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What Impact Will Moderate or Severe TBI Have on a Person's Life?

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Mount Sinai Medical Center

What Impact Will Moderate or Severe TBI Have on a Person's Life?

What are the typical long-term effects?

In considering the long-term effects of TBI on the individual, it is most important to emphasize that there is no "typical" person with TBI. People who have experienced a TBI vary on many dimensions: 1) severity of initial injury; 2) rate and completeness of physiological healing; 3) types of functions affected; 4) meaning of dysfunction in the individual's life, in the context of his/her roles, values, and goals; 5) resources available to aid recovery of function; and so forth. Thus, the most important point to emphasize is that the consequences will be different for each individual injured.

In discussing possible effects of TBI, the immediate physiological recovery (which may continue over months and years) was discussed in a prior question. When the moderately or severely injured person has completed this initial recovery, the long-term functional deficits associated with TBI come to the fore. What areas of functioning may be affected by injury to the brain? Any or all of the functions the brain controls may be impacted. However, given that individuals differ greatly in their response to injury, any specific individual may experience only one, a few, or most of the possible effects. Further, a change in any of the possible areas of dysfunction, if it occurs at all, will vary in intensity across individuals - from very subtle to moderate to life threatening.

It is important to be aware also that not all functions of the individual are impacted by TBI. For example, feelings toward family, long-term memories, the ability to ski or cook, one's knowledge of the world, and so forth - all may be intact, along with numerous other characteristics of an individual, even one who has experienced a moderate to severe injury.

The possible long-term effects of moderate-to-severe brain injury are discussed in the following three questions.

How are thinking and other aspects of cognition affected?

Individuals with a moderate-to-severe brain injury most typically experience problems in basic cognitive skills: sustaining attention, concentrating on tasks at hand, and remembering newly learned material. They may think slowly, speak slowly, and solve problems slowly. They may become confused easily when normal routines are changed or when the stimulation level from the environment exceeds their threshold. They may persevere at tasks too long, being unable to switch to a different tactic or a new task when encountering difficulties. Or, on the other hand, they may jump at the first "solution" they see, substituting impulsive responses for considered actions. They may be unable to go beyond a concrete appreciation of situations, to find abstract principles that are necessary to carry learning into new situations. Their speech and language may be impaired: word-finding problems, understanding the language of others, and the like.

A major class of cognitive abilities that may be affected by TBI is referred to as executive functions - the complex processing of large amounts of intricate information that we need to function creatively, competently and independently as beings in a complex world. Thus, after injury, individuals with TBI may be unable to function well in their social roles because of difficulty in planning ahead, in keeping track of time, in coordinating complex events, in making decisions based on broad input, in adapting to changes in life, and in otherwise "being the executive" in one's own life.

With appropriate training and other supports, the person may be able to learn to compensate for some of these cognitive difficulties.

The TBI Research Center at Mount Sinai is conducting research to help people with TBI who experience cognitive difficulties. Descriptions of these studies are found at Rehabilitation Trials.

How are mood and behavior affected?

With TBI, the systems in the brain that control our social-emotional lives often are damaged. The consequences for the individual and for his or her significant others may be very difficult, as these changes may imply to them that "the person who once was" is "no longer there." Thus, personality can be substantially or subtly modified following injury. The person who was once an optimist may now be depressed. The previously tactful and socially skilled negotiator may now be blurting comments that embarrass those around him/her. The person may also be characterized by a variety of other behaviors: dependent behaviors, emotional swings, lack of motivation, irritability, aggression, lethargy, being very uninhibited, and/or being unable to modify behavior to fit varying situations.

A very important change that affects many people with TBI is referred to as denial (or, lack of awareness): The person becomes unable to compare post-injury behavior and abilities with pre-injury behavior and abilities. For these individuals, the effects of TBI are, for whatever reason, simply not perceived - whether for emotional reasons, as a means of avoiding the pain of fully facing the consequences of injury, or for neurological reasons, in which brain damage itself limits the individual's ability to step back, compare, evaluate differences, and reach a conclusion based on that process.

With appropriate training, therapy, and other supports, the person may be able to reduce the impact of some of these emotional and behavioral difficulties.

The TBI Research Center at Mount Sinai is conducting research to help people with TBI who experience depression and other mood disturbances. Descriptions of these studies are found at Rehabilitation Trials.

What other changes are likely after moderate/severe TBI?

Any of the ways we have of sensing/perceiving may be affected by TBI. Vision may be affected in many ways: loss of vision, blurred visual images, inability to track visual material, loss of parts of the field of vision, reduced depth perception, and sometimes disconnection between visual perception and visual comprehension, so that the person does not know what he or she is seeing. Changes also may occur in the senses of hearing, smell, taste, and touch; the individual may become overly sensitive or insensitive. Further, the person may have difficulty sensing the location of his/her own body in space. Other individuals with TBI may have recurring problems with balance, vertigo, and ringing in the ears.

A relatively small percent of individuals with TBI experience seizures. For most of these, the initial onset of seizures occurs soon after injury. For others, the onset may take place up to several years post-injury. Two types of seizures may occur. Major motor seizures refer to what were once called grand mal seizures and involve loss of consciousness and vigorous, uncontrolled movement of the major muscle systems. Local motor seizures do not lead to loss of consciousness and involve less muscle movement. Some individuals with TBI use anticonvulsive drugs to prevent seizures or stop them during the course of a seizure.

If motor areas of the brain are damaged, the person with TBI may experience varying degrees of physical paralysis or spasticity, affecting a wide variety of behavior from speech production to walking. Damage to brain tissue can also evidence itself in chronic pain, including headaches. Also, evidence is growing that hormonal, endocrine, and other body systems are affected by the brain injury. Consequently, the individual may lose control of bowel and bladder functions, may sleep poorly, may fatigue easily, may lose appetite for food or be unable to control eating, and/or may be unable to regulate body temperature within normal boundaries. Women with TBI often experience menstrual difficulties. Some of our research on post-TBI health and medical issues is discussed in TBI Consumer Report No. 1.

The TBI Research Center at Mount Sinai is conducting research to help people with TBI who experience fatigue. A description of this study is found at Rehabilitation Trials.

Why are we poor at predicting outcome?

The severity of the injury and the resulting direct effects on the individual's body systems may not predict the amount of impact in a person's life. This follows, first and foremost, because each of us draws in different ways on differing parts of our brains. For example, a severe injury to the frontal brain area may have less impact on an agricultural worker's job performance than a relatively mild frontal injury would have on a physicist's work. In sum, the meaning of the various patterns of injury and the associated changes in any person's life will depend on preinjury lifestyle, personality, goals, values, resources, as well as the individual's ability to adapt to changes and to learn techniques for minimizing the effects of brain injury.

We know in general that the variability of patterns of change associated with brain injury are shaped by many factors: the severity of injury and age at injury, time in coma, time since injury, length of PTA, the resources and services available to the injured person, the barriers met or advantages offered within different social contexts, the social and role demands that exist within the individual's life, and so on. How these factors work, in what ways, and how often is not clear. We know that TBI hits people differently, but have less knowledge of the number of people that experience various types of consequences and the specific factors affecting this.

What can I do to help the process of recovery?

Immediately after injury, friends and family who want to help should focus on insuring that the injured person receives medical care that will minimize the effects of injury. This usually means that the person should be receiving care in a medical center that specializes in trauma care. This topic is covered more fully in another question, What Is the Course of Treatment for Those with Moderate/Severe TBI?

Once issues of life-and-death have been addressed, the person's functioning as a cognitive, emotional, and social entity comes to the fore. The individual is faced with many or a few of the possible changes described in preceding questions.

It has been suggested (by Kay and Lezak in 1990) that "recovery" is a misnomer and that "improvement" better describes what happens in the long run after TBI. The word recovery may, inappropriately, suggest that the effects of TBI will disappear, similar to symptoms vanishing when we recover from a cold. With TBI, some of the effects may truly dissipate after one year, two years, or more, but more frequently these long-term changes linger on, subtly or not so subtly, changing only slowly, if at all, over the life course.

What must be kept in mind at all times is that impairments that are due to injury of brain tissue can be helped through reeducation of the individual and through modification of the environment. Thus, for example, although the brain circuits involved in memory may never function in the ways and at the levels found before injury, remembering (a necessary skill in day-to-day life) may be improved by the individual's learning compensatory skills, such as using a daily diary to remember appointments, and by adjusting parts of the environment (alarm clocks, computer reminder programs, and family members) to jog memory.

The boundary of improvement is set by the individual's ability to learn new ways of doing things or to relearn formerly familiar skills. Since the brain mediates all learning and the brain is damaged, learning is often slow and/or incomplete.

The major role for friends and family at this stage of recovery is to help find resources that will help the injured person in addressing emotional, cognitive, physical, and behavioral challenges. A variety of resources are available on this Web site, including publications, linkages to other Web sites and information about rehabilitation trials that may help people with cognitive difficulties, mood disorders and fatigue.

Some individuals with TBI largely move away from the notion of "recovering" the pre-injury self. They reach a point, instead, when they view the losses/changes/deficits as "simple facts" or even "opportunities." For these people, terms such as "devastation" and "loss" get redefined and no longer are seen as applying to them. Their injury has let them see other possibilities for their lives than what they saw before injury. These possibilities may be just as (or more) satisfying to the person with TBI than what was "in store" for them prior to injury.

From Mount Sinai Medical Center. www.mssm.edu.

Comments [229]

Starting with unusual symptoms like vision, balance, headaches, and difficulty swallowing, etc. I was encouraged by my awesome wife to get chef out, basic tests were negative, so a scan was done CT, revealing a tumor. Fast forward to the surgery, a craniotomy through the ear/sinus area, 5 days of hospital stay, and first day home suffered subarachnoid hemorrhage, rushed back to hospital for a ventriculostomy. Coma for 10 days, woke up to excruciating pain, to discover a metal catheter was located into my midbrain to relieve blood pooling and pressure. Hospital stay at brain trauma institute for 6 weeks. Released to home care, out of work for over three months. Upon my return to work as an Arborist. I was determined to convince people that I was able to continue in my profession of 25 years. Things became increasingly difficult, as dizziness, chronic fatigue, headaches, and questionable mental processing were daily struggles. Suffered a TBI after a blackout episode in my bathroom, hitting my head on the cast iron bathtub, breaking the hot water stem. Woke to my wife screaming and blood everywhere, yet another ambulance ride and a few more days in the hospital.

And then the real troubles began, I was not able to sleep for over a month, depression, anxiety, intercranial pressure and fighting to prove my way back into the workplace, proved to be overwhelming. A team of good Dr's, my personal care physician, a neurologist, a neuropsychologist, a neuropsychiatric specialist all worked together to form a formal diagnosis and treatment plan.  After more lengthy tests and medications, I was able to start sleeping again, what a joyful thing! 

Since then, my journey was one stumbling block after another, as I was becoming more aware of my accumulated deficits, and how they were affecting my day to day struggles, interpersonal work relationships, trust, critical thinking, organizational, strategic, multitasking, creative, improvisational, etc. As the years past, somehow, I was able to blend in enough to keep the focus off of me and my struggles. 

Just recently, I have retired from my job after 32 years, after continuing my treatments and a neuropsychological exam, which revealed what we suspected, severe and permanent damage to 3 areas of my brain were limiting my abilities, and were increasingly affecting my performance and workplace relationships. 

While this may seem like a lot of setbacks, I am grateful for all the incredible caregivers, especially my wife, for their sincere and professional talents, who not only saved my life, but have kept us on the ongoing road to recovery, while my life will never be what it used to be. Learning to live a simpler, less stressful life has been a welcome learning experience for me, after a life of being a type A, competitive, strongwilled, driven person, although most would say the adjustment hasn't been exactly smooth. Stay blessed all of you.

Apr 28th, 2017 10:12am

It's been 10 years or so and I'm still hurting. It seems like more and more stuff is going wrong with me (or i'm just now becoming more aware of it) and it traces back to my TBI.

Apr 26th, 2017 5:11pm

I fell 25 feet on my job in 2008. I fractured my skull in 4 places. In the last 2 years,my speech is really bad, my memory is going pretty fast. It really has been hard, people look at me and think "oh he looks good etc" but that couldn't be farther from the truth. I pray no one else ever has to go through it.

Apr 21st, 2017 12:05am

Happened to click on this site. Previously, I was quite an avid contributor. Fabulous web site. For a person who has sustained a TBI, persistence is a requirement. Frustration is a frequent companion as this tumultuous crisis has overtaken your world. First and foremost, you must come to terms with yourself and mind. A drastic change has occurred in life for you.You must come to terms with such. Anger is of no use. None what so ever, one would think but a deeper  look into the matter reveals a sliver of sustenance. Motivation, energy. Yes, two items you need in vast supplies. Not all the time, though. As I've written before, nothing is good, nothing is bad... perspective. We've been touched, chosen... accept it and move ahead on your new occupation, chief reflector of the seemingly insurmountable pangs of negativity that abound 24/7 in the "state of mind." Change that mental direction, Slowly, remember "fast" is a word of the past. Grasp on to your new world. Slow is the way to go. Inner calm is to be realized... you live, there is life in thee, nurture, for in time you will be rewarded for your persistence. It be so!!!


Apr 19th, 2017 10:29pm

You need to be around people that support you and that are optimistic. Not ones that slow down your progress and spirit. God bless you.

Mar 26th, 2017 11:26am

Minor TBI?  Really/  My brain (injured) from my minor concussion  (while working alone) told me I was okay.  I stayed at work despite some vertigo and forgetting some words.  I made decisions with the logic of about a 6-year-old child, but no one noticed.  I felt like I was drunk for days, but I showed up and went to work so no one cared.  Finally, thankfully, brain cells died and I got a terrible headache, etc. and a bit of sense. I had to go to the ER. I still have cognitive issues three weeks after the fall. and my employer insists that I go back to work.  I have warned them that my decision-making skills and cognitive ability are still somewhat dysfunctional.  They do not believe me.  Tomorrow I will be humiliated, but yes, I will return with my sunglasses, walking sticks for balance, bad memory, poor organization, mental fog, etc.  I warned them that I cannot be responsible for the safety of others right now.  I now know the meaning of brain injury, but sadly my bosses and their customers will only learn tomorrow at my expense. When I need to, I will repeatedly explain that I have a brain injury from which I have not fully recovered..  I have given notice at work since they refused to pay my medical and worker's comp benefits, so I will move on, after some time at my brother's house.  I wish myself and everyone else the best.  I take hope in the fact that total recovery may not be possible, but that new windows of opportunity may open if I make myself available. I will work through the stops of recovery, and life will go on.

Mar 2nd, 2017 9:26pm

Just read the first 3 pages. It's me. It sucks

Feb 28th, 2017 4:23pm

I have tbi for 37 years and now it's effecting me more then I'm getting older, will I loose my memory more as i get older?

Feb 26th, 2017 4:54pm

I had a TBI 11 yes ago I was in a car accident it killed husband and two of my children I was in a coma almost four months the seatbelt severed my corrated artery I had several strokes while I in a coma I am raising my son all by myself he was just a baby but the only thing wrong with me is I can not talk right. You defiantly can't understand me on the phone and my hands are drawn in towards my body due to the strokes

Feb 15th, 2017 6:02pm

After reading through the comments, I am relieved that I am not crazy after all. I had a TBI when I was 10, about 23 years ago, and have been dealing with so many of the same issues that so many others are going through. I fell off the hood of a truck as it was moving down the road. I was told that my head was the first thing to hit the pavement, but I can't remember what happened. I was med-flighted to a hospital where the doctors took a piece of my skull out to relieve the pressure. I was in a coma for a week and remained in the hospital for a week or so after that. When I sustained my injury, I lost my ability to read, write and talk normally. I knew what I wanted to say, I just couldn't put the words in the right order.  I suffered from what they told me were silent seizers, I seen the world as a kind of cartoon for several weeks after getting out of the hospital. I slowly recovered and returned to normal activities. I have always struggled with lack of emotion when I should of had it and then crying at times when it was completely inappropriate, for instance when I am overwhelmed. I often can't concentrate and my memory is completely terrible. I also suffer from minor headaches at certain times, to debilitating migraines at other times. I have a very hard time being in large groups of people and maintaining normal relationships. It seems that the last few years these symptoms are getting worse. Where do even start to look for help? 

Feb 10th, 2017 12:05am

hello everyone and my co-TBIs out there. I got my tbi with diffuse axonal injury last march 15, 2013, went to coma for 10 days, hospitalized for 3 weeks, but I just can't share how it feels because i really don't remember a thing at all. For 4 months everything just got erased. Right now, I'm more or less 75% good. I drive myself to work, the things that bothers me though not that much is my vertigo, right from the second I wake up until I get back into bed at night. I also lost my ability to ride all 2 wheels -- motorcycle and bicycle. It's like a light switch, the vertigo is there whenever I need balance but the moment I sit (like driving a car), it's gone. Another is paresthesia, my entire right leg has that tingly feeling, like pins and a bit numb, entire day 24/7. Just another challenge to take. But above all these, I'm good. Just thought I'd share something, thank you.

Feb 3rd, 2017 3:49am

I have had 10 plus concussions and 5 years later I still have memory loss. I used to had photographic memory. I still have that but people treat me like I'm a leper. It frustrates me so much my symptoms come back full force. I want my life back. I was on the president's list every year in college. How do I convinced colleges and my husband that I am very capable of living a good life? When he treats me like I am mentally challenged. It sets me back in my recovery. I start to believe it.

Jan 26th, 2017 10:29pm

Prior to TBI I had nearly a photographic memory. Now (4 years out from the accident and coma/brain surgery) I have that same memory of everything up to one year before the tbi. I still retain all of my math skills, computational, and knowledge, but can't transfer short-term to long term memory. I also get very emotional over certain things and sometimes loose my voice when I get stressed.

Jan 10th, 2017 1:22am

I believe I have CTE. I have had many concussions over the years. Several lately due to an auto accident and balance issues. Everything I thought was just from getting older is not that. Last year all the symptoms sped up. I can't even do simple subtraction anymore. Does anyone think they have CTE out there? My life is falling apart. My wife thinks it's just me, that I have no problem. How long do I have? I know a lot of people that have this commit suicide with really no warning. Since I lost my daughter to crib death at 11mo, 3 weeks, I've had a death wish. I'm afraid someday it will happen to me with no warning. No one understands. I have no one.

Jan 5th, 2017 10:31pm

My husband fell from 14 feet headfirst onto a concrete floor on May 24,2015.  He suffered a subdural hematoma in the occipital lobe and the left temporal lobe was battered.  He had an embolism rupture during first brain surgery.  The Neurologist doesn't know why he is still alive, but he is!  He was in coma for 3 weeks and on a ventilator.  He had brain injury, broken shoulder, bone flap in skull removed due to swelling, broken nose, broken ribs, and was blind.  He has undergone PT, OT, Speech, and vocal cord therapies, 11 surgeries.  He can see now and talk,  Is back at work full time and even sang a solo at our church during Christmas.  His biggest problems are fatigue, headaches and for me, the fact that he thinks he is fully recovered even though I feel like I am living with a different man than the one I married 36 years ago.  Don't get me wrong, I praise and thank God every day for his blessings, but it isn't easy.

Reading through the posts I realize that we are incredibly blessed!  I just wish I knew how to improve headaches and fatigue,  This journey is ongoing and some family think that he is fully recovered not wanting to acknowledge his differences. I have accepted that people can choose to be ignorant and I can't change that.  Thanks for being my sounding board.  Hang in there everybody!

Jan 5th, 2017 1:27pm

I had a severe TBI 15 years ago and was seizure free for 11 years until just last month I don't know what to do. Is there any support groups to offer help or guidance in NY for those with TBI? I'd rather be dead than have Alzheimer's or dementia. Is there anyway to prevent that?

Dec 29th, 2016 11:19am

I am 32 years old and in the military.  I had to jump through hoops in the recruiter's office to join because I had a major head trauma when I was 8 where I had to relearn how to walk and talk. I had to do lots of paperwork and see lots of doctors that said I was okay to join. After the accident, when I was 8, I was in a coma for over a week and I had a grand mal seizure for which they gave me meds as I was being airlifted on helicopter from the crash site to the children's hospital. 

I have a friend who is a Special Forces combat medic who recently sustained a deployment-related TBI. He used to have emotional control issues and angry outbursts because of the TBI until he got treatment for it and now he is being med boarded out of the Army by his own choice. When his wife was talking to my wife, she told her that I have the same issues (emotional control) that her husband had after the TBI. Now both my SF Combat Medic buddy and his wife think my issues may be related to the head trauma I had as a kid.

I have to admit emotional control has always been difficult for me since I can remember.  It's been difficult on my relationship with my wife since we've known each other. I've always done my best to keep it under control, but it's really hard and sometimes I don't do very well. I've always had to work really hard to control it and sometimes I'm wildly unsuccessful.  I have never and would never physically abuse my wife or kids, but sometimes I can't control my attitude and emotions and I end up saying and doing things or acting in ways that are hurtful. The accident was 24 years ago, but I think my friend may be onto something by suggesting it could be related to the head trauma.

Dec 24th, 2016 8:44am

Michelle, My daughter had a TBI 6 months ago. She sees an Integrated Neurologist that referred her to Vision Specialist of Michigan who work with TBI issues as you have explained. There is hope for him.

Dec 22nd, 2016 8:09pm

My partner has a fractured skull that happened 10 years ago. He's always suffered with headaches since but the past couple of days his headaches have become worse than normal with blurred vision. I'm wanting advice as he is a stubborn man who won't let me take him to the doctors but I'm worried now as he admits the headache is worse than he's had before. Any advice much appreciated. Thank you. Michelle

Dec 17th, 2016 8:44am

Has anyone in here tried NCR work (Neuro-Cranial Restructuring)?  I work with professional fighters and have noticed a large difference with massive trauma to the skull.  Headaches can be caused by a lot, as well as depression and mood swing issues.  There is also the issue of the body restructuring itself around an injury and creating temporary occlusions to blood flow in the brain - leading to massive headaches.  There are a lot of things to consider, but neck trauma associated with head trauma should be addressed in order to solidify a proper blood supply to the recovering brain.  Other methodology includes hyperbaric chamber utilization as well as proper supplementation to eliminate neural inflammation and promote neural healing.  Happy to answer questions if anyone has any, I'm and ATC, and MATm, and I've been working with NCR trained MD's for athletes I'm involved with and their recovery.  Not sure how to put contact info up, but check out www.thebodymechanicMAT.com to find my contact info.

Best of luck to everybody and I wish the speediest recoveries to all.


Dec 13th, 2016 4:30pm

I'm not sure if anyone will read this but I'm just wondering if I can get any input. I found this article extremely useful. When my older brother was 16 he was skiing alone and got into a skiing accident (we still don't know exactly how it happened), and he had to be helicoptered to the nearest hospital. He was in a comba for four days, broke both his wrists, but surprisingly no internal bleeding but still intense headaches and head trauma. It took him about six months to come back to normal academically and in all visible ways. He's now 20, and the reason I'm writing is because he has been pretty severely depressed right about since the time of his accident. I never put two and two together because I never even thought that TBI could cause personality changes, but after reading this article I now see that it's actually a common thing. I want to get my brother help, but his accident seems so long ago and I'm not sure how to approach it. 

Dec 13th, 2016 1:30am

My brothers used me as a crash test dummy when I was a kid and I was knocked unconscious and woke up in the E.R. The headaches were real bad the first 2 years. I never did well in school after that because I was violent and couldn't pay attention.. but I am doing fine. We press on...

Dec 9th, 2016 8:21pm

Wow - the stories on this page are totally eye-opening. I feel like posting - which might mean I am getting used to not working and having time on my hands.

OK - so I am a 54 y.o. male. It is now 4 months since bicycle accident (front forks broke) with 1 day coma, 12 days hospital stay, right & left epidural haemorrhages, left anteomedial frontal contusion, bilateral complex temporoparietal skull fractures into condylar fossae and mastoid process (plus 10 ribs, right clavical, fractured cervical and crushed thoratic vertibrae). Whew - what a mouthful. So I was classified as severe to very severe TBI but now I am pretty much normal, just sailed through my neurospych exam averaging in superior range. I am gradually learning how incredibly blessed I am that I have escaped any serious impairment. (Yes - I did have ringing ears 95% better, funny smells 95%, still have some dizziness 80%, and some back pain from the crushed thoratics 80% - but nothing that would stop me functioning at least 90% normal life). Will be returning to work next year with partially reduced workload. 

