I guess I would consider myself to have a Mild TBI. I was always a self starter owned two businesses, always creating and developing products etc. I now have two TBI one in 2007 and yet another in November of this year. What I do for relaxation is work on my jewelry line...at age 64 I am still trying to be positive about my life. On top of it all I have ADHD which I see can be a benefit. I am a true optimist. Anyway the way my TBI has affected me is that I am so much more intuitive...more creative. Oh yes I am an inpulsive shopper and when a thought comes into my mind I'm doing whatever it is before my mind has time to think about it...which could be a good thing! I don't meditate I spend alot of time engrossed in what I'm doing it could be cooking or painting art on canvas or whatever. I've learned to say it is what it is. For twenty-four years I have had numerous health issues...cancer..brain tumor to name a few but it's onward and upward and no looking back.People ask me what's my secret is for looking so young I say I don't worry about a thing worring gets you no where. I'm an athiest and always have been..I believe in me very strongly. I don't pray for things I go after it or do what I need to do to improve my situation...I and only I have control over myself. Live life and be happy. P.S. My memory is extremly poor but I live for the moment knowing if I go to the movies I won't remember it next week...I say who cares!

Apr 7th, 2012 10:11am

I has a friend who was diagnosed for years with Bi-polar D/O. I work in mental health and really never thought he was Bi-polar. In the last couple of years I have had the opportunity to work with client's who are TBI and the symptoms, frustration, angry out-bursts, seizures..etc. I am now certain he had TBI. I wonder if this had happened to others with TBI, that they are misdiagnosed and not receiving the help that they need. I love that you are incorporating meditation into your tool box. I know that scientist along with the Dali Lama have been studying it's effects and I believe it has the possibility of really helping people with TBI. Loved reading your story. Thank you.

