot there nothing to do when you can't eat or used your hands but he getting better with them.i guess I hate watching him struggle and suffer that just kills me the most because he regaining his emotions I can't prevent what he feels inside .I can just say it been almost 3 yrs and I can still see improve but I work my tail off to make succeed.you know affected now only him but our whole entire life.he was and still is that great son I gave birth to 1984 if anyone knows what I could do more please tell me.

Nov 1st, 2013 12:01am

Thank you for sharing your story which is all too familiar with a lot of these other people and my family. My 23year old son is nearly 4yrs post TBI after a car versus Power pole accident. I am writing this as like many others do not know where to turn to next. He damaged both frontal lobes plus had 2 major falls in the Neurology high dependency ward days after he had come out of his coma and been moved from critical care, after staff were not watching him. He climbed out of his bed over the safety bed rails but didn't have the motor skills to put his arms out to protect himself from fall and hit the floor head first, causing further major bleeding to the brain, and another following our son trying to remove himself from the toilet, he had been left there on his own without supervision, He was in the prime of his life, a budding professional rugby career, been fit and well all his life before the accident. He had severe post amnesia for 34 days. thinking he was being abused in hospital and that he was a wolf wandering in the wilderness. some of these life hallucinations even the surgeons started believing him. Phoning us in the middle of the night as he was walking the corridor of ward saying he had a dying baby boy at home. He smashed a side table apart in hospital looking for his phone which was never there! He smeared his excretion all over the wall of the toilet. this was just the start...he did improve over time but has never been our same 1st born son, he had the help but didnt really help himself, so people gave up on him. he started going out drinking heavy smoking weed, (he is now on meth) we tried everything in our power to stop this but he would sneak away as he was living in a unit and all the rehab staff convinced us that it was his wishes to carryon a ,'NORMAL' life like before. This was to be a nightmare. he would lose his temper if we sent his friends away or keep a close eye on him he would smash up the unit and vehicles, tried to hang himself I cut him down from the garage beams. He hates me something terrible for trying to make him better and keep him safe. He has moved out of home now works for us but usually turns up for only 2-3 days a week. Is abusive, very violent, no respect and no care or fear of anything. He has got issues towards his younger brother & 2 sisters, when he sees them speaks to them terribly and has even viciously attacked his younger brother on 2 occasions. Only every now and again I get a small glimpse of our old caring talented precious boy who is now a totally different person. We have found all along from day one, all the decision making was left to our son! He was not right to be making those on his own, half the time he could never find his house key or would forget to eat or bath, he was constantly making the wrong choices and did not want to help himself. The rest of his family on the other hand have never had a say and now we are the ones facing this hell and all the 'help' have moved onto the next patient not caring for the devastation this TBI has caused. My mother said the other day its almost as if he would have been better off they hadnt of bought him back to life. As bad as this sounds it has raced across my mind once, but then I think of him before the crash and how loving and handsome he was and hold on to that. Through Christ anything is possible! and I have handed the sadness and worry over to him. Christ has lifted my burden. Thank you

Oct 28th, 2013 9:38pm

For those who are lost in hope. Take your loved one to Shepard in ATL, GA. My son was there for 3 months. Trust me they are the best for TBI.

Oct 25th, 2013 3:22pm

Thank u all for being there. My son suffered tbi nine years ago. He is now 21. He looks perfect to the outside world. Even in our family people expect him to be all better now. It was 9 years ago. The sadness of everyday is almost too much to bare. But after reading ur comments I can find the strength to go on another day find another therapy and pray. Thank u all

Sep 28th, 2013 5:40pm

Reading these comments really have me in tears my heart hurts for all of you... i know the feeling and pain involved with having someone you love suffer a tbi... i am 26 years old mom with five kids... almost 3yrs ago my life has changed my fiance was in a bad crash and suffered an severe brain injury i was told he'd never walk never talk ect.... i had to fight for him because i just couldn't give up... i was faces with him going to a nursing home our. Giving up my job and schooling but i did.... when I first brought him home he could not talk walk hold his neck up or eat by himself he had a feeding tube but I never give up on him overtime he learned how to to talk and was able to have his feeding tube removal its almost been 3 years and he still is not walking on his own he tries hard everyday I can honestly say I really really miss who he used to be and I feel you guys and I feel your pain I live with it daily and it's hard because our kids don't understand never give up on your love ones and just constantly advocate for them... feb 10th 2011 worse day of our lives and our daughters first birthday.... all i can leave you with is even when you feel like giving up seek god and pray... drew is doing things never thought possible!!!!! And continues to make incredible improvements almost three years later..... if you need someone to talk to. Reach me velezkris@aol.com subject line put tbi..... good luck....

Sep 23rd, 2013 11:11pm

I am a comma surviver 18 years ago, I am mother of twins they will turn 8 next week.You remind me a lot,we not be the same,because we do not know who we were but we imited the people who surroud us,and we learn again,I know your a good,strong,mother.good bless you.

Sep 23rd, 2013 10:57pm

Paul is an amazing man and an example of resilience and refusal to believe that the worst is true. My husband had a car accident 7 years ago and suffered a TBI. When he woke up from a coma, he was blind and unable to walk, talk or feed himself. At first the doctors said he would never wake up and then they said he would never walk or be capable of living a normal life. I did not know my husband then. I met him 4 years after his accident. His amazing and strong mother refused to believe what she was told. She gave up work and devoted herself to his rehab. I have seen videos of his physio and cannot believe that the man who stood next to me at the altar was the same man in those videos. He learned to walk and talk. He regularly went to the gym and built his core strength. When his mum told him he would get better, he believed her. His tutor at college offered to take him on as a special one on one student and he completed his plumbing qualification with merit and won apprentice of the year award. When I met my husband, he still had physical difficulties (tremors and lack of fine motor movement), emotional difficulties (particularly when tired) and slow speech. But he is the most gorgeous, amazing person I have ever met. We have been together for 2.5 years now, married for 4 months. He is gentle and wonderful. My family love him. He has been a motivational speaker for the Brain Injury Association and for a Drive to Survive programme and, just recently, he has been able to re-enter the workforce part time after a 7 year absence. His family tell me he is not the same man as he was before his accident. I imagine this must have been very hard for them bringing a stranger home. But everyone agrees he is now a better person. He is beautiful inside and out and I am in awe of him. In the time we have been together, I have seen vast improvements in his capabilities. He will always have a disability but will never stop trying new things. Last year he relearned to ride a bicycle despite balance and vision problems! Do not give up. Always believe. You will be amazed at how much TBI survivors can overcome with support.

Sep 13th, 2013 6:39am

I don't think there is an end to recovering from a traumatic brain injury. I'm a six year survivor now and I still get better every single day. I was in a coma for 3.5 months. When I woke up I was completely immobile. I walk now and I can jump! I'm moving out of home this weekend and into an apartment with my boyfriend, of five years. So none of you should ever give up, if doctors or physio's say you won't do something, prove them wrong, that's what I did! Nobody can give up until you do. x

Sep 12th, 2013 4:34pm

My heart is heavy in reading this. My son who is 12 was struck by a car on may 2nd 2013 and its only month 4 and somedays are harder then others. He is a remarkable young man and in reading Pauls story I feel like it was wrote by me. 10 yrs is a huge milestone and Paul has shown remarkable strength and courage. We spend our days in the iwk hospital in halifax NS canada and tryin to balance life at home with our other 3 children is beyond exhausting both physically and mentally. Thanks for sharing Pauls story. He is an inspiration to our son and you all are an inspiration to us. I would some advice as we haven't ment anyone at this facility who has a TBI. Our son is the worst case they have seen in over 6 yrs. He has a blood clot in the center of his brain affecting his motorskills. Needs time is what is being stressed to us. Time we have but the heart break is unbareable. The 16 year old female who struck our son her life hasn't changed. No contact with the family at all. My email is capermomx4@hotmail.com

Sep 10th, 2013 5:37pm

Wow, as I sit here at my computer trying to find some type of motivational book for my 16 year old who suffered a TBI due to a brain tumor, I was happy to discover your story. Our son and family can clearly relate to all you have wrote. We too have witnessed many miracles however, to our teenage son, he can only see the things he still cannot do. Swallow, sleep without the vent, walk. He is completely cognitive (thank God), but still wants so many things back that he could previously do. We still don\'t know if those things will come back to him, though we hope and pray daily (or his mom does). Thank you for sharing your story. God Bless! Mom and Sam

