The National Pediatric Acquired Brain Injury Plan National Advisory Board of The Sarah Jane Brain Foundation Page 6 of 6

Sarah Jane Brain Legal Center:
An additional component of the National PABI Plan is the Sarah Jane Brain Legal (SJBL) Center. The purpose of the SJBL Center is to provide children and adolescents with the best means of accessing the supports and services necessary for individuals with PA/TBI. The legal center will incorporate education about and the most effective means for obtaining these services from the medical, educational and social services communities or organizations, as well as other legal entities, in the most efficient manner. Always taking into consideration the needs of the child/young adult and family, the legal center will ensure a continuum of service delivery into, through and beyond the legal age for those services. The legal center will serve as a legal hub for any legal issues the child/young adult and family needs and also facilitate appropriate transition and access of services into the adult world and support continuity of those services.

The National Advisory Board has also begun looking at long-term revenue models so the system of care is not solely reliant upon public financing. The Sarah Jane Brain Legal Center will serve as one source of non-public funding. In addition, The Sarah Jane Brain Foundation will develop its own contract research organization (CRO) focused around pediatric acquired brain injuries which should be able to generate significant funding for the system of care over time as well and generate additional research projects. There are numerous other revenue and fund-raising plans which are in the process of being developed. We expect non-public revenue to eventually become the largest component of our budget.

Read the whole National Pediatric Acquired Brain Injury Plan.

From the National Advisory Board of The Sarah Jane Brain Foundation. Used with permission. www.thebrainproject.org.

 Comments

There are currently no comments for this article