Mar 11th, 2012 5:11pm

Mindfulness Practice and TBI, The Gold Mind Meditation Project �Until you have the inner discipline that brings calmness of mind, external facilities and conditions will never bring the joy and happiness you seek. On the other hand, if you possess this inner quality, it will be possible to live a happy and joyful life.� Dalai Lama �Notes to our much loved son, Had - a time of agony, love, sense of loss and hope, encouragement and realization that you have been given life because of your unfulfilled destiny.� Starting lines from the Journal kept by my father, H.C. Walmer D.O. at UC Davis Hospital at time of my auto accident Dec. 31, 1977. This is the story of an auto accident resulting in my Traumatic Brain Injury (TBI) all those years ago. Modern medicine has become very good at enabling us to survive a wide range of traumas that previously lead to death. We, as survivors of TBI, have had a world shattering experience. With Mindfulness practice that I will describe we can learn to befriend our new lives, join with others and find ease in the present moment. Healing is possible. Here�s my story. I was riding in a car with friends, returning to Oregon from California after my college�s winter break. Traveling north on the interstate we crashed into a car that had missed its exit and was backing up on the road. At 66 mph we impacted, crushing the right side of the car where I was seated. My head, with glasses slammed into the dashboard and Jaws-of-Life were required to free me from the vehicle. I was rushed to an Emergency Room in a coma. My brain swelled in my skull. This was before state seat-belt laws, as well as the current medical relief mitigating the critical intracranial pressure of brain swelling. In six days, with the powerful help of my parents and formal medical care, I regained consciousness. I had amnesia, diplopia (double-vision w/ anisocoria, maximally dilated pupils), and severe TBI. I walked with great difficulty. In the short instant of this accident I was not who I used to be. My life was dramatically and forever changed. I went home with my parents and slowly recuperated. Repeated Osteopathic treatments aided balance and motor coordination issues improved over time. Often I was in a foggy mental state, with occasional glimpses of clarity. Plans for my future existed only as fleeting positive images in my mind. That following fall I went back to college thinking my life would be just the same as my previous times there. Not so. It wasn�t. Those plans and images were now derailed, couldn�t get back on the tracks. I had great difficulty learning and people didn�t relate to me as they once did. I struggled with an array of unfamiliar cognitive deficits. I was back at the same place with a different me. This condition of TBI was only vaguely recognized. New frustrations arose to surprise me. My romantic relationship split up, as I would often rage out of control within, emotionally and couldn�t figure it out. Anger would grab my sensibilities. My ability to be a fast study was gone; I now had a memory that was effectively Teflon for new facts. Frustration was a persistent undercurrent of my entire life. Boundary issues and very slow mental processing made for a whole new mix in my social and personal world. Who was I now? In short I needed to learn to befriend a new me, a newcomer to the land of TBI. Fortunately in 1982 I met a wonderful and highly supportive woman. She encouraged me to complete my college degree, get work and we eventually married. She already had a wonderful son and we had two more incredible children and I cannot say enough about the treasure and contribution of our empowering and loving family relationship. As I lost one job after another I met and came to know more of my cognitive deficits. Many relationships break up with TBI. I was so fortunate in marrying this woman who has been strongly capable of holding all that occurred (super mother). As well and quite unbeknownst to me, she, with her character, was actually providing my missing executive functions. Ten years after the accident, a friend said, �I�m going out to Spirit Rock this evening to sit with Jack Kornfield in meditation. You might like it.� Curious, I went and followed the sitting meditation instructions. In a matter of weeks I had experiences of peace and energy. I was inspired. I knew I was capable of learning the beneficial qualities I heard spoken of in the Dharma Talks. I regularly went to the Monday evening meditation sits at Spirit Rock with Jack Kornfield and other dharma teachers. I find all of the �seven factors of awakening� coming into play now in this practice: investigation, energy, joy, tranquility, concentration, equanimity and mindfulness. This tangible result fuels my practice. I know that it makes a difference for me to do it. It�s self motivating: participate and learn this skill and get positive benefit. Meditation is a very forgiving practice. It�s �win win�, you practice skillfully or learn what�s needed. That�s the actual process. Losing track of being attentive with a meditation object and going off into worlds of thought is a natural phenomenon of the mind. That is exactly what minds do and as a person meditating we get to simply observe this as a regular process. Wise instruction here is noticing what the mind has done and bringing attention back to the chosen object, say breathing or the body. When the mind wanders into thinking you haven�t done something wrong, you are gently developing the practice of mindfulness as people have done for thousands of years. Now, I am fruitfully bringing this practice to bear on all my life experiences. I savor being mindfully present with various life experiences, pleasing and unpleasing � yes, both sides. This is not living in fantasy, rather being present with things as they are � feeling emotions and all else as that arises within us and communicating honestly. Regular meditation practice has brought deepened levels of clarity and awareness to how I relate to my self and world. I am more able to hold sustained attention to any chosen activity. I practice everyday either with time sitting or in being awake to the moments of my life experience. With this mindfulness I can accept and gently hold whatever states arise in my consciousness or know that if I�m overloaded, to back off. The mind can be a crazy beast. This training grounds me in a sense of dignified inner wellness and peace including the damages of TBI. Mindfulness practice isn�t about changing me into a better me, rather it�s about befriending who I am. Healing (neuroplasticity) is a long process. Mindfulness and meditation open me to energy and the choice I have in this moment to see clearly the effects arising from my TBI and then be more appropriate in my actions. Not throwing gas on the flames. TBI is still very much a part of my daily life. It hasn�t gone away or been miraculously cured. I have learned to live skillfully with poor short-term memory. Emotional outbursts pass more quickly as I can see them, know they will pass and stop denying them. I have continuing difficulty with interpersonal boundaries. Though I am bright and cheerful, good at getting jobs, I continue to lose them. I identify with all of this much less and that gives me much peace and ease. My wife and I are now �empty nesters.� I savor the sweet memories of our children growing up as well as the amazing adults they now are. I�ve been practicing on this path for 23 years. Last year I had a �Bodhisattva insight� (Buddhist noble goal, contributing to others) and with my dear wife�s encouragement I formulated this mindfulness meditation project. I intend to share and teach mindfulness to fellow survivors in my TBI community. Despite ongoing frustrations with the cognitive deficits, recurring fogginess and loss of jobs, mindfulness practice just works in creating peace of mind. It returns me to a joy and clarity in being with what I love. I am happier and more satisfied throughout my life. TBI has stricken millions. It has often been misdiagnosed and thus poorly treated. In top-of-the line and expensive rehabilitation programs I was taught 'compensatory coping strategies� for the 'cognitive deficits' of my brain injury. These strategies were well intended, but may fall short of addressing our need for inner well being. I had to learn that necessary inner transformation for myself. I learned to sift gold from the gravel of my life experiences and found meaning and a purpose for myself. This is not formal rehabilitation; rather it is resting back into the present moment where neuroplasticity and our bodies� innate healing systems can engage. Acceptance and making peace with this condition arises for me from doing the mindfulness practice. I recommend a variety of meditation techniques for different types of TBI. The first foundation of mindfulness is the body. Here we bring awareness to sensations that actually inform us that we have a body - pulsations, contact with clothing, feeling our weight, that which you directly sense, non-conceptual. Seated, standing, walking or lying down are all useful postures for your body in meditation. With awareness of the body in this way we can then return our attention to the chosen primary object of attention. I usually use the breath as this object, after all it�s everywhere I am and is always present to be observed. What I do is bring attention to breathing, changing it in no way. Watching the entire process: in and out and in and out, exactly as it is. We are developing a skill here, being present with the present moment, just as it is: patiently, attentively in a clear focus of attention. This is a starting point for our inner transformation, in being willing to have it be as it is. Head-injury is an invisible disability, not easily seen from the outside like a wheelchair or crutches. However, it�s still a disability known profoundly from inside, and of course to those close to us. It is very different for each person and family. We must each explore that which will work in your own situation. Gold Mind Meditation Project has the purpose and intended result of helping you transform your relationship with this persistent condition, not promising rehabilitation � choosing to do a practice intentionally that can have us be strong in the present moment, able to be with much that previously overwhelmed us. This is teaching a powerful skill of mind that can be learned with regular practice. It is with energy and joy I now work on actually teaching and using this extraordinary practice with survivor-lead brain injury support groups here in Portland, OR.

Aug 22nd, 2011 8:59pm