Sep 9th, 2013 5:23pm

I am 26, a recovering TBI victim who was hit by a car when I was 14. 12 years later, my dad still cannot accept how I am a different person now. He yells, calls names as do I...but I do not anymore. I have been through way more than I am saying but I am having difficulty moving out on my own which would be the ultimate solution to my never-ending problem. I also have to take care of my mom-who begs me to stay. So here in our home I stay. My mom does pretty much everything possible to accommodate me, without question. My dad, with a history of physical abuse, scares me because one day I am afraid he will hit me too. I have been to Recovery Centres for addiction, stood up at knife point, emotionally and mentally abused, in and out of foster care because of my dad, in and out of hospitals to treat my mentality...the list goes on. I need help, answers, for everyone reading this to pray for me, for my dad to finally stop insulting me and treat me like a human being. He says he does not respect me, he makes fun of my injury with comments he makes, yells and screams at both me and my mom...takes out his anger mostly towards me and mom by yelling and constantly reminds me I am a dependent adult in a way to prove he is better than me...tries to get rid of me and says I always "need help". I need answers please...oh what, oh what-do I do now?

Sep 3rd, 2013 10:33pm

Dear Paul and mother; thanks for sharing your story and i would also like to thank each and everyone who commented and shared their stories.These stories help me keep hope alive;in 2009 my 21 year old son was diagnosed with a mental disorder and after battling this disease for several years and struggling with having to take different medications that cause many side affects,he ultimately got hit by a car and ended up in a nursing home; he has a trauma brain injury that is severe and the doctors are not giving us much hope but after hearing all of these different stories or testimonies,my hope have come alive again!I know that GOD is going to restore my son and his life is going to be better than ever before and i will share his testimony and encourage him to do the same and to never be Ashame!It takes a lot of courage to endure and over come situations like this but with Love, Hope and Faith, GOD will see us all through.Once again i would like to thank each and everyone of you for sharing your stories and encourage you all to keep the faith.I don't really know what any of you are going through because everyone's story is uniquely different but i do know that You are going through something that's very Hard and stories like this help people like us keep hope alive ! Take care

Sep 3rd, 2013 7:00pm

Feeling so overwhelmed right now after 5 1/2 years since my son's TBI. Will write more later, but right now, I feel so hopeless.....

Sep 3rd, 2013 6:21pm

I dont even know where to begin here i am googling and see if theirs anyone out there who suffers the same fate as i am.5 months ago today my son suffers a fall from a third floor to the second floor while sitting down on a stair railing,the neuro surgeon told us that there is no hope for him, as my daughters and i prepare for that reality. But the next morning we got a call from the surgeon telling us that they hve detected a brainstem activity and move his left arm towards his chest so they ask permission to do craniostomy to relieve the pressure from his brain,long story short here we are we have to take him home with us and care for him we dont have a big family just me and my 2 daughters and we are all work as well, he does have health insurance his under my policy,but him not being able to responds to commands health insurace would not cover for any type of rehabilitation stay,this is the toughest situation i ever have to face seeking advice from anyone out there from a parent in Orlando, Fl. Thank you.

Aug 16th, 2013 5:16pm

My husband is into his 9month as a patient following TBI last December. . and in a low awareness state. Yesterday I was told my husband will never walk, talk or feed himself ever again. Reading your story has given me hope. Everything you wrote is exactly what I would write. As you say unless someone has personally experienced this it's very difficult for them to understand the thoughts and feelings myself and my family are going through. Thankyou

Aug 15th, 2013 3:59am

Thank you for sharing your family's story. My 25-year old son recently experienced this life-altering injury. As a mom I'm trying to educate myself and identify resources for him and my family as a whole. My son is about two months into his "new being" and doing amazingly well! Your story was inspiring, this is evidenced by the fact that I'm leaving this message, because I've never posted anything online! God bless and continued healing/progression!

Aug 12th, 2013 8:04pm

i had a tbi at the age of 6. My parents were told that I would be a vegetable if I did come out of the 2 week coma. I am now 35. I work fulltime as a Lender at a Credit Union for the last 10 yrs, graduated from a 3 yr Chemical Engineering Technology program in College, also completed a 2 yr college program for Dental Assistant while in highschool which I started at the age of 16. I have my driver's license. I volunteer teaching others the Bible. The only grade i repeated was grade 1 because i had missed so much school due to the tbi. If i can do it, your kids can! I find sometimes i feel depressed but i do not take meds, i find that i do not possess the "mental filter" that would prevent me from saying things i shouldn't.. the impulsiveness is my problem. I am daily working on that and the organizational issues. If i feel overwhelmed, i can't organize my thoughts, have a hard time organizing my work.. so deep breath, and one thing at a time. I don't know if this should still be affecting me.. any input? your story inspires me! thank you!

Jul 30th, 2013 10:33pm

I pray for all of you I also have a brain injury daughter she is 35 yrs. old it happen 9 yrs ago her husband. Was in the army he was station in Ford Hood in Kileen Texas he came from Iqa for a two week leave on the 3 th day of his ariveral she claps. We were told a virus from foreign country attact her heart her kidneys shout down and she was in a coma for a week or so well she came out of her coma and her kidneys worked y up but the damage was done she lost oxide to her brain and damage some of her brain stems.. She is bed bound spasam and has no memory of who she is or her son and family short after that her husband adanded. Her and their son me and my husband are caring for her. Even that nine years past it effects me like it happen yesterday it is killing me little by little I strongly feel that some where and some one can help her she is on Medicaid and believe. Me I have to fight then for any thing and everything not get help for her she used to talk now she hardly talks she is smart most of the time she understands us but she needs help Medicaid. Limites on what they will pay for we live on social security and taking care of her and raising ny grandson it's not easy I wish some one will get a interested in my daughter. And help us so yes I know what you are going through God Bless us all and if any one knowns where we can get help for my daughter. Please e-mail me rodriguez7749@sbcglobal.net thanks

Jun 19th, 2013 8:17pm

Hi All! Today is my 23 year anniversary from my TBI. Was hit head on my bicycle. Life has never been the same. I still work as an Electrical Engineer/Programmer but takes me a lot longer and harder to get the job done . Im lucky in some ways but I still dream of running like I did in the old days

Jun 7th, 2013 10:01pm

as I read your story it was all to familiar and I started to cry. My son suffered a tbi alomst 5 years ago he layed in a coma for 24 days and fought so hard for his life as I did. Now I know he is not the same person but he feels he is. he has started to use heavy drugs (meth) and is no longer my sweet little boy. I dont know who or where to turn I need help I need a drug rehab but I am still paying over a million in hospital and rehab bills I cant even get a loan so if any one knows of anywhere please call me 8016369352 I am not ready to bury my child

May 31st, 2013 4:00am

I can so relate to everything you said, until you got to the part about your son Paul getting work and being able to get into higher education. My daughter, Ashley, had a massive stroke at age 16, resulting in her TBI. She was born with Pulmonary Atresia - a congenital heart defect and had prior to her stroke, had 4 heart surgeries - newborn, age 1 1/2, age 8 1/2 and age 10. It is believed that her stroke was caused by a blood clot that traveled through her lungs (which are now grafted to her heart) and came into her heart through the small hole that remained after her 4th heart surgery. Long story short...we've traveled your road....bumpy and winding. This has not been easy or anyone. Like Paul, Ashley's friends seemed to drift off for one reason or another. She lost the use of her right arm from the elbow down and walks still with a limp. She lost 10 years of schooling, making her only have the academic ability of a 2nd grader. She struggles with balance and falls alot. My daughter, like Paul, is a very determined and strong-willed person, which has helped her along the way, but also makes it hard for me as her parent. Her father had passed away just 6 years prior to her stroke. Shortly after her stroke, I lost my mother, my father and my brother. My network of people to help me cope and give me a place to go for strength, comfort and understanding had shrank drastically! Ashley is now 30 years old. She looks like a 30 year old and wants so desperately to BE a 30 year old. But when she plateaued, the Vanderbilt doctors told us that she would most likely never proceed much past a young teenager. Her ability to process thought was altered, her understanding of consequences and responsibility and maturity would be that of a 13-16 year old. Couple that with a 2nd grade education and the use of only one hand and it's a parents nightmare! I love my daughter with all my heart and would do anything for her. It's so hard to see her want to be grown, try so hard to be accepted, loved and understood and meet huge barriers in her way in every direction. She has a very difficult time finding work, and an even harder time being able to keep work. She has a hard time waking up in the mornings,, and a hard time getting to sleep at night. She is a beautiful young woman and it breaks my heart that her life has been restrained to the place that it has. She tells everyone there is nothing she can't do and that she's NOT disabled. She says she just has to learn to do things in a different way. She's an inspiration to me and to all who know her, but even that doesn't stop the pain in this mother's heart of knowing that her precious daughter will never be able to live a normal life, have children, go to college or become the doctor that she'd always dreamed of becoming. God bless you and all of those families who are dealing with TBI. It's a real monster!

