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Traumatic Brain Injury Basics

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Michael Paul Mason, BrainLine

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TBI Basics

Overview

Doctors say that traumatic brain injury (TBI) is a catastrophic condition, like burns, amputations, and spinal cord injuries. But TBI is different. It upsets life on multiple levels: physical, psychological, social, and even spiritual. TBI affects the roots of who we are — our ability to think, to communicate, and to connect with other people. For approximately 85 percent of people with TBI, those problems eventually resolve, but the remaining 15 percent have lasting difficulties. If you’re dealing with lingering symptoms of a TBI, or if you’re caring for a loved one, it can help to understand more about the wide range of challenges that TBI can pose.

A tap on the head, and anything can go wrong. Anything usually does go wrong. Light taps — mild TBI — can result in daily headaches, agitated moods, or periods of sleeplessness. Stronger jolts may cause you to forget your name, or make you think you’re someone different. When you tell someone you’re sad, you may unintentionally yell. A TBI can introduce a frustrating amount of confusion and uncertainty into your life

TBI by the Numbers

TBI has a way of affecting everything and everyone in your life. It can make family life tough, and it can seriously impede your ability to work. It can affect the relationships you have and make it harder to make new friends. In the United States, TBI is a quiet crisis. As many as 3.2 million Americans are living with a permanent disability resulting from a brain injury. The Centers for Disease Control and Prevention report that 1.7 million Americans sustain a traumatic brain injury each year. Fifty-two thousand people die from it. Almost a quarter-million people are hospitalized. Some of them go home only to discover they no longer have a sense of smell or taste, or that their sleeping habits have changed, or that they can’t seem to do their job anymore. 

If you look at the numbers a little differently, they’re even more upsetting. So many Americans become disabled from a brain injury that each decade they could fill a city the size of Detroit. Seven of these cities are filled already. A third of their citizens are under fourteen years of age. Currently, there are at least 125,000 people with a brain injury so severe that it requires extended hospital care — a service difficult to find and even harder to access. Fortunately, the majority of people who experience TBI will be able to return to a productive life once they receive appropriate treatment

A Closer Look at the Brain

Even though the numbers are large, it’s important to remember that TBI is a human injury. It has a way of showing us that life is fragile and precious. Because the brain is a complicated network of cells, each injury is as distinctive as the person it affects. Our skulls are only a quarter inch thick, although male skulls are a little thicker, which is lucky considering the fact that men tend to get TBI more often than women. The skull is both protective and restricting; it is the brain’s best defense but also its greatest risk in times of trauma.

Surrounding the brain is an almost rubbery, clear layer of tissue called the dura mater. It helps protect the brain from moving around too much. Beneath the dura mater is another layer called the arachnoid layer, which looks and feels like wet cotton candy. The dura mater, the arachnoid layer, and another layer — the pia mater — all form what is known as the meninges, which keeps the brain floating inside the skull. If these layers get infected, ripped, or torn, it can cause serious damage to the brain

Types of TBI

Every brain injury is different, but there are two basic types: open head injuries and closed head injuries. Open head TBIs are a frightening mess. Whether the injury comes from a bullet, a baseball bat, or a high-speed collision, the result is always chaotic and distressing. The scalp bleeds a lot when it is cut, and when the skull is cracked or penetrated, pieces of it can get lodged in the brain. Because the brain is such a complicated tangle of tissue, it’s extremely tricky to remove objects lodged inside a brain. That’s why we put brain surgery right up there with rocket science in our everyday language.

In a closed head injury, nothing penetrates your skull, but a closed head injury can be just as complicated and vicious as an open head injury, sometimes more so. During a closed head injury, the brain may slam against one portion of the skull, then bounce against the opposite side of the wall. Doctors call that a “coup-contracoup” injury, where two injuries occur from a single blow. One of the most common types of closed head injury is a concussion — a strong blow from an external force. If a person’s head is whipped around, a small tearing effect called shearing occurs throughout the brain, resulting in a diffuse axonal injury. Axons are the hairlike extensions of nerve cells that transmit messages, so in a diffuse axonal injury, the messages either get mixed up, or they don’t come through at all

Treating and Living With TBI

An injured brain also has a tendency to swell, so if there is no room in the skull to expand, the swollen brain may start pushing against the eye sockets. The optic nerve eventually gets pinched, and eyesight is affected. A surgeon might drill holes into a skull to test cranial pressure. If the swelling is too extreme, the only option is to create an escape hatch by sawing away a portion of the skull.

The neurosurgeon is in charge of protecting the brain through medical procedures, but the survivor has to manage life with the effects of the TBI. Everyone reacts differently, depending in part on the severity of the injury, the quality of their care, and the strength of the social network around them. Many survivors feel pulled in different directions, feeling at times that the injury has made them less than what they were, and at other times that they can integrate TBI into their lives in a positive way. People with TBI are forced to confront a whole series of personal questions: How does my injury really affect me? Can I regain the things I’ve lost? What am I other than my brain? How can I make the most of my life?

BrainLine


Michael Paul Mason Michael Paul Mason, Michael Paul Mason is the founding editor of This Land, a monthly magazine based in Tulsa. Mason's first book, Head Cases: Stories of Brain Injury and Its Aftermath, is an exploration into the harsh realities endured by people with brain injury. 


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Comments [127]

I ran into a glass door walking at a very fast pace. I knew something was wrong when I was becoming quite forgetful. I went to see my PCP and after a CAT scan not only did he confirm a concussion he found ano arachnid cyst at the base of my cerebellum. Two months later I had a chest cold and after one particularly hard cough I passed out in my kitchen. A visit to the hospital and an MRI later found that the cyst had increased in size and was literally tilting my brain into the front of my skull. Surgery was successful but now I'm prone to bursts of anger and I'm not the happy go lucky I used to be. Anyone out there have anything similar and if you do what steps have you taken to improve your quality of life?

Aug 10th, 2016 10:59am

My husband also hit his head on a steel beam. He was able to see his own doctor, who sent him to a neurologist. He has a TBI and is getting treatment, even though workers comp doesn't want to pay, they have to! Please get that second opinion from a doctor YOU trust! It will be in your best interest! Take care and good luck!

Aug 6th, 2016 7:16pm

I need help. Can anyone give me advice? Struck my head on a steel beam in February of this year (2016), and workman's comp is dragging this out. Meantime, I saw a 'neurosurgeon', that happens to be on the company payroll, and he says nothing is wrong though he wants to test for seizures. In the meantime, I've had most of the symptoms here, and even what are possibly seizures, but still not receiving treatment. I've been told all I can do is wait, possibly get a second opinion out of pocket.

I just shaved my mohawk off because my hair hurt though, and I'm losing it over everything, I cannot handle the smallest amount of frustration. I haven't had a paycheck for almost five months now and my husband is trying to get a second job to pay for all our bills, we have nothing extra for therapy or a second opinion. Does anyone have any advice for me? Am I really stuck until workman's comp gets moving?

lydiadanea86@gmail.com Please, I need help, I see the disclaimer about medical or legal advice, but I need help.

Jul 12th, 2016 4:42pm

talk about repeating my  self, i just read what i wrote a year ago, sorry guys, lol melissakelley

Jun 16th, 2016 7:01pm

hi, my name is Melissa Kelley, maiden name Long, i was in a car accident when i was 3 yrs old, that was back in July or august of 1973, my mom, me and my stepdad was in a head on collision, we got hit broad sided, the accident knocked my mom and i unconscious on impact, i got a depressed scull fracture and a broken collar bone, unconscious for six day's, was in the hospital for a little over a month, mom got fractured ribs and a concussion, she was in the hospital for 2 days, my step dad got cut's and bruises, i had to relearn how to talk and walk, my frontal lobe was damaged but i had head surgery or i would of died, the surgeon had to laterally take my scull off of my brain and pick pieces of my scull out of my brain, i am a slow learner with cognigitive  disorder, mild depression and it has affected my life tremendsly, i tried to work but couldn't keep a job, i had no problem getting a job, it was keeping it, i tried to take care of myself financially but ended up getting on disability, made just enough work credits to qualify for disability and SSI, any way, i make friends pretty good but i'm not a big social person, i take meds to replace that chemical imbalance, without the meds, i would be so upset at times that i would cry, i enjoy life, it is precious and i stay away from people who judge me, i graduated high school with a c, cut hey at least i graduated, i am a very sensitive person and i respect all forms of life, i get mad if there is something i can't do right, but i never give up, my Momma raised me that way, she had me walk again before the hospital sent a nurse out, she knew i didn't need her any more, lol, i can't think quick enough, it takes me awhile to get to where i am trying to go when it comes to figuring something out, i don't drive but i deal with my disability in a positive way, i was above average before the accident, i was let go from jobs because i couldn't catch on in two days, and sometimes things have to be repeated to me, but over all i am glad we made it through that accident, i guess the car was so totaled that the sheriff couldn't believed we lived through it, our guardian angle was with us that day, thank you :)

Jun 16th, 2016 6:52pm

Omg this sounds like me! I fell at a concert and split my head open and had staples in my head and I have not been the same since! I have no appetite and my head aches entirely! I have lost too much weight and actually my doctor has ordered another cat scan because i have hemorrhage in my left ear which was not detected a month ago in the er...

Jun 12th, 2016 3:20am

On September 29th, 2014 my stepdad got into a serious motorcycle accident. He had on all his protective gear... But the way the lady hit him, it flipped him off of his motorcycle, and the plastic/glass part broke and I think It got in his forehead. He had internal bleeding, his heart stopped beating, and he brain was swollen. He had been in the hospital since September and came back in January. He also received some serious brain damage and the part of his brain that is damaged is the part that controls his personality and he was a COMPLETELY DIFFERENT PERSON when he came home. He has done some unspeakable things and his attitude is different, he used to yell at people instead of speaking to them regularly, he got angry quicker, had a short temper, etc. The person that really felt this the most is my mother. She's trying to have hope and hold on to the person that he used to be hoping that he will come back. It is now May 2016 and he is MUCH better, but he is not all the way there yet.

Jun 8th, 2016 6:19am

I suffer TBI to this day after 23 years. I was struck on the left side of my head in front of ear right under left eye. I was surprised not to hear more about memory. My short term memory has made me appear silly at times and has also been embarrassing. I definitely can relate to disruption of sleep patterns. If I can come close to sleeping at all I feel blessed. I also talk different. I was once pulled over by police and accused of drinking. My equilibrium is bad, so needless to say, I flunked sobriety test, but passed breathalyzer. My biggest loss is my creativity. I was a professional musician and songwriter. I can still function a little, but its easy to recognize that things dont flow like it used to. I have sympathy and compassion for anyone dealing with TBI. I know it changed my life and still is.

May 31st, 2016 8:25pm

I had my TBI 30 years ago this August.  When I talk with high school students today through the PARTY (Prevent Prevent Alcohol and Risk-Related Trauma in Youth) program, I have a student ask me how long it took me to recover. When the question is posed to me, I reply with the question, "What day is it today?" When the date is given, my answer is, "I'm still recovering".

30 years ago, little of what is known today was available.  I was just lucky.  I want to help those who have not been so lucky.  Thank you for the information and research now available to us.