One thing I would say. I usually thought I was more recovered than I actually was. Being a fitness person I tended to push myself a bit too much, and also overestimated how quickly I would recover. So I have had to settle down a bit and make sure I sleep properly etc. That's the funny thing about brain injury, I can't trust myself to correctly judge how well I am with my own brain. 

The other thing is that I am quite sure I could have easily died, and that emergency services got me in straight to the trauma team (Sydney's Westmead hospital) without 1/2 hour and care has been excellent. But for the most part, fitness or health care cannot promise anything. My accident was more a miracle than good luck or "my fitness" as some people say. It was God. Apparently when I was coming out of coma I was singing a little old worship song... "Praise the Lord, Oh give thanks to the Lord..." And was very peaceful. Well, praise God. 

Dec 9th, 2016 12:15am

Does anyone know if there are studies looking at undiagnosed TBI 's that happened decades ago. I fell off a horse about 40 years ago and as I age, my concentration abilities have been declining.

Dec 6th, 2016 9:25am

In response to the post Sep 2nd, 2016 12:55pm, there is hope. I was almost 4 years old when I fell out of the 3rd story window of a hotel onto the pavement of the parking lot below. I had a few medical procedures I scarcely remember and I had migraines and nausea for years after. I struggled a lot in elementary and middle school, but, now I'm 20 in college and things are generally looking up.

I'll never be "normal," my scar makes thinking physically feel like exercise and it still flares up in pain whenever I'm tired, angry, ashamed, or panicked (e.g. I'll never get over my fear of thunder because the noise makes my scar hurt like crazy).

Although it is a struggle, it is nevertheless possible, with proper medical treatment and support, to live a meaningful life.

Nov 26th, 2016 1:14am

After an accident I had I couldn't smell or taste. I believe the senses involved that have gotten knocked off balance. I'm scared most times but recently have been having head pains 13 years later. I'm sorry you're having problems. Only thing I can say is take care of yourself, don't stress or be around noisy things. Relax and eat fruit, drink water and be comfortable sleeping

Nov 24th, 2016 7:22pm

I can't smell anything, my balance is off, fatigue daily, it's almost 3 yrs since my injury of glaucoma 3. my mom says the doc didn't say my brain would stay damaged that I would be sleepy daily for 4-5 mos. So I should go and see a doc to see why I can't stay awake daily. And that I should go and see a doc to see how much my brain bled. Why can't poeple accept us for the way we are?

Nov 3rd, 2016 8:31pm

Anyone have a experiences with some who try to kill themselves with a gun and survived and is now recovering? I need help on this issue and how to cope and get stronger and not hurt by the words he says.

Nov 3rd, 2016 3:09pm

I had a concussion 11 mos ago...so mild compared to everyone else's stories. I cannot believe the lack of care I have had through my regular doctor, a referred sports doc, various other walk in clinic doctors here in BC canada. Even the person at the brain injury society had no suggestions on how I can be able to exercise again and not have post concussion syndrome. I am at 11 mos post accident. Sometimes I can't walk and get left leg weakness and drag my leg and I get super dizzy and have to grab on to anything standing. Once again I am totally disgusted with the non support of the medical community...no one knew who to refer me to...I am now doing cranial sacral and am trying a physio...but he kind of shook my head around again to look for eye head coordination....and then the whole walking issue came up tonight..with the left leg weakness. It is hard to adjust to changes...to leave behind many of the activities you love...due to symptoms being provoked. I think meditation to get the body from pasarasympathetic fight or flight back to sympathetic rest and relaxation is one of the best. I plan on joining yoga. Being positive and thankful for all that is working. I look up to many of the posters....thanks for sharing. Thing is...every day for those of us who are still feeling ok..if we have the energy to reach out and help others even less fortunate...this is how i want to live. I am not totally debilitated...it is rough and i get the same thing...people telling me i cant blame certain things on the head injury...anyways...i plan on learning craniosacral and volunteering at brain injury society...of which my city is so lucky to have. So far this therapy has been the only thing to at least temporarily give me releif from head pressure..pain etc! Hold on to hope and be gentle and patient. Let your life be healing and kind to you. Protect yourself, care for yourself...because u cant expect that others will be there for u when u need them the most!

Nov 1st, 2016 3:33am

On July 27, 2013, I was broad-sided while driving my boyfriend's pick up. I was lifelined to Indianapolis, with three brain bleeds, fractured wrist, torn rotator cuff, fractured cheek and countless abrasions. I was intubated in the helicopter as I wasn't breathing on my own, which has lead to complications resulting in two surgeries to my vocal cords. I was in a coma for three days, in icu for three weeks, then sent to a rehabilitation hospital. I have no memory of the accident or most of the rehab. I was a cardiac monitor tech, vocalist, and artist. A portion of my injuries were frontal lobe, and as such, I seem to have lost the desire to create. I have proprioseptive sensory feedback disorder with my left leg. Where I think I'm stepping isn't where my foot ends up. Because of this, I broke my ankle, and fall and stumble A lot. I have double vision, and trouble with number sequences and judging time. Also, I tend to start writing a word and realize that I didn't write the first letter. That happens a lot. Stairs are always a risk, and take a lot of concentration. My family is amazing, but they lose patience with me and assume that I should be recovered by now. I hear things like, you can't use that as an excuse for everything....and....you can't blame that on the injury. I have wrestled leg syndrome that keeps me from sleeping. If I don't take a sleeping pill and rotoperole for my leg, I would easily stay awake for 48 hrs. I have days where I've taken all of my meds, gotten a good night's sleep, and still, around mid afternoon, feel so exhausted, as though each cell in my body has nothing left to give. I'm 50 years old now. I've never had to ask for help or handouts. I was the family's go- to person. ( A fixer and helper) Now, I have no job, no money, and life as I knew it is over. I've lost my home that I was buying on contract for 10 years, my boyfriend, career...you name it. Positive reinforcement is key to each of us finding our way. With a TB I, there is no room for criticism and pointing out short comings. What family and friends need to remember is that what seems normal or easy or mundane, may be big accomplishments to us! Let us have those achievements that everyone else takes for granted. I know that God has a plan, though I can't see it yet.

Oct 27th, 2016 11:29pm

it wasn't l last night i decided to do some research on head trauma. When i was seven i had bleeding on left temporal lobe, from a baseball that was hit by a much older kid. I didn't say or do anything about it till the next day when i couldn't talk correctly, I was in the hospital for 2 weeks. I'm 21 now and i do have anxiety, depression randomly, and communication /social problems. In school some yrs i remember i did fine academically and social but mostly iv had horrible anxiety in big group situations or socializing and going to lunch. Academically i did fine except maybe a couple yrs but i did have trouble comprehending what i read, but now i think "what if" what if i never had a TBI, how good in school i would of done. Anyways, Not thinking about my TBI till last night i always thought that's just how i was, a person who does better alone and cant socialize well. Iv gotten a lot better with socializing somewhat but its like a chore. I get depressed about my life situations and other peoples well being and it just drags my motivation down, but then i will also be happy and motivated in the same day wondering why i cant be happy like this all the time. My vocabulary seems to be worsening and also my depression, but there is a lot of stress with a baby momma and family situations but i just try to stay positive! And in my opinion exercise helps a lot i've been into weight lifting sense i was 12 and when i quit i seem to get worse. Finally, i have one question that i would like an answer too. Could high school football of made my symptoms worsen?

Oct 27th, 2016 10:27am

I must've been about 3, in 1986, when my sister was working on a school project and was left to babysit me. Anyhow, she left me alone in the house and I wandered out into the street when a suburban hit me head first and supposedly I landed about 5-10 feet from the initial spot of the hit. I'm now 33 years old, I am a male, and I was just wondering. Could that be the reason why I experience high level of depression and impulsivity? I generally do things without fully realizing consequences and I don't mean to, I just do. Anyone recommending anything I can do? I can't live life like this anymore.

Oct 27th, 2016 5:20am

I was a shaken baby. My mother shook me off and on from when I was two until I was ten or eleven. I don't know how often because my memory is full of holes. My sisters used to call them "the shakings," so they must have happened with some frequency. I'm now fifty-four years old and have spent most of my life in counseling and dealing with severe depression and PTSD. My mother died last year, which set off a whole new set of emotional issues, but I'm getting better. I'm not depressed very often, and when I am, it doesn't swallow me up whole anymore. I work as a college professor and have raised a son who's now in college. I think some of my symptoms are getting worse, but I'm not sure because I can't really remember how they used to be. I found a journal entry that I wrote twenty years ago about how frustrated I was when I couldn't remember words. I still struggle with that. I'm face blind, I have trouble telling time, I can get lost on my way to work, and I have fibromyalgia, which causes chronic pain, but it's usually pretty well controlled. Sometimes, I feel guilty that I'm doing so well when most shaken babies either don't make it or have much worse problems. So yes, it can get better. I'll never be the person I would have been without brain injury, but most days are pretty good now.

Oct 16th, 2016 7:07pm

I had had a bicycle accident in 96' a mac truck hit me and I hit the tree head first going 30 to 35 mph when I hit the tree. I had several skull fractures, broke the bone below my eye had broken the lower part of my nose and 2 collapsed lungs and split my carotid artery which made me have a major stroke. The doctors said I would never walk or talk again and that I would have grand mall seizers. I am walking and talking and have never had a grand mall seizer.

Oct 14th, 2016 9:02am

I had an accident similar to the first poster in 1989 I was 19 and crashed more or less head-on into a concrete aqueduct at 55 mph. I was lucky in that I had no broken bones other than my nose, which was demolished. I also had a concussion that kept me drifting in and out of consciousness for I guess several days. Now in my 40s it's becoming clearer and clearer than my brain is not aging well. I have worsening problems with attention (or more correctly, hyperfocus) and have a really really hard time transitioning between activities. I also have trouble making a plan and following though for simples like getting dinner ready or preparing to go shopping. When reading or speaking, my tongue sometimes feels like I don't have complete control of it. And I have a very difficult time organizing my speech when I'm trying to make a point - people have to wait for me to work my way through to it and I can't sustain linear thinking. Additionally, I'm struggling with lightheadedness, smelling phantom smells, and very frequent migraines. Doctors I've seen seen skeptical that my head injury having occurred so long ago could be linked to these issue. I'm not sure how to get matters looked into more closely.

Oct 13th, 2016 12:57am

I suffered a severe TBI 15 years ago and was unconscious for, 2 months... my memory is still horrible... what can be done I'm just getting worse as I age

Oct 11th, 2016 9:08pm

My name is Caroline and this is what has happened to me: July 2, 1999 I got off work, working at the mall, at noon I was driving to my friends house. I was very stressed out and I blacked out for a moment. I was driving on 695 taking exit rt 70. When my 3 week, first car that was brand new hit 4 other cars spun around and hit fifth car and flipped over. Helicopter came and took me to shock trauma. I was there for 20 days. Then transferred to Kernan hospital to traumatic brain injury unit and stayed for 3 months. Coma for 40 days. My memory is horrible, can't remember a thing. My math skills are almost non existent. I broke my neck my c2, left collar bone and Left arm. I have trouble holding up my head, driving or doing anything with my upper body is very painful. My muscles have become torn, scarred and weak. My Spleen busted and they cut my whole mid section open and then stapled me shut with 24 big staples. For some reason now I don't get the feeling of being hungry or full. I don't think I digest well either. My brain bled so they drilled a hole on my head. My head hurts all the time. Im very dizzy also can't sleep anymore. I couldn't breath so they made hole on my neck. I was left with my left vocal cord being retarded. I cant yell or laugh or sing or talk sometimes. I was tube fed for 3 .5 months and my muscles in my mouth are very weak and I have trouble chewing. Drinking water is painful because I choke on the water often, goes down the wrong pipe. Also have a very hard time getting it back out. Whole body got very weak and I lost all my muscles. I went from being a very healthy and outgoing 95 lbs to 79 lbs. nothing left but bones. I have no balance I'm still in alot of pain, no endurance and no coordination. Summary is: I cannot sit, stand, walk or lay down without pain. They let me graduate high school attending only the last 6 months of my senior yr. Since then I moved out in 2001 and moved around alot. I haven't had a doctor or insurance for the first 10 yrs. It's a struggle getting by day by day. Mentally emotionally and physically. I am permanently handicapped. I have anxiety, depression and ptsd. I pray and stay positive because I know God has great plans for me. I'm his soldier in boot camp being prepared for a great fight. I have gotten a neuro psych eval and found out I am better than 50% of my peers! I'm in tons of pain and that may never go away. But I fight hard and when I do I do get better results. We will never recover. And that's ok. I think we were meant for better things. I don't believe I will be able to have children but that's ok too. Sometimes we just have to find ways to help ourselves and live best we can. We can live to give people struggling hope. I'm starting to see that I can help and aide people I meet because I have so many experiences. Don't give up. This is just the beginning. But soon it's getting better.

Oct 10th, 2016 8:42am

I suffered a TBI when I was 14, I am 41 now. To the guy that wrote on and on about his injury and how he feels and behaves even now 28 yrs later, I am feeling the same way about my injury and yes it was very bad for me in my early injury years, seemed ok for a little bit, but now it feels very bad to me again. I deal with anger, depression, anxiety, PTSD(very hard for me to be a passenger in a car, brings on heart-stopping panic attacks), sadness, feeling useless, I could go on and on about it too, but I ask myself daily why did they have to save me....death would have been so much better/easier than having to deal with ALL the conflicting emotions that having a traumatic brain injury bring with them.

Oct 9th, 2016 5:23pm

Hi very glad I came across this. Around the same time n 1987 I too suffered a traumatic frontal lobe brain injury. I was 13 and didn't understand much about it. I was in an induced coma for two days then released 5 days later. Neuro followed me for one year the. That was that. My mom used to laugh about how one minute I was flying off walls then moody. My behavior growing up and and adulthood were sexually pernicious and I took stupid chances. Never anything that made me think I was more just fun crazy. Now at 47, married three kids, my I've been was diagnosed with severe ADHD at 44 and last year suffered a complete breakdown. 5 hospitalizations. My husband does not understand and makes it muc worse. I'm looking for anyone doing research on old TBI and effects later. Please anyone reading help if u can? Desperate Mom

Oct 9th, 2016 5:00am

I had a TBI when I was 7. Nowhere near the severity of some of the folks posting here. I hit my head on the road after falling from a bike while trying to do a stunt. I was unconscious for 24 hrs. When I woke up & it was like nothing ever happened except for the big scrape on my face. Except now I'm wondering if some of the problems I encounter are subtle effects of that injury, e.g., attention deficits, repeating things & being unable to stop myself, impulsiveness. The accident happened nearly 40 yrs ago & I'm just starting to figure this stuff out. My heart goes out to everyone who's had such serious injuries.

Oct 7th, 2016 9:01am

I was in a severe car accident in 88. I was a passenger and we hit a concrete, steel reinforced box culvert breaking the concrete.  I hit my face/head into the windshield at 95 mph, flipped in the air and landed in a deep drainage ditch.  My face was destroyed, 250 stitches, nose and eyelid were gone and other lacerations, some were deep. Broken right lower leg, crushed left heel and ankle, broken pelvis, ribs, torn rotator cuff, almost cut my right arm off, broken teeth, back and neck injuries, torn aorta, half of my left lung removed and more.  After 18 hrs of surgery and 8 doctors working on me I was left in a coma for 2 wks.  That was the 2nd of 5 car accidents in which I was not driving except for 1.  Head injuries in 3 of them.  This was the very worst.  I had no idea what had happened, I remember nothing.  When I awoke 2 weeks later I was so confused, they taught me how to walk and use a sliding board and sent me home.  I would laugh at sad things or at my Mom and brothers embarrassment. I could not control it at all.  Even laughed at my dear Grandmother's funeral a year later.  I simply could not control my emotions. I couldn't understand why God saved me, I was 1 out of 1000 that survive a torn aorta and the only 1 of 2 in the hospitals history to survive.  Why me?  Everyone was saying it was a miracle.  I didn't grasp the seriousness of it.  Once I was feeling better I started drinking and going out, taking risky chances, very risky like driving at very high speeds, promiscuous and I didn't care.  I gave it up in '04 after the death of my dear Mom. Here I am after 2 relationships all alone and fear relationships because I fly off the handle, argue with anyone and everyone I disagree with.  Sometimes I can't feel emotions, I know I should feel sad, or happy but I'm numb, it's an awful feeling. There are times when I cannot remember something I just read and reread it to no avail, or what I'm reading looks like heiroglyphics, and my memory goes completely blank and can't think of certain words and I lose my ability to spell words, simple ones and have to use google to spell, it's very odd.  I feel that I'll be alone forever, I live in an apt all alone, I fall all the time, recently fell and fractured my back.  Sometimes everything seems so loud and my head just spins if I'm thinking of more than one thing, my attention span is shot,  I don't want to bring someone into my life of hell.  No one suggested or even talked to me about my feelings after the accident, no counseling, nothing.  It was like ok, you're alive, see you later and good luck.  I had suffered from depression since I was a teen and in 04 I attempted suicide, like was too difficult for me to handle.  I couldn't handle the pain of doing my job as a phlebotomist, a job I dearly loved, my Mom was terminal and I was taking care of her, ended an engagement because of my anger and fighting and bizarre things I did.  I had difficulties with my brothers and attacked one, I would fight with them even attacked one, my temper is horrible. I've responded to arguments with my sis and cousin in a hateful nasty way that I'm so ashamed of and they didn't speak to me for 2 yrs recently.  I just want to be like everyone else. I cry often and feel unlovable and totally useless.  I wonder what my purpose is, nothing IMO.  My memory is horrible, it takes me forever to tell a story, I can't remember certain things that happened yrs ago, I've forgotten people, my kids get so irritated with me that I don't even want to talk because I repeatedly ask questions and forget that I had already asked.  They get upset and tell me to stop and that I'm just not paying attention, which hurts.  My son tells me I can get a job at a desk, I tried that and it didn't work out, I forgot how to type a formal letter one time, it took me 3 hrs and it still wasn't right and I was let go shortly after.  I used to be so social, even back in 04 and now I'm a hermit, afraid to hang out with people so I communicate through the phone and computer.  I feel dead inside. I feel so alone and misunderstood.  I'm scared I am going crazy and will wind up in a nursing home, my brother has mentioned it because of all of my falls.  I blew up on him and told him he better never do that to me.  I wonder if I have a form of dementia, I do have cerebral small vessel disease (CSVD) and it's not good.  Most people do end up with dementia from it, add on the TBI and I'm so scared.  Sorry for the long read, but I'm wondering if anyone else has gotten worse over 28 yrs of a TBI?  Thank You for reading.

Oct 1st, 2016 10:47pm

I received a TBI as the result of being hit by a car while riding my motorcycle to work 14 years ago. I also incurred damage to my spine resulting in a paralyzed left leg. I was an athlete and a mechanical engineer. I designed and fabricated parts for SPAWAR, NASA, and other government and private entities. When I woke in the hospital I found all of my math processes were gone. I could follow math with someone walking me through it, but on my own, it was just inaccessible. The rug got yanked out from under me in the biggest way. I can no longer do anything I trained to do. My processing speed is slow, I can no longer think on multiple tracks at once, I have limited short term memory. It's like the worst parts of "Flowers for Algernon" because I remember how easy it used to be but even 14 years later I can't find my way back there. It's caused major issues in every aspect of my life. My wife wants me to move forward with my life but disabled, with chronic pain and memory issues the best I can tell is I'm unemployable. Anything that interests me is outside my grasp. I have no idea where I'm supposed to go from here, and all I get are platitudes about not giving up, and pushes toward religion. I need help from someone that's been where I am and made it through the other side.

Sep 24th, 2016 4:12pm

I'm so sorry to hear that you have a brain injury also. I'll pray for you and your child. It'll be ok. Keep your head up, please.

Sep 14th, 2016 1:19pm

My nephew who is 14 months old fell from the terrace on 1st floor and fell on his head. His skull is cracked, head is swollen, he is fatigued and keeps falling asleep, he vomits continuously every few hours and his left side of body is responding slow. Is there any way he will be able to live a normal life. He was very hyper, and ran around a lot always trying to talk. Now he is the opposite just tired all the time. The injury happened 2 days ago.

Sep 2nd, 2016 12:55pm

That was simply amazing. You told it like it is. I tore the left frontal lobe brain and severe bleeding on my brain however I did think every person with a TBI had seizures. Guess I was wrong. I hate my change in mood now. My psychiatrist has me on 6 different pills. I go from angry to anxiety to worry about every single thing and then the next minute happy again too fast. It's like my brain is moving so fast. How can I slow it down? It causes me problems. Would you mind if we speak via email?

Sep 1st, 2016 2:13am

I sympathize with you. I was reading what was on the internet because my daughter had a brain bleed when she was 4 and is now 28. And I'm worried. You should go to a good Dr and get that cat scan and tell them what you wrote here. Good luck and get well. I know you can do it J

Aug 3rd, 2016 3:22am

Hi, yes, I'm searching for info with others maybe in a similar situation. I wonder how my thinking has been affected? Unlucky in misdiagnoses for a long time despite coma. I found neuropsychologist the best help but have so many worries regarding quality of self after, but I have to accept I am as I am now. Such a loss but working on the good bits and bad. Tough call.

Aug 2nd, 2016 12:39pm

I'm diagnosed with PTSD/anxiety after an assault and head injury at work.  Now, my thoughts repeat and review a memory centered on being beaten over the head with a brick by a boy when I was 5 years old.  I also have memory of sexual assault at age 5, and sexual behaviors which may have been the reason I got beat by the boy with a brick!  I think I had a concussion at 5 yrs old, and a TBI, because I went through emotional symptoms like an anxiety disorder, and I couldn't learn.  I was irritable "always crying", angry, moody, learning disabilities, unable to read or communicate fluidly, and my mom was angry at me for it.  None of this was ever brought up with my Dr., or critically looked at by my mother.  I developed inner ear aches, and missed a 1/2 year of 2nd grade. My memory informs me that my injuries were not healed adequately because I lived my life with social anxieties, early onset substance abuse, learning disabilities and eating disorders.  And now, at 48, I have PTSD, no job to return to and difficulty learning new skills.  I’m stuck rationalizing and normalizing my behaviors and life path.  I am experiencing great internal conflict in my relationships with difficulty focus on a plan to get back to work.  I'm jumpy and unfocused.

Generally my life has been a struggle and a grind.  I've never acknowledged the difficulties I experienced as a child, as though "denial" my family's coping mechanism, would make it better.  Now, I'm looking at the assault with the brick as the root to my problems, but it doesn't matter at all. I need to get over my sensitivities, anxieties and difficulties - heal and go back to work. 

Jul 29th, 2016 3:33pm

When I was 10 years old I suffered a subdural hematoma. I am now 41 years old. I was in a coma for 3 days my parents were told that I would have to learn how to read write walked off again I never had any of those problems. My life changed a lot I was very aggressive and mood swings lot of fights my school work was less than average when I was very capable of carrying a straight-A average. I had a hard time focusing my parents took me to the doctor and I was diagnosed with add. My parents came from the old school did not believe that I'm just thought it was my attitude so I was not treated for it. Now after reading some of these articles on 41 years old I cannot stay on task and anything I do my mind is always racing thinking about 10 different things at once. I still have a lot of aggression and for no real reason add is worse than it ever has been I also have become very unmotivated to the point of laziness and I am not a lazy person I just do not have the energy or the desire to do things that I know I need to do. I've never had an MRI and Cat Scan sense my operation and I was a life-threatening operation they actually had to bring me back my skull was crushed can I have had many concussions to my life over 10. I am just wondering if any of this has anything to do with my traumatic brain injury what I am I just truly destined to feel and look like a loser. I've had beautiful houses is marriage with a beautiful daughter that divorce massive depression which put me back in an aggressive confrontational state. I just want to live my life without my my always racing barely sleeping but always tired and unmotivated. I just want to know if any of these things can be reversed cuz it seems like the older I get the worse all the symptoms get. I recently also had a seizure my parents look at me like I'm a failure I was talking with someone the other day and they said if you go back and be any age you could be what would you be everyone's answers were 16 18 I said 9 to see if I would be somewhere different in my life. I'm to the point where I don't really care about anything set my daughter I recently lost my job my insurance I'm just at a point with no answers and I need help. Everyone thinks I'm just lazy and I'm a good Father but that's about the only thing I'm good at. I just don't see my life going anywhere if all my symptoms are just getting worse. I've never discussed the traumatic brain injury with my phone because they would just send it I'm using it as an excuse for my problem but I really feel that that day changed my life. New Hampshire region everything on this article and a lot of other articles all the symptoms they fit me like a glove I'm afraid because all they're doing is getting worse. I don't know if anyone can come up all these post but if you could and you have any information that could help me I would be more than appreciative I just feel lost and confused and I don't have family that I can ask for advice or help they would just say I'm making excuses. Sincerely confused and lost!

