The Truth About Divorce After Traumatic Brain Injury

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Please remember, we are not able to give medical or legal advice. If you have medical concerns, please consult your doctor. All posted comments are the views and opinions of the poster only.

I feel for you.i have no support it's just me and my son who have been dealing with the issues of brain injury and ptsd.that was in 2013 from a motorcycle accident and then again in 2017 another motorcycle accident and he refused medical help.and now 5 strokes in a week and refused to go to hospital. Finally got him to go and that was when he had the big stroke and its been hell.he would say things and then say he didn't say that.he quit therapy claiming it wasn't helping him. They told him do not drive but he does he is unable to see out of his right eye but he just wants to argue with us.we know when he isn't on his medication. The hate comes out and all he wants to do is argue with us.he thinks the food has medication on it but we eat the same thing. He has been excusing me of having an affair for 20 yrs now and that's when I became disabled. He told my doctor that he wanted me off all of my medications. So since 2018 of October I have been using cbd and hemp ominteint. My son took a workcampers job so we could get him to therapy and he quit.he has put us all through hell.and nobody is willing to help us.cause of him.all of his so call friends who don't have a thing to do with him anymore they see a change a hateful person

Hello. My husband suffered a moderate-severe injury 23 years into our marriage. We are now 4.5 years post injury. For the first year, he couldn't remember our children's names (we have 4) or almost anything from before the injury. We spent 15 months in a new city so he could receive treatment on a daily, out-patient basis. We have been home for nearly 2 years. He has 10 therapy appointments a week. He is driving us all crazy. He has improved so much, but the deficits are still large. When 5 parts of your brain are damaged, there is so much work to be done. When you are injured at 53, it's a long, slow process. He is very angry, can barely stand to be around me 60% of the time, invents reasons to be angry, accuses me of things I have never done, tells me I said terrible things that he actually said to me (not the other way around), etc., etc. Our sons can't understand how I can stay, but don't want their father left alone. He's ruined the loving, supportive family we were before he was injured. You see, he was a long-distance truck driver. We only ever say him 1 day a week and he spent most of it sleeping. When he was awake, he did nothing but criticize every aspect of our lives. Now, we were stuck with an even worse version of him. We have helped him with his terrible balance, caught him as he fell, help him learn to speak again, work on every possible aspect of his recovery. He trashes us to anyone and everyone who will listen--neighbours, friends, family, cab drivers, his rehab team, etc. He told me he can barely stand to be in a room with me. He opened a separate bank account last week and yesterday he deposited a $19,500 disability cheque to the account. He's called a lawyer about a divorce. I am torn between gladly letting him divorce e and feeling like he's not capable of making that decision and surviving on his own. Neurologists say he is likely to be in a care facility by the time he's in his mid-60s. Then all the money will be going to his care and I will be left in poverty. I have my out, why aren't I taking it??

I'm reading your comment and wondering how your situation has turned out? I married my husband just over a year ago. He experienced his TBI about 11 years ago - way before I came into the picture. During our courtship, which lasted about two years, it seemed he put me on a pedestal and treated me incredibly well. We had mutual respect and love. I knew about the injury, and did think there was some "emotional immaturity," but I overlooked it because, otherwise, he was the sweetest man you could ever know. However, shortly into our marriage, he began treating me almost the exact same way you describe: seems to invent reasons to be upset with me, accuses me of things that he himself has done/ is doing, has completely unrealistic expectations of me (I lost my father, whom I was very close with, just three weeks after our wedding and I'm an only child so had to settle his estate as well), angry outbursts and raging where the reaction is not at all proportionate to the so-called offense, and is completely unreasonable. Just earlier this week, a small request turned into a huge blowout and he left, throwing off his wedding ring and saying it's over and that the relationship is toxic. I hadn't heard from him in days, but now he's sent me a text today telling me this is his new number and to remove him from our cell account. I'm astonished and feel like the wind has been knocked out of me. Part of me thinks that maybe this really is for the best - just be done with this craziness - but the other part is so sad. I made a commitment to him when I said my vows. I'm also confused; there have still been so many fun times and special moments together in that year, too. Don't those mean anything to him?

Hi TAS. It sounds to me as if you have married a very manipulative person, who possibly has a personality disorder. However, I don’t think your hubby’s behaviour can be totally put down to his tbi. Do you know any of his friends who knew him before his injury? May be this is just him - someone who can turn on the charm for his own gains and then becomes abusive when he has gained what he can. Did your father leave you anything in his estate? Did your husband know you were going to gain financially when your father died? Could this have been a reason for him wanting to marry you?
I know it’s hard, I have been there, but living in an abusive marriage is soul destroying. Get out while you can. Be a victim of an abusive marriage, not a victim of domestic violence or a murder victim.