May 10th, 2016 4:01pm

I am very lucky. I live alone and went to bed on a friday and woke on sunday to find I had fallen and had many injuries that did not hurt. I had been falling all over the house and had a broken arm, a large hole in my hip, and other varies injuries including a brain bleed. The doctors told me I had a large mass on my brain and I was going to die. They operated the next morning and found it was a bleed instead of a mass. I went home in three days to recover. It has been four months and the only things I notice wrong is I forget some and I am not able to do things fast. I don't know what really happened to cause the first fall. My brother was here on the Sunday when I woke up. When I woke up I was up walking. I had been up and doing things. It was as if all my lights were on but no one was home. I was seeing things that were not there. My vision was very bad. Waking up after the surgery my vision was much better but my eyeballs were jumping. That is back to normal. I was very lucky to get back to 95% in 4 months. I feel I may get back all the way to normal. I had a very good surgeon.

Apr 11th, 2016 10:58pm

Hey sorry to hear that hope things will get a lot better for you I will keep u to in my prayers. I just want to how long was it before u woke up and started to kinda get back to urself? I have a cousin fighting for his life right now to that was involved in a car wreck he had swelling on his brain and bleeding. They did surgery and stop the bleeding and swelling end up going down but this the problem they're saying he's motor skills is damage and nothing else they can do. But how if he is opening up his eyes and squeeze your hand and even drop a tear I'm so confused

Apr 1st, 2016 3:46pm

I was in bad car crash & i was in the hospital for 4 weeks 2 I spend on a ventilator fighting for my life an the rest in rehab . An now I'm suffering head trauma , I don't sleep for days ,I don't eat most days , I'm very depressed , I've lost friends and family . I don't wish this on anybody , this is very hard to live with I'm only 21 an life has been rough these last 2 weeks since I've been able to come home . The pain meds don't work really , I'm in pain most of my days this just all seems like a dream to me . I pray for anybody going through this an there family's .

Mar 27th, 2016 10:10am

I don't know if I have a, TBI but my husband has beat me in the head many many times !!! I have had many black eyes and other bad bumps to the head . I suffer from headaches, and I cry very easy and suffer from really bad depression !!!

Mar 8th, 2016 7:09pm

Thank you for this information on TBI. I was in a Sand Truck Accident back in 1998 that busted the skin open but not the skull on the right side of my head. The doctor just stitched me up and sent me home. My Head hurt so very badly for for 6 months to the point I could not even turn my eyes or my head. I have had Chronic Daily Migraines ever since. I have just recently been diagnosed with Hemiplegic Migraines as well. Since that accident I have not even been able to work math at all and have anger outbursts that are so not me. Mixing my words up when I talk.  Could it be that I have actually been suffering from TBI and not even knowing it?

Mar 4th, 2016 7:12pm

Aug 2015 had car accident 36 year old male ejected from vehicle, came crashing down, requiring brain surgery, open head wound. Lost 100% right hearing in right ear with added severe tinitus ringing in that ear. Regained myself from double eyesight, loss of taste and walking thinking. I spent 6months getting help from my Mother to use different parts of brain to thing thoughts again expand on those thoughts, remember old brain pathways to function day to day. I am 2months back at work now accountant, learned to drive again and coping best I can with all the data processing and analytics. Mostly reinventing myself, using other peoples brain to do things I can process without the added stress. The moving brain I think is a reality overlooked. I can be fine sleeping and wake up feeling like I am not fully cognizant for days, floating around, the sensation is like flying through a tunnel in space, feeling like everyone else has gravity to process the environment and my sense of it is fleeting. Its difficulty finding methods to cope, wish I had my old life ability back but this challenge is that a challenge. I don't know what tomorrow brings but I don't bank on it. I am simplifying my life finances etc. Short term memory loss a daily reality, but being very careful getting around. Keep praying for assistance in my daily routines.

Feb 24th, 2016 6:40am

My tbi was 4 yrs ago i had a subdural hematoma and crainiotomy i still suffer with headaches tracers ringing ears poor balance short term terrible memory loss irrtability chronic fatigue ect. I have found what helps me is meditation constant prayer and my love for jesus and my family. I concentrate on what i can do not what i can't do. It is literally a hour by hour day by day healing i enjoy what i can and try to stay busy and positive and rest when i need to. I'm blessed with a wonderful husband who is just happy I'm alive. May God bless anyone who is reading this. Walk with your head up and be happy you can read this. God bless c.z.

Feb 18th, 2016 4:33pm

I have had my head beat in, punched, head butted to the point I have permit black eyes and my left nasal cavity is a mess... This is from 5 years of abuse... Well now I know what you call this hell in my head.,

Jan 22nd, 2016 11:39pm

I would like to bring to peoples attention in this country that doctors do not understand brain injury. I have suffered severe headaches dizziness collapsing brain pressure seizures and being ignored all the time. Now got a living body and a brain that is dead

Jan 15th, 2016 6:23pm

Was told I'm a TBI case by the Dr today I was hit with an excavator on the construction site its been hard I'm reading educating myself to this traumatic brain injury stuff its scary how I relate to every story some more than others its scary to me and very frustrating on a daily basis I don't know how ppl have lived this for yrs or decades y'all must be strong I'm hurting everyone around me and hate life ass I type here don't know what to do my neurosurgeon I feel isn't doing the best job or doesn't work hard enough cuz I'm a workman's comp case other wards discounted its only been a month since my accident I'm forced back into work I shake uncontrollably head aches are constantly non stop lost hearing on my right side on top I jerk and shake or tremor in my sleep my back hasn't been addressed yet never had back issues before days I don't want to get out of bed and feel like saying F these drs and everyone including my job who is probably only keeping me employed cuz its the law here these ppl are so horrible when I was hit they thought it was more important to get my bosses on the job site before any one one called 911 so I remained on the floor convulsing and bleeding badly on the floor till another guy Frm another company said my coworkers were so wrong and called 911i never asked for this it wasn't my fault Sorry just want to say thks to my company sarcastically I was a single father who was going on my second yr of a awesome marriage its been upside down the past month and think I'm them too because of me and this accident I feel so broken and I don't want to be traumatic in every aspect this experience

Jan 15th, 2016 12:23am

I am 24. I was standing in a parking lot on my phone for a minute and next thing I know I woke up in the hospital. I didn't understand what happened. Everyone was crying. I first seen my new son he was about 4 months. I said hi and everyone was freak out. I talked and I was like what? My mom then said do you know me and who you are and why youre here? I said I know your my mom and I'm your son but did I get in a car wreck? Then the doctor explained it to me. He said I wouldn't wake up for three days and we weren't expecting you to be able to speak correctly or remember a lot of things. He said someone hit you in the back of your head with a car fracturing it and causing severe brain damage. I was bleeding out of both ears and spinal fluid. Long story short I don't remember me coming home. I could walk but I was really off balance. I couldn't move my right side of my face and speech was slurred. I slept for about a week straight and realized I needed to start fighting this. I'm a very strong person mentally. I fought and fought and fought. I got everything back to normal in about 2 months. Physically I lost my right hearing and I have horrible headaches. I hear ringing all the time. Still it's over whelming when I'm trying to be with my son and it hurts so bad just to hear him cry. I can't handle it and gives so much anxiety when this happens. It made me anti social. I'm always saying it's going to get better then I fail again and I hate myself. It's really shifty. I cry because I still can't handle hearing loud stuff. I want my son like used to play all day with him. Now I get flustered and that's not me and it's just mentally challenging. I then turned to alcohol to stop thinking. It just caused me alot of suffering mentally. I'm still dealing with this but I am fighting it for my son and I won't stop. I hope everyone recovers from your injury just don't give up stay positive.

Jan 14th, 2016 8:47am

Hi everyone. The father of my children was in a mva in august. I'm pretty sure he is considered to be out of his coma at this point but he still can't talk. He follows commands consistently and answers yes and no by pushing yes and no buttons on a phone or tablet. He isn't walking but can bear weight on his feet. I know everyone's experience is different and he has made amazing progress over the period of 4 months but I just feel like his is so much different than everyone else. I understand that his standing and hopefully walking will come with time. I just can't understand why he isn't talking. He has progressed in every other way. I was wondering if anyone else had a similar experience or had any advice or helpful words.

Jan 13th, 2016 9:23pm

Thank you for this information. ..I couldn't do my job as a nurse for many months after my accident...My short term memory has been affected and I need special glasses for focusing because my focus goes in and out..very tiring..I don't feel like I ever go into REM sleep and BP is much higher..I stumble with words and say things that don't make sense some times...Must be so frustrating for my family and friends at times..I do feel alone sometimes.. It's difficult to explain a TBI to someone.

Jan 10th, 2016 7:34pm

Thank u for your story. I too was in a head on and fighting to be and feel normal. It's been one of the loneliest times of my life yet.

Dec 10th, 2015 6:41pm

i was in a head on collision car accident with my mom and stepdad, we were on our way to fishing when a car came speeding towards us, we didn't see him  and he didn't see us, he hit us broadside head on(i was 3 yrs old at the time), the impact was so hard that my mom and i was knocked unconscious, my step dad got cut's and bruises, but the accident left me with a depressed scull fracture and a broken collar bone, my mom got a concussion and fractured rib's, she was unconscious for two day's, i was unconscious for 6 day's, the doctor had to do surgery or i would of died, mom got to go home in 2 day's, i was in the hospital for a little over a month, i had to learn how to walk and talk again, my mom had me walking before they sent a nurse out to work with me, when she got to our house, mom said i ran up to her and she said "Well i guess you don't need me".

i was afraid of the x-ray light when the doctor did x-ray's on me, mom had to practice with me laying on the kitchen table with a lamp and i had nightmare's galore, the accident damaged my frontal lobe but thank God we all lived, i have tried to take care of my self, i have been refused job's because i either didn't pass the test ori caught on to the job to  slow, but i did manage to take care of my self through alot of job's, i had no problem getting a job, it was keeping it that i had a problem with, i got kicked out of kindergarden when i was five in one school and had to go to another, i had alot of bad temper's, i used drug's and alcohol but i got help for that and i am alcohol and drug free, i have taken counceling all my life and still do, i take anti-depressants and exiety pill's but i don't have a problem socializing because i learned through my life how negative behaviour effects other people, i am on disability and i'm 45 year's old, the doctor's never asked my mom if she wanted to sign me up for social security, and one doctor tell's my mom i will never be able to take care of my self and a nother doctor tell's my mom i can with training, well, i have tried and now i'm here on disability at age 39 is when i started getting it, i have been a fighter all my life and still am as far as life go's and that is why i am here, My name is Melissa, and it is nice meeting every body, we all have come a long way fighting tooth and nail to get here, God bless you :)

Dec 9th, 2015 1:23pm

Hello everyone, the challenges one faces with a TBI can be across the board.  I suffered a Frontotemporal hematoma due to a dirt bike accident in 1999.  I was 17.  I fractured my left orbit, temporal bone and frontal.  They put me in a coma for 2 weeks self induced.  I woke from the coma as i started fighting the vent tubes.  I dont remember being being awake for the first 3 days. please email me if you want to hear the whole store and how im doing.  Mike B michaelocword@gmail.com

Nov 29th, 2015 3:22am

To September 2015 comment: you are not alone, as I am far too much like you. Stick it out, so we each know the other is there.