May 14th, 2013 5:02pm

We are 12 years out from a tbi that my husband sustained in a car accident. He was rear ended sitting at a stop light. We were fortunate in so many ways but i guess ignorance is bliss. We had no idea the damage that would follow. Learning to live with the injury...a new and very different man...the anger..pain...confusion.. Our family, business, and marriage has suffered greatly. Funny though no one knew because there were no gaping wounds. Its tough, sad and scary. Im still not sure if he is stable as he has made ALOT of bad decisions, and swears he is not hurt and is just fine. Make you wonder who the crazy one is.Its a tough injury on the whole family structure. Im still married but not sure how to hold on to someone I dont know, dont understand, dont trust and cant believe. My heart goes out to all of you that are the mother, as I too would do anything for my child. But as the wife just how much can you do when nothing in your life makes sense and the man you counted on to help get you through is no longer there through no fault of his own. I am thankful for My Father in heaven, He is and has been my strength throughout all of this. I forget to have compassion and patience and love unconditionally when the hurt and pain is so deep.

Apr 20th, 2013 1:01am

As I read the article and all of the comments I feel grief and that gut twisting dread that never seems to be far off. My son is a tbi casualty and the collateral damage has been massive. Three years after his MVA, I live, take care of and deeply love a young man who has little in common with the son I raised. An intelligent and gifted athlete, he is now in a wheelchair with a right sided weakness, limited fine motor control, and a severe short term memory loss issue. He is still intelligent and has a wicked sense of humor (something the doctors told us was not possible due to the extent of his brain injuries) and he has all the normal desires and needs of a young man of 23 years. But he is isolated. He is lonely and it is difficult to find things for him to do given all of his challenges. But it is not all gloom and despair. He has gone from a semi-vegetative state to relearning how to swallow, talk, sit up in a wheelchair, move a wheelchair, feed and dress himself to now learning to use a walker. He will walk again and god help us when he does, cause he's a handful in a WC! Change does happen, not always fast or in the direction you might have been hoping for, but it sneaks in when you don't expect it. Sometimes the results can be hilarious (if you have a sense of humor and trust me, you'll need it) He is on Medicaid and most of his rehab has been done by us, and it's a learn as you go process. It's almost like I am re raising him only he is a lot bigger this time around.

Apr 15th, 2013 12:12am

Thank you for sharing your story. I have a sister that suffered a TBI while having a baby at the age of 27, 9 years ago. The hospital gave her too much medicine which made her heart stop beating and she was given an C section. When it started back she was placed in a coma for two weeks when she woke up we were told that she had a TBI. Her baby was placed in the NICU while her mom was in the ICU. Her baby is alive and well (except for asthma and behavioral problems) She made a lot of progress but she has a long way to go. Also the progress wasn't fast enough for her insurance company. Every time she went to OT PT and Speech therapy her insurance would cut her off. Now we got her in a vocational program. We don't know how it will work out but we hope it is for the best. She's a totally different person. She has no motivation and knows what to do. She just doesn't know how to carry it out. She's in denial about having a TBI. I don't know how I can help her continue to improve if she denies that she has a TBI. Mainly my mom and I do most of the work and with the added stress of dealing with the courts and assisting with the upbringing of her daughter we at times grow weary. This article was helpful. I reminded me that someone understands what we as a family are going through.

Apr 6th, 2013 3:39pm

I know and feel all your pain My daugther who is 28 now and was 23 when she got into a car accident and suffered severe tbi. I she was not on my medical and had to go on medicare. Which did not help. We basically let to deal with ourselves, and we are still dealing with issues. She is fighting so hard to be independent, and makes not so good decisions. She doesn't allow us to help her. She is getting better but after 5 years she still has a long way to go. with countless visist to the ER. She has Hallucinations and Paranoid. She has been given anti Phsycotic med. Cogen with did not help at all. Makes bad judgement calls, and Is convinced she is pregant, posioned. I am at a loss as what to do. The issue is it is a medical condition, and not mental. This has not been an easy road, and My child is in a crack in the system. There has to be an answer. It is amazing on how one day can change your whole word. I don't want to but my child in a group home, but I need to make sure she is safe. I am hoping one day she will just be, better, I can only hope, and pray.

Mar 16th, 2013 12:33am

To the person who posted in Jan saying it has been 14 years since their accident, please don't give up. My brother suffered a tbi when he was brutally assaulted and we helped him to remember things by showing him old photos, playing his favourite songs, anything to trigger his memories. Please don't give up. Let me know if you want to chat more.

Mar 15th, 2013 5:58pm

To the Lady that Lives in Florida that her son is 14 Years old, FIGHT FIGHT FIGHT, my son was involved in a MVA Dec 2009, at age 22, he was in a coma for 3 1/2 months, and th eonly things the doctors could tell us was, the he was going to be in a vegetative state. We also live in Florida, but there is no Hospital or Rehab center here for a TBI at least a good one...WE were fighting with the hospital/Insurance Company/Social Workers and everyone else who wanted to kick us out. After three months in the Hospital and after his Cranioplasty, we took him to the best center for TBI..Its in Atlanta Georgia. called Shepherd Center, they have a floor ONLY for TBI it's strictly a rehab Hospital with a great awakening program. Give them a call, and you will see better results. Have Faith, and Patience.

Mar 14th, 2013 11:53am

I am the guardian for my brother, he was hit by a drunk driver when he was 21, he is now 53, our mother was his guardian for over 20 years till she developed Alzheimer's, I cared for both of them till mom had to go into a nursing home.. My brother has reached some major mile stones, he continues to reach smaller mile stones and some times they don't stay wit him.. Being his advocate is a monumental job. He has no one else and it breaks my heart when I realize what he lost. He doesn't understand why he can not have his job or car or wife and kids. we prayed for him to be ok at the time of the accident, I agree with many of you, only those who live with the patience with TBI knows how life changing it is. God has a plan for all of us, most importantly don't try to care for someone with TBI and not get help for yourself.. My heart goes out to everyone and my prayers are with all of you..

Mar 13th, 2013 10:30pm

i am sorry to hear about your son but please remember you are his survival, and i know im so up and down i don't know if i could ever be as strong as you , but from everybody with a head injury , we thank you and thank God for people like you , thank you for showing others how to stay strong

Mar 13th, 2013 7:12pm

I was hit ine the head 10 years ago by a cast iron box while at work . I climbed telephonepoles and a co worker cut the cable without looking first . the cable and box swung down from 25 feet and hit me in the back of my head . I was awake for a few mins and then I just fell down, I came too a few mins. later and tried to go back to work but my glove caust on a pices of cable and alomost rolled me up too, at that time I had blurry vision and I sat in my truck and called my girlfriend at the time . I don\'t remember what was said but I started to drive to the hospital which the guys from my crew pointed in that direction. my vision was getting worse so I call a buddy workin in the same town he picked me up off the highway and took me in . they did a cat scan and said how do you feel and I must have said good because I was sent home . now I have lost everyone I love because after that day I was a changed man , insecure, violent,i would just blow up for no reason . I went back to work 8 months later and never had a good day since . my life is in shambles , I have tried to hide how I feel because who wants to admit they have head problems . my ex hates me and wont let me be apart of my daughters life because of the things I have done .this hurts like crazy and all I want is to help make sense of all this . the whole back of my head is flat , the upper part not the whole thing but its big. I have a hard time remembering things still , I cant stay focus , I cant have people in my life because I just hurt them and the ones who walked away are the smart one too me .i tried to go back and get help and the insurance company said i have had other head injuries so i need a dr to say what injury caused what , and that not easy . i just wanna be happy again , i wanna be a father , a friend, a guy a woman would be proud to call her own, does anyone know what i mean , i cant do this on my own anymore 989 475 1998 all info is welcome