I can very much empathize with your life story and others here, as I'm now 58 but at 56 I experienced a stroke/brain injury. I could not get out of bed for about three months and then only a wheelchair for another few months. I've lost any real sense of time but my wife and I are now separated after 34 years of marriage and I live in an apartment with my son that is attending college and her with the younger son in his last year of high school at our house. I had a terrible time conflating conversations, disagreements and past actions with my wife. I was very irritable and frustrated hourly from not being mobile or able to do basic things like dress myself which caused many arguments daily. I will hope and pray for each of you that experiences a brain injury either directly or as a family member. At the very best it is difficult. God bless each of you, I hope you can find your paths and peace in your life.

My husband of almost 10 years was in a car accident about 2 years ago; suffered a TBI that came with spasticity affecting the left side of his body, making it very hard to walk and write. He was in a coma for a few weeks, in-patient care for 6 mos, plus another few months of outpatient therapy. He definitely could have used more therapy, but insurance is a joke and it's such a battle trying to get additional coverage. Once he moved back home, his anger was too much to handle. Throwing things, breaking things, cursing at me - all in front of our kids. They were 1.5 and 3 when the accident happened (before the accident / after the accident are now part of my daily vernacular). My oldest child was also having some developmental issues that we'd been in the middle of dealing with when the accident happened. I got him into a program with the school district, and after lots of testing we recently landed on an autism diagnosis. I was beyond torn about divorcing, but 1 yr after the accident, I decided that it was for the best - for both myself and my kids. Our marriage wasn't the best before the accident, and he'd always been an angry person. The injury magnified that. I went to therapy, both by myself and with him, but there was no getting around the effects of the TBI, and I didn't want my kids growing up in a household filled with so much bad energy. There was no way to feel good about the decision, I just knew it needed to be done. He was cursing me out via text one day, and I'd just had it. I hit a wall and I was done. His behavior is markedly better now that we're divorced, although it was quite a journey getting here. Had to kick him out more than once for bad behavior; he has come to understand that it will not be tolerated if he's to see the kids. Drawing that hard line was important. They see him every other weekend and Wed for dinner. I was lucky in that his brother offered to live with him before I even said anything about divorcing - I think he could see it coming. Life as a single, working mom is hard, but I draw on every resource I have and have a wonderful family that helps juggle things a bit. A year ago I felt awful. Today I'm much more optimistic and things have finally settled down. He is also making progress, so perhaps it was for the best. Best of luck to you all. It's a tough road to walk.

My husband had a sca and now abi its been almost two years he calls me mom and can’t do anything for himself. I live through hell every day we have children and I have
Lost my best friend my soulmate. We are in our mid thirties. I now have to get him in a skilled nursing facility because if I don’t I won’t be here for my kids are him.

I forgot to mention that he just turned 30. We have been married for 4 years and this is our first child. I can’t physically help him with all the care that he needs and my inlaws are doing everything. I feel I am married to his family and the differences of opinions and comments towards me can be cruel at times. I don’t feel this is a healthy way of living and I don’t want this life for my baby. It is devastating that my husband can’t communicate anything to us or be a bit independent. It’s only been 8 months and with my newborn’s care and everything else in the house. I feel very tired all the time. When do tbi survivors start communicating or gain some memory back? There are so many unknowns that drive me crazy since I have to make financial decisions as well. I know that 8 months is still early in their recovery, but I don’t think I can be living with my inlaws (4 of them) for long. Right now I have no marriage and I am trying to do the best decisions for my baby as well.

My husband and I had a horrific car accident while I was pregnant on July 2018. I didn’t get as hurt as he did. He had his leg amputated and was in a coma a couple of weeks. He had his pelvis broken and had multiple surgeries. We were 5 months in hospital. Being pregnant at the time and not leaving the hospital to be with my husband was really tough. Seeing him this way hurts so much. He acquired a diffuse axonal injury grade 3 and hypoxia due to the lack of oxygen. It’s been 9 months post accident and he is receiving therapies at home. He is total care right now and my heart feels heavy seeing him this way. He has limited mobility and we have not found a way to communicate with him. He smiles and eats with help. I am devastated to the thought that he can remain like this. I am trying to raise my newborn and work and take care of all the medical stuff, but it’s becoming very overwhelming. I have the help of my inlaws since I can’t physically help with my husbands needs. I have no option to not work since I have to maintain our house payments and support everyone that now lives here. Is it to soon to see improvements? I love my husband and wish he coukd be able to enjoy our newborn. I don’t even know if he knows who we are. It has been a life changing event that I wish for no one.