Jul 21st, 2016 2:18am

I suffer from a TBI due to a gunshot, .357 to the back of my head, point blank by my late husband. I spent weeks in the hospital learning to walk and talk all over again. Initially I went through much rehab, but then they said I was fine. I thought I was. The last 24 months I have had migraines, balance issues so much I have broken an ankle and both wrists and shattered my humorous and shoulder just 9 weeks ago. I am fatigued all the time and I have a hard time remembering, I have to write everything down. I did great in the beginning. but my seizures have increased and my balance is so off I started using a cane. I'm only 50, so I cant go on disability and I am the breadwinner, so I have to keep working. I just missed 8 weeks of work and its killing us. Is there any organization that can help? I want to feel "normal" again. 

Jul 14th, 2016 3:27pm

Hello.  Last November (the night of the Rousey fight)  I had a bad fall in a handicap restroom with tiled walls.  I don't sit on toilets.  When I was bending down to pull up my pants, I lost my balance.  I couldn't brace my fall because my ankles were tangled in my pants.  By time I threw my hands up to brace myself it was too late.  I would say I hit my head full force at a 45 degree angle.  It stunned me, I felt a vibration, and I just dropped to the floor.  I felt like I was swimming while trying to get back up.  I could feel myself about to pass out, but I fought it.  

It's weird how you can think of all these things within seconds.  Well I just laid on the floor for a guess about 5 minutes.  I finally got up and left the room.  I was not walking well and seeing triple, but thought it was just the alcohol kicking in, but I've never seen double and definitely not triple.  But I still just kept quiet about it. I felt like an idiot.  I got back to,the table laughing and my friend could see a slight splotchy spot on the front right of my head.  It kind of turned into show and tell.  What upsets me is that I had a little voice telling me I needed to go to the hospital, but my friend's a nurse didn't pay too much attention to it, so I figured it was no big deal. 

After about 45 minutes I made it home safely but stopped to get something to eat.  The following morning I threw up was dizzy and couldn't walk right.  My head neck and shoulders were killing me.  I say I was like a test car dummy.  The rest of my body was still going forward and squished against everything.

Anyway later that day I noticed a large red spot on my head.  I showed it to my nurse friend and mom, but they didn't seem like it was a big deal so again I blew off going to the hospital.  Later that night I noticed red in the corner of my eye, by the next morning the red showed up on my lids and under my my eye.  Then my other eye started getting the red.  I consulted with Dr Google and four that the blood was draining in my eye sockets which saved my life.  If the blood kept collecting in my head ..... The red spot did go away once my sockets started to fill up with blood.

After a three day period my eye socket were completely full of blood.  Just draw a circle around you lids to where you feel the cheek bone and the crease of the eyes.  Color and fill the circle with purple color and that was me.  

My conflictive functions were so messed up.  I couldn't put the drip plate on my stove on the right burner.  It took me 15 minutes to figure it out.  My speech, memory, concentration was messed up.  I was snapping at people.  I couldn't remember when I ate last-----still haven't seen a dr. 

There are some other things I went through but after 3 months I started feeling better but still having issues here and there.  OMG!!!  My anxiety was through the roof.  I was already dealing with anxiety before the incident, but after I was having to take so much more than normal. 

Well here I am 8 month later and feel like I'm having somewhat of a relapse I guess.  My bump is starting g to fill with fluid, headaches, severe exhaustion anxiety emotional.  Thursday and Friday I could not get out of bed because I'd get that motion sickness feeling.

Now I'm finally trying to get into see a neurologist.  At night when I get sleepy I freak out thinking I'm going to fall asleep and not wake up.  I've been up for 36 hrs or more.  I'm so emotional and I can't stop crying.  My brain feels like it's tearing away from my scalp.

I just feel like such an idiot for not going to the hospital when this fist happened and not getting treatment.  I'm afraid I've allowed more damage to happen by neglecting my injury.

The really sad thing is that my friends and family think I'm "milking" the issue.  I don't have anyone to talk to about it.  It really sucks.  People don't understand how I'm still having issues.  Its like the if you don't look screwed up, you're fine.  

I have to wait another day to try and see the neurologist my np referred me to.  His hrs are weird so I kept missing him Thursday and Friday.  I hope I can get some definite answers. 

Wish me luck. 💞

Jul 10th, 2016 8:16am


My husband was "blown up" in his time in the Army. He received frontal lobe damage. Back when this happened the military was still very against anyone being treated by a psychologist. He received treatment for the main injury and was sent back to his unit. He never received treatment by a behaviorist. The stigma was there for many years. He functioned as best as he could. He hid everything. I think without knowing it I ended up "covering" for him a bunch way back then. I took over the finances, managed our home, and made most of the important choices for our family. Then in 2008/2009 he was deployed again. He was deployed back to the place where he had been injured. He came home from an "easy" deployment a completely different person. He was verbally aggressive, had every PTSD symptom I have ever learned about and was just angry. He needed to be right even when he was wrong and was forgetting things. I had started school during his time away to keep myself going. I chose Psychology: Applied Behavior Analysis as my choice for my degree. I kept up with this education until I received my Masters. I did this to understand him. The VA doctors have called him a "Shammer" because the National Guard seems to have lost his files. Every medal, every single paper surrounding his injuries has vanished. I have tried so many times to find them and nothing. The point is that no one there is treating him. They have thrown pills at him and left him untreated for over 11 years now. I am the only one that has done anything. I set alarms, leave notes, and try to keep the stress levels down. I am just a wife here. I know that he has been injured. I was there when he came home from that mess. I was there and I have been there. I wish that less time can be spent trying to pick apart these Vets and more time was spent on their on their treatments. Most of the symptoms listed above and in every other article I have read or studied are present. My question is this; If treatment is delayed for this long, is there ever a chance of these behaviors lessening? or is the damage permanent? Thank you!

Jul 5th, 2016 5:32pm

When I was 4 I fell off a top bunk onto my basement floor and had a subdural hematoma and had emergency surgery. All my life I thought all the things that were wrong with me were normal. I would read a book and not remember it. I still did pretty well in school but it was a struggle, I just thought I was dumb. Now 22 years later (I'm 26) I've started getting headaches and my memory is terrible! I've had a headache for 12 days now and they think it's just migraines. Anyone else having symptoms 20 years later?

Jul 4th, 2016 10:42pm

I fell onto street pavement in 1964 at age 12 during a backward skipping race. I hit the back of my head (Occipital Lobe), vomited blood for 5 hours, then went into a 3 day coma. I had to stay in bed at home for 2 weeks before returning to school. From age 15 on I suffered severe mood swings and learning difficulties. In 2010 at age 57, I was diagnosed with Type 1 A Hepatitis C, which was acquired at age 16. I was DOA from a suicide attempt when I was 21, and came to a day and a half later in ICU where I was observed for 3 days. At age 47, I was diagnosed as Bi-polar II and have been treated for 18 years with Depakote, which has improved, but not eliminated the severity of mood swings and suicidal bouts of depression. In 2014, when I was 61, my husband of 25 years began openly sleeping with another woman every night. This lead to another suicide attempt, DOA & 3 days in ER, before a 2 week transfer to a psychiatric hospital where my medication was withheld for 8 days, then severely altered. I suffered another concussion when I hit my head because I fell and lost consciousness during that suicide attempt. My medication alteration left me extremely disoriented and lacking balance. I had another 5-6 falls that lead to concussion with brief loss of consciousness for the next 6 months. In 2015 I was diagnosed with encephopathy caused by concussions and hepatitis. I'm 63, completely alone since my divorce in 2015, and handicapped with severe osteo-arthritis, spinal fractures, neuropathy (nerve damage), and multiple auto-immune disorders. Prior to my handicapped situation I was a teacher of learning disabled students for 30 years. Between 2010 and 2014 I was fired from 4 teaching positions, after having taught at the same school for 25 years. My only child, with whom I was very close, is now 23 and somewhat estranged be caused of the trauma of the divorce, and the personality changes I went through. I miss our former strong relationship horribly. I am unable to form and maintain any real relationships and hide from the world, further isolating myself due to intense feelings of inadequacy, hence deepening depressive moods. I suffer mobility problems, tremors, daily headaches, and extreme fatigue. I am glad to read encouraging comments but I feel the die is cast for me. So much more research is needed to help people with long term brain damage from concussions, PTSD, Traumatic Brain Injury, or whatever the latest moniker is for all of us who experience it's difficulties. So little is known despite the rate of medical advances. We do our best. Right? Some days are better than others. The loneliness, especially around holidays, birthdays, etc. is torturous.

Jul 2nd, 2016 3:53pm

My husband is 15 days away from his 1 year Severe TBI anniversary. I could use some input on how I can be a better caregiver. What is good for me to do and what is contrary to his improvement. Is 1 year too soon to expect much?

Jul 1st, 2016 3:56pm

Thank you for sharing. I had a TBI about a year ago from a slip and fall. I know exactly what you mean. I have a hard time with many things such as concentrating, focusing, understanding what I read etc. No one will understand because we all still completely what they call functional. Unless you suffered one you will never know how draining this condition is :(

Jun 23rd, 2016 4:33pm

To everyone who has had a TBI; severe or not. Make sure you see a neuro endocrinologist and have your T1 growth hormones checked. This often becomes a major issue and leads to overwhelming fatigue, confusion, the list goes on and on. Also make sure you see a neuro optometrist as TBI's lead to blue light spectrum issues causing extreme headaches, fatigue, confusion, again the list goes on. I suffered a major TBI in 2012 as result of a car hitting me. 14 broken ribs, broken sternum, broken arm, broken wrist, crushed hand and five broken fingers. Then released from the hospital. Major TBI issues started 7 days after being released from the hospital. Three months of going to dentists, doctors and emergency rooms complaining or loosing my sight, throwing up often, passing out - yea they were seizures and I didn't know it. Add to that the extreme pain my hole body was in along with major headaches and just a feeling that death was creeping up on me. I finally had a stroke and was rushed to the ER in a different county. An intracranial hematoma had ruptured and was the size of a large grapefruit. Then brain surgery. I'm living but I suffer all the time. I'll never be the same again. Please make sure that family members monitor any facility your in for speech and occupational therapy. Most of them suck and have a great deal of nepotism. They tend tend to send large groups on outings so they can get internal training, all at the cost of your time, money and overall effectiveness you're seeking. Anyway I'm working at being positive and making something of a new life. Not sure if I'm making any sense though I wanted to give some advice.

Jun 23rd, 2016 12:18pm

I'm 48 years old and suffered a moderate TBI from a fall and skull fracture about 9 weeks ago. I have been out of inpatient care for 3 weeks now, and struggling hard with some of the many symptoms. Total loss of hearing in one ear, a sense of loud ringing in my hearing that makes listening to talking people hard unless they talk loud. Constantly dizzy, easily induced vertigo. Just recovered a sense of balance enough to avoid using mechanical assistance to walk about a week ago. hard to concentrate sometimes, the headaches can be horrible at times. insomnia strikes randomly. I don't notice it but my wife points out a lot of the time my reactions are verbally aggressive when the topic of discussion is quite bland. My last post - injury seizure was 6 weeks ago, it was a partial - onset seizure. Lost my driver's license from it all, not that I care to drive anywhere - riding in a car for more than an hour or so becomes annoying and painful. A lot of physical aches in my hip from the fall.  A slow process back - that's what the neurologist and neurosurgeon tell me. The fall caused two subdural hemotomas and intercerebral bleeding in the frontal and parietal lobes - ie a very bad concussion. So now I get to deal with a whole slew of medical issues, and its frustrating, sometimes you write down what the doctor tells you and then 2 seconds later, you can't even remember what color the paper was you wrote it down on.  a long process, that's what everyone tells me. okay... sure hope it lets up sometime, though. even just a little.

Jun 17th, 2016 10:33pm

Firstly thank you everyone for sharing their stories, it makes you feel that you are not alone. 

I suffered a TBI resulting in a subdural heamatoma in August 2012. It was a complete freak accident, went to the toilet in a small restaurant on holiday and have no recollection of anything until I woke the next morning in hotel room. 

The hospital care was non existent but when I returned home, I was admitted to hospital in England and escaped surgery but was monitored over six weeks 

I tried to get back to my normal life straight away, went back into work as a motivational speaker in schools. Our family went through a sudden bereavement at the same time so I tried to push it to one side. 

Almost four years on, I still suffer short term memory loss, lack concentration and feel tired. Aside from that life is great but there are times when when my self esteem totally hits rock bottom and I have to put on a brave face and brush it aside.

I am a really positive person, happily married, love my wife and family. I'm a fit, healthy athlete who runs middle distance road races and cross countries and run a business with my wife so on the face of it, things generally go really well on a day to day basis. 

We do lots of personal development by reading inspiration books and watching videos.  Setting goals and travelling plus fitness play a massive part in the feel good factor.  

However, because I am that type of person, nobody seems to understand when things get tough. It is frustrating when I cannot concentrate or forget what someone has just told me. Most people think that the injury is in the past (mainly because I don't let it own me) but it can feel very lonely when it hits back. 

The worst part is when it frustrates my wife and sometimes she doesn't fully understand how I feel. When I try talking about it, I feel stupid and pathetic and that it should all be in the past. 

All that aside, I do feel extremely lucky to be able to deal with it the majority of the time. 

Jun 12th, 2016 5:43am

I suffered a TBI in 06 from an automobile accident. I have struggled concentrating and am much slower than most. I found nothing to relieve my pain and had no idea I would have lasting effects as I do. I had short term memory loss for 6 month post accident. I went on with life thinking it was just normal to be the way I am. My headaches have gotten so severe I have had numerous trips to the hospital. Botox, surgery and meds. I tried avoiding and still try to avoid my issues. I found out in 2015 that I needed to be seeing someone not only for my neuro defects but my PTSD as well. I started treatment for pain that is still being researched and I am currently having infusions once a week. I can't sleep, concentrate, feel normal or enjoy life right now. My infusions are the only thing keeping me going and providing some relief. I throw up daily I am on shots at home. Pills don't stay down and it's a struggle to tell doctors that and show them your life struggles. I graduated from college and my head got so out of control I haven't been able to work I am a vet tech and my life is my pets. I am very down right now and struggling. I can't get anyone to truly understand that I am suffering and I too like y'all have said don't want to wake up and I wish I didn't survive my accident. Living this way is terrible. I try to stay positive but Lately I can't be. I am hurting so bad struggling to hold food down I can't even go shopping without being gone for several hours I do projects and hobbies I work out and push myself but my meds have caused weight gain. I don't sleep I make myself move non stop to avoid feeling pain. I am on so much medication that would knock most people out yet I am never sleeping. I am getting about two hours of sleep at night with my meds. Every one I see is unable to help bc there isn't much research and knowledge on TBI patients. My family say "you look good". Pain isn't always seen especially when you voice your pain and nothing is done about it. I am having seizures that are "dizzy spells" flashing lights throw me into a seizure. I have tried no meds and it doesn't change my sleep either. I have ringing in my ears, numbness and tingles. I feel every doctor winds up giving up on me. My doctors love to say I am young and it will get better but I am to a point where I am depressed I am irritable and not myself. Honestly I am struggling to even know of trust myself anymore. My husband and I fight bc no one can understand what we live with. TBI is not past it's you forever. I feel stupid, misunderstood and feel I have no-one that believes how hard living knowing what's going on and trying to explain myself to doctors is the worst. We aren't typical "migraine" patients if we were we would have better lives. The pain is unimaginable and the suffering is awful. Memory is terrible enough but to add in pain, anxiety, stress, depression and daily struggles to do tasks that are easy to most are our hardest struggles. What do I do to be me again and to get family , friends and doctors to see and understand? I do dumb things at home and feel like a problem and liability to everyone. I just don't know what to do anymore.

Jun 11th, 2016 11:31pm

To the person who has got TBI 11 years ago. Hello I don't know if you have any interests to read my comments as I have got TBI about 5 years ago, so it's still much shorter than you. I'm not from an Eng spoken country and my Eng is not great (though my major was Eng at uni) but hope I can express my thoughts correctly here and get through to you. Though everyone is different, I know your feeling and really struggled for a while. I felt disappointed to be awake in the morning, feel "Oh, I lived 1 more day and now have to live 1 more day.". Though I still have pain & abnormal sensation even after healing other physical injuries, I look totally healthy person to other people. They don't see it. People never know what it's like and the problems. Only you know exactly but I leant from experiences that it's always someone else's problem, for other people. Sounds tough but I wanna say just keep going. You are trying and that's great. You are trying really hard. I cry a lot and hate myself & people often, no friends really.....but I just keep going. I'm also fighting everyday with people's eyes. Cant sleep well, used to imagine if I was dead the next morning... Everything seems no valuable. But pls keep going. Do u try to communicate different new people? And try to greet them with a smile. Say thank you and if u help smth u'll b told thank u by someone. Sometimes just tiny conversation will make your feeling lighter. Sometime for sure. You then be more aware and "notice" some plants are growing. You can write down all your thoughts-anger&editors. Sorry it's getting too long(it's one of my issues) but I can listen to your thoughts if you write. Some days I get so tired and no energy but if you don't mind I will be here.

Jun 7th, 2016 9:58pm

Hello. Other people are telling their BI stories, so I will add mine.

I received a TBI in 2005, when I fell off my bicycle, when we were on holiday, in France. Thankfully, I was wearing my cycling helmet - if I hadn't had that on, things would have been far worse. Our travel insurance paid for a Lear Jet, to fly me home to an intensive care unit, in England.

Apparently, my husband kept reminding me of things.

"Ooh, you've cut your ponytail off!" "Yes darling, I cut it off years ago."

"What a cute little baby. Who is her mother?" "YOU are. I told you that yesterday, and the day before, and the day before...".  I knew our toddler, but I didn't remember our second baby, or that we had moved house to have space for her. Whenever the Occupational Therapist took me home, I am told I argued with him. "We don't live here, we have a flat in Surbiton!"

My day-to-day memory was bad for months. It is fine now, but I guess I will be missing 2 years forever (18 months before the accident, and six months after). I still have awful eyesight - I am officially blind, although I see OK for everyday stuff, but there is *no* *way* I could drive! I am still seeing small improvements in things like my balance, and the neatness of my handwriting (which was illegible, for months and months. It still isn't as tidy as it used to be, but it is not bad at all, now).

I was off work for 18 months (most of which was unpaid), but they did eventually let me go back. I am a university lecturer, and my memory of all the stuff I teach is fine.

However, those 2 years of memory are still missing. I don't remember my second pregnancy, or what she was like for more than a year of her life, but I love her to pieces now. (She is 11 and a half - so, it is 10 1/2 years since my accident).

I just think, all the time, "Well, I am very lucky. I could easily have died!", or my 'blindness could affect me far worse than me being unable to drive, and occasionally bumping into people or things...

May 30th, 2016 4:28pm

I have many of the same feelings of being terribly annoyed when I actually wake up in the morning. It has been 10 years since my TBI- Motor vehicle accident, 6 weeks in a coma. Good times. I think the first few years were so focused on therapy & healing and there was such progress that it kept me going (not to mention I had 3 young kids I was raising as a single mom). But the past few years I have had serious depression & hatred for life. I often think everyone would have been better off had I died in that accident (like ripping off a bandaid) rather than this slow, hateful, depression my life has become. I constantly feel guilt that my youngest son has gotten this crappy excuse for a mother and my older sons remember the 'old' mom and are constantly mad I haven't just bounced back! I have been in therapy- I have tried several different forms. Yoga, Reiki, anything! But I jus hate myself too much and am not sure why my body has betrayed me. Anyway- I get it. And with there was a fix for it as well. Life sucks. then you DON'T die!  Ugh!!

May 29th, 2016 12:44pm

In response to the person who is looking for others with TBIs 10+ years ago: I am in my 11th year now, and I am on the same page as you. I dont know what else to say, though. Yes, you get used to the anosmia. Yes, you accept that your intellect is still strong, but your ability to retain new information is limited. Yes, you can still function fairly well in social situations, but it is now a concerted effort when it used to be second-nature and you were a social butterfly. Now it's just easier to keep the distance. And it's sad and overwhelming and causes you to question who the hell you are and what, if anything, you want in life. But you generally stay silent, because no one will understand anyway. It's been going downhill the past few years. Maybe it always was, and it's just more obvious as of late. Either way, it isn't getting better. I feel lost and without purpose. And I'm more fearful of the future every day.

May 22nd, 2016 6:17pm

I was hit on the head so hard by my now x that I did not remember it happening until twenty five years later . I had a flash back of it. I then had two more head injuries. I have found playing solitaire , all of them, helps memory. Play until they are not interesting. Medication from a Parkinson's diagnose had helped a lot. I have more ambition, energy. I wish this medicine had been used on me earlier in my life. I am now 67 my first injury which was hidden by x was when I was 21. My dad noticed I had lost my sense of humor but could not figure why. I learned this later in life and maybe I could not remember him asking me anything. He died in an accident soon after. This article has been so enlightening to me. I do not feel alone now or crazy.

May 22nd, 2016 12:36pm

I had a severe TBI 14 years ago when I was 16 and still suffer consequences from it. My memory is horrible what can I possibly do to improve it?

May 21st, 2016 11:43pm

I am 10 years into TBI from a semi rear ending me. I was at a red light on a highway, and he did not brake. My husband took me to Drs but nothing was helping the lack of word recall, dulled experience of life, physical pains, seizures, severe depression and anxiety etc. Until he started taking me to see alternatives. I responded immediately. I trained and love learning about ancient ways of healing, I still experience some affects of long term TBI, but I have the tools to help myself when I get depressed or angry, don't give up!! I have my own clinic in northern bc now and I work with First Nations to move through trauma. My clinic director is another TBI survivor, and we are working with 20+ practitioners to create a reduced rate or free medicine clinic. I love these herbs and remedies: arnica, ashwaganda, chaga mushrooms, green smoothies, probiotics and enzymes, (gaps diet if you have gut issues) (gut and brain are connected, cleansing is amazing) looking for a practitioner? Look for someone that uses a protocol and is guided by muscle testing:) our bodies can do anything!

May 21st, 2016 10:04am

These stories are endless, please join us for support on Faecbook: The TBI Tribe. Good luck and please continue to heal.

May 21st, 2016 5:57am

About 11 years ago I was diagnosed as having a TBI after fracturing my skull during a bicycle accident (18 mph, no helmet, slammed on brakes to avoid a pedestrian, handlebar flip -> landed on the back of my skull). Sense of smell never came back--no big deal--but lately I have lost all joy in life. Outsiders assume I have it made: professional success, no family stress, no apparent ailments. The dark reality is that I fantasize about not waking up in the morning and get really irritated when I realize I am still alive after my alarm goes off. I had considered myself somewhat intelligent up until about 4 months ago, before things started to get really bleak, disjointed and extremely awkward in social situations. I'm trying to do everything right to get my brain stimulated in positive ways: exercise, graduate courses, eating healthy, gardening but the bouts of joy are brief and fleeting. Best case: after 30 minutes of positive emotions I am back to wishing I would just drop dead and be done with this miserable life. Anyone else with similar experiences after having suffered a TBI over a decade ago? I'm very scared this is only going to get worse and I have little to no trust in most medical professionals. 

May 16th, 2016 10:41pm

To the person who is trying to get her daughter a job, I suggest getting her into volunteering.  Many times it leads to a job or it can be listed as experience.

Apr 29th, 2016 10:57pm

Recently my mother, age 92, fell and has a TBI.  2 months later she is unable to feed herself and doesn't have a clue who we are or where she is.  We have no idea how this will continue, this may seem strange, but one day we had a mother, the next day she was gone.  Yes, she is still breathing, but living in a nursing home, unable to care for herself , talks but makes no sense at all.  She has no long term or short term memory.  Anyone else experience this?  We have no idea what to expect, other than we have been told she has little chance of recovery.  My brother who lives closest to her is feeling the affects of daily visits that are getting worse.  This all happened 7 days after my 61 year old Developmentally disabled brother died, we are reeling from PAIN.

Apr 29th, 2016 10:53pm

Wow is all I can think right now. I was reading this for a friend whose son is right now unconscious from a TBI for a month now, but found it very eye opening for me. I was in a car accident when I was 16 and was in a coma for two weeks with a TBI. Doctors told my parents that when I woke up they shouldn't expect the same person as I was. When I woke up I felt normal. I did see white dots floating and had headaches for about a year, but other than that things seemed ok. I went on to get my Masters in education and have been teaching now for 13 years. After reading this I am now thinking that I might have long term issues due to the TBI. I have very short attention span, if conversations go to fast I get so confused, and I just can't handle more than one thing happening at a time. I thought it was because I was ADD or I just wasn't as smart as some. I act like I understand what is being said, but I have to get alone and rethink what was done or said in order to comprehend. When I am in a meeting or have to learn new things I am silently freaking out inside. I am happy that I read this because just maybe I do have TBI problems and I'm not slower then those around me.

