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What Impact Will Moderate or Severe TBI Have on a Person's Life?

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Mount Sinai Medical Center

What Impact Will Moderate or Severe TBI Have on a Person's Life?
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What are the typical long-term effects?

In considering the long-term effects of TBI on the individual, it is most important to emphasize that there is no "typical" person with TBI. People who have experienced a TBI vary on many dimensions: 1) severity of initial injury; 2) rate and completeness of physiological healing; 3) types of functions affected; 4) meaning of dysfunction in the individual's life, in the context of his/her roles, values, and goals; 5) resources available to aid recovery of function; and so forth. Thus, the most important point to emphasize is that the consequences will be different for each individual injured.

In discussing possible effects of TBI, the immediate physiological recovery (which may continue over months and years) was discussed in a prior question. When the moderately or severely injured person has completed this initial recovery, the long-term functional deficits associated with TBI come to the fore. What areas of functioning may be affected by injury to the brain? Any or all of the functions the brain controls may be impacted. However, given that individuals differ greatly in their response to injury, any specific individual may experience only one, a few, or most of the possible effects. Further, a change in any of the possible areas of dysfunction, if it occurs at all, will vary in intensity across individuals - from very subtle to moderate to life threatening.

It is important to be aware also that not all functions of the individual are impacted by TBI. For example, feelings toward family, long-term memories, the ability to ski or cook, one's knowledge of the world, and so forth - all may be intact, along with numerous other characteristics of an individual, even one who has experienced a moderate to severe injury.

The possible long-term effects of moderate-to-severe brain injury are discussed in the following three questions.

How are thinking and other aspects of cognition affected?

Individuals with a moderate-to-severe brain injury most typically experience problems in basic cognitive skills: sustaining attention, concentrating on tasks at hand, and remembering newly learned material. They may think slowly, speak slowly, and solve problems slowly. They may become confused easily when normal routines are changed or when the stimulation level from the environment exceeds their threshold. They may persevere at tasks too long, being unable to switch to a different tactic or a new task when encountering difficulties. Or, on the other hand, they may jump at the first "solution" they see, substituting impulsive responses for considered actions. They may be unable to go beyond a concrete appreciation of situations, to find abstract principles that are necessary to carry learning into new situations. Their speech and language may be impaired: word-finding problems, understanding the language of others, and the like.

A major class of cognitive abilities that may be affected by TBI is referred to as executive functions - the complex processing of large amounts of intricate information that we need to function creatively, competently and independently as beings in a complex world. Thus, after injury, individuals with TBI may be unable to function well in their social roles because of difficulty in planning ahead, in keeping track of time, in coordinating complex events, in making decisions based on broad input, in adapting to changes in life, and in otherwise "being the executive" in one's own life.

With appropriate training and other supports, the person may be able to learn to compensate for some of these cognitive difficulties.

The TBI Research Center at Mount Sinai is conducting research to help people with TBI who experience cognitive difficulties. Descriptions of these studies are found at Rehabilitation Trials.

How are mood and behavior affected?

With TBI, the systems in the brain that control our social-emotional lives often are damaged. The consequences for the individual and for his or her significant others may be very difficult, as these changes may imply to them that "the person who once was" is "no longer there." Thus, personality can be substantially or subtly modified following injury. The person who was once an optimist may now be depressed. The previously tactful and socially skilled negotiator may now be blurting comments that embarrass those around him/her. The person may also be characterized by a variety of other behaviors: dependent behaviors, emotional swings, lack of motivation, irritability, aggression, lethargy, being very uninhibited, and/or being unable to modify behavior to fit varying situations.

A very important change that affects many people with TBI is referred to as denial (or, lack of awareness): The person becomes unable to compare post-injury behavior and abilities with pre-injury behavior and abilities. For these individuals, the effects of TBI are, for whatever reason, simply not perceived - whether for emotional reasons, as a means of avoiding the pain of fully facing the consequences of injury, or for neurological reasons, in which brain damage itself limits the individual's ability to step back, compare, evaluate differences, and reach a conclusion based on that process.

With appropriate training, therapy, and other supports, the person may be able to reduce the impact of some of these emotional and behavioral difficulties.

The TBI Research Center at Mount Sinai is conducting research to help people with TBI who experience depression and other mood disturbances. Descriptions of these studies are found at Rehabilitation Trials.

What other changes are likely after moderate/severe TBI?

Any of the ways we have of sensing/perceiving may be affected by TBI. Vision may be affected in many ways: loss of vision, blurred visual images, inability to track visual material, loss of parts of the field of vision, reduced depth perception, and sometimes disconnection between visual perception and visual comprehension, so that the person does not know what he or she is seeing. Changes also may occur in the senses of hearing, smell, taste, and touch; the individual may become overly sensitive or insensitive. Further, the person may have difficulty sensing the location of his/her own body in space. Other individuals with TBI may have recurring problems with balance, vertigo, and ringing in the ears.

A relatively small percent of individuals with TBI experience seizures. For most of these, the initial onset of seizures occurs soon after injury. For others, the onset may take place up to several years post-injury. Two types of seizures may occur. Major motor seizures refer to what were once called grand mal seizures and involve loss of consciousness and vigorous, uncontrolled movement of the major muscle systems. Local motor seizures do not lead to loss of consciousness and involve less muscle movement. Some individuals with TBI use anticonvulsive drugs to prevent seizures or stop them during the course of a seizure.

If motor areas of the brain are damaged, the person with TBI may experience varying degrees of physical paralysis or spasticity, affecting a wide variety of behavior from speech production to walking. Damage to brain tissue can also evidence itself in chronic pain, including headaches. Also, evidence is growing that hormonal, endocrine, and other body systems are affected by the brain injury. Consequently, the individual may lose control of bowel and bladder functions, may sleep poorly, may fatigue easily, may lose appetite for food or be unable to control eating, and/or may be unable to regulate body temperature within normal boundaries. Women with TBI often experience menstrual difficulties. Some of our research on post-TBI health and medical issues is discussed in TBI Consumer Report No. 1.

The TBI Research Center at Mount Sinai is conducting research to help people with TBI who experience fatigue. A description of this study is found at Rehabilitation Trials.

Why are we poor at predicting outcome?

The severity of the injury and the resulting direct effects on the individual's body systems may not predict the amount of impact in a person's life. This follows, first and foremost, because each of us draws in different ways on differing parts of our brains. For example, a severe injury to the frontal brain area may have less impact on an agricultural worker's job performance than a relatively mild frontal injury would have on a physicist's work. In sum, the meaning of the various patterns of injury and the associated changes in any person's life will depend on preinjury lifestyle, personality, goals, values, resources, as well as the individual's ability to adapt to changes and to learn techniques for minimizing the effects of brain injury.

We know in general that the variability of patterns of change associated with brain injury are shaped by many factors: the severity of injury and age at injury, time in coma, time since injury, length of PTA, the resources and services available to the injured person, the barriers met or advantages offered within different social contexts, the social and role demands that exist within the individual's life, and so on. How these factors work, in what ways, and how often is not clear. We know that TBI hits people differently, but have less knowledge of the number of people that experience various types of consequences and the specific factors affecting this.

What can I do to help the process of recovery?

Immediately after injury, friends and family who want to help should focus on insuring that the injured person receives medical care that will minimize the effects of injury. This usually means that the person should be receiving care in a medical center that specializes in trauma care. This topic is covered more fully in another question, What Is the Course of Treatment for Those with Moderate/Severe TBI?

Once issues of life-and-death have been addressed, the person's functioning as a cognitive, emotional, and social entity comes to the fore. The individual is faced with many or a few of the possible changes described in preceding questions.

It has been suggested (by Kay and Lezak in 1990) that "recovery" is a misnomer and that "improvement" better describes what happens in the long run after TBI. The word recovery may, inappropriately, suggest that the effects of TBI will disappear, similar to symptoms vanishing when we recover from a cold. With TBI, some of the effects may truly dissipate after one year, two years, or more, but more frequently these long-term changes linger on, subtly or not so subtly, changing only slowly, if at all, over the life course.

What must be kept in mind at all times is that impairments that are due to injury of brain tissue can be helped through reeducation of the individual and through modification of the environment. Thus, for example, although the brain circuits involved in memory may never function in the ways and at the levels found before injury, remembering (a necessary skill in day-to-day life) may be improved by the individual's learning compensatory skills, such as using a daily diary to remember appointments, and by adjusting parts of the environment (alarm clocks, computer reminder programs, and family members) to jog memory.

The boundary of improvement is set by the individual's ability to learn new ways of doing things or to relearn formerly familiar skills. Since the brain mediates all learning and the brain is damaged, learning is often slow and/or incomplete.

The major role for friends and family at this stage of recovery is to help find resources that will help the injured person in addressing emotional, cognitive, physical, and behavioral challenges. A variety of resources are available on this Web site, including publications, linkages to other Web sites and information about rehabilitation trials that may help people with cognitive difficulties, mood disorders and fatigue.

Some individuals with TBI largely move away from the notion of "recovering" the pre-injury self. They reach a point, instead, when they view the losses/changes/deficits as "simple facts" or even "opportunities." For these people, terms such as "devastation" and "loss" get redefined and no longer are seen as applying to them. Their injury has let them see other possibilities for their lives than what they saw before injury. These possibilities may be just as (or more) satisfying to the person with TBI than what was "in store" for them prior to injury.

From Mount Sinai Medical Center. www.mssm.edu.

Comments [82]

Did anyone on here have an injury who went deaf or possibly a elderly grandmother?