My husband is 75 and I am 65. 12 years ago he refused to get a second opinion, and had brain surgery to remove 2 large non-cancerous tumors. He was left with frontal lobe brain damage. He also has only 10% of his hearing left, not due to the surgery. The man I married 39 years ago died on the table. This man is mean, cruel, argumentative, aggressive, completely self-centered, selfish, and gets in fights easily with anyone who he thinks is doing something he doesn't like or doesn't want them to do, like risky driving (doctors said no driving, but he won't stop), road rage, fights in restaurants, almost getting arrested for causing disturbances in airports...refusing to eat what I cook (I am a good cook) because he wants fast food. He is a raging diabetic too, and will not adjust his food. I could go on and on. I know his triggers and try to manage life around them, have tried numerous doctors who really haven't been able to find meds that will help manage his behaviors. I am still trying to work full time, but I am his caretaker. He doesn't understand what's said to him, and he blows up frequently. He has a fit if he doesn't know where I am every minute of the day. I have no friends left. I am totally spent, emotionally, physically, mentally, and spiritually. My advice is get the heck out if and while you can. I wish I had.

I understand how you feel. My husband went into cardiac arrest two years ago, survived, but is a stranger to me and my two young sons.

The man who was my best friend and my “go to”person never woke up from that 4-month coma. He is mean, argumentative, and has no short/long term memory.

He was the most financially responsible person I knew, but shortly after coming home racked up over $26,000 of credit card debt that I am still struggling to pay off.

I know none of this is his fault, but my children and I are suffering right along with him. All we do is fight, and I am currently looking into divorce options.

I am sorry for all that you are going through, but, selfishly, I am glad to hear that I am not alone. I have no support from my family. They only see his side, and call me cruel and cold to him, but they don’t live in my house, and they have no idea what we, as caregivers, go thru on a daily basis.

Stay strong and take it one day at a time. That’s all we can do.

Believe me, you are not alone. I had a massive stroke 5 yrs ago and my husband of 50 yrs treated me in the most horrific ways. I have no means of my own so I just love with this. Your advice is valid. Run away while you can do so.

I survived a 50mm brain aneurysm rupture in 2010. My symptoms started well before that summer day in July, I became someone that I don't even know, I act out and can't understand how to control it. My wife has always been difficult, but I love her nonetheless, and she has taken great care of me and our children. I dont think she knows what I go through everyday and its hard having her go to work while I sit in an empty house with nothing but my thoughts. Truly I am at a loss, I feel that the man I used to be died over 10 years ago. What's life without your identity? I wouldn't wish this life on my worst enemy.

Are you able to engage in programs and activities outside of the house that are geared toward people who gave survived TBIs? Check with local social services department or the Easter Seals program?

My folks have been married sense they were 18 years old. My father suffered two bleeding cots on his brain at one point he did not now who I was. Today they are in their late 70's and getting a divorce my mother has put my father in a nursing home and divided the properties, so I am told. This is hard on me for two reasons, one I am daddies girl, and two my partner suffered a massive stroke this Feb 2018 and he is not the same and we are having problems in our relationship. I am so overwhelmed.

What I experienced the other day absolutely had to feel like what it feels like when a spouse dies. When I woke up, I realized that my best friend, my strong, unselfish, helpful, resourceful, loving husband of 12 years was gone. It hurt so bad, and it was surreal. It's plain shocking. I'm sooo very grateful he is not dead! My husband had a stroke January 2017. He had some paralysis for a few months and lost his job and health insurance during the rehab time allotted. He was denied social security which was not the overall goal of course. He continued to rehab on his on refusing to go to a doctor and get rated for low income. During March of the same year, I became ill and continued to progress. I am a colon cancer survivor now plagued with gastroparesis and neuropathy of the stomach. I also am a veteran with PTSD. My health quickly deteriorates in June of this year. I am seeing my primary doctor to discuss feeding tube just to make it through winter to handle m' own end life affairs. My husband behaviors range from 10 yrs to 17 yrs old. He is 50 and I am 57. I tried to tell his family about his behavior and they attacked me, The saddest part of all of this is my husband doesn't remember me as his awesome loving wife whose been there for him and with him being everything a wife is suppose to be. He sees me as someone who doesn't like him. He doesn't understand that he's different. I had to get honest with myself real quick today. I did everything I could to get my husband to go to the doctor! He refused. At this time I'm too ill to deal with someone who ranges from 10-17yrs in behavior. My husband is in God's hands and so am I. God knows all about this and wipes my tears. I was able to convince him that bankruptcy was best, which will happen Monday and he started a new job recently. I only want the best for him. I am going for a divorce ASAP!!!! No room for counseling. My condition is too fragile. I feel for all of you and glad I found you. I hope later on my husband will remember that we were sooo happy together and we both just got sick and were incompatible. Maybe we could have a conversation one day :(