Mar 13th, 2013 7:08pm

My son was the same way as every one and don't give up just pray and god will heal him the dr told me the same thing and he is doing good he can talk move his arms and legs he just can't walk he is in a wheelchair but some day he will walk I'm going to bring him home and work with him and get him there I told my other kids just have faith and we did every time Jason would do any thing the dr said its involuntary movement. But it wasn't and we told Jason while he was in a coma that the dr was trying to write him off and we need for him to show them he was still there and while funeral arrangement he opened his eyes and the nurse call me and told me to get up there and when I got there she said he opened his eyes and u know then god answered my prayers. So please don't give up and it has been hard for all of us but I will fight to the end and never will I give up on him

Jan 31st, 2013 12:59am

My 28 year old daughter was in a very bad car accident on Dec 22nd. You know it's bad when the chaplin meets you at the door in the ER.She has severe diffuse axonal...and severe lack of oxgagen to the brain. She was in ICU for 16 days...now in a brain injury rehab for another week. Then they are moving her to what i think is nothing other than a nursing home with TBI thery for 2 hours a day!! Really? She is on medicad and I believe if she had private insuranceshe would have better options! Is anyone have any info on dealing with medicad and getting what THEY need?She is in a consistant vegitative state with severe diffuse axonal

Jan 28th, 2013 1:49pm

WE ARE 8 YEARS OUT FROM MY DAUGHTHERS TBI--STILL THE EFFECTS ARE TO SAY THE LEAST HEART WRENCHING--SO WAS DOING OK-SHORT TERM MEMORY LOSS-PARALYSIS ON LEFT SIDE--FOR SOME UNKNOWN REASON--SHE IS LOST KNOW WITH HALLUCINATIONS AND PARANOID-4 ER 3 DIFFERENT HOSPITALS-PHSYC FLOOR FOR 10DAYS--GAVE HER ANTI PHSYCOTIC MEDS--NO IMPROVEMENT--IM AT A LOSS-DO NOT KNOW WHAT THE NEXT STEP IS

Jan 20th, 2013 3:45pm

it has been 14 years since my accident. i was hit by a car, i cannot remember my life before or just after my RTA i am stuggleing to cope with my depression and anxiety. my mind is so messed up i dont know what to do?

Jan 17th, 2013 9:26pm

I enjoyed reading this, it really touched my heart! Your son Paul's story is a lot like my own. I was is a car wreck when I was 9 and I suffered TBI from the accident. I was air lifted to a bigger hospital than my local one, put under a medically induced coma and only given three days to live, I was in the coma for about a month and a week, I wasn't expected to make any thing of my self...

Jan 3rd, 2013 9:38pm

this really helps me know to not give up. I was in a car wreck march 5th of 2011. I fractured my skull in four places broke my back fractured seven ribs, punctured both lungs and lacerated my liver. I was in a coma for almost two months, before my accident I made great money I had a dream family. I have two wonderful kids, I'm far from healed.I had to relearn everything walking, talking, eating food, I use to be in great shape I went to the gym everyday ate very healthy,my long term memory is good it's the short term that is iffy.I'm actually going back to college now to learn my life long dream, that is to be an architect. I passed all my assessment tests. I think family is the most important part of recovery for TBI. Thank you everyone for sharing the life long changes TBI has created.

Dec 31st, 2012 7:29pm

My son was 15 and in a Mva 11/5/10. 2 yrs later he finally responds but cannot talk or walk. We mourn the loss of our son every day. Ian is working hard but his cognition seems poor and child like, although he seems to read simple words when we give him choices by grabbing the flash card. We eat breath and live for this boy. The loss of his friends is difficult, they re all going off to college. He goes to a handicapped program in a public HS but that's only until he's 21. Then what.? Worse yet his sister who was the driver tries to cope away at college. It's lonely for all of us. The support group locally is leap years ahead in cognition compared to Ian. These are just my daily thoughts

Dec 17th, 2012 10:14pm

Reading the main article and all of these comments, brings back the haunting memories of a night deluged with the wail of sirens, horns, and distant flashes, reflections of emergency vehicle lights. On the night of June 22, 2012 I was sitting at my best friends' apartment porch...waiting for him to get home from spending a little time with his boss and bosses' family. We all worked together at a chemical plant turnaround...12 hour days, 7 days a week and the perfect environment to really get to know someone, and we spent nearly a half year doing just that. Matthew Shane Wright was on the last leg of an 18 minute drive home, when he suddenly lost control of his truck and ran into a ditch, and ultimately...the head-on collision with a tree. I am but a half mile away, still waiting for him to get home, without knowing where the echoing screeches and impact noise were coming from. The accident required Jaws of Life to extract him from the truck. I had just arrived on the scene when they were frantically cutting away at his full-sized extended cab truck which looked like a single cab truck. I wanted to run through the barricade and hold my friends' hand and tell him everything was going to be alright, and that I love him. Of course, law enforcement would not let me through the barricade as I was not immediate family. I could only talk to him through the focused and frantic efforts of emergency personnel, I could only hope and pray that this scene was not real, for I saw the delight of my life holding on to his own fragile existence. First he became a friend, then he became a true friend, almost a brother and at times. Once Matthew was removed from the carcass of his truck, he lay motionless on the gurney, motionless and quiet; as if he were asleep. As law enforcement and EMT began to seek answers from me, I spoke as loud as I could; knowing that Matt would hear me telling the officers and EMT personnel that Matthew Wright is my best friend, a fine young man and a hard-working, God fearing true friend. As we were waiting for the Life Flight helicopter to arrive, I was told that he was breathing on his own, but yet to know that he had sustained life-threatening injuries that he would never recover from. So, I stood there like a statue, still not believing the scene I was witnessing, and I do believe my heart and soul left my body that very night...for I did not move in what seemed eons of time. Still holding on to his Life, they prepared to move Matthew into an ambulance and then drive a short distance to meet the helicopter which would be landing nearby. I double-checked with all officials as to which hospital he would be Life-Flighted to, and so I made my way back to my truck in preparations to head to emergency. I stopped, turned around and then pleaded with someone, that I could ride in the helicopter with my friend, but no such luck this night. It was at this time, as I had already walked feverishly away towards my own truck...disappearing out of view from the glaring lights and into the darkest night... that Matthew Shane Wright would pass away... God Bless all of you - to whom still have their loved ones in some form, to hold and touch and smile and share, however different it may be. Rest In Peace Matthew Wright

Nov 12th, 2012 2:42pm

My brother was in a serious car accident a week and 4 days ago. His friend, him and another girl were in the car, him in the passenger seat, no seatbelt, going 80 down a back neighborhood road. Ended up losing control and flying 30 yards into the woods. A marine heard the crash and just happened to be a trauma doctor. He saved my brothers life...He gave my brother, excuse my spelling, a traectomy? (Hole in neck for breathing), on site because Zach, my brother, wasn't breathing when the marine arrived. He was airlifted to NHRMC. He's in the STICU with 2 broken ankles, a broken femur, a broken elbow, broken wrist and a fracutured lumbar 5 and his pelvis is fractured...He's in a medical drug coma, probably will be for a week more. We got told that he has pneumonia and will go on antiboitics for it. His ICP has been ranging from 8-25, which the doctors want below 16, the lower the better at this point. Please pray for my brother, he's only 19 years old. He's got so much to live for. This site really helped me feel more comfortable with my situation. Please pray<3

Oct 25th, 2012 1:41am

Thank you all for your inspiring stories. My beautiful, intelligent, zeal for life, 18 year old daughter was in a mva April 1, 2012, on her way to spring break. Her car was stopped in the highway and she was hit by another driver going 80 miles an hour. She was cut from her car and medivaced to a nearby trauma center after 30 days she was transferred back home to a inpatient rehab then sent home to emerge and now is in outpatient rehab. I know you all can imangine the feeling when the local police knocked on my door to inform me my only child was in NICU. I had to give permission over the phone to do a cainectomy to remove a blood clot. It has been six months and she is progressing well in rehab. She is learning everything all over again. She will not talk longer than 45 mins to an hour and only when she is on her medication. She is my whole life and I miss her so much. I pray all day everyday. I cry everyday throughout the day when I think about the old her and yearn for her to have a positive happy future. She is on brain stimulants and seems to be mentally capable when she is on her meds but when she is not on her meds its like she is in la la land. She is slowly transitioning to doing somethings without meds. Although she has all of her intelligible information and gets 90 to 100% on knowledgeable information. There is a disconnect somewhere but I can't seem to understand where. My question is will she always need to be on brain stimulants or will she eventually be able to use her own brain after rehab. I know that God saved her and that she has a purpose so I know I have to wait for God to heal her and do my part to love and take care of her. Bless all of us that have to endure this pain and understand you never know when it could happen to you. God will help us through this storm and our lives will shine again. God bless.