Oct 23rd, 2014 9:30am

This has been so helpful. I was feelin like the only one with on going problems with anger, and day to day routines. I sustained a tbi november 2006. Was kicked in the forehead by a horse. Fractured skull and some spine damage. My Dad wasthere and said it looked like someone took a hatchet to my head the fracture was clear to the brain how no bone ended up peircing my brain is beyond me. Eight years later some I know I have memory problems and some days are worse than others... Controling my anger and well all my emotions is really becoming a problem lashing out at the first person who crosses me. Even bigger problem trying to explain to someone that you have suffered a TBI and it isnt like II want to be unhappy or pissed off or easily angered. I dunno how many times I have been told oh you can controle it when really I dont feel I can... I have been to the point now at 27 I have to put my self in timeout just so I dont blow up. Larg crowds I cannot handle anymore... and some social situations and quickly disliking someone aand being less accepting of people. I stil, have good days and defiantly bad days, if there is a lot going on no concentration on what needs to be done. And for work they dont really allow the whole brain injury excuse when the accident was years ago, I know a lot of people are sick of gearing bout it but itsone of those dealsyou cantelk someone you still have problems with it years later and they just think its an excuse.... lots of frustration here

Oct 22nd, 2014 11:52pm

First and foremost I would like to express sincere appreciation to the scholars who wrote and published this article and are allowing people like myself to add comments and share our experiences.  For over two years I wondered what was wrong with me and why I had so many problems that, until recently, were virtually unexplainable.  At least I now know that I am not alone.  I can't say that makes my life any easier - I am going through, quite possible, the most unhappy time of my entire life. But I feel consoled by the fact that I'm not alone.  
One June 1, 2012 I was hit by a car that was traveling at almost 45 mph.  Two days later I received emergency surgery for an epidural hematoma.  
Prior to having my accident, I'd spent the entire year taking entrance exams and preparing to start  Mexican law school at the Universidád del Valle de México, one of the most well known and prestigious universities in the country. My father had agreed to help me with my living expenses and tuition.  I was about to embark on the most exciting and promising journey of my young adult life.  
 I didn't want to stay in the hospital any longer than necessary.  I didn't want physical therapy or any of that.  I had deadlines to meet, and I wanted to start school as planned.  In spite of having a broken leg, a broken shoulder, broken wrist, and recovering from brain surgery, I was able to start school as planned. Looking back, I should have been more patient and waited until the next quarter.  I thought I'd be able to bounce back from my injuries, and I was wrong.    
Soon after starting school, I began suffering blackouts.  Usually they would happen when I was at home, but twice they happened while I was on campus and  on both occasions I was taken to the local hospital in Nuevo Laredo.  The school staff was caring and supportive, but my parents were convinced that these episodes were drug related.  On my first trip to Laredo Medical Center, my mother told the doctors that I had "overdosed on Ambien".  This was her hypothesis because she found a full bottle of Ambien by my bed when she went to my hotel room.  Seems like, if I had overdosed on Ambien, the bottle would have been empty - not full.  But anyway, they treated me for drug toxicity based on what she told them and had she been honest and told them that she -suspected- it was a drug overdose but was not sure, they probably would have ultimately referred me to a neurologist who would have prescribed me with PTS and saved me from the months of pain and confusion that followed.   
My dad decided that the best way to "handle the situation" was to lower my stipend to almost nothing; consequently I never had enough money to go to a primary care physician or a neurologist or to even life comfortably.  My health insurance covered ER visits but I never had enough money to pursue any more treatment.  One one occasion I was referred to a neurologist by the ER at Laredo Medical Center and when I went to my appointment,  I didn't have the $15 co-pay.   

After living like this for months, I visited my mother in Austin and she witnessed one of these seizures.  She took me to St. David's ER in South Austin and I was diagnosed with post-traumatic seizures resulting from the traumatic brain injury I suffered when I was hit by the car.  I was prescribed medication and these episodes began to occur less and less.  The last time I had an "episode" was the day I was supposed to start my new job at a law office in Laredo, Texas.  By the time I was finally able to dress myself and go into work, I was fired on the spot for my physical appearance, arriving late, and looking totally dazed.  They'd come across some misdemeanor drug convictions when they did my background check for employment, hence, they assumed I was high or hung-over or God-knows-what.  
Consequently I had to drop out of college, move to Waco so I could take a dead-end job with my DAD, and try to "not think" about my goals and everything I worked to accomplish for such a long time.  
I forgot the name of the seizure medication I was prescribed but honestly, I took it for less than 6 months.  I recently started driving again and, although a big part of me died when I was forced to leave school, I can say I am living a somewhat normal, albeit monotonous and joyless life.  
My last seizure was in May - I think.  It is possible that I could have had seizures since then (I'm unaware of them when they are going on) but none of the signs (waking up exhausted, confusion, dizziness, etc.) are there.  I hope, I hope, I hope that chapter of my life is over.  
If anyone out there is having or has had an experience similar to mine, feel free to contact me.  I had to face these ordeals alone, with criticism and skepticism instead of support, and no one deserves to go through that.  

Oct 22nd, 2014 1:28pm

youare incredibly strong woman! you have just sparked something in me idk what, hope? i have had neumerous blows to head but nvr wentto er except once nevr told about this describe me totally

Sep 19th, 2014 10:45am

My ex husband was in a motorcycle accident last Friday. He is not responding. He is posturing. Not with his arms up.. And he makes random movements. I have heard he occasionally has moved to stimulus but one nurse says one thing the other another so I am sure it just isn't that frequent or they just don't know. Yesterday it was 72 hours. Don't know the future. What I have read... Posturing is not good. They say he is not in a coma. A semi coma. What's the difference. They said currently on a scale from 1 to 6. One being worse he is a little above a one. I pray the number will go up in time. It is encouraging to hear your stories. Life events We just never know. Have to rely on God. Know that he never abandons us.

Aug 12th, 2014 9:37am

Hi all. I fell from a fire escape in 2006 and had a severe brain injury. Was in coma for 15 days and the hospital for 2 months total. I was lucky I was a second semester senior in high school at the time and was able to drop some classes and graduate. Then went to ucsb and graduated in 4 yrs. Wasn't a great student but I graduated! Life was good in college, except for I definitely had way less impulse control than normal when drinking. Trying to drink in moderation now. In the working world, life is a struggle bc my memory sucks. Having to give speeches and participate in meetings etc. is really tough. I haven't been fired yet, but it's bc I work for my Dad. I get stressed so I smoke cigarettes, but then I get the worst dark circles possible. I have contemplated suicide but know that is not the right answer. I have lost my best friends bc my personality has changed (but that's mostly bc of my drinking habits). I get angry when drunk, but also very irritated and annoyed when sober. I get depressed easily and don't really like too many ppl. My Dad is a great guy and nice person, but sometimes I just don't even like him. I am really considering leaving my family-centered life (no gf/wife or children) and becoming a recluse, but deep down I don't want to.

Jun 23rd, 2014 7:12am

Hello, I had a tbi I 2011 I'm doing well considering I almost died was in a coma for several weeks. My short term memory is very poor my ears ring I have balance problems headaches insomnia, I get so tired so easily and crabby but each day that passes I look at what I can do and not what I can't anyone who is going through this just be patient with yourself and go one moment one day at a time be thankful you are what you are keep going ... Colleen

Apr 29th, 2014 5:42am

I was in a wreck when I was 13 yrs. old back in 1983 and was thrown out of a pickup truck after we hit a telephone pole going about 40 mph. I spent a week in the hospital for head trauma and sustained a huge gash to the base of my lower skull area and almost lost my eyesight. I am very thankful to be alive, but I have often wondered what impact it has had on me personally over the last 30 plus years. I have a 9 year old son and I owe it to him to be the best father I can be. I don't have a lot of patience with people and I an easily irritated and have been since I can remember. I do not have much memory of the wreck or my time in the hospital and really am looking for people with similar stories and daily struggles.

Apr 27th, 2014 3:33am

I had a TBI due to a right frontal lobe intracranial abscess  September 2012.  I had the abscess drained, but it filled again, and developed an offspring. I had a second surgery to remove the abscess , and was treated for several weeks with  iv antibiotics. I presented as a full blown stroke, but quickly got full use of my left side with the help of aggressive physical therapy. You would never know I had ever had a problem. What doesn't show are the affects left on the inside. I have severe memory loss. I had to check in my medical files to find the year I had my TBI. I thought I was heading into my 3rd year. Timelines are a nightmare. I have such a problem trying to figure out when things happened, and I don't want to ask my husband anymore as he looses patience with me. In the last few months I have greatly diminished sense of smell and taste. I can taste the first couple of bites of things, but I  am not sure if this us just due to my memory of what they tasted like. I loose words! I will be talking and want to say a word, but can't remember it. I will describe the word to someone,and by the time they have given me the word,I have forgotten what I was talking about. I cry every day. I am so frightened that I will get worse, especially when my sense of smell and taste did not change until a year after my TBI. What else may be affected.. I want to lay down every day in the late afternoon,and could stay in bed for  the night, I don't sleep in that time in the afternoon,but often I do not sleep throughout  the night.  I used to enjoy going out for a few drinks with my husband and friends, but now all I want to do is go out to dinner,and come straight home. I used to ride my bicycle 15 miles a day and then workout for an hour. I have no urge to do either. I know I will never have the old me back, but how can I explain this to my husband! He us growiing  short on patience

Apr 16th, 2014 11:24am

Anyone here that is married to a person with TBI. I have been married to my husband that obtain a brain injury 14 years ago.I didnt know him at that stage.I knew that he has got a brain injury and supported him as his decisions were ruining his life. (friends that abused drugs etc) He is one of the kindest people I have ever met in my entire life and I am currently running his business (that I took from scratch) and making a success of it. I am his cook, PA, Secretary, sometimes cleaner as well as friend. Recently he went through a traumatic experience with his family whom he trusted (they stole his trust money) and ever since this happened everything changed... He is more tired than usual (yawning every minute or two), sleeps half of the day. He has a lack of zest in life, grumpy and extremely rude to me. (I am his 'punchbag') If I try to talk to him to ask him what I did wrong to deserve this treatment, he slams doors and take off. I forgot to tell you that he is 33 and I am 31. I dont know how to cope as the emotional damage that he is causing to me is becoming extremely unbareable. There is only so many times one can tell yourself: 'he doesnt mean it, he has a braininjury,remember?" He shows no affection towards me which is so frustrating and makes me feel 'not good enough'. He shows no emotions and his attitude when I try to talk to him is the "I dont give a shit how you feel' attitude and extremely sarcastic. I had a miscarriage a year years ago and he showed no empathy towards me and while I was 'sick' he shout at me and swear at me for not getting back to our clients within minutes after they have sent a request. I thought that love would overcome the obstacles of TBI (my love is strong enough) but how can he love me if this is how he behaves towards me?Please help me understand?