It’s destroying me and my family, Thankyou for sharing Xxx

I don't know if anyone still reads these but this is a real need to me... I'm 28 and my husband is 32 we have been married for 12 years and we have 3 young boys 7, 6, and 1 we had another child but he passed away in 2016 (we made it thru that tragedy together). Last month my husband was hit by a car while he was on a bicycle. He has severe traumatic brain injury and he was in a small coma from two weeks. He came out of it and at first was confused and sweet and kind but now he's still confused but mean, hateful and cruel. I love him with all my heart and he's the father of my children and I don't want to divorce him but he scares our children and he's mostly mean and cruel to me but sometimes he can be towards them. I don't know really what to do or if he will ever be my husband again. When I look at him I see and hear my husband but when I look at his eyes I see a complete stranger that only wants to hurt me and cause me pain and sorrow. I'm not the try to jump and divorce my husband just because of hard times but for the first time in my life he really scares me and I'm afraid to be alone with him... What should I do? Do I wait and give him time? Do I walk away now while I still can? My heart is saying one thing while my head says different. All I can do is cry I can't sleep I can't eat the only thing keeping me going is our boys and the thought that maybe he will come back to us if not for me then for our boys all they do is cry and want their Daddy's... I'm so lost please someone give me some advice... Please

Man this pierced my soul. I hate this for you and i dont have the answer, but my answer would be Pray and let God guide you. Sometimes we know the answer, but we obey our hearts and that’s not always the best decision. You have to do the best thing for your boys.. They are so young and need you mentally and physically. If you decide to leave it doesn’t mean your giving up on your husband, it just means your giving your children a healthy mom. Hold on to your memories and everything you shared and always tell your sons how great there father was pre-TBI and keep praying that he will get better.. I’m sending you virtual hugs and I hope your doing ok mentally

If anyone is reading this looking for advice. I just want to say don’t stay for too long. Don’t stay beyond yourself. My spouse was in a motorcycle accident 1.5 years to the day after we were married. Those first 6 months of being a caretaker were hell. He was his normal loving self for the first two weeks but as time passed his mental state went down hill and his personality started changing. We were in our twenties. He is 5 years older than me and I was fresh out of college on my first job. I had moved 800 miles away from my family to start a new life with him. His family had a low opinion of me and he was always kind of the black sheep. Suffice to say there was no support for me as a caretaker. People always root for the survivor but very rarely for the caretaker. As his mental state declined I took on more and more roles breadwinner cook house keeper nurse entertainer social buffer financial planner auto mechanic and all around decision maker. He became depressed dependent needy sexually aggressive socially awkward dishonest disorganized angry and unwilling to help. Every thing became about him in his world and in mine too. He was always a brilliant and charming man. But as his mental state deteriorated it became clear that he had been using some of that charm and cleverness to deceive those around him. Lies that he had told me before we were married were uncovered and we began the difficult task of rebuilding our relationship mid TBI recovery. Almost a year later when he was released to drive and go back to work dishonest was discovered there too and he was fired. I had thought it was now behind us all but now that he was functioning enough to contribute to the household through chores or by getting a job he didnt. I accepted that his personality and abilities changed and encouraged occupational training or trade school. He tried a few part time jobs and eagerly accepted my offer to put him back through college. These all fell through for one reason or another. All the reasons why he couldn’t wouldn’t didn’t contribute became my or someone else’s fault. It was a six year struggle. I was always in care taker mode but as time went on he became more demanding. His family viewed our failing marriage as the fault of a tragedy and a unsubmissive wife. I became severely depressed and fought through it every day to go to work and provide for our family. I would only consider life for 5 minute sections of the day. I was having panic attacks 6 times a day and could barely think. He started using this against me to isolate me from my friends. He would say he would do something and then not do it. Then and tell me I had misunderstood or shouldn’t expect him to do it anyway because after all he had a TBI. He couldn’t do this or that because he had a TBI. It was my responsibility I was the more capable one anyway. I became suicidal and began cutting. I focused the issue inward. Then we tried one last go at trade school. He had to move into the dorms. I gained some personal space and began seeing this emotional abuse. When he didn’t do the assignments, flunked out and came home telling me it was my fault I didn’t feel guilty this time. I felt angry. The coin flipped and I was no longer on his team. I was desperate to defend myself and in my sleep my dreams became so violent toward him it scarred me and I considered suicide again. I sent him back to his parents and filed for divorce. It’s been a year now. As time goes on I feel myself healing from the scars of emotional abuse that I didn’t even know was there. I almost didn’t get out in time. CARETAKERS please don’t let this happen to you. Abuse from the survivor of a TBI is still abuse. Yes an injured person may suffer frustration and take time to regain the social skills to handle that frustration appropriately. Just make sure they have good intentions toward you before you sacrifice your self on the altar of their health.