Apr 21st, 2016 11:12pm

Veterans with brain injuries/PTSD need more information about their brains so they (we - I've lived with a brain injury for 39 years) can better manage the consequences of our brain injuries instead of just reacting to it. Information about what is going on between our ears after a brain injury is long over due.

The biology of brain injury needs to be better understood if we are going to effectively treat brain injury and the consequences of the limbic system fight or flight response.

Learning about the Sympathetic Nervous System is important because the limbic system is where the fight or flight response and many of the problems (anger, memory, processing, etc.) people with brain injuries are centered.

I have found that long walks (over an hour) help me deal with the consequences of fight or flight and improve my anger, memory and processing issues. The key seems to get the blood flowing and oxygen to my brain. Sometimes just sitting and thinking about problems only makes them worse because once the fight or flight gets triggered it prolongs my body’s ability to regulate the hormones that are part of the limbic system.

Bad memories play a role in this too because the stress triggers the fight or flight response. When we set around hoping things will get better it only gets worse because our muscles remain tense and the glucose that should be going to out brain are diverted to our muscles - Institutelearn.fi.edu/learn/brain/stress.html and


The bad memories and problems continue just like a dog chasing its tail. The fight or flight remains in place because of this - we are victims to its consequences.

Exercise and mindfulness-based stress reduction work better than meds because exercise and mindfulness-based stress reduction controls the fight or flight response - meds only treat the symptoms. Becoming more pro-active in our recovery process instead of reacting to the consequences of our brain injury is important. Finding a sense of purpose and meaning is the key to recovery and will lay the foundation for building a new life after brain injury. Having a sense of purpose will also make it easier to get out of bed in the morning. Getting enough rest, worrying less and eating good food also de-rails the fight or flight response. The answers too many of our problems after our brain injury is with controlling stress or we will stay stuck in a life of turmoil and chaos caused by the limbic system fight or flight response.

This was my VISTA Project:

You might want to look into the Uhlhorn Model for people with brain injuries and veterans. This very successful supportive housing model should be replicated throughout America!
















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Apr 14th, 2016 1:00pm

I had a severe TBI in 2001 and still have severe memory issues I am trying to look for ways to help it...My memory is shot

Apr 11th, 2016 10:07pm

Hey, no pity party here.  Have TBI with seizure disorder, hit by a speeding truck 2006.  Completed one full IRONMAM post accident and completed the Wounded Warriors Ride starting in Vimy Ridge, finished in Amsterdam.  Set goals and complete them.  You are all AWESOME BEAUTIFUL BROKEN BRAINS

Mar 23rd, 2016 2:10pm

I am wondering if my mental health issues as a 43 year old that began early adolescence are related to head trauma when I was 7 years old (knocked unconscious with a bat to back of head for less than 30 seconds; I woke up in my father's arms being carried to the car to go to ER; not hospitalized; no fracture); also when 17 years old repeated blows (15-20) to back of head that left me with moderate headaches for weeks afterwards.  As I age I find myself struggling more and more to control my emotions (I feel the physical symptoms of anger all the time but nothing cognitively to cause the anger; like a chemical change in the brain took place), as well as other seemingly meaningless symptoms until I read this article; I have notice the metallic tastes, bumping into things, knocking things over, memory issues (other night I forgot about a movie we had watched the night before and suggested we watch it again.). Sometimes I really just want it to stop....I feel like there will never be peace in my mind.

Mar 23rd, 2016 10:16am

I have a daughter who had a horse accident at the age of 6yr.  She is 23 now.  She went to cosmetology school for two years.  She tried to take her boards to work in a salon, but never passed those darn tests!  She still lives at home trying to find a job.  Jobs are hard for her!  She can't keep a job for very long.  She wants to be independent, but she can't make enough money to be on her own.  She has a tbi injury from the horse kicking her in the left frontal lobe of her head. We live in Colorado.  I would like to know how I can get her help with trying to get a steady job!  She applies to lots of jobs, and no one seems to call her back!  We contacted and applied at the job center in out state, but didn't help much!  If anyone could help in would greatly appreciate it!  We are at a loss as to what job she can do!  

Mar 20th, 2016 1:49am

In 1983 i was in a car accident on november 2. I woke up in john hopkins hospital 2 weeks later. l had no clue were i was or what was going on.l was blind in one eye other eye cut and damaged. Crushed my face on impact, jaw broken in 7 places,nose crushed eye sockets, cheekbones.18 hours on operating table. Woke up blind, jaw wired shut .trake in my neck breathing for me. Doctors re built my face using my driver license and a picture of my sister, and bone pieces from my hips. Doctors drilled a 1/2 inch hole in my forehead ,stuck a couple tubes hooked to testubes with a vacuumed in them.after a second operation to bone graft the hole in my forehead.i started on a new journey.i have very little memory of the accident or my life before.i learned to do almost every thing over .talk eat walk be around people.but i did it. Now 28 years later its haunting me again.memory ,loss vision loss, mood swings,its very possible to live a somewhat normal life.But be prepared and pay attention to any changes to your health, it may come back to haunt you later in life.

Feb 22nd, 2016 7:06pm

Are there any victims of brain damaging ECT, or shock? Was "treated" with this lunatic bogus procedure. TBI the result of 21 closed head injury concussions. Lost 10 years memories, short term memory awful, cognitive, reading problems. Dulling of vibrant personality. Fatigue. Sleep issues, irritation. What stand do brain injury organization have on this barbaric assault? Bad enough to suffer a TBI in an accident, but to have a hospital and doctor deliver multiples is disgusting. People should be able to sue..Are brain injury groups speaking out against this? If not, why not?

Feb 20th, 2016 8:20pm

Hi, I had a TBI I was ran over by a vw transporter mini bus, I had a subdural heamatoma and had to have a craniotomy and a clip inserted into my brain. I have attention problems and short term memory problems. This is 2 years on and 3 brain ops later and I still have problems. All I can suggest to people in the same or even worse situation is.... Improvise, adapt and overcome! If memory like mine is a problem try leaving alarms or reminders on phones or sticky notes places. Its a pain but it helps especially with appointments :). I wish you all good luck and good healing. Andy :)

Feb 17th, 2016 3:43am

To the son that posted on Feb 7th 2016:

So sorry to hear about your mother. Best wishes and prayers for your mom, you and your family.

Your question was posted to the BrainLine Facebook community here: https://www.facebook.com/brainline/posts/10154093065042240

Many members of the community -- caregivers, survivors, and professionals in the field -- have offered advice, esources, and information. Hope this helps!

Feb 8th, 2016 12:59pm

I'm looking for any advice or knowledge about severe penetrating tbi to the entire right side of the brain. My mother suffered a gun shot wound to the head. It pierced through four of the major lobes on the right side (temporal, frontal, parietal, and occipital lobes) and I have been looking for any information about what could be expected from this type of wound. Most of the literature I have been able to find on tbi is closed head injury or from an accident that has damaged the outside of one or two lobes. My mom has been in a coma for about 3 wks and just recently opened her eyes. She is definitely aware of my presence whether by sight or sound of my voice, we don't yet know. She cant move, speak, or follow commands. She has emotional responses though. She cries when my brother or I talk to her but doesn't really acknowledged the Drs voice. They can't do an MRI on her bc she still has bullet fragments in her head so the Drs are limited on what they can tell us about the damage. I need help! I figure the only way I'll be able to help her is if I can educate myself on her condition and prepare myself for what I will be up against. I'm 28 yrs old and no way prepared for this but am trying to be. Does anyone on here have anything they can share with me about what they know on this type of tbi? Or what they think I can expect for her as far as recovery goes? She is 50 yrs old and quality of life is so important to me bc it is to her. I need to know if she has any chance of still having any type of quality of life? If she does not then I will have to make some pretty tough decision in the near future. I don't want to make the wrong decision on her behalf. So please be open and honest with your advice. I can't stand being in limbo and the Drs are too careful to say anything. I need real people with real opinions. Please help!

Feb 7th, 2016 11:46am

my husband had a fall in hospital 12 weeks and 4 days ago and had a massive bleed on the brain the surgeon operated he made it through the first 24 hours then they took him back to theater to remove part of his skull he has suffered 2 strokes since then the doctors never thought he would open his eyes he did after 8 weeks he still isn't responding to anything just he opens his eyes and moves his eyes he has had a subdural hematoma and severe cerebral infraction im still in shock and really dont understand alot ive read many things the surgeon has told me that my husbands prognosis is limited he will be going to a rehabilation centre soon to see if he will make some kind of recovery i have still got faith in my husband and pray everynight for him and thank the angels for everyday i get with him reading all your stories on here has give me some more hope thank you for sharing i feel for every one that it has happened to and my heart goes out to the relatives that has a loved one going through any kind of brain injury

Jan 28th, 2016 1:38pm


Question: My son,now 26 years old, has a moderate TBI due to a closed head injury, he received at age 12. He broke his skull from his left temple to the nape of neck and the crown of his skull to the nape of neck , basically a pie shape.  

ate TBI. 13 years ago due to closed head injury. He fractured his skull from left temple down past ear to nape of neck/base of skull, and crown of skull to base. ( Basically making a pie shape) The neurosurgeon warned that  commonly with his type of injury aneurysms can develop  later.... he is flying to California from Michigan next week. The last and only time he flew before ( about 7 years ago) he experienced such pain he blacked out, to this day states he was in such pain he really doesn't remember, just remembers PAIN... was extremely sick for three days and lost his hearing for a few weeks, but three months later his ears "popped" and he was like; " Mom I can hear again, my ears popped" ( He didn't realize he couldn't hear well until he could.) He doesn't swim underwater either due to pressure??? Should I worry about him flying again???

He states that the problems he experienced could have nothing to do with his injury - which is true - but I am praying that he will be fine.  

My son, now 26 years old, received  a closed head injury at age 12. He fractured his skull from his left temple to the base of his skull ( nape of his neck/ spinal cord area) and from the crown of his skull to the base. like a slice of pie. he lost hearing in his left ear temporarly due to bleeding. after med flight n neurosugeons etc...  Dr. Garton -  thank you lord - got him to respond, and the access panel surgery to release pressure was not performed. He was diagnosed with an epurduarl hematobin, due to the skull fractures, ... which were too large to disipitate on their own and would need to be medically removed. They did disapear on their own and no medical intervention happened, which was unheard of. The doctor stated that later - 25-30 years old he should have an mri or mra or whatever checks for anyuresms. As they were common later down the road with his type of injury.



Jan 8th, 2016 3:04am

I'm 21 and suffer from TBI (skull fracture,temporal lobe,hematoms). Accident happened in February 2015. 

Since may I suffer occasional sickness,vertigo and headaches very similar to migraines and ear which is plugged every 2-3 weeks (do to broken temporal lobe) and noticing extreme changes in emotional states. Oversensitivity and often feeling alone plus excluding myself from crowds of people (I did not enjoy huge amounts of people before but now it's even worse). 

I'm trying to get back on my feet again and currently working part-time but while writing this all I feel is extreme fatigue which I'd like to decrease by any cause. Also have trouble with putting words together sometimes and forgetting what was it that I talked about for the last few minutes. People,you are not alone. All we can do is let the time pass and heals our wounds. Take care of ourselves and continue to progress towards recovery. I'm thinking of starting to take yoga (when fatigue occurs I put on reiki healing music and meditate for 20minutes) so if anyone knows whether yoga works it would be really helpful for all of us. #struggling and trying.

Jan 6th, 2016 7:46am

The last paragraph in the narrative above describing "Traumatic Brain Injury" is a description I have not seen before. It nails the dichotomy of Head Injury like nothing I've read before.

Change is good, is all I heard growing up, post TBI. Thirty-five plus years TBI an I now see the playing field as it was meant to be.

TBI rocks your world like nothing before. It is all there for you to see and build from. I've written countless times before expressing these same sentiments.

Your life's mission has just been laid at your feet. A job, 24/7, every day of your life lies before thee...patience is the pre-cursor to all attainment...this lesson can only be learned by the individual dealing with Head Injury.

Patience and Effort.... strive, strive, strive...and light, light, light, awaits at the door of reciprocating flavors, yes, it is true...a penny for a pound of sweat or a penny for a melodious moment will create the same results in a different way...either/or, the term to guide oneself remains, JUST RIGHT...follow its path and effortless is the light!!! AC

Dec 20th, 2015 6:40pm

Thank you everyone for posting. My adopted son had a moderate to severe TBI due to severe abuse by his birth mom when he was 11 months old.  He is now 9. As he progresses through school, we are starting to see the long term effects of this injury. You all have given me the hope that with the proper "re-learning", he will be able to lead a normal life. Right now he struggles with abstract thinking (which he should be starting to develop), meaning of words, reading comprehension, impulse control, social skills, working memory and attention issues. And this mama is going slightly crazy trying to figure everything out!  Tomorrow we have a meeting with the school to try to get him additional services - this website was so helpful in educating me so I can educate them on TBI's. Thanks again everyone and best of luck!

Dec 15th, 2015 10:27pm

My name is Robert , i Suffered a tbi to my frontal lobe in 2005 , it changed my life completely . i have had tremors in my hands since and they have got worse . for the past two years i have developed tracers in my vision when i go from a dark room with a t.v. on or just a lamp and i move my head the light will follow and if i move my hands in from of my face they will leave severe tracers as well , then when i go back in to a regular lit room it takes time for them to go away but they do . its so bad i cant go to the movie theater cause i'll get dizzy and completely out of it , i've heard this could be due to low dopamine levels and im going to see a neurologist from it concerns me because i have been told it could be an early symptom of Parkinson ..if anyone has any thing i mean anything to help me figure out what could be causing it get back to me . thank you

Dec 13th, 2015 5:53pm

I had a non tramatic dual subdural hematoma and spent most of july 2015 in hospital and have had a lot of these symptoms and have poor train of thought and self worth now,im 53 white male,i almost bleed to death from taking plavix and asprin combination ,it took 2 week for plavix to get out of me so they could operate,went to emory rehab in atlanta to rehab while waiting on surgery at northside hospital-i was sent by ambulance to get a ct scan at emory main hospital and the ambulance driver did not strap down wheel chair took off fast very fast flipped me upside down on my head and i was taken back to emory icu and next day they had to do emergency crainiotimy,,i have recovered and was doing good till ambulance ride but now i feel ive lost my self worth,not able to drive and work and shakes -tremmers and cant focus on simple task,its dec 7th and i hope i recover more over time.I thank GOD im alive and my wife got me help real quick or id be dead according to doctor...Blood was to thin.

Dec 7th, 2015 2:08pm

This was a very good read….thank you so much….I'm a brain injury Survivor

Dec 6th, 2015 5:08pm

My subdural hematoma was in 1/2004. I was paralyzed on my right side and deaf after my surgery. With physical healing and time both came back and everyone thought I was fine again. But I wasn't. College educated me didn't even know what 4 plus 2 was. Have had to reteach myself things I know I knew. And have had to come to terms with the fact that there are things in my life that prior to 2004 I will never remember. The physical and outward of me appear fine but that is only because of the struggle I go thru daily in my head.

Nov 26th, 2015 5:54am

To person who wrote in on 11-14-15 @ 7:11PM who is 32 now, sustaining TBI at 15, enjoyed your perspective. As I've written previously, TBI only improves as time goes by.  You understand the equation of sustenance. You've glommed on to the situation and understand the parameters. Nothing is given to you but nothing is taken. Working with what is at your disposal is the means to attaining a certain serenity. It is all there to be retrieved......................................patience rules the day, inner calmness guides oneself, it can be done for as one thing is taken, something else replaces the condition that is no more as result of TBI. You can and will gravitate toward the simplicity of finding the replacement by living each day as a new horizon an thus you will find on your doorstep an answer to all your seeming problems. Remember patience and perspective is the path that leads to higher grounds in the journey embarked on seventeen years ago. Personalize and ye shall attain what one seeks. Just right, just right, just right......................................what falls into your field of vision daily is to be learned from an accepted the same way TBI has been accepted. You are a warrior, a warrior with a mission laid out for you. You have truly accepted this fact and your journey is limitless. You possess the spirit of a warrior.......no more needs to be said. Go forth as one.......................................!!!AC

Nov 23rd, 2015 1:39pm

I am 32 years old now, and have lived with being a survivor of a TBI from the age of 15. Was a passenger in a car accident that left my 16 year old friend dead on the scene. Doctors told my parents not to expect me to live past 48 hours because the swelling was so bad. I woke up 10 days later unable to remember why I was there at the hospital. I had flash backs of what occurred, colors of objects incorrect and time frames mixed up. Went through therapies at the hospital for the next 20 days before being released. I couldnt even remember what 8x5 was. Math was my best subject at that time. I had to re-teach myself, by the help of others, so many skills. Today I do still live with some effects of this trauma. Spelling.. thank god for spell check... it is horrible, sometimes it doesn't even look like a word. Writing comprehension can be difficult, forgetfulness, withdrawal of social situations, difficult to find words at times.. and the worst is lack of energy. Thinking can leave me exhausted at times. It can be very difficult to live this way at times but we all must remember that we still are US and thing still can make US happy. If we need to write notes or ask for help it will do nothing more than improve these skills that we all find challenging. Its the only thing that has kept me from breaking at times. Those neurons will work again!!!! Best luck to everyone.

Nov 14th, 2015 7:11pm

I suffer from a TBI. Can't find the the right words. Ringing in my ear's . it's like a electric current in my head. Waking up streaming.. No sense of smell.. Blurred vision bad since of direction and on top ptd.. On a positive iv taken my army experience to take me to Uni and becomes the best teacher I can be. That's one thing my TBI can't change..my choice's to be the best I can be...

Nov 11th, 2015 10:00am

Nov 18, 2007 i was in a car accident and almost 8 years later i am still having symptoms. I can no longer hold down a job, ive been on and off depression pills sense i was 15 ive made bad decisions within the time that it has occurred and the symptoms are worsening by months. I need help with figuring out with what i can do to get assistance by the state and help fixing my injury. My insurance is crappy and wont cover anything needed to be done. Any advice? 

Nov 4th, 2015 2:26pm

After a severe subdural hematoma at age 15 my sense of self was lost. I struggled with remembering who I was. After years of looking for myself I decided to rebuild and move on. Like others have said, I was reincarnated. It was a chance for a new life. Some times I have insight into my old life; this can be warming or saddening, but I keep moving forward. I don't frequently speak of my struggle with finding words, my lack of control in holding back my tears, or my sadness because I've learned that I'm lucky to have been given another chance. I hope that others with TBI can find peace.

Nov 2nd, 2015 11:36pm

5/19/98 was the day my life changed ..... It's now October of 2015 .... 17 years later ... I was 18 when I had a bicycle accident that fractured my skull on the back right side leaving a hole in my skull that will never heal .... I do not recall my personality before but do remember everything just not the person I was. It's been an interesting ride since then due to some neck issues that cause me pain and nerve damage in my left arm that has left it some what numb and limited to a point, wasn't able to move it at all for months. I suffer from depression everyday but it is manageable without medication as long as I don't allow mind to drift. I have issues with seeing trails .... Meaning when cars or bright lights pass by me they blur or trail behind it. I do have anger issues that bother me since they flair up or come on suddenly, I never really used to let things bother me that were petty but it seems they all pile up like a hill I have to climb on occasions. I tend to be unemotional at times she it's needed I should be or overly when it's uncalled for which is odd to me when I think about it .... But who knows. I also have had other injuries that have risen due to other incidences through out the years, examples are L5 disc fracture and such. So now after everything I wonder what's next .... 

Oct 26th, 2015 6:51pm

My sister had a TBI 8yrs ago. She fell down the stairs my father called me and told me to get on a plane as they were not sure she was going to live. I live in the USA she in England. She was in a coma for a month on a ventilator and had two major bleeds in her head followed by a stroke. She did not respond to pain and made no movement on her own it was an awful time. She progressed and was sent to a rehabilitation centre   where she learned to walk and relearn how to take care of herself. 1yr later a plate was made for her head as the loss of bone was huge about a third of her skull. She is not the same person she was no longer able to work lost her partner of many years as he could not adjust to the new person. She is verbally abusive gained a lot of weight which she obsessives about and suffers short term memory loss long term is very distorted. Panic attacks are frequent plus headaches. Jump ahead 5yrs and she started to have seizures they were able to control with medication. I skype here most days and try not to engage when she wants to fight. She is currently living alone (has a dog) but in the last three weeks or so her speech is getting very difficult for her to pronounce get out and stuttering. She made an appointment to see the doctor my other sister will go with her and I pray their is something that can be done to help. If the need arises I will return to England to care for her if she will let me. My parents live in another country and are aging she hates our father so and would refuse to go their. To all of you that have suffered this awful injury my heart goes out to you. One day at a time is all you can do maybe even one hour. I wish you all the best.     

Oct 12th, 2015 5:45pm

Savere TBI at work January 2015. Fell off of garbage truck. Eleven days in ICU. Spent next two months in Atlanta at The Shepherd Center. Best place I could have ever gone to. Still having therapy where I live in Asheville NC. Nothing against them, but they are nothing compared to Shepherd. Still have vision, balance and cognitive disability. Nowhere near 100%, but thankful to still be here. Almost died in the accident. Having to take depression meds now. Doctors say that's not unusual for TBI patients. My life has been completely turned upside down from this. Just had to get it off my chest.

Oct 12th, 2015 12:36pm

Stuck on 124 comments...? I've sent a few insightful writings recently...no one else writing? Hard to believe, but it is what it is, I assume. That's all...short and sweet, kind of like a tweet...!!!AC

Sep 30th, 2015 5:41pm

  Head on collision on way to air port, Coma 3 weeks hospital 3 months life score 3   received a T.B.I 1994, and today I turned 44 and feeling not so good, just had another MRI scan last week showing old damage to the brain and a section with low signal.  I truly thought I had done the( unheard of) and fixed the brain , through  yoga ways,  salt water cleanses  ie major salt cleanses, kunjal,nettie, Trataka and resting with feet above my head for periods of time. Yes to look at I have done well on the out side.  Problem now is I am seen to be fine,  Not true, much better in sum ways. but head problems even tinnitus as well now, I find it very hard when others judge me.                                .(to sum up)

Practice yoga, especially breathing practices and  or low impact exercise as often as possible, drink lots of water and smile, I know this can be hard but give it a go and see for your self.    The right partner is good but much time is still needed on your own too  "Balance"  

Sep 26th, 2015 12:35am

On 11/15/01 I suffered a TBI due to a drunk driver vs. pedestrian accident. It is now 2015 and I still have some lasting effects from my TBI. For example, I find myself calling people the wrong name. I will go call out every name I know while I am looking at the persons whose attention I am trying to get. But, my family and friends have learned that this "word finding skill" problems is a small part of who I am now and they accept it. Also, my short term memory is not good at all. So, I find myself with a pen and paper or my phone to write or type things down. When I listen to people talk, I get confused because I  am concrete, but others are not. I have concluded that often people don't mean what they say which can be frustrating for me. My sense of smell and taste were restored. Because I go to church and regularly attend church functions, I am rarely lonely. God has continued to put people in my life who have worse memories than I do which helps me not feel sad about mine. I have learned to love the new me. I yon have one life. Whether or not I have a TBI is not important. What IS important is what I decide to do with the rest of my life. I intend to live my life with purpose. I find that when I get busy, I get happy. Even if you have a TBI, you can have a great life. You can decide to make yourself happy. Stay positive and keep busy.  

Sep 17th, 2015 5:00am

I was 12 y/o the 2nd yr in high school, a genius who went to high school at eleven y/o. I was attacked, beaten, and had my head and faced bashed into a wall. The only think I remember was waking up two months after in a hospital from a coma, amnesia for over a year, unaware of who i was or who my family were. I was told I had TBI.I am now 47 y/o raised my 28 y/o son, but life has never been the same, still living alone, anxiety disorders, phobias, and not able to have nay meaningful relationships. I suffered a lot of headaches, memory lapses, neck, back hand face pain, joint pain, neuropathy, mood swings, depression,to name a few.I am glad I found this site, and read all these comments, because I thought I was alone.I will never be the same, unable to pass any exams, but I am trying to live one day at a time, and hopefully can get some more counseling and help that will assist me w/ my journey.I still haven't told many people what have been though or going through , just pretend as if all is normal, b/c sometimes people can really judge you, so I hope there will be more help out there for people who going through this terrible ordeal..thanks everyone for allowing me to see that am not alone, and that God for giving me the strength to make it each day.