Apr 14th, 2014 6:56pm

13 years ago I suffered a small skull fracture near my right ear. I was 19 decided it would be a great idea to hitch a ride on a moving RV. I was discharged that night. 3 days later they did another MRI with that dye. Low and behold I had a skull fracture. I had significant memory loss no sense of smell or taste. It was so bad I'd start a conversation and mid way threw I'd completely forget I was even talking. have slightly worse hearing in my right ear. Headaches are a part of life for me these days. Female problems. Almost split personality disorder can't seem to make decisions easily. I also suffer from paranoia. I often feel people are against me. I'm extremely out going so it causes a conflict with my personalty. My memory was getting better but now it seems to be re lapsing my smell and taste improved too. At first I too had that "chemical" smell but for me I didn't think it was chemical. I smelt a similar smell to it and it was odd cause it was a combo of smells and every once in a while I'll get it and know exactly what it was. So I was at the salt river tubing that "smell" is the exact same as drunk people tire inertubes baking in the sun, dirty river and sunscreen and suntan lotion. Oh and my conversations in real life jump around just as much as my written ones. Like this one. So there's that too. Oh and I tend to go back and forth on thoughts like yes its good idea no that's not and back to thinking the way I was before. Hence the indecisiveness. Last thing I can think of is the inability to learn things I read and remember and if I physically complete a task a few times I'll remember it but taking direction or being questioned is extremely difficult for me. Being questioned really sets me on edge because I know I take a few seconds to minuets to answer. Then I feel self conscious. So that's my sucky reality. Feel free to look me up via Facebook if you feel like sharing your story. - Erin Rohweder. -

Apr 5th, 2014 7:56am

I agree totally; brain injury is a very permanent thing. Mine was in '96 when I was 16. I have learned to cope and adjust rather nicely I do believe. But, still to this day, I just want to rest :)

Mar 18th, 2014 12:17pm

I had a moderate TBI when I was 22 and I am now 59. TBI changes your life and it took me a long time to figure that out in order to accept and move on. Your last paragraph should have been the first. We don't ever fully "recover." TBI is a chronic condition that you have to adjust and learn to live with. 

Mar 17th, 2014 3:14pm

Suffered a TBI in 2012 April. Caused a lot of issues which really neverb have been addressed. I lost my job which has caused me much heartache as I. Was an RN nd worked with psychiatric patients most of my career. I was hurt on the job at a state facility and the let me go after stating my6 month probation was still in affect.

Mar 6th, 2014 2:16pm

I have a mod-sev t.b.I. and never rec'd help until 29 yrs, I am getting help now. I am 52, yet still in mindset of a 20 yr old. This is difficult. Alone and fighting the VA system.

Jan 29th, 2014 10:15am

Can anyone help? My mom is 89 and she had a fall in July 2013. They did surgery to remove fluid. She was recovering so well over the last 5 months but 2 weeks ago she fell and hit head again. Nothing on CT or MRI was abnormal. ...but she is having the forgetfulness and slurred speech SOME and it was like she experienced about 3 months ago when she was recovering from the first fall. Can this get better with time (dropping words, sentnces, forgetfulness) it's not all the time but she is worried and i am too. they didnt see anything on the scans. Doctor says be patient, it will get better. There is some chronic fluid still there but the doc says it will re-absorb and doing another surgery on her would be not good. Can someone comment?

Jan 23rd, 2014 11:20am

Hi. On November 23rd, I was riding my dirt bike along a gravel road with no helmet. According to an intoxicated Asian, I flew over the handlebars, according to a redneck, I flipped the bike. Whatever happened, I may never know. I do not remember anything before the accident that morning. Anyhow, I received some shitty assed medical care from lake wales hospital, and you can tell them I said that because they wouldn't even come get me out of the car at the ER. Anyways, I was supposedly found laying bleeding, in a ditch unconscious. I was taken to Lakeland (thank god) and treated there. I had some short term memory loss that came back pretty fast thankfully. 

Jan 18th, 2014 12:29am

I had a severe TBI (subdural hematoma) at age 15 in 1995. It took me many years to fully understand that I had to move on and make goals for myself; I'm now a pretty successful adult. Some things that benefited me the most in my recovery:

don't worry if people don't think you're the same person

believe in yourself

keep lists of important tasks- use a calendar, cell phone, computer

make a list of your goals

learn something new

find ways to relieve stress and exercise

These are the things that helped me the most, and I hope that others find the way. I was very fortunate to have recovered, but I still have things to work on. My anger and emotional control, in general, are still daunting tasks for me, yet I know that I'm a unique person. 

Good luck to everyone. Please remember to believe in yourself.

Dec 28th, 2013 12:42am

I had an epidural hematoma at 3 years old.  I am now 52.  I am just becoming aware that this injury could have any effect on my life at all.  I am smart but have always been considered "different".  My family thinks I don't give a sh--* about anything (*that's been said since I was a child).  I am blunt and feel like I can see through people and their falseness, I am horrible with distinguishing left and right (especially mirror image). I am insulted by television and have used as many drugs that have been exposed since age 10.  I don't fit into society's mold of what is normal and have been to jail and prison.  I've lived in a mansion, I've been homeless.  

At this time, I run a business and am well financially but have had a breakup with my fiance which is sending me over the edge with self-destructive behavior -- drugs, dangerous risks, etc.  Can anyone point me to information on long-term impacts.  I am well liked, but don't have close friends.  I don't want them.  Manipulation is second nature to me but I never manipulate for selfish reasons.  I feel like I've stopped making sense.  Please respond with any advise!  tracydawn2@hotmail.com

Dec 20th, 2013 11:22pm

Hi everyone,I had a brain injury in 1994 I have two boy's aged 15teen & 13teen I'm now 38. The last two years my aggression and depression has got that low all I think about is how can I stop this pain I'm going through and the pain I'm putting my ffamily in. The doctor's have put me on that may different meds it's not funny, I just don't want 2 be like this anymore I can only think of one way to stop it all but I also love my kid's so much I hate the thought of not ever seeing them again or hugging my husband. I feel so alone and scared I hate who I am

Dec 19th, 2013 10:01pm

I had a severe TBI on May 28th 2002. And every year that goes by I become more angry/hostile/depressed to the thoughts of suicide. To end this mental torture anyone else have this problem?

Dec 8th, 2013 1:57pm

I sustained a severe TBI on 23/06/2012  during an attack in Thailand. I suffered an epidural hematoma which required a decompressive craniectomy. I was in a coma but finally awoke and was then able to fly home to Ireland some months later. On 08/05/2013 I had my cranioplasty operation to replace the large sections of my temporal and frontal regions. I started back at University this year and I reckon everthings going alright. There are times when I may have had some problems remembering names and occasional bouts of anxiety, but I didn't bother telling my neurologist. (Not getting this as much anymore) For anyone who was in the same situation as me a few months back I'd just like to say try and stay strong and try and not get down.

Dec 5th, 2013 6:54pm

Reading this was so helpful, I suffered a tbi 2 years ago and had an emergency crainiotomy my life will never be the same but my belief in god and his healing is the only ultimate thing I have. I just take baby steps every day and be greatful for every blessing I have. May god love and give strength to any one who had suffered a tbi it has truly been the hardest thing I have ever had to deal with . Colleen tbi survivor

Dec 3rd, 2013 5:49am

I was in a roll over car accident in 2006. I was diagnosed with a TBI. I was told I had a deep subdural hematoma (brain bleed) on the right frontal lobe. Along with other physical injuries. I was in alot of pain and life as I knew it came to a complete stop. No drunk drivers just a big black bull standing lengthwise across my lane. A dark rural two lane hwy, speedlimit 65 at night. I was going about 50 up an incline. I met the bull at the top. Blk bull, blk pavement, blk sky up an incline, visibility didnt allow me to see the bull until I was face to face. I somehow swerved and missed impact but my suv flipped and rolled a few times when I hit the grass and the ditch. I was told though that hitting that big bull would of most likely killed me and maybe my whole family. I'm happy to say my husband and children were unharmed. I experienced about every symptom that I have read about and then some. When it seemed after two years I was getting somewhat better I had a relapse and got worse. Then after asking my doctors about a hyperbaric chamber and getting laughed at and told it would be a waste of time and money I went to one. It was 3 1/2 years after the accident. I was worse than ever at the time. Tremors, headbobbing, slurred speech, memory problems, bad headache that never went away from the initial head injury. Peripheal vision gone, unable to focus well, poor concentration, time mgmnt gone, my emotions towards people, except anger, gone. You name it. I've been there done that. But after a month of hyperbaric dives twice a day, 1hr each six days a week I had a dramatic improvement. It actually felt like I popped out of that state of not being me. If you have a TBI you understand maybe what I mean about not feeling like me. I felt like myself again. The drs. told me to kiss my old self goodbye. They said that person is dead and this is the new you. They said I would need help the rest of my life. I told them Yah-Weh(God) is bigger than brain damage and He is. Im not saying a hyperbaric chamber is a cure all for everyone but it can help some, it helped me tremendously. I will tell you this I got sick several months later with upper respitory stuff that went around in the winter. Went to a new dr. and told him I had experienced a TBI so he would be aware of my history before he prescribed meds but he prescribed something that brain injured persons are not supposed to take. I didnt read the caution page that came with the med until I started throwing up minutes after taking it. That night while sleeping I woke up, sat up in bed and it felt like something in my head exploded. Started experiencing some of the old symptoms after that, for about 18 months it was the worst of the worst. I am again much better but still not feeling 100 percent. I will go back to the hyperbaric chamber again but its expensive. So not right now. I want to encourage you not to give up and try not to focus on all the overwhelming negatives. The human brain is amazingly resiliant and our will and determination is amazing too. Plz read this and be encouraged, its one of the few things I was able to write during that initial 3 1/2 year nightmare. Its called ''Opportunity" I gotta get out, I gotta get out, I gotta get out of my mind I feel like a prisoner lost somewhere in time Standing on the outside, looking back at me Dazed and confused at whom I will be I gotta get out, I gotta get out, I gotta get out of my head I gotta find me, but they tell me she's dead But I don't believe a word that they say I'm not in denial, I just have strong faith That a better me will emerge someday God has a plan and a purpose for me And it will take more than this to steal my destiny So just as I changed and became a new creation in Christ I'll look at this as an opportunity to become a better me this time Because I trust you Lord completely, to me rebuild my new life... Just reminding you that your never alone.:)