Oct 17th, 2012 4:06pm

thank you for sharing - i had an avm just 1 year ago - when i was 44 years old; im a mom of 2 boys - but don't think they understand that i will never be the same...

Oct 15th, 2012 8:40am

Thank you for writing your story, you are a real inspiration. All the best to your family.

Sep 28th, 2012 12:58pm

Thank you Dixie, my son\\\'s best friend was in an ATV accident on August 12, 2012 and he received a severe brain injury. He has been out of the medicated coma for 3 weeks and now shows only left hand movement and his eyes are open. He does groin but that is how far the improvements have shown at this point. It has been only 4 weeks but the doctors also say he is coming very slowly. I will sit here crying for my son best friend and my son. My son works and then rushs to spends every minute off of work with him. Thank you for giving the heads up on what could come out of this and what my son might have to endure. My son was the one that saved his friend, they were ATVing together when it happened and my son has his first training and knew that he would have to stop the blood from his friends brain from going into his lung at the accident, so he did. The specialists told my son that he had safed his best friend and now he is willing to go through anything to help him get back to somewhat of a life. My son turned 22 years old on August 15,2012, in the hospital with his friends family and friends. He would not leave the hospital on that day or any day for a whole week. Thank you, so now I know what my son is going to go through.

Sep 10th, 2012 7:56am

To the family of Jesi. Don't let the doctors tell you she is not in there. 11 days is way early in brain injury. If she squeezes your hand keep talking to her. My daughter suffered a TBI November 2011. Doctors told us her responses were impulse. Many people are told to give up on their children. Be there for her and apply for social security disability now and medicaid. There is lots of help and resources. Don't give up. Ask for the social worker of the hospital and keep being a squeeky wheel. I had to fight constantly for my daughters care and rehabilitation. I am still fighting and she is so glad I am there for her. She can't speak yet but can smile and gesture. She is with us and we are so blessed. Her progress is slow but the brain is remarkable.

Aug 29th, 2012 12:17am

My wife and constant companion of 42 years suffered an anoxic event after surgery on May 19, 2012. Until that time I had never heard of anoxia. Now after over 100 days in hospitals and rehab facilities I have the basic and shocking understanding of the TBI. My wife and I have worked together every day in our married lives in our business. Now I do not have that loving person covering my back, much less doing all of the many things that she did that I never saw. I also inherited the overseeing of the care of her sister, who is in a care facility, who has dementia. The striking thing is that both women exhibit similar conditions, with the exception that my wife can no longer walk. I know that we will survive this challenge that we are facing. Reading your comments also gives me the hope and faith that I am not alone in this new world that I never knew. Our son tells me that the Lord does not give us more than we can handle. I hope and pray that I am up to it.

Aug 25th, 2012 10:29pm

Talk about reliving the whole experience again. Our son was hurt at 5 and is now 36. I can relate to some of the experiences of relearning to walk and talk again, but now we are dealing with the after affects 31 years later. He has a lot of depression in his life and the experience totally changed his life socially, physically, emotionally. Like you said, only the family can relate because they are there everyday. Other family members suffer, the marriage suffers, but you just do the best you can. It is heartbreaking to the family but all you can do is take one day at a time and hope for the best. Thank you for sharing your story to let us know we are not all alone.

Aug 20th, 2012 2:10am

26 years and counting. good luck to all

Aug 19th, 2012 1:10pm

My son just turned 37 in Feb. seizures lead to TBI. Same Icu Hospital rehabs We are in our 6-7 month. I love him so. I find it hard to visit. What is wrong with me? we had always been close.A mother who need help.

Aug 16th, 2012 12:41pm

11 days ago our bright, intelligent, funny, beautiful daughter Jesi was maimed by a drunk driver (no insurance). Still in NICU, she is a shell. She squeezes our hand and that's about it- docs don't know if it's purposeful or not. Cannot eat, sleep as we fear or her future. We fear for our future. We fear everything including bankruptcy to get her what she needs. We hada perfect life. Perfect kids. What have we been dealt? Unless with her I'm in bed crying. Will most certainly lose my job. The anger at the drunk driver that hit her is overpowering. Please help. I bought Dixie's book yesterday (coincidentally) and found this site today. Someone please help us!!

Aug 15th, 2012 10:01am

Wow, I can relate with all of you! I haven\\\'t had anyone that understood for 17 yrs after we left rehab. My daughter has a car accident age 17. She is now 34 yrs old. She was in a coma for 9 days. She just started having trouble with speak, droopy face. The hosptial says ekg said she has been having seizures right along. I could never tell. Sometimes her husband can\\\'t wake her up so he calls an ambulance. The doctors do nothing and tell him to stop briniging her in? WHAT! Think we need to go to diffent part of the state to get help. Never heard that you go back to how you were after you woke up from a coma, all these years later. Any commnets would be appreciated.

Aug 12th, 2012 11:12am

Ten years out... I can't even imagine. We are at the 6 month mark and every day is a battle and blessing. This is exactly what I needed to read tonight, thank you for sharing. I wasn't a blogger before the accident but if you have a chance here is our blog http://yatesfamilynews.blogspot.com/ Thank you so much for sharing, it is so scary to think about what kind of future our little boy will have and you have given me peace of mind.

Aug 7th, 2012 4:26am

I have been experiencing quite a unique recovery, since my car accident at age 17. I am now 22 and happily engaged, about a month or so ago, I had begun to endure these very light and brief ice-pick headaches. Now, the symptoms have become much more frequent and far more intense. They had initially varied in location in my head, also had only lasted maybe 10 seconds and now it has progressed to zoning in on one spot for about 6 minutes at a time. I have to wait atleast three more days before speaking with my neurologist. Is there anything that you might suggest?

Aug 6th, 2012 6:18pm

These stories gives us so much hope. My 14yr old nephew was involved in an accident 5 weeks ago and is diagnosed with a TBI. We are 10 days into rebab and were told if he does not progress to a Level 4 on the Ranchos by Wed. we are being released to go home. He will only have 2 weeks of rehab and we are not medically comfortable bringing him home. He has a trach and a feeding tube, countless medications. He is in a vegetative state now and requires so much medically. How are some people getting several months of therapy and we only get 2 weeks? We live in the FLA area and would like to stay here if possible. At this point, we are willing to travel anywhere to get him the best early care as possible. Any advice/suggestions?

Jul 15th, 2012 2:29pm

My 27 year old son was involved in a motorcycle accident on Memorial weekend. The driver of the car was at fault and had no insurance, no alcohol was involved and my son was wearing a helmet. He sustained a head injury (craniectomy), pelvic fracture, and other internal injuries. However, he is healing and functioning well. He is learning to walk with a walker while his hip heals. I try to stay focused on the next procedure or the present success. If I look to the future I see potential loses and a black hole of unknown. He has a college degree, a wonderful career, many friends, a great girlfriend, his own condo, car and boat. These he may lose. I haven\'t come to terms with that yet as I hold out hope for a great recovery. On the other hand, I am so thankful to have my son and thrilled that he is functioning so well. He speaks clearly, chuckles, and is remembering better. But he is also more irritable, fatigued and weak. He is coming home soon and will receive outpatient rehab. I would like to talk to other mothers. Please contact me at south09@ymail.com

Jul 13th, 2012 10:35pm

Great article! My wife has experienced a very similar road to recovery. Physical and mental difficulties are one thing... social changes make the condition feel even more isolating. Despite the challenges, life can still be good. Read about it if interested at www.inspiredrecovery.net. Thanks, Jason.