Sep 14th, 2015 1:03am

Wow people! I am so glad I came across this. 

I had a TBI in the early 90's. I was in my early 20's. I was jumped by 3 assailants and literally turned upside down they drove my head into the concrete. I was unconscious for I don't know how long. I remember waking up and people where looking at me like I had passed out drunk. I didn't remember at the time what happened but I remember feeling embarrassed and jumping up and running to the barracks (I was in the Navy. Hadn't been there a week and didn't know anyone). They woke me up the next day and sent me to medical where I was diagnosed with a concussion and had to be watch for awhile. I had trouble with forgetting, concentration, and ANGER, but had no idea that I was suffering any conditions associated with that injury due to the fact that things gradually got worse throughout the years and didn't realize until looking back in recent years. Married when I was 34 or 35 for 6-7 years (divorced 2013). Wife convinced me to quit my job of 18 years, which I was scared to do, but thought my job was creating all my problems. She went with me on a few Dr. appointments (asked one Dr. why I was so stupid. That shattered me). In 2011 I had surgery on right wrist and shoulder at the same time (I figured I wouldn't miss so much work that way). Well, that really screwed me up. I awoke into a panic attack in the recovery room. Anxiety, which I had never had, turned into panic attacks. I couldn't drive to work anymore (X and I had the same hours, so she started driving). I struggle almost daily with suicide because I can't figure out what when and why I can't figure out. I have been told by a Dr. that was doing an evaluation for social security administration that, while under anesthesia, I could have or it was comparitable to having a stroke and all those things that been in hiding had finally came to a head, or something like that. I am finally supposed to be going to the TBI clinic with the Veterans Administration but still waiting on the phone call. Still holding on to little hope and someday understanding. I relate to the friendship, romance, time, patience, and probably all the above. Very lonely and if my X didn't want to be patient, who will? I have never been abusive just frustrated

Sep 13th, 2015 5:07pm

I'm 2.5 years post tbi after falling over 10 feet head first from a safari jeep. I lost my career as an executive, my husband and some friends who left me hospitalized alone in India. I keep thinking I will "recover" but it's true, you improve, not recover and it's a tough pill to swallow.  Fatigue and apathy, diagnosed as aboulia is the biggest frustration for me as well as chronic pain.  It makes it hard for me to relate to the person I was before and it's certainly what makes it hard on those who knew me. The old cliche that a crisis tells you who your true friends are is certainly true for anyone who is a Tbi survivor or loves one of us. 

Sep 6th, 2015 8:39pm

Last e-mail sent wasn't put up for viewing. Likely because I got a bit personal and stated the married name of my sister. This post I will not name her, only describe her demented personality. She takes joy in the agony of her younger brother... a characteristic that is not a quality one would seek to acquire... a twin, fortunately, her other half makes up for her perverted self. Exact opposite... a rehab specialist, she balances the equation out. For every negative encountered on your way to restoring the self back from a TBI, there shall be a positive to balance out the equation... the story of life, balance!!! Equanimity reigns in the universe of the living... understand, no good, no bad, everything is an equation that results in a balance of zero when you reach the end of the line, death. To be out-of-balance is human... to make this life a zero sum game is divine. Seek and thee shall be... !!!

Aug 29th, 2015 7:15pm

I suffered a TBI while serving in the USMC. This injury was inflicted by friendlys. no need to elaborate as this isn't the topic here. I suffer risiduals permanent in nature such as : headaches, memory loss,anxiety, balance ( I fall often) ,neurpathic effects,can't concentrate, can't converse w/O staying on a topic PTSD, social deficiency. Etc.I got it all.although some of these have improved a little all still exist. I don't know where and what I'd be today,but I am sure I wouldn't be where I am now. I just live my life and make the best of it I can.I'm proud of me for hanging in tough. And behind a Marine. An FYI ,This happened 28 years ago,and this took me 42 minutes to type.

Aug 28th, 2015 10:39am

I'm newly friends with a guy who has TBI. He can't do much on his own so we mostly communicate through text. He's approaching the 3 year mark soon.. I really hope he makes a full recovery but regardless I want to be his friend. Can anyone tell me about their process by the years?

Aug 20th, 2015 5:30pm

Yes both my 2 best friend jumped ship. I rarely try to make new friends now.

Aug 18th, 2015 9:15pm

I had a TBI 7 years ago. Once someone finds out I had a TBI some friends that I just meet don't want to bother continuing the friendship. Especially since I have a restriction on my drivers license I can't just go anywhere I want. Has anyone else have issues with friends? God Bless!

Aug 9th, 2015 3:11pm

What's wrong with being lonely...? It is the only way for a TB Survivor to begin rediscovering who he/she is after injury... a new you... you don't look back to find the old you... a mirage was the old you. Now is when discovery is made... which will ultimately lead to higher grounds... why did it happen?... it happened and that tells you something in itself... humbled for a reason... a chance to restore what was not... seek solace in survival... for there is reason you lived... surmount, surmont... it isn't easy, but then again, it isn't hard... you need to look at it in the "just right" perspective... what's that, you ask... develop a mantra... one you make up yourself... five words of empowerment you can repeat... I've written this before but I'll say it again... little, smalller, and smallest... the world has slowed down for us... accept that and play into the fact... a new you has evolved from a horrific incident... why it happen is beyond our means... acceptance is within... we can work with that... just right, just right, just right... AC

Aug 6th, 2015 7:02pm

I am in a position where I see many veterans that are injured what seems to be from the inside out,  because of a TBI. Being lonely seems to be an overwhelming feeling, and hopelessness. 

Faith & Gods healing power to heal all of you, your trauma and recovery maybe able to help someone else as well as yourself.

God's Blessings on all of you

Aug 4th, 2015 6:46pm

Thanks you for your comment, I have been depressed from tbi but I have a journey life is a journey.

Aug 4th, 2015 12:20am

This website is not getting many hits...? I find that hard to believe...TBI is definitely a growth business, sadly! I don't see any new additions to the writing format developed here. A great opportunity to further cognitive skills is offered when someone with TBI attempts to compose. Life is a journey...a journey that is not a straight-line. People who sustain a TBI have gone "out of bounds," referring to football vernacular. Get back into the game...set your marks...be your own guide, if that is what it takes...but get back into the field of play...as stated before, we see life from an entirely different paradigm than your average Joe/Sally...push forward and reward yourself for the new edition you are creating...the opportunities are boundless, if you so wish...the field is wide open for the TBI person...there-again, if you limit yourself and operate from a box, the picture can darken or brighten...your choice...it is up to you, for responsibility for what  you do is solely embedded in thee. Fall forward, fall back, whatever the outcome may be, grab hold and take ownership. Art C

Jul 26th, 2015 3:24pm

What a devastating story the June 10 piece composed 5:50 PM is. Amazing what persistence is shown. Wonderful your sister has found some semblance of comfort through her artwork. You never contemplated drawing back and letting her find her own way. Amazing journey of sustenance...this is the struggle that is Traumatic Brain Injury. Your sister is, or was in a constant state of rage. Slowly she has shifted into less and less rage and seemingly has found a light in artwork. Amazing the persistence of you and family. Amazing story line...put some of the burden on sister to find the light. Life is about responsibility...it is time for her to stop hating the cards life dealt her and begin to realize the warm and loving foundation that surrounds her...grow up sis, because what you have now will not always be present...!!!

Jul 8th, 2015 5:48pm

Thank you this really helped me a lot I am 62 Ty retired RN and Professor who had a MVA in Jan and remain disabled even now into July I found this so helpful

Jun 29th, 2015 1:46pm

I had my TBI 8 years ago and I am overwhelmingly lonely too.I pray there is hope for us!

Jun 25th, 2015 2:36am

I gad a tbi almost 4 years ago and my life has changed dramatically. I always feel lonely, will this ever change? Im 22 years old an feel as though i will be alone forever

Jun 22nd, 2015 3:45pm

My sister and I were hit by a car in 1992 standing on the side of the road waiting to cross. No nothing happened to the person that hit us and we did not receive any compensation. My sister was a 2nd year medical student in California at the time. My injuries were minimal. My sister though sustained a very severe TBI. She was in a coma for approximately 8 months - she eventually started showing signs and responded to family and friends. She received rehab and was sent home in diapers 3 months later. After she was home for about 2 yrs living with my parents and causing major dramas. So she moved into a condo and lived there on her own (barely) for about 20 yrs. It is amazing she didnt hurt herself.  She has never returned to school, got a job or got married. She has no friends either. She is deaf in one ear and sees double in one eye. It is amazing that she never killed herself looking back now. I guess we (the family) thought we would just ignore the situation as much as we could for as long as we could.  Her eyes remain close 80% of the time when she is not watching tv or painting (apparently a result of the brain injury). She is very very difficult to deal with and can get violent one minute and then next, crying her eyes out apologizing. She is partially paralyzed on one side of her body and has a plate in her head. She falls a lot and can be very defiant. When you try to help her - she will abuse you 80% of the time. She has been known to call names, curse, yell, hit, etc. She is like a cross between MS and dementia. As the years go on, her balance is exceptionally bad. She has scars all over her body nothing makes her happy really. She is so depressed and pissed off at the world - as is the majority of the entire family.  Men have used her throughout the years for sex, and she is very lonely. Recently the doctor said to us that you need to put her into a home which financially is not an option. My sisters condition has destroyed our family in a lot of ways and each of us suffer from some level of depression - especially my Dad who is going to die a broken heart because he could not 'fix her' - which I find is common feeling for a Dad. He did do a lot for her - although basically as another father said to me - would never be happy until his child was back to who they were before. 23 years post accident, the family as a whole walks through a slow moving funeral is how it feels. My response to my survivor guilt was to get married and leave the country and live overseas - coming back once a year to care for her. Five years ago, I moved back to the area to care for her. It has been a disaster with my family since, at best. Our family was dysfunctional before - and now we are worse. We argue over her care all the time. My sisters condition is not so much the problem. It is that we cannot work together for a solution because we are all so screwed up with our own grief and depression. When a family cannot accept the condition of their loved one, how can we expect our loved one to?  I desperately needed to see a light! My sister has done artwork her whole life - so I started her a business of her art work. With me helping her, she has started to 're-defined' her life 23 years later  - promoting her and she has shown her work on several websites and galleries When she was doing her undergraduate work, she had worked so hard to get into medical school and since the accident refused to look down any other road - but has finally agreed to - and her artwork is bringing some sort of positivity to her life - finally.  She has had a couple commissioned pieces and does gain some sort of happiness in it which is good. But again, the family dynamics are still in the way! Hopefully that will subside with time - but I have little hope much will change. I have no idea what the future holds for my sister. I dont know how long it will be before we have no choice but to put her into a home which will be exceptionally depressing for her and for the family. The doctors don't know either. As far as what I have learned 23 years on for families is 1) GET HELP FOR YOURSELF because if you lose it, how can you help at all with your loved one 2) have absolutely NO expectations on either yours or your loved ones injury - every brain injury is different and NO doctor can give you answers for sure - they just can guess 3) let go of who you think the person was before and try very hard to make peace with it 4) try to help 're-define' your loved ones life as that may help the depression. 5) you cannot control everything 6) hang on tight because it is a life long journey that never ends .

Jun 10th, 2015 5:50pm

Oh, please tell family! You deserve to have their support! All the best to you!

Jun 5th, 2015 10:23pm

I am 16 right now as I post this. almost a year ago I got smashed in the head by a cane (the cane broke instantly when it collided with my head) because some guy thought I stole his phone this day changed my life from that day on I have a best friend I can relate to because he got hit by a car. No I did not turn into a vegetable state I was was able to run quickly away as soon he he hit me . That day was the worst day of my life. To overcome this obstacles I jog everyday 2-5 miles I am a aspiring track star it help me from thinking and relieves my moderate depression ever since I start to run and I plan to run for the rest of my life. Although I may suffer from mild anxiety from time to time i guess this was my faith. To this day my family does not know about this

Jun 2nd, 2015 1:00pm

Was hit by pickup truck while riding bicycle to work had fractured spine ,neck,nerve damage to both hands , hip fracture that had to be screwed back together and traumatic bleeding within the brain. The accident was not my fault but i did not have health insurance my fault.  i have no memory of accident or up to week before the accident and for several days after. i was lucky the driver stopped and others witness it. without insurance you will get care as they are required by law but it will be the bare minimum to stabilize you. they want to get you out as fast as they can . i did ask questions but found out nothing about what areas of the brain was affected but i have noticed the affects it has had on me. lost the ability dream and what ever position i go to sleep in i don't move from it and when i see a attractive women it has no effect on me , strangely this the easiest part to deal with just as a person who is not thirsty has no need to drink. the harder parts are things like my balance and the bone that form in the muscle of my left leg and hip after the surgery. Its been almost a year, how much more i will recover i have no idea?

May 31st, 2015 9:02pm

8 months ago i met with a life changing accident since then i am not able to speak properly my left part was paralyzed but it was temporary after that i am not able to write properly...i am 23 years old male

May 21st, 2015 9:16am

To the person who wrote May 7 @ 11:28 am...a reply is forthcoming and today is that day...I scratched out something prior after reading your reply again...veratim, here it is!!!

Re-adjustment will come in time. Always, in time. Remember, there are no do overs or mistakes in this universe of man......Glad to have reached you in terms of understanding. I've been there and saw myself. No getting around that period of mourning timeframe. Now you are ready to climb, fall-back, whatever you want because you see the world from a different perspective then before you were touched. Take your time and get use to the new you...and remember, everything has been slowed down, permanently. Get use to it an in time you will come to love this new you...it'll happen. Driven once, driven thrice, driven no more...sit back and turn the channel!!! Art C

May 16th, 2015 8:44pm


May 7th, 2015 11:28am

To the person who writing was posted 4-23-15 @ 1:37PM, there are benefits from experiencing a TBI. It only gets better as you adjust to the new you. Need to get comfortable with what you've evolved into. Acceptance is a pre-requirement. Grasp the new you and go with the flow. It sounds like you were in a "jet-stream." Go, go, go...suddenly void is that space...get used to it because I don't believe you'll regain the pace of change that happened before...remember to accept what has transpired...everything happens just the way it's suppose to...don't fight fate, and therefore be late to what awaits. Accept and lean in and be JR...Just Right!!! Art C

Apr 28th, 2015 4:55pm

I ran into a interior glass wall leaving my brand new, first day back to work office building almost two years ago. Our previous office building was hit by a tornado which forced us to.  I was checked out at the ER and was told I suffered a mild concussion, put on bed rest for 10 days and I would be okay.  Three months later I was rushed from work to the ER with symptoms of having a stroke.  The doctors ran all the test including a CT scan all came back negative.  I did not have a stroke.  The neurologist diagnosis was TBI from the injury I previously sustained .  I was admitted to the hospital for observation, I was floored!  Fortunately, my injury is not like most on this page. But want people to know not to dismiss a hit on the head as no big deal as i did.   For me I had difficulty wrapping my brain, no pun, around TBI.  After many inconclusive diagnosis behind me including a month stay in mental health facility I continued to walk around in a fog and concluded that maybe I was going crazy. I was placed on permanent disability and no longer able to work. I am now under the care of two highly reputable nero psychiatrists in my community who have taken me off all the psychotic medication and now on Nuedexta, with an anti seizure medication and mood stabilizer.  I no longer sufferer with extreme mood swings, which was mainly rage, anger and crying.  My cognitive have improved but I've come to the conclusion that they will never be the same.  My anxiety is my major concern as I live in a hyper vigilante state of fear now, i now question everything.  I  have days that I'm afraid to drive as I seem to become confused, disorientated and afraid, so I don't, I no longer flying, as I did in previous life for my company and vacation.  I cannot tolerate large crowds,or noisy areas; in other words my social circle which was the size of the globe is now the size of a dime.  I am hopeful with time and my new meds this too will improve

Apr 23rd, 2015 1:37pm

Hello, I suffered a TBI last May when I passed out (from sleep apnea which I never knew I had) and fell off a ladder. I too went thru the metallic taste, anger outbursts, lack of tolerance, unable to comprehend what I read or see, etc.  Last August, my doctor asked if I had been driving and I was quite appalled! I couldn't even comprehend where I was going, let alone drive.  I did start driving in November but 1/2 mile away thinking maybe I need to do this.  Still not 100% okay with driving. There are days I feel very clear headed but many days I still have cloudy or out-of-it feelings.  I was tested for sleep apnea and am now using a c-pap nightly and has greatly improved.  However, he believes I need to go on Nuvigil 100mg each morning to help with the sleepiness I feel in the morning (his words, not mine) I sleep great and never feel tired during the day. (I'm like the energizer bunny, always have been) So I've taken Nuvigil for 4 days now and he states the effects should be immediate, I have not seen or felt any different.  Does anyone know what may help with the spacy feelings?  I'd like to start working again but do not feel confident with how I feel.  He does not feel I need any type of unemployment benefits or disability benefits because he feels this is temporary.  However, my husband and I are selling our home because of my loss of pay.  So sad!   Thank you all for listening! Love to all, Stephanie

Apr 8th, 2015 12:14pm

I'd like to post some information of significant rehab benefit to the readers of this site. Closing in on 35 years of dealing, living, with TBI, you gain some insight. First and foremost is simplicity is your benefactor......................................simpler the better..................................is the motto to live in.........................................an example of this is incorporating rehab in your daily activities 24/7. Brushing your teeth is one of the most beneficial tasks to re-establishing the corridors of enlightenment on the journey forward. You must "focus" when brushing and there is no outside interference. You gain co-ordination and dexterity. Use one hand or two............................two ideally is the goal. Start with one an in time the other arm will gain the necessary ability to be included. It also strengthens the core and spinal column...........minimal, sure, but it's there.................the most all encompassing rehab around, in my estimation............................................simply because "YOU" control all aspects an YOU can do it. Success, success, success..................................if you fail, try, try, try, again until the task is mastered. Remember, small to small to smaller is where the journey begins..................................................patients heals in its own way...............................................in time!!!

Art C.

Mar 16th, 2015 6:36pm

I would like to add a further comment about the the every day care-giver of someone who sustains a TBI. Care more than likely falls on the Mother initially if not forever when returning from the hospital. Such was the case with me. After three months in Wyandotte Hospital, I came home. This is when the "real" rehab begins.

Free of the cumbersome nature of a hospital, home initially lifts your spirit. But the haze of where you stand in distance from your old self soon returns and depression is your constant companion. But Mom is always there, irregardless.

I, personally, was motivated by the loss of girlfriend, who I might add was going to be taken from me that night one or another, and the relentless work of my Mother.

She started a "head injury group" Downriver at Wyandotte Hospital. She pushed and cajoled to make things happen for her son, me. For that MOM, I am ever grateful...but also grateful that the opportunity of such service could be extended.

For it brought us back to the beginning...society can be a cold setting for growing up into its arms...returning back into the loving arms of your Mother is a good thing...and that is what happened and magic of love helped me to create a new person...re-incarntion in living form.....the journey adjudicated by Mom.

Arthur Cortis in memory of MOM...!!!

Mar 3rd, 2015 2:34pm

 life...sustaining a TBI at some point in the journey allows one to view life afar, it seems. What was, was, what is remains elusive, seemingly impossible to regain the "old me."

Sustaining a "Traumatic Brain Injury" is a primer in controlling the "ego." The benefits of reigning in this instrument of other/under/worlds is immeasurable. We get a chance to experience the flip side of life...before the chronological time frame is reached...a benefit that is not seen as you experience the depths of depression from this incalculably action that has overwhelmed the body.

Peer into the future, oh chosen one...for you have been granted a gift in reverse...life is about perspective. Look, feel, see, how it be...!!!

It is there for the taking...life, choose carefully, for the master of deception may seek to send thee astray. Humility is the path you have been forced on. Accept the decree and travel with the wind at your back instead of fighting the blizzard 24/7.

Choice...choose...it's only you!!!

Arthur Cortis

Feb 27th, 2015 8:31am

Hi again, wish to add, TBI happened 34 years ago. Brain Stem Contusion, comatose/'semi for a month. ICU do not remember, was there for a month.

A very serious injury is what I'm getting at. Twenty when it occurred, one year old when woke up in rehab unit of hospital. Didn't know where I was, why were all these people around the bed? Lost, extremely lost...but in the journey back, a TBI is an injury that can be repaired, in time. Patience is required. Patience and effort...assume your job is a full-time position and recovery is the goal. Small steps initially and smaller. It takes time but time is on your side since life reaches an extremely slow pace with TBI. Work the slower pace that has been gifted to you. Life was swirling out of control before the "corrective action" happened. Work with the new set of circumstances an enjoy the slower pace that has been granted to you. Of course, it comes with conditions but you can and will work around them. Acceptance is paramount to ingratiating oneself with the new you.

Always keep in mind the situation you are presently in is "just right." Guilt is sent out the door. Responsibility is assumed. Recall in earlier post stated, "there is no good or bad, everything is JR." Take responsibility and leave guilt outside.  

Remember this: We are put in a set of circumstances because it has been decreed we can succeed in overcoming what stands in our Path. To feel overwhelmed is human. To overcome this feeling and set oneself up for success is DIVINE...SPIRITUAL...BEYOND...POSSIBLE!!!

Arthur Cortis...for Liz!!!

Feb 23rd, 2015 6:28pm

Stephanie Heidrich, you were not lucky because there is no such thing as luck...as stated before, "everything happens just the way it was suppose to." You, Stephanie, made your supposed luck...you took the warrior stance and plowed ahead, realizing what was bequeathed to you, life at a level that allows you to realize the fortune one has inherited.

I read your statement since it was the one right after my two comments that run together but separate...CNA, just right!!!

Feb 21st, 2015 3:23pm

Commenting again after reading a few more of these testimonials in 2012. Believed I had it tough...an I did but after viewing more renderings of peoples TBI experiences, feel humbled. Optimism is the word one seeks...remember, everything happens "just the way it was suppose to." There are no mistakes...acceptance is the keystone to your recovery. Responsibility will come later...effort is all that is asked in the initial stage of combating the supposed "misfortune" that has engulfed you. In time, the effort and hours you put towards recovery pays off...support is needed in the early stages. Early stages can last from 1-15 years...travel forth an assume the warrior stance, for we are all warriors...sally forth into battle!!! Remember, there is no good and there is no bad...the sustenance that sustains is all is JUST RIGHT!!!

Illogical it seems now but eventually it turns the mind on automatic pilot an allows one to deal with the endless drivel of negativity that your journey is laden with...expanding your vision...will decrease the sorrows!!!

Short and sweet is the road one is to travel...for the new YOU...there are no mistakes...accept what has begot you...for the past is the past and time to embrace the new you...!!!

Art C.

Feb 19th, 2015 5:18pm

Hi, I came across this very interesting piece of reading material on my computer. Sustained a TBI thirty-four years ago. Brain-stem contusion...a new person was born. Hit by a train, comatose for 13 days...3 months in hospital, 1 month in ICU.

Life changes, to say the least...reincarnation. A new you has been born.

The perspective is always "JUST RIGHT!!!"

Feb 19th, 2015 4:48pm

I was 17 when I was hit by a city bus. I was in a coma for 17 days and years of therapy. I can relate to almost all side effects mentioned about TBI's. I guess I was lucky. I learned how to walk and talk. I work in a hospital as a CNA. I love it, I can relate to the patients because I have been there. For some reason I was given a second chance at life! I am 36 years old now, I love my life and appreciate everything that I have been though. Stephanie Heidrich

Feb 19th, 2015 1:18am


My daughter was hit by a car when she was 8, she is now 24. I have been dealing with the affects of traumatic brain injury for 16 years and it has mostly been hell on earth. She had rehab all this time except for a few years when she decided to live with her dad and he said she was "fine" She's not fine and hasn't been since the accident and neither has our family.

She is mean-spirited, sarcastic, loud and verbally abusive most of the time. She swears like the devil, is horrible to anyone in the service industry like waitresses or bank tellers, she is awful to her children and has no friends or any personal relationships that last more than a month or two. Men use her for her monthly cheque, she uses drugs and alcohol all the time, her hygiene is terrible and her house looks like an episode of "Hoarders" And that is just the personality issues!

She has no sense of smell or taste so she is always sick from food poisoning. She wears special glasses because she has double vision all the time. She has a very bad back, shoulders and feet issues because she just doesn't take care of herself. Her person hygiene is sporadic at the best of times. She has chronic headaches and there are a million other health issues, I've only named a few.