Nov 29th, 2013 12:45pm

For the one who mentioned the chemical smell, posted on Nov. 9th 2013, I had a TBI just last year. I recall having that chemical smell multiple times and describing it EXACTLY like that. "Chemical smell." I guess I'll go ahead and tell my story while I'm at it. I'll try to make this as short as possible. The driver was drunk in our vehicle, I didn't know it, I was a backseat passenger. I wasn't wearing my seatbelt I don't think. We were going 100mph, lost control, hit an electrical box, flew 8 feet in the air, snapped an entire telephone phone in half (at 8ft) I was ejected out the rear windshield, landed by a bunch of steel rods and shattered bricks, "woke up" in rehab after I apparently spent 10+ days in a medically induced coma to prevent me from getting pneumonia, I received a broken wrist, 2 shattered fingers, a broken bone across my face (from left cheek to right cheek) 2 broken neck bones, half an ear that was sewed back rather quite well, a severely damaged amygdala, and bleeding near the brain stem. Spending 7 years training to be a Marine I can confirm that it blew a whole lotta dick finding out they do not accept TBI patients.

Nov 17th, 2013 7:08am

My 13 year old son had TBI a little over a month ago now from football. It was raining hard and he had helmet to helmet blow that also caused whiplash. He still does not recognize any people besides me and his dad. He has been reintroduced to his friends and family. He has forgotten his preferences in food, along with a great deal of his 13 years of his life, he has a few vague memories but doesn't recall names of some common objects and is having to relearn a lot of things . He is starting to exhibit some social problems, one of which is not knowing what kind of stuff is appropriate at times . I know its only been a month but it seems like so much longer. I am encouraged to see all the posts here so thank you to everyone for sharing the good and the not so good so that I can get a realistic perspective and be able to help him more. mom of cmb

Nov 14th, 2013 12:20am

My boyfriend fell two years ago from the back of his truck onto the back of his on the pavement. He did lose consciousness for what he explained was a dream state of mind. He spent one week in the hospital and was released with no explanations of what to expect. Since then he has a decrease in taste and smelling ability is zero. There is a constant ringing in left ear with hearing loss. He has explained the smell he smells as a chemical smell of many different things. Has anyone else had anything similar to his symptoms? Has anyone ever gotten better from similar symptoms?

Nov 9th, 2013 6:23pm

I was 4 or 5 yrs old when I Had a TBI, I was playing ballerina and fell and hit my head on the corner of the coffee table, All I remember is throwing up blood. 10 yrs later I was hit in the head by accident with a baseball bat on the left side of my head. I blacked out just for seconds, but was dazed. Depression or the depression like symptons started and its not till now, I'm 54 that I'm really having problems with memory. Long and short term. But I must confess. I did have problems with my personalty when I was young. I did not know how to socialize and to this day I still don't know how. Its very lonely and scary. Because people do not understand. And my depression is worse than ever. But, after reading about brain injuries, this might be the answer, its not just me, but something that happened to me a long time ago. Maybe now I can make some sense of what is going on in my head.

Oct 26th, 2013 1:57pm

I was hit by a car when I was four years of age and suffered a Severe TBI. After reading this article I have a better understanding of the motor effects that I am inflected with. Now over 40 years later since my accident all the effects that I understand have become just a part of my personality. I feel that I live a normal life, If there is such a thing, but with a slowed speech and taking the time to think what I am going to say before I say it, which I had learned through speech therapy when I was younger, I have no complaints of what my life has become.

Oct 24th, 2013 7:05pm

I have a moderate tbi, I think all of your stories on here are amazing. I was hit from behind by a speeding car and knocked unconcious. Memory is terrible. Cannot drive yet. Bless you all and thanks for the human connection.

Oct 22nd, 2013 5:28pm

In 1999 my husband had a motorcycle accident. His handlebars whiplashed and he flew over the bike landing on the track hitting his head, hip and shoulder. He broker his collarbone and had a 6 inch laceration where the skin just pulled apart. Emergency medics asid he only lost consciousness for 30 minutes and cam in and out of consciousness for 8 hours. But, he feels that he was conscious. He thought the same when I arrived but he was still in and out. His helmet was damaged on all four sides which meant his braid richoted in the helmet. He has had a severe personality change. He is irritable over minor things and can't let go in an argument. He is always unhappy with someone over something. I agree that the issues are disappointing but he writes long repetitive emails trying to prove his point. He doesn't laugh anymore. He was so funny prior to the accident. He is explosive if he feels inadequate. He often does not understand explanations that he used to and does not realize the change blaming confusion on others. He seems to have lost his empathy. He didn't care when he lost a good friend and his mother. He was mostly angry. He had no compassion for other people's ways of grieving. He feel unsafe and threatened all the time. He feels people don't respect him and are lying to him. It is so very sad.

Oct 21st, 2013 9:06am

07/07/2007.. I am not severely religious but the date would seem that I am still here and should be. TBI from a motorocycle accident. I am a computer software engineer. Spent a month in the neurology unit while not remembering my name and not really remembering what had been said to me 30 min prior. While I have a wonderful wife and two outstanding children. My continued mood swings, headaches, general irratability would indicate just how wonderful and outstanding they really are. While I indicate content with family. I could seriously do without those symptoms. If I I can indicate directions for anyone reading this, it might be to appreciate those that remain after a TBI. And if someone gives you a chance by saying in a conversation with you that sometimes head injuries change personalities. You should listen and get real help.

Sep 29th, 2013 8:37pm

I had severe TBI in 1990 - did great for about 16 years - college degree, etc... but I started having seizures then - now everything is a huge mess - my cognitive functioning sucks - I can't remember anything. I'm in graduate school and I'm struggling so bad - I just want to hurry up and get out - my professors all know about my accommodations and me getting lost and overwhelmed. Life just isn't as easy as it used to be. I can't remember normal stuff anymore - the doctors always told my parents that I wouldn't be the same and my parents know my personality is much different, but I can tell that learning and remembering is so much more difficult for me than it used to be. It used to come so easily - I never had to study or anything - now I can't remember what I do study = It's really caught up with me. My brain can only hold so much and it can't hold anything more! Frustrated in Texas

Sep 24th, 2013 12:25am

Incredible story. There needs to be more education regarding TBI and how early treatment is key. Share your story.

Sep 20th, 2013 10:47am

I am a 35 year old female and today is my one year anniversary from my car accident in which I was rear ended while stopped in traffic by a car traveling 65 mph, the rear end impact sent my car into the middle lane (from the right lane) where I was t-boned by a passing vehicle at 65mph, my side curtain airbags deployed into my left temple and then I was t-boned 2 additional times by other passing cars. I kept asking the cop if my cheek was broken because my head hurt so bad, he never called an ambulance and I was too dazed to realize I was injured. The cop's exact words were "go home and take some advil because your going to be hurting tomorrow"....really?? I was off of work for 3 months straight with daily 10/10 head pain, returned to work on half days for 3 months where my employer gave me full time work while on half days that created so much frustration and delay in my recovery. I am now at the one year mark and seem to be going backwards in recovery. I have severe PTSD and depression. My MRI was positive for traumatic insult to my frontal lobe as well as a abnormal EEG. That neuro said I was fine and sent me on my way one week post MVA. Soon after I had 3-4 seizures, ordered my bills and records which showed both positive MRI and positive EEG results when I was told they were normal. I did not get the records until after I went back to work on half days otherwise I wouldn't have gone back. I feel the lack of basic protocol for TBI's is a huge problem and causes more people longer pain and suffering. Air bag deployment, especially side curtain airbags with multiple impacts requires automatic concussion/TBI review by medical professional which I was never given. I couldn't find a glass in my own house just after the cops sent me home with a friend since my suv had $22,000 in damage. The police report once received advise no injuries. Every vehicle had injuries after speaking with my insurance company. Due to my delayed diagnosis and medical treatment my doctors advise I can expect a 1-3 year recovery. I plan to go back out on FMLA next month as I have perm muscle damage behind both eyes, both pupils are still dilated and are perm, including peripheral vision loss shown on testing, cognitive issues, weight loss, and still not sleeping well. Early treatment is a must, have them check your vision, balance, nutrition, and sleep habits. I have never felt more alone as many mention on this page, because I appear fine I feel like no one believes me when I will be battling these issues alone for a very long time. Good luck to everyone, stay positive no matter what!!!!! Remember we are TBI survivors, not victims!!!!!