Nov 26th, 2015 1:52am

wow, reading these comments have really shown me how many people are suffering.

I am a caregiver for my sister who was in a MVA when she was 9.  The accident took the lives of our mom and brother and she was not suppose to make it.      

She functions quite well, and if fact most people in public do not even know that she has major injuries.    Major Brain injury being the biggest problem, she cannot see anything to the left of her, and she cannot use her left hand.   It has been tough managing her affairs and sometimes I get frustrated with her conditions.   I am in charge of her finances, bills, appointments.....   She now has gotten married (25) and is pregnant (all of this without letting any of our family know ) .  We are concerned that she cannot raise this baby physically and mentally and are not quite sure what to do.

Nov 25th, 2015 3:32pm

Thank you to all who have posted their experiences.  I feel so isolated and alone.  I suffered numerous severe head traumas in childhood (the ones I can remember) due to abuse and family dysfunction.  My father was by all appearances a loving man but could fly into uncontrollable rages.  One of these resulted in a hard slam to my back when I was 10 years old.  I may have suffered broken ribs as when I remember waking I was on my stomach and crying because of the pain and the fact I couldn't breathe.  My Mother told me that they couldn't take me to a hospital because my dad would go to jail.  I know that I didn't finish out my last 3 months of 6th grade and don't remember that summer at all.  However, in 7th grade I got straight A's so of course everyone wanted to believe there was no damage.  However about this time I started being what my family referred to as a "spaz" with jerkey weird motions.  I continued to appear to excel in school but nothing really worked inside of me.  I became a strange hyperacheiver with severe social difficulties.  My family made fun of me and my achievements were resented by my siblings.  I now know that I was trying to win affection and approval but all of my achievements were very shallow if that makes sense. I think because emotionally and cognitively I couldn't really comprehend them.  Before this incident my oldest brother who myself and my other siblings (7 children) were left in his charge pulled me by my foot at about age 7 from a high bunk bed where I was trying to avoid him (he consistently sexually molested me and beat me up).  This fall I remember because my head hit the floor violently.  He then drug me through the house by my foot to a back room.  My memories of what happened then are blocked until I remember my mother beating me for "asking for it" by staying home instead of going with her.  He was 7 years my senior but his activities were passed off as children "playing" so any trauma there was discounted and is still so to this day. This results in my family tsking, tsking me for being erratic and unforgiving--further isolating me.   I do know that as young as 3 years old I remember desperately trying to hide from something/somebody all of the time.  The combination of abuse resulted in me being odd socially.  I guess I was considered attractive and would have people that wanted to be with me but I was unable to maintain relationships.  I think this was alot due to the brain injuries and my erratic behavior.  I still succeeded in many ways so people found me confusing and often would eventually tire of my "behavior" although initially being drawn to me.  Then in 1986 I was doing very well professionally (also not tolerated by my family as they thought I was a strange person to not be married, etc) when I was involved in a severe accident.  A drunk driver pulled in front of me (2.75 bac the next day) and I hit him full on.  I now understand that I suffered a very severe closed head injury although went without a proper diagnosis (I believe to stem my rightful lawsuit--bad lawyer/bad choices/erratic behavior/no support system-I quit my high level job because my self-esteem would not allow me to accept my new normal.  Oddly, my company begged me to stay but I quit.  I went from handling 11 major apartment complexes and several businesses (I was a high lever asset manager managing large budgets and a lot of people) to not being able, literally, add simple numbers.  It was me who quit after years of success.  I was 32 at that time and haven't been able to maintain a job for any length of time although I always initially do very well.  I just wear out and start getting confused.  I try to hide my disabilities (like a good girl-plus people think I am making it up because I can be very high functioning so I try to avoid "explaining" to people--they don't get it).  I am constantly making and losing friends because I initially appear to be one person and then inevitably I act out (sometimes I don't even know what I did wrong) and they don't like me anymore. Or they get annoyed during the periods of time that I cannot function due to severe fatigue and confusion.  I have never had a support system of a partner/helpmate so I have struggled to constantly rebuild a life.  I suffered a serious fall/concussions 3 years ago (also numerous other accidents--they seem to follow you once you have one).  I tried to rehab myself as I am never really been  listened to completely and unfortunately I was living in a place with severe toxic mold (my life circumstances have been difficult for all of the time since the accident and I make extremely erratic and impulsive choices and my income and insurance has been deeply impacted-which further irritates people in my life)   I am still trying to have a life.  On good days I am still very optimistic and try to still have the best life I can but it is very scary.  I am at the point of a pretty small life but I keep trying.  It is embarrassing because I know people look at me at my age and imagine I am somehow a big screw-up--that I had it all and messed it up.  Compassion is hard to find after all of this.  And I still often appear competent and attractive.  If I had a broken arm it would be easier.  I guess I just needed to vent here and hope that is okay.  For all of you caregivers, God Bless you for sticking by the injured person. Just acknowledging that their injury is very real and knowing their challenges is so important.   It is so confusing from the inside of it.  I wish I did have someone but I feel like I would be such a burden to anyone.  But I would love just having someone keep track of when the bills are due and some groceries bought.  And some human touch.  Again, I have many blessings and keep going but it is depressing that this has gone on so long and affected my life so dramatically.  I am so happy that brain trauma is finally getting recognition and hopefully our society is changing to a more understanding and compassionate stance.  It is not a simple thing and I believe it is so misunderstood.  Even by those of us on the "inside".  I constantly want to deny the very real effects and I have lived with them for years now.  (I am 61).  But I am still in here.  thanks for listening.  sorry to go on so long.  Please just love that person and no matter how crazy they might be making you know that you are helping them by just being there.  It is a heroic thing to give up so much for someone who needs you.  And yes, you are probably giving up a lot. I wish I had someone like you in my life that cared enough to stay even when I am so hard to understand. 

Sep 16th, 2015 10:07pm

the brain's way of healing by Norman Doidge is a book that will give hope and cutting edge treatments that help heal or at least improve tbi

Jun 23rd, 2015 7:37pm

Hi in 2013 my husband and I took our 18 month old grandson into our home because his mom wanted to live homeless. My grandson went from house to house living every where but in a safe home. But while living with his mom, he use to throw tanturms all the time when he never got his way. When he did that, he always threw himself down and banged the back of his head on the ground. His mom never took him to the doctor to check is anything was wrong with him. When he moved with us, he hardly could walk, never talked just mumbled or pointed to what he wanted. 11 days later he had a seizure and past away. took 8 months for the autopsy to come back and they said that he died from Diffuse Axonal Injury. What are the chances that my grandson was injured before he came to live with us? and the police called it a Homicide.

May 27th, 2015 12:15am

I was in a horrific car accident in 1988. Broken pelvic bone & exploratory surgery resulting in removal of my gallbladder. My head was hit, slammed against the car door plus the ground when I landed from a 200 feet throw from the vehicle. I was never told I sustained brain injury. It was never addressed in any manner. For years since I suffer severe headaches. I can retain information but its difficult depending on the information. As badly as I hate to admit this there have been outburst of anger that are uncontrollable. After the outburst my brain feels like an electrical storm. It hurts severely. My question is do I have possible signs of brain injury. If so what can I do to relieve the pain & pressure I feel. I've never talked about this to anyone. Thank you. My email is gingerl_taylor@yahoo.com Please contact if you can help

May 15th, 2015 9:40pm

My Family was in a car accident 1992 in Aus , on our way back from a holiday. My Mother was Pregnant with me at the time, my dad was driving and my 2 older brothers were in the back. We were hit head on at 100 km/h by another driving who feel asleep at the wheel. We all survived however My brother 6 at at the time was left the worst off ..

He suffered frontal lob brain injuries and is a T6 paraplegic. He also has seizures, from time to time, and requires medication. My brother is also on anti-depressant to help moods and High Blood pressure medication. After the car accident we also discoved my brothers carry the hemophiliac gene....

This accident has completely changed our families life, my brother requires 24/7 care and assistance. I love him to death but it is hard seeing him that way sometimes and upsets me. But on the flip side he amazes me you know,, how strong he is after everything...His heart is filled with so much love and hes got a great sence of humor <3

sometimes i think to myself what would I do without him....he's shaped me to be the woman I am today and im so thakful for that big brother.

 Since my partner and i have been living with my brother for the past 6 years. To take care of him of a night time when he has no carers... I really do feel that hes come such a long way.. Without everyone in our familys help i dont know how we would have done it .

May 1st, 2015 4:33am

I am 25 years old and and 20 years ago my father fell from his bicycle without wearing  a helmet.

He was in the hospital for 5 months and came out the shell of  person.  He lost the part of his brain for personality.  He has no emotion and remembers nothing but of his childhood.  He lived with my aunt for 20 years and then started getting into trouble for loitering and shoplifting.  Nothing serious but enough for business owners to call the cops.

My sister and I have had him for almost a week now and dealing with him and getting his affairs in orders has been the most difficult tasks of my life.  We are putting him in long term care as he also smokes and attempts to hitch hike.

Some days I don't know how to make it through.

Apr 23rd, 2015 12:31pm

I had a blood clot removed from right side of my brain 29 years ago, I was very lucky and seemed to have recovered without any side effects but at the end of september 2014 I started getting bad pressure sensations on the site of the operation, my right ear also started to feel blocked and warm, it got so bad that i went to the A+ E dept, there they done some tests and decided I needed a C T scan, the C T scan came back clear and they could not find a cause for these strange pressure sensations and this feeling of a blocked right ear.

A few weeks later I went to my GP and told him I still had this pressure on the right side of my head and he sent me for another C T scan, again the scan came back clear. It is now 6 months later and the head pressure and blocked ear sensations are still as bad as ever, I have not been given any explanation as to what is causing this pressure on the site of my brain operation, why have these symptoms started now 29 years after my brain operation, would really like to know if anyone else has experienced anything like this so long after a brain operation. 
 

Mar 20th, 2015 8:02pm

Thanks I enjoyed reading from others. I am recovering but always reminded of deficits of TBI.

Mar 14th, 2015 6:34am

My dad, 52 years old, was hit by a train and has a severe tbi. He was in a coma for two months, but began slowly making progress. He was able to talk in a whisper and move around in his wheelchair. But unfortunately nobody told us that 6 to 9 months after injury, scarring in the brain can cause seizures and many complications. My dad is again unable to talk or do anything. He has now been in this state for about a month, and he is home with hospice care, I never thought a decline like this could happen after he made so much progress. Hope this helps somebody, there is not a lot of information about secondary trauma after severe brain injury.

Mar 10th, 2015 2:44am

My dad was in an accident and suffered a severe TBI. I love coming to this page and being able to read about the brain it gives me hope. This page inspired me to start a blog for him about his recovery and what not. Brianplatts.blogspot.com

Mar 7th, 2015 1:57pm

I am a person who suffers from a TBI, I have headaches sometimes, right side weakness because the gun shot was to the left side of my head. I thank God that I am alive. But it is changeling. I do have memory lost and I have to write things down.