And me well I cry a lot. I worry about her constantly since I won't live forever and no one cares about her or for her. She still has rehab but I talked to them yesterday and they are talking about pulling out since she doesn't care to fix her life. I've tried to get counseling for myself but there doesn't seem to be much for me since she is now an adult living on her own.

TBI is not anything I would wish on my worst enemy. Good luck for all of those living with TBI and their families

Mom in Ontario

Feb 10th, 2015 12:58pm

I had a car wreck in Feb. 2014 which caused a TBI. I am 29 yrs old. Life the past year has been very difficult for me when it comes to understanding what happen and realizing that life will not ever be the same. I have had a lot of issues with my personality, emotional problems, ringing in my right ear, headaches and I had to do 3 months of rehab to be able to speak and put words together and understand what i was saying and what other people were saying to me, I stutter sometimes and i get frustrated easily.  I could not help my daughter who is in the 2nd grade with her homework. My Neuro doctor said I will be on Meds for the rest of my life.  I do not remember most of my childhood, some of my family members i dont remember, my daughter when she was a baby. Excepting the fact that i am not who i was before is hard to do. I take every day and just try to deal with it and make the best of the day and keep working on trying to get who i was back and be a better. 

Feb 3rd, 2015 2:19am

TBI  number one after 35 mph motorcycle accident at age 15, Spring of 1970. TBI had not been given that name recovery was quick.42 years later a bike accident resulted in a moderate TBI that changed my life. Sight, hearing, taste, smell are all altered. Two years later memory and vocabulary still full of holes.  Reality is skewed. 

Work and pleasure both lack meaningful consistency. Libido is suppressed. Skills are diminished. My new dog makes me happy.

Feb 1st, 2015 4:25am

My son had a subdural hematoma his senior year playing football.  Anoxia set in throughout his brain.  He brain swelled, shifted to the right side of his skull and slowly herniated down on his brain stem.  He wasn't expected to live, but he did.  He was in a coma for 48 days.  He was then in a vegetative state for another 59 days.  He still has his personality and memories up to age 16.  He lacks executive functioning.  He is learning to walk and we have him on a continence training program.  I think our biggest problem is his lack of short term memory.  He is now up to remembering things in about 8-10 minute cycles. It is a miracle he is alive and we look forward to any healing that comes along.

Jan 19th, 2015 12:21pm

In 2003 I had a 3 inch nail in my head for more than 24 hours. I lost my peripheral vision in my right eye. I have a lot of emotional problems, I am not social anymore, depressed all the time, sleeping habits are up and down. I have a constant ringing in my ear that get worse some days. If you want  https://depthtml.musc.edu/catalyst/2003/co5-9nail.htm check out my article. I am currently 30 years of age, I seem to be having more problems as time goes on. It is really hard to regulate my body temperature. I mean some mornings I will wake up sweating and it cold. It happens at work a lot and make me feel embrassed constantly sweating when it is cold outside. I am currently on 26 pill a day. I really hate medication but it does seem to help out the sharp pains that shoot down my neck. Where the nail entered my sinus cavity was totally rebuilt because of the air pressure. Life has not been easy, just like others some days are better than others. But I don't feel myself, I don't have a life, I have no motivation to accomplish anything which is defeating the purpose of me becoming happy again and enjoying life. No doctor won't listen to me, I have no insurance and barely can get by. It has affected everything about my life and its not fair.

Dec 29th, 2014 11:21am

Hey! Thanks guys for this information, that I need for my 27th grade research project.

Dec 8th, 2014 3:00pm

At fifty years of age I am still struggling with frustrations about what I can do and the amount of time it takes to do things I've been doing for years. Its embarrassing and I wish I could say to people that I had a serious head injury at eighteen. Sounds like your husband is lucky to have you as I am lucky to have my wife who is so supportive.

Nov 21st, 2014 8:18pm

My husband has been undiagnosed and untreated for over 27 years. When he was seen medically he would be asked about any hospitalizations? and he would respond with he hit his head years ago. From what I learned through an advocate of TBI she said my husbands response was typical of a person who has TBI. He did not realize the depth of the question or the answer. He spent the past 27 years  self medicating himself with alcohol to slow down his brain. He has had prior problems with his temper that too is a result of his TBI. He spent 5-6 months in a coma at 18 from a motorcycle accident. When he left hospital he never went back for a thing. Now that I have investigated the effects and I can explain his behavior there is hope he can get treated properly and will not be dependant on alcohol. He always knew he didnt fit in rehab for alcoholism. Its been a real eye opening experience and sad how long he has spent 'dealing" with the effects and feeling like he was crazy and now he knows there is hope.

Nov 17th, 2014 3:03pm

My son had a moderate TBI 2.5 years ago.  He still has partial hearing loss and a metallic taste.  He had a fractured skull, multiple lobe contusions, hemorrages and epidural hematoma.  He came home from the hospital with personality and emotional changes. Two months later, he decided not to let this injury ruin his life and starting running 5 to 10 miles a day.  He trained for the "Tough Mudder" marathon.  Although he still has some deficits, I believe that all that blood pumping to his brain helped heal it.  I know it is not possible with some people, but if you are newly diagnosed try to get a lot of exercise.  It may be coincidental, but how else can you explain him being able to take the LSAT exam a year later and get into law school

Nov 7th, 2014 6:18pm

Hi All,

I was 10 years old when I had my traumatic brain injury. I was hit by a car and fell into a coma for a couple weeks. The diagnosis was diffuse axonal traumatic brain injury. Hemiparesis happened to the right side of my body. When I woke I couldn't move that side at all. I had to learn how to walk and how to move my arm again. I now write with my left hand (I was a righty) and I walk with a limp. When I smile my lips don't arch all the up on my right side. It's still considerably weaker than my left side.

My memories were for the most part all intact. I remembered my family, friends and where I lived. My intelligence was still all there too. I am less social and i do get anxious easily now.

I am 25 years old now and this article helped me in realizing all brain injuries aren't life changing. Thank you very much! I wish you all a happy and healthy recovery!

Nov 3rd, 2014 5:27pm

I was 16 in 1991 and was in an accident I suffered a severe brain trauma and had trouble in school.  Years later I graduated and joined the military I started to notice that I would drink almost every night and often became very defensive when people would try to help.  Later in my thirties after loosing many friends I started to just blurt things out even posting them and not understanding why I would feel and say these thing. I'm 41 and I have noticed I'm getting worse I teach at a school and get aggravated when people on my team try to help. I have never tried to get help an I'm very scared. I have made an appointment to be seen but what do I say I have lived with this for so long I don't know how to react I feel lost and alone

Nov 1st, 2014 11:12pm

Did anyone on here have an injury who went deaf or possibly a elderly grandmother?

Oct 23rd, 2014 9:30am

This has been so helpful. I was feelin like the only one with on going problems with anger, and day to day routines. I sustained a tbi november 2006. Was kicked in the forehead by a horse. Fractured skull and some spine damage. My Dad wasthere and said it looked like someone took a hatchet to my head the fracture was clear to the brain how no bone ended up peircing my brain is beyond me. Eight years later some I know I have memory problems and some days are worse than others... Controling my anger and well all my emotions is really becoming a problem lashing out at the first person who crosses me. Even bigger problem trying to explain to someone that you have suffered a TBI and it isnt like II want to be unhappy or pissed off or easily angered. I dunno how many times I have been told oh you can controle it when really I dont feel I can... I have been to the point now at 27 I have to put my self in timeout just so I dont blow up. Larg crowds I cannot handle anymore... and some social situations and quickly disliking someone aand being less accepting of people. I stil, have good days and defiantly bad days, if there is a lot going on no concentration on what needs to be done. And for work they dont really allow the whole brain injury excuse when the accident was years ago, I know a lot of people are sick of gearing bout it but itsone of those dealsyou cantelk someone you still have problems with it years later and they just think its an excuse.... lots of frustration here

Oct 22nd, 2014 11:52pm

First and foremost I would like to express sincere appreciation to the scholars who wrote and published this article and are allowing people like myself to add comments and share our experiences.  For over two years I wondered what was wrong with me and why I had so many problems that, until recently, were virtually unexplainable.  At least I now know that I am not alone.  I can't say that makes my life any easier - I am going through, quite possible, the most unhappy time of my entire life. But I feel consoled by the fact that I'm not alone.  
One June 1, 2012 I was hit by a car that was traveling at almost 45 mph.  Two days later I received emergency surgery for an epidural hematoma.  
Prior to having my accident, I'd spent the entire year taking entrance exams and preparing to start  Mexican law school at the Universidád del Valle de México, one of the most well known and prestigious universities in the country. My father had agreed to help me with my living expenses and tuition.  I was about to embark on the most exciting and promising journey of my young adult life.  
 I didn't want to stay in the hospital any longer than necessary.  I didn't want physical therapy or any of that.  I had deadlines to meet, and I wanted to start school as planned.  In spite of having a broken leg, a broken shoulder, broken wrist, and recovering from brain surgery, I was able to start school as planned. Looking back, I should have been more patient and waited until the next quarter.  I thought I'd be able to bounce back from my injuries, and I was wrong.    
Soon after starting school, I began suffering blackouts.  Usually they would happen when I was at home, but twice they happened while I was on campus and  on both occasions I was taken to the local hospital in Nuevo Laredo.  The school staff was caring and supportive, but my parents were convinced that these episodes were drug related.  On my first trip to Laredo Medical Center, my mother told the doctors that I had "overdosed on Ambien".  This was her hypothesis because she found a full bottle of Ambien by my bed when she went to my hotel room.  Seems like, if I had overdosed on Ambien, the bottle would have been empty - not full.  But anyway, they treated me for drug toxicity based on what she told them and had she been honest and told them that she -suspected- it was a drug overdose but was not sure, they probably would have ultimately referred me to a neurologist who would have prescribed me with PTS and saved me from the months of pain and confusion that followed.   
My dad decided that the best way to "handle the situation" was to lower my stipend to almost nothing; consequently I never had enough money to go to a primary care physician or a neurologist or to even life comfortably.  My health insurance covered ER visits but I never had enough money to pursue any more treatment.  One one occasion I was referred to a neurologist by the ER at Laredo Medical Center and when I went to my appointment,  I didn't have the $15 co-pay.   

After living like this for months, I visited my mother in Austin and she witnessed one of these seizures.  She took me to St. David's ER in South Austin and I was diagnosed with post-traumatic seizures resulting from the traumatic brain injury I suffered when I was hit by the car.  I was prescribed medication and these episodes began to occur less and less.  The last time I had an "episode" was the day I was supposed to start my new job at a law office in Laredo, Texas.  By the time I was finally able to dress myself and go into work, I was fired on the spot for my physical appearance, arriving late, and looking totally dazed.  They'd come across some misdemeanor drug convictions when they did my background check for employment, hence, they assumed I was high or hung-over or God-knows-what.  
Consequently I had to drop out of college, move to Waco so I could take a dead-end job with my DAD, and try to "not think" about my goals and everything I worked to accomplish for such a long time.  
I forgot the name of the seizure medication I was prescribed but honestly, I took it for less than 6 months.  I recently started driving again and, although a big part of me died when I was forced to leave school, I can say I am living a somewhat normal, albeit monotonous and joyless life.  
My last seizure was in May - I think.  It is possible that I could have had seizures since then (I'm unaware of them when they are going on) but none of the signs (waking up exhausted, confusion, dizziness, etc.) are there.  I hope, I hope, I hope that chapter of my life is over.  
If anyone out there is having or has had an experience similar to mine, feel free to contact me.  I had to face these ordeals alone, with criticism and skepticism instead of support, and no one deserves to go through that.  

Oct 22nd, 2014 1:28pm

youare incredibly strong woman! you have just sparked something in me idk what, hope? i have had neumerous blows to head but nvr wentto er except once nevr told about this describe me totally

Sep 19th, 2014 10:45am

My ex husband was in a motorcycle accident last Friday. He is not responding. He is posturing. Not with his arms up.. And he makes random movements. I have heard he occasionally has moved to stimulus but one nurse says one thing the other another so I am sure it just isn't that frequent or they just don't know. Yesterday it was 72 hours. Don't know the future. What I have read... Posturing is not good. They say he is not in a coma. A semi coma. What's the difference. They said currently on a scale from 1 to 6. One being worse he is a little above a one. I pray the number will go up in time. It is encouraging to hear your stories. Life events We just never know. Have to rely on God. Know that he never abandons us.

Aug 12th, 2014 9:37am

Hi all. I fell from a fire escape in 2006 and had a severe brain injury. Was in coma for 15 days and the hospital for 2 months total. I was lucky I was a second semester senior in high school at the time and was able to drop some classes and graduate. Then went to ucsb and graduated in 4 yrs. Wasn't a great student but I graduated! Life was good in college, except for I definitely had way less impulse control than normal when drinking. Trying to drink in moderation now. In the working world, life is a struggle bc my memory sucks. Having to give speeches and participate in meetings etc. is really tough. I haven't been fired yet, but it's bc I work for my Dad. I get stressed so I smoke cigarettes, but then I get the worst dark circles possible. I have contemplated suicide but know that is not the right answer. I have lost my best friends bc my personality has changed (but that's mostly bc of my drinking habits). I get angry when drunk, but also very irritated and annoyed when sober. I get depressed easily and don't really like too many ppl. My Dad is a great guy and nice person, but sometimes I just don't even like him. I am really considering leaving my family-centered life (no gf/wife or children) and becoming a recluse, but deep down I don't want to.

Jun 23rd, 2014 7:12am

Hello, I had a tbi I 2011 I'm doing well considering I almost died was in a coma for several weeks. My short term memory is very poor my ears ring I have balance problems headaches insomnia, I get so tired so easily and crabby but each day that passes I look at what I can do and not what I can't anyone who is going through this just be patient with yourself and go one moment one day at a time be thankful you are what you are keep going ... Colleen

Apr 29th, 2014 5:42am

I was in a wreck when I was 13 yrs. old back in 1983 and was thrown out of a pickup truck after we hit a telephone pole going about 40 mph. I spent a week in the hospital for head trauma and sustained a huge gash to the base of my lower skull area and almost lost my eyesight. I am very thankful to be alive, but I have often wondered what impact it has had on me personally over the last 30 plus years. I have a 9 year old son and I owe it to him to be the best father I can be. I don't have a lot of patience with people and I an easily irritated and have been since I can remember. I do not have much memory of the wreck or my time in the hospital and really am looking for people with similar stories and daily struggles.

Apr 27th, 2014 3:33am

I had a TBI due to a right frontal lobe intracranial abscess  September 2012.  I had the abscess drained, but it filled again, and developed an offspring. I had a second surgery to remove the abscess , and was treated for several weeks with  iv antibiotics. I presented as a full blown stroke, but quickly got full use of my left side with the help of aggressive physical therapy. You would never know I had ever had a problem. What doesn't show are the affects left on the inside. I have severe memory loss. I had to check in my medical files to find the year I had my TBI. I thought I was heading into my 3rd year. Timelines are a nightmare. I have such a problem trying to figure out when things happened, and I don't want to ask my husband anymore as he looses patience with me. In the last few months I have greatly diminished sense of smell and taste. I can taste the first couple of bites of things, but I  am not sure if this us just due to my memory of what they tasted like. I loose words! I will be talking and want to say a word, but can't remember it. I will describe the word to someone,and by the time they have given me the word,I have forgotten what I was talking about. I cry every day. I am so frightened that I will get worse, especially when my sense of smell and taste did not change until a year after my TBI. What else may be affected.. I want to lay down every day in the late afternoon,and could stay in bed for  the night, I don't sleep in that time in the afternoon,but often I do not sleep throughout  the night.  I used to enjoy going out for a few drinks with my husband and friends, but now all I want to do is go out to dinner,and come straight home. I used to ride my bicycle 15 miles a day and then workout for an hour. I have no urge to do either. I know I will never have the old me back, but how can I explain this to my husband! He us growiing  short on patience

Apr 16th, 2014 11:24am

Anyone here that is married to a person with TBI. I have been married to my husband that obtain a brain injury 14 years ago.I didnt know him at that stage.I knew that he has got a brain injury and supported him as his decisions were ruining his life. (friends that abused drugs etc) He is one of the kindest people I have ever met in my entire life and I am currently running his business (that I took from scratch) and making a success of it. I am his cook, PA, Secretary, sometimes cleaner as well as friend. Recently he went through a traumatic experience with his family whom he trusted (they stole his trust money) and ever since this happened everything changed... He is more tired than usual (yawning every minute or two), sleeps half of the day. He has a lack of zest in life, grumpy and extremely rude to me. (I am his 'punchbag') If I try to talk to him to ask him what I did wrong to deserve this treatment, he slams doors and take off. I forgot to tell you that he is 33 and I am 31. I dont know how to cope as the emotional damage that he is causing to me is becoming extremely unbareable. There is only so many times one can tell yourself: 'he doesnt mean it, he has a braininjury,remember?" He shows no affection towards me which is so frustrating and makes me feel 'not good enough'. He shows no emotions and his attitude when I try to talk to him is the "I dont give a shit how you feel' attitude and extremely sarcastic. I had a miscarriage a year years ago and he showed no empathy towards me and while I was 'sick' he shout at me and swear at me for not getting back to our clients within minutes after they have sent a request. I thought that love would overcome the obstacles of TBI (my love is strong enough) but how can he love me if this is how he behaves towards me?Please help me understand?

Apr 14th, 2014 6:56pm

13 years ago I suffered a small skull fracture near my right ear. I was 19 decided it would be a great idea to hitch a ride on a moving RV. I was discharged that night. 3 days later they did another MRI with that dye. Low and behold I had a skull fracture. I had significant memory loss no sense of smell or taste. It was so bad I'd start a conversation and mid way threw I'd completely forget I was even talking. have slightly worse hearing in my right ear. Headaches are a part of life for me these days. Female problems. Almost split personality disorder can't seem to make decisions easily. I also suffer from paranoia. I often feel people are against me. I'm extremely out going so it causes a conflict with my personalty. My memory was getting better but now it seems to be re lapsing my smell and taste improved too. At first I too had that "chemical" smell but for me I didn't think it was chemical. I smelt a similar smell to it and it was odd cause it was a combo of smells and every once in a while I'll get it and know exactly what it was. So I was at the salt river tubing that "smell" is the exact same as drunk people tire inertubes baking in the sun, dirty river and sunscreen and suntan lotion. Oh and my conversations in real life jump around just as much as my written ones. Like this one. So there's that too. Oh and I tend to go back and forth on thoughts like yes its good idea no that's not and back to thinking the way I was before. Hence the indecisiveness. Last thing I can think of is the inability to learn things I read and remember and if I physically complete a task a few times I'll remember it but taking direction or being questioned is extremely difficult for me. Being questioned really sets me on edge because I know I take a few seconds to minuets to answer. Then I feel self conscious. So that's my sucky reality. Feel free to look me up via Facebook if you feel like sharing your story. - Erin Rohweder. -

Apr 5th, 2014 7:56am

I agree totally; brain injury is a very permanent thing. Mine was in '96 when I was 16. I have learned to cope and adjust rather nicely I do believe. But, still to this day, I just want to rest :)

Mar 18th, 2014 12:17pm

I had a moderate TBI when I was 22 and I am now 59. TBI changes your life and it took me a long time to figure that out in order to accept and move on. Your last paragraph should have been the first. We don't ever fully "recover." TBI is a chronic condition that you have to adjust and learn to live with. 

Mar 17th, 2014 3:14pm

Suffered a TBI in 2012 April. Caused a lot of issues which really neverb have been addressed. I lost my job which has caused me much heartache as I. Was an RN nd worked with psychiatric patients most of my career. I was hurt on the job at a state facility and the let me go after stating my6 month probation was still in affect.

Mar 6th, 2014 2:16pm

I have a mod-sev t.b.I. and never rec'd help until 29 yrs, I am getting help now. I am 52, yet still in mindset of a 20 yr old. This is difficult. Alone and fighting the VA system.

Jan 29th, 2014 10:15am

Can anyone help? My mom is 89 and she had a fall in July 2013. They did surgery to remove fluid. She was recovering so well over the last 5 months but 2 weeks ago she fell and hit head again. Nothing on CT or MRI was abnormal. ...but she is having the forgetfulness and slurred speech SOME and it was like she experienced about 3 months ago when she was recovering from the first fall. Can this get better with time (dropping words, sentnces, forgetfulness) it's not all the time but she is worried and i am too. they didnt see anything on the scans. Doctor says be patient, it will get better. There is some chronic fluid still there but the doc says it will re-absorb and doing another surgery on her would be not good. Can someone comment?

Jan 23rd, 2014 11:20am

Hi. On November 23rd, I was riding my dirt bike along a gravel road with no helmet. According to an intoxicated Asian, I flew over the handlebars, according to a redneck, I flipped the bike. Whatever happened, I may never know. I do not remember anything before the accident that morning. Anyhow, I received some shitty assed medical care from lake wales hospital, and you can tell them I said that because they wouldn't even come get me out of the car at the ER. Anyways, I was supposedly found laying bleeding, in a ditch unconscious. I was taken to Lakeland (thank god) and treated there. I had some short term memory loss that came back pretty fast thankfully. 

Jan 18th, 2014 12:29am

I had a severe TBI (subdural hematoma) at age 15 in 1995. It took me many years to fully understand that I had to move on and make goals for myself; I'm now a pretty successful adult. Some things that benefited me the most in my recovery:

don't worry if people don't think you're the same person

believe in yourself

keep lists of important tasks- use a calendar, cell phone, computer

make a list of your goals

learn something new

find ways to relieve stress and exercise

These are the things that helped me the most, and I hope that others find the way. I was very fortunate to have recovered, but I still have things to work on. My anger and emotional control, in general, are still daunting tasks for me, yet I know that I'm a unique person. 

Good luck to everyone. Please remember to believe in yourself.

Dec 28th, 2013 12:42am

I had an epidural hematoma at 3 years old.  I am now 52.  I am just becoming aware that this injury could have any effect on my life at all.  I am smart but have always been considered "different".  My family thinks I don't give a sh--* about anything (*that's been said since I was a child).  I am blunt and feel like I can see through people and their falseness, I am horrible with distinguishing left and right (especially mirror image). I am insulted by television and have used as many drugs that have been exposed since age 10.  I don't fit into society's mold of what is normal and have been to jail and prison.  I've lived in a mansion, I've been homeless.  

At this time, I run a business and am well financially but have had a breakup with my fiance which is sending me over the edge with self-destructive behavior -- drugs, dangerous risks, etc.  Can anyone point me to information on long-term impacts.  I am well liked, but don't have close friends.  I don't want them.  Manipulation is second nature to me but I never manipulate for selfish reasons.  I feel like I've stopped making sense.  Please respond with any advise!  tracydawn2@hotmail.com

Dec 20th, 2013 11:22pm

Hi everyone,I had a brain injury in 1994 I have two boy's aged 15teen & 13teen I'm now 38. The last two years my aggression and depression has got that low all I think about is how can I stop this pain I'm going through and the pain I'm putting my ffamily in. The doctor's have put me on that may different meds it's not funny, I just don't want 2 be like this anymore I can only think of one way to stop it all but I also love my kid's so much I hate the thought of not ever seeing them again or hugging my husband. I feel so alone and scared I hate who I am

Dec 19th, 2013 10:01pm

I had a severe TBI on May 28th 2002. And every year that goes by I become more angry/hostile/depressed to the thoughts of suicide. To end this mental torture anyone else have this problem?

Dec 8th, 2013 1:57pm

I sustained a severe TBI on 23/06/2012  during an attack in Thailand. I suffered an epidural hematoma which required a decompressive craniectomy. I was in a coma but finally awoke and was then able to fly home to Ireland some months later. On 08/05/2013 I had my cranioplasty operation to replace the large sections of my temporal and frontal regions. I started back at University this year and I reckon everthings going alright. There are times when I may have had some problems remembering names and occasional bouts of anxiety, but I didn't bother telling my neurologist. (Not getting this as much anymore) For anyone who was in the same situation as me a few months back I'd just like to say try and stay strong and try and not get down.