My husband had a brain bleed 2 years ago. His personality changed. It will always be changed. He is still in a wheelchair and needs help eating. We had some arguments and anxiety and trouble regulating emotions the first 8 months. Now he does his work out twice a day and is content to watch TV the rest of the time. I try to take him out for a car ride now and then. Try to get him to sit out back on the deck in the sun and visit about our garden. Try to make new dreams with him. We are 49. He seems to live in the moment. He can remember the past very well. We havent had sex in over a year....not sure why...Our marriage wasn't the best before the stroke. In some ways it's better now....I think about leaving...I think about staying....It has been 2 years since his Brainstem Bleed. My husband got nasty with me and I left him with his mom for 2 months. He accused me of spending all his retire money. (It was spent on taking care of him 24/7). Once I came back he was nicer. He tried to rehash some stuff from the past and I told him I was sorry for hurting him and could we please move on and never bring it up again. He never has. Sometimes I wonder how much of a difference I am making. Would he even miss me when I am gone. I went to CA for a couple days and he kept his phone on the whole time and texted me! It was really sweet. He tells me....thank you my love....all the time....

To original comment poster; You expressed how I feel so well. We have lost everything except each other (in the flesh). My heart is broken. He is cruel. I am so sad.

First off, I’m so sorry for the tragedy you and your family have experienced, and will continue to experience. I see you and I’m with you and I’m sending love, wherever you are.

What you are feeling is all very realistic, rational, and (dare I say it) normal. I am not a medical professional, so the only advice I can offer is from a place of understanding: my husband experienced a severe TBI three years ago and was also in a coma (GCS of 3) for two weeks. Even with so much time having passed after my husband’s injury, he is still overcoming, re-learning, and compensating for the damage. At the beginning, what you describe in your husband also happened with mine - he was sweet at first, and then slipped into behavior that was aggressive, angry, and combative. But it wasn’t permanent, and through months of inpatient rehabilitation, and years of community care, that frightening behavior has mostly faded away. He is still impulsive, and argumentative sometimes, and in some ways the person whom I married will never return. I miss the old him everyday. But he’s a new version of himself, and there are many joys and (good) surprises with him. He’s a good man.

Your husband has age on his side. As he was injured riding his bike, I’m assuming he also has good physical health in his favor. One month post-injury is not a long time. There is a long road ahead but he’s got a few things in his corner already. What do his neurointensivists abd physiatrists say? Has he started physio yet? Even just a few minutes (more each day) of gentle physical activity, like squeezing a stress ball or sitting up in a wheelchair, might help stimulate his brain. But again, I stress: I am not a doctor.

Brain injury affects each person uniquely. To my understanding, there is no normal path of recovery - what happened with my husband over years may not be what happens with yours. Yours may improve even more! But I understand that you have kids to protect. It’s a traumatic situation for your entire family. My advice would be to wait to make any big decisions, like divorce, for two years post-injury. I was told that the timeline for understanding an individual’s TBI is 2-5 years, so I say wait the two years. With your support and patience, and with rehab and community care, your husband may be able to re-learn the way you and your family need to be shown love.

Do you have someone that you can turn to for support in all of this? A grief counselor, social worker, psychologist, etc? I’m sure I don’t need to say that your mental health is important to preserve and protect. What you have gone through and will continue to go through is traumatic and heartbreaking and you need someone to care about you too.

These days, my husband says the only reason he has recovered as much as he has (back to work, officially released from the hospital five months ago) is because I stuck by him and encouraged him, and sometimes pushed him with some tough love, every step of the way. The man you fell in love with and the devoted father to your kids is still in there: give him some time to come back to you.

Have you talked to your neurologist or a neuropsychiatrist that deals with TBI? My husband had a stroke 3 yrs ago and his personality changed and he used to use vulgar language, was mean and basically impossible. He is going to a psychologist now and they put him on some medication and he is doing quite a bit better.

Hi. My issue is my husbands symptoms showed up 8 1/2 years later. My husband had a brain injury about 13 1/2 years ago. A tree limb fell and hit him. He was in an a coma for about a week. He was nice and sweet and took a few months to get back to the way he was. It was about 8 years later I started seeing signs of depression and arguing about everything. I tried to talk to his neurologist and they wouldn’t listen. Privacy act. He started to get emotionally, verbal and mentally abusive to me and my 4 kids I’m still with him. It has gotten really bad. My kids are older now but they have changed because of it. You don’t want to walk away because you love them-husband but you have children. They need to be in a healthy environment. I have grown to resent my husband. I feel for you and please talk to someone professionally.