Feb 6th, 2015 2:20pm

I was the victim of a drunk-driving car accident almost 2 years ago. I was 17 years old at the time. The ironic thing about being in this accident was the drunk driver was one of my close friends driving the car intoxicated. He turned in an intersection at the wrong time and the car collided at the exact area where I had been sitting, in the passenger's backseat. I was instantly unconscious, and rushed to the ICU. I had my hair cut due to all the glass that was in my skull. I had bruises and cuts all over my face. The surgeons had did a cat scan on my brain and had came to the assumption that I would need brain surgury. I was then transported to the hospital in the largest city in the state of alabama. (I also had surgury on my broken pelvis). When I got to the bigger, more advanced hospital, they did thier own cat-scan and concluded that brain surgury was not needed. According to the doctors, I suffered a mild TBI but never-the-less, i still have lingering symptoms going on two years later. Some of my shorter term symptoms included: excessive crying, profane behavior, belligerency, short temper, migraines, no humor, and self isolation. Before experiencing these symptoms I dont even remember. I did not come back to conciousness of reality until 12 days after the accident. Within these 12 days following my accident, I did not even know my own mother, the one I have been supported by for 17 years. I did not recognize nobody for that fact. I told my twelve year old sister I would harm her, and I called my mother such things as a stupid ass bitch, ect. I had really hurt people emotionally in this time that is all quite a blur when i think about it. During the time of the accident, I was less than two months away from graduating the 11th grade. I was unable to return to school that year, and my school determined that in order for me to pass the 11th grade, I would have to take it over in the 2013-2014 year. However, my nuero-physocolgist told me this would be unlikely to be successful. so , what am I to do? I am now sueing my ex-close friend's car isurance company, and he's going against me. I dont understand why he would do this- Its not like im sueing him or he would have to pay anything, besides maybe a little bit more on his car insurance. I am having a hard time gathering my thoughts because the depostion for this is next friday, and Im not sure how to make the words sum together and flow properly, to describe my pain and suffering. Can anybody help me? please? It would be greatly appreciated.

Feb 6th, 2015 11:49am

It never ceases to amaze me, how many people are impacted by TBI -- either as survivors or loved ones. We need all the good information we can get - thank you for your work.

Jan 31st, 2015 9:03am

Yes. Crainal scaral therapy. I received this treatment twice a month. I am now able to work and take care of myself. Over the last 10 years since my TBI I have done many things. Kinesiology is a big one.

Jan 18th, 2015 9:36am

i had a bad accident hit a pole an was ejected out the car no seatbelt, my family not anyone can understand i am still in constant pain it affects everything i am at my witts end i only feel relaxed an feel like i can make good progress when taking temazepam has any one else found the same thing or know of something better ???

Jan 4th, 2015 7:59am

Good luck. If you live in Illinois the doctors are hard to find or give meds to make it worse. My fiance was left for dead on the railroad tracks a train came by and hit his head. We are still working on getting the right doctor. Its been 7 years already

Dec 19th, 2014 1:46pm

Hello,my wife is a brain injury. Survivor and still dealing with headaches, discomfort nights and mood swings. Along with other,difficulties. I will continue,to seek help atto seek help for my wife of 21yrs; . Is there an Doc: out there that is willing to help my wife,with treatment,for her Brain issnjury and not just for the mental,effects she's experience. Mr.&Mrs.Sav;shel3168@gmail.com

Dec 13th, 2014 10:00am

Hello everyone! I have a question , I suffered a TBI when I was about 1 to 3yrs of age and when I became about 7 yrs old my parents moved and my parents stopped taking me to the doctor for TBI and I was never allowed to live as a disabled person. Of course I am 40 now and I need my  social security and keep being denied. I live in Texas and have even been told by the Texas DARS that there is no help for people like me. I do have a lawyer that was so hard to get , no one would touch it and they only took my case because I was refered by someone. Does anyone know why this is happening to me or what I can do about it?

Nov 15th, 2014 12:34pm

After a patient makes progress from tbi what can cause the patient to become confused again

Nov 2nd, 2014 9:44pm

My sister n law was in a bad car wreck five years ago causing her to lose thirty percent of her brain they said her brain works like a fish now,but five years later she can now blink her eyes at you she looks around the room an can move her head to answer for yes and no I'm researching to see if there's anything we can do to help her an if she'll ever come out of it,I know she will be in a wheelchair because over the yrs she lost a leg an her other foot is bent in her hands are also bent in but I'm hoping shell be able to talk again one day.

Oct 31st, 2014 1:30pm

Hi my name is Claudia. I was hit by a car March 6 2012 every sense I feel like I'm going crazy. I'm even in mental health. I feel lonely, sad and sometimes suicidal. Could I be suffering from tbi?up till now I have never heard of this.

Oct 31st, 2014 11:42am

I am 30 year old male. I have experienced 2 TBI's. My first one happened back in 2005, the second in October of 2010. I also was diagnosed with Leaukemia when I was 5-12. My first Tbi changed my life forever. I was riding a 4wheeler ( no helmet). I don't remember what or how it happened, my friends came to find me face down and bleeding out of every hole from the neck up. I was in a coma for 16 days and hospitalized for about 3 months including rehab. I had multiple scull fractures, 3 strokes and a number of surgeries. I was told I was going to be a vegetable the rest of my life and probly never walk again, here I am driving, walking and living on my own. Why am I still alive I don't know a strong will to live I guess. My 2nd TBI resulted in me falling and my head bracing the fall right against the pavement. After that the dr told me to stop drinking alcohol in any amount. have lost feeling in my right side, loss of hearing in my left ear, balance issues etc. Going through this I've come to realize that this is going to be a part of my life forever. It is a daily struggle with ups and downs emotionally and physically every day. I have learned to never give up, keep trying and as hard as it is I try to stay happy.

Oct 28th, 2014 3:44pm

My 50 year old little brother suffered a major brain injury over 2 months ago. Part of his brain was removed and he has 2 shunts draining fluid from his brain. He is still in a hospital and can barely talk, still on a feeding tube, eyes going 2 different directions, now on anti depressants, lost 30+ pounds, can't sit up or take care of himself in any way.

When the accident happened we gave my niece, his daughter, the power to make all the decisions since none of the rest of the family had any idea what to do and she was at least in the medical billing business and the other daughter was unemployed.

My nieces have not allowed any visitors since this happened except for close family. I wasn't happy about this but we went along with it since he was so weak and has had 6 brain surgeries. They have not left his side at any point that was allowable to the hospital.

But now he's just laying in his bed with no stimulation. His body is very weak but healthy. The doctors say he looks absolutely fine on paper. He doesn't want to do anything though. 

My question to this group... do you think having visitors is beneficial to his brain? Or do you think the stimulation would be too much?

Oct 18th, 2014 9:43pm

Hi, I have a husband who at age 51 was involved in a car accident.  Dr stated the jar to his head was as if a truck was dropped off a 4 story bldg.  His is an enclosed brain injury.  We were happily married, Jim was my rock, my best friend!  We were married only 12 years when this happened.  We are going on 25 years but I still cry many nights & am so lonely.  He has no sense of humor, no needs/wants for any affections, doesn't comprehend $$,  as for family issues he refuses to deal with my kids, period.  I mourn the man he was, I am not happy with the man he has become?  I stay with him because I remember who he was when we married, I feel angry, so angry at GOD that I have pulled away from our church.  It's harder now as he ages. His grown kids think he is just fine, my kids want me to leave him find happiness again.  My happiness is with grandkids but I miss my man, I miss him every single day~~~

Sep 27th, 2014 2:22am

Please help me .. Is it possible to get TBI if some one is slapped with bare hand?? My one friend is died after 2 days hard struggle, some stranger in road rage slapped him on road rage.. Kindly all give ur views......Thanks

Sep 10th, 2014 11:42am

I got my TBI from not wearing a helmet on a quad/ATV crash on the 4th of July 2013. I got severe brain trauma. I was in a coma for a month. They told my parents "we don't know if she will be OK, will live." Fractured 6 of my ribs, also 8 of my virtabre, put a hole and or hurt my kidney's, liver, pancreas (which I really hate because I'm diabetic and that is the organ that produces insulin, which from being diagnosed with diabetes it does not produce it, I have to inject it into me, in shots), "deflated" a lung, my right one. My voice used to be higher, now I have a deeper voice, I sound like a man. I now, every day several times a day, get very bad headaches, I think there called migraines. I have a very very bad problem with short term memory. Anything around the day I hurt my brain I can't remember right now, I will some day. Which kind of really makes me mad! I don't remember losing my virginty in the 11th month 2012 or ANY sex I've ever had. I used to think I never have, but my ex boyfriend told me he did take it. I appreciate that I'm alive though. My speech was bad, people like my mom would have to say what a lot. I'm going to therapy though. Speech, physical for my balance problems and whatever she thinks I need and cognitive. I really didn't know or mean it, I didn't say the T's in stuff, like tha(T). And sometimes when I say "the", it sounds like "DA." And I have a really bad problem with cursing, way more than before my accident... And there's words NOW that are my favorites. Like AWESOME, I say that way to much, and the F word. And by the way, since my accident, no one has talked to me said "I'm glad you didn't die", I have no friends. Just 1 friend, Tom. And my whole life I was writing with my right hand, but now I'm shaky so I'm a leftie. I view the whole thing as, old heather died that day, but new BETTER heather has been born. I remembered my name, where I live, my home phone number... I guess it wasn't bad enough to make me forget that important stuff. I didn't get retardation. When I walked I'd drag my foot. But there is helping a lot!!!! I know now, that I forget to say the T's, so I repeat myself. Lately people can understand me. And with my WHOLE right side, its bad... My right hip area hurts, the right side of my brain hurts very bad, sometimes my back hurts, upper which is where I fractured my spine. When I crashed I got the worst damage to my right side. Because when I crashed, it flipped over, fell on me, on my right half of my body. I now like and dislike foods. With for example shrimp, love that still. And chocolate milk, I pretty much have to have it in every meal. But some of the foods I liked before I crashed, I don't like: won't eat. And I guess that accident changed me. I've been bisexual since I was about 12 I'm now 19, dated way more men, but now I think I'm a lesbian. And I used to be selfish, took my empathy and didn't care, only cared for myself... But now I care for everyone. Like the guy in my therapy, for some reason has a hard time walking... I feel bad! And my kitty kitter, I spend a lot of time with her. Before, I didn't really care, but now... That's been my cat since I was 5, she is 13 and I know she is gonna pass away soon... So I put her on my lap a lot, and even though she doesn't know what I'm saying, I out loud say "I love you kitter" because before she does unfortunately die, I love her I want her to live a happy life. And the music I like, metal and hard core heavy rock, stayed the same. Same favorite band: avenged sevenfold, WSOU on the radio 89.5 I still listen to A LOT. But what kind of sucks, is the medicine they put me on to help my brain, makes me poop hard, and makes my breath smelly, even after I brush my teeth "heather your breath smells." What did change that is great... Is I now want a job very bad, I dropped out of school when I was 16, so now I (have to) want to get my G.E.D. And my cat kitter, I pet a lot now, where as before I'd ignore her. I used to party to much, so I'd ignore every living thing in my home. What I did, drank and smoked, I have to wait until I'm done with therapy, so I've been sober for a year. And what I hate a lot, is that I literally can never sleep. Just lay down like right now, and go on the internet on my phone, or tell myself I hate how I have to wait... The articles at therapy (the best brain hospital in NJ the state) say TBI people get better around 2 years. Already delt with not sleeping for a year, so another 1 is fine. And something that bothers me from this, is a have not great vision. Always been "perfect seeing" but now I have a really hard time seeing far away. I can read small stuff just fine like on my phone, but say airplanes are blurry. See what I mean? I have to ask my mom a lot "what is that?!" I truly can't see very well... And to do surgery on my head, they shaved half my head, on the right side. D': my brain swelled, they took part of my skull out for a month, which is crazy. I really don't remember feeling any pain. When my brain got hurt, "it shut down, didn't allow yourself to feel any pain, or remember that day" I really don't remember that day... Going to my dad's, getting on his quad, going to Taylor's the day before. There's a lot of after effect's, maybe I'll post again. Heather Ann Smith (:

Aug 30th, 2014 7:24am

I was in a severe end - over - end car crash in 1982: I suffered a broken neck & what the doctor caled severe head trauma. I came to a few days later & recognized my family, but didn't know my own name. I went through the next 5 years or so with no short term memory. I went through a marriage & divorce, but don't remember my wedding day. I toured the nation playng guitar, but don't remember it. But I rebuilt my life, got education / training, & have enjoyed a satisfying 20 year carreer as a tool & die technician. I'm 53 now. I have 4 grown children & 4 beautiful grand kids. however, something is going wrong: I've become so O.C.D. that if I don't have a set schedule / plan laid out, I can't function. I will literally set in a chair or sleep all day when I have a day off work. I struggle with short term memory bad again, I shake, feel like I'm out of balance & walking on an air mattress some times, have headaches, can't sleep through the night..... i am so scared! And with the NFL's awareness to this & seeing these ex players degenterating and dying, i feel like them & MY brain is dying 30 years later. How can I get help? Who can I contact? I don't think my small town family doctor will be able to help.

Aug 24th, 2014 7:38pm

I was in a major car accident in 91 among other injuries I had a 3rd class brain injury and caused injury to ny optic nerve....it's been 23 years and this is the major issue I have progressively gets worse(that and mood stabilization) has anyone else had vision loss due their tbi wondering of if I'll just eventually go blind

Aug 22nd, 2014 2:59pm

hey how are you      i had a brain injury fell down a flight  of stairs into a concrete wall at the bottom...... but anyways i get headaches all the time up until i got botox done i sujest it if u suffer fro migranes like i did and i ate way to many pills  i would eat 1 aleve and 3 advile tylonal a.s.a ect in the morning and befrore i go to bed   and not including how many i ate in between  the dr that was working with me said to think about it i know its a bit heavy on the pockets but easyier on the liver and stuff like that

Aug 21st, 2014 11:49pm

on july 10th 2010 my son was a victim of a brutal attack he was attacked with a claw hammer to his head, which he was left paralysed down his left side, hes now done marvelous and can walk with aid but his left arm has limited movement and left hand has no movement, my son was a mechanic before this happened now hes unemployed he suffers epilepsy an has just come out of hospital with having meningitis due to having a plate fitted on his skull. he's so bright in so many ways but his health now lets him down for any kind of work as he sleeps 16hours a day and has 10-50 mini seizures a day, his mood swing are dreadful i dont know if he wakes up with ocd, adhd or torrets, i cry most days as people tell me about his behavior when he goes out.. i put it down to peoples ignorance of the injury hes sustained because not all of it is visual 

Aug 15th, 2014 10:52pm

This is very informative. It Helps Me Understand My Husband better.

Aug 5th, 2014 2:39pm

To the person that was in a car accident, please don't be upset that you say everything on your mind it's not your fault, you can't help it , you have many people that care for you and will accept you for who you are. ♥️♥️ Much love ❤️

Jul 13th, 2014 7:08am

I was in a car accident at the end of January this year. According to my mom, I was sedated and on a respirator for 2 days. I had multiple brain bleeds from hitting my head on the door window. I don't remember the accident or the next 7 days that I was in the hospital. 6 months later, I've noticed that my personality had changed a lot. I say everything that is on my mind, I get annoyed easily, and it doesn't take much to make me cry. I forget little things a lot and my vision has gotten a bit worse. I wake up every few hours and my sleep walking has gotten worse. But the worse part is the headaches. At first they were all the time but now they are getting fewer and fewer. Hopefully soon I will get used to everything so it will seem normal.

Jul 10th, 2014 9:45pm

my son was 17 when he was stabbed he suffered anoxic brain injury was in a coma for 3 weeks then got his ĺast rites but somehow he pulled through my heart was broken having to get used to a different person that was so hard one i didnt recognise memories of my son before brain injury were fading.my son suffered another attack which left him with tbi e has been through so much but still standing strong he suffers all the things that comes with brain injury.i havnt come to terms or accepted yet what has happened to my son dont no if i ever will. we hav good facilities here in scotland. its stilĺ earĺy days but i believe my son was brought back for a reason it helps me to carry on fighting and i will never give up hope without hope there is nothing

Jul 7th, 2014 6:51pm

Hello everyone... I'm Nathaniel... My car crash happened on Labor Day '98. I look normal. You would never know if you didn't know. You would never know anything was wrong unless I became tired, or hungry. Then I become snappy! Well, more so than normal. If I'm tired, remind me to sleep. If I look hungry, remind me to eat. I was the only Survivor out of the 4 occupants of the Crown Vic. I was in Coma for a month and woke up bed ridden not knowing how to read, write, tie my shoes or brush my teeth. It was a pretty Gnarly situation. 16 years later I feel like I'm finally back in control.. Still living with Mom& Pop, but back in control.

Jul 4th, 2014 1:20am

My brother got thrown out of the back of a pick up truck when the driver slammed on the breaks. He was one of the first to survive the brain surgery  and the doctor told us to be careful of what you wish for . I thought the doc was a jerk but he was right . This accident ruined all our lives. My brother is still super smart could write a book if he had the memory . He is off and annoying has OCD but  the real problem is he has no where to go that he is accepted.  His doctors seem to want to get him out of the office just as fast as the rest of us don't want to deal with him. Now 22 years after his accident and Mom and all of the siblings are getting to old too take care of the crazy one. Where do you go?  Head injury is not a mental illness . 

Jun 30th, 2014 11:03pm

There is  help there is a way of help but can't write about it as on this site

Jun 28th, 2014 9:52am

am 33 years old when i was 8 i was ran over takin to alder hey them to walton hosp put on life support i pulled thow but my mum n dad was told the worst but i was allright i could still talk walk but have fits n my head bangs mum n dad say i am two people 1 min i am lovely the next i am a cow i do find every day life hard but i have been with my boyfrind for 17 years dont no how  he puts up with me  i also have a son in a wheelchir who is 14 years old cant walk has celebpasly but i have looked after him never had help of any 1 n dont need help with him he helped me i lot made me who i am

Jun 24th, 2014 3:47pm

I was electrocuted 2yrs. ago and suffering from TBI from the fall and hitting my head. My whole life has changed for the worst. I'm currently on workmens comp. I see workmen comp. doctors and they make me feel like I should be OK! They have also said I have PTSD I'm trying to get thru this. I think if you are suffering from any of this you need to get to a support group I can't be around a lot of people so I have to becareful of my surroundings at all times. I'm moody ,I have bad headaches ,I have found I don't like or trust people anymore,but I try each day its a new effort to just get out of bed. My sleep is almost non existing but I keep trying. Don't give up, Don't give up. There is life after TBI and PTSD its just a different life then your use too. God bless you. Dwayne from Phoenix Arizona .

Jun 16th, 2014 1:28pm

I was in a car accident 3+ yrs ago and sustained a mild TBI. Since then, I lost my job and am now disabled and still hoping symptoms (mostly headaches and anxiety) will go away. "They" say 3-5 yrs, like it's nothing but my life will never be the same. I'm one of the lucky ones they tell me. I agree with you-there needs to be more support out there. No one is even talking about it and there's no cure. Just wait and hope. Bless you for hanging in there. My moods and crazy behaviour did improve after about a yr and a half. I had a good support system of family and I made sure I made all the appointments: physical, occupational and speech therapy. I'm not sure how much it did for me but getting myself out of the house and continuing to move was helpful. Hang in there. Praying for you all. Laura Hanlin.laura@yahoo.com

Jun 10th, 2014 4:34pm

My fiance has had 3 different incidences in which he suffered a concussion, and an automobile accident that resulted in a really bad (Traumatic Brain Injury) TBI....fast forward 25 years. Before we got together he has been misdiagnosed by professionals in several areas of his health, especially by a psychiatric Dr. This psych Dr. totally disregarded his TBI not to mention the psuedo bulbar affect (PBA) he suffers as a result of the TBI; (if u don't know what PBA is, please look it up...it has a huge bearing on the TBI sufferer and their loved ones). As u can probably surmise from the above info/statements, I have completed much research about TBI's because I had a pretty good feeling that his symptoms/reactions/behaviors were so drastic, sporadic, and inconsistent, that there had to be something physiological going on. And of course there was. My problem is that I can't get him to discuss things with his Dr. In order to get the proper help WE need. And he has this feeling of impending doom-hence he worries about how he will decline mentally, with age. Nothing I say can convince him that I will be here, and would never allow them to put him in an institution, or mistreat him...does anyone know about TBI's impact on the aging process?? Please share your experiences/info with us on this site if so... Thanks to all who have joined this conversation..Zana and Kevin.

Jun 10th, 2014 12:39pm

My husband had a TBI earlier this year. He has improved tremendously physically. After seeing him trying to feed himself and walk by himself i thought we were home free. Thanking God everyday things could have been worse. But, he is having anger problems, paranoia and obsessiveness. For some reason, he is so scared of losing me that he thinks i am going to leave him. He accuses me of other men. I love this man with all my heart and have no plans to leave him but it has gotten so bad that i have had to get medication to help me not have a mental breakdown. i can not convince him that he needs help. he is already on an antidepressant and does not want to take any more meds. we get in arguments from the accusations and it is very hard for me to work due to the phone calls and emails accusing me of such things. Like so many of the other caregivers on this site and  others that i have been searching, there is no warning for the caregivers and no help in my small town. All i do is pray each day for healing for him and patience for me. i feel we will survive.   It would be wonderful if the hospitals and doctors would give handouts  or some kind of warning to patients and their care givers that have had head injuries that our lives have changed forever as we knew it.  I would also love to know if anyone else is going through this particular problem. God bless everyone.

Jun 9th, 2014 12:01pm

I was in a car accident 2 years ago.. I was diagnosed with short term memory loss... I'm now taking retalin to help me focused... I kinda works! Before the accident I knew everyone's telephone number now I can't even remember the first 3 digits.. :-/

Jun 3rd, 2014 7:10pm

My boyfriend was involved in a fight and suffered a TBI in May 2013. Since then it has been an uphill battle. He has recovered quite well, but suffers from depression, anger and is very emotional (crying, yelling, physical at times). He went back to work so he has really tried to acclimate back to regular life, and we live together, which is VERY stressful sometimes. He has a major meltdown about once or twice a month, so bad to where I wonder if I can do it any longer? But then I think back to when he was in the hospital and I just knew I couldn't love anyone more than I love him. I know its selfish, but sometimes I just want out because it gets so crazy and hard, I know that probably makes me an awful person. Its nice to read other stories of the significant others going through the same things.