Jul 13th, 2012 7:21pm

My 24 year-old son was in a rollover accident on Memorial Day. He was not wearing his seatbelt and his alcohol level was 2.0. He spent four weeks in ICU and had a craniaotomy because of a hematoma on the left side of his brain. He also broke his neck, his lumbar, collarbone, his hip, and all of his ribs. He is now in a transitional acute care hospital before he transfers to Barrows Nurological Center in Phoenix. He endured four surgeries in four weeks. He is now talking lucidly much of the time although very slow. He sometimes goes into garbled words or cannot think of the right ones to say, but everyday gets better. He is now learning to wash his face, brush his teeth, and comb his hair as well as sitting at the end of his bed. He has no filter right now using many inappropriate words. His doctor said he would probably never move his legs or walk, but he moves his legs and feet like a bucking bronco. I am not ready to grieve for my old son as I am holding out hope that he will return maybe not all the same but close. I cannot bear to grieve for what he could have been with his talents, personality and intellect. He was a nationally ranked junior tennis player and competed collegiately. His passion is all sports. Thank you so much for writing your story about your son and for all the people who responded. "My may have burned but I can still see the sky." I believe. God and my family and friends are getting us through this one day at at time, one minute at a time. It breaks my heart knowing another mother is going to have to go through this, too.

Jul 4th, 2012 9:20pm

Thank You Dixie for sharing your story & to all the ones who commented. In November 2001 my then 19 yr old daughter was in a car accident which resulted in TBI. It is so nice to hear from others who really understand what we have been thru & still going thru. Thank you all for sharing.

Jun 28th, 2012 8:09pm

My son this past Feb had seziures TBI and went to the hospital thank god a new unit for head injury. was in an indused coma to heal. we Prayed and Cryed. Then in a month he went to a great temp. rehab. which was awsome. Boston he is in a wheel chair Talking perfectly one side is slow and has left side neglect. He eats on his own and soon feeding tube will be out. Then insurance sent him it a Nursing home for more rehab. that has been awful. What do we do. it has been 4 1/2 months and i see him regressing. Driving is awful. Family is all over. He was an engineering smart as ever. still has some of that, but sad. Nursing home is not so good should he be home with out patient but all that equipment would cost. He does not walk. Help Ty J

Jun 26th, 2012 3:01pm

Thank you so much for sharing your story. I am a speech pathologist in graduate school and am currently studying TBI. I was asked to find an article and I came across your story. It was so inspiring and so touching and I just wanted to let you know that I will be sharing Paul's story with my class tonight.

Jun 6th, 2012 9:04am

I met Richard in 1994, he had fallen 43feet from scaffolding in 1986 and suffered a broken neck and head injuries,permanent hearing loss to one ear. At the time he was married with two young children.It took over a year for him to learn to walk again with leaning over, to stand straight, to put a sentence together. He found work in a garden centre but the money was nowhere near what he had earned before the fall, and with two young children knew he needed to try and get back into his old job as a Scaffolder. He approached the company he was with before the accident and remarkably they gave him a start. Unfortunately the marriage collapsed due to the change in Richard's personality shortly after this and when I met him he was living in a very poor flat. We have now been together 17 years, I adore the strength and courage of this beautiful man, he is still scaffolding and is now 59 years old. He may have a quick temper which in the early days was an issue, but I soon learnt to change the subject which had flared his brain and he would immediately calm down. The only problem I really notice is when shopping at the supermarket it may take him ages to choose things, I think the brain damage cannot deal with the products in front of him and make the snap decision of what to buy. In making conversation he can seem to take forever to get to the conclusion of his story. But he is the such a remarkable survivor. You may not all believe this but it is a totally true story. Five years ago at the age of 77 my Father who was a devout Christian had gone to get the Church he attended ready for the Easter Sunday celebration. He took a ladder to the alter to put up a banner, and the ladders came down. My Father died almost immediately. I am still suffering and find it hard to come to terms with the fact that I left my marriage to turn to the man who had lost his family because of the fall from scaffolding and losing my Father to a fall. Sometimes we have to deal with things in life which we would never believe could happen.

May 23rd, 2012 11:13am

Thank you for telling your story, it seems that every feeling and emotion that you have had I have also gone through. My son is 24yr old and its going on 3 years this June that he had an accident while putting the clip back in his gun. He had a misfire and a bullet whent into the motor skills section of his brain. He had a 10% chance to live and he beat those odds. We are very lucky for have him with us today. I still to this day am having a hard time getting him into a rehab so that he can relearn his motor skills. He had no ins. at the time of his accident, so he was put on Medicaid, which in Alabama only give 14 days of in-patient services. He just got Medicare and now they say he does not qualify for Rehab Hospitals because of the lenght of time since his accident. He needs to go in a long term rehab facility and they do not expect Medicare. Sometimes its like butting your head against a brick wall. So when you stated that you wanted to bury your head under a pillow and big blanket, I know exactly what you mean. But of coarse I continue to search for a place that he can get some intensive rehab, and hope and pray that I can find somewhere. He goes to an out patient rehab, but he needs to be in-patient to get the therapy he needs. He only has movement in his right hand and arm, so he has to have help with all of his daily needs. I will not give up on him and will not send him to live in a nursing home. I will continue to search, hope, and pray daily that I find him help. So you can see that I understand A Mother's Story Continues.

May 16th, 2012 10:48pm

Just shy of three years now, our nineteen year old daughter is a miracle indeed . She suffers from an anoxic brain injury when an undisguised infection attacked her lungs causing ARDS. She was in Children's hospital for seven months. She became septic, everything that could go wrong went wrong. But prayer saved her life. We are now dealing with her loneliness , memory loss, and violent behavior but continue to take her to a psychiatrist, neuropsychologist, etc. Despite all of this, (we walk on egg shells too) God is using her for many great things. Last night we shared her story with a key club at a local high school who help support Children's hospital in Birmingham, Al. We have a lot to be grateful for. See her story on YouTube , Katie Hamlin -child of Children's . Thank you Dixie for giving us a chance to provide hope for others.

May 10th, 2012 11:41am

Our daughter suffered a brain hemorage during brain surgery when she was 18 years old. This was a total shock to us and we somehow managed weeks of her being in the hospital and then outpatient rehab. A year after the operation, she ended up again in the hospital for seizures and other complications. She has worked so hard on her health and we are so proud of her. She is 20 years old today and on med leave from college. This has been a life altering experience for everyone in our family and we have grown spiritually as a result. She is back for the most part, but does have some memory loss and requires accomodations for any deficits. We are feeling blessed, but we work hard at it everyday. Bless you all that can relate to such an experience.

Apr 16th, 2012 1:07pm

Our son is 23 years old and he was in a bad vehicle accident on December 10, 2011. He has severe TBI to the frontal lobe. He was in a coma for 5 weeks and has since learned to walk with a cane, talk a little, but he has not gotten the feeling back in his right side yet. He has done amazingly well in 4 months and we thank God every day. I miss our old son and we wonder how much of him we will get back but I am just thankful that we still have him. It was great to read all of the stories here. I knew nothing about TBI at all until this happened. The biggest thing we have had to learn is to stand up for our son. It really does effect your whole family and can put a lot of strain on your marriage. Thanks for listening.

Apr 12th, 2012 10:42pm

Our son was 5 when he suffered a brain injury related to an ecoli outbreak. We quickly realized that the child that came out of the hospital was not the same child that went in 4 weeks earlier. For days his life hung in the balance and eventually he was discharged. He is now 16 and we are still mourning the loss of what could have been. Our thoughtful, energetic, intelligent, thoughtful and humorous child. For the past 12 years we have all been walking on egg shells trying the best we can not to set him off on one of his many and sometimes violent temper tantrums. We advocated for years for supports in school which he is now refusing. He feels no remorse and is unable to read people and thus has become a recluse. He accepts no responsibility for any of his actions . His longest job lasted one day due to the lack of social skills he has. Even with full time tutors social worker and a psychiatrist we feel that we have probably lost the battle for him. His memory is poor and his organizational skills are negligible at best. We are oh so tired and mentally exhausted from dealing with him. We hav 3 other children who we also have to try and devote our time to but he has taken so much time away from our relationship with his siblings. We love him dearly and have only wanted for him to have the best chance at life, but it just isn\'t working and we dont know what else can be done at this point. A brain I jury is truly a hardship that not many can relate to which has been equally as frustrating over the years.