Dec 5th, 2013 6:54pm

Reading this was so helpful, I suffered a tbi 2 years ago and had an emergency crainiotomy my life will never be the same but my belief in god and his healing is the only ultimate thing I have. I just take baby steps every day and be greatful for every blessing I have. May god love and give strength to any one who had suffered a tbi it has truly been the hardest thing I have ever had to deal with . Colleen tbi survivor

Dec 3rd, 2013 5:49am

I was in a roll over car accident in 2006. I was diagnosed with a TBI. I was told I had a deep subdural hematoma (brain bleed) on the right frontal lobe. Along with other physical injuries. I was in alot of pain and life as I knew it came to a complete stop. No drunk drivers just a big black bull standing lengthwise across my lane. A dark rural two lane hwy, speedlimit 65 at night. I was going about 50 up an incline. I met the bull at the top. Blk bull, blk pavement, blk sky up an incline, visibility didnt allow me to see the bull until I was face to face. I somehow swerved and missed impact but my suv flipped and rolled a few times when I hit the grass and the ditch. I was told though that hitting that big bull would of most likely killed me and maybe my whole family. I'm happy to say my husband and children were unharmed. I experienced about every symptom that I have read about and then some. When it seemed after two years I was getting somewhat better I had a relapse and got worse. Then after asking my doctors about a hyperbaric chamber and getting laughed at and told it would be a waste of time and money I went to one. It was 3 1/2 years after the accident. I was worse than ever at the time. Tremors, headbobbing, slurred speech, memory problems, bad headache that never went away from the initial head injury. Peripheal vision gone, unable to focus well, poor concentration, time mgmnt gone, my emotions towards people, except anger, gone. You name it. I've been there done that. But after a month of hyperbaric dives twice a day, 1hr each six days a week I had a dramatic improvement. It actually felt like I popped out of that state of not being me. If you have a TBI you understand maybe what I mean about not feeling like me. I felt like myself again. The drs. told me to kiss my old self goodbye. They said that person is dead and this is the new you. They said I would need help the rest of my life. I told them Yah-Weh(God) is bigger than brain damage and He is. Im not saying a hyperbaric chamber is a cure all for everyone but it can help some, it helped me tremendously. I will tell you this I got sick several months later with upper respitory stuff that went around in the winter. Went to a new dr. and told him I had experienced a TBI so he would be aware of my history before he prescribed meds but he prescribed something that brain injured persons are not supposed to take. I didnt read the caution page that came with the med until I started throwing up minutes after taking it. That night while sleeping I woke up, sat up in bed and it felt like something in my head exploded. Started experiencing some of the old symptoms after that, for about 18 months it was the worst of the worst. I am again much better but still not feeling 100 percent. I will go back to the hyperbaric chamber again but its expensive. So not right now. I want to encourage you not to give up and try not to focus on all the overwhelming negatives. The human brain is amazingly resiliant and our will and determination is amazing too. Plz read this and be encouraged, its one of the few things I was able to write during that initial 3 1/2 year nightmare. Its called ''Opportunity" I gotta get out, I gotta get out, I gotta get out of my mind I feel like a prisoner lost somewhere in time Standing on the outside, looking back at me Dazed and confused at whom I will be I gotta get out, I gotta get out, I gotta get out of my head I gotta find me, but they tell me she's dead But I don't believe a word that they say I'm not in denial, I just have strong faith That a better me will emerge someday God has a plan and a purpose for me And it will take more than this to steal my destiny So just as I changed and became a new creation in Christ I'll look at this as an opportunity to become a better me this time Because I trust you Lord completely, to me rebuild my new life... Just reminding you that your never alone.:)

Nov 29th, 2013 12:45pm

For the one who mentioned the chemical smell, posted on Nov. 9th 2013, I had a TBI just last year. I recall having that chemical smell multiple times and describing it EXACTLY like that. "Chemical smell." I guess I'll go ahead and tell my story while I'm at it. I'll try to make this as short as possible. The driver was drunk in our vehicle, I didn't know it, I was a backseat passenger. I wasn't wearing my seatbelt I don't think. We were going 100mph, lost control, hit an electrical box, flew 8 feet in the air, snapped an entire telephone phone in half (at 8ft) I was ejected out the rear windshield, landed by a bunch of steel rods and shattered bricks, "woke up" in rehab after I apparently spent 10+ days in a medically induced coma to prevent me from getting pneumonia, I received a broken wrist, 2 shattered fingers, a broken bone across my face (from left cheek to right cheek) 2 broken neck bones, half an ear that was sewed back rather quite well, a severely damaged amygdala, and bleeding near the brain stem. Spending 7 years training to be a Marine I can confirm that it blew a whole lotta dick finding out they do not accept TBI patients.

Nov 17th, 2013 7:08am

My 13 year old son had TBI a little over a month ago now from football. It was raining hard and he had helmet to helmet blow that also caused whiplash. He still does not recognize any people besides me and his dad. He has been reintroduced to his friends and family. He has forgotten his preferences in food, along with a great deal of his 13 years of his life, he has a few vague memories but doesn't recall names of some common objects and is having to relearn a lot of things . He is starting to exhibit some social problems, one of which is not knowing what kind of stuff is appropriate at times . I know its only been a month but it seems like so much longer. I am encouraged to see all the posts here so thank you to everyone for sharing the good and the not so good so that I can get a realistic perspective and be able to help him more. mom of cmb

Nov 14th, 2013 12:20am

My boyfriend fell two years ago from the back of his truck onto the back of his on the pavement. He did lose consciousness for what he explained was a dream state of mind. He spent one week in the hospital and was released with no explanations of what to expect. Since then he has a decrease in taste and smelling ability is zero. There is a constant ringing in left ear with hearing loss. He has explained the smell he smells as a chemical smell of many different things. Has anyone else had anything similar to his symptoms? Has anyone ever gotten better from similar symptoms?

Nov 9th, 2013 6:23pm

I was 4 or 5 yrs old when I Had a TBI, I was playing ballerina and fell and hit my head on the corner of the coffee table, All I remember is throwing up blood. 10 yrs later I was hit in the head by accident with a baseball bat on the left side of my head. I blacked out just for seconds, but was dazed. Depression or the depression like symptons started and its not till now, I'm 54 that I'm really having problems with memory. Long and short term. But I must confess. I did have problems with my personalty when I was young. I did not know how to socialize and to this day I still don't know how. Its very lonely and scary. Because people do not understand. And my depression is worse than ever. But, after reading about brain injuries, this might be the answer, its not just me, but something that happened to me a long time ago. Maybe now I can make some sense of what is going on in my head.

Oct 26th, 2013 1:57pm

I was hit by a car when I was four years of age and suffered a Severe TBI. After reading this article I have a better understanding of the motor effects that I am inflected with. Now over 40 years later since my accident all the effects that I understand have become just a part of my personality. I feel that I live a normal life, If there is such a thing, but with a slowed speech and taking the time to think what I am going to say before I say it, which I had learned through speech therapy when I was younger, I have no complaints of what my life has become.

Oct 24th, 2013 7:05pm

I have a moderate tbi, I think all of your stories on here are amazing. I was hit from behind by a speeding car and knocked unconcious. Memory is terrible. Cannot drive yet. Bless you all and thanks for the human connection.

Oct 22nd, 2013 5:28pm

In 1999 my husband had a motorcycle accident. His handlebars whiplashed and he flew over the bike landing on the track hitting his head, hip and shoulder. He broker his collarbone and had a 6 inch laceration where the skin just pulled apart. Emergency medics asid he only lost consciousness for 30 minutes and cam in and out of consciousness for 8 hours. But, he feels that he was conscious. He thought the same when I arrived but he was still in and out. His helmet was damaged on all four sides which meant his braid richoted in the helmet. He has had a severe personality change. He is irritable over minor things and can't let go in an argument. He is always unhappy with someone over something. I agree that the issues are disappointing but he writes long repetitive emails trying to prove his point. He doesn't laugh anymore. He was so funny prior to the accident. He is explosive if he feels inadequate. He often does not understand explanations that he used to and does not realize the change blaming confusion on others. He seems to have lost his empathy. He didn't care when he lost a good friend and his mother. He was mostly angry. He had no compassion for other people's ways of grieving. He feel unsafe and threatened all the time. He feels people don't respect him and are lying to him. It is so very sad.

Oct 21st, 2013 9:06am

07/07/2007.. I am not severely religious but the date would seem that I am still here and should be. TBI from a motorocycle accident. I am a computer software engineer. Spent a month in the neurology unit while not remembering my name and not really remembering what had been said to me 30 min prior. While I have a wonderful wife and two outstanding children. My continued mood swings, headaches, general irratability would indicate just how wonderful and outstanding they really are. While I indicate content with family. I could seriously do without those symptoms. If I I can indicate directions for anyone reading this, it might be to appreciate those that remain after a TBI. And if someone gives you a chance by saying in a conversation with you that sometimes head injuries change personalities. You should listen and get real help.

Sep 29th, 2013 8:37pm

I had severe TBI in 1990 - did great for about 16 years - college degree, etc... but I started having seizures then - now everything is a huge mess - my cognitive functioning sucks - I can't remember anything. I'm in graduate school and I'm struggling so bad - I just want to hurry up and get out - my professors all know about my accommodations and me getting lost and overwhelmed. Life just isn't as easy as it used to be. I can't remember normal stuff anymore - the doctors always told my parents that I wouldn't be the same and my parents know my personality is much different, but I can tell that learning and remembering is so much more difficult for me than it used to be. It used to come so easily - I never had to study or anything - now I can't remember what I do study = It's really caught up with me. My brain can only hold so much and it can't hold anything more! Frustrated in Texas

Sep 24th, 2013 12:25am

Incredible story. There needs to be more education regarding TBI and how early treatment is key. Share your story.

Sep 20th, 2013 10:47am

I am a 35 year old female and today is my one year anniversary from my car accident in which I was rear ended while stopped in traffic by a car traveling 65 mph, the rear end impact sent my car into the middle lane (from the right lane) where I was t-boned by a passing vehicle at 65mph, my side curtain airbags deployed into my left temple and then I was t-boned 2 additional times by other passing cars. I kept asking the cop if my cheek was broken because my head hurt so bad, he never called an ambulance and I was too dazed to realize I was injured. The cop's exact words were "go home and take some advil because your going to be hurting tomorrow"....really?? I was off of work for 3 months straight with daily 10/10 head pain, returned to work on half days for 3 months where my employer gave me full time work while on half days that created so much frustration and delay in my recovery. I am now at the one year mark and seem to be going backwards in recovery. I have severe PTSD and depression. My MRI was positive for traumatic insult to my frontal lobe as well as a abnormal EEG. That neuro said I was fine and sent me on my way one week post MVA. Soon after I had 3-4 seizures, ordered my bills and records which showed both positive MRI and positive EEG results when I was told they were normal. I did not get the records until after I went back to work on half days otherwise I wouldn't have gone back. I feel the lack of basic protocol for TBI's is a huge problem and causes more people longer pain and suffering. Air bag deployment, especially side curtain airbags with multiple impacts requires automatic concussion/TBI review by medical professional which I was never given. I couldn't find a glass in my own house just after the cops sent me home with a friend since my suv had $22,000 in damage. The police report once received advise no injuries. Every vehicle had injuries after speaking with my insurance company. Due to my delayed diagnosis and medical treatment my doctors advise I can expect a 1-3 year recovery. I plan to go back out on FMLA next month as I have perm muscle damage behind both eyes, both pupils are still dilated and are perm, including peripheral vision loss shown on testing, cognitive issues, weight loss, and still not sleeping well. Early treatment is a must, have them check your vision, balance, nutrition, and sleep habits. I have never felt more alone as many mention on this page, because I appear fine I feel like no one believes me when I will be battling these issues alone for a very long time. Good luck to everyone, stay positive no matter what!!!!! Remember we are TBI survivors, not victims!!!!!

Sep 15th, 2013 2:10pm

I had TBI on November 2010. I used to be a mixed martial arts fighter until I got TBI from an illegal knee which had me out but my instincts were still going and my fight or flight response took over and I continued the fight for another 15 minutes approximately. In that time I sustained approximately 25 impacts to the back of my head via punches and elbows which were seen on the CT Scan taken at an emergency room three days later to rule out a skull fracture or cranial bleeding. Luckily I did not but the doctor said my trauma was similar to a major car wreck. I now had a condition called Post Concussion syndrome which is pretty much like Post Traumatic Brain Disorder. It is something I deal with everyday and try to make the best of. The part that has really made me lose faith in people is the fact that we had evidence proving foul play and the North Carolina Boxing Authority felt fit to disregard it and blow me off. These guys were cops and chose to do nothing in the face of evidence that hand grounds probably cause along with a fight that had a referee that was negligent to the blows as well as showing intent to violate the rules and regulations of the State. I had bouts with alcoholism, much greater anxiety, a potentially lucrative career now over as a result, and lost my girlfriend due to changes in my mood and behavior. In order to counter act this I have started writing and now keep a blog and am working on a trilogy of science fiction novels in order to keep my brain as sharp as possible and it definitely has helped. I read some of the stories on here and I can definitely relate to the type suffering of it is. I just want people on here to now that you can still do something despite this injury and you shouldn't give up on yourself if you have. I'm not. I just hope that this condition can be prevented someday. It's an injury the people just cant relate to until they experience it. You change.

Sep 4th, 2013 5:38am

Bicycling accident, August 2004. I was hit from behind by a truck. Despite having severe head and spinal injuries, I was not diagnosed with TBI nor informed of the possible behavioral and emotional effects until well after my marriage was destroyed. "The person who once was is no longer there"

Aug 21st, 2013 2:50am

i was in a wreck this year. fractured skull into brain broke sholder bones and got pnuemonia in hospital. also bells palsy on left side of face. i was so weak lost 30 pounds and cant remember the wreck. i was in hospital for two weeks 1 week uncounscious had people visit me i didnt remember was out cold. looked at my dad and wife and mom gave me support. as well as other friends broughts meals to my home and gave money. im always sleepy weak brain hurts and nervous. but jehovah keeps me strong with family and friends. one day we will be healed and accidents no more. rev 21:3,4

Jul 31st, 2013 4:28am

I am 25 years old, and was in a coma from a car accident at the age of 5. A first aid kid came out from underneath my seat upon impact and opened and the reflector came out and hit me right in the middle of my forehead. I have been struggling lately with depression and other things and have been researching to see if the coma in the reason for this. This article had very useful comments

Jul 23rd, 2013 12:51pm

I had car accident on December 1992 and I was in coma over a month. As soon as I was wake up from the coma, I was my own, because I did not have any family. I was new in America and I did not know how to get help. I felt every one took advantage of my weakness. Even, my compensation from car accident was managed and mishandle by others. I did not have place to stay, and I went dormitory school, to have place to stay and it became like hell. Doctor suggests me to leave and rest. I did not have any relatives or good friends in America, I also I was not able to go anywhere else. To make long story short, now after over twenty years, thing are getting worse and I do not know what to do or who can understand me.

Jul 1st, 2013 6:37pm

My husband sustained a severe TBI 12/1/11 and he is still recovering. He was in ICU for 41 days and has gone through more than I can even understand. He had bone flap removed during initial surgery, got and infection 19 days later and was reopened, was in Acute therapy for a month, and then sub-acute for a month and finally came home. He had bone flap placed in,, and after 5 months had another infection and had to have it removed again. He wore a helmet for another 6 months and then had a prosthetic placed. He lost all movement and use to his left side a year after his ATV accident and he is going through therapies now. Over the last 5 months he has had 4 seizures and they can't seem to control them. He was just hospitalized last week and had MRI to see what is going on, the Drs. told us that over this time of healing his right side of his brain shows damage and that he will be permanently weak on his left side. He is frustrated and depressed and his emotions are all over the place. He wakes up sometimes with slurred speech and he has chronic headaches which are not improving. He is so strong and I am so proud of him! He tries, but unfortunately he doesn't comprehend somethings and that breaks my heart. I will say that all I can do as a wife and to try and keep him moving forward and stick by him. Afterall that is what love is all about. He is different than he used to be, he was so active and funny and always happy...I do live a "changed man" but by no fault of his own, it just happens. I am his sole caretaker and I am with him all the time, I see his highs and his lows. I just know he has to go the extra mile to work hard and he knows that too. Best of luck to all of you who live this day to day as I know it is not easy and no one will understand unless they live with someone with a TBI...God Bless

May 29th, 2013 11:04am

I appreciate your comments! I have a realistic view now. I had a brain aneurysm 10 years ago and still suffer the effects. I thought to get better would be to be perfect - not so. Thank you all for sharing and please allow me to say God Bless you all.

May 15th, 2013 9:23pm

I was hit over the head with something pretty solid in an Armed Robbery at my place of work on the 4th April 2003, IT HAS TAKEN A LITTLE OVER TEN YEARS TO GET THE BRAIN TO FUNCTION AGAIN IN A NORMAL WAY.I lost the neural drive to many parts of the body, the hormonal or endocrine was all to pot and has only righted itself very recently,last evening and I am not going to describe how I know, suffice to say I am now a slightly sad sixty-one year old suddenly, overnight. I Had no memory at all for four years, I have only just begun to reason as an adult again, I have never given in, even though I kept loosing the neural drive to the heart for ten minutes or so each time, in the first four years. I am now learning to play the piano, ça va très bien pour moi, and of course a little German,aussi mir geht sehr gute, cheers Christian Morgan.Brighton, no doctors helped me either!

May 12th, 2013 12:25pm

My dad aged 77 is currently in Criticalcare following a horrific attack in his home. He suffered 2 fractures to the skull 1 bleed on the brain, horrific facial injuries and fractures, including his nose and pallet damage. He also received massive internal bleeding needing surgery and part of his bowel removed. His progress has been amazing the docs and nurses are well considering they did not expect him to see the night through are shocked. His memory is more about his long term past rather than short term. He doesn't know where he lives or that my mum died in October of last year and keeps asking after her. The docs say it could take months for him to fully recover, what was two weeks a strong independent 77 year old pensioner is now a pitiful weak old man, but he is alive and that is all thanks to the amazing staff and his fitness and strength. I have read some of these and take it all inboard that this will be a slow and long process.

May 8th, 2013 10:12am

My accident was in 2004. March 31st, but my husband says April 1st. I think I would remember April Fools day... My problem how he minimizes my improvement (recovery ?) I am so afraid at the thought of being with anyone, but can functon with people at grocery store, can't write witj my hand so I write with a comupter. He just wants me to do dishes, cook, clean, take care of myself and be support to him like I was to do before all with a great job of 75K income. I know it is hard to take a person so changed, but he now is scaring me with yelling. I am so scared all the time when because when he yells my head spins. Now have a tremor in my hands which is going to make me unable to feed myself. So scared. This took me 25 minutes to write so it had no mistakes. I bet that errors still exist.

Apr 9th, 2013 2:20pm

While reading all these comments, I can\'t help but to feel blessed. I sustained my TBI in 2008. As time goes on I\'m able to notice my own deficiencies (such as stopping what I am doing to tend to a more imperative situation at hand) and work on bettering them. Sad to say, but some deficiencies do not go away, for me anyway. I just learned how to cope with them; jotting quick notes, being a bit more tidy (not really OCD tho),exercising, etc. However, I get very frustrated with the fact that I have a difficult time controlling my anger, getting flustered when things don\'t go as planned and making the wrong choices (even when I know they are wrong and even detrimental to me) BUT since my accident I have been raising my four year old, got my GED, started college, and even met somebody and got married. As I praise and give thanks to God for making it this far, I continue to pray for my impairments. Mainly my anger... it has become a real problem between my new husband and myself. I still do not always do or say the right things, but I\'m trying.

Apr 2nd, 2013 9:32pm

I was Six Years of age when I had my first head injury. It was 1980. I was riding my bike and my father was behind me and I lost control of the bike flipped the bike and landed on the right side of my head. I was in ICU for over 72 in a COMA swelling of the brain. My parents stated they had to sign a waiver to drill a hole in my head if the meds did not work to reduce swelling. Lucky for me they worked. I was an A/B student at the time in a Catholic School 1st grade. I was held back in 1st grade again due to this accident because once I got back into school my Moods, behavior, grades slipped to F/D's, memory, concentration levels, cognitive skills, Reading, Writing, even tying my shoes I had to learn again. Yet the doctors said there was nothing wrong with me. That the CAT scan was fine. Well when I was in 3rd grade I had to be taken out of Catholic School and placed in Public school because I fell so far behind and I just could not stay focused on anything I was lucky to be focused on myself. In 3rd grade public School I was Diagnosed with Multiple Learning disabilities. In 4th Grade I was diagnosed with ADHD my parents refused Ritalin and told the Doctors and the school to figure out another method because they where not going to have a drugged child. In 6th grade I was diagnosed with Eye problems due to the head injury that took place in 1st grade... (OH YEAH) I had to wear Tri-Focals to Bi-Focals to Glasses to Reading Glasses and went through two years of Vision Therapy for children who sustained Traumatic Brain Injury with a doctor in Ringwood, NJ Named Dr. Joel Warshowsky. IN 7th Grade I was transferred to A Special Education School Orange-ulster Boces in Goshen, New York with other students that where mentally emotional and physical Handicapped. (Autism, blindness& partial blindness, deafness & partial deafness, psychiatric condition, Cerebral Palsy, Multiple Sclerosis, Muscular Dystrophy, Down syndrome, and the list goes on. I stayed there until 9th grade when New York State tried to main stream me back into Public school again, which was a nightmare. Once I went back to my home school I was teased, beat up, raped, abused, was in a fight almost ever day, I even began to fake seizure just to get the heck out of the school. They finally sent my back to Boces however the damage to me was already done. I became Depressed, Moody, Full of Anxiety, I began to self-mutilate drawing things into my body then picking at them, this is when I began to have insomnia, and nightmares, started to runaway from home. They kept me in Boces until I graduated High School However I was never accepted at my home school even though my father forced me to walk at graduation to get my diploma WHICH I HATED!!! I was always different because of my behaviors I was never accepted everyone knew there was something about me that was just a bit off. I was eccentric & passionate in my eye, in other peoples eyes I was crazy, weird, strange, neurotic, compulsive, obsessive, impulsive, and my nicknames in High School where "CRACK BABY" & "TINKERBELL". I was 19 I was on a motorcycle and got into a accident I was lucky to be waring a helmet or else I would be dead today. In College I was called "JUMBLE G". due to my eccentric behaviors. By 1995 I was pregnant that was a nightmare all on its own. Seizures, Sugar problems, Blood Pressure problems, mood fluctuations, pains that the doctors where telling me where not their, YET they where there!!!! I was miserable. I was crying one minute, screaming another, happy the next and this is not exaggerating... I was out of control. Then I was kidnapped while I was 3 months pregnant and the police did not want to believe me. Yet they did not want to bring the K-9 unit out to search my car and do scent pad tracking on the guy which they would have found the keys to my car at the very least. Four blocks over on some persons lawn. I have had one problem after another since my head injury medical issues after medical issues. Hormone problems where always a major issue for me. I had to have multiple surgeries down in the female region I am hoping I am going to have my last one this May 2, 2013 this time they are going in Roboticly. Hopefully this will be my last and final hysterectomy!!! Ever since they took out my ovaries my moods have been easier to manage. I still have anxiety . I still to this day at 39 years of age have problems memory cognitively moods matter of fact I was diagnosed with a mood disorder due to a general medical condition with a Personality disorder, anxiety due to Traumatic Brain Injury in 2003. 2003 I was diagnosed with Cervical and uterine cancer had a hysterectomy however I have had one ovary keep growing back about every two to years with masses cysts and tumors every thing has been binge. Fibromyalgia in 2005, OA 2008, early onset Parkinson 2012 (brought on by the head injuries. At least this is what I have been told). Liver and kidney issues... Pains numbness vertigo weakness I been told it is all in my head... I tell people your damn right it is all in my head all from my head injuries I blame it all on the head injuries... So for all of you who have issues yeah I feel your pains mentally physically and any other way. I believe you over any doctor who tells you it is not possible it cannot be happen or even if it is happen I have had them to more frequently in today's day and age. So yeah I understand all of you and I feel for everyone on this website because it is so darn frustrating when Doctors think they know you and they have only known you for three minutes and never even seen a chart of yours before.

Mar 29th, 2013 4:11pm

I wreaked on August 19th 2001, I don't remember any of that & only a tiny bit of being in hospital. I never got rehab. I do know that it took me 10 years to be ok that I lived after wreak. The me know is not the same person that was here before. It is like there is/was 2 of me the one before & the one after. I had no memory after wreak none & my right side didnt want to work right plus many other things. The bones healed some things got better & went away. I still have many problems but now only with my head injury & th resulting opps just got lost. That wreak took so much & showed me that the ones I called friends before were not at all. I trust all & believe all I have been taken advantage of because of this. so my way of dealing with that is to stay away from people as mush as possible. I noticed that I react very very strongly to situations that happen my emotions seem to have gone to extreme mode. I have always had lots of emotion since wreak but this is so much more intense & way over board. I also was told that i have been talking different to someone then i have ever done before to them & I have known them for 2 years now. In 5 months it will be 12 years since I wreaked. Do i have to deal with new personality & emotional changes again.