Jun 3rd, 2014 9:44am

I was hit on side of car by an semi-truck in an intersection.  While it was at a very low speed, it was a quick jolt: he was taking a right and didn't see me in intersection in front of him.  This was 4 years ago, and I am realizing that the effects of this accident is still unraveling as I get older and time progresses.  Since the accident, I have right sided weakness, get the burning, tingling sensations, chronic pain.  I've learned to deal with it, prior to my accident I was above average 'fit' for my age.  To help cope, I still exercise, but still learning where to slow down due to pain.  What is new, or I feel is progressing, is this feeling of confusion (like first few months after accident) that at times I find it hard to articulate what my mind wants to say!  I believe it may be what I read as aphasia.  I plan to see a neurologist, but I work in an industry where I fear that (regardless of HIPPA laws) any perception of my health, or future medical issues will be certainly a part of evaluating my 'asset/liability' to the company and it's culture.  At any rate, I sincerely wish the best for you all.  If you were recently in an accident, know that years later you may still be dealing with the repurcusions.  Sadly, I was hit by a very well established food distributor that had deep pockets, so even though it was 'his' fault, I did not have a strong enough case to any law firm to take my case because the 'damages to my body' didn't warrant a firm to want to represent me.

Jun 3rd, 2014 5:48am

My boyfriend of 4 years recently ( in the last 4 months) had an scooter Accident and received skull fractures and tbi . He is very angry and does like to be touched and can't sleep is this normal , especialy the touching part? Thank everyone for sharing .

May 27th, 2014 4:17pm

I am the sister of a brother thats father tried to kill us both, me @6mths old by chocking and my brother at two was thrown into a brick wall... Ultimalty suffering a brain anurisum and still today as a result has a plate in his head the size of my fist... I've wondered since my brother was in purberty as a result of chages in the adolecient chages.. Is this why he seemed to have almost over night turn from a A student & city champs hockey player as well as 1st place track and filed runner... To a criminal, starting with dealing pot to major outburst if violance over the years.. He today is now a instatutionlized criminal of all I'm not sure of as the pain watching him change so drastically has put a major strain on out relationship and is mote estranged now.... I have always not had words but intutivly thought this major change in behavior was a result of the injuries as a small child?

May 27th, 2014 12:45pm

I have been married 12 years, and my husband has had a severe brain injury for six of those years. The last few years of our marriage has been really hard. He is aged 58 years and is starting to experience noticeable cognitive decline.  He has a good heart, but I don't know if I can stay married to him. 

May 26th, 2014 12:57pm

Thanks for TBI sufferers stories it helps to know I am not the only one struggling with weird issues I have suffered multiple hard knocks over my life mostly in childhood and while most only produced the average symptoms I fear that I can never know all the ways the I've been affected since my major incident occurred when I was two and a half years old and I have been lied to as the extent of my injuries by my mom here's what I know for sure I was hit with a bat in the face and lost multiple teeth ,broken nose and enough facial fractures to have my jaw wired shut. I don't remember the accident but I do remember wanting to scream and being unable. I have suffered from headaches insomnia light sensitivity, outbursts of anger and I don't register pain the same as others I won't feel any minor wounds and often burn myself because it takes longer for me to get a pain signal so I had to learn as a child to do a visual check when I fell , yet I still get aches from bruises weird I know. I also have nerve issues where it feels like I have bugs crawling under my skin on part of my face when it gets really bad it makes the muscles tick and twitch this as reduced in frequency over the years but it still happens and the thing I have ever found that helps is forcing a new sensation to the affected nerves ( I slap my nose cheek or forehead progressively harder until it tricks the nerves). I also wonder if I have a optical issue since at times the world shifts to technicolor and seems lit from within. I have almost perfect vision and hearing according to docs and my memory is the envy of everyone I'm close to so its unlikely that was affected long term and in terms of appearance I have been told over & over by people that they would have never guessed that my face had been smashed. Hope that helps

May 23rd, 2014 5:19am

Thank you for this post. I have been seeking answers for my 17 yr old son, who had a malformation removed last year. He had started having partial complex seizures, headaches and memory loss. Thank God he had the best neurosurgeons and neurologists around. It was terrifying for him and the whole family. He was only 15 when the seizures started to become obvious. They had been subtle before, apparently, and I always suspected something but didn't know that seizures weren't just the grand mal ones. He was already acting more angry and I thought it was just hormones. After a successful craniotomy and resection he was seizure free. But, now he still has short term memory loss, depression, and has a hard time controlling his temper. He tells me he wants to, but doesn't know how. I've put him in counseling and would love if there was a support group of some kind in our area. I want to help him, but I feel helpless. I feel like he's given up on himself. From an A and B student, to failing grades . He's a good kid, doesn't hang out with the wrong crowds, and won't even say a cuss word. He believes in God with all his heart, and fills that he doesn't "fit" in with the rest of his peers. Reading some of this feedback has certainly let me know that we are not alone. I believe that God will continue in my son the good work He has started. :-)

May 23rd, 2014 3:55am

God bless you all. It takes strength to acknowlege and express how your TBI's have and continue to affect your lives I admire every one of you. I pray for you to get your individual needs met. Please don't give up. This world needs you all. Thank you SO much for sharing your triumpfs and difficulties. It makes me appreciate my blessings. I wish you all the best and once again that your needs are all met.

May 21st, 2014 1:13am

An SUV hit me in 2013, which is I got my TBI. I'm expected to make a full recovery, which is more than great. I definitely count my blessings, but it gets frustrating when I try to sleep at night and my back hurts, or it gets difficult to breath. Sleeping in the basement seems to the trick for now, but I feel like the doctors, etc isn't taking me seriously. I've gone to specialist after specialist and had scans done, and nobody has an explanation or a remedy for why it's so difficult for me to sleep or lie on certain surfaces.
 

May 4th, 2014 6:13pm

I hit my head on a pole and my symptoms are weird. The main thing is I'm tired of feeling tired and weak plus the headaches I have burn and I have bad muscle twitches. I've hit my head before and only had bad headaches but this one feels different like the nerves are shot. My symptoms are unexplainable at times and confusing. Ive been depress because of the injury but I'm hoping there's suck thing I can be on meds for bad nerves?

Apr 23rd, 2014 11:25pm

I'm 14years old and i suffered a tbi after i was in a car wreck on a school field trip and our vehicle rolled. And i was ok but now it feels like im losing my mind im just scared

Apr 23rd, 2014 2:20pm

My boyfriend was on a fight and due to the fight he now has almost half of his skull gone because of swelling. He is also completely blind from them swelling pushing on his optic nerve. I have been researching but haven't come up with too much. I am wondering if the swelling goes down can the optic nerve be un pinched and he regain his sight? He's such a wonderful person to have to go through such a horrible thing. I want to b able to tell him he will be able to see again it breaks my heart to look at him and talk to him. Then him not even being able to see me. :(

Apr 19th, 2014 4:09am

My brother has a TBI. He got hit by a car when he was 12 riding his bike. I was the only one who saw him get hit. He flyn 50 feet in the air and landed on his head with no Hemet on. Don't know if the helmet would of helped. anyway that was 23years ago about 10years ago I started taking care of him. I love him he is so smart he can walk talk everything his main issue is his temper and outburies. His doctor said he should be admitted to change his medication to help with his outburst. Now hospital has committed him and completed sedated him he is so sedated he can't even write me a letter I begged the judge not to commit him and let him go home but he wouldn't I feel helpless. This is the worst place for my brother its a state inst. all he does is walk up and down the halls all day. I want him home ASAP. They are destroying my brother

Apr 14th, 2014 1:22pm

I have a "moderate Traumatic Brain Injury" resulting from a triple rollover car accident in 2003. I was not diagnosed until 2007 after I lost my job as a university professor. I also had PTSD from finding my husband after he killed himself with a shotgun six months after my accident. I have had nearly every symptom that can come from TBI including vision problems, anger, acquired dyslexia, losing time, memory issues, sensitivity to light and noise, neuropathy, incontinence, confusion and massive depression as well as many others. It has taken me ten years to understand how impaired I have become. Often you are not aware of many issues that arise. I have retained my basic intelligence and learning but I have serious problems learning new things such as running a cash register.  I have lost every job that I had since I left the University because of the TBI. People were disdainful to me, they did not believe me and they thought that I was erratic, irresponsible and stupid.  Old friends and fellow professors avoid me sometimes. I have had problems with anger, confusion, obsession, and paranoia. I was lucky enough to receive a regimen of medications which has really helped with many of the effects of the damage. It has been a very hard road for me, my income shrunk 95% in the year after I was dismissed from my teaching position. I have to check my work over and over for errors and tasks take a lot longer to complete. It is very hard to have any self-esteem when you work as a clerk in a pet store and cannot run the register, then people treat you badly and avoid you because you are different.  I have learned a lot and have a great deal of empathy for other sufferers of TBI as well as other mental health and cognitive disorders. Vocational Rehabilitation was a very helpful resource for me and I highly recommend it.

Apr 12th, 2014 2:52pm

I am the caregiver of what was to be my husband exactly two months after his TBI. Thomas fell down the stairs at our home falling 18 stairs to a concrete slab with hardwood flooring striking his head on the newel post and crushing the left side of his skull in being unconscious immediately. With this long out, he cannot walk, talk, eat or care for himself and I am grateful to still have him. He is my life, my love and my joy. There are no resources or facilities in our area to help him. The home health agency says that I take such great care of him that there is no need for them to come to assist me with any help except for physical therapy two times a week. He is not to a place that anyone would accept him to a rehab so I do it at our home. There is a lot of sleep for him and tears for me, I miss what we had but I am blessed with what I have. He had no health issues before this and I am grateful for that and I think that is what makes this so painful/stressful. I wish he could tell me in some way if he is hurting, hungry anything!

Mar 31st, 2014 9:42am

In 1991 I was nearly killed by friends of mine in a candy store. One took a shoot at me with a 45caliber, while the other hit me with a bat. People stood around watching as this went on. I have a great issue trusting people over this and i am down on myself for the way I look now. Prior to this accident I was a handsome well like person with many friends now i have know one but my wife and child.

May everyone feel better for tbi is not a joke karma is a bitch.

Mar 27th, 2014 11:18am

I'm always suffering from headache and whenever I go out. I can't see directly to a place because of the sun. It makes my head more in pain. I don't know why.

Mar 16th, 2014 11:28pm

I am trying desperately to love my husband suffering the vicious aftermath of multiple TBIs. I love him so much and he scares himself but will not admit it. I am becoming afraid for my physical safety.

Mar 2nd, 2014 6:23pm

My husband has a TBI. There is no help in our area, the are not enough counslers to help long term suffers and regular counslers won't wnev see him. He suffers daily. It's been 26 years for him and he will be 50 years old soon. Issues get worse for him every day. No one cares. No one understands.

Mar 1st, 2014 8:32pm

I am sitting in my bathroom wondering if I can fix this problem with my brain swelling all the time creating seizures and ton of other problems in my life.. Along wth the tremendous pain it brings me it also has brought me alot of emotional problems including relationship issues for both me and my partner whom tries so hard to care for me and be loving and attetive as he can. It is extremly hard on our relationship and I want so badly to fix this, I just dont know what else to do any more I know that I am not crazy and I feel like I am losing my mind. Finding this site has helped me to see that cutting into my own head hoping that this will ix the issue has helped me tremendously so I want t Thank all of you for your honesty and comments they have really helped.