Sep 15th, 2013 2:10pm

I had TBI on November 2010. I used to be a mixed martial arts fighter until I got TBI from an illegal knee which had me out but my instincts were still going and my fight or flight response took over and I continued the fight for another 15 minutes approximately. In that time I sustained approximately 25 impacts to the back of my head via punches and elbows which were seen on the CT Scan taken at an emergency room three days later to rule out a skull fracture or cranial bleeding. Luckily I did not but the doctor said my trauma was similar to a major car wreck. I now had a condition called Post Concussion syndrome which is pretty much like Post Traumatic Brain Disorder. It is something I deal with everyday and try to make the best of. The part that has really made me lose faith in people is the fact that we had evidence proving foul play and the North Carolina Boxing Authority felt fit to disregard it and blow me off. These guys were cops and chose to do nothing in the face of evidence that hand grounds probably cause along with a fight that had a referee that was negligent to the blows as well as showing intent to violate the rules and regulations of the State. I had bouts with alcoholism, much greater anxiety, a potentially lucrative career now over as a result, and lost my girlfriend due to changes in my mood and behavior. In order to counter act this I have started writing and now keep a blog and am working on a trilogy of science fiction novels in order to keep my brain as sharp as possible and it definitely has helped. I read some of the stories on here and I can definitely relate to the type suffering of it is. I just want people on here to now that you can still do something despite this injury and you shouldn't give up on yourself if you have. I'm not. I just hope that this condition can be prevented someday. It's an injury the people just cant relate to until they experience it. You change.

Sep 4th, 2013 5:38am

Bicycling accident, August 2004. I was hit from behind by a truck. Despite having severe head and spinal injuries, I was not diagnosed with TBI nor informed of the possible behavioral and emotional effects until well after my marriage was destroyed. "The person who once was is no longer there"

Aug 21st, 2013 2:50am

i was in a wreck this year. fractured skull into brain broke sholder bones and got pnuemonia in hospital. also bells palsy on left side of face. i was so weak lost 30 pounds and cant remember the wreck. i was in hospital for two weeks 1 week uncounscious had people visit me i didnt remember was out cold. looked at my dad and wife and mom gave me support. as well as other friends broughts meals to my home and gave money. im always sleepy weak brain hurts and nervous. but jehovah keeps me strong with family and friends. one day we will be healed and accidents no more. rev 21:3,4

Jul 31st, 2013 4:28am

I am 25 years old, and was in a coma from a car accident at the age of 5. A first aid kid came out from underneath my seat upon impact and opened and the reflector came out and hit me right in the middle of my forehead. I have been struggling lately with depression and other things and have been researching to see if the coma in the reason for this. This article had very useful comments

Jul 23rd, 2013 12:51pm

I had car accident on December 1992 and I was in coma over a month. As soon as I was wake up from the coma, I was my own, because I did not have any family. I was new in America and I did not know how to get help. I felt every one took advantage of my weakness. Even, my compensation from car accident was managed and mishandle by others. I did not have place to stay, and I went dormitory school, to have place to stay and it became like hell. Doctor suggests me to leave and rest. I did not have any relatives or good friends in America, I also I was not able to go anywhere else. To make long story short, now after over twenty years, thing are getting worse and I do not know what to do or who can understand me.

Jul 1st, 2013 6:37pm

My husband sustained a severe TBI 12/1/11 and he is still recovering. He was in ICU for 41 days and has gone through more than I can even understand. He had bone flap removed during initial surgery, got and infection 19 days later and was reopened, was in Acute therapy for a month, and then sub-acute for a month and finally came home. He had bone flap placed in,, and after 5 months had another infection and had to have it removed again. He wore a helmet for another 6 months and then had a prosthetic placed. He lost all movement and use to his left side a year after his ATV accident and he is going through therapies now. Over the last 5 months he has had 4 seizures and they can't seem to control them. He was just hospitalized last week and had MRI to see what is going on, the Drs. told us that over this time of healing his right side of his brain shows damage and that he will be permanently weak on his left side. He is frustrated and depressed and his emotions are all over the place. He wakes up sometimes with slurred speech and he has chronic headaches which are not improving. He is so strong and I am so proud of him! He tries, but unfortunately he doesn't comprehend somethings and that breaks my heart. I will say that all I can do as a wife and to try and keep him moving forward and stick by him. Afterall that is what love is all about. He is different than he used to be, he was so active and funny and always happy...I do live a "changed man" but by no fault of his own, it just happens. I am his sole caretaker and I am with him all the time, I see his highs and his lows. I just know he has to go the extra mile to work hard and he knows that too. Best of luck to all of you who live this day to day as I know it is not easy and no one will understand unless they live with someone with a TBI...God Bless

May 29th, 2013 11:04am

I appreciate your comments! I have a realistic view now. I had a brain aneurysm 10 years ago and still suffer the effects. I thought to get better would be to be perfect - not so. Thank you all for sharing and please allow me to say God Bless you all.

May 15th, 2013 9:23pm

I was hit over the head with something pretty solid in an Armed Robbery at my place of work on the 4th April 2003, IT HAS TAKEN A LITTLE OVER TEN YEARS TO GET THE BRAIN TO FUNCTION AGAIN IN A NORMAL WAY.I lost the neural drive to many parts of the body, the hormonal or endocrine was all to pot and has only righted itself very recently,last evening and I am not going to describe how I know, suffice to say I am now a slightly sad sixty-one year old suddenly, overnight. I Had no memory at all for four years, I have only just begun to reason as an adult again, I have never given in, even though I kept loosing the neural drive to the heart for ten minutes or so each time, in the first four years. I am now learning to play the piano, ça va très bien pour moi, and of course a little German,aussi mir geht sehr gute, cheers Christian Morgan.Brighton, no doctors helped me either!

May 12th, 2013 12:25pm

My dad aged 77 is currently in Criticalcare following a horrific attack in his home. He suffered 2 fractures to the skull 1 bleed on the brain, horrific facial injuries and fractures, including his nose and pallet damage. He also received massive internal bleeding needing surgery and part of his bowel removed. His progress has been amazing the docs and nurses are well considering they did not expect him to see the night through are shocked. His memory is more about his long term past rather than short term. He doesn't know where he lives or that my mum died in October of last year and keeps asking after her. The docs say it could take months for him to fully recover, what was two weeks a strong independent 77 year old pensioner is now a pitiful weak old man, but he is alive and that is all thanks to the amazing staff and his fitness and strength. I have read some of these and take it all inboard that this will be a slow and long process.

May 8th, 2013 10:12am

My accident was in 2004. March 31st, but my husband says April 1st. I think I would remember April Fools day... My problem how he minimizes my improvement (recovery ?) I am so afraid at the thought of being with anyone, but can functon with people at grocery store, can't write witj my hand so I write with a comupter. He just wants me to do dishes, cook, clean, take care of myself and be support to him like I was to do before all with a great job of 75K income. I know it is hard to take a person so changed, but he now is scaring me with yelling. I am so scared all the time when because when he yells my head spins. Now have a tremor in my hands which is going to make me unable to feed myself. So scared. This took me 25 minutes to write so it had no mistakes. I bet that errors still exist.

Apr 9th, 2013 2:20pm

While reading all these comments, I can\'t help but to feel blessed. I sustained my TBI in 2008. As time goes on I\'m able to notice my own deficiencies (such as stopping what I am doing to tend to a more imperative situation at hand) and work on bettering them. Sad to say, but some deficiencies do not go away, for me anyway. I just learned how to cope with them; jotting quick notes, being a bit more tidy (not really OCD tho),exercising, etc. However, I get very frustrated with the fact that I have a difficult time controlling my anger, getting flustered when things don\'t go as planned and making the wrong choices (even when I know they are wrong and even detrimental to me) BUT since my accident I have been raising my four year old, got my GED, started college, and even met somebody and got married. As I praise and give thanks to God for making it this far, I continue to pray for my impairments. Mainly my anger... it has become a real problem between my new husband and myself. I still do not always do or say the right things, but I\'m trying.