Mar 29th, 2013 3:55pm

I had a severe TBI in Aug 1992, I fell off a car moving about 15 miles an hour. hit the back of my head stood up and fell and hit the frount of my head and of course stood up one more time and fell for a third time and hit the bck of my head again. I spent 4 days in a coma and have very little memory of the incident. About 8 years ago I noticed I started having problems with shakeing of the arms and other mentel and emotional problems. My recovery went very well from the accident, but the problems I am having now seem to be directy related to the head injury I have years ago.

Mar 14th, 2013 11:13pm

i suffered a t.b.i. over ten years ago when i was a junior in h.s. hanging on to a moving vehicle whilst riding a skateboard. i was a \'gifted\' student (hard to believe? ha) and was able to finish out the rest of the next year while earning a scholarship to study in Germany. I messed that opportunity up because I started smoking marijuana heavily overseas because, well it was strong and I liked it. Upon being kicked out of Germany I enlisted in the navy. Now when I was hospitalized it was like an emergency helicopter and medicated coma for two days kind of scenario, and my recruiter told me to \'falsify\' my enlistment paperwork to say I was only unconscious for two minutes. Well after finishing my basic training at Great Lakes I was shipped to california, to the presidio of Monterey. My inability to cope with the military life, the alienation (now that i see was of my doing), and the fine grass of northern california ended up with me being kicked out of the military with an o.t.h...a lot of things i did during that time warranted medical attention but because of my cannabis use, i\'ve been up shit\'s creek dealing with that being the scapegoat.As for the strained relationships with my family and friends they too can use \'well it\'s just the pot suck it up and grow up\'. don\'t get me wrong i should have more power over smoking because i was able to put down the bottle,but the chaos of everyday living gets to me. i\'m punching holes in the wall, getting arrested, getting fired. conning my way into employment by leaving out the tiny little detail of my deficiencies when it comes to interpersonal relationships, anger, stress management, sense of reality...and don\'t even go into the beautiful kind loving women that have blessed my life and then scrambled for an exit after months of varying \'episodes\' that make me look like I\'m psychotic or something. It\'s those 5 seconds of just pure explosive rage that come and go like some unpredictable storm that has me in a position relying on my family to support me. i don\'t want to be this person, but i am, and i have to deal with it but how?

Feb 28th, 2013 12:22am

I suffered a TBI in September of 2000 and the two worst physical injuries I received were a broken back and loss of vision in one eye. When I woke up in the hospital I had no idea where I was or who I was. I have undergone every type of therapy possible; physical, cognitive therapy, occupational therapy, and others that I don't recall. Like one person above said that there is a thought on the tip of my tongue and I just can't get it out. It's a very frustrating feeling and it happens more than I'd like. Also, like someone said, I look normal except for a slight limp and a droopy eyelid which eye glasses pretty much cover. Unfortunately like many above I have not been able to return to work. Betweein my back and my eyes I've undergone over 50 surgeries with more planned. Am I grateful to be alive, of course I am. I was able to give my daughter away at her wedding and I was able to enjoy the birth of my two grandchildren. The only thing I can do is to keep fighting this and some day contribute back to society.

Feb 24th, 2013 12:17am

I suffered a TBI and also broke my neck in 2000 while a passenger in a car accident. My life has never been the same since. I continue to have memory problems, difficulty concentrating, experience mood swings, irritability/anger, fatigue, depression, headaches, preoccupation and the list goes on. I am grateful that I am alive and that I healed from my injuries after surgery and a lot of therapy. It is difficult everday though because I never have felt right since. I look ok and no one understands what it is like because I am not. Friends, family, co-workers and professionals do look at you like you are crazy. I am a social worker myself and it is frustrating to not be able to say what you want or mean but have it right on the tip of your tongue and never be able to put things into the correct words. I wish so much that people could understand what it is like to have a TBI. It is exhausting to constantly doubt yourself, feel misunderstood, also abandoned because no one understands. I never thought that after 13 years things would still be difficult and frustrating. There needs to be more resources, education, support and resources. I tell myself that I have accepted that I am different but I have not and I'm not sure if I ever will.

Feb 20th, 2013 6:54am

Suffered severe TBI in Nov. 1991 - unconscious for entire stay in first hospital. Shattered my right femur - in addition to which the entire right side of me was neurologically affected (right arm spastic/right leg paralysed/very little muscle control on right of body). For the past five years (or so) in particular, I've suffered much rejection or 'misunderstanding' by my once close family & friends - simply because I no-longer behave or react in the same way as I used to. For about 15 years after my unfortunate 'incident', I simply behaved as I thought others expected me to behave; my self confidence was so severely damaged, but now I'm able to behave independently, my genuine 'new' behaviour is rejected - having an alternate (or different) way of behaving and thinking, that differs from the standard 'accepted' way, has made life very hard. The problem is that my behaviour for most of the first 15 years was a lie, merely to ensure social acceptance!

Feb 14th, 2013 10:11pm


Feb 11th, 2013 3:03pm

Suffered severe TBI in Nov. 1991 - unconscious for entire stay in first hospital. Shattered my right femur - in addition to which the entire right side of me was neurologically affected (right arm spastic/right leg paralysed/very little muscle control on right of body). For the past five years (or so) in particular, I\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\%5

Feb 2nd, 2013 1:19pm

Skydiving accident. I was discharged after day or two, but do not remember weeks and apparently I was in and out of conscience on the couch. Took about 2 years to get back to a normal of sorts. During that time gave away all of my possessions. 5 years later had a grand mal seizure. Been on seizure medicine ever since.

Jan 10th, 2013 11:04pm

May 30, 2009 I fell backwards onto concrete resulting in a severe TBI, 10 days in ICU, 3 days of that with raccoon eyes from the impact. Cant remember anything of the first 6-7 days in the ICU, but my wife said I was talking and recognized the people I talked to. Got home and developed dizziness for about 2.5 weeks. Dizzy 24/7 for 2 weeks is the worst feeling in the world. An audiologist friend did a maneuver and after sitting in a neckbrace for 48hrs, dizziness was gone. Spent the past 3.5 years healing and have only felt back to normal about the past 3 months. Your personality changes severely, so much so, that almost all of my friends turned their backs on me, my job ended up letting me go due to my agressiveness towards different situations. You can actually almost watch your real self disappear into something else. You say to yourself dont do that or dont engage that person, yet your body doesn't listen/ So, you feel like you are watching yourself go crazy. Throughout this experience, you find yourself trying to explain what is going on in your mind and people just look at you like you are nuts. Then they stop believing you all together no matter how hard you try and explain they just get farther away. The only person who finally came back around was my wife, after one point telling me to leave, she finally stuck it out until I came out of the fog. People who haven't suffered one of these have no idea what you are going through, and all of the people you thought you knew have these self proclaimed psychology degrees they use to judge you and destroy your future instead of sticking it out with you. You do almost become another person, your views of certain things change, I have found that its almost impossible to trust anyone anymore, especially the ones who gave up on me and exiled me from my normal world. You really learn who the true people in your life are, cut the others loose. The headaches are few and far between now and a lot less severe/ Just give it time and dont turn your back to your "friends"or "job". They really dont care.

Jan 3rd, 2013 1:10pm

my husband was hit by a car a few weeks back. He maintained a few skull fractures and a small bleed. We were in the ICU for 2 days and then stable so the doctor released us. We went to the neuro floor and within one day, we were back in ICU. His brain was stable again and we eventually made it home. Now, my husband feels so much better and acting like himself although he is still tired, irratable and is just wanting to "get back to himself." I do not know what to tell him? I cannot get a good answer on the recovery of this injury. When we went back to the Doctor, he said his brain was still swollen and wanted to see us again in a few weeks. I feel tortured and so uneasy every day. Will this ever get better for him or me?

Dec 24th, 2012 11:51am

On 05.05.77 which was the day after my 13th birthday I was knocked down by a car and spent twelve weeks in a coma with severe TBI, I then spent a year at hospital school where I learnt to write from being left handed to using my right hand. I returned to my secondary school a year later and a year below my actual age group plus rather than being placed in the top where I had come from I was placed in one of the bottom sets. I was bullied at school and refused to go to college due to the trauma. At the age of 29 I was capable of going to university and was accepted (had worked in a shop until 26 then bar work until university). Im now 48 still at home with my amazing parents don\\\'t have any close friends, but that\\\'s life and Im alive!

Dec 9th, 2012 3:57pm

I am a mother of a 13 year old boy who is a year and 7 months past moderate TBI. We live in a very rural area and have not been able to get the medical help he desperately needs. After being hospitalized 5 times since his injury, we are now hopefully getting the help he really needs. He is really not the same child we had 2 years ago. I am really hoping to find him some help to make him happier. He used to play 3 sports and was an A/B student. He received his moderate TBI playing football at the school, not wearing helmets and he fell on the back of his head on to the cement. I just really wish there was more information out there for children with TBI!!

Dec 3rd, 2012 10:39pm

I am four years post-TBI. Four bi-lateral frontal lobe subdural hematomas and a slew of subarachnoid hemorrages. GCS was 9 when I finally got to the trauma center. Post injury amnesia lasted a long time. Speech aphasia lasts to this day. Altered sense of taste and inability to regulate body temperature lasted years. I received no post-trauma rehab. I was sent home to care for a 2 year old when I could barely walk, couldn\'t read, still having seizures, it was a mess. Didn\'t drive for 7 months. Had a hard time controlling my emotions, couldn\'t recognize sarcasm in other people. I returned to work but found that I no longer had the chaos management skills necessary to work in an active shipyard on highly complex computer systems for a program I was the senior engineer. It was heartbreaking. I continued to work, but not at my previous level. Now I don\'t touch the systems, I just perform project control type activities. All the negatives aside, I believe God spared me for a reason. I\'m home with my family more and am super active in my daughter\'s school and our church and community. TBI changed my life immeasurably. For others out there get all the services for rehab and help there is to take. I regret not getting help, because I think my recovery was not as complete as it might have been had I receive some post-ICU follow-up.

Nov 24th, 2012 12:08am

I'm a 42 yr survivor of severe traumatic brain injury (happened 1/23/1971). I've been without a sense of smell (and taste) since the injury. The physicians didn't know how I was able to survive the multitude of injuries: multiple skull fractures, swollen brain, severed small intestine, dissolved wall of bowel, abdominal cavity filled with blood,digestive juices, solid waste. I was unconscious five days, with the first three days my eyes bulged out due to brain swelling. It took me over 25 years to finally discover the reason for my survival: I am blessed by God. There is no other explanation. I continue to live a "normal life", in that I worked many years in fairly demanding capacities. Retiring from the federal government at the age of 55.

Nov 18th, 2012 6:49pm

Four years after a severe TBI caused by a fall which changed my life beyond all recognition. I still suffer with the usual aftermath; forgetfulness, absent mindedness, so much so I have lost my way home on one occasion,fatique and headaches.I become confused and overwhelmed with what used to be the most simple of tasks. Medical help is inadequate to say the least, damn well unhelpful most of the time. The biggest issues are the loneliness and frustration of not finding answers if, indeed, there are any. I do feel adrift and forever apologising for the shortcomings I now have, caused by the TBI.

Nov 16th, 2012 3:41pm

I suffered from a TBI in 1995. I was hit by a van as a pedestrian. I spent about three weeks in a drug induced coma after having an emergency evacuation of a sub-dural hematoma. I had fractured my skull and was very lucky to have survived. I have little to no problems since revovering which took a good deal of time.

Nov 16th, 2012 1:07pm

My brother had a motorcycle accident on Sept 19, 2012 and has severe tbi. He is still in a coma but moves slightly and opens his eyes at times. My question is to the person who had severve tbi when he was beaten in a bar and left face down. Can you tell me how long you were in a coma?

Nov 5th, 2012 9:42am

I experienced moderate to severe TBI at 12 years of age. It was a skull fracture in the back of my head that resulted in coma for a couple of weeks. Over time with not much therapy, I seemed to make a significant recovery. However, I am now understanding that it has been a partial recovery. I have been plagued for the last 38 years with life long depression, apathy, dizziness, and aggression. I just assumed it was bad genes, but am now realizing that part of my struggle has been due to the brain injury. I've had to work VERY hard to overcome these lingering long lasting effects. The thing that continues to trouble me the most is the following: "cognitive abilities referred to as executive functions - the complex processing of large amounts of intricate information that we need to function creatively, competently and independently as beings in a complex world. Individuals with TBI may be unable to function well in their social roles because of difficulty in planning ahead, in keeping track of time, in coordinating complex events, in making decisions based on broad input, in adapting to changes in life, and in otherwise "being the executive" in one's own life." I have often felt like a failure in life because of these difficulties. I have considered suicide dozens of times. However, I have always battled HARD and managed to have a modicum of success in life. I managed to get a college education. I managed to be relatively successful in a career as a musician. The thing that really saved my life, however, was a deep spiritual connection based on the practice of meditation. I've worked with different spiritual teachers who have helped me tremendously. Although I've always know that trauma was at the root of many of my problems, I now discover that part of the reason for my life long STRUGGLE to survive and thrive may have roots in my brain injury. Wish I had known about it long ago. Perhaps I can improve some of these difficulties. I have heard of a therapy called EMDR that supposedly helps with PTSD which I've also always suffered from. I plan on exploring that and seeing where it takes me on my life-long healing journey. To everyone who has experienced this trauma I say this: make your LIFE about healing. Focus on it. Commit to it. Pray for it. Or unresolved trauma will destroy you. It very nearly destroyed me numerous times but it hasn't yet, and I keep battling. Good luck!!!

Oct 30th, 2012 12:55am

i am 47 and had my moderate TBI in january 2012 while ice skating. was initially conscious but luckily knew the signs of head injury and went to the ER. was unconscious for 12 hrs, hospitalized for 4 days, and the 'improvement' has continued since then. i returned to work - full time - after 5 wks to a demanding environment which was only made more so after my injury. despite going to my boss on a monthly basis to let him know i was very overwhelmed and that all of my paperwork wasn't getting done, i was terminated' on october 1 for not having my work done. it is a healthcare environment and timely compliance is very important. many of my co-workers, and my boss i think, thought that because i was back at work and looked fine that i was in fact fine.....which i was not. i would urge everyone facing this type of ongoing issue to be very honest about your limitations! i was......but i got no assistance. i have really good days and really bad ones, balance and dizziness continue to be an issue as does my lack of appetite. in time i know i will make a new normal for myself......

Oct 15th, 2012 1:19pm

10/10/12 I am 21 years old and I have suffered a TBI from a car accident in May 2012. My memory has been lacking in a few areas, mostly the memory of the month of May. In the same car accident I received a back and neck fracture and collapsed lung. I look back on my injuries and think of how lucky I am even though my life has been a struggle. I refuse to give up.

Oct 10th, 2012 12:32pm

i was involved in a head on auto collision november 9 1995 i have suffered years of bad migranes and depresson and memory problems and i have tried not to seek medical attention after spending time in hospital and close head injury clinic i,am getting older and experiences more symptoms i know i must seel medical attention but i find it hard to tell my self i need to i have had people tell me i need to seek counceling

Oct 9th, 2012 11:13pm

My tbi happened sept. 24 2009. It was classified as a severe tbi. I was over double the legal limit a .18 alcohol blood level and 38 years old. I was left in a coma. I left a wife and 2 kids at home so I could do my daily drugs and alcohol binging. I was severely beaten at a bar and left face down for dead on a highway. Wow what a day. The greatest day of my life! why? Because I found a relationship with god. God can turn the worst tragedy into your greatest accomplishment. Relationships I had severed have been restored. I have not missed a day of work in almost 2 years and have not had a job complaint either. No Iam not a rocket scientist, lol, but I work with materials that have only .031 1/32 tolerance that must be precise and making a good living in the worst economy I have ever seen. Iam supporting my family. Dont give up whom ever you are. All things are possible with god. Iam living proof.

Oct 1st, 2012 9:47pm

I had a severe TBI when I was 12. My parents were Christian Scientists and did not take me to the hospital even though I had a large fracture of my skull, was unconsious for over an hour, and had complete amnesia for 5 to 6 hours after regaining consiouness. I really never associated this event with the many of the personality changes that occurred with me shortly there after until recently. I went from a very athletic, A student, to doing drugs and failing in school. I was able to make it through college and get off of drugs but this event clearly was a pivot point in my life. I am now 47 and to tid day still struggle with some issues. It does get better with time.

Sep 29th, 2012 9:33pm

my TBI anniversary is coming up october 29th. it will have been 5 years now. i'm sorry that i can't be positive and say in this 5 years i have found all of the answers. quite the opposite really. i was and am today, so determined to be who i was. this person that i'm clearly not anymore and that i have no recollection of. 5 years this october.. and i'm just now starting to try to google answers. my parents are in denial in the sense that they don't think i can make my own decisions, all of my old friends became confused with all of my personality changes. my memory continues to be not so good, which aggravates me on a whole other level. i NEED to find someone to talk to that understands this "invisible disease". if anyone knows of any indiana support groups, please share!

Sep 24th, 2012 1:33am

First, to the person who posted on Aug 16th, 2012 12:49pm. You did not fail in life. What you have been through and are currently going through now does not make you a failure. I can relate a little with you on some of what you say about no social life, relationship and such but please realize you are a surviver. That alone makes you anything but a failure. I wish I could get in contact with you some way because I would gladly be your friend. Take care.

Sep 12th, 2012 11:47pm

I am 10 years into my TBI injury. My life and those of my husband and two kids have been turned upside down. I feel for anyone who has to live with this! hopefully my work injury claim will settle accordingly

Sep 12th, 2012 1:17pm

my heart go out to yall my daughter got a TBI and I know how life can handle people.I just told my little girl she can beat the odds because Jesus use the strong people not the weak ones so look at it like this God made you special for a living testimony for his kingdom.

Aug 28th, 2012 2:30pm

I had severe TBI as a child(pre 10 years old) and i'm in my 30s now. I've failed in life. Have no career and no social life. No love life. And i've been fired and not hired from any of my temp jobs. LIfe is difficult because i lack maturity and have memory and speech problems. I dont understand many things typical adults can understand. I can't join discussions or anything because i have Auditory processing problems. In Sum, i've had a hard time and i had no help ever because my parents were in denial and thought i was just normal. And they scolded me, teachers also scolded me and i was bullied al my life. So basically i'm a failure but recently i've been trying to get help in disability and also i joined a tbi support group

Aug 16th, 2012 12:49pm

I am 1 year and 10 months post TBI due to my fall 5 rows down face first on steel stadium seats. I was knocked out momentarily and have been through speech therapy, cognitive therapy, physical therapy, vision therapy, and currently am getting vestibular therapy along with continuing vision therapy. Because my incident was during coaching, it is a work related injury and being handled by workman's comp, which means I've been given poor care. All they've told me is to give it time. I am a teacher who taught Reading and Language Arts and Writing. I have had speech delays, trouble with spelling & writing, can't find my words, memory issues, not remembering short term or much of the last two years, balance issues, loss of vision fields, vision memory, and vision flexibility (can't focus far or near), light & sound sensitivity, not to mention mood swings, migraines, passing out and throwing up. Can't plan or handle much stress without shaking or crying. Every new challenge seems to set me back months in progress. I have daily migraines and can't drive. I have given up my masters classes, coaching, and after school teaching and activities. I have tried antidepressants, migraine medicines, am currently on Ritalin for attention and memory problems. My hormones have quit. I am still holding onto my teaching job, but have found new ways to teach. Technology has become my new best friend. Using it, allows me to keep the lights down low and I can create lessons at home in the quiet. I have relied on old memory (old lessons and knowledge of novels that I have read in the past) to allow me to keep teaching. One thing I can say is that I now truly understand my students who are autistic and learning disabled as I, myself, have to use many new tools to learn. Reading has just recently been a gift I have received back, only silently though. Though I may not be able to multi-task the way I used to and I can't dance, I still have heart to reach out and make the world a better place. I may not be the old me, but I will continue to strive to be a better me. Keep striving and learn to be thankful for little gifts, like a good day! God is Good and He is making me stronger! This article, helped me make sense of the loss that I have encountered and look at it with more realistic views, instead of believing what the Dr.s and Therapists have said, "that in time, I will wake up one day and be just like I was." I now know that I will not, and I can accept that if I can hope for a better tomorrow. No more tears for what I have lost, but a smile for what tomorrow holds. Thanks again! English Teacher in Kansas My only advice is to pray and be thankful for any small progress! Take all the therapy you can, because you will find amazing people who care!

Aug 11th, 2012 1:47am

this is to the lady who had the tbi on the 7-11-11, get in contact with headway in your area, i have a tbi and they have been fantastic with me, they give me all the help i need and support me, it would be good for you, keep your chin up hun, all the best, martin mcgovern, south wales

Jun 29th, 2012 8:33am

I have went 26 years with undiagnosed TBIs. The one to my forehead left me with nearly 100 stitches worth of three scars. I have had other serious TBIs before and since that time. The only reason they were recognized and now are diagnosed is because of me. I read about TBIs ina book and put two and two together. The medical professionals and health care industry has been of little to no help. They are mostly all bozos and idiots. The Social Security Administration is even worse. SSA is NOT your friend and they are NOT there to help you. They are there to try and make things worse. Seek out groups local to you that are for TBI survivors. Look on-line for Traumatic Brain Injury forums and websites. You have to help yourself as much as you can. People (including family, friends, co-workers, employers, and med pros) simply do not care, are ignorant, and have no interest in learning about TBIs. Educate yourself. Have TBI educational info sent to your health care providers and your doctors - and your family too. Also, speaking as a multiple TBI survivor, learn to meditate. It helps greatly. Yoga can be very good also. And, frankly, smoking pot will greatly help reduce your anxiety and reduce your anger and hostility. It is good natural medicine - just don't have it in your car. The police are NOT your friends. Avoid them. Pester your doctor for help with your TBI. Be relentless. Also check all your local hospitals for any programs they may have or know of for people with TBIs. Do the same on line. Email people. Email doctors. Email the mayo clinic. Email TBI specialist lawyers. Get all the advice and help that you can and then put it together and organize it in a way that you can deal with it and make use of it. Lastly, if your TBI related behavioral/emotional/social dysfunctionalities persist, MAKE SURE they are documented. Make your doctor address them and document them - and then start working up a SSA disabilities claim. Odds are for you will be turned down on your first try. Do an appeal. Be persistant. You may be unemployable due to your TBI. I am, so I speak from experience. Check into Prepaid Legal. It is a way to pre-pay for legal services and to get them at reduced rates. They may have changed names, but look on-line and you will find them. They are VERY useful - for many more things than just TBI related issues. Get a speeding ticket? if you have a Pre-Paid legal services plan you can request an attorney to come with you to the court hearing and get you out of trouble - at no extra charge to you (cops HATE it when people come to contest their traffic tickets and bring a lawyer with them). I hope this helps.

Jun 10th, 2012 4:33pm

November 7 2011 car accident. Diagnosed mild TBI but then got so upset all the time i was asking for help the police broke my leg. now scared not sure how recover. people not sure how deal with me now. miss my ex boyfriend so much but i scared him away after my accident. he will not speak to me. my accident was 6 months post breakup. just b4 breakup lost job. how do i get help for this it is invisible injury people don't understand

Jun 7th, 2012 2:28am

I'm supposed to be a reasonably smart guy. Sure I'm no genius but you know what I mean. I did the V.C.E. (Victoria, Australia's Year 12) with an average of around a B. Nearly 3 years ago I got hit by a light truck doing 80kph during appalling weather. I suffered a 3 on the Glasgow Coma Scale and they put me in an induced coma for 10 days. I can't remember any of this, it has been told to me by the people that I love. At the beginning of this year I enrolled in a T.A.F.E. course. It isn't college but higher education. Because I've got so much spare time I decided to use it to advance myself getting a better education and thus a better job. But even though the course is basic I find it a bit to hard at the moment. Sadly I think my brain is letting me down which makes sense to me recently as I suffered a severe traumatic brain injury. Sorry and I feel bad but I'm hoping that my brain will get better over time. I didn't have much patience before but I've got vast quantities now. I think I am just realizing how close to death I was. Some of my mates, who are as a tough as nails, started crying after my accident. That's it for my epistle. To all the people who have suffered a brain injury I say please persevere, the Human Mind is such a powerful thing.

Apr 15th, 2012 4:06am

This article is actually quite encouraging! I am a year and four months past my severe TBI, after which I was unconscious for eleven days. I am an honor graduate of Harvard and was a college professor until my injury, so it's nice to be encouraged by the acknowledgment that while my life is very different now, it's far from over, and I can still find ways to be valuable and contribute.

Feb 13th, 2011 12:53am

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