Feb 3rd, 2014 9:51am

Thank you all for sharing your stories. I had a TBI February 2013 in a snowtubing accident where I slammed into a tree and cracked my skull. Had emergency surgery just hours after that happened. As I dont remember anything from the accident or a few days after I can say with approaching a 1 year anniversary as a TBI survivor with as grateful & lucky I am to be alive I feel no one will truly understand what it is like mentally to understand what has happened. We all are lucky to be alive.. we truly are but I can say I never will remember how I looked at life before my accident since life has changed drastically. To strength & to those affected DO NOT give up no matter the moment & feeling.

Jan 23rd, 2014 9:35pm

Michael, 55 yr old. I complained for years about my vision. It was hard to describe, not near or fare sited. On and off trouble, some times like a film, or almost tunnel like. Could see detail great at times, other times none at all. My OT suggested I had a common eye disorder going on after a TBI. I was refereed to a specialist in the field, not a normal eye dr.They do a lot of testing way different then an eye exam. One thing they measure is your eye movement and if they are working together or against one another.  My movement was all over the chart. Found I have peripheral and depth perception issues also. I am now under going an eye therapy program, which I have high hopes for. It was nice to get an explanation and to see all my test results on paper. It showed there is one less thing I was dreaming up and would not just go away. They are a huge help and treat a lot of TBI pt. Feel free to email me with any questions. cherylschaub@ymail.com

Dec 28th, 2013 3:14am

I had TBI work accident 20 years ago.  Was in hospital almost two years, losing my speech, balance, memory and my ability to think.  Was like being born again, physically and had to learn everything again, at the age 28 to 30!

Got married age 34 and have two sons aged 13 & 10. Been basically paralyzed on my right side, use my left hand for everything, dressing, eating, even driving the car!!  Yes I drive an automatic car using my left hand to steer and my left foot to accelerate and brake!  Though I still cannot walk unassisted, walk holding a four legged frame.  I can talk now ok, though singing I have lost tone and cannot go high, sing baritone- I'm male!

My memory for the very past is vague, though recent is good and my understanding has returned.   

God is good and we know in eternity life will be perfect "for the former things have passed away" and there will be no more pain.  John 3; 16 "For God so loved the world that he gave his one and only son, that whosoever believes in Him shall not perish, but receive everlasting life." 

Nov 28th, 2013 3:52am

i sufferd tbi when i was hit by drunk driver 1979 my hubby taks care of me now on september of this year he was hit riding his mopad and we belive he has tbi and im worried he will not be able to care for me and how will i take care of him we notesed changes in memory and he gets upset more easley. we have no insurance he cant work and i dont know what we are going to do i love my hubby we ben married 35 years no one cares or wants to healp juist through stones at us so to speek

Oct 28th, 2013 10:44pm

what a blessing was to come across this info. I am 58 and had a TBI 10 yrs ago. since I was unaware of what happened in the hospital I did learn that my mom chose not to put me into the TBI rehabilitation Ctr. because she didn't want to drive 15 min. to the facility everyday. Now 10 yrs later I can no longer deal with the rejection of family and friends and not being able to live up to everyone's expectations. I am looking for a rehab facility I can go to before my daughter graduates and has plans to get married. she has bn my caregiver since she was 11 with no help from her older sister or brother as they were married and had families. we briefly went to TBI family support group with my ex husband Lindsey's father. that was 10 yrs.ago. the doctors never found out what caused me to continually black out and wind up in the hospital in ICU. finally I asked my doctor to refer me to Shands where they never discovered what made me black out so much but the neurologist prescribed a new med and I haven't blacked since 2010. it was good for me to read how others with TBI have experienced rejection, frustration, and agitation from friends and family because I could not live up to there expectations. I pray I will be accepted in a rehab facility since it's bn 10 yrs. I trust that God will make a way. <3

Oct 27th, 2013 3:10pm

My dad was about to turn 88, a healthy man, lived on his own and was driving back from getting groceries when a bat out of hell lady came out of a driveway and pushed him into the ditch. His air bags exploded and he was knocked unconscious. Went to emergency and released many hours later. No one noticed at the time but after that accident he did not know any of us in his family. He didn't remember raising us or what it was like being the great loved father he was in our family. A few months after the accident I brought him to live with me and have tried to help him in all natural ways to get better. He is 90 now and still takes his walks and goes up and down really tall stairs for exercise. I look up info on the web for whatever his blood work results say he is off in. Low thyroid, low hemoglobin, etc, and try to give him foods that help in those areas. Just got a juicer and now making thyroid tonics from fresh veggies and fruits. Trying to keep his ph balanced and inflammation down. He takes no medications at all and just eats good and drinks green tea and juices, aloe vera and natural calm. His memory is interesting and I observe how sometimes he remembers what happened yesterday and a week ago and few times when he seems tired, he can't remember an hour ago. He sleeps as long as he wants at night (around 12 hours) and naps all day, if there's nothing else to do. His Dr at the VA wants to get him on thyroid meds for energy, but he doesn't really want any energy at his age. He moves a little slowly but hardly ever has stumbles or falls. His thinking and reasoning is way off from the highly intelligent dad I remember, but I want him to exercise his brain by reading, which he refuses to do. I wish there were brain exercises for elderly people to flex their mental abilities. God has been good to us, kept him alive through WWII, which are the memories he has that are as fresh as yesterday. He still can't believe he is as old as he is. I think, in the accident he lost the part of his memory right after the war. But when I jog his memory about certain things, sometimes he does remember, if I keep on bringing up descriptions of events or objects to see if it triggers something, it DOES help. Also green tea helps! Thank you for all your information!

Oct 19th, 2013 11:08pm

Hi Michael. I am a 55 yr old assault victim. 3 blows to the base of my skull ( brass knuckles in his possession upon arrest). I suffered a cerebral contusion 10.05.2013. I thank God for this site > informative and comforting, I don't feel so alone. Depression just hit me a few days ago. Prior to that, I'd see something sad, but would encounter a delay in crying 7-8 hrs later? Wow! I zone out, without notice, always feel dazed and tired. No agression, just agitated because loved ones expect "the norm." Vision issues as well. My Doc says time. I hope she's right. Thx again for this informative article & site.

Oct 18th, 2013 9:06pm

hi rob here had brain injury 35 years ago I get withdrawn and suffer bad depression worst thing for me is people don't understand and that include's family and friends they think I'm looking for attention god has been my friend through the lonely years and saved my life god bless all

Oct 10th, 2013 8:12pm

Hi I am 22 years, old and my 25 year old brother (now 26) was hit by a speeding cab in February 2012 and suffers from a severe TBI. Over a year later he is onto his 4th hospital, has said a few words, but is still unable to really talk, walk or eat on his own. He has always been able to recognize his family, for example if we say point to Katie he will, or if I write a date he will point to me knowing it's my birthday. But he keeps getting seizures, which I know he will be prone to the rest of his life. The seizures keep setting him back, he'll take weeks to recover and each time he looses all the progress he has made. If anyone has some insight, experience, support, please email me at oconnork10@mail.montclair.edu My brother is my best friend in the world and I am trying to help him in any way possible.

May 7th, 2013 11:18am

My 12 year old son had a severe TBI, the day before school ended in 2012. He was hit in the head when he was up at bat. We were told if he didn't have his helmet he wouldn't be with us today. We are going on 10 months now and he has short term memory loss, unable to understand sentences that he never had a problem with. He has constant eye pressure and headaches. He was such a popular boy and now none of his friends are around for him any more. It is so hard to see him so depressed, frustrated. It would be great if there were support groups for my son as well as for parents.

Apr 7th, 2013 7:38pm

i was 3 when my first brain injury happened i was bit on the head by a pitbull/rotrieler and i was coherant the whole time but his teeth did puncture my brain plus an artury in my neck i had a drain tube in my head for two weeks...then when i was thirteen i jumped a BMX bike and my head was the first thing the slammed into the ground and it slammed into the only rock in the landing i felt woozy but coherant the whole time but after that i changed my personality my anger everything its gotten alot better but i am currently trying to work on patience and listening skills im trying to look pass all the lies ive told be the a honest person bby accepting whats happend to me and yea im slowwer then others butim no weaker and i knw i can conquer anything i put my mind to well atleast try

Mar 21st, 2013 5:06am

My son was in a MVA a week before his 18th birthday. He went over a bridge about 15 ft high. He was ejected through the window and layed in cold running creek water on a cold night in March of 2009 with our pickup truck on top of him. He layed that way for 2 hrs before he was found. He shattered his neck tore alot of scalp off. He know has c4-c7 cervical fusion and is in constant pain. I was told if he lived that he would be a quad on a ventilator. He is not due to the cold water keeping the swelling down. He did in exchange almost die of hypothermia. He said he only felt cold water on the back of his head (was paralyzed from neck down). He eventually got everything back. Still has neuropathy in his hands. he was never mentally the same and one day told me he time travels to another world with"them" and they left him and he just wants to come home. He was sitting at my kitchen table at the time. Had periods of delusions and was hospitalized twice. last time he got aggressive.. He is like a stranger in my house. Has short term memory problems, organizational issues, age regresses when I have to correct as I would a 5yr old (he's 22)and acts and talks inappropriately. My daughter is now 19 and she "misses her brother". She told me she disowns him. Can't get past the acceptance stage. I need to get him help and don't know where to turn. He spends every day in the house and has no friends anymore. Was a very popular kid who every one loved to be around. He is depressed and has no motivation to do anything. He sees evryone else carrying on with life and he's going nowhere. He should be graduating College yhis May. I want him to not feel inferior and do something with his life...even if it's just to volunteer. He is on Social Security and has no concept of money. He can never lve on his own and I worry what will happen when we aren't here anymore. He isn't stupid ..just has processing problems. Thinking some kind of cognitive therapy is in order

Feb 17th, 2013 8:51pm

My 85 year old husband fell down our steps. He was on blood thinners and his entire brain was covered in blood. The hospital told me that he would not survive. This happened on 11/24/2012 he has been in six acute centers and is slowly getting better. He is scheduled to go to a sub-acute but he is in a stage where he is confused and gets very angry. He has slapped PT and nurses. Before he was gentle and had never laid a hand on a woman.will this stop as his brain heals more or is there any way to deal with it. The neurologist said that his brain should be healed in 6 months and she expects a total recovery. I just don\'t know how to help him now.

Feb 12th, 2013 12:56am

I was 3 when my birth mother threw me into a protruded corner of her apartment, which split my head open above my eyebrow, I am now 32 and have fire running down the left side of my face, my scar (which is a hole in my head covered with skin) is always sore, and I wake wth blood on my pillow and often when coming out of the shower I seee blood running out of my nose. I have intense pressure in my left had side of my skull the side the injury almost 3 decades ago happened. No doctor can explain or takes the time to help me with this. Would a neurologist me able to tell me whether there is further injuries happening because of the growth from the injury happening? I am so unsure of what or where to go for help. I have had an MRI to see if there were any tumors, but no. I am slowly forgetting things too, I am extremely educated, and have a demanding job, but my concentration is everywhere else.

