Couples often report big changes in their marriage after injury. Professionals who work with them often find that people face common challenges in rebuilding their lives and relationships as they try to find a new normal. By understanding common post-injury challenges and learning to use effective coping strategies, you can improve your marriage and build a healthy, satisfying relationship.
The following three stories illustrate some of the typical situations couples face after brain injury:
Stephen and Jenna had just two months to go until their dream wedding when their lives were changed forever. Driving home after choosing their wedding cake, a tractor trailer crashed into their car. While Jenna suffered minor physical injuries, Stephen sustained a severe TBI. Now, one year post-injury, the couple is married, but life is not the fairy tale they had hoped for before the crash.
Jenna: Before the injury, we planned everything together, but now I have to do it all. When I try to talk to him about important things — the bills, our future — he gets irritated with me. I don’t know how to talk to him anymore and I don’t know how long this marriage will last.
Stephen: Jenna and I used to be partners; now it’s her show. She doesn’t trust me to make any decisions. She acts like I’m a bother if I need her to repeat or explain something. I feel worthless in our marriage. In her eyes, I can’t do anything right.
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Lamont and Deandria had come to a conclusion that their marriagewasn’t working. They had begun to live theirlives separately, maintaining different homeswhile sharing responsibility for their threechildren. Then, Deandria fell off of a ladderand sustained a mild TBI. Although she wasonly briefly hospitalized, it soon became clear that she could not return to her same job orcare for the children on her own. The coupledecided to move back in together and rebuildtheir marriage.
Deandria: I was happy to be on my own, working onmy career and taking care of our kids. Noweverything I thought I wanted is different. Ican’t make him understand that there arethings I just can’t do, no matter how much Iwant to. My focus is on getting better and allLamont talks about is how I used to be. Whycan’t he understand that my priorities aredifferent now?
Lamont: Sometimes I feel so guilty. We both wantedout, but now she needs me and I don’t havethat choice anymore. Plus, she’s not thewoman I married. She used to love beinga mom and helping others in her job. Nowall she thinks about is herself. The kids andI know that she’s hurt, but it’s like that isall that matters to her. If we’re going to betogether again, I need a partner. I want mywife back.
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Sarah and Carlos had been happily married for 18 years. Carlos worked in a job he loved and Sarah stayed home with their four children. After Carlos suffered a stroke, the couple spent the first six months just focusing on his rehab. However, two years later, their lives are not back to normal. With Carlos unable to return to work, Sarah has taken a part-time job while Carlos stays home with the children. The family now has one-fourth of their former income and everyone is struggling to make sense of this new life.
Sarah: He’s just angry all the time now and I don’tknow what to expect when I walk in the door.I don’t want this life either, but somehow itseems to be all my fault. I can’t stand to bearound him for more than a few minutesand the kids are scared of him all of the time.
Carlos: I loved being able to provide for my family. Now, I feel like I’m nobody. Sarah rubs it in my face that she’s the one working and when I try to work around the home it seems like I never do anything the way she thinks it should be done. I still love her so much, but I’m pretty sure she will leave me soon. She goes out at least two nights a week and says it’s with her new co-workers, but I know better than that.
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To help you understand more about your marriage, read the statements in each section below and circle True or False.
1. Communication Challenges:
My spouse has no idea how I am feeling.
Talking about our problems only makes things worse.
We are always arguing about something.
He/she doesn’t hear anything I say.
2. Changing Responsibilities:
I have to do everything myself.
We don’t know who should do what in our house anymore.
My spouse acts more like a child than our children.
I can’t trust my spouse to do things right.
3. Changing Priorities:
We’re so busy going to doctor’s appointments, who has time to work on a marriage?
We don’t have an intimate relationship anymore.
He/she used to care about our family, now I’m not so sure.
4. Emotional & Personality Changes:
My spouse gets upset at anything I say or do.
I’m married to a stranger.
I’m worried all the time about what he/she will do next?
Look at the pattern of Trues and Falses in each of the four categories. The more items you answered True, the more likely you are having trouble in that area.
Read, think about, and try the suggestions below to improve your marriage:
This article was written by the staff of the Virginia Commonwealth Traumatic Brain Injury Model System. For more information about our programs (www.nrc.pmr.vcu.edu) and conferences (www.tbiconferences.org), please vist our websites or email Jenny Marwitz at jhmarwit@vcu.edu. Article used with permission.
My spouse had a TBI as a child. The older he gets, the less he listens to reason or is able to negotiate or compromise. How do I get past the "stuck"? Where can I look for assistance? Am I alone in this?
my husband joe has tbi/stroke is paralyzed on the right side and is in a wheelchair..his short term memory is virtually gone..his accident happened in 2005..now i have the responsiblity of doing everything..from household repairs, bills to be paid..and everything else in between..the lonliness is almost unbearable..we have been married for 36 years..even though he isnt the man i married ..i cant imagine having him not in my life..i miss him very much..our supposed friends have left us..but he is my joy, and my life..because i know if things were opposite he would be there for me
My husband, 27, has brain cancer (since 2006) and the recent tumor and surgeries have left him both different and unable to communicate on a meaningful/higher thinking level. I wish we could talk about things the way we used to and laugh. I try talking to him about my feelings and our marriage or the cancer, but he doesn\'t really seem to understand. He has lost all independence and his family and I have created a daily care schedule. The worst part is that he was never able to bond with our son--an affect of the tumor which grew right when our son was born. Our son is now 9 months old and my husband\'s judgement is impaired, as he tries to give him things he could choke on and runs little experiments which are dangerous. I now live with my mom because we are so worried that my husband will accidentally harm the baby. I miss my husband as he was before--he was my best friend in the world and we were so happy. I hope things will be looking up because the loneliness truly is unbearable. In going through all this, the only person I desperately need to talk to, can\'t talk to me. I\'m all alone. I don\'t know how to heal a marriage where there is no marriage left. But at least I\'m trying.
Feb 13th, 2012 1:05am