Apr 11th, 2012 11:51pm

My son was in an auto accident 6 1/2 years ago and suffered a traumatic brain injury. I was told he was young and strong and to wait and see what we got. He is now 29 years old and continues to progress slowly. The road has been very difficult since he had no Insurance and was never given the opportunity to go to rehab. I work with him daily and he has regained movement on his right side and is beginning to gain some on the left side. He says a few words but uses a Zap communication device to type what he is thinking. It has been a long road but I am thankful for all of the progress he has made. All of your stories are encouraging and I wish the best to each and everyone of you.

Mar 24th, 2012 10:32am

SO sorry about what happened. From doing research on brain health I can tell you sometimes small dose of ritalin can help recharge brain. ALso the herbs bacopa monneri, ginkgo biloba and ginseng are brain tonics. Ask the doctor, well ya know what, don't bother cause they usually don't have a clue about this stuff, though they'll jump on ritalin suggestion. BUt ask anyway just for fun. Maybe the doc is smarter than most. Also, PROTEIN for the brain. Also, good news is recent brain research is showing even after a TBI, the brain is amazingly resilient and continues to HEAL over many years, especially when optimum health is constant. Eating the best, organic foods and foods with most vitamins in them is critical to healing and improving brain. THings will get better.

Mar 7th, 2012 10:21pm

Thank-you for sharing your story! I sit here and weep, I myself had a TBI almost 24 yrs ago, at the age of 12. I remember who I was before and who I had become after the injury. I have daily battles I fight due to having a head injury. I feel your pain, my parents share it too. I just want to say its awesome you are getting your story out there! Paul rocks he survived!!!

Feb 21st, 2012 10:25pm

Hi I am a mother of Alfie (12 years on from head injury), we were told all the negative stuff (will not, walk, talk, be fed with a tube and also have trachy for life). Fast forward 12 years my son has achieved so much, he has run the marathon, climbed kilimanjaro and he gives speeches in front of 300 to 400 hundred people about head injury, he is an absolute inspiration! Never ever give up and always be positive. My son always sets himself goals, his next goal is to pass his driving test (which is proving to be very very difficult) but he says that people told him he "wouldnt walk but he ran a marathan"! He will never give up and we will never give up on him

Feb 8th, 2012 1:20pm

Thank you for your story and everyone for commenting. It is only all of you who are either the patient, the parent or friend that understands all the emotions we have all gone through or go through. My daughter was a pedestrian and hit by a car 3 1/2 years ago and suffered a TBI. Fast forward after being told she would not survive, to she would be a vegetable, to she would be in a vegetative state for life etc - she is an amazing almost 13 year old girl who is a miracle. Yes she is now my "new" daughter and yes I grieve the "old" one at times when I feel weak or look at old pictures, but we did it. She learned to eat, walk, talk, everything again. Don't ever give up on yourself or your child. We were turned away from conventional therapy so we did our own with ballet, pilates, guitar, art, voice and theater. She has now auditioned and been accepted into an arts school for drama and voice. She is a miracle and keeps working to get better and find ways to over come her weaknesses. School can be a challenge but again fight for your childs rights in school and get them the help they need. Love to all of you who have suffered a TBI or family who have stood by your child or family.

Jan 23rd, 2012 1:19pm

Thank you for sharing your story. My daughter is a survivor of a TBI in 2007. She is what doctors descibe as persistent vegetative state, but I have all the faith that my daughter is still " in there" somewhere and that one day I will hear that sweet voice call me mom once again.

Jan 22nd, 2012 2:24pm

My little brother suffered a TBI just weeks after turning 18. The accident was 2 years ago. He has a similar story to other posted, over a month in a come, another month in ICU, then several months in rehab. Now two years later I have seen a total change in personality. He went from almost childlike and hilarious to violent and distributive. I will never give up on him. Reading these stories gives me hope for his future. HE is the sunshine in my life and I appreciate all of you sharing your stories. Through these difficult days I will continue to check back here for updates and encouragement. amerchant@knights.ucf.edu

Jan 7th, 2012 3:32pm

HI It\'s been 10 years since my son\'s TBI. He developed psychosis and is paranoid and delusional. It is very difficult since other than the mental illness, he is totally recovered. Linda

Jan 6th, 2012 2:58pm

I am sitting in a rehab watching my 17 year old daughter sleep. 2 weeks ago today, they did not think she would make it. She was the rear passenger in a MVA which resulted in a severe brain injury to several areas of the brain. I am definitiely grieving the loss of my lexie, but am thankful to have her here and will adapt to the new her. I miss hearing her sweet voice and that beautiful laugh that could light up a room.

Dec 21st, 2011 4:32pm

Thank you for sharing this amazing story, Dixie. I\'m so anxious to hear how Paul is doing after 20 years. He sounds like quite a warrior. And, you and your husband are amazing people. Thanx for sharing. Dream! Hope! & Believe! - Mark Elswick

Nov 30th, 2011 8:25pm

I am the grandmother of a TBI survivor for soon starting her 28 th year. She was 3 years old when she was in an auto accident. Now soon to be 31 years old she was one if not the first to survive a traumatic brain injury in the area. She is wheelchair bound ,nonverbal, totally dependent on others.A very happy person most of the time. well loved by family and any one who spends time with her even for short periods of time.She comprehends everything she hears and sees. Responds with gestures and a very limited vocabulary. anyone who has not experienced an injury of this type truly does not understand what is entailed in caring for a TBI Patient. She is the joy of her family from the oldest member to the babies. Never give up there is always hope. Her Doctors had no idea what her outcome would be, I believe its way beyond their expectations. God can do things no one else can do. Nov.8,2011

Nov 8th, 2011 3:52pm

Paul is a true hero in my eyes. His ability to overcome every obstacle is an absolute miracle. Your family's strength is astounding. I consider myself very lucky to know you, Paul, and the rest of the Coskie clan. ~SWL~

Oct 28th, 2011 3:30pm

Well, this story and the people who are replying really make me fell good!! I had a TBI in August 2010 and was in a car accident. I was in a comma for 40 days and then went to TIRR rehab in Houston Texas for another month and a half and was released!!! Im one of the very lucky ones who went thru a traumatic event and have really done good!! Other than not working now. i am doing pretty good and so thankful that I didnt go thru that vegetative state. Although I do have memory problems, for almost a year Im way better than most people. This happening still makes me cry at times and I gotta learn to understand my life better. Just gotta understand that at least I did live thru it! If anyone wants to talk to me my email is melmel1972@hotmail.com. And I have a site you can visit that Im on too Melanie

Sep 9th, 2011 5:53pm

Thank you for sharing your story. My son suffered a TBI on August 14, 2009 at the age of 17. He was a month and a day away from his 18th birthday. He was given less than 1% chance of survival, less than 5% that he would be little more than a "vegetable". He spent 17 days on a ventilator, and we were told not to expect him to be how he was prior to his accident; he was not going to be. After 17 nightmarish days, he was able to breath on his own, although he couldn't so much as swallow his own saliva. He slowly started his long road to recovery. He was transferred out of ICU one month after his TBI to the rehab unit at CHLA where he spent 5 weeks. There he had to re-learn how to walk, eat, speak, drink....He went from being super-polite and repetitive to vulgarities every second. After being discharged from CHLA he spent four long months at a brain injury rehab facility (CNS) where he had up to 7-8 hours of intense therapies. Seven months after his TBI he finally underwent a cranioplasty to replace his missing skull with a prosthetic (which we had to fight for because we were told it was a "cosmetic procedure"). Miraculously, my son graduated with his class (he finished his remaining high school credits on-line and with lots of help from his school), he works part-time and is a full-time student. He now gives speeches on the dangers of drugs and alcohol. He was a passenger in a carfull of teenagers that were all under the influence after attending a "rave". I'm thankful I still have my son, although he is definitely not the same as before. This experience changed him; he's a very mature 19 year old who is no longer the "popular" kid. We like that just fine. He's been able to share his experience with others his age and hopefully, he's managed to save a few lives.