Feb 6th, 2013 6:02pm

I am new to this, my husband suffered a serious TBI during a motorcycle accident this last summer, while the doctors said we shouldn't be concerned with long-term brain injury, I suspect they were more concerned with motor-skills and not the personality changes which cannot be seen on a CT scan or x-ray. Why do doctors not discuss this? Why do I feel like I am doing my own research where there are so many with this issue? Thanks for listening, even for just a moment.

Jan 5th, 2013 2:52am

Neurofeedback can have a substantial impact for those with TBI. Check out EEGinfo.

Dec 2nd, 2012 10:07pm

I was hit by a car in 1961 and was told by my doctor that I wasn't going to remember my parents at the time. Then during my school years I had such a difficult time with school work that I would try so hard to memorize every word just so I would pass my test. Even now it's very hard to get out into words what I want to say. I have always used my looks to get where I needed to be . Now I'm realizing that maybe this is all due to my head injury . I have a difficult time staying focus. Can't remember what I have read most of time, can't carry conversations with groups of people, never received my high school diploma . I tried to take a GED test and failed. I did see a neurologist and was tested, did have low test scores. There was no follow ups due to no coverage. That was six years ago. I have been reading up on TBI , wow! I never really gave this a thought. I always thought maybe I did have a learning disability...and yes it can happen. My thinking is very different that's for sure. Now that I'm getting older I'm noticing cognitive problems, memory, can't get words out right, It's hard now a days to get help. So now I'm thinging on applying for disability and that I have to prove to them That I have TBI . That maybe difficult.

Nov 13th, 2012 6:29pm

I am going through a TBI now with my fiancee. On October 12, 2012 he fell down 16 steps at our home and has had 2 surgeries the first 12 hours for bleeding on the brain. I am researching anything I can find on this horrific accident. He has only squeezed my hand a couple of times and the nurse once on command. He can move his left side, when he wants to, does move his right arm, leg and toes. He yawns, stretches and has been removed from the vent only has a teach. I have not left him and do not plan on doing so and I keep talking to him. Can anyone give me a time frame on this? I am not sorry, I miss him.

Nov 1st, 2012 10:59am

My wife and I was shopping at Costco's when 4 washing machines fell 2 of which fell from around 30 feet from the highest wrecking, where 8 washing machines was stacked and overhanging. She was hit by the falling machines and thrown 10 feet away out of my arms with blood coming out of her mouth, I thought that was the end of my life, I ran to comfort her but she had no reactions for a short time and finally open her eyes but could not say nothing. She fractured 3 vertebrae’s and bruises to her head and chest. I believe that she has TBI but the defendant’s expert witnesses say that she has dementia rather than the cause of the accident. The NHS failed to recognise that my wife had received a brain injury even though she had bruises to her head. http://www.youtube.com/watch?v=P3E9tHSfFH0&feature=plcp My wife was not offered any rehabilitation in 2003 at the time of the accident, she was offered rehab in 2006, by then I did not trust the NHS any longer to put my wife in their hands. Till today my wife still has not received her compensation for her injuries and the cost of surviving in society. It is disgraceful that consultants and expert witnesses work in the interests of insurance companies, and may I add corrupt legal and judicial system protects the huge corporations that run our society. Pleading to our MP Andy Love to resolve our problems releasing my wives compensation to survive. http://www.enfieldpeople.co.uk/discussions/rare-Local-MP-help-believe-constituent-MP-Andy/discussion-10294889-detail/discussion.html

Oct 16th, 2012 1:50am

Was just doing research on concussions and found this. My daughter was an athlete and had numerous concussions during her college career. After one last hit her senior, she was sent to a specialist and he stopped her from playing. She had already suffered considerable damage. It is 12 years later and she has constant problems - headaches, not thinking clearly, etc. She recently had mutiple stresses in her life and went into deep depression. She is now in therapy for the depression and in rehab for the TBI's she received. She has been successful but her job now is at risk as she has not been able to return 100% to her job. I am frightened as to what her future holds - does it ever get better or is this going to be something that will continually get worse. She is in her early 30's and has so much life to lead.

Aug 30th, 2012 6:01pm

In 1979 I was shot through the frontal part of my head by a 22 pistol. I was in the hospital for a while. Now at 42 I am dealing with issues along with nerves not being numb anymore. I try my best at dealing with them but could use some help.

Aug 5th, 2012 4:51pm

My son who is now 21 had an accident on a quad this past october and was left with t.b.i., broken back and neck, unable to speak or walk. I don't know where to go for guidance or help. If anyone can guide me or send me info on anything please contact me at minniesosa100@aol.com God Bless!

Jul 13th, 2012 12:09pm

when I was a young teenager,i remember not feeling well,next thing I knew,I could not recognize objects around,I found it extremely stressful not being able to put a name to objects and what there purpose was,within a few hours, my condition returned to normal,to this day I don't know what caused it,virus?

Jan 6th, 2012 4:38pm

I fell down the steps of my mother\'s basement when going after her cat. I fell on my right side and bruised the left side of my brain from the impact. I stayed in the hospital for 50 days and am now home learning how to live again. I have long and short term memory loss. I recognize people I have known all my life but I have to ask their name. My family has to repeat everything over and over. Some of it sticks with me but most of it does not. Even though I recognize objects and people, I cannot always call them by name which is frustrating. I get my words mixed up. I am in pain with daily headaches, dizziness, gait and confusion. I know who I used to be and feel like I am trapped inside of someone else\'s body as my head feels like it is sitting next to me instead of sitting on my neck. I am thankful to God and feel I have some sort of purpose but cannot imagine what it could be at this moment in my life as I do not feel like doing anything. My wife is typing this for me as there is no way I could begin to pick out the correct keys to type this. I hope one day I will be able to come back to this page with a better story but at this time, I am going through alot. Good luck to all suffering with this. Thanks to my family as I feel like I have a great support system which is the reason I am doing so well.

Sep 13th, 2011 12:53am

i had a tbi from an accident in 08. this past july i had surgery for a tumor in my right parietal lobe. i have had extensive theerapy these 3 years, and want to know if this tumor is relevant to the tbi. it was not discovered until 3/08 and the craniotomy showed a bloody mass when removed???? no cancer in the pathology, thank god.

Aug 10th, 2011 1:33pm

I had a TBI in 1997 after being hit by a car. Thank god I am not paralyzed. five brain cells died.I lost about forty percent use of my right side because the injury was on the left side of the brain. I cannot recognize a quarter if it was put into my hand if i did not look at it. I get dizzy when standing at times. I still drive a car with no problem, but I had to give up my job as a bread delivery driver. I still can lift my younger grand children up. I visit a neurologist every four months. I read about new ways to get brain cells back, but they are not realistic. Life still goes on and I enjoy it, especially when I see how close I came to being fully impaired.

Apr 19th, 2011 11:15am

thank you for helping me i was learning about it and this helped alot thank you

Jan 31st, 2011 1:23pm

My husband went into sudden cardiac arrest one night. I did CPR for 20 minutes before EMS showed up. He later had a heart attack while being wheeled into the emergency room....He has no reccolection of the two weeks prior to heart attack or about two weeks after. This was 2 years ago. His personality changed so drastically. He became engulfed in TV and spent money wildly. He poured himself into religion and began to holler at me all the time. He was very forgetful. This was NOT the man I knew. A therapist I know casually mentioned TBI to me ands said his symptoms were typical but nowhere can I find information on how to convince him that something is not right....

Jan 1st, 2011 8:58pm

For my TBI and my young nephew's TBI the best thing I did to correct the symptoms was Brain State Technology. It helped on all levels of problems (such as PTSD and memory and speech and writing) I had for 6 yrs. My nephew has it from a fall for 11 years and is now recovering. Also Atlas Evolution was another technique for migraines and headaches for both of us...one session and they were gone after years of suffering. Also The Results System for transposed brain symptoms with Rick Seivertson over the phone. There is help beyond doctors that works and is not so expensive and fast. I even got rid of a seizure disorder I had for 42 years and dropped meds I took all that time doing Brain State Tech. Please don't give up as there are answers out there and you just have to ask life to direct you as I did. Often I felt like it would never end. Then I would find the right treatment and feel like the miracle wonder that I healed so fast and easily. Hope this helps in your journey to recovery. I wish you all the best.

Dec 10th, 2010 2:06am

I have a history of remote head injuries and in 2008 after i fall, it was discover, that I had a tumor in the front of my brain.During my ordeal my Service was allow3ed to stay with me.Please, check out my story. My dog, Henry Miller died with me at his sided on march 26,2010; He died eleven months after my operation that took place on 4/3/2009. There is another story which is called "Inner Circle". For this story, please go to ucsf.edu I hope whoever read fhese, I say enjoy. Now I have adopted another dog who will under go training to become a true Service dog. Manish Aghi is a 14 month puppy who was named after my doctor. Manish Aghi. Thank You. Anaperla. " The Healing Power of Pets" found at abc7news.com

Nov 26th, 2010 9:06pm

I have had multiple catistrophic dirt bike crashes and at the time I was to proud and macho to take the time to go to the er. One of the crashes was so bad I broke my helmet. I am married now and I suffer from NON-stop headaches, Chronic insomnia and as tough as i think I am, I feel the wrecks are taking a toll on me mentally. I no longer enjoy things i used to love. I am consumed by pain and frustration because I have been to over a dozen doctors. Most are idiots and just think I\'m depressed so they push anti-depressants on me. I gave them a try, and I do mean all, but the side affects of those meds tend to aggrivate the problems I\'m trying to fix. If you are a young man and are reading this don\'t always feel like you have to rise to the challenge. I loved the rush I got when I climbed a monster hill or mad a huge jump, but because i chased that rush i now am suffering the consquences. My married life, my work and simply my state of mind are all a mess due to the battle I fight daily. If someone calls you a wuss or a chicken for not wanting to try something dangerous that is not up to your skill level, WALK away! If i could go back and change anything in my life it would be those collisons with mother earth that I so vividly remember even though they were over 6 years ago. All I do is pray for Gos to relieve me of the misery I am in. I believe he will heal me of my alligments in his time. Lord knows these doctors don\'t have a clue about how to help. Just remember this, whatever mountain or hill challenges you, that challenge will still be there if your instincts tell you your not ready. I made the mistake of ignorning those God given instincts. With age and counsel from God comes wisdom!!

Nov 14th, 2010 4:43pm

I found this information to be very interesting. I've had two brain hemorrhages.

Oct 16th, 2010 2:40pm

Thank you! I am in high school in biology 30 and I am trying to learn more and study about the brain and what can happen and this really helped!! I LOVE these kinds of websites! :)

Oct 3rd, 2010 4:02pm

thank u 4 the tbi info it was very helpful. my cuzn had a tbi. he is much better thank GOD for JESUS' wounds. praise the LORD...

Aug 30th, 2010 6:09am

its useful for my project work as am a audiologist

Aug 9th, 2010 4:25am

THIS HELPED ME. I NEEDED TO READ THIS. MY TBI HAPPENED IN SEPT 98. DEBBIE HOUSTON, TEXAS

Apr 14th, 2010 3:16pm

Thanks, even us stroke people can learn from your info. Gary Schaaf Huber Heights, Ohio 45424

Feb 16th, 2010 3:16pm


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