Apr 2nd, 2013 9:32pm

I was Six Years of age when I had my first head injury. It was 1980. I was riding my bike and my father was behind me and I lost control of the bike flipped the bike and landed on the right side of my head. I was in ICU for over 72 in a COMA swelling of the brain. My parents stated they had to sign a waiver to drill a hole in my head if the meds did not work to reduce swelling. Lucky for me they worked. I was an A/B student at the time in a Catholic School 1st grade. I was held back in 1st grade again due to this accident because once I got back into school my Moods, behavior, grades slipped to F/D's, memory, concentration levels, cognitive skills, Reading, Writing, even tying my shoes I had to learn again. Yet the doctors said there was nothing wrong with me. That the CAT scan was fine. Well when I was in 3rd grade I had to be taken out of Catholic School and placed in Public school because I fell so far behind and I just could not stay focused on anything I was lucky to be focused on myself. In 3rd grade public School I was Diagnosed with Multiple Learning disabilities. In 4th Grade I was diagnosed with ADHD my parents refused Ritalin and told the Doctors and the school to figure out another method because they where not going to have a drugged child. In 6th grade I was diagnosed with Eye problems due to the head injury that took place in 1st grade... (OH YEAH) I had to wear Tri-Focals to Bi-Focals to Glasses to Reading Glasses and went through two years of Vision Therapy for children who sustained Traumatic Brain Injury with a doctor in Ringwood, NJ Named Dr. Joel Warshowsky. IN 7th Grade I was transferred to A Special Education School Orange-ulster Boces in Goshen, New York with other students that where mentally emotional and physical Handicapped. (Autism, blindness& partial blindness, deafness & partial deafness, psychiatric condition, Cerebral Palsy, Multiple Sclerosis, Muscular Dystrophy, Down syndrome, and the list goes on. I stayed there until 9th grade when New York State tried to main stream me back into Public school again, which was a nightmare. Once I went back to my home school I was teased, beat up, raped, abused, was in a fight almost ever day, I even began to fake seizure just to get the heck out of the school. They finally sent my back to Boces however the damage to me was already done. I became Depressed, Moody, Full of Anxiety, I began to self-mutilate drawing things into my body then picking at them, this is when I began to have insomnia, and nightmares, started to runaway from home. They kept me in Boces until I graduated High School However I was never accepted at my home school even though my father forced me to walk at graduation to get my diploma WHICH I HATED!!! I was always different because of my behaviors I was never accepted everyone knew there was something about me that was just a bit off. I was eccentric & passionate in my eye, in other peoples eyes I was crazy, weird, strange, neurotic, compulsive, obsessive, impulsive, and my nicknames in High School where "CRACK BABY" & "TINKERBELL". I was 19 I was on a motorcycle and got into a accident I was lucky to be waring a helmet or else I would be dead today. In College I was called "JUMBLE G". due to my eccentric behaviors. By 1995 I was pregnant that was a nightmare all on its own. Seizures, Sugar problems, Blood Pressure problems, mood fluctuations, pains that the doctors where telling me where not their, YET they where there!!!! I was miserable. I was crying one minute, screaming another, happy the next and this is not exaggerating... I was out of control. Then I was kidnapped while I was 3 months pregnant and the police did not want to believe me. Yet they did not want to bring the K-9 unit out to search my car and do scent pad tracking on the guy which they would have found the keys to my car at the very least. Four blocks over on some persons lawn. I have had one problem after another since my head injury medical issues after medical issues. Hormone problems where always a major issue for me. I had to have multiple surgeries down in the female region I am hoping I am going to have my last one this May 2, 2013 this time they are going in Roboticly. Hopefully this will be my last and final hysterectomy!!! Ever since they took out my ovaries my moods have been easier to manage. I still have anxiety . I still to this day at 39 years of age have problems memory cognitively moods matter of fact I was diagnosed with a mood disorder due to a general medical condition with a Personality disorder, anxiety due to Traumatic Brain Injury in 2003. 2003 I was diagnosed with Cervical and uterine cancer had a hysterectomy however I have had one ovary keep growing back about every two to years with masses cysts and tumors every thing has been binge. Fibromyalgia in 2005, OA 2008, early onset Parkinson 2012 (brought on by the head injuries. At least this is what I have been told). Liver and kidney issues... Pains numbness vertigo weakness I been told it is all in my head... I tell people your damn right it is all in my head all from my head injuries I blame it all on the head injuries... So for all of you who have issues yeah I feel your pains mentally physically and any other way. I believe you over any doctor who tells you it is not possible it cannot be happen or even if it is happen I have had them to more frequently in today's day and age. So yeah I understand all of you and I feel for everyone on this website because it is so darn frustrating when Doctors think they know you and they have only known you for three minutes and never even seen a chart of yours before.

Mar 29th, 2013 4:11pm

I wreaked on August 19th 2001, I don't remember any of that & only a tiny bit of being in hospital. I never got rehab. I do know that it took me 10 years to be ok that I lived after wreak. The me know is not the same person that was here before. It is like there is/was 2 of me the one before & the one after. I had no memory after wreak none & my right side didnt want to work right plus many other things. The bones healed some things got better & went away. I still have many problems but now only with my head injury & th resulting opps just got lost. That wreak took so much & showed me that the ones I called friends before were not at all. I trust all & believe all I have been taken advantage of because of this. so my way of dealing with that is to stay away from people as mush as possible. I noticed that I react very very strongly to situations that happen my emotions seem to have gone to extreme mode. I have always had lots of emotion since wreak but this is so much more intense & way over board. I also was told that i have been talking different to someone then i have ever done before to them & I have known them for 2 years now. In 5 months it will be 12 years since I wreaked. Do i have to deal with new personality & emotional changes again.

Mar 29th, 2013 3:55pm

I had a severe TBI in Aug 1992, I fell off a car moving about 15 miles an hour. hit the back of my head stood up and fell and hit the frount of my head and of course stood up one more time and fell for a third time and hit the bck of my head again. I spent 4 days in a coma and have very little memory of the incident. About 8 years ago I noticed I started having problems with shakeing of the arms and other mentel and emotional problems. My recovery went very well from the accident, but the problems I am having now seem to be directy related to the head injury I have years ago.

Mar 14th, 2013 11:13pm

i suffered a t.b.i. over ten years ago when i was a junior in h.s. hanging on to a moving vehicle whilst riding a skateboard. i was a \'gifted\' student (hard to believe? ha) and was able to finish out the rest of the next year while earning a scholarship to study in Germany. I messed that opportunity up because I started smoking marijuana heavily overseas because, well it was strong and I liked it. Upon being kicked out of Germany I enlisted in the navy. Now when I was hospitalized it was like an emergency helicopter and medicated coma for two days kind of scenario, and my recruiter told me to \'falsify\' my enlistment paperwork to say I was only unconscious for two minutes. Well after finishing my basic training at Great Lakes I was shipped to california, to the presidio of Monterey. My inability to cope with the military life, the alienation (now that i see was of my doing), and the fine grass of northern california ended up with me being kicked out of the military with an o.t.h...a lot of things i did during that time warranted medical attention but because of my cannabis use, i\'ve been up shit\'s creek dealing with that being the scapegoat.As for the strained relationships with my family and friends they too can use \'well it\'s just the pot suck it up and grow up\'. don\'t get me wrong i should have more power over smoking because i was able to put down the bottle,but the chaos of everyday living gets to me. i\'m punching holes in the wall, getting arrested, getting fired. conning my way into employment by leaving out the tiny little detail of my deficiencies when it comes to interpersonal relationships, anger, stress management, sense of reality...and don\'t even go into the beautiful kind loving women that have blessed my life and then scrambled for an exit after months of varying \'episodes\' that make me look like I\'m psychotic or something. It\'s those 5 seconds of just pure explosive rage that come and go like some unpredictable storm that has me in a position relying on my family to support me. i don\'t want to be this person, but i am, and i have to deal with it but how?

Feb 28th, 2013 12:22am

I suffered a TBI in September of 2000 and the two worst physical injuries I received were a broken back and loss of vision in one eye. When I woke up in the hospital I had no idea where I was or who I was. I have undergone every type of therapy possible; physical, cognitive therapy, occupational therapy, and others that I don't recall. Like one person above said that there is a thought on the tip of my tongue and I just can't get it out. It's a very frustrating feeling and it happens more than I'd like. Also, like someone said, I look normal except for a slight limp and a droopy eyelid which eye glasses pretty much cover. Unfortunately like many above I have not been able to return to work. Betweein my back and my eyes I've undergone over 50 surgeries with more planned. Am I grateful to be alive, of course I am. I was able to give my daughter away at her wedding and I was able to enjoy the birth of my two grandchildren. The only thing I can do is to keep fighting this and some day contribute back to society.

Feb 24th, 2013 12:17am

I suffered a TBI and also broke my neck in 2000 while a passenger in a car accident. My life has never been the same since. I continue to have memory problems, difficulty concentrating, experience mood swings, irritability/anger, fatigue, depression, headaches, preoccupation and the list goes on. I am grateful that I am alive and that I healed from my injuries after surgery and a lot of therapy. It is difficult everday though because I never have felt right since. I look ok and no one understands what it is like because I am not. Friends, family, co-workers and professionals do look at you like you are crazy. I am a social worker myself and it is frustrating to not be able to say what you want or mean but have it right on the tip of your tongue and never be able to put things into the correct words. I wish so much that people could understand what it is like to have a TBI. It is exhausting to constantly doubt yourself, feel misunderstood, also abandoned because no one understands. I never thought that after 13 years things would still be difficult and frustrating. There needs to be more resources, education, support and resources. I tell myself that I have accepted that I am different but I have not and I'm not sure if I ever will.

Feb 20th, 2013 6:54am

Suffered severe TBI in Nov. 1991 - unconscious for entire stay in first hospital. Shattered my right femur - in addition to which the entire right side of me was neurologically affected (right arm spastic/right leg paralysed/very little muscle control on right of body). For the past five years (or so) in particular, I've suffered much rejection or 'misunderstanding' by my once close family & friends - simply because I no-longer behave or react in the same way as I used to. For about 15 years after my unfortunate 'incident', I simply behaved as I thought others expected me to behave; my self confidence was so severely damaged, but now I'm able to behave independently, my genuine 'new' behaviour is rejected - having an alternate (or different) way of behaving and thinking, that differs from the standard 'accepted' way, has made life very hard. The problem is that my behaviour for most of the first 15 years was a lie, merely to ensure social acceptance!

Feb 14th, 2013 10:11pm

WHEN I WAS SEVENTEEN IS WAS A PASSENGER IN A CAR..BEHIND THE DRIVER WE CAME TO A BLIND CORNER(SO I AM TOLD) A CEMENT TRUCK HIT US..I GOT THE IMPACT..LEFT SIDE HIT SO HARD CRUSHED MY HIP..SLAMMED INTO THE GIRL ON MY RIGHT BROKE 3 OF HER RIBS WITH MY HEAD..THEN HIT FLOOR BOARD CRACKED MY TEETH THEN BOUNCED BACK UP ON HER LAP..HAVE NO MEMORY OF THIS..WAS TOLD ABOUT IT..IN A COMA..COMPLETE PERSONALITY CHANGE WHEN I WOKE UP..HORRIBLE LIMP FOR A ABOUT A YEAR..STILL BUGS ME..TERRIBLE HEADACHES EVEN NOW..AND I'M 53!! WHAT'S UP WITH THAT??? JUST THOUGHT I'D SHARE..

Feb 11th, 2013 3:03pm

Suffered severe TBI in Nov. 1991 - unconscious for entire stay in first hospital. Shattered my right femur - in addition to which the entire right side of me was neurologically affected (right arm spastic/right leg paralysed/very little muscle control on right of body). For the past five years (or so) in particular, I\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\%5

Feb 2nd, 2013 1:19pm

Skydiving accident. I was discharged after day or two, but do not remember weeks and apparently I was in and out of conscience on the couch. Took about 2 years to get back to a normal of sorts. During that time gave away all of my possessions. 5 years later had a grand mal seizure. Been on seizure medicine ever since.