Jul 29th, 2011 7:50pm

Thank you for sharing your family's life. Our youngest son is also 10 years post TBI.

May 22nd, 2011 9:24am

Thank you for your testimonial. It is so encouraging and bring tears to my eyes as I remember that last year on nov 2010 our 21 year old son suffered a hit and run accident, he was the pedestrian. Hours,days and weeks of constant agony,physical and mental tiredness to the extreme. But in the mist of all this God was watching and rewarding our faith. Yes, you are right, my son is different, he says " mom I feel like I just came out of your womb". Everything is new for him, our face complexions,birds, ceiling fan, light switch.Thank God for the support of the family which has been united more in love which has made us stronger. After five months of his accident one friend remains there ( I even gave him info about TBI to help my son better), in the mean time we are building a new world for him compossed of new friends, spiritual support thru church, showing him the world(people,places etc) and also enriching his new view towards life. Soon he will start outpatient therapy and will return home for good,he has not been home for five months and recently started coming on weekend passes.The stress level is a tiny bit lighter, but is going to be a very long journey, but God will carry us all the way.

Apr 21st, 2011 8:36pm

I'm grateful for Paul's recovery and where he is today. This story gives me hope in that my very much loved boyfriend suffered a TBI on Feb. 22, 2010, and after being in a coma for 2 wks and 2 days was transferred to a rehab hospital where they keep saying he is progressing very slowly. He hasn't reached intense therapy level yet. Needs 24 hour care and not sure if he really knows who I am. I surf the internet for stories of hope and promise. Your story gave me some hope. Thank you.

Apr 7th, 2011 4:55pm

Our daughter is a little over a year into TBI recovery - slow and painful. I try hard to see ten years down the road what she may be - certainly not the vibrant young woman (21) she was before March 18th, 2010. She is still on a feeding tube and trach and we fight insurance daily to get her treatment. Your story resonates with us. I'm glad to hear and see the progress your son has made - it renews my hope. God is good!

Apr 2nd, 2011 5:21am

Your story is so fresh for me as a mother, yet I know I am so, so blessed. My son was injured 9 months ago and was considered 1 in 50,000 that would make a 98%+ recovery. As I read all of the comments and stories, you put into words what I feel. In 9 months we have progressed a million miles it seems. After learning to swallow, walk, and dress again we focused on the mental tasks at hand. Having a child who has suffered from TBI is huge, but it takes such a huge toll on the other children in the home as well. My son is doing great, but as the parent you see small things and know that they are struggling. You article is wonder and gives hope to people suffering as well. Any small sound that is associated with the night of the accident brings thoughts crashing back as if it were yesterday. If I can give people any advice it is to never cease in prayers because my son is living proof they will be answered. Never stop loving or searching for the answer no matter how large or small the problem. As small bumps in the road arise, I continue to be thankful for all that I have been blessed with and hope that all of you will continue to receive his healing blessings. Another person I met in the trauma unit during our stay always says 'love wins' and that statement is so true.

Mar 24th, 2011 8:12pm

Reading your story brings back so many memories for me. My son was hit by a car when he was 4 and wasn\'t suppose to live and if he did he was to be a vegetable...Logan is now 11 years old and has been walking on his own for about 6 months. You know even though it\'s been almost 7 years since his accident you are right that it does change your entire life and people who don\'t live it have no idea. So many people say to me aww Logan is doing so good and yes he is and he is my miracle boy but life will never be the same and unless you live it you have no idea. Sometimes I feel so alone, I think because my family sees how far he has come that they forget that he will never be \"normal\". Like you I have 2 other children and all of my kids were young when Logan got hit although my case is a little different because my youngest daughter has severe autism. It\'s bad enough feeling torn apart from other kids while you spend countless days and hours at the hospital with 1 child but not being able to be home with a child with a disability made it even harder because she only responded to me and she had a really rough time. It makes me so happy to hear other peoples success stories. Mircles really do happen!

Mar 24th, 2011 2:48pm

My son just turned 20 in January. He was riding in the back seat of a car that was hit by a large SUV in July last year. The rehab hospital sent him home in December because he hadn't even progressed enough for the intensive therapy there. He is still uncommunicative and still being tube fed. We have therapists coming to the house twice a week but I worry we are doing enough. He suffered with kidney stones and seizures all in the last 2 months. I know I need to mourn the loss of my intelligent, kind, energetic, and compassionate son that was but I'm still struggling with that on top of the exhaustion. Thanks for your blog because it really helps to know that there is a light at the end of the tunnel even if it won't be perfect.

Mar 7th, 2011 11:38am

Thank you for sharing your experience with TBI. I am new to this game as a participating recovering TBI victim, although as a former (an identification I recently forced myself to use) TBI provider identification of weakness is a bitter pill to swallow. Yet, being new I can strength from stories like yours as it shows evidence of hope and results in recovery. I am amazed in the human experience of overcoming the negative aspect that TBI presents and yet the acceptance of the potential for permanent disabling factors. I like your son it was told to my love ones that to expect me to have limited recovery, never to walk and to be wheel chaired bound remainder of my life. My injury occurred at age 58 now 2 yrs post and I am walking on my own power. Proving the medical providers wrong, being alive is a major miracle. But in my case I have experience a life time of events. The fact TBI is unique and different for each victim my purpose is yet to be defined. Most likely my age is a blessing and I hope that ten years from now the comment will be positive contribution and not one of resignation. I COMPLIMENT YOU, YOUR SON AND FAMILY FOR PROVIDING HIM THAT POSITIVE ENCOURAGEMENT. Especially with all the negative reactions, comments, obstacles and molds that others expect from TBI.

Mar 6th, 2011 5:28pm

My son is 14 and 8 years ago he received a TBI. We fight everyday for his education and well-being. We move often, so friends are the biggest problem. And of the few he does meet, they realize quickly that he is not a normal teenager. They soon back off. We are trying, and will continue to try, everything and anything that might help him. Thank you!

Mar 4th, 2011 6:01pm

Thank you for this wonderful article! It is the first time I have ever felt that someone had walked a mile in my shoes. Dixie, how you explained everything, is exactly how I have been feeling, but never have put into words...and the last part about the ambulances made me cry as I do that as well. I can't thank you enough!

Mar 4th, 2011 4:41pm

Thank you so much for sharing your story. I suffer from a TBI as well and have had many changes in my life. My husband has left me and my oldest daughter as well. I still, thank God, have my other daughter and my son with me. They continually give me the strength to go on and continue to see the good things that have come with such a tramatic injury. Thank you again for writing your story. It was truly understood.

Mar 4th, 2011 9:16am

Thank you for your story. What an inspiration for many suffering with TBI.. My son, at age 19, suffered a traumatic brain injury and we were afraid he would not make it through. Miraculously, he was out of the ICU in 3 weeks and in rehab for one week. We got him home and he was back to normal in less than 6 months, you never would have known. We were the lucky ones. And then the unthinkable happened, 16 months after the first accident he was in a fatal motorcycle accident. What I wouldn't do to have my son back, even if it meant he had TBI. Just cherish the time with your kids because you never know when it can be taken away. kyle's mom

Mar 4th, 2011 8:38am

Thank you so much for this article. My son, Michael, suffered a TBI at 4 years old. He is now 8 (almost 9) and as we come closer to the 5 Year Anniversary, I can't help but try and imagine what his future holds. Your story gives people like me so much hope. Right now it's all a dream that Michael will walk independently, and go to college. Your son is a wonderful and true inspiration to us ALL.

Mar 4th, 2011 8:10am

Dixie-your story is such an inspiration to so many others. Glad to hear of Paul's milestones. Thank you for sharing. Karen Green

Mar 3rd, 2011 10:43pm

Thanks so much for writing this, Dixie. We\'re now one week into Year Three with Michael. His cognitive/memory issues continue to be his largest hurdle, but we\'re quickly learning all about the off-balance walking as he opts to put his walker aside in more settings. You, Paul and your family are a great inspiration to all!

Mar 3rd, 2011 4:16pm


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