Can I get my marriage annuals because I had a crash and wasn't competent but 2 yrs , I'm competent and didn't realize I would never marry her and now she threatens me to take my money that has supported her and our 2 children, but marriage was never going to happen before my brain injury. I want an annulment

Hire a proven attorney with experience in TBI.

Can I get my marriage annuals because I had a crash and wasn't competent but 2 yrs , I'm competent and didn't realize I would never marry her and now she threatens me to take my money that has supported her and our 2 children, but marriage was never going to happen before my brain injury. I want an annulment

I am a caregiver to my husband. We were married 3 years when he had Encephalitis which causes an aquired brain injury. He is physically ok, but has short and long term memory issues, cognitive issues, emotional issues, as well as many other issues due to the brain injury. He is on disability because he can't work due to cognitive/memory problems. I work full time, an hour away from home, and he sits home watching tv and going on the internet all day. He can't really figure out the computer very well so is always asking me things (confused about his email and facebook). He has Erectile Dysfunction due to the brain injury but is obsessed with wanting to have sex. He joins dating sites, buys "free" - soon to be billed $79/month pills that he hopes will help. He is not really abusive, but basically acts like he's a kid. I FEEL like he's one of my kids, not my husband and I have no desire to have sex with him even if it worked!!!!! He is like a leach and when I get home from work, he sits right next to me on the couch, almost on top of me... lays his head on me like he's a child, has to ALWAYS be sitting right next to me so that I have NO personal space!!! I know he's craving attention from me but I just can't give it to him in that way... we hold hands, I hug and kiss him but I am not "in love" with him any longer. He also does NOT shower, because he forgets so sometimes he goes almost two weeks and I can't stand him laying his head on my shoulder because he smells!

He does the following around the house. Makes coffee, feeds the dog and brings him out, mows the lawn and snow blows the driveway. He has broken the lawn mower and snowblower SO many times it seems like any time he touches them something is broken and it causes SO much money to fix everything.

I am only 53 and he's 54. I am just so depressed with the thought of spending the next 10-20-30 years with him... I can't divorce him or leave him, because he always tells me "he wouldn't be able to live without me" and he sometimes thinks he would be better dead because he has lost the "old me".

I feel like i'm a horrible person because I should be happy that he survived the illness...

I wish there was a place to talk with others in the same situation... but everyone on here seems to be anonymous.

:( I am just so unhappy!

I know just what your going threw my husband off 15 years
had a brain tumor removed. I do everything work , housework , cook clean tell him to change his shirt, shave, wash hair.
Hes really mean to me since surgery/radiation.
He always keeps saying you can get sick too, he thinks i make no money and dont help at anything.
He cant work he cant drive. He dont want me to go anywere .
I have no friends . We have nothing together in the bedroom .
My life and his is upside down. Im heart broken and i love him dearly.

I agree and understand!

I forgot to say. In the UK we have a wonderful group called Headway (headway.org.uk) . As you have to blow snow from your drive I am guessing you are in America. Try googling ‘Brain injury associations/groups near me’, I would be amazed if there wasn’t a group within driving distance for you. If not, I am sure there would be some others who would love to join a group so why not set one up? Apart from anything else it will give you something to do.
Headway holds group meetings for tbi and abi sufferers and also meetings for their carers. The patient groups consist of a chat, coffee and therapy etc. The carers have comfort in knowing they are not alone.
Hope this helps.

Hi, I speak as the ex-wife (nearly) of a man who had a tbi. I also suffered the same ‘ I cannot live without you’ pressure in the early days. 2 years after my ex’s accident he had spinal surgery and then went completely mental ( can I say that?) . He became the abusive person he still is - 9 years later.
The only thing I can say is that if your husband was really suicidal, having you around wouldn’t stop him doing it. It seems to me that your husband has got himself into a bit of a rut and despite you providing the ladder for him to climb out of that rut, he is just sitting there. Maybe he is frightened, knows he will stop being the centre of attention etc etc if he becomes normal again. He also has you doing exactly what he wants you to. He is behaving like a child, so treat him like one. Take him to the shower everyday, undress him and make him get in. If he refuses, refuse to sit next to him and tell him he smells. If he really wants your attention he will shower. When you cook, as him to help - get him to peel the potatoes, cut up veg etc - imagine him being a child who is learning. You can’t expect a 13yr old to know how to use a potato peeler if he/she has never seen one used.
If this doesn’t work after 6 months, or less if he becomes abusive, move out and see how things go. He will either make a real effort or you’ll drift apart but either way I think you’ll be a happier person.

Are you still on here. Your story is very similar to my own.