Jan 10th, 2013 11:04pm

May 30, 2009 I fell backwards onto concrete resulting in a severe TBI, 10 days in ICU, 3 days of that with raccoon eyes from the impact. Cant remember anything of the first 6-7 days in the ICU, but my wife said I was talking and recognized the people I talked to. Got home and developed dizziness for about 2.5 weeks. Dizzy 24/7 for 2 weeks is the worst feeling in the world. An audiologist friend did a maneuver and after sitting in a neckbrace for 48hrs, dizziness was gone. Spent the past 3.5 years healing and have only felt back to normal about the past 3 months. Your personality changes severely, so much so, that almost all of my friends turned their backs on me, my job ended up letting me go due to my agressiveness towards different situations. You can actually almost watch your real self disappear into something else. You say to yourself dont do that or dont engage that person, yet your body doesn't listen/ So, you feel like you are watching yourself go crazy. Throughout this experience, you find yourself trying to explain what is going on in your mind and people just look at you like you are nuts. Then they stop believing you all together no matter how hard you try and explain they just get farther away. The only person who finally came back around was my wife, after one point telling me to leave, she finally stuck it out until I came out of the fog. People who haven't suffered one of these have no idea what you are going through, and all of the people you thought you knew have these self proclaimed psychology degrees they use to judge you and destroy your future instead of sticking it out with you. You do almost become another person, your views of certain things change, I have found that its almost impossible to trust anyone anymore, especially the ones who gave up on me and exiled me from my normal world. You really learn who the true people in your life are, cut the others loose. The headaches are few and far between now and a lot less severe/ Just give it time and dont turn your back to your "friends"or "job". They really dont care.

Jan 3rd, 2013 1:10pm

my husband was hit by a car a few weeks back. He maintained a few skull fractures and a small bleed. We were in the ICU for 2 days and then stable so the doctor released us. We went to the neuro floor and within one day, we were back in ICU. His brain was stable again and we eventually made it home. Now, my husband feels so much better and acting like himself although he is still tired, irratable and is just wanting to "get back to himself." I do not know what to tell him? I cannot get a good answer on the recovery of this injury. When we went back to the Doctor, he said his brain was still swollen and wanted to see us again in a few weeks. I feel tortured and so uneasy every day. Will this ever get better for him or me?

Dec 24th, 2012 11:51am

On 05.05.77 which was the day after my 13th birthday I was knocked down by a car and spent twelve weeks in a coma with severe TBI, I then spent a year at hospital school where I learnt to write from being left handed to using my right hand. I returned to my secondary school a year later and a year below my actual age group plus rather than being placed in the top where I had come from I was placed in one of the bottom sets. I was bullied at school and refused to go to college due to the trauma. At the age of 29 I was capable of going to university and was accepted (had worked in a shop until 26 then bar work until university). Im now 48 still at home with my amazing parents don\\\'t have any close friends, but that\\\'s life and Im alive!

Dec 9th, 2012 3:57pm

I am a mother of a 13 year old boy who is a year and 7 months past moderate TBI. We live in a very rural area and have not been able to get the medical help he desperately needs. After being hospitalized 5 times since his injury, we are now hopefully getting the help he really needs. He is really not the same child we had 2 years ago. I am really hoping to find him some help to make him happier. He used to play 3 sports and was an A/B student. He received his moderate TBI playing football at the school, not wearing helmets and he fell on the back of his head on to the cement. I just really wish there was more information out there for children with TBI!!

Dec 3rd, 2012 10:39pm

I am four years post-TBI. Four bi-lateral frontal lobe subdural hematomas and a slew of subarachnoid hemorrages. GCS was 9 when I finally got to the trauma center. Post injury amnesia lasted a long time. Speech aphasia lasts to this day. Altered sense of taste and inability to regulate body temperature lasted years. I received no post-trauma rehab. I was sent home to care for a 2 year old when I could barely walk, couldn\'t read, still having seizures, it was a mess. Didn\'t drive for 7 months. Had a hard time controlling my emotions, couldn\'t recognize sarcasm in other people. I returned to work but found that I no longer had the chaos management skills necessary to work in an active shipyard on highly complex computer systems for a program I was the senior engineer. It was heartbreaking. I continued to work, but not at my previous level. Now I don\'t touch the systems, I just perform project control type activities. All the negatives aside, I believe God spared me for a reason. I\'m home with my family more and am super active in my daughter\'s school and our church and community. TBI changed my life immeasurably. For others out there get all the services for rehab and help there is to take. I regret not getting help, because I think my recovery was not as complete as it might have been had I receive some post-ICU follow-up.

Nov 24th, 2012 12:08am

I'm a 42 yr survivor of severe traumatic brain injury (happened 1/23/1971). I've been without a sense of smell (and taste) since the injury. The physicians didn't know how I was able to survive the multitude of injuries: multiple skull fractures, swollen brain, severed small intestine, dissolved wall of bowel, abdominal cavity filled with blood,digestive juices, solid waste. I was unconscious five days, with the first three days my eyes bulged out due to brain swelling. It took me over 25 years to finally discover the reason for my survival: I am blessed by God. There is no other explanation. I continue to live a "normal life", in that I worked many years in fairly demanding capacities. Retiring from the federal government at the age of 55.

Nov 18th, 2012 6:49pm

Four years after a severe TBI caused by a fall which changed my life beyond all recognition. I still suffer with the usual aftermath; forgetfulness, absent mindedness, so much so I have lost my way home on one occasion,fatique and headaches.I become confused and overwhelmed with what used to be the most simple of tasks. Medical help is inadequate to say the least, damn well unhelpful most of the time. The biggest issues are the loneliness and frustration of not finding answers if, indeed, there are any. I do feel adrift and forever apologising for the shortcomings I now have, caused by the TBI.

Nov 16th, 2012 3:41pm

I suffered from a TBI in 1995. I was hit by a van as a pedestrian. I spent about three weeks in a drug induced coma after having an emergency evacuation of a sub-dural hematoma. I had fractured my skull and was very lucky to have survived. I have little to no problems since revovering which took a good deal of time.

Nov 16th, 2012 1:07pm

My brother had a motorcycle accident on Sept 19, 2012 and has severe tbi. He is still in a coma but moves slightly and opens his eyes at times. My question is to the person who had severve tbi when he was beaten in a bar and left face down. Can you tell me how long you were in a coma?

Nov 5th, 2012 9:42am

I experienced moderate to severe TBI at 12 years of age. It was a skull fracture in the back of my head that resulted in coma for a couple of weeks. Over time with not much therapy, I seemed to make a significant recovery. However, I am now understanding that it has been a partial recovery. I have been plagued for the last 38 years with life long depression, apathy, dizziness, and aggression. I just assumed it was bad genes, but am now realizing that part of my struggle has been due to the brain injury. I've had to work VERY hard to overcome these lingering long lasting effects. The thing that continues to trouble me the most is the following: "cognitive abilities referred to as executive functions - the complex processing of large amounts of intricate information that we need to function creatively, competently and independently as beings in a complex world. Individuals with TBI may be unable to function well in their social roles because of difficulty in planning ahead, in keeping track of time, in coordinating complex events, in making decisions based on broad input, in adapting to changes in life, and in otherwise "being the executive" in one's own life." I have often felt like a failure in life because of these difficulties. I have considered suicide dozens of times. However, I have always battled HARD and managed to have a modicum of success in life. I managed to get a college education. I managed to be relatively successful in a career as a musician. The thing that really saved my life, however, was a deep spiritual connection based on the practice of meditation. I've worked with different spiritual teachers who have helped me tremendously. Although I've always know that trauma was at the root of many of my problems, I now discover that part of the reason for my life long STRUGGLE to survive and thrive may have roots in my brain injury. Wish I had known about it long ago. Perhaps I can improve some of these difficulties. I have heard of a therapy called EMDR that supposedly helps with PTSD which I've also always suffered from. I plan on exploring that and seeing where it takes me on my life-long healing journey. To everyone who has experienced this trauma I say this: make your LIFE about healing. Focus on it. Commit to it. Pray for it. Or unresolved trauma will destroy you. It very nearly destroyed me numerous times but it hasn't yet, and I keep battling. Good luck!!!

Oct 30th, 2012 12:55am

i am 47 and had my moderate TBI in january 2012 while ice skating. was initially conscious but luckily knew the signs of head injury and went to the ER. was unconscious for 12 hrs, hospitalized for 4 days, and the 'improvement' has continued since then. i returned to work - full time - after 5 wks to a demanding environment which was only made more so after my injury. despite going to my boss on a monthly basis to let him know i was very overwhelmed and that all of my paperwork wasn't getting done, i was terminated' on october 1 for not having my work done. it is a healthcare environment and timely compliance is very important. many of my co-workers, and my boss i think, thought that because i was back at work and looked fine that i was in fact fine.....which i was not. i would urge everyone facing this type of ongoing issue to be very honest about your limitations! i was......but i got no assistance. i have really good days and really bad ones, balance and dizziness continue to be an issue as does my lack of appetite. in time i know i will make a new normal for myself......

Oct 15th, 2012 1:19pm

10/10/12 I am 21 years old and I have suffered a TBI from a car accident in May 2012. My memory has been lacking in a few areas, mostly the memory of the month of May. In the same car accident I received a back and neck fracture and collapsed lung. I look back on my injuries and think of how lucky I am even though my life has been a struggle. I refuse to give up.

Oct 10th, 2012 12:32pm

i was involved in a head on auto collision november 9 1995 i have suffered years of bad migranes and depresson and memory problems and i have tried not to seek medical attention after spending time in hospital and close head injury clinic i,am getting older and experiences more symptoms i know i must seel medical attention but i find it hard to tell my self i need to i have had people tell me i need to seek counceling

Oct 9th, 2012 11:13pm

My tbi happened sept. 24 2009. It was classified as a severe tbi. I was over double the legal limit a .18 alcohol blood level and 38 years old. I was left in a coma. I left a wife and 2 kids at home so I could do my daily drugs and alcohol binging. I was severely beaten at a bar and left face down for dead on a highway. Wow what a day. The greatest day of my life! why? Because I found a relationship with god. God can turn the worst tragedy into your greatest accomplishment. Relationships I had severed have been restored. I have not missed a day of work in almost 2 years and have not had a job complaint either. No Iam not a rocket scientist, lol, but I work with materials that have only .031 1/32 tolerance that must be precise and making a good living in the worst economy I have ever seen. Iam supporting my family. Dont give up whom ever you are. All things are possible with god. Iam living proof.

Oct 1st, 2012 9:47pm

I had a severe TBI when I was 12. My parents were Christian Scientists and did not take me to the hospital even though I had a large fracture of my skull, was unconsious for over an hour, and had complete amnesia for 5 to 6 hours after regaining consiouness. I really never associated this event with the many of the personality changes that occurred with me shortly there after until recently. I went from a very athletic, A student, to doing drugs and failing in school. I was able to make it through college and get off of drugs but this event clearly was a pivot point in my life. I am now 47 and to tid day still struggle with some issues. It does get better with time.

Sep 29th, 2012 9:33pm

my TBI anniversary is coming up october 29th. it will have been 5 years now. i'm sorry that i can't be positive and say in this 5 years i have found all of the answers. quite the opposite really. i was and am today, so determined to be who i was. this person that i'm clearly not anymore and that i have no recollection of. 5 years this october.. and i'm just now starting to try to google answers. my parents are in denial in the sense that they don't think i can make my own decisions, all of my old friends became confused with all of my personality changes. my memory continues to be not so good, which aggravates me on a whole other level. i NEED to find someone to talk to that understands this "invisible disease". if anyone knows of any indiana support groups, please share!

Sep 24th, 2012 1:33am

First, to the person who posted on Aug 16th, 2012 12:49pm. You did not fail in life. What you have been through and are currently going through now does not make you a failure. I can relate a little with you on some of what you say about no social life, relationship and such but please realize you are a surviver. That alone makes you anything but a failure. I wish I could get in contact with you some way because I would gladly be your friend. Take care.

Sep 12th, 2012 11:47pm

I am 10 years into my TBI injury. My life and those of my husband and two kids have been turned upside down. I feel for anyone who has to live with this! hopefully my work injury claim will settle accordingly

Sep 12th, 2012 1:17pm

my heart go out to yall my daughter got a TBI and I know how life can handle people.I just told my little girl she can beat the odds because Jesus use the strong people not the weak ones so look at it like this God made you special for a living testimony for his kingdom.

Aug 28th, 2012 2:30pm

I had severe TBI as a child(pre 10 years old) and i'm in my 30s now. I've failed in life. Have no career and no social life. No love life. And i've been fired and not hired from any of my temp jobs. LIfe is difficult because i lack maturity and have memory and speech problems. I dont understand many things typical adults can understand. I can't join discussions or anything because i have Auditory processing problems. In Sum, i've had a hard time and i had no help ever because my parents were in denial and thought i was just normal. And they scolded me, teachers also scolded me and i was bullied al my life. So basically i'm a failure but recently i've been trying to get help in disability and also i joined a tbi support group

Aug 16th, 2012 12:49pm

I am 1 year and 10 months post TBI due to my fall 5 rows down face first on steel stadium seats. I was knocked out momentarily and have been through speech therapy, cognitive therapy, physical therapy, vision therapy, and currently am getting vestibular therapy along with continuing vision therapy. Because my incident was during coaching, it is a work related injury and being handled by workman's comp, which means I've been given poor care. All they've told me is to give it time. I am a teacher who taught Reading and Language Arts and Writing. I have had speech delays, trouble with spelling & writing, can't find my words, memory issues, not remembering short term or much of the last two years, balance issues, loss of vision fields, vision memory, and vision flexibility (can't focus far or near), light & sound sensitivity, not to mention mood swings, migraines, passing out and throwing up. Can't plan or handle much stress without shaking or crying. Every new challenge seems to set me back months in progress. I have daily migraines and can't drive. I have given up my masters classes, coaching, and after school teaching and activities. I have tried antidepressants, migraine medicines, am currently on Ritalin for attention and memory problems. My hormones have quit. I am still holding onto my teaching job, but have found new ways to teach. Technology has become my new best friend. Using it, allows me to keep the lights down low and I can create lessons at home in the quiet. I have relied on old memory (old lessons and knowledge of novels that I have read in the past) to allow me to keep teaching. One thing I can say is that I now truly understand my students who are autistic and learning disabled as I, myself, have to use many new tools to learn. Reading has just recently been a gift I have received back, only silently though. Though I may not be able to multi-task the way I used to and I can't dance, I still have heart to reach out and make the world a better place. I may not be the old me, but I will continue to strive to be a better me. Keep striving and learn to be thankful for little gifts, like a good day! God is Good and He is making me stronger! This article, helped me make sense of the loss that I have encountered and look at it with more realistic views, instead of believing what the Dr.s and Therapists have said, "that in time, I will wake up one day and be just like I was." I now know that I will not, and I can accept that if I can hope for a better tomorrow. No more tears for what I have lost, but a smile for what tomorrow holds. Thanks again! English Teacher in Kansas My only advice is to pray and be thankful for any small progress! Take all the therapy you can, because you will find amazing people who care!

Aug 11th, 2012 1:47am

this is to the lady who had the tbi on the 7-11-11, get in contact with headway in your area, i have a tbi and they have been fantastic with me, they give me all the help i need and support me, it would be good for you, keep your chin up hun, all the best, martin mcgovern, south wales

Jun 29th, 2012 8:33am

I have went 26 years with undiagnosed TBIs. The one to my forehead left me with nearly 100 stitches worth of three scars. I have had other serious TBIs before and since that time. The only reason they were recognized and now are diagnosed is because of me. I read about TBIs ina book and put two and two together. The medical professionals and health care industry has been of little to no help. They are mostly all bozos and idiots. The Social Security Administration is even worse. SSA is NOT your friend and they are NOT there to help you. They are there to try and make things worse. Seek out groups local to you that are for TBI survivors. Look on-line for Traumatic Brain Injury forums and websites. You have to help yourself as much as you can. People (including family, friends, co-workers, employers, and med pros) simply do not care, are ignorant, and have no interest in learning about TBIs. Educate yourself. Have TBI educational info sent to your health care providers and your doctors - and your family too. Also, speaking as a multiple TBI survivor, learn to meditate. It helps greatly. Yoga can be very good also. And, frankly, smoking pot will greatly help reduce your anxiety and reduce your anger and hostility. It is good natural medicine - just don't have it in your car. The police are NOT your friends. Avoid them. Pester your doctor for help with your TBI. Be relentless. Also check all your local hospitals for any programs they may have or know of for people with TBIs. Do the same on line. Email people. Email doctors. Email the mayo clinic. Email TBI specialist lawyers. Get all the advice and help that you can and then put it together and organize it in a way that you can deal with it and make use of it. Lastly, if your TBI related behavioral/emotional/social dysfunctionalities persist, MAKE SURE they are documented. Make your doctor address them and document them - and then start working up a SSA disabilities claim. Odds are for you will be turned down on your first try. Do an appeal. Be persistant. You may be unemployable due to your TBI. I am, so I speak from experience. Check into Prepaid Legal. It is a way to pre-pay for legal services and to get them at reduced rates. They may have changed names, but look on-line and you will find them. They are VERY useful - for many more things than just TBI related issues. Get a speeding ticket? if you have a Pre-Paid legal services plan you can request an attorney to come with you to the court hearing and get you out of trouble - at no extra charge to you (cops HATE it when people come to contest their traffic tickets and bring a lawyer with them). I hope this helps.

Jun 10th, 2012 4:33pm

November 7 2011 car accident. Diagnosed mild TBI but then got so upset all the time i was asking for help the police broke my leg. now scared not sure how recover. people not sure how deal with me now. miss my ex boyfriend so much but i scared him away after my accident. he will not speak to me. my accident was 6 months post breakup. just b4 breakup lost job. how do i get help for this it is invisible injury people don't understand

Jun 7th, 2012 2:28am

I'm supposed to be a reasonably smart guy. Sure I'm no genius but you know what I mean. I did the V.C.E. (Victoria, Australia's Year 12) with an average of around a B. Nearly 3 years ago I got hit by a light truck doing 80kph during appalling weather. I suffered a 3 on the Glasgow Coma Scale and they put me in an induced coma for 10 days. I can't remember any of this, it has been told to me by the people that I love. At the beginning of this year I enrolled in a T.A.F.E. course. It isn't college but higher education. Because I've got so much spare time I decided to use it to advance myself getting a better education and thus a better job. But even though the course is basic I find it a bit to hard at the moment. Sadly I think my brain is letting me down which makes sense to me recently as I suffered a severe traumatic brain injury. Sorry and I feel bad but I'm hoping that my brain will get better over time. I didn't have much patience before but I've got vast quantities now. I think I am just realizing how close to death I was. Some of my mates, who are as a tough as nails, started crying after my accident. That's it for my epistle. To all the people who have suffered a brain injury I say please persevere, the Human Mind is such a powerful thing.

Apr 15th, 2012 4:06am

This article is actually quite encouraging! I am a year and four months past my severe TBI, after which I was unconscious for eleven days. I am an honor graduate of Harvard and was a college professor until my injury, so it's nice to be encouraged by the acknowledgment that while my life is very different now, it's far from over, and I can still find ways to be valuable and contribute.

Feb 13th, 2011 12:53am


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