I’m here as well...I haven’t posted on here before but I do read postings daily. I’m in the same shoes...my husband was 47 and I was 45 when he suffered a major stroke about 3yrs ago. I feel like so many others in the same situation...”wife...now defined as his caretaker”...please respond back if you would like to talk and that goes for anyone on this site...most of us could probably never imagine being where we are in our lives right now...but we are. Talking, venting, listening and exchanging information could help all of us. If anyone would like to talk then reply back and I will figure out a way to get you my contact info! Blessings to everyone!

I'm here as well...I actually could have wrote the story before yours, by "anonymous". Not easy to feel like this everyday! Would be great to share, and learn to deal with what has been dealt to all of us. Not getting any younger here, and nothing is going to ever get any better...as it has already been about 5 years. Not fair to "him" either to feel this way, but I do...and I can't change that. Does it make any sense to love someone, but not be in love with them....it's sad. Feeling obligated, and guilty for wishing I was not in this...Don't like who I am when I'm mean, say something mean, or frustrated with him...Not healthy for anyone!

I'm here if you want to talk?

I understand exactly how you feel, for a great deal of what you wrote it could have been me writing the story. My wife came down with Encephilitis almost 12 years ago now and she has came a long way from where she started but she is still not or never will be the person I married. Her craving for attention and being another one of my kids is exactly the way I feel and now my kids are all getting older and can all drive so they need me a lot less and are gone most of the time so that just leaves the two of us and unless I am sitting there beside her or at work she does her best to make me feel bad for not being right there beside her and sometimes it doesn't even matter that it's work. Like yourself I am 53 and she is 52 and to think that there is 20-30 more years of this or more is to say the least overwhelming in many ways!! Funny I still love her but not in love with her once you go into Caregiver mode the relationship changes and I'm not sure it can ever be the same again even if the Caregiver wanted it to. Wish I had answers for you because I have the same questions and the same feelings, I just want to be happy and I'm not sure that will ever be the case again other than for moments here and there. Thing is I really don't think there are any "good" answers and I will be the first to tell you NO ONE can judge whatever decision you make about staying or going unless they have lived it they can NEVER understand!!! Good luck and I hop nothing but the best for you and ALL of us here.....

Hi there I need to reply to ur story. I'm 42 years old my husband is 49 we have been together for 19 years married 10, back in February he suffered a stroke, it was a bad one that has effected him in so many ways. I came home a couple months after the stroke, I took care of him for a few weeks but I couldn't anymore, he's incontinent, can't walk well, it effected his cognitives, he can talk but stutters a lot, so I decided to put him in a nursing home. He's still there, I visit him everyday, stay with him an hour or two at a time, try and encourage him to get up and do more than watching TV, but he refuses. We have 4 children, two older ones that live outside the house and 2 that are still home, I've decided to go back to work which he wasn't happy about, but I need to. I've lost 45lbs, I'm independent now, raising the kids, feeling really good about how my life is going. I've come to the conclusion I'm not in love with him anymore, I feel horrible but that's how I truly feel, and don't want to do this anymore, my mom n older daughter are so angry with me, but why can't I be happy...

My step son in law tried to commit suicide after only 7 months of being married to my step daughter (I have had her in my life for 28 years, she is 34 years old now). She found him in their garage, with a heavy duty electrical cord on his neck) they are both RN,s. She got him down to the floor. Started CPR, called the paramedics. In several hospitals, they had to bring him back.....now 2 years later, he still has the brain injury, along with 2 other brain injuries from being in the Army. In Afghanistan......he can’t even walk, feed himself, go to the bathroom. Can’t see and his brain is a mess...she can’t do this any longer. And is going to file for divorce... this story is too involved...but he did it to himself and we don’t even know why.....he remembers some things,,,is on so much medicine....his parents have him in a private home now, with 24 hour care givers.....her heart is broken, she had him home for four months...she has to work and had a caregiver at her home....he gets angry at times and thinks he is somewhere else....I could go on and on....my heart goes out to all of you who have posted on this site....thanks for listening.

Have been in same situation for seven years now. I am 65. Do not feel guilty. You have a right to choose a healthy and happy life for yourself. It can be soul crushing to live with this day after day. Get out while you still can. Run don’t walk and don’t feel bad. It should not have to be a life sentence for you. The resentment will only get worse

When you were married did you get married in the church?
Also if so did you take the vows for better or for worse in sickness and in health. ?

I have been married for 20yrs. I am the baby in my family with siblings 16 yrs-7yrs older than me. My father was a minister & became disabled with MS when I was 10yrs old. My mother stayed by his side until he passed away 8yrs later. I saw 1st hand what it means to live the vows you take when you get married. Five years ago my husband had a horrible motorcycle accident that should have killed him. He suffers from short term memory loss. I have stayed by his side faithfully because I vowed before God to stay. I have been verbally & mentally abused for the last 4 years. My husband was the love of my life & I now feel like the man I married died that day. He has informed me recently that he wants a divorce & won’t go to see a counselor or a doctor for anything. I have committed my life to caring for him the last 5 years but he says it doesn’t mean anything to him & he doesn’t care. I have become a shell of my former self & my children, family, & friends all tell me that I don’t deserve to be treated like this. I believe 100% that God has the power to perform miracles but does He say I have to stay in a marriage with someone who has no respect for you & shows no love for you anymore? My heart & head are completely broken & I don’t know what to do anymore. I never wanted to lose the love of my life but that man isn’t here anymore.

What is your point?
In my case, it was my husband's self -destructive chain smoking that caused his brain aneurysm and his subsequent alcohol abuse that further destroyed his cognition. If he caused his poor health, does that still count as breaking my vows?

Furthermore, we are all here for support. Your judgemental comment is in poor taste and you should be ashamed.

One's belief in god, or lack thereof, or vows of marriage are none of your business and you have no right to even ask.

I don't know why religious people assume everyone is religious. No, I don't believe there's some twisted, jealous, vengeful, omnipotent being that controls everything. If he's in control now he's not very good at what he does so I'm not sure what the appeal is. I could go on forever. Saying "what about god" is so dismissive of a person and their problems. Not helpful.

Read your blog really sorry for you, my husband had a stage 4 aneurysm has come back fairly well.but he has some kind of dislike for me he always tells everyone I hurt him. I am on pension and have one adult son . Husband is living in a beautiful facility 4 minutes away. I live in our home but I want to change my life. I know he will not try return home. We can still have a life together but I find hard to be married to someone who is vacant. That sounds harsh , I have no friends and I resent being alone. However when I hear where you are at. I feel so badly for you. I guess feeling sorry for ourselves does no good.he left me with a mess I am slowly digging out . My life is good with my son but I look forward to him finding someone so he can enjoy his life. Why does a person have to live in such an unhappy state. The internet is. Quoting how things get better it does not sound like it.i am even scared to find some one else I do not want anyone else's problems. I was married 40 years worked hard now I have nothing to look forward to. I am so sorry for both of us but as I'm told by perfectly happy people that I am a pity party and get a life. Where does a person start. My husband thinks he is perfectly fine.

I am so sorry. I am going through the same thing and nobody understands.
I think about suicide a lot.
I can't just leave.
I might have to though.
I can't live like this.
He is emotionally empty.
This is not who I fell in love with.
I don't even know who this person is. I feel like I am a caregiver and roommate. That is all.
The man I fell in lobe with was a hard worker who helped pay the bills, he was a leader, very spontaneous and fun.
I am not attracted to this person.

Hi... I am in the same boat, husband had a stroke 8 years ago, I am his caregiver and am subject to his hostility on a daily basis. The thought of doing this for another ten years crushes me. Like you husband, mine thinks we should still be having sex but I absolutely can not, he is like a child to me, and he makes me feel guilty saying things like "you should be doing your wifely duty", etc. I cant go out the door without him saying I'm having an affair, (at this point, I would welcome the distraction).
We cant do vacations or anything like that because of his severe cardiomyopathy so I am starting to go by myself... He's somewhat independent and I really want out of this prison but the guilt of leaving a disabled man weighs heavy on me...what to do?

I'm sorry about your loss. I have been struggling with exact issues with my wife. She was injured in a car accident in 2000. Would love to chat. We live in Oregon. And I'm thinking about trying to dissolve the marriage.

My husband and I have been married for 15 years. He had TBI 4 years into our marriage, it’s not been 11 years since his injury and it’s been a rough ride. His loyalty, appreciation and all the love he gives me are the 3 things that keep me going every day. Unfortunately, they are not enough to be happy on the inside. Since his injury I’ve had to take on so many roles, I live my life and his. He is physically ok but can’t function accurately if he was to work so I work with him. He is a very smart man and has established our own business for us but he thinks of what needs to be done and I carry out the tasks since he can’t. So basically I do everything hands on except he gives the orders. My main problem is he forgets that I have 3 kids and they need me, only because he is trying so hard to make a living for our family. He is a great guy so please don’t misunderstand me. It’s just he’s because I am puke din many different directions. I hate that it’s always about him and he feels bad for himself but he doesn’t realize that his injury affected both of our lives. Our business isn’t doing well so we are now about to be out of business but the sad part is he can’t go get a job so I will have to. I have been having bad thoughts about our marriage and it makes me feel guilty but I am scared and I don’t want to think those thoughts. To the individuals who had TBI please remember you are not suffering alone, your spouse is suffering too. I suffer inside and I never show him but it’s eating me up and I am